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1. The association of outdoor temperature and self-reported Raynaud's phenomenon severity among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network Cohort study

Author: Fortuné, Catherine, Adams, Claire E., Henry, Richard S., El-Baalbaki, Ghassan, Fligelstone, Kim, Frech, Tracy, Harel, Daphna, Hinchcliff, Monique, Johnson, Sindhu R., Larche, Maggie, Leite, Catarina, Nguyen, Christelle, Nielsen, Karen, Pope, Janet, Rannou, François, Rodriguez-Reyna, Tatiana Sofía, Shouffoer, Anne A., Suarez-Almazor, Maria E., Agard, Christian, Alric, Laurent, André, Marc, Beaslay, Floryan, Bernstein, Elana J., Berthier, Sabine, Bissonnette, Lyne, Blaise, Sophie, Bories, Eva, Bruns, Alessandra, Cacciatore, Carlotta, Carreira, Patricia, Casadevall, Marion, Chaigne, Benjamin, Chung, Lorinda, Crichi, Benjamin, Deltombe, Thylbert, Denton, Christopher, Desroche, Tannvir, Domsic, Robyn, Dunne, James V., Dunogue, Bertrand, Fare, Regina, Farge-Bancel, Dominique, Fortin, Paul R., Gauzère, Loraine, Gerber, Anne, Gordon, Jessica, Granel-Rey, Brigitte, Guffroy, Aurélien, Gyger, Geneviève, Hachulla, Erica, Hoa, Sabrina, Hughes, Michael, Ikic, Alena, Khalidi, Nader, Lakin, Kimberly, Lambert, Marc, Launay, David, Lee, Yvonne C., Legendre, Paul, Maillard, Hélène, Maltez, Nancy, Manning, Joanne, Marie, Isabelle, Martin Lopez, Maria, Martin, Thierry, Masetto, Ariel, Mekinian, Arsène, Melchor Díaz, Sheila, Mourguet, Morgane, Nikpour, Mandana, Olgane, Louis, Poindron, Vincent, Proudman, Susanna, Pugnet, Grégory, Raffray, Loïc, Régent, Alexis, Renou, Frederic, Rivière, Sébastien, Robinson, David, Rodríguez Almazar, Esther, Roux, Sophie, Smets, Perrine, Sobanski, Vincent, Spiera, Robert, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Vagner, Damien, Varga, John, Wilcox, Pearce, Cañedo Ayala, Mara, Cook, Vanessa, Dal Santo, Cassidy, Dal Santo, Tiffany, D'Onofrio, Monica, Hu, Sophie, Neyer, Marieke Alexandra, Provencher, Sabrina, Virgili-Gervais, Gabrielle, Matthews, Bianca, Nassar, Elsa-Lynn, Carrier, Marie-Eve, Kwakkenbos, Linda, Pauling, John D, Bartlett, Susan J, Gietzen, Amy, Gottesman, Karen, Guillot, Geneviève, Hudson, Marie, Hummers, Laura K, Lawrie-Jones, Amanda, Malcarne, Vanessa L, Mayes, Maureen D, Richard, Michelle, Sauvé, Maureen, Wojeck, Robyn K, Mouthon, Luc, Benedetti, Andrea, and Thombs, Brett D
Published: 2024
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2. Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPIN) Cohort cross-sectional study

Author: Adams, Claire E., Henry, Richard S., Fortuné, Catherine, Gottesman, Karen, Guillot, Geneviève, Hummers, Laura K., Lawrie-Jones, Amanda, Mayes, Maureen D., Richard, Michelle, Sauvé, Maureen, Assassi, Shervin, El-Baalbaki, Ghassan, Fligelstone, Kim, Frech, Tracy, Gietzen, Amy, Harel, Daphna, Hinchcliff, Monique, Johnson, Sindhu R., Larche, Maggie, Leite, Catarina, Nguyen, Christelle, Nielsen, Karen, Pope, Janet, Rannou, François, Rodriguez-Reyna, Tatiana Sofia, Schouffoer, Anne A., Suarez-Almazor, Maria E., Agard, Christian, Abdallah, Nassim Ait, André, Marc, Bernstein, Elana J., Berthier, Sabine, Bissonnette, Lyne, Bruns, Alessandra, Carreira, Patricia, Casadevall, Marion, Chaigne, Benjamin, Chung, Lorinda, Crichi, Benjamin, Denton, Christopher, Domsic, Robyn, Dunne, James V., Dunogue, Bertrand, Fare, Regina, Farge-Bancel, Dominique, Fortin, Paul R., Gordon, Jessica, Granel-Rey, Brigitte, Guffroy, Aurélien, Gyger, Genevieve, Hachulla, Eric, Hoa, Sabrina, Ikic, Alena, Kafaja, Suzanne, Khalidi, Nader, Lakin, Kimberly, Lambert, Marc, Launay, David, Lee, Yvonne C., Maillard, Hélène, Maltez, Nancy, Manning, Joanne, Marie, Isabelle, Lopez, Maria Martin, Martin, Thierry, Masetto, Ariel, Maurier, François, Mekinian, Arsene, Díaz, Sheila Melchor, Nikpour, Mandana, Olagne, Louis, Poindron, Vincent, Proudman, Susanna, Régent, Alexis, Rivière, Sébastien, Robinson, David, Almazar, Esther Rodríguez, Roux, Sophie, Smets, Perrine, Sobanski, Vincent, Spiera, Robert, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Varga, John, Wilcox, Pearce, Ayala, Mara Cañedo, Cook, Vanessa, Hu, Sophie, Matthews, Bianca, Nassar, Elsa-Lynn, Neyer, Marieke Alexandra, Nordlund, Julia, Provencher, Sabrina, Wojeck, Robyn K., Knisely, Mitchell R., Bailey, Donald E., Somers, Tamara J., Kwakkenbos, Linda, Carrier, Marie-Eve, Nielson, Warren R., Bartlett, Susan J., Malcarne, Vanessa L., Hudson, Marie, Levis, Brooke, Benedetti, Andrea, Mouthon, Luc, Thombs, Brett D., and Silva, Susan G.
Published: 2023
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3. Validity, Reliability, and Differential Item Functioning of English and French Versions of the 10‐Item Connor‐Davidson Resilience Scale in Systemic Sclerosis: A Scleroderma Patient‐Centered Intervention Network Cohort Study

Author: Neyer, Marieke A., Henry, Richard S., Carrier, Marie‐Eve, Kwakkenbos, Linda, Wojeck, Robyn K., Gietzen, Amy, Gottesman, Karen, Guillot, Geneviève, Lawrie‐Jones, Amanda, Mayes, Maureen D., Mouthon, Luc, Nielson, Warren R., Richard, Michelle, Worron‐Sauvé, Maureen, Harel, Daphna, Malcarne, Vanessa L., Bartlett, Susan J., Thombs, Brett D., Fortuné, Catherine, Hudson, Marie, Benedetti, Andrea, Hummers, Laura K., Adams, Claire Elizabeth, Ayala, Mara Cañedo, Cook, Vanessa, Hu, Sophie, Matthews, Bianca, Nassar, Elsa‐Lynn, Nordlund, Julia, Provencher, Sabrina, Assassi, Shervin, El‐Baalbaki, Ghassan, Fligelstone, Kim, Frech, Tracy, Hinchcliff, Monique, Johnson, Sindhu R., Larche, Maggie, Khalidi, Nader, Leite, Catarina, Nguyen, Christelle, Rannou, François, Nielsen, Karen, Pope, Janet, Rodriguez‐Reyna, Tatiana Sofia, Schouffoer, Anne A., Suarez‐Almazor, Maria E., Agard, Christian, André, Marc, Olagne, Louis, Bernstein, Elana J., Berthier, Sabine, Bissonnette, Lyne, Bruns, Alessandra, Masetto, Ariel, Roux, Sophie, Cacciatore, Carlotta, Crichi, Benjamin, Farge‐Bancel, Dominique, Carreira, Patricia, Fare, Regina, Lopez, Maria Martin, Díaz, Sheila Melchor, Almazar, Esther Rodríguez, Casadevall, Marion, Chaigne, Benjamin, Dunogue, Bertrand, Régent, Alexis, Chung, Lorinda, Domsic, Robyn, Dunne, James V., Wilcox, Pearce, Fortin, Paul R., Ikic, Alena, Gordon, Jessica, Lakin, Kimberly, Spiera, Robert, Granel‐Rey, Brigitte, Guffroy, Aurélien, Martin, Thierry, Poindron, Vincent, Gyger, Genevieve, Hachulla, Eric, Hoa, Sabrina, Jones, Niall, Lambert, Marc, Launay, David, Maillard, Hélène, Sobanski, Vincent, Lee, Yvonne C., Maltez, Nancy, Manning, Joanne, Marie, Isabelle, Maurier, François, Mekinian, Arsene, Rivière, Sébastien, Nikpour, Mandana, Proudman, Susanna, Robinson, David, Smets, Perrine, Steen, Virginia, Sutton, Evelyn, and Thorne, Carter
Published: 2023
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4. Evaluation of Measurement Properties and Differential Item Functioning in the English and French Versions of the University of California, Los Angeles, Loneliness Scale‐6: A Scleroderma Patient‐Centered Intervention Network (SPIN) Study

Author: S. Rapoport, Chelsea, Choi, Alyssa K., Kwakkenbos, Linda, Carrier, Marie‐Eve, Henry, Richard S., Mouthon, Luc, Roesch, Scott C., Thombs, Brett D., Malcarne, Vanessa L., Fortuné, Catherine, Gietzen, Amy, Guillot, Geneviève, Lewis, Nancy, Nielsen, Karen, Sauvé, Maureen, Richard, Michelle, Welling, Joep, Varga, John, Adams, Claire E., Ayala, Mara Cañedo, Cook, Vanessa, Hu, Sophie, Nassar, Elsa‐Lynn, Neyer, Marieke Alexandra, Nordlund, Julia, Provencher, Sabrina, Bartlett, Susan J., Hudson, Marie, Benedetti, Andrea, Gottesman, Karen, Hummers, Laura K., Lawrie‐Jones, Amanda, Mayes, Maureen D., Assassi, Shervin, Nielson, Warren R., El‐Baalbaki, Ghassan, van den Ende, Cornelia, Fligelstone, Kim, Frech, Tracy, Harel, Daphna, Hinchcliff, Monique, Johnson, Sindhu R., Larche, Maggie, Khalidi, Nader, Leite, Catarina, Nguyen, Christelle, Rannou, François, Pope, Janet, Reyna, Tatiana Sofia Rodriguez, Schouffoer, Anne A., Suarez‐Almazor, Maria E., Agard, Christian, Abdallah, Nassim Ait, Crichi, Benjamin, Farge‐Bancel, Dominique, André, Marc, Olagne, Louis, Smets, Perrine, Bernstein, Elana J., Berthier, Sabine, Bissonnette, Lyne, Bruns, Alessandra, Masetto, Ariel, Roux, Sophie, Carreira, Patricia, Fare, Regina, Martin, Maria, Díaz, Sheila Melchor, Almazar, Esther Rodríguez, Casadevall, Marion, Chaigne, Benjamin, Dunogue, Bertrand, Régent, Alexis, Chung, Lorinda, Denton, Christopher, Domsic, Robyn, Dunne, James V., Wilcox, Pearce, Fortin, Paul R., Ikic, Alena, Gordon, Jessica, Lakin, Kimberly, Spiera, Robert, Granel‐Rey, Brigitte, Guffroy, Aurélien, Martin, Thierry, Poindron, Vincent, Gyger, Genevieve, Hachulla, Eric, Lambert, Marc, Launay, David, Maillard, Hélène, Sobanski, Vincent, Hoa, Sabrina, Jones, Niall, Kafaja, Suzanne, Lee, Yvonne C., Maltez, Nancy, Manning, Joanne, Marie, Isabelle, Maurier, François, Mekinian, Arsene, Rivière, Sébastien, Nikpour, Mandana, Proudman, Susanna, Robinson, David, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, and Varga, John
Published: 2023
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5. Pain levels and associated factors in the Scleroderma Patient-centered Intervention Network (SPIN) cohort: a multicentre cross-sectional study

Author: Henry, Richard S., Gottesman, Karen, Hudson, Marie, Hummers, Laura K., Malcarne, Vanessa L., Mayes, Maureen D., Nielson, Warren R., Riggs, Robert, Assassi, Shervin, El-Baalbaki, Ghassan, Ells, Carolyn, Fligelstone, Kim, Fortuné, Catherine, Frech, Tracy, Gietzen, Amy, Guillot, Geneviève, Harel, Daphna, Hinchcliff, Monique, Johnson, Sindhu R., Larche, Maggie, Leite, Catarina, Nguyen, Christelle, Nielsen, Karen, Pope, Janet, Rannou, François, Richard, Michelle, Rodriguez-Reyna, Tatiana Sofia, Schouffoer, Anne A., Suarez-Almazor, Maria E., Agard, Christian, Ait Abdallah, Nassim, Albert, Alexandra, André, Marc, Bernstein, Elana J., Berthier, Sabine, Bissonnette, Lyne, Bruns, Alessandra, Carreira, Patricia, Casadevall, Marion, Chaigne, Benjamin, Chung, Lorinda, Correia, Chase, Crichi, Benjamin, Denton, Christopher, Domsic, Robyn, Dunne, James V., Dunogue, Bertrand, Fare, Regina, Farge-Bancel, Dominique, Fortin, Paul R., Gordon, Jessica, Granel-Rey, Brigitte, Gyger, Genevieve, Hachulla, Eric, Herrick, Ariane L, Hoa, Sabrina, Ikic, Alena, Jones, Niall, Kafaja, Suzanne, Khalidi, Nader, Lambert, Marc, Launay, David, Maillard, Hélène, Maltez, Nancy, Manning, Joanne, Marie, Isabelle, Martin, Maria, Martin, Thierry, Masetto, Ariel, Maurier, François, Mekinian, Arsene, Melchor, Sheila, Nikpour, Mandana, Olagne, Louis, Poindron, Vincent, Proudman, Susanna, Régent, Alexis, Rivière, Sébastien, Robinson, David, Rodriguez, Esther, Roux, Sophie, Smets, Perrine, Sobanski, Vincent, Spiera, Robert, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Wilcox, Pearce, Bourgeault, Angelica, Cañedo Ayala, Mara, Carboni Jiménez, Andrea, Discepola, Marie-Nicole, Gagarine, Maria, Nordlund, Julia, Østbø, Nora, Lee, Yvonne C, Fox, Rina S, Kwakkenbos, Linda, Levis, Brooke, Carrier, Marie-Eve, Welling, Joep, Sauvé, Maureen, Mouthon, Luc, Benedetti, Andrea, Bartlett, Susan J, Varga, John, and Thombs, Brett D
Published: 2021
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6. Minimal Detectable Changes of the Health Assessment Questionnaire–Disability Index, Patient‐Reported Outcomes Measurement Information System‐29 Profile Version 2.0 Domains, and Patient Health Questionnaire‐8 in People With Systemic Sclerosis: A Scleroderma Patient‐Centered Intervention Network Cohort Cross‐Sectional Study

