1. "I'll Just Forever Be That Person Who Stands in the Middle of the Dance Floor Drinking a Juice Box": Supporting the Transition to Adulthood With Type 1 Diabetes in a Post-Secondary University/College Setting.
- Author
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Kichler, Jessica C., Gyemi, Alana, Papak, Robert, Tapp, Kenzie, Grandi, Brianna, and Lucier, Krista
- Subjects
EDUCATION of parents ,COMPUTER software ,MEDICAL identification jewelry ,ACADEMIC accommodations ,AFFINITY groups ,LIFESTYLES ,TRANSITION to adulthood ,SOCIAL support ,HEALTH services accessibility ,SOCIAL constructionism ,RESEARCH methodology ,SELF-management (Psychology) ,FAMILY support ,HEALTH occupations students ,SOCIAL networks ,TYPE 1 diabetes ,INTERVIEWING ,DIABETES ,MEDICAL care ,THEORY of knowledge ,QUALITATIVE research ,SURVEYS ,LEARNING ,SELF-efficacy ,UNIVERSITIES & colleges ,RESEARCH funding ,PATIENT education ,THEMATIC analysis ,EMOTIONS ,STUDENT attitudes ,ENDOWMENTS ,PSYCHOLOGICAL adaptation ,TIME management ,HIGH school students ,PARENTS ,ADULTS - Abstract
Background: The transition to adulthood is a challenging period for individuals with type 1 diabetes, especially those attending post-secondary education (PSE) at a university or college. In addition to balancing academic responsibilities and adapting to a novel environment, young adults (YAs) with type 1 diabetes must more independently manage the daily demands of diabetes care. Objective: The aim of this study was to collect qualitative data from multiple stakeholders addressing the transition of students with type 1 diabetes into a PSE setting. Methods: A total of 15 participants were interviewed, including three health care provider diabetes educators, four parents of YAs with type 1 diabetes, and eight YAs with type 1 diabetes. Reflexive thematic analysis of the qualitative interviews revealed four major themes and 11 subthemes. Results: The four major themes revealed included 1) inappropriateness of services available to support students with type 1 diabetes in PSE settings, 2) individuals with type 1 diabetes having to compensate for inadequate systems, 3) variability of social support effectiveness, and 4) the need for a more holistic approach to improve diabetes education and social support systemically. Conclusion: This study identified some key systemic barriers experienced by PSE students with type 1 diabetes. Future research needs to extend the sample populations to understand a wider range of PSE student experiences. The findings from this study provide initial recommendations to develop new PSE readiness interventions for YAs with type 1 diabetes. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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