3,048 results on '"Library and Information Studies"'
Search Results
2. Reflecting on the Impact of Hybrid Work on an Academic Library Using the Socio-Ecological Model
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Tagge, Natalie, Martin, Lisa, and McGuinness, Susan M
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Information and Computing Sciences ,Library and Information Studies ,Infectious Diseases ,Emerging Infectious Diseases ,Information & Library Sciences - Abstract
Covid-19 led to a dramatic change in the academic library work environment, with many workers shifting to a hybrid work schedule once they returned to in person work. The authors describe the impact of this schedule shift through the novel use of the socio-ecological model. The socio-ecological model looks at the impact of choices through varying circles or levels. The authors discuss the individual, interpersonal, community, and societal levels of impact that the switch to hybrid work had within their context and discuss their role as unit leaders and the decisions made to address these varying impacts.
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- 2024
3. Addressing Equity and Affordability in Digital Study Tools for STEM and the Health Sciences: Possibilities for Library Involvement
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Tagge, Natalie, Eger, Courtney, and Laynor, Gregory
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Information and Computing Sciences ,Library and Information Studies ,Stem Cell Research ,8.1 Organisation and delivery of services ,Generic health relevance ,Good Health and Well Being ,Library and information studies - Abstract
Students in STEM and the health sciences have unique learning needs, including preparation for exams required for entering a STEM or health sciences profession. Students in these areas thus often seek, in addition to or instead of traditional course materials and library resources, digital study tools that utilize techniques such as spaced repetition. However, such tools are often sold as individual subscriptions that may be prohibitively expensive. The article outlines four approaches libraries may consider to help make digital study tools in STEM and the health sciences more equitable and affordable: assess, adopt, adapt, and create.
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- 2024
4. Extractivism and the ecology of research infrastructure: digitizing precarious materialities in Iquitos, Peru
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Smith, Amanda M
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Information and Computing Sciences ,Language ,Communication and Culture ,Library and Information Studies ,Life on Land ,Industry ,Innovation and Infrastructure ,Infrastructure ,digital colonialism ,cultural preservation ,extractivism ,Amazonia ,Infraestruturas ,colonialismo digital ,preservacao cultural ,extrativismo ,preservacion cultural - Published
- 2024
5. Toward Enhanced Reusability: A Comparative Analysis of Metadata for Machine Learning Objects and Their Characteristics in Generalist and Specialist Repositories
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Labou, Stephanie G, Pennington, Abigail, Yoo, Ho Jung S, and Baluja, Michael
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Information and Computing Sciences ,Library and Information Studies ,Machine Learning and Artificial Intelligence ,Networking and Information Technology R&D (NITRD) ,Data Science - Abstract
Objective: The rapidly increasing prevalence and application of machine learning (ML) across disciplines creates a pressing need to establish guidance for data curation professionals. However, we must first understand the characteristics of ML-related objects shared in generalist and specialist repositories and the extent to which repository metadata fields enable findability and reuse of ML objects.Methods: We used a combination of API queries and web scraping to retrieve metadata for ML objects in eight commonly used generalist and ML-specific data repositories. We assessed both metadata schema and characteristics of deposited ML objects, within the context of the widely adopted FAIR Principles. We also calculated summary statistics for properties of objects, including number of objects per year, dataset size, domains represented, and availability of related resources.Results: Generalist repositories excelled at providing provenance metadata, specifically unique identifiers, unambiguous citations, clear licenses, and related resources, while specialist repositories emphasized ML-specific descriptive metadata, such as number of attributes and instances and task type. In terms of object content, we noted a wide range of file formats, as well as licenses, all of which impact reusability.Conclusions: Generalist repositories will benefit from some of the practices adopted by specialists, and specialist repositories will benefit from adopting proven data curation practices of generalist repositories. A step forward for repositories will be to invest more into use of labels and persistent identifiers to improve workflow documentation, provenance, and related resource linking of ML objects, which will increase their findability, interoperability, and reusability.