Author: Alkan, Afra, Carrier, Marie‐Eve, Henry, Richard S., Kwakkenbos, Linda, Bartlett, Susan J., Gietzen, Amy, Gottesman, Karen, Guillot, Geneviève, Lawrie‐Jones, Amanda, Hudson, Marie, Hummers, Laura K., Malcarne, Vanessa L., Mayes, Maureen D., Mouthon, Luc, Richard, Michelle, Wojeck, Robyn K., Worron‐Sauvé, Maureen, Benedetti, Andrea, Thombs, Brett D., Fortuné, Catherine, Adams, Claire Elizabeth, El‐Baalbaki, Ghassan, Fligelstone, Kim, Frech, Tracy, Harel, Daphna, Hinchcliff, Monique, Johnson, Sindhu R., Larche, Maggie, Leite, Catarina, Nguyen, Christelle, Nielsen, Karen, Pope, Janet, Rannou, François, Rodriguez‐Reyna, Tatiana Sofia, Schouffoer, Anne A., Suarez‐Almazor, Maria E., Agard, Christian, Alric, Laurent, André, Marc, Beaslay, Floryan, Bernstein, Elana J., Berthier, Sabine, Bissonnette, Lyne, Blaise, Sophie, Bories, Eva, Bruns, Alessandra, Cacciatore, Carlotta, Carreira, Patricia, Casadevall, Marion, Chaigne, Benjamin, Chung, Lorinda, Crichi, Benjamin, Deltombe, Thylbert, Denton, Christopher P., Desroche, Tannvir, Domsic, Robyn, Dunne, James V., Dunogue, Bertrand, Fare, Regina, Farge‐Bancel, Dominique, Fortin, Paul R., Gauzère, Loraine, Gerber, Anne, Gordon, Jessica K., Granel‐Rey, Brigitte, Guffroy, Aurélien, Gyger, Geneviève, Hachulla, Eric, Hughes, Michael, Ikic, Alena, Jones, Niall, Kafaja, Suzanne, Khalidi, Nader, Lakin, Kimberly S., Lambert, Marc, Launay, David, Lee, Yvonne C., Legendre, Paul, Maillard, Hélène, Maltez, Nancy, Manning, Joanne, Marie, Isabelle, Lopez, Maria Martin, Martin, Thierry, Masetto, Ariel, Mekinian, Arsene, Díaz, Sheila Melchor, Mourguet, Morgane, Nikpour, Mandana, Olagne, Louis, Poindron, Vincent, Proudman, Susanna, Pugnet, Grégory, Raffray, Loïc, Régent, Alexis, Renou, Frederic, Rivière, Sébastien, Robinson, David, Almazar, Esther Rodríguez, Roux, Sophie, Smets, Perrine, Sobanski, Vincent, Spiera, Robert F., Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Vagner, Damien, Varga, John, Wilcox, Pearce, Ayala, Mara Cañedo, Research, Medical, Cook, Vanessa, Santo, Cassidy Dal, Santo, Tiffany Dal, D'Onofrio, Monica, Hu, Sophie, Nassar, Elsa‐Lynn, Neyer, Marieke Alexandra, and Provencher, Sabrina
Abstract: Systemic sclerosis (SSc) is a rare, chronic autoimmune disorder associated with disability, diminished physical function, fatigue, pain, and mental health concerns. We assessed minimal detectable changes (MDCs) of the Health Assessment Questionnaire–Disability Index (HAQ‐DI), Patient‐Reported Outcomes Measurement Information System‐29 Profile version 2.0 (PROMIS‐29v2.0) domains, and Patient Health Questionnaire (PHQ)‐8 in people with SSc. Scleroderma Patient‐Centered Intervention Network Cohort participants completed the HAQ‐DI, PROMIS‐29v2.0 domains, and PHQ‐8 at baseline assessments from April 2014 until August 2023. We estimated MDC95 (smallest change that can be detected with 95% certainty) and MDC90 (smallest change that can be detected with 90% certainty) with 95% confidence intervals (CIs) generated via the percentile bootstrapping method resampling 1,000 times. We compared MDC estimates by age, sex, and SSc subtype. A total of 2,571 participants were included. Most were female (n = 2,241; 87%), and 38% (n = 976) had diffuse SSc. Mean (±SD) age was 54.9 (±12.7) years and duration since onset of first non‐Raynaud phenomenon symptom was 10.8 (±8.7) years. MDC95 estimate was 0.41 points (95% CI 0.40–0.42) for the HAQ‐DI, between 4.88 points (95% CI 4.72–5.05) and 9.02 points (95% CI 8.80–9.23) for the seven PROMIS‐29v2.0 domains, and 5.16 points (95% CI 5.06–5.26) for the PHQ‐8. MDC95 estimates were not materially different across subgroups. MDC95 and MDC90 estimates were precise and similar across age, sex, and SSc subtype groups. HAQ‐DI MDC95 and MDC90 were substantially larger than previous estimates of HAQ‐DI minimal important difference from several small studies. Minimally important differences of all measures should be evaluated in large studies using anchor‐based methods.
Published: 2024
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7. Protocol for a partially nested randomised controlled trial to evaluate the effectiveness of the scleroderma patient-centered intervention network COVID-19 home-isolation activities together (SPIN-CHAT) program to reduce anxiety among at-risk scleroderma patients

Author: Fortuné, Catherine, Gietzen, Amy, Guillot, Geneviève, Lewis, Nancy, Nielsen, Karen, Richard, Michelle, Sauvé, Maureen, Welling, Joep, Baron, Murray, Furst, Daniel E., Gottesman, Karen, Malcarne, Vanessa, Mayes, Maureen D., Mouthon, Luc, Nielson, Warren R., Riggs, Robert, Wigley, Fredrick, Assassi, Shervin, Boutron, Isabelle, Ells, Carolyn, van den Ende, Cornelia, Fligelstone, Kim, Frech, Tracy, Godard, Dominique, Harel, Daphna, Hinchcliff, Monique, Hudson, Marie, Johnson, Sindhu R., Larche, Maggie, Leite, Catarina, Nguyen, Christelle, Pope, Janet, Portales, Alexandra, Rannou, François, Reyna, Tatiana Sofia Rodriguez, Schouffoer, Anne A., Suarez-Almazor, Maria E., Agard, Christian, Albert, Alexandra, André, Marc, Arsenault, Guylaine, Benzidia, Ilham, Bernstein, Elana J., Berthier, Sabine, Bissonnette, Lyne, Boire, Gilles, Bruns, Alessandra, Carreira, Patricia, Casadevall, Marion, Chaigne, Benjamin, Chung, Lorinda, Cohen, Pascal, Correia, Chase, Dagenais, Pierre, Denton, Christopher, Domsic, Robyn, Dubois, Sandrine, Dunne, James V., Dunogue, Bertrand, Fare, Regina, Farge-Bancel, Dominique, Fortin, Paul R., Gill, Anna, Gordon, Jessica, Granel-Rey, Brigitte, Gyger, Genevieve, Hachulla, Eric, Hatron, Pierre-Yves, Herrick, Ariane L., Hij, Adrian, Hoa, Sabrina, Ikic, Alena, Jones, Niall, de B. Fernandes, Artur Jose, Kafaja, Suzanne, Khalidi, Nader, Lambert, Marc, Launay, David, Liang, Patrick, Maillard, Hélène, Maltez, Nancy, Manning, Joanne, Marie, Isabelle, Martin, Maria, Martin, Thierry, Masetto, Ariel, Maurier, François, Mekinian, Arsene, Melchor, Sheila, Nikpour, Mandana, Olagne, Louis, Poindron, Vincent, Proudman, Susanna, Régent, Alexis, Rivière, Sébastien, Robinson, David, Rodriguez, Esther, Roux, Sophie, Smets, Perrine, Smith, Doug, Sobanski, Vincent, Spiera, Robert, Steen, Virginia, Stevens, Wendy, Sutton, Evelyn, Terrier, Benjamin, Thorne, Carter, Varga, John, Wilcox, Pearce, Ayala, Mara Cañedo, Ostbo, Nora, Thombs, Brett D., Kwakkenbos, Linda, Carrier, Marie-Eve, Bourgeault, Angelica, Tao, Lydia, Harb, Sami, Gagarine, Maria, Rice, Danielle, Bustamante, Laura, Ellis, Kelsey, Duchek, Delaney, Wu, Yin, Bhandari, Parash Mani, Neupane, Dipika, Carboni-Jiménez, Andrea, Henry, Richard S., Krishnan, Ankur, Sun, Ying, Levis, Brooke, He, Chen, Turner, Kimberly A., Benedetti, Andrea, Culos-Reed, Nicole, El-Baalbaki, Ghassan, Hebblethwaite, Shannon, Bartlett, Susan J., Dyas, Laura, and Patten, Scott
Published: 2020
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8. Experiences of telehealth during and after the COVID-19 pandemic and preferences for future care of people with systemic sclerosis: a cross-sectional study

Author: Adams, Claire E., Gottesman, Karen, Hudson, Marie, Hummers, Laura K., Lawrie-Jones, Amanda, Malcarne, Vanessa L., Mayes, Maureen D., Richard, Michelle, Wojeck, Robyn K., El-Baalbaki, Ghassan, Fligelstone, Kim, Frech, Tracy, Harel, Daphna, Hinchcliff, Monique, Johnson, Sindhu R., Larche, Maggie, Leite, Catarina, Nguyen, Christelle, Nielsen, Karen, Pope, Janet, Rannou, François, Rodriguez-Reyna, Tatiana Sofia, Schouffoer, Anne A., Suarez-Almazor, Maria E., Agard, Christian, Alric, Laurent, André, Marc, Beaslay, Floryan, Bernstein, Elana J., Berthier, Sabine, Bissonnette, Lyne, Blaise, Sophie, Bories, Eva, Bruns, Alessandra, Cacciatore, Carlotta, Carreira, Patricia, Casadevall, Marion, Chaigne, Benjamin, Chung, Lorinda, Crichi, Benjamin, Deltombe, Thylbert, Denton, Christopher, Desroche, Tannvir, Domsic, Robyn, Dunne, James V., Dunogue, Bertrand, Fare, Regina, Farge-Bancel, Dominique, Fortin, Paul R., Gauzère, Loraine, Gerber, Anne, Gordon, Jessica K., Granel-Rey, Brigitte, Guffroy, Aurélien, Gyger, Geneviève, Hachulla, Eric, Hoa, Sabrina, Hughes, Michael, Ikic, Alena, Khalidi, Nader, Lakin, Kimberly S., Lambert, Marc, Launay, David, Lee, Yvonne C., Legendre, Paul, Maillard, Hélène, Maltez, Nancy, Manning, Joanne, Marie, Isabelle, Martin Lopez, Maria, Martin, Thierry, Masetto, Ariel, Mekinian, Arsène, Melchor Díaz, Sheila, Mourguet, Morgane, Nikpour, Mandana, Olagne, Louis, Poindron, Vincent, Proudman, Susanna, Pugnet, Grégory, Raffray, Loïc, Régent, Alexis, Renou, Frederic, Rivière, Sébastien, Robinson, David, Rodríguez Almazar, Esther, Roux, Sophie, Smets, Perrine, Sobanski, Vincent, Spiera, Robert F., Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Vagner, Damien, Wilcox, Pearce, Ayala, Mara Cañedo, Cook, Vanessa, Dal Santo, Cassidy, Dal Santo, Tiffany, D'onofrio, Monica, Neyer, Marieke Alexandra, Nassar, Elsa-Lynn, Virgili-Gervais, Gabrielle, Carrier, Marie-Eve, Kwakkenbos, Linda, Henry, Richard S, Hu, Sophie, Provencher, Sabrina, Golberg, Meira, Bartlett, Susan J, Mouthon, Luc, Patten, Scott B, Varga, John, Benedetti, Andrea, and Thombs, Brett D
Published: 2024
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9. Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPIN) Cohort cross-sectional study

