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11. China's Living Dead: In Xinjiang province, the government's assault on the Uyghurs has entered a new, insidious phase

Author

Lynch, Elizabeth M.

Subjects
How I Survived a Chinese 'Reeducation' Camp: A Uyghur Woman's Story (Autobiography), Human rights -- Laws, regulations and rules -- Political aspects, Authors -- Works -- Beliefs, opinions and attitudes, Uighurs -- Crimes against -- Social aspects, Forced labor -- Laws, regulations and rules -- Social aspects, Genocide -- Laws, regulations and rules -- Political aspects, Government regulation, Humanities, Literature/writing, Political science
Abstract

Gulbahar Haitiwaji hoped it would be the last time she would have to betray a family member. She had already denounced her own daughter, her husband, and Uyghur activist leader [...]

Published
2024

13. HIV Treatment Outcomes in POP-UP: Drop-in HIV Primary Care Model for People Experiencing Homelessness

Author

Hickey, Matthew D, Imbert, Elizabeth, Appa, Ayesha, Del Rosario, Jan Bing, Lynch, Elizabeth, Friend, John, Avila, Rodrigo, Clemenzi-Allen, Angelo, Riley, Elise D, Gandhi, Monica, and Havlir, Diane V

Subjects
Biomedical and Clinical Sciences, Health Sciences, Mental Health, Health Services, Homelessness, Substance Misuse, Women's Health, Clinical Research, Behavioral and Social Science, Social Determinants of Health, Sexually Transmitted Infections, HIV/AIDS, Infectious Diseases, Infection, Good Health and Well Being, Drug Overdose, HIV Infections, Ill-Housed Persons, Humans, Primary Health Care, Substance-Related Disorders, Treatment Outcome, HIV, homelessness and unstable housing, care engagement, care model, Biological Sciences, Medical and Health Sciences, Microbiology, Biological sciences, Biomedical and clinical sciences, Health sciences
Abstract

BackgroundPeople with HIV experiencing homelessness have low rates of viral suppression, driven by sociostructural barriers and traditional care system limitations. Informed by the capability-opportunity-motivation-behavior (COM-B) model and patient preference research, we developed POP-UP, an integrated drop-in (nonappointment-based) HIV clinic with wrap-around services for persons with housing instability and viral nonsuppression in San Francisco.MethodsWe report HIV viral suppression (VS;

Published
2022

15. Essential content for teaching implementation practice in healthcare: a mixed-methods study of teams offering capacity-building initiatives

Author

Reszel, Jessica, Daub, Olivia, Leese, Jenny, Augustsson, Hanna, Bellows, Danielle Moeske, Cassidy, Christine E., Crowner, Beth E., Dunn, Sandra I., Goodwin, Lisa B., Hoens, Alison M., Hunter, Sarah C., Lynch, Elizabeth A., Moore, Jennifer L., Rafferty, Miriam R., Romney, Wendy, Stacey, Dawn, and Graham, Ian D.

Published
2023
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19. Evaluation of the POP-UP programme: a multicomponent model of care for people living with HIV with homelessness or unstable housing

Author

Imbert, Elizabeth, Hickey, Matthew D, Clemenzi-Allen, Angelo, Lynch, Elizabeth, Friend, John, Kelley, Jackelyn, Conte, Madellena, Das, Doyel, Del Rosario, Jan Bing, Collins, Erin, Oskarsson, Jon, Hicks, Mary Lawrence, Riley, Elise D, Havlir, Diane V, and Gandhi, Monica

Subjects
Health Services and Systems, Biomedical and Clinical Sciences, Health Sciences, Sexually Transmitted Infections, Infectious Diseases, Clinical Research, Behavioral and Social Science, Health Disparities, Prevention, HIV/AIDS, Minority Health, Health Services, Social Determinants of Health, Clinical Trials and Supportive Activities, Infection, Good Health and Well Being, HIV Infections, Ill-Housed Persons, Housing, Humans, Prospective Studies, San Francisco, Viral Load, HIV, homelessness and unstable housing, retention in care, Biological Sciences, Medical and Health Sciences, Psychology and Cognitive Sciences, Virology, Biomedical and clinical sciences, Health sciences
Abstract