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- 2024
6. WITHDRAWN: Dual targeting of mitochondrial Lon peptidase 1 and chymotrypsin-like protease by small molecule BT317, as potential therapeutics in malignant astrocytomas
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Douglas, Christopher, Jain, Shashi, Lomeli, Naomi, Di, Kaijun, Nandwana, Nitesh Kumar, Mohammed, Adil Shareef, Vu, Thao, Pham, James, Lepe, Javier, Kenney, Maria Cristina, Das, Bhaskar, and Bota, Daniela A
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Information and Computing Sciences ,Library and Information Studies ,5.1 Pharmaceuticals ,IDH mutant astrocytoma ,Glioblastoma ,LonP1 ,CT-L proteosome ,BT317 - Abstract
The authors have withdrawn their manuscript owing to massive revision and data validation. Therefore, the authors do not wish this work to be cited as reference for the project. If you have any questions, please contact the corresponding author.
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- 2024
7. Editorial: Festschrift Coda
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Buckland, Michael Keeble
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History ,Heritage and Archaeology ,Information and Computing Sciences ,Heritage ,Archive and Museum Studies ,Information Systems ,Library and Information Studies ,Information & Library Sciences ,Heritage ,archive and museum studies ,Information systems ,Library and information studies - Published
- 2024
8. Patient and Provider Satisfaction with Asynchronous Versus Synchronous Telepsychiatry in Primary Care: A Secondary Mixed-Methods Analysis of a Randomized Controlled Trial
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Yellowlees, Peter M, Burke, Michelle M, Gonzalez, Alvaro D, Fisher, Alice, Chan, Steven R, Hilty, Donald M, McCarron, Robert M, Scher, Lorin M, Sciolla, Andres F, Shore, Jay, Xiong, Glen, Fine, Jeffrey, Bannister, Jennifer, and Iosif, Ana-Maria
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Health Services and Systems ,Health Sciences ,Clinical Research ,Good Health and Well Being ,Humans ,Telemedicine ,Psychiatry ,Patient Satisfaction ,Personal Satisfaction ,Primary Health Care ,Adenosine Triphosphate ,telemedicine ,telehealth ,telepsychiatry ,mental health ,Library and Information Studies ,Biomedical Engineering ,Public Health and Health Services ,Medical Informatics ,Health services and systems ,Public health - Abstract
Background: Asynchronous telepsychiatry (ATP) consultations are a novel form of psychiatric consultation. Studies comparing patient and provider satisfaction for ATP with that for synchronous telepsychiatry (STP) do not exist. Methods: This mixed-methods study is a secondary analysis of patients' and primary care providers' (PCPs) satisfaction from a randomized clinical trial of ATP compared with STP. Patients and their PCPs completed satisfaction surveys, and provided unstructured feedback about their experiences with either ATP or STP. Differences in patient satisfaction were assessed using mixed-effects logistic regression models, and the qualitative data were analyzed using thematic analysis with an inductive coding framework. Results: Patient satisfaction overall was high with 84% and 97% of respondents at 6 months reported being somewhat or completely satisfied with ATP and STP, respectively. Patients in the STP group were more likely to report being completely satisfied, to recommend the program to a friend, and to report being comfortable with their care compared with ATP (all p < 0.05). However, there was no difference between the patients in ATP and STP in perceived change in clinical outcomes (p = 0.51). The PCP quantitative data were small, and thus only summarized descriptively. Conclusions: Patients expressed their overall satisfaction with both STP and ATP. Patients in ATP reported more concerns about the process, likely because feedback after ATP was slower than that after STP consultations. PCPs had no apparent preference for STP or ATP, and reported implementing the psychiatrists' recommendations for both groups when such recommendations were made, which supports our previous findings. Trial Registration: ClinicalTrials.gov NCT02084979; https://clinicaltrials.gov/ct2/show/NCT02084979.