Author: Wojeck, Robyn K., primary, Knisely, Mitchell R., additional, Bailey, Donald E., additional, Somers, Tamara J., additional, Kwakkenbos, Linda, additional, Carrier, Marie-Eve, additional, Nielson, Warren R., additional, Bartlett, Susan J., additional, Malcarne, Vanessa L., additional, Hudson, Marie, additional, Levis, Brooke, additional, Benedetti, Andrea, additional, Mouthon, Luc, additional, Thombs, Brett D., additional, Silva, Susan G., additional, Adams, Claire E., additional, Henry, Richard S., additional, Fortuné, Catherine, additional, Gottesman, Karen, additional, Guillot, Geneviève, additional, Hummers, Laura K., additional, Lawrie-Jones, Amanda, additional, Mayes, Maureen D., additional, Richard, Michelle, additional, Sauvé, Maureen, additional, Assassi, Shervin, additional, El-Baalbaki, Ghassan, additional, Fligelstone, Kim, additional, Frech, Tracy, additional, Gietzen, Amy, additional, Harel, Daphna, additional, Hinchcliff, Monique, additional, Johnson, Sindhu R., additional, Larche, Maggie, additional, Leite, Catarina, additional, Nguyen, Christelle, additional, Nielsen, Karen, additional, Pope, Janet, additional, Rannou, François, additional, Rodriguez-Reyna, Tatiana Sofia, additional, Schouffoer, Anne A., additional, Suarez-Almazor, Maria E., additional, Agard, Christian, additional, Abdallah, Nassim Ait, additional, André, Marc, additional, Bernstein, Elana J., additional, Berthier, Sabine, additional, Bissonnette, Lyne, additional, Bruns, Alessandra, additional, Carreira, Patricia, additional, Casadevall, Marion, additional, Chaigne, Benjamin, additional, Chung, Lorinda, additional, Crichi, Benjamin, additional, Denton, Christopher, additional, Domsic, Robyn, additional, Dunne, James V., additional, Dunogue, Bertrand, additional, Fare, Regina, additional, Farge-Bancel, Dominique, additional, Fortin, Paul R., additional, Gordon, Jessica, additional, Granel-Rey, Brigitte, additional, Guffroy, Aurélien, additional, Gyger, Genevieve, additional, Hachulla, Eric, additional, Hoa, Sabrina, additional, Ikic, Alena, additional, Kafaja, Suzanne, additional, Khalidi, Nader, additional, Lakin, Kimberly, additional, Lambert, Marc, additional, Launay, David, additional, Lee, Yvonne C., additional, Maillard, Hélène, additional, Maltez, Nancy, additional, Manning, Joanne, additional, Marie, Isabelle, additional, Lopez, Maria Martin, additional, Martin, Thierry, additional, Masetto, Ariel, additional, Maurier, François, additional, Mekinian, Arsene, additional, Díaz, Sheila Melchor, additional, Nikpour, Mandana, additional, Olagne, Louis, additional, Poindron, Vincent, additional, Proudman, Susanna, additional, Régent, Alexis, additional, Rivière, Sébastien, additional, Robinson, David, additional, Almazar, Esther Rodríguez, additional, Roux, Sophie, additional, Smets, Perrine, additional, Sobanski, Vincent, additional, Spiera, Robert, additional, Steen, Virginia, additional, Sutton, Evelyn, additional, Thorne, Carter, additional, Varga, John, additional, Wilcox, Pearce, additional, Ayala, Mara Cañedo, additional, Cook, Vanessa, additional, Hu, Sophie, additional, Matthews, Bianca, additional, Nassar, Elsa-Lynn, additional, Neyer, Marieke Alexandra, additional, Nordlund, Julia, additional, and Provencher, Sabrina, additional
Published: 2023
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10. Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort

Author: Baron, Murray, Bartlett, Susan J., Furst, Dan, Gottesman, Karen, van den Hoogen, Frank, Mouthon, Luc, Nielson, Warren R., Poiraudeau, Serge, Riggs, Robert, Sauve, Maureen, Wigley, Fredrick, Boutron, Isabelle, Costa Maia, Angela, El-Baalbaki, Ghassan, Ells, Carolyn, van den Ende, Cornelia, Fligelstone, Kim, Fortune, Catherine, Frech, Tracy, Godard, Dominique, Harel, Daphna, Hudson, Marie, Impens, Ann, Jang, Yeona, Johnson, Sindhu R., Kennedy, Ann Tyrell, Khanna, Dinesh, Larche, Maggie, Leite, Catarina, Marra, Carlo, Nielsen, Karen, Poole, Janet L., Pope, Janet, Rodriguez Reyna, Tatiana Sofia, Schouffoer, Anne A., Steele, Russell J., Suarez-Almazor, Maria E., Welling, Joep, Wong-Rieger, Durhane, Albert, Alexandra, Arsenault, Guylaine, Bissonnette, Lyne, Boire, Gilles, Bruns, Alessandra, Carreira, Patricia, Chung, Lorinda, Dagenais, Pierre, Denton, Christopher, Domsic, Robyn, Dunne, James V., Fortin, Paul, Gill, Anna, Gordon, Jessica, Gyger, Genevieve, Herrick, Ariane L., Hinchcliff, Monique, Ikic, Alena, Jones, Niall, de B. Fernandes, Artur Jose, Kafaja, Suzanne, Khalidi, Nader, Korman, Benjamin, Liang, Patrick, Manning, Joanne, Masetto, Ariel, Robinson, David, Roux, Sophie, Schiopu, Elena, Smith, Doug, Spiera, Robert, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Varga, John, Wilcox, Pearce, Delisle, Vanessa C., Fedoruk, Claire, Levis, Brooke, Pepin, Mia R., Persmann, Jennifer, Jewett, Lisa R., Kwakkenbos, Linda, Carrier, Marie-Eve, Malcarne, Vanessa L., Harcourt, Diana, Rumsey, Nichola, Mayes, Maureen D., Assassi, Shervin, Körner, Annett, Fox, Rina S., Gholizadeh, Shadi, Mills, Sarah D., Portales, Alexandra, and Thombs, Brett D.
Published: 2017
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11. A qualitative interview study exploring the psychological health impacts of the SPIN-CHAT program among people with systemic sclerosis at the onset of COVID-19: perceptions of trial participants and research team members

Author: Wurz, Amanda, primary, Duchek, Delaney, additional, Ellis, Kelsey, additional, Bansal, Mannat, additional, Carrier, Marie-Eve, additional, Tao, Lydia, additional, Dyas, Laura, additional, Kwakkenbos, Linda, additional, Levis, Brooke, additional, El-Baalbaki, Ghassan, additional, Rice, Danielle B., additional, Wu, Yin, additional, Henry, Richard S., additional, Bustamante, Laura, additional, Harb, Sami, additional, Hebblethwaite, Shannon, additional, Patten, Scott B., additional, Bartlett, Susan J., additional, Varga, John, additional, Mouthon, Luc, additional, Markham, Sarah, additional, Thombs, Brett D., additional, Culos-Reed, S. Nicole, additional, Fortuné, Catherine, additional, Gietzen, Amy, additional, Guillot, Geneviève, additional, Nielsen, Karen, additional, Lewis, Nancy, additional, Richard, Michelle, additional, Sauvé, Maureen, additional, Welling, Joep, additional, Battaglio, Lacey, additional, Burger, Tina, additional, Burleigh, Adrienne, additional, Collins, Peggy, additional, Davila, Jacob, additional, Inglese, Louise, additional, Kaplan, Franny, additional, Konrad, Violet, additional, Petrella, Silvia, additional, Potvin, Audrey, additional, Puccio, Natalie, additional, Gottesman, Karen, additional, Hudson, Marie, additional, Hummers, Laura K., additional, Lawrie-Jones, Amanda, additional, Malcarne, Vanessa L., additional, Mayes, Maureen D., additional, Nielson, Warren R., additional, Assassi, Shervin, additional, Ells, Carolyn, additional, Fligelstone, Kim, additional, Frech, Tracy, additional, Harel, Daphna, additional, Hinchcliff, Monique, additional, Johnson, Sindhu R., additional, Larche, Maggie, additional, Leite, Catarina, additional, Nguyen, Christelle, additional, Pope, Janet, additional, Rannou, François, additional, Rodriguez-Reyna, Tatiana Sofia, additional, Schouffoer, Anne A., additional, Suarez-Almazor, Maria E., additional, Agard, Christian, additional, Ait Abdallah, Nassim, additional, André, Marc, additional, Bernstein, Elana J., additional, Berthier, Sabine, additional, Bissonnette, Lyne, additional, Bruns, Alessandra, additional, Carreira, Patricia, additional, Casadevall, Marion, additional, Chaigne, Benjamin, additional, Chung, Lorinda, additional, Crichi, Benjamin, additional, Denton, Christopher, additional, Domsic, Robyn, additional, Dunne, James V., additional, Dunogue, Bertrand, additional, Fare, Regina, additional, Farge-Bancel, Dominique, additional, Fortin, Paul R., additional, Gordon, Jessica, additional, Granel-Rey, Brigitte, additional, Guffroy, Aurélien, additional, Gyger, Genevieve, additional, Hachulla, Eric, additional, Herrick, Ariane L., additional, Hoa, Sabrina, additional, Ikic, Alena, additional, Jones, Niall, additional, Khalidi, Nader, additional, Lambert, Marc, additional, Launay, David, additional, Lee, Yvonne C., additional, Maillard, Hélène, additional, Maltez, Nancy, additional, Manning, Joanne, additional, Marie, Isabelle, additional, Lopez, Maria Martin, additional, Martin, Thierry, additional, Masetto, Ariel, additional, Maurier, François, additional, Mekinian, Arsene, additional, Díaz, Sheila Melchor, additional, Nikpour, Mandana, additional, Olagne, Louis, additional, Poindron, Vincent, additional, Proudman, Susanna, additional, Régent, Alexis, additional, Rivière, Sébastien, additional, Robinson, David, additional, Rodríguez Almazar, Esther, additional, Roux, Sophie, additional, Smets, Perrine, additional, Sobanski, Vincent, additional, Spiera, Robert, additional, Steen, Virginia, additional, Sutton, Evelyn, additional, Thorne, Carter, additional, Wilcox, Pearce, additional, Ayala, Mara Cañedo, additional, Discepola, Marie-Nicole, additional, Montemurro, Laury, additional, Nassar, Elsa Lynn, additional, Neyer, Marieke Alexandra, additional, Nordlund, Julia, additional, Østbø, Nora, additional, and Provencher, Sabrina, additional
Published: 2023
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12. Validity, Reliability, and Differential Item Functioning of English and French Versions of the 10‐Item Connor‐DavidsonResilience Scale in Systemic Sclerosis: A Scleroderma Patient‐CenteredIntervention Network Cohort Study

Author: Neyer, Marieke A., Henry, Richard S., Carrier, Marie‐Eve, Kwakkenbos, Linda, Wojeck, Robyn K., Gietzen, Amy, Gottesman, Karen, Guillot, Geneviève, Lawrie‐Jones, Amanda, Mayes, Maureen D., Mouthon, Luc, Nielson, Warren R., Richard, Michelle, Worron‐Sauvé, Maureen, Harel, Daphna, Malcarne, Vanessa L., Bartlett, Susan J., Thombs, Brett D., Fortuné, Catherine, Hudson, Marie, Benedetti, Andrea, Hummers, Laura K., Adams, Claire Elizabeth, Ayala, Mara Cañedo, Cook, Vanessa, Hu, Sophie, Matthews, Bianca, Nassar, Elsa‐Lynn, Nordlund, Julia, Provencher, Sabrina, Assassi, Shervin, El‐Baalbaki, Ghassan, Fligelstone, Kim, Frech, Tracy, Hinchcliff, Monique, Johnson, Sindhu R., Larche, Maggie, Khalidi, Nader, Leite, Catarina, Nguyen, Christelle, Rannou, François, Nielsen, Karen, Pope, Janet, Rodriguez‐Reyna, Tatiana Sofia, Schouffoer, Anne A., Suarez‐Almazor, Maria E., Agard, Christian, André, Marc, Olagne, Louis, Bernstein, Elana J., Berthier, Sabine, Bissonnette, Lyne, Bruns, Alessandra, Masetto, Ariel, Roux, Sophie, Cacciatore, Carlotta, Crichi, Benjamin, Farge‐Bancel, Dominique, Carreira, Patricia, Fare, Regina, Lopez, Maria Martin, Díaz, Sheila Melchor, Almazar, Esther Rodríguez, Casadevall, Marion, Chaigne, Benjamin, Dunogue, Bertrand, Régent, Alexis, Chung, Lorinda, Domsic, Robyn, Dunne, James V., Wilcox, Pearce, Fortin, Paul R., Ikic, Alena, Gordon, Jessica, Lakin, Kimberly, Spiera, Robert, Granel‐Rey, Brigitte, Guffroy, Aurélien, Martin, Thierry, Poindron, Vincent, Gyger, Genevieve, Hachulla, Eric, Hoa, Sabrina, Jones, Niall, Lambert, Marc, Launay, David, Maillard, Hélène, Sobanski, Vincent, Lee, Yvonne C., Maltez, Nancy, Manning, Joanne, Marie, Isabelle, Maurier, François, Mekinian, Arsene, Rivière, Sébastien, Nikpour, Mandana, Proudman, Susanna, Robinson, David, Smets, Perrine, Steen, Virginia, Sutton, Evelyn, and Thorne, Carter
Abstract: Some individuals with systemic sclerosis (SSc) report positive mental health, despite severe disease manifestations, which may be associated with resilience, but no resilience measure has been validated in SSc. This study was undertaken to assess the validity, reliability, and differential item functioning (DIF) between English‐ and French‐language versions of the 10‐item Connor‐Davidson Resilience Scale (CD‐RISC‐10) in SSc. Eligible participants were enrolled in the Scleroderma Patient‐centered Intervention Network Cohort and completed the CD‐RISC‐10 between August 2022 and January 2023. We used confirmatory factor analysis (CFA) to evaluate the CD‐RISC‐10 factor structure and conducted DIF analysis across languages with Multiple Indicators Multiple Causes models. We tested convergent validity with another measure of resilience and measures of self‐esteem and depression and anxiety symptoms. We assessed internal consistency and test–retest reliability using Cronbach's alpha and intraclass correlation coefficient (ICC). A total of 962 participants were included in this analysis. CFA supported a single‐factor structure (Tucker–Lewis index = 0.99, comparative fit index = 0.99, root mean square error of approximation = 0.08 [90% confidence interval (90% CI) 0.07, 0.09]). We found no meaningful DIF. Internal consistency was high (α = 0.93 [95% CI 0.92, 0.94]), and we found that correlations with other measures of psychological functioning were moderate to large (|r| = 0.57–0.78) and confirmed study hypotheses. The scale showed good 1–2‐week test–retest reliability (ICC 0.80 [95% CI 0.75, 0.85]) in a subsample of 230 participants. The CD‐RISC‐10 is a valid and reliable measure of resilience in SSc, with score comparability across English and French versions.
Published: 2023
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13. Evaluation of Measurement Properties and Differential Item Functioning in the English and French Versions of the University of California, Los Angeles, Loneliness Scale‐6: A Scleroderma Patient‐CenteredIntervention Network (SPIN) Study