ObjectiveHomelessness is the greatest risk factor for HIV viremia in San Francisco. Innovative care models for people with HIV (PWH) with homelessness or unstable housing (HUH) are needed to address this inequity. We developed a novel low-barrier clinic-based program for PWH-HUH in an urban safety-net clinic ('POP-UP') and report outcomes on care engagement and viral suppression.DesignA prospective cohort study.SettingSan Francisco General Hospital HIV Clinic (Ward 86).ParticipantsWe enrolled PWH who are HUH, viraemic and for whom usual care is not working (at least one missed primary care appointment and at least two drop-in visits at Ward 86 in the last year).InterventionPOP-UP provides drop-in comprehensive primary care, housing assistance and case management, financial incentives and patient navigation with frequent contact.Main outcome measuresWe describe uptake of eligible patients into POP-UP, and cumulative incidence of antiretroviral therapy (ART) initiation, return to care and virologic suppression 6 months post-enrolment, estimated via Kaplan--Meier.ResultsOut of 192 referred patients, 152 were eligible, and 75 enrolled. All 75 were off ART and viraemic; 100% had a substance use disorder; and 77% had a mental health diagnosis. Over three-quarters restarted ART within 7 days of enrolment, and 91% returned for follow-up within 90 days. The cumulative incidence of viral suppression at 6 months was 55% (95% confidence interval 43-68).ConclusionA novel care model for PWH-HUH demonstrates early success in engaging viraemic patients in care and improving viral suppression. Low-barrier, high-contact primary care programmes offering comprehensive services and incentives may improve outcomes for this vulnerable population.

Published
2021

24. She needed a notary. How a Holocaust survivor became a friend

Author

Lynch, Elizabeth M.

Subjects
Friendship -- Appreciation, Holocaust survivors -- Appreciation, Notaries -- Influence, General interest, News, opinion and commentary
Abstract

Byline: Elizabeth M. Lynch Contributor Abstract: A routine notary task blossomed into a beautiful friendship with my neighbor Ann, a Holocaust survivor. 'Are you a notary?' Ann asked me as [...]

Published
2024

32. Is learning being supported when information is provided to informal carers during inpatient stroke rehabilitation? A qualitative study.

Author

Lynch, Elizabeth A., Nolan, Jessica, Bulto, Lemma N., Mitchell, John, McGrath, Annette, Lane, Simon, Harvey, Gill, Cadilhac, Dominique A., Harling, Rachel, and Godecke, Erin

Subjects
*PATIENTS' families, *HEALTH literacy, *MEDICAL personnel, *RESEARCH funding, *QUALITATIVE research, *PHILOSOPHY of education, *HEALTH, *CONTENT analysis, *INTERVIEWING, *SPOUSES, *INFORMATION resources, *LEARNING, *CAREGIVERS, *REHABILITATION centers, *SOUND recordings, *STROKE rehabilitation, *RESEARCH methodology, *DATA analysis software, *FRIENDSHIP
Abstract

Purpose: To explore how health professionals provide information to informal carers during inpatient stroke rehabilitation and whether these practices align with adult learning principles. Methods: Informal carers and survivors of stroke who had completed inpatient rehabilitation, and health professionals working in inpatient stroke rehabilitation were interviewed. Directed qualitative content analysis was conducted using an adult learning model, to determine how closely reported practices aligned to adult learning principles. Results: 14 carers, 6 survivors of stroke and 17 health professionals participated. Carers (79% female, 57% spouse/partner) reported having incomplete knowledge during rehabilitation, lacking information about mechanisms of stroke recovery, rehabilitation processes, long-term effects of stroke, and navigating post-discharge services. Health professionals supported carers to address their learning needs related to safety of caring for stroke survivors. Carers indicated they were responsible for their own non-safety related learning. Health professionals tended not to check carers' understanding of information provided nor offer learning opportunities beyond written or verbal information. Conclusions: Health professionals consistently provide certain information to carers during inpatient rehabilitation, but adult learning principles are not routinely applied when information is provided. Fostering adult learning among informal carers may improve preparedness of carers to support stroke survivors after discharge from inpatient rehabilitation. IMPLICATIONS FOR REHABILITATION: Carers reported often being in a state of shock in the early post-stroke period, and may need extra support to remember, understand, and apply information. Carers are often highly motivated to acquire immediate and relevant information tailored to their situation. Interactions between health professionals and carers are learning opportunities that can assist the carer to commence their unexpected and significant learning journey. Health professionals should apply adult learning principles when communicating with carers on all topics, not just topics important to the healthcare team such as patient safety and requirements for discharge. [ABSTRACT FROM AUTHOR]

Published
2024
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33. Adapting a telehealth physical activity and diet intervention to a co-designed website for self-management after stroke: Tutorial. (Preprint)

