1. EORTC‐QLQ‐C30 and SKINDEX‐29 measurement of health‐related quality of life in patients with mycosis fungoides and Sézary syndrome: Real‐world data in Spanish patients (MICADOS Study)
- Author
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Belén Navarro Matilla, Mª del Mar Onteniente Gomis, Ramon M. Pujol Vallverdú, Andrea Combalia Escudero, Irma Zapata Paz, Cristina Muniesa Montserrat, Eva González Barca, Mercedes Morillo Andújar, Amparo Pérez Ferriols, Mª Concepción Román Curto, Ricardo Fernández de Misa Cabrera, Mercedes Hospital Gil, Ana Marín Niebla, Pablo J. Rios Rull, Fátima de laCruz Vicente, Rosa M. Izu Belloso, Alejandro Martín García‐Sancho, M. Elisabet Parera Amer, Raúl Córdoba Mascuñano, María Dolores Ramón Quiles, Ana Saus Carreres, Raquel delCampo García, Salma Machan, Pablo Viguera Ester, Julia Blanco Garnelo, Begoña Soler López, and Pablo L. Ortiz Romero
- Subjects
cutaneous T‐cell lymphoma ,EORTC‐QLQ‐C30 ,mycosis fungoides ,quality of Life ,Sézary Syndrome ,SKINDEX‐29 ,Dermatology ,RL1-803 ,Diseases of the genitourinary system. Urology ,RC870-923 - Abstract
Abstract Background Few studies have explored the impact of cutaneous T‐cell lymphoma (CTCL) on health‐related quality of life (HRQoL) and compared it to other patients with cancer. Objectives The primary objective of the study was to assess the QoL of patients diagnosed with the mycosis fungoides (MF) and Sézary syndrome (SS) types of CTCL in Spain. Methods A cross‐sectional observational study was completed recruiting adult patients with MF and SS, exploring the European Organisation for Research and Treatment of Cancer‐Core Quality of Life Questionnaire, version 3 (EORTC‐QLQ‐C30v3) and Skindex‐29 HRQoL and itching intensity. Results A total of 141 patients [81 males (57.4%) and mean age of 63.6 years (95% CI: 61.4–65.7)], were included. EORTC‐QLQ‐C30 global health status showed worse scores in CTCL patients compared to healthy population (p
- Published
- 2022
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