Author: S. Rapoport, Chelsea, Choi, Alyssa K., Kwakkenbos, Linda, Carrier, Marie‐Eve, Henry, Richard S., Mouthon, Luc, Roesch, Scott C., Thombs, Brett D., Malcarne, Vanessa L., Fortuné, Catherine, Gietzen, Amy, Guillot, Geneviève, Lewis, Nancy, Nielsen, Karen, Sauvé, Maureen, Richard, Michelle, Welling, Joep, Varga, John, Adams, Claire E., Ayala, Mara Cañedo, Cook, Vanessa, Hu, Sophie, Nassar, Elsa‐Lynn, Neyer, Marieke Alexandra, Nordlund, Julia, Provencher, Sabrina, Bartlett, Susan J., Hudson, Marie, Benedetti, Andrea, Gottesman, Karen, Hummers, Laura K., Lawrie‐Jones, Amanda, Mayes, Maureen D., Assassi, Shervin, Nielson, Warren R., El‐Baalbaki, Ghassan, Ende, Cornelia, Fligelstone, Kim, Frech, Tracy, Harel, Daphna, Hinchcliff, Monique, Johnson, Sindhu R., Larche, Maggie, Khalidi, Nader, Leite, Catarina, Nguyen, Christelle, Rannou, François, Pope, Janet, Reyna, Tatiana Sofia Rodriguez, Schouffoer, Anne A., Suarez‐Almazor, Maria E., Agard, Christian, Abdallah, Nassim Ait, Crichi, Benjamin, Farge‐Bancel, Dominique, André, Marc, Olagne, Louis, Smets, Perrine, Bernstein, Elana J., Berthier, Sabine, Bissonnette, Lyne, Bruns, Alessandra, Masetto, Ariel, Roux, Sophie, Carreira, Patricia, Fare, Regina, Martin, Maria, Díaz, Sheila Melchor, Almazar, Esther Rodríguez, Casadevall, Marion, Chaigne, Benjamin, Dunogue, Bertrand, Régent, Alexis, Chung, Lorinda, Denton, Christopher, Domsic, Robyn, Dunne, James V., Wilcox, Pearce, Fortin, Paul R., Ikic, Alena, Gordon, Jessica, Lakin, Kimberly, Spiera, Robert, Granel‐Rey, Brigitte, Guffroy, Aurélien, Martin, Thierry, Poindron, Vincent, Gyger, Genevieve, Hachulla, Eric, Lambert, Marc, Launay, David, Maillard, Hélène, Sobanski, Vincent, Hoa, Sabrina, Jones, Niall, Kafaja, Suzanne, Lee, Yvonne C., Maltez, Nancy, Manning, Joanne, Marie, Isabelle, Maurier, François, Mekinian, Arsene, Rivière, Sébastien, Nikpour, Mandana, Proudman, Susanna, Robinson, David, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, and Varga, John
Abstract: Loneliness has been associated with poorer health‐related quality of life but has not been studied in patients with systemic sclerosis (SSc). The current study was undertaken to examine and compare the psychometric properties of the English and French versions of the University of California, Los Angeles, Loneliness Scale‐6 (ULS‐6) in patients with SSc during the COVID‐19 pandemic. This study used baseline cross‐sectional data from 775 adults enrolled in the Scleroderma Patient‐Centered Intervention Network (SPIN) COVID‐19 Cohort. Reliability and validity of ULS‐6 scores overall and between languages were evaluated using confirmatory factor analysis (CFA), differential item functioning (DIF) through the multiple‐indicator multiple‐cause (MIMIC) model, omega/alpha calculation, and correlations of hypothesized convergent relationships. CFA for the total sample supported the single‐factor structure (comparative fit index [CFI] 0.96, standardized root mean residual [SRMR] 0.03), and all standardized factor loadings for items were large (0.60–0.86). The overall MIMIC model with language as a covariate fit well (CFI 0.94, SRMR 0.04, root mean square error of approximation 0.11). Statistically significant DIF was found for 3 items across language (βitem2= 0.14, P< 0.001; βitem4= –0.07, P= 0.01; βitem6= 0.13, P< 0.001), but these small differences were without practical measurement implications. Analyses demonstrated high internal consistency with no language‐based convergent validity differences. Analyses demonstrated evidence of acceptable reliability and validity of ULS‐6 scores in English‐ and French‐speaking adults with SSc. DIF analysis supported use of the ULS‐6 to examine comparative experiences of loneliness without adjusting for language.
Published: 2023
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14. Pain levels and associated factors in the Scleroderma Patient-centered Intervention Network (SPIN) cohort: a multicentre cross-sectional study

Author: Lee, Yvonne C, primary, Fox, Rina S, additional, Kwakkenbos, Linda, additional, Levis, Brooke, additional, Carrier, Marie-Eve, additional, Welling, Joep, additional, Sauvé, Maureen, additional, Mouthon, Luc, additional, Benedetti, Andrea, additional, Bartlett, Susan J, additional, Varga, John, additional, Thombs, Brett D, additional, Henry, Richard S., additional, Gottesman, Karen, additional, Hudson, Marie, additional, Hummers, Laura K., additional, Malcarne, Vanessa L., additional, Mayes, Maureen D., additional, Nielson, Warren R., additional, Riggs, Robert, additional, Assassi, Shervin, additional, El-Baalbaki, Ghassan, additional, Ells, Carolyn, additional, Fligelstone, Kim, additional, Fortuné, Catherine, additional, Frech, Tracy, additional, Gietzen, Amy, additional, Guillot, Geneviève, additional, Harel, Daphna, additional, Hinchcliff, Monique, additional, Johnson, Sindhu R., additional, Larche, Maggie, additional, Leite, Catarina, additional, Nguyen, Christelle, additional, Nielsen, Karen, additional, Pope, Janet, additional, Rannou, François, additional, Richard, Michelle, additional, Rodriguez-Reyna, Tatiana Sofia, additional, Schouffoer, Anne A., additional, Suarez-Almazor, Maria E., additional, Agard, Christian, additional, Ait Abdallah, Nassim, additional, Albert, Alexandra, additional, André, Marc, additional, Bernstein, Elana J., additional, Berthier, Sabine, additional, Bissonnette, Lyne, additional, Bruns, Alessandra, additional, Carreira, Patricia, additional, Casadevall, Marion, additional, Chaigne, Benjamin, additional, Chung, Lorinda, additional, Correia, Chase, additional, Crichi, Benjamin, additional, Denton, Christopher, additional, Domsic, Robyn, additional, Dunne, James V., additional, Dunogue, Bertrand, additional, Fare, Regina, additional, Farge-Bancel, Dominique, additional, Fortin, Paul R., additional, Gordon, Jessica, additional, Granel-Rey, Brigitte, additional, Gyger, Genevieve, additional, Hachulla, Eric, additional, Herrick, Ariane L, additional, Hoa, Sabrina, additional, Ikic, Alena, additional, Jones, Niall, additional, Kafaja, Suzanne, additional, Khalidi, Nader, additional, Lambert, Marc, additional, Launay, David, additional, Maillard, Hélène, additional, Maltez, Nancy, additional, Manning, Joanne, additional, Marie, Isabelle, additional, Martin, Maria, additional, Martin, Thierry, additional, Masetto, Ariel, additional, Maurier, François, additional, Mekinian, Arsene, additional, Melchor, Sheila, additional, Nikpour, Mandana, additional, Olagne, Louis, additional, Poindron, Vincent, additional, Proudman, Susanna, additional, Régent, Alexis, additional, Rivière, Sébastien, additional, Robinson, David, additional, Rodriguez, Esther, additional, Roux, Sophie, additional, Smets, Perrine, additional, Sobanski, Vincent, additional, Spiera, Robert, additional, Steen, Virginia, additional, Sutton, Evelyn, additional, Thorne, Carter, additional, Wilcox, Pearce, additional, Bourgeault, Angelica, additional, Cañedo Ayala, Mara, additional, Carboni Jiménez, Andrea, additional, Discepola, Marie-Nicole, additional, Gagarine, Maria, additional, Nordlund, Julia, additional, and Østbø, Nora, additional
Published: 2021
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15. Depressive symptoms predict future simple disease activity index scores and simple disease activity index remission in a prospective cohort of patients with early inflammatory polyarthritis

Author: Leblanc-Trudeau, Charlotte, Dobkin, Patricia L., Carrier, Nathalie, Cossette, Pierre, de Brum-Fernandes, Artur J., Liang, Patrick, Masetto, Ariel, and Boire, Gilles
Published: 2015
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16. The Canadian Systemic Sclerosis Oral Health Study II: the relationship between oral and global health-related quality of life in systemic sclerosis

Author: Baron, Murray, Hudson, Marie, Tatibouet, Solène, Steele, Russell, Lo, Ernest, Gravel, Sabrina, Gyger, Geneviève, El Sayegh, Tarek, Pope, Janet, Fontaine, Audrey, Masetto, Ariel, Matthews, Debora, Sutton, Evelyn, Thie, Norman, Jones, Niall, Copete, Maria, Kolbinson, Dean, Markland, Janet, Nogueira-Filho, Getulio, Robinson, David, and Gornitsky, Mervyn
Published: 2015
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17. Effectiveness and Safety of Tofacitinib in Canadian Patients With Rheumatoid Arthritis: Primary Results From a Prospective Observational Study

Author: Haraoui, Boulos, Khraishi, Majed, Choquette, Denis, Lisnevskaia, Larissa, Teo, Michelle, Kinch, Cassandra, Galos, Corina, Roy, Patrice, Gruben, David, Woolcott, John C., Vaillancourt, Julie, Sampalis, John S., Keystone, Edward C., Pont, Karen, Teo, Michelle, Chan, John, Jamal, Shahin, Baker, Milton, McCarthy, Timothy, Khraishi, Majed, Rahman, Al‐Amin Proton, Sutton, Evelyn, Lazovskis, Juris, Pavlova, Viktoria, Haaland, Derek A., Papneja, Tripti, Dixit, Sanjay, Pandith, Vikas, Boulos, Pauline, Lau, Arthur, Mulgund, Manisha, Rai, Raman, Dekis, Alaa, Ruban, Thanu, Chow, Andrew, Florica, Brandusa, Khan, Imtiaz, Thorne, Carter, Dhillon, Rajwinder, Lisnevskaia, Larissa, Jovaisas, Algis, Kapur, Suneil, Montgomery, Angela, Shaikh, Saeed, Karasik, Arthur, Keystone, Edward, Pedvis, Stacey, Anwar, Sabeen, Rodrigues, Jude, Fallavollita, Sabrina, Haraoui, Boulos, Shulz, Jan, Tsoukas, Alexander, Zummer, Michel, Bessette, Louis, Fortin, Paul R., Fortin, Isabelle, Attie, Nabil, Boire, Gilles, Masetto, Ariel, Lessard, Clode, Anderson, Keltie, Arendse, Regan, and Naik, Latha
Abstract: The Canadian Tofacitinib for Rheumatoid Arthritis Observational (CANTORAL) is the first Canadian prospective, observational study assessing tofacitinib. The objective was to assess effectiveness and safety for moderate to severe rheumatoid arthritis (RA). Coprimary and secondary outcomes are reported from an interim analysis. Patients initiating tofacitinib from October 2017 to July 2020 were enrolled from 45 Canadian sites. Coprimary outcomes (month 6) included the Clinical Disease Activity Index (CDAI)–defined low disease activity (LDA) and remission. Secondary outcomes (to month 18) included the CDAI and the 4‐variable Disease Activity Score in 28 joints (DAS28) using the erythrocyte sedimentation rate (ESR)/C‐reactive protein (CRP) level to define LDA and remission; the proportions of patients achieving mild pain (visual analog scale <20 mm), and moderate (≥30%) and substantial (≥50%) pain improvements; and the proportions of patients achieving a Health Assessment Questionnaire disability index (HAQ DI) score greater or equal to normative values (≤0.25) and a HAQ DI score greater or equal to minimum clinically important difference (MCID) (≥0.22). Safety was assessed to month 36. Of 504 patients initiating tofacitinib, 44.4% received concomitant methotrexate. At month 6, 52.9% and 15.4% of patients were in CDAI‐defined LDA and remission, respectively; a similar proportion of patients achieved outcomes by month 3 (first post‐baseline assessment). By month 3, 27.2% and 41.7% of patients, respectively, were in DAS28‐ESR–defined LDA and DAS28‐CRP <3.2; 14.7% and 25.8% achieved DAS28‐ESR remission and DAS28‐CRP <2.6. By month 3, mild pain and moderate and substantial pain improvements occurred in 29.6%, 55.6%, and 42.9% of patients, respectively; 19.9% and 53.7% of patients achieved a HAQ DI score greater than or equal to normative values and a HAQ DI score greater than or equal to MCID, respectively. Outcomes were generally maintained to month 18. Incidence rates (events per 100 patient‐years) for treatment‐emergent adverse events (AEs), serious AEs, and discontinuations due to AEs were 126.8, 11.9, and 14.5, respectively, and AEs of special interest were infrequent. Tofacitinib was associated with early and sustained improvement in RA signs and symptoms in real‐world patients. Effectiveness and safety were consistent with the established tofacitinib clinical profile.
Published: 2023
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18. The relative diagnostic utility of inflammatory back pain criteria in an inception cohort of patients with psoriasis, iritis, and colitis presenting with undiagnosed back pain