Author

Pogrebnoy, Dina, primary, Ashton, Lee, additional, Beh, Brian A, additional, Burke, Meredith, additional, Cullen, Richard, additional, Czerenkowski, Jude, additional, Davey, Julie, additional, Dennett, Amy, additional, English, Kevin, additional, Godecke, Erin, additional, Harper, Nicole, additional, Lynch, Elizabeth, additional, McDonald Wicks, Lesley, additional, Patterson, Amanda, additional, Ramage, Emily, additional, Schelfhaut, Ben, additional, Simpson, Dawn, additional, Zacharia, Karly, additional, and English, Coralie, additional

Published
2024
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38. Criteria and indicators for Centers of Clinical Excellence in stroke recovery and rehabilitation: A global consensus facilitated by ISRRA

Author

Stockley, Rachel, Walker, Marion, Alt Murphy, Margit, Abd Aziz, Noor Azah, Amooba, Philemon Adoliwine, Churilov, Leonid, Farrin, Amanda, Fini, Natalie, Ghaziani, Emma, Godecke, Erin, Gutiérrez-Panchana, Tania, Jia, Jie, Kandasamy, Thoshenthri, Lindsay, Patrice, Solomon, John, Thijs, Vincent, Tindall, Tierney, Tippett, Donna, Watkins, Caroline Leigh, Lynch, Elizabeth, Stockley, Rachel, Walker, Marion, Alt Murphy, Margit, Abd Aziz, Noor Azah, Amooba, Philemon Adoliwine, Churilov, Leonid, Farrin, Amanda, Fini, Natalie, Ghaziani, Emma, Godecke, Erin, Gutiérrez-Panchana, Tania, Jia, Jie, Kandasamy, Thoshenthri, Lindsay, Patrice, Solomon, John, Thijs, Vincent, Tindall, Tierney, Tippett, Donna, Watkins, Caroline Leigh, and Lynch, Elizabeth

Abstract

Background The aim of the International Stroke Recovery and Rehabilitation Alliance is to create a world where worldwide collaboration brings major breakthroughs for the millions of people living with stroke. A key pillar of this work is to define globally relevant criteria for centers that aspire to deliver excellent clinical rehabilitation and generate exceptional outcomes for patients. Objectives This paper presents consensus work conducted with an international group of expert stroke recovery and rehabilitation researchers, clinicians, and people living with stroke to identify and define criteria and measurable indicators for Centers of Clinical Excellence (CoCE) in stroke recovery and rehabilitation. These were intentionally developed to be ambitious and internationally relevant, regardless of a country’s development or income status, to drive global improvement in stroke services. Methods Criteria and specific measurable indicators for CoCE were collaboratively developed by an international panel of stroke recovery and rehabilitation experts from 10 countries and consumer groups from 5 countries. Results The criteria and associated indicators, ranked in order of importance, focused upon (i) optimal outcome, (ii) research culture, (iii) working collaboratively with people living with stroke, (iv) knowledge exchange, (v) leadership, (vi) education, and (vii) advocacy. Work is currently underway to user-test the criteria and indicators in 14 rehabilitation centers in 10 different countries. Conclusions We anticipate that use of the criteria and indicators could support individual organizations to further develop their services and, more widely, provide a mechanism by which clinical excellence can be articulated and shared to generate global improvements in stroke care.

Published
2024

39. Criteria and indicators for centers of clinical excellence in stroke recovery and rehabilitation: A global consensus facilitated by ISRRA

Author

Stockley, Rachel C., Walker, Marion F., Murphy, Margit A., Aziz, Noor A. A., Amooba, Philemon, Churliov, Leonid, Farrin, Amanda, Fini, Natalie A., Ghaziani, Emma, Godecke, Erin, Gutierrez-Panchana, Tania, Jia, Jie, Kandasamy, Thoshenthri, Lindsay, Patrice, Solomon, John, Thijs, Vincent, Tindall, Tierney, Tippett, Donna C., Watkins, Caroline, Lynch, Elizabeth, Stockley, Rachel C., Walker, Marion F., Murphy, Margit A., Aziz, Noor A. A., Amooba, Philemon, Churliov, Leonid, Farrin, Amanda, Fini, Natalie A., Ghaziani, Emma, Godecke, Erin, Gutierrez-Panchana, Tania, Jia, Jie, Kandasamy, Thoshenthri, Lindsay, Patrice, Solomon, John, Thijs, Vincent, Tindall, Tierney, Tippett, Donna C., Watkins, Caroline, and Lynch, Elizabeth