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- 2024
9. Telehealth Utilization in Oral Medicine and Oral and Maxillofacial Surgery
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Miranda-Hoover, Annachristine, He, Puhan, Chau, Trinh, Cimba, Michael J, Francois, Kevin, Day, Saxon, Shanti, Rabie, Foote, Joseph, Wilder-Smith, Petra, Messadi, Diana V, and Le, Anh D
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Health Services and Systems ,Public Health ,Health Sciences ,Dental/Oral and Craniofacial Disease ,Health Services ,Clinical Research ,Networking and Information Technology R&D (NITRD) ,Good Health and Well Being ,Humans ,Retrospective Studies ,Telemedicine ,Delivery of Health Care ,Surgery ,Oral ,Pandemics ,health care access ,oral and maxillofacial surgery ,oral medicine ,specialty care ,teledentistry ,telehealth ,Library and Information Studies ,Biomedical Engineering ,Public Health and Health Services ,Medical Informatics ,Health services and systems ,Public health - Abstract
Objectives: The objectives of this retrospective study were to analyze telehealth utilization for two specialty care practices: oral medicine (OM) and oral and maxillofacial surgery (OMFS) during the first 2 years of the pandemic, its impact as a new treatment modality and on participating providers, as well as identify the type of patient visit that most readily adopted telehealth. Methods: Retrospective study of patients who sought specialty services, OM and OMFS, at an outpatient clinic in a university health system setting between March 1, 2019, and February 28, 2022. Source data were obtained from Epic, an electronic medical record application. Data were graphed using Tableau and Microsoft Excel software. Statistical analysis was performed utilizing chi-squared test and analysis of variance (ANOVA). Results: OMFS utilized telehealth 12% of the time, and OM 8% of the time. The majority (87%) of telehealth visits were for return patients (RPs). Compared with the first year of the pandemic, there was a decrease in the number of telehealth visits in the second year (p = 0.0001). As of August 2022, new patient (NP) telehealth encounters have largely returned to prepandemic levels (0-1.5%), whereas RP telehealth visits remained at an average level of 11.4% (9.4-12.4%). Surveyed providers consider telehealth as an effective complement to in-person care and will continue its use (4.2/5 Likert scale). Conclusions: Telehealth has become a viable pathway of care for OM and OMFS who previously did not utilize the remote platform to deliver healthcare. As a new treatment modality, telehealth is perceived as impactful in increasing access to specialty care by participating providers. NP visits are now almost completely in person, but telehealth continues for RPs. Ongoing demand for telehealth highlights urgency to develop appropriate standards and effective remote diagnostic/monitoring tools to maximize telehealth's capability to leverage finite health care resources and increase access to specialty care.
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- 2024
10. Disruption of trauma research: an analysis of the top cited versus disruptive trauma research publications
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Dilday, Joshua, Wu, Jessica, Williams, Elliot, Grigorian, Areg, Emigh, Brent, Matsushima, Kazuhide, Schellenberg, Morgan, Inaba, Kenji, and Martin, Matthew J
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Information and Computing Sciences ,Biomedical and Clinical Sciences ,Library and Information Studies ,Clinical Sciences ,research ,publishing - Abstract
IntroductionThe analysis of surgical research using bibliometric measures has become increasingly prevalent. Absolute citation counts (CC) or indices are commonly used markers of research quality but may not adequately capture the most impactful research. A novel scoring system, the disruptive score (DS) has been found to identity academic work that either changes paradigms (disruptive (DIS) work) or entrenches ideas (developmental (DEV) work). We sought to analyze the most DIS and DEV versus most cited research in civilian trauma.MethodsThe top papers by DS and by CC from trauma and surgery journals were identified via a professional literature search. The identified publications were then linked to the National Institutes of Health iCite tool to quantify total CC and related metrics. The top 100 DIS and DEV publications by DS were analyzed based on the area of focus, citation, and perceived clinical impact, and compared with the top 100 papers by CC.Results32 293 articles published between 1954 and 2014 were identified. The most common publication location of selected articles was published in Journal of Trauma (31%). Retrospective reviews (73%) were common in DIS (73%) and top CC (67%) papers, while DEV papers were frequently case reports (49%). Only 1 publication was identified in the top 100 DIS and top 100 CC lists. There was no significant correlation between CC and DS among the top 100 DIS papers (r=0.02; p=0.85), and only a weak correlation between CC and DS score (r=0.21; p