Author: Krober, Georg, Weber, Ulrich, Carmona, Raj, Yeung, James, Chan, Jon, Aydin, Sibel, Martin, Liam, Masetto, Ariel, Keeling, Stephanie, Ziouzina, Olga, Rohekar, Sherry, Dadashova, Rana, Paschke, Joel, Carapellucci, Amanda, Lambert, Robert G., and Maksymowych, Walter
Published: 2020
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19. Agreement Between Physician Evaluation and the Composite Response Index in Diffuse Cutaneous Systemic Sclerosis

Author: Zheng, Boyang, Wang, Mianbo, McKenna, Kerry, Shapiro, Lee, Silver, Richard, Csuka, Mary Ellen, Hoogen, Frank, Robinson, David, Pauling, John D., Hummers, Laura, Krieg, Thomas, Del Galdo, Francesco, Spiera, Robert, Jones, Niall, Khalidi, Nader, Vacca, Alessandra, Vries‐Bouwstra, Jeska K., Gordon, Jessica, Baron, Murray, Pope, Janet E., Hudson, Marie, Gyger, Geneviève, Larché, Maggie J., Masetto, Ariel, Sutton, Evelyn, Rodriguez‐Reyna, Tatiana S., Maltez, Nancy, Smith, Doug, Thorne, Carter, Ikic, Alena, Fortin, Paul R., and Fritzler, Marvin J.
Abstract: Diffuse cutaneous systemic sclerosis (SSc) is a highly heterogeneous disease. A provisionally approved Composite Response Index in diffuse cutaneous SSc (CRISS) was developed as a 1‐year outcome measure for clinical trials. Our goal was to further validate the CRISS by examining agreement between CRISS definitions for improved/non‐improved with physicians' evaluation of disease. Patient profiles from a large observational cohort were created for 50 random diffuse cutaneous SSc patients of <5 years disease duration with improved CRISS scores after 1 year and 50 with non‐improved CRISS scores. Profiles described disease features used during the initial CRISS development at baseline and at 1 year. Each profile was independently rated by 3 expert physicians. Majority opinion determined whether a patient was improved or not improved, and kappa agreement with the CRISS cutoff of 0.6 was calculated. Patients had mean ± SD disease duration of 2.2 ± 1.3 years. There was substantial agreement between the physician majority opinion about each case and the CRISS (κ = 0.76 [95% confidence interval (95% CI) 0.64–0.88]). The agreement between each individual physician opinion and the CRISS was also substantial (κ = 0.70 [95% CI 0.62–0.78]). All CRISS non‐improvers were also rated as non‐improved by physician majority; however, 12 CRISS improvers were rated as non‐improved by physicians. There was substantial agreement between the dichotomous CRISS rating and physician assessment of diffuse cutaneous SSc patients after 1 year. This supports the use of a CRISS cutoff at 0.6 for improvement versus non‐improvement, although the CRISS tended to rate more patients as improved than did physicians.
Published: 2022
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20. Protocol for a partially nested randomised controlled trial to evaluate the effectiveness of the scleroderma patient-centered intervention network COVID-19 home-isolation activities together (SPIN-CHAT) program to reduce anxiety among at-risk scleroderma patients

Author: Thombs, Brett D., primary, Kwakkenbos, Linda, additional, Carrier, Marie-Eve, additional, Bourgeault, Angelica, additional, Tao, Lydia, additional, Harb, Sami, additional, Gagarine, Maria, additional, Rice, Danielle, additional, Bustamante, Laura, additional, Ellis, Kelsey, additional, Duchek, Delaney, additional, Wu, Yin, additional, Bhandari, Parash Mani, additional, Neupane, Dipika, additional, Carboni-Jiménez, Andrea, additional, Henry, Richard S., additional, Krishnan, Ankur, additional, Sun, Ying, additional, Levis, Brooke, additional, He, Chen, additional, Turner, Kimberly A., additional, Benedetti, Andrea, additional, Culos-Reed, Nicole, additional, El-Baalbaki, Ghassan, additional, Hebblethwaite, Shannon, additional, Bartlett, Susan J., additional, Dyas, Laura, additional, Patten, Scott, additional, Varga, John, additional, Fortuné, Catherine, additional, Gietzen, Amy, additional, Guillot, Geneviève, additional, Lewis, Nancy, additional, Nielsen, Karen, additional, Richard, Michelle, additional, Sauvé, Maureen, additional, Welling, Joep, additional, Baron, Murray, additional, Furst, Daniel E., additional, Gottesman, Karen, additional, Malcarne, Vanessa, additional, Mayes, Maureen D., additional, Mouthon, Luc, additional, Nielson, Warren R., additional, Riggs, Robert, additional, Wigley, Fredrick, additional, Assassi, Shervin, additional, Boutron, Isabelle, additional, Ells, Carolyn, additional, van den Ende, Cornelia, additional, Fligelstone, Kim, additional, Frech, Tracy, additional, Godard, Dominique, additional, Harel, Daphna, additional, Hinchcliff, Monique, additional, Hudson, Marie, additional, Johnson, Sindhu R., additional, Larche, Maggie, additional, Leite, Catarina, additional, Nguyen, Christelle, additional, Pope, Janet, additional, Portales, Alexandra, additional, Rannou, François, additional, Reyna, Tatiana Sofia Rodriguez, additional, Schouffoer, Anne A., additional, Suarez-Almazor, Maria E., additional, Agard, Christian, additional, Albert, Alexandra, additional, André, Marc, additional, Arsenault, Guylaine, additional, Benzidia, Ilham, additional, Bernstein, Elana J., additional, Berthier, Sabine, additional, Bissonnette, Lyne, additional, Boire, Gilles, additional, Bruns, Alessandra, additional, Carreira, Patricia, additional, Casadevall, Marion, additional, Chaigne, Benjamin, additional, Chung, Lorinda, additional, Cohen, Pascal, additional, Correia, Chase, additional, Dagenais, Pierre, additional, Denton, Christopher, additional, Domsic, Robyn, additional, Dubois, Sandrine, additional, Dunne, James V., additional, Dunogue, Bertrand, additional, Fare, Regina, additional, Farge-Bancel, Dominique, additional, Fortin, Paul R., additional, Gill, Anna, additional, Gordon, Jessica, additional, Granel-Rey, Brigitte, additional, Gyger, Genevieve, additional, Hachulla, Eric, additional, Hatron, Pierre-Yves, additional, Herrick, Ariane L., additional, Hij, Adrian, additional, Hoa, Sabrina, additional, Ikic, Alena, additional, Jones, Niall, additional, de B. Fernandes, Artur Jose, additional, Kafaja, Suzanne, additional, Khalidi, Nader, additional, Lambert, Marc, additional, Launay, David, additional, Liang, Patrick, additional, Maillard, Hélène, additional, Maltez, Nancy, additional, Manning, Joanne, additional, Marie, Isabelle, additional, Martin, Maria, additional, Martin, Thierry, additional, Masetto, Ariel, additional, Maurier, François, additional, Mekinian, Arsene, additional, Melchor, Sheila, additional, Nikpour, Mandana, additional, Olagne, Louis, additional, Poindron, Vincent, additional, Proudman, Susanna, additional, Régent, Alexis, additional, Rivière, Sébastien, additional, Robinson, David, additional, Rodriguez, Esther, additional, Roux, Sophie, additional, Smets, Perrine, additional, Smith, Doug, additional, Sobanski, Vincent, additional, Spiera, Robert, additional, Steen, Virginia, additional, Stevens, Wendy, additional, Sutton, Evelyn, additional, Terrier, Benjamin, additional, Thorne, Carter, additional, Wilcox, Pearce, additional, Ayala, Mara Cañedo, additional, and Ostbo, Nora, additional
Published: 2020
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21. Impending radiographic erosive progression over the following year in a cohort of consecutive patients with inflammatory polyarthritis: prediction by serum biomarkers

Author: Carrier, Nathalie, primary, de Brum-Fernandes, Artur J, additional, Liang, Patrick, additional, Masetto, Ariel, additional, Roux, Sophie, additional, Biln, Norma K, additional, Maksymowych, Walter P, additional, and Boire, Gilles, additional
Published: 2020
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22. Indications for and clinical procedures resulting from magnetic resonance imaging of the knee in older patients: Are we choosing wisely?

Author: Parent, Marc-Etienne, Vézina, François, Carrier, Nathalie, and Masetto, Ariel
Subjects: Aged, 80 and over, Male, Databases, Factual, Knee Joint, Research, Quebec, Middle Aged, Osteoarthritis, Knee, Unnecessary Procedures, Magnetic Resonance Imaging, Radiography, Risk Factors, Humans, Female, Longitudinal Studies, Aged, Retrospective Studies
Abstract: To analyze the indications for and clinical procedures resulting from knee magnetic resonance imaging (MRI) in older patients.We retrospectively analyzed 215 medical records of patients 50 years of age and older who had undergone a unilateral knee MRI in 2009.Centre hospitalier universitaire de Sherbrooke in Quebec.Patients 50 years of age and older who underwent a knee MRI in 2009.The main outcome measure was an invasive procedure in the same knee that underwent an MRI. Medical charts were reviewed up to 2014 for patient characteristics, MRI indication, ordering physician specialty, radiography before MRI, MRI findings, and clinical procedures resulting from the MRI.The patients' mean (SD) age was 60.6 (7.5) years. The main MRI indications were meniscopathy (148 [68.8%]) and chronic pain (92 [42.8%]). The main MRI findings were osteoarthritis (OA) (185 [86.0%]) and meniscal lesions (170 [79.1%]). Only 82 (38.1%) patients had a plain radiograph in the 24 months preceding the MRI, usually without a standing anteroposterior view. Findings on pre-MRI radiography (n = 201) demonstrated OA in 144 (71.6%) patients. Overall, 87 (40.5%) patients were seen by an orthopedic surgeon and 27 (31.0%) of these patients underwent an invasive intervention. Among the 81 patients with moderate to severe OA on MRI, 36 (44.4%) had radiographic evidence of moderate to severe OA and only 3 (3.7%) underwent arthroscopic meniscectomy.Our study reproduces the known association between OA and degenerative meniscal changes in older patients. We have found a surprising underuse of the standing anteroposterior view on radiography. Most patients in our cohort could have been appropriately diagnosed and treated based on such radiographic information, as demonstrated by pre-MRI findings, thus avoiding the MRI and subsequent evaluation by an orthopedic surgeon. Meniscectomy was rarely performed, particularly in patients with advanced OA. Educational and pragmatic measures must be emphasized to encourage the use of radiography and to limit the inappropriate use of MRI, a costly technique.
Published: 2018

23. SAT0339 WHAT IS THE IMPACT OF IMAGING ON DIAGNOSTIC ASCERTAINMENT OF PATIENTS PRESENTING WITH UNDIAGNOSED BACK PAIN AND WHAT IS THE IMPACT OF CENTRAL EVALUATION? DATA FROM THE SCREENING IN AXIAL SPONDYLOARTHRITIS IN PSORIASIS, IRITIS, AND COLITIS (SASPIC) COHORT

Author: Maksymowych, Walter P., primary, Carmona, Raj, additional, Yeung, James, additional, Chan, Jon, additional, Martin, Liam, additional, Aydin, Sibel, additional, Mosher, Dianne, additional, Masetto, Ariel, additional, Keeling, Stephanie, additional, Ziouzina, Olga, additional, Rohekar, Sherry, additional, Paschke, Joel, additional, Carapellucci, Amanda, additional, and Lambert, Robert G., additional
Published: 2019
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24. AB0726 WHAT IS THE IMPACT OF MRI ON THE PERFORMANCE OF THE ASAS CLASSIFICATION CRITERIA IN PATIENTS PRESENTING WITH UNDIAGNOSED BACK PAIN?