Abstract

Background: The aim of the International Stroke Recovery and Rehabilitation Alliance is to create a world where worldwide collaboration brings major breakthroughs for the millions of people living with stroke. A key pillar of this work is to define globally relevant criteria for centers that aspire to deliver excellent clinical rehabilitation and generate exceptional outcomes for patients. Objectives: This paper presents consensus work conducted with an international group of expert stroke recovery and rehabilitation researchers, clinicians, and people living with stroke to identify and define criteria and measurable indicators for Centers of Clinical Excellence (CoCE) in stroke recovery and rehabilitation. These were intentionally developed to be ambitious and internationally relevant, regardless of a country’s development or income status, to drive global improvement in stroke services. Methods: Criteria and specific measurable indicators for CoCE were collaboratively developed by an international panel of stroke recovery and rehabilitation experts from 10 countries and consumer groups from 5 countries. Results: The criteria and associated indicators, ranked in order of importance, focused upon (i) optimal outcome, (ii) research culture, (iii) working collaboratively with people living with stroke, (iv) knowledge exchange, (v) leadership, (vi) education, and (vii) advocacy. Work is currently underway to user-test the criteria and indicators in 14 rehabilitation centers in 10 different countries. Conclusions: We anticipate that use of the criteria and indicators could support individual organizations to further develop their services and, more widely, provide a mechanism by which clinical excellence can be articulated and shared to generate global improvements in stroke care.

Published
2024

45. Look Before You Leap: Interventions Supervised via Telehealth Involving Activities in Weight-Bearing or Standing Positions for People After Stroke-A Scoping Review

Author

Ramage, Emily R., Fini, Natalie, Lynch, Elizabeth A., Marsden, Dianne L., Patterson, Amanda J., and Said, Catherine M.

Subjects
Therapeutics, Physiological -- Research, Telemedicine -- Research, Physical therapy -- Research, Therapeutics, Experimental -- Evaluation, Standing position -- Research, Stroke patients -- Care and treatment
Abstract

Objective. The COVID-19 pandemic has seen a rapid shift to telehealth-delivered physical therapy services. Common impairments after stroke create unique challenges when providing rehabilitation via telehealth, particularly when it involves activities undertaken in weight-bearing or standing positions, including walking training. Our scoping review maps the evidence regarding safety, efficacy, and feasibility of remotely supervised telehealth interventions involving activities undertaken in weight-bearing or standing positions for people after stroke. Methods. Searches of relevant databases for primary research studies were conducted using keywords relating to exercise and telehealth. Studies of stroke survivors undertaking interventions involving activities in weight-bearing or standing positions, supervised in real-time via telehealth were included. Two reviewers independently appraised all studies. Data were charted by one reviewer, checked by another, and results synthesized narratively. Results. Seven studies (2 randomized trials, 1 mixed-methods, and 4 pre-post studies) were included, involving 179 participants. Some studies included stroke survivors with cognitive impairment, and 2 (29%) studies included only participants who walked independently. Adherence (reported in 3 studies) and satisfaction (reported in 4 studies) were good, and no serious adverse events (data from 4 studies) related to interventions were reported. Strategies to overcome technological barriers were used to optimize intervention safety and feasibility, along with physiological monitoring, caregiver assistance, and in-person exercise prescription. However, there is limited high-quality evidence of efficacy. Conclusions. We identified strategies used in research to date that can support current practice. However, urgent research is needed to ensure that stroke survivors are receiving evidence-based, effective services. Impact. The COVID-19 pandemic has necessitated a rapid shift to telerehabilitation services for people with stroke, but there is little evidence to guide best practice. Our review provides practical guidance and strategies to overcome barriers and optimize safety and adherence for telehealth interventions involving activities in weight-bearing or standing positions. Keywords: COVID-19, Exercise, Physical Therapy Modalities, Rehabilitation, Stroke, Telemedicine, Introduction Our world is currently amid the coronavirus disease 2019 (COVID-19) pandemic. Health systems are under pressure and are implementing practices to minimize transmission and rationalize services to cope with [...]

Published
2021
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49. A Threat to Justice Everywhere: The world must act now to save China's persecuted Uyghur minority

Author

Lynch, Elizabeth M.

Subjects
United States. Congress -- Powers and duties, Uighurs -- Crimes against -- Civil rights, Crimes against humanity -- Investigations -- Political aspects, Genocide -- Political aspects -- Investigations, Company legal issue, Humanities, Literature/writing, Political science, United Nations -- Powers and duties
Abstract

Early last December, a group of nine British lawyers and humanrights specialists gathered in a wood-paneled room under the glass dome of Church House, near Westminster Abbey in downtown London. [...]

Published
2022

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