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- 2024
11. Metadata Librarians for Open Access
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Chan, Jennifer, Zhang, Erica, Vermeij, Hermine, and Riemer, John
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Information and Computing Sciences ,Library and Information Studies - Abstract
Support by academic libraries for open access (OA) over the past three-plus decades has largely focused on the development of digital infrastructure, promotion of open access publishing, support of policy-driven access mandates, and more recently, adoption of transformative agreements. Libraries have correspondingly created a broad array of scholarly communication roles to support these varied approaches. Surprisingly, one area of open access support that has received less attention from libraries is the facilitation of description and discovery of open access resources through the creation of robust original metadata. Expertise in Organization of Recorded Knowledge and Information represents a core competency of librarianship, yet the current academic library landscape shows few positions that specifically apply this expertise towards support for OA resources. Efforts to describe OA resources typically fall below those dedicated to licensed resources and pale in comparison to OA advocacy work, repository, publishing and other services. This case study offers an example of how one large academic library has introduced a metadata librarian position focused on description of open access resources into its activities supporting open access. For decades, commercially licensed resources have benefitted from metadata enhanced layer by layer by commercial and library professionals alike. With increased focus and funding being devoted to open access driven by governmental, institutional, and private funders, attention is critically needed to ensure that these new resources obtain the description necessary to allow them to be useful. Metadata librarians focused on open access resources can work with array of positions, such as repository managers and other digital asset management professionals, to ensure that open access resources are properly ingested and managed, and that metadata practices are aligned with best practices for preservation and long-term access. OA metadata librarians could be responsible for developing and implementing metadata standards and practices for open access resources like scholarly articles, data sets, and other digital objects. These standards would help ensure that open access resources are accurately described and discoverable alongside purchased resources, making them more accessible to researchers and other users. In addition to their technical responsibilities, OA metadata librarians can also play key roles in advocating for open access resources and educating library staff and users about the importance of metadata in supporting discoverability and accessibility. Through participation in professional organizations and initiatives focused on open access and metadata, OA metadata librarians can help raise awareness of the importance of metadata in supporting open access resources, their sustainability, and ultimately, their impact.
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- 2024
12. What Collaboration Means to Us: Access Is Lost - What now?
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Ladisch, Michael and Callahan, Beth
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Library and Information Studies ,Library and information studies - Abstract
In this column we describe the actions taken by the University of California, Davis Library to support and to communicate with the campus research community after the suspension of access to Elsevier's ScienceDirect platform.
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- 2024
13. Documentary Transformations and Cultural Context
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Pagès, Robert
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Information and Computing Sciences ,Library and Information Studies ,Literary Studies ,Library and information studies - Abstract
This article is a translation of one originally published in 1948 in Review of Documentation. The article examines the relationship between documents, broadly defined, and culture. More specifically, it examines the connections between experience, reason and the stability of documents as media technologies evolve over time.