Author: Maksymowych, Walter P., primary, Carmona, Raj, additional, Yeung, James, additional, Chan, Jon, additional, Martin, Liam, additional, Aydin, Sibel, additional, Mosher, Dianne, additional, Masetto, Ariel, additional, Keeling, Stephanie, additional, Ziouzina, Olga, additional, Rohekar, Sherry, additional, Paschke, Joel, additional, Carapellucci, Amanda, additional, and Lambert, Robert G., additional
Published: 2019
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25. THU0393 PERFORMANCE OF THE ASAS CLASSIFICATION CRITERIA PRESENTING WITH UNDIAGNOSED BACK PAIN? DATA FROM THE SCREENING IN AXIAL SPONDYLOARTHRITIS IN PSORIASIS, IRITIS, AND COLITIS (SASPIC) COHORT

Author: Maksymowych, Walter P, primary, Carmona, Raj, additional, Yeung, James, additional, Chan, Jon, additional, Martin, Liam, additional, Aydin, Sibel, additional, Mosher, Dianne, additional, Masetto, Ariel, additional, Keeling, Stephanie, additional, Ziouzina, Olga, additional, Rohekar, Sherry, additional, Paschke, Joel, additional, Carapellucci, Amanda, additional, and Lambert, Robert G, additional
Published: 2019
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26. AB0704 EFFECTIVENESS AND SAFETY OF INFLIXIMAB AND GOLIMUMAB IN ANKYLOSING SPONDYLITIS PATIENTS FROM A PROSPECTIVE OBSERVATIONAL REGISTRY

Author: Rahman, Proton, primary, Haaland, Derek, additional, Sholter, Dalton, additional, Starr, Michael, additional, Karasik, Arthur, additional, Teo, Michelle, additional, Dixit, Sanjay, additional, Masetto, Ariel, additional, Jarosynska, Anna, additional, Boulos, Pauline, additional, Sheriff, Maqbool, additional, Stewart, Jacqueline, additional, Rampakakis, Emmanouil, additional, Miilan, Odalis asin, additional, Lehman, Allen, additional, Rachich, Meagan, additional, and Nantel, Francois, additional
Published: 2019
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27. THU0392 DESCRIPTION AND PREVALENCE: OF SPONDYLOARTHRITIS IN UNSELECTED PATIENTS WITH PSORIASIS, ACUTE ANTERIOR UVEITIS, AND INFLAMMATORY BOWEL DISEASE PRESENTING WITH UNDIAGNOSED BACK PAIN

Author: Maksymowych, Walter P, primary, Carmona, Raj, additional, Yeung, James, additional, Chan, Jon, additional, Martin, Liam, additional, Aydin, Sibel, additional, Mosher, Dianne, additional, Masetto, Ariel, additional, Keeling, Stephanie, additional, Ziouzina, Olga, additional, Rohekar, Sherry, additional, Paschke, Joel, additional, Carapellucci, Amanda, additional, and Lambert, Robert G, additional
Published: 2019
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28. Immunosuppressive treatment in diffuse cutaneous systemic sclerosis is associated with an improved composite response index (CRISS).

Author: Zheng, Boyang, Hudson, Marie, Wang, Mianbo, Baron, Murray, for the Canadian Scleroderma Research Group, Pope, Janet E., Gyger, Geneviève, Larché, Maggie J., Khalidi, Nader A., Masetto, Ariel, Sutton, Evelyn, Robinson, David, Rodriguez-Reyna, Tatiana S., Maltez, Nancy, Smith, Doug, Thorne, Carter, Ikic, Alena, Fortin, Paul R., and Fritzler, Marvin J.
Published: 2020
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29. Treatment of small intestinal bacterial overgrowth in systemic sclerosis: a systematic review

Author: Pittman, Natalia, primary, Rawn, Saara M, additional, Wang, Mianbo, additional, Masetto, Ariel, additional, Beattie, Karen A, additional, and Larché, Maggie, additional
Published: 2018
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30. Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort

Author: Jewett, Lisa R., primary, Kwakkenbos, Linda, additional, Carrier, Marie-Eve, additional, Malcarne, Vanessa L., additional, Harcourt, Diana, additional, Rumsey, Nichola, additional, Mayes, Maureen D., additional, Assassi, Shervin, additional, Körner, Annett, additional, Fox, Rina S., additional, Gholizadeh, Shadi, additional, Mills, Sarah D., additional, Fortune, Catherine, additional, Portales, Alexandra, additional, Thombs, Brett D., additional, Baron, Murray, additional, Bartlett, Susan J., additional, Furst, Dan, additional, Gottesman, Karen, additional, van den Hoogen, Frank, additional, Mouthon, Luc, additional, Nielson, Warren R., additional, Poiraudeau, Serge, additional, Riggs, Robert, additional, Sauve, Maureen, additional, Wigley, Fredrick, additional, Boutron, Isabelle, additional, Costa Maia, Angela, additional, El-Baalbaki, Ghassan, additional, Ells, Carolyn, additional, van den Ende, Cornelia, additional, Fligelstone, Kim, additional, Frech, Tracy, additional, Godard, Dominique, additional, Harel, Daphna, additional, Hudson, Marie, additional, Impens, Ann, additional, Jang, Yeona, additional, Johnson, Sindhu R., additional, Kennedy, Ann Tyrell, additional, Khanna, Dinesh, additional, Larche, Maggie, additional, Leite, Catarina, additional, Marra, Carlo, additional, Nielsen, Karen, additional, Poole, Janet L., additional, Pope, Janet, additional, Rodriguez Reyna, Tatiana Sofia, additional, Schouffoer, Anne A., additional, Steele, Russell J., additional, Suarez-Almazor, Maria E., additional, Welling, Joep, additional, Wong-Rieger, Durhane, additional, Albert, Alexandra, additional, Arsenault, Guylaine, additional, Bissonnette, Lyne, additional, Boire, Gilles, additional, Bruns, Alessandra, additional, Carreira, Patricia, additional, Chung, Lorinda, additional, Dagenais, Pierre, additional, Denton, Christopher, additional, Domsic, Robyn, additional, Dunne, James V., additional, Fortin, Paul, additional, Gill, Anna, additional, Gordon, Jessica, additional, Gyger, Genevieve, additional, Herrick, Ariane L., additional, Hinchcliff, Monique, additional, Ikic, Alena, additional, Jones, Niall, additional, de B. Fernandes, Artur Jose, additional, Kafaja, Suzanne, additional, Khalidi, Nader, additional, Korman, Benjamin, additional, Liang, Patrick, additional, Manning, Joanne, additional, Masetto, Ariel, additional, Robinson, David, additional, Roux, Sophie, additional, Schiopu, Elena, additional, Smith, Doug, additional, Spiera, Robert, additional, Steen, Virginia, additional, Sutton, Evelyn, additional, Thorne, Carter, additional, Varga, John, additional, Wilcox, Pearce, additional, Delisle, Vanessa C., additional, Fedoruk, Claire, additional, Levis, Brooke, additional, Pepin, Mia R., additional, and Persmann, Jennifer, additional
Published: 2017
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31. Effect of macitentan on the development of new ischemic digital ulcers in patients with systemic sclerosis: Dual-1 and Dual-2 randomized clinical trials

Author: Khanna, Dinesh, Denton, Christopher P., Merkel, Peter A., Krieg, Thomas M., Le Brun, Franck Olivier, Marr, Angelina, Papadakis, Kelly, Pope, Janet, Matucci Cerinic, Marco, Furst, Daniel E., Zochling, Jane, Stevens, Wendy, Proudman, Susanna, Feenstra, John, Youssef, Peter, Soroka, Nikolay, Tyabut, Tamara, Mikhailova, Elena Ivanovna, Rashkov, Rasho, Batalov, Anasta, Yablanski, Kiril, Keystone, Edward, Jones, Niall, Dunne, Jame, Masetto, Ariel, Calabresse, Renato Jiménez, Cabezas, Pedro Claudio Miranda, Silva, Marta Ofelia Aliste, Sariego, Imgadt Annelise Goecke, Escalente, William José Otero, Anić, Branimir, Kaliterna, Dušanka Martinović, Morović Vergles, Jadranka, Novak, Srdan, Prus, Višnja, Artuković, Marinko, Soukup, Tomaáš, Bečvař, Radim, Fojtík, Zdeněk, Mouthon, Luc, Kollert, Florian, Riemekasten, Gabriela, Lahner, Nina, Fierlbeck, Gerhard, Ahmadi Simab, Keihan, Diehm, Curt, Szücs, Gabriella, Kumánovics, Gábor, Nagy, György, Pal, Sarvajeet, Veeravalli, Sarath Chandra Mouli, Danda, Debashish, Ferri, Clodeveo, Cozzi, Franco, Ferraccioli, Gianfranco, Wiland, Piotr, Rudnicak, Lidia, Zwolak, Robert, Roszkiewicz, Jadwiga, Oleynikov, Valentin, Nikulenkova, Natalya, Lesnyak, Olga, Kaydashev, Igor, Kurytar, Oleksandr, Piura, Olena, Chopyak, Valentyna, Chatterjee, Soumya, Hsu, Vivien, Hummers, Laura, Martin, Richard, Domsic, Robyn, Schiopu, Elena, Shanahan, Joseph, Murphy, Frederik T., Kaine, Jeffrey, Davis, William, Grau, Rafael, Eimon, Alicia, Catoggio, Luis Jose, Laborde, Hugo Armando, Caeiro, Francisco, Savio, Veronica Gabriela, Amitrano, Cristina Beatriz, Vanthuyne, Marie, Zeng, Xioafeng, Zhang, Xiao, Zhu, Ping, Velásquez Franco, Carlos Jaime, Choueka, Philippe Selim Chalem, Sanchez, Patricia Julieta Vélez, Hermann, Walter, Sticherling, Michael, Steinbrink, Kerstin, Hein, Rüdiger, Aschoff, Roland, Sfikakis, Petro, Settas, Luka, Fraser, Alexander, Veale, Dougla, Balbir Gurman, Alexandra, Lidar, Merav, Litinsky, Irena, Levy, Yair, Carrillo Vazquez, Sandra Miriam, Rodriguez Reyna, Tatiana, Medrano Ramirez, Gabriel, Morales Torres, Jorge, Pacheco Tena, Cesar Francisco, Sanchez Ortiz, Adriana, Vonk, Madelon C., Stebbings, Simon, Solanki, Kamal, Steele, Richard, Ng, Kristine, Zubrzycka Sienkiewicz, Anna, Brzosko, Marek, Szepietowski, Jacek C., Hrycaj, Pawel, Da Silva, Ivone Fernandes Santo, Dos Santos, Lelita Da Conceiçao, Coelho, Paulo Jorge Clemente, Rios, Grissel, Chernykh, Tatiana, Grunina, Elena, Stanislav, Marina, Ally, Mahmood, Kalla, Asgar, Birlik, Ahmet Merih, Kovalenko, Volodymyr, Petrov, Andriy, Shevchuk, Sergiy, Stanislavchuk, Mykola, Anderson, Marina, Herrick, Ariane, Belch, Jill, Chung, Lorinda, Csuka, Mary Ellen, Frech, Tracy, Goldberg, Avram, Kahaleh, Bashar, Mayes, Maureen D., Rothfield, Naomi, Simms, Robert William, Spiera, Robert, Steen, Virgina, Varga, John, Sikes, David, Derk, Chris T., Kohen, Michael D., Ferraccioli, Gianfranco (ORCID:0000-0001-6246-2428), Khanna, Dinesh, Denton, Christopher P., Merkel, Peter A., Krieg, Thomas M., Le Brun, Franck Olivier, Marr, Angelina, Papadakis, Kelly, Pope, Janet, Matucci Cerinic, Marco, Furst, Daniel E., Zochling, Jane, Stevens, Wendy, Proudman, Susanna, Feenstra, John, Youssef, Peter, Soroka, Nikolay, Tyabut, Tamara, Mikhailova, Elena Ivanovna, Rashkov, Rasho, Batalov, Anasta, Yablanski, Kiril, Keystone, Edward, Jones, Niall, Dunne, Jame, Masetto, Ariel, Calabresse, Renato Jiménez, Cabezas, Pedro Claudio Miranda, Silva, Marta Ofelia Aliste, Sariego, Imgadt Annelise Goecke, Escalente, William José Otero, Anić, Branimir, Kaliterna, Dušanka Martinović, Morović Vergles, Jadranka, Novak, Srdan, Prus, Višnja, Artuković, Marinko, Soukup, Tomaáš, Bečvař, Radim, Fojtík, Zdeněk, Mouthon, Luc, Kollert, Florian, Riemekasten, Gabriela, Lahner, Nina, Fierlbeck, Gerhard, Ahmadi Simab, Keihan, Diehm, Curt, Szücs, Gabriella, Kumánovics, Gábor, Nagy, György, Pal, Sarvajeet, Veeravalli, Sarath Chandra Mouli, Danda, Debashish, Ferri, Clodeveo, Cozzi, Franco, Ferraccioli, Gianfranco, Wiland, Piotr, Rudnicak, Lidia, Zwolak, Robert, Roszkiewicz, Jadwiga, Oleynikov, Valentin, Nikulenkova, Natalya, Lesnyak, Olga, Kaydashev, Igor, Kurytar, Oleksandr, Piura, Olena, Chopyak, Valentyna, Chatterjee, Soumya, Hsu, Vivien, Hummers, Laura, Martin, Richard, Domsic, Robyn, Schiopu, Elena, Shanahan, Joseph, Murphy, Frederik T., Kaine, Jeffrey, Davis, William, Grau, Rafael, Eimon, Alicia, Catoggio, Luis Jose, Laborde, Hugo Armando, Caeiro, Francisco, Savio, Veronica Gabriela, Amitrano, Cristina Beatriz, Vanthuyne, Marie, Zeng, Xioafeng, Zhang, Xiao, Zhu, Ping, Velásquez Franco, Carlos Jaime, Choueka, Philippe Selim Chalem, Sanchez, Patricia Julieta Vélez, Hermann, Walter, Sticherling, Michael, Steinbrink, Kerstin, Hein, Rüdiger, Aschoff, Roland, Sfikakis, Petro, Settas, Luka, Fraser, Alexander, Veale, Dougla, Balbir Gurman, Alexandra, Lidar, Merav, Litinsky, Irena, Levy, Yair, Carrillo Vazquez, Sandra Miriam, Rodriguez Reyna, Tatiana, Medrano Ramirez, Gabriel, Morales Torres, Jorge, Pacheco Tena, Cesar Francisco, Sanchez Ortiz, Adriana, Vonk, Madelon C., Stebbings, Simon, Solanki, Kamal, Steele, Richard, Ng, Kristine, Zubrzycka Sienkiewicz, Anna, Brzosko, Marek, Szepietowski, Jacek C., Hrycaj, Pawel, Da Silva, Ivone Fernandes Santo, Dos Santos, Lelita Da Conceiçao, Coelho, Paulo Jorge Clemente, Rios, Grissel, Chernykh, Tatiana, Grunina, Elena, Stanislav, Marina, Ally, Mahmood, Kalla, Asgar, Birlik, Ahmet Merih, Kovalenko, Volodymyr, Petrov, Andriy, Shevchuk, Sergiy, Stanislavchuk, Mykola, Anderson, Marina, Herrick, Ariane, Belch, Jill, Chung, Lorinda, Csuka, Mary Ellen, Frech, Tracy, Goldberg, Avram, Kahaleh, Bashar, Mayes, Maureen D., Rothfield, Naomi, Simms, Robert William, Spiera, Robert, Steen, Virgina, Varga, John, Sikes, David, Derk, Chris T., Kohen, Michael D., and Ferraccioli, Gianfranco (ORCID:0000-0001-6246-2428)
Abstract: Importance: Digital ulcers in patients with systemic sclerosis are associated with pain and poor quality of life. Endothelin-1 promotes vasculopathy in systemic sclerosis after macitentan, an endothelin-1 blocker. Objective: To evaluate the efficacy of macitentan in reducing the number of new digital ulcers in patients with systemic sclerosis. Design, Setting, And Participants: Two international, randomized, double-blind, placebo-controlled trials (DUAL-1, DUAL-2) were conducted between January 2012 and February 2014. Participants were patients with systemic sclerosis and active digital ulcers at baseline. Target enrollment for each study was 285 patients. Interventions: Patients were randomized (1:1:1) to receive oral doses of 3 mg of macitentan, 10 mg of macitentan, or placebo once daily and stratified according to number of digital ulcers at baseline (≤3 or >3). Main Outcomes and Measures: The primary outcome for each trialwas the cumulative number of new digital ulcers from baseline to week 16. Treatment effect was expressed as the ratio between treatment groups. Results: In DUAL-1, among 289 randomized patients (mean age 51.2 years; 85.8% women), 226 completed the study. The adjusted mean number of new digital ulcers per patient over 16 weeks was 0.94 in the 3-mg macitentan group (n = 95) and 1.08 in the 10-mg macitentan group (n = 97) compared with 0.85 in the placebo group (n = 97) (absolute difference, 0.09 [95% CI, -0.37 to 0.54] for 3mg of macitentan vs placebo and 0.23 [-0.27 to 0.72] for 10 mg of macitentan vs placebo). Among 265 patients randomized in DUAL-2 (mean age 49.6 years; 81.9% women), 216 completed the study. In DUAL-2, the adjusted mean number of new digital ulcers was 1.44 in the 3-mg macitentan group (n = 88) and 1.46 in the 10-mg macitentan group (n = 88) compared with 1.21 in the placebo group (n = 89) (absolute difference, 0.23 [95% CI, -0.35 to 0.82] for 3 mg of macitentan vs placebo and 0.25 [95% CI, -0.34 to 0.84] for 10mg of macitenta
Published: 2016

32. Calcinosis is associated with digital ischaemia in systemic sclerosis—a longitudinal study

Author: Baron, Murray, primary, Pope, Janet, additional, Robinson, David, additional, Jones, Niall, additional, Khalidi, Nader, additional, Docherty, Peter, additional, Kaminska, Elzbieta, additional, Masetto, Ariel, additional, Sutton, Evelyn, additional, Mathieu, Jean-Pierre, additional, Ligier, Sophie, additional, Grodzicky, Tamara, additional, LeClercq, Sharon, additional, Thorne, Carter, additional, Gyger, Geneviève, additional, Smith, Douglas, additional, Fortin, Paul R., additional, Larché, Maggie, additional, Abu-Hakima, Maysan, additional, Rodriguez-Reyna, Tatiana S., additional, Cabral-Castaneda, Antonio R., additional, Fritzler, Marvin J., additional, Wang, Mianbo, additional, and Hudson, Marie, additional
Published: 2016
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33. Relationship Between Disease Characteristics and Oral Radiologic Findings in Systemic Sclerosis: Results From a Canadian Oral Health Study

Author: Baron, Murray, primary, Hudson, Marie, additional, Dagenais, Marie, additional, Macdonald, David, additional, Gyger, Geneviève, additional, El Sayegh, Tarek, additional, Pope, Janet, additional, Fontaine, Audrey, additional, Masetto, Ariel, additional, Matthews, Debora, additional, Sutton, Evelyn, additional, Thie, Norman, additional, Jones, Niall, additional, Copete, Maria, additional, Kolbinson, Dean, additional, Markland, Janet, additional, Nogueira-Filho, Getulio, additional, Robinson, David, additional, Fritzler, Marvin, additional, Wang, Mianbo, additional, and Gornitsky, Mervyn, additional
Published: 2016
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34. Serum levels of 14-3-3η protein supplement C-reactive protein and rheumatoid arthritis-associated antibodies to predict clinical and radiographic outcomes in a prospective cohort of patients with recent-onset inflammatory polyarthritis

Author: Carrier, Nathalie, primary, Marotta, Anthony, additional, de Brum-Fernandes, Artur J., additional, Liang, Patrick, additional, Masetto, Ariel, additional, Ménard, Henri A., additional, Maksymowych, Walter P., additional, and Boire, Gilles, additional
Published: 2016
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35. Anti-carbamylated Protein Antibody Levels Correlate with Anti-Sa (Citrullinated Vimentin) Antibody Levels in Rheumatoid Arthritis

Author: Challener, Gregory J., primary, Jones, Jonathan D., additional, Pelzek, Adam J., additional, Hamilton, B. JoNell, additional, Boire, Gilles, additional, de Brum-Fernandes, Artur José, additional, Masetto, Ariel, additional, Carrier, Nathalie, additional, Ménard, Henri A., additional, Silverman, Gregg J., additional, and Rigby, William F.C., additional
Published: 2015
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36. Relationship Between Disease Characteristics and Orofacial Manifestations in Systemic Sclerosis: Canadian Systemic Sclerosis Oral Health Study III

Author: Baron, Murray, primary, Hudson, Marie, additional, Tatibouet, Solène, additional, Steele, Russell, additional, Lo, Ernest, additional, Gravel, Sabrina, additional, Gyger, Geneviève, additional, el Sayegh, Tarek, additional, Pope, Janet, additional, Fontaine, Audrey, additional, Masetto, Ariel, additional, Matthews, Debora, additional, Sutton, Evelyn, additional, Thie, Norman, additional, Jones, Niall, additional, Copete, Maria, additional, Kolbinson, Dean, additional, Markland, Janet, additional, Nogueira, Getulio, additional, Robinson, David, additional, Fritzler, Marvin, additional, and Gornitsky, Mervyn, additional
Published: 2015
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37. 2013 American College of Rheumatology/European League Against Rheumatism Classification Criteria for Systemic Sclerosis Outperform the 1980 Criteria: Data From the Canadian Scleroderma Research Group

Author: Alhajeri, Hebah, primary, Hudson, Marie, additional, Fritzler, Marvin, additional, Pope, Janet, additional, Tatibouet, Solène, additional, Markland, Janet, additional, Robinson, David, additional, Jones, Niall, additional, Khalidi, Nader, additional, Docherty, Peter, additional, Kaminska, Elzbieta, additional, Masetto, Ariel, additional, Sutton, Evelyn, additional, Mathieu, Jean-Pierre, additional, Ligier, Sophie, additional, Grodzicky, Tamara, additional, LeClercq, Sharon, additional, Thorne, Carter, additional, Gyger, Geneviève, additional, Smith, Douglas, additional, Fortin, Paul R., additional, Larché, Maggie, additional, and Baron, Murray, additional
Published: 2015
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38. Progressive Multifocal Leukoencephalopathy Associated with Belimumab in a Patient with Systemic Lupus Erythematosus

Author: LEBLANC-TRUDEAU, CHARLOTTE, primary, MASETTO, ARIEL, additional, and BOCTI, CHRISTIAN, additional
Published: 2015
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39. Learning Together about One's and Other Health Care Professionals' Clinical Responsibilities: The Upside of Interprofessional Collaborative Education

Author: StOnge, Christina, primary, Gaboury, Isabelle, additional, Gaudreault, Nathaly, additional, Bois, Caroline, additional, Ouellet, Kathleen, additional, Beaulieu, MarieClaude, additional, Bergeron, Linda, additional, Levasseur, Mlanie, additional, and Masetto, Ariel, additional
Published: 2015
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40. Clinical correlates of faecal incontinence in systemic sclerosis: identifying therapeutic avenues.

Author: Richard, Nicolas, Hudson, Marie, Gyger, Geneviève, Baron, Murray, Sutton, Evelyn, Khalidi, Nader, Pope, Janet E., Carrier, Nathalie, Larché, Maggie, Albert, Alexandra, Fortin, Paul R., Thorne, Carter, and Masetto, Ariel
Subjects: FECAL incontinence -- Risk factors, CHI-squared test, CONFIDENCE intervals, FECAL incontinence, FISHER exact test, GASTROINTESTINAL diseases, LONGITUDINAL method, MEDICAL cooperation, PROBABILITY theory, QUALITY of life, QUESTIONNAIRES, REGRESSION analysis, RESEARCH, SYSTEMIC scleroderma, T-test (Statistics), DISEASE prevalence, CROSS-sectional method, SEVERITY of illness index, DATA analysis software, DESCRIPTIVE statistics, ODDS ratio, MANN Whitney U Test, DISEASE complications, PSYCHOLOGY
Abstract: Objectives. The aim was to establish the prevalence and severity of faecal incontinence (FI) in SSc, its association with other intestinal manifestations and potential predictors of FI, and its impact on quality of life. Methods. A multicentre, cross-sectional study of 298 SSc subjects followed in the Canadian Scleroderma Research Group cohort was performed using validated questionnaires: Jorge-Wexner score (an FI severity scale), Bristol stool scale (a visual scale of stool consistency) and FI Quality-of-Life scale. Constipation was defined by the Rome III criteria. Associations between the Jorge-Wexner score and other clinical variables were determined using multivariate regression analyses. Results. Eighty-one (27.2%) subjects had FI, which was mild in 37 (12.4%) and moderate to severe in 44 (14.8%). Most patients had well-formed stools, 111 (38.8%) reported constipation and 38 (13.4%) had been previously treated for small intestinal bacterial overgrowth (SIBO). Variables independently associated with FI were: loose vs well-formed stools [odds ratio (OR) = 7.01, 95% CI: 2.09, 23.51)], constipation (OR = 3.64, 95% CI: 1.61, 8.27, P = 0.002), history of SIBO (OR = 2.97, 95% CI: 1.06, 8.27) and urinary incontinence (OR = 2.45, 95% CI: 1.14, 5.27). Quality of life measured with the FI Quality-of- Life scale was inversely correlated with FI severity (correlation coefficients between -0.602 and -0.702, P < 0.001). Conclusion. FI was common and often severe in SSc. Loose stools, SIBO, constipation and urinary incontinence were strongly associated with FI. Other than targeting anorectal dysfunction, concomitant treatment of clinical correlates could lead to improvement in FI and quality of life in SSc. [ABSTRACT FROM AUTHOR]
Published: 2017
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41. Serum C-X-C motif chemokine 13 is elevated in early and established rheumatoid arthritis and correlates with rheumatoid factor levels

Author: Jones, Jonathan D, primary, Hamilton, B, additional, Challener, Gregory J, additional, de Brum-Fernandes, Artur J, additional, Cossette, Pierre, additional, Liang, Patrick, additional, Masetto, Ariel, additional, Ménard, Henri A, additional, Carrier, Nathalie, additional, Boyle, David L, additional, Rosengren, Sanna, additional, Boire, Gilles, additional, and Rigby, William F C, additional
Published: 2014
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42. Validation of the Social Appearance Anxiety Scale in Patients With Systemic Sclerosis: A Scleroderma Patient‐Centered Intervention Network Cohort Study