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- 2024
14. From Bibliography to Documentography
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Buckland, Michael
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Information and Computing Sciences ,Library and Information Studies ,Literary Studies ,Library and information studies - Published
- 2024
15. Before the Antelope: Robert Pagès on Documents
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Buckland, Michael
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Information and Computing Sciences ,Library and Information Studies ,Literary Studies ,Library and information studies - Published
- 2024
16. From Fief to Clan: Boisot’s Information Space Model as a Documentary Theory for Cultural and Institutional Analysis
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Wang, Lin and Buckland, Michael
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Information and Computing Sciences ,Library and Information Studies ,Literary Studies ,Library and information studies - Published
- 2024
17. Mentorship practices that improve the culture of peer review
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Aly, Mariam, Ansari, Shahana, Colunga, Eliana, Crockett, MJ, Diekman, Amanda B, Goldrick, Matthew, Gomez, Pablo, Kung, Franki YH, McKee, Paul C, Pérez, Miriam, and Stilwell, Sarah M
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Information and Computing Sciences ,Language ,Communication and Culture ,Library and Information Studies ,Minority Health ,Health Disparities - Published
- 2024
18. Twenty-five years of Medical Library Association competencies and communities
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Fulton, Stephanie, Hannigan, Gale, Ogawa, Rikke, and Philbrick, Jodi
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Information and Computing Sciences ,Library and Information Studies ,MLA competencies ,Health Information Professionals ,Medical Library Association ,Organizational Change ,Information & Library Sciences ,Library and information studies - Abstract
Professional associations provide resources to support members' career development and facilitate ways for members to engage with and learn from one another. This article describes Medical Library Association (MLA) activities related to the revision of professional competencies and the restructuring of the organization's communities during the past twenty-five years. Grounded in MLA's Platform for Change, the MLA competency statement underwent two revisions with core themes remaining consistent. Major efforts went into rethinking the structure of MLA communities, and it became a strategic goal of the association. Numerous groups spent considerable time guiding the changes in MLA's community structure. Sections and special interest groups were transformed into caucuses. Domain hubs were established to facilitate project coordination across caucuses and create more leadership opportunities for MLA members, but their implementation did not meet expectations. Member engagement and leadership are ongoing challenges for MLA. The next twenty-five years will undoubtedly see additional revisions to the competencies and continued iterations of the community structure.
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- 2024
19. Adapting and testing measures of organizational context in primary care clinics in KwaZulu-Natal, South Africa
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Leslie, Hannah H, Lippman, Sheri A, van Heerden, Alastair, Manaka, Mbali Nokulunga, Joseph, Phillip, Weiner, Bryan J, and Steward, Wayne T
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Health Services and Systems ,Health Sciences ,Behavioral and Social Science ,Health Services ,Sexually Transmitted Infections ,Cancer ,Clinical Research ,Infectious Diseases ,HIV/AIDS ,Good Health and Well Being ,South Africa ,Humans ,Primary Health Care ,Cross-Sectional Studies ,HIV Infections ,Implementation Science ,Leadership ,Ambulatory Care Facilities ,Reproducibility of Results ,Female ,Male ,Organizational Culture ,Interviews as Topic ,Organizational context ,Primary care ,Stress ,Cohesion ,Critical consciousness ,Instrument development ,Reliability ,Validity ,Library and Information Studies ,Nursing ,Public Health and Health Services ,Health Policy & Services ,Health services and systems ,Public health - Abstract
BackgroundImplementation science frameworks situate intervention implementation and sustainment within the context of the implementing organization and system. Aspects of organizational context such as leadership have been defined and measured largely within US health care settings characterized by decentralization and individual autonomy. The relevance of these constructs in other settings may be limited by differences like collectivist orientation, resource constraints, and hierarchical power structures. We aimed to adapt measures of organizational context in South African primary care clinics.MethodsWe convened a panel of South African experts in social science and HIV care delivery and presented implementation domains informed by existing frameworks and prior work in South Africa. Based on panel input, we selected contextual domains and adapted candidate items. We conducted cognitive interviews with 25 providers in KwaZulu-Natal Province to refine measures. We then conducted a cross-sectional survey of 16 clinics with 5-20 providers per clinic (N = 186). We assessed reliability using Cronbach's alpha and calculated interrater agreement (awg) and intraclass correlation coefficient (ICC) at the clinic level. Within clinics with moderate agreement, we calculated correlation of clinic-level measures with each other and with hypothesized predictors - staff continuity and infrastructure - and a clinical outcome, patient retention on antiretroviral therapy.ResultsPanelists emphasized contextual factors; we therefore focused on elements of clinic leadership, stress, cohesion, and collective problem solving (critical consciousness). Cognitive interviews confirmed salience of the domains and improved item clarity. After excluding items related to leaders' coordination abilities due to missingness and low agreement, all other scales demonstrated individual-level reliability and at least moderate interrater agreement in most facilities. ICC was low for most leadership measures and moderate for others. Measures tended to correlate within facility, and higher stress was significantly correlated with lower staff continuity. Organizational context was generally more positively rated in facilities that showed consistent agreement.ConclusionsAs theorized, organizational context is important in understanding program implementation within the South African health system. Most adapted measures show good reliability at individual and clinic levels. Additional revision of existing frameworks to suit this context and further testing in high and low performing clinics is warranted.
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- 2024
20. Relevance and Creativity—A Linear Model
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Buckland, Michael and De Fremery, Wayne
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Relevance ,Creativity ,Theory ,Document ,Affordance ,Context ,Information Systems ,Library and Information Studies ,Information & Library Sciences ,Heritage ,archive and museum studies ,Information systems ,Library and information studies - Abstract
Purpose—The purpose of this paper is to provide a new and useful formulation of relevance. Design/methodology/approach—This paper is formulated as a conceptual argument. It makes the case for the utility of considering relevance to be function of use in creative processes. Findings—There are several corollaries to formulating relevance as a function of use. These include the idea that objects by themselves cannot be relevant since use assumes interaction; the affordances of objects and how they are perceived can affect what becomes relevant but are not in themselves relevant; relevance is not an essential characteristic of objects; relevance is transient; potential relevance (what might be relevant in the future) can be distinguished from what is relevant in use and from what has been relevant in the past. Originality/value—The paper shows that its new formulation of relevance brings improved conceptual and terminological clarity to the discourse about relevance in information science. It demonstrates that how relevance is articulated conceptually is important as its conceptualization can affect the ways that users are able to make use of information systems and, by extension, how information systems can facilitate or disable the co-production of creative outcomes. The paper also usefully expands investigative opportunities by suggesting relevance and creativity are interrelated.
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- 2024
21. Cost-effectiveness of approaches to cervical cancer screening in Malawi: comparison of frequencies, lesion treatment techniques, and risk-stratified approaches
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Rasmussen, Petra W, Hoffman, Risa M, Phiri, Sam, Makwaya, Amos, Kominski, Gerald F, Bastani, Roshan, Moses, Agnes, and Moucheraud, Corrina
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Public Health ,Health Sciences ,Cancer ,Cost Effectiveness Research ,Sexually Transmitted Infections ,Infectious Diseases ,HIV/AIDS ,Behavioral and Social Science ,Health Services ,Women's Health ,Clinical Research ,Prevention ,Comparative Effectiveness Research ,Burden of Illness ,Cervical Cancer ,4.4 Population screening ,Infection ,Good Health and Well Being ,Humans ,Female ,Malawi ,Uterine Cervical Neoplasms ,Cost-Benefit Analysis ,Markov Chains ,Early Detection of Cancer ,Quality-Adjusted Life Years ,Adult ,Middle Aged ,HIV Infections ,Cryotherapy ,Mass Screening ,Cervical cancer ,Global health ,Cost-effectiveness ,Health policy ,Library and Information Studies ,Nursing ,Public Health and Health Services ,Health Policy & Services ,Health services and systems ,Public health - Abstract
BackgroundRecently-updated global guidelines for cervical cancer screening incorporated new technologies-most significantly, the inclusion of HPV DNA detection as a primary screening test-but leave many implementation decisions at countries' discretion. We sought to develop recommendations for Malawi as a test case since it has the second-highest cervical cancer burden globally and high HIV prevalence. We incorporated updated epidemiologic data, the full range of ablation methods recommended, and a more nuanced representation of how HIV status intersects with cervical cancer risk and exposure to screening to model outcomes of different approaches to screening.MethodsUsing a Markov model, we estimate the relative health outcomes and costs of different approaches to cervical cancer screening among Malawian women. The model was parameterized using published data, and focused on comparing "triage" approaches-i.e., lesion treatment (cryotherapy or thermocoagulation) at differing frequencies and varying by HIV status. Health outcomes were quality-adjusted life years (QALYs) and deaths averted. The model was built using TreeAge Pro software.ResultsThermocoagulation was more cost-effective than cryotherapy at all screening frequencies. Screening women once per decade would avert substantially more deaths than screening only once per lifetime, at relatively little additional cost. Moreover, at this frequency, it would be advisable to ensure that all women who screen positive receive treatment (rather than investing in further increases in screening frequency): for a similar gain in QALYs, it would cost more than four times as much to implement once-per-5 years screening with only 50% of women treated versus once-per-decade screening with 100% of women treated. Stratified screening schedules by HIV status was found to be an optimal approach.ConclusionsThese results add new evidence about cost-effective approaches to cervical cancer screening in low-income countries. At relatively infrequent screening intervals, if resources are limited, it would be more cost-effective to invest in scaling up thermocoagulation for treatment before increasing the recommended screening frequency. In Malawi or countries in a similar stage of the HIV epidemic, a stratified approach that prioritizes more frequent screening for women living with HIV may be more cost-effective than population-wide recommendations that are HIV status neutral.
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- 2024
22. Care challenges and silver linings in HIV and behavioral health service delivery for individuals living with HIV and severe mental illness during the COVID-19 pandemic: a qualitative study
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Dahiya, Priya, Riano, Nicholas S, Dilley, James W, Olfson, Mark, Cournos, Francine, Mangurian, Christina, and Arnold, Emily A
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Health Services and Systems ,Health Sciences ,Mental Illness ,Mental Health ,Emerging Infectious Diseases ,Clinical Research ,Social Determinants of Health ,Behavioral and Social Science ,Health Services ,Prevention ,Coronaviruses Disparities and At-Risk Populations ,Brain Disorders ,Coronaviruses ,Networking and Information Technology R&D (NITRD) ,Infectious Diseases ,HIV/AIDS ,Sexually Transmitted Infections ,8.1 Organisation and delivery of services ,Health and social care services research ,Infection ,Generic health relevance ,Good Health and Well Being ,Humans ,COVID-19 ,HIV Infections ,Qualitative Research ,Mental Disorders ,Mental Health Services ,SARS-CoV-2 ,Pandemics ,Male ,Female ,Adult ,Middle Aged ,Comorbidity ,HIV ,Behavioral health ,Healthcare delivery ,Severe mental illness ,Telehealth ,Workforce burnout ,Library and Information Studies ,Nursing ,Public Health and Health Services ,Health Policy & Services ,Health services and systems ,Public health - Abstract
BackgroundThere has been a longstanding effort to integrate behavioral health and HIV care for people with comorbid HIV and behavioral health needs, including those with severe mental illness (SMI). As this population frequents both behavioral health and HIV care settings, they were likely to experience new obstacles to the quality and availability of care during the COVID-19 pandemic. This study aims to describe how clinics for HIV services or behavioral healthcare-as well as co-located sites providing both-sought to rapidly shift protocols to maintain a standard of patient care for people with comorbid HIV and SMI while adapting to the unprecedented circumstances of the pandemic.MethodsWe interviewed HIV and behavioral healthcare providers, clinic leaders, and support service agencies that served clients impacted by both HIV and SMI. Seventeen key informants across three settings (HIV care settings, behavioral health care settings, and integrated or co-located care settings) were interviewed in 