Author: Mills, Sarah D., Kwakkenbos, Linda, Carrier, Marie‐Eve, Gholizadeh, Shadi, Fox, Rina S., Jewett, Lisa R., Gottesman, Karen, Roesch, Scott C., Thombs, Brett D., Malcarne, Vanessa L., Baron, Murray, Bartlett, Susan J., Ells, Carolyn, Hudson, Marie, Jang, Yeona, Körner, Annett, Furst, Dan, Kafaja, Suzanne, Hoogen, Frank, Mayes, Maureen D., Assassi, Shervin, Mouthon, Luc, Nielson, Warren R., Riggs, Robert, Sauve, Maureen, Fortune, Catherine, Nielsen, Karen, Wigley, Fredrick, Boutron, Isabelle, Maia, Angela Costa, Leite, Catarina, El‐Baalbaki, Ghassan, Ende, Cornelia, Fligelstone, Kim, Frech, Tracy, Godard, Dominique, Harel, Daphna, Impens, Ann, Johnson, Sindhu R., Kennedy, Ann Tyrell, Larche, Maggie, Khalidi, Nader, Marra, Carlo, Pope, Janet, Portales, Alexandra, Rodriguez Reyna, Tatiana Sofia, Luna, David, Schouffoer, Anne A., Steele, Russell J., Gyger, Genevieve, Levis, Brooke, Suarez‐Almazor, Maria E., Welling, Joep, Wong‐Rieger, Durhane, Agard, Christian, Albert, Alexandra, Ikic, Alena, André, Marc, Smets, Perrine, Arsenault, Guylaine, Bissonnette, Lyne, Boire, Gilles, Bruns, Alessandra, Dagenais, Pierre, Fernandes, Artur Jose de B., Liang, Patrick, Masetto, Ariel, Roux, Sophie, Benmostefa, Nouria, Casadevall, Marion, Chaigne, Benjamin, Cohen, Pascal, London, Jonathan, Paule, Romain, Régent, Alexis, Terrier, Benjamin, Benzidia, Ilham, Farge‐Bancel, Dominique, Hij, Adrian, Berthier, Sabine, Carreira, Patricia, Fare, Regina, Martin, Maria, Melchor, Sheila, Rodriguez, Esther, Chung, Lorinda, Denton, Christopher, Gill, Anna, Domsic, Robyn, Dunne, James V., Wilcox, Pearce, Fortin, Paul R., Gordon, Jessica, Spiera, Robert, Granel‐Rey, Brigitte, Grange, Claire, Hachulla, Eric, Hatron, Pierre‐Yves, Lambert, Marc, Launay, David, Sobanski, Vincent, Herrick, Ariane L., Hinchcliff, Monique, Korman, Benjamin, Varga, John, Jones, Niall, Manning, Joanne, Martin, Thierry, Maurier, François, Mekinian, Arsene, Rivière, Sébastien, Robinson, David, Smith, Doug, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Cumin, Julie, Pepin, Mia R., and Turner, Kimberly
Abstract: Systemic sclerosis (SSc) is an autoimmune disease that can cause disfiguring changes in appearance. This study examined the structural validity, internal consistency reliability, convergent validity, and measurement equivalence of the Social Appearance Anxiety Scale (SAAS) across SSc disease subtypes. Patients enrolled in the Scleroderma Patient‐centered Intervention Network Cohort completed the SAASand measures of appearance‐related concerns and psychological distress. Confirmatory factor analysis (CFA) was used to examine the structural validity of the SAAS. Multiple‐group CFAwas used to determine whether SAASscores can be compared across patients with limited and diffuse disease subtypes. Cronbach's alpha was used to examine internal consistency reliability. Correlations of SAASscores with measures of body image dissatisfaction, fear of negative evaluation, social anxiety, and depression were used to examine convergent validity. SAASscores were hypothesized to be positively associated with all convergent validity measures, with correlations significant and moderate to large in size. A total of 938 patients with SSc were included. CFAsupported a 1‐factor structure (Comparative Fit Index 0.92, Standardized Root Mean Residual 0.04, and Root Mean Square Error of Approximation 0.08), and multiple‐group CFAindicated that the scalar invariance model best fit the data. Internal consistency reliability was good in the total sample (α = 0.96) and in disease subgroups. Overall, evidence of convergent validity was found with measures of body image dissatisfaction, fear of negative evaluation, social anxiety, and depression. The SAAScan be reliably and validly used to assess fear of appearance evaluation in patients with SSc, and SAASscores can be meaningfully compared across disease subtypes.
Published: 2018
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43. Prevention of Rheumatoid Arthritis: The Very First Steps

Author: MASETTO, ARIEL, primary, BEAULIEU, MARIE-CLAUDE, additional, and BOIRE, GILLES, additional
Published: 2013
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44. Anti-carbamylated Protein Antibody Levels Correlate with Anti-Sa (Citrullinated Vimentin) Antibody Levels in Rheumatoid Arthritis.

Author: Challener, Gregory J., Jones, Jonathan D., Pelzek, Adam J., Hamilton, B. JoNell, Boire, Gilles, de Brum-Fernandes, Artur José, Masetto, Ariel, Carrier, Nathalie, Ménard, Henri A., Silverman, Gregg J., and Rigby, William F. C.
Published: 2016
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45. High prevalence of occult left heart disease in scleroderma-pulmonary hypertension

Author: Fox, Benjamin D., primary, Shimony, Avi, additional, Langleben, David, additional, Hirsch, Andrew, additional, Rudski, Lawrence, additional, Schlesinger, Robert, additional, Eisenberg, Mark J., additional, Joyal, Dominique, additional, Hudson, Marie, additional, Boutet, Kim, additional, Serban, Alexandrina, additional, Masetto, Ariel, additional, and Baron, Murray, additional
Published: 2012
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46. Using Optimal Test Assembly Methods for Shortening Patient‐Reported Outcome Measures: Development and Validation of the Cochin Hand Function Scale‐6: A Scleroderma Patient‐Centered Intervention Network Cohort Study

Author: Levis, Alexander W., Harel, Daphna, Kwakkenbos, Linda, Carrier, Marie‐Eve, Mouthon, Luc, Poiraudeau, Serge, Bartlett, Susan J., Khanna, Dinesh, Malcarne, Vanessa L., Sauve, Maureen, van den Ende, Cornelia H. M., Poole, Janet L., Schouffoer, Anne A., Welling, Joep, Thombs, Brett D., Baron, Murray, Ells, Carolyn, Jang, Yeona, Steele, Russell J., Furst, Dan, Kafaja, Suzanne, Gottesman, Karen, van den Hoogen, Frank, Mayes, Maureen D., Assassi, Shervin, Nielson, Warren R., Riggs, Robert, Wigley, Fredrick, Boutron, Isabelle, Maia, Angela Costa, Leite, Catarina, El‐Baalbaki, Ghassan, Persmann, Jennifer, Fligelstone, Kim, Fortune, Catherine, Nielsen, Karen, Frech, Tracy, Godard, Dominique, Hudson, Marie, Gyger, Genevieve, Delisle, Vanessa C., Jewitt, Lisa R., Levis, Brooke, Milette, Katherine, Impens, Ann, Johnson, Sindhu R., Kennedy, Ann Tyrell, Larche, Maggie, Khalidi, Nader, Marra, Carlo, Pope, Janet, Portales, Alexandra, Reyna, Tatiana Sofia Rodriguez, Suarez‐Almazor, Maria E., Wong‐Rieger, Durhane, Albert, Alexandra, Fortin, Paul, Ikic, Alena, Arsenault, Guylaine, Bissonnette, Lyne, Boire, Gilles, Bruns, Alessandra, Dagenais, Pierre, Fernandes, Artur Jose de B., Liang, Patrick, Masetto, Ariel, Roux, Sophie, Carreira, Patricia, Chung, Lorinda, Denton, Christopher, Gill, Anna, Domsic, Robyn, Dunne, James V., Wilcox, Pearce, Gordon, Jessica, Spiera, Robert, Herrick, Ariane L., Hinchcliff, Monique, Korman, Benjamin, Varga, John, Jones, Niall, Manning, Joanne, Robinson, David, Schiopu, Elena, Smith, Doug, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Fedoruk, Claire, Pepin, Mia R., Fox, Rina S., Gholizadeh, Shadi, and Mills, Sarah D.
Abstract: To develop and validate a short form of the Cochin Hand Function Scale (CHFS), which measures hand disability, for use in systemic sclerosis, using objective criteria and reproducible techniques. Responses on the 18‐item CHFS were obtained from English‐speaking patients enrolled in the Scleroderma Patient‐Centered Intervention Network Cohort. CHFS unidimensionality was verified using confirmatory factor analysis, and an item response theory model was fit to CHFS items. Optimal test assembly (OTA) methods identified a maximally precise short form for each possible form length between 1 and 17 items. The final short form selected was the form with the least number of items that maintained statistically equivalent convergent validity, compared to the full‐length CHFS, with the Health Assessment Questionnaire (HAQ) disability index (DI) and the physical function domain of the 29‐item Patient‐Reported Outcomes Measurement Information System (PROMIS‐29). There were 601 patients included. A 6‐item short form of the CHFS (CHFS‐6) was selected. The CHFS‐6 had a Cronbach's alpha of 0.93. Correlations of the CHFS‐6 summed score with HAQ DI (r = 0.79) and PROMIS‐29 physical function (r = −0.54) were statistically equivalent to the CHFS (r = 0.81 and r = −0.56). The correlation with the full CHFS was high (r = 0.98). The OTA procedure generated a valid short form of the CHFS with minimal loss of information compared to the full‐length form. The OTA method used was based on objective, prespecified criteria, but should be further studied for viability as a general procedure for shortening patient‐reported outcome measures in health research.
Published: 2016
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47. Validation of the Self‐Efficacy for Managing Chronic Disease Scale: A Scleroderma Patient‐Centered Intervention Network Cohort Study

Author: Riehm, Kira E., Kwakkenbos, Linda, Carrier, Marie‐Eve, Bartlett, Susan J., Malcarne, Vanessa L., Mouthon, Luc, Nielson, Warren R., Poiraudeau, Serge, Nielsen, Karen, Baron, Murray, Frech, Tracy, Hudson, Marie, Pope, Janet, Sauve, Maureen, Suarez‐Almazor, Maria E., Wigley, Fredrick M., Thombs, Brett D., Furst, Dan, Gottesman, Karen, Mayes, Maureen D., Riggs, Robert, van den Hoogen, Frank, Assassi, Shervin, Boutron, Isabelle, Costa Maia, Angela, El‐Baalbaki, Ghassan, Ells, Carolyn, van den Ende, Cornelia H. M., Fligelstone, Kim, Fortune, Catherine, Godard, Dominique, Harel, Daphna, Impens, Ann, Jang, Yeona, Johnson, Sindhu R., Tyrell Kennedy, Ann, Körner, Annett, Leite, Catarina, Marra, Carlo, Poole, Janet L., Portales, Alexandra, Sofia Rodriguez Reyna, Tatiana, Schouffoer, Anne A., Steele, Russell J., Welling, Joep, Wong‐Rieger, Durhane, Albert, Alexandra, Arsenault, Guylaine, Carreira, Patricia, Chung, Lorinda, Dagenais, Pierre, Denton, Christopher, Domsic, Robyn, Dunne, James V., Fortin, Paul, Gordon, Jessica, Gyger, Genevieve, Herrick, Ariane, Hinchcliff, Monique, Jones, Niall, Fernandes, Artur Jose de B., Kafaja, Suzanne, Khalidi, Nader, Korman, Benjamin, Larche, Maggie, Liang, Patrick, Masetto, Ariel, Robinson, David, Roux, Sophie, Schiopu, Elena, Smith, Doug, Spiera, Robert, Steen, Virginia, Thorne, Carter, Varga, John, Wilcox, Pearce, Delisle, Vanessa C., Fox, Rina S., Gholizadeh, Shadi, Fedoruk, Claire, Jewett, Lisa R., Levis, Brooke, Milette, Katherine, Pepin, Mia R., and Mills, Sarah D.
Abstract: Self‐management programs for patients with chronic illnesses, including rheumatic diseases, seek to enhance self‐efficacy for performing health management behaviors. No measure of self‐efficacy has been validated for patients with systemic sclerosis (SSc; scleroderma). The objective of this study was to assess the validity and internal consistency reliability of the Self‐Efficacy for Managing Chronic Disease (SEMCD) scale in SSc. English‐speaking SSc patients enrolled in the Scleroderma Patient‐centered Intervention Network Cohort who completed the SEMCD scale at their baseline assessment between March 2014 and June 2015 were included. Patients were enrolled from 21 sites in Canada, the US, and the UK. Confirmatory factor analysis (CFA) was used to evaluate the factor structure of the SEMCD scale. Cronbach's alpha was calculated to assess internal consistency reliability. Hypotheses on the direction and magnitude of Pearson's correlations with psychological and physical outcome measures were formulated and tested to examine convergent validity. A total of 553 patients were included. CFA supported the single‐factor structure of the SEMCD scale (Tucker Lewis Index = 0.99, comparative fit index = 0.99, root mean square error of approximation = 0.10). Internal consistency was high (α = 0.93), and correlations with measures of psychological and physical functioning were moderate to large (|r| = 0.48–0.67, P< 0.001), confirming study hypotheses. Scores from the SEMCD scale are valid for measuring self‐efficacy in patients with SSc, and results support using the scale as an outcome measure to evaluate the effectiveness of self‐management programs in SSc.
Published: 2016
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48. Additional file 1: Table S1. of Serum levels of 14-3-3η protein supplement C-reactive protein and rheumatoid arthritis-associated antibodies to predict clinical and radiographic outcomes in a prospective cohort of patients with recent-onset inflammatory polyarthritis

Author: Carrier, Nathalie, Marotta, Anthony, Brum-Fernandes, Artur De, Liang, Patrick, Masetto, Ariel, Ménard, Henri, Maksymowych, Walter, and Boire, Gilles
Subjects: 3. Good health
Abstract: Distribution of 14-3-3η over time according to baseline positivity. (PDF 167 kb)

49. Additional file 2: Figure S1. of Serum levels of 14-3-3η protein supplement C-reactive protein and rheumatoid arthritis-associated antibodies to predict clinical and radiographic outcomes in a prospective cohort of patients with recent-onset inflammatory polyarthritis

Author: Carrier, Nathalie, Marotta, Anthony, Brum-Fernandes, Artur De, Liang, Patrick, Masetto, Ariel, Ménard, Henri, Maksymowych, Walter, and Boire, Gilles
Subjects: 3. Good health
Abstract: Simplified Disease Activity Index (SDAI) remission (a) and radiographic progression (b) over 5 years according to baseline 14-3-3η positivity set at ≥0.19 ng/ml. (PDF 391 kb)

50. Additional file 1: Table S1. of Serum levels of 14-3-3η protein supplement C-reactive protein and rheumatoid arthritis-associated antibodies to predict clinical and radiographic outcomes in a prospective cohort of patients with recent-onset inflammatory polyarthritis

Author: Carrier, Nathalie, Marotta, Anthony, Brum-Fernandes, Artur De, Liang, Patrick, Masetto, Ariel, Ménard, Henri, Maksymowych, Walter, and Boire, Gilles
Subjects: 3. Good health
Abstract: Distribution of 14-3-3η over time according to baseline positivity. (PDF 167 kb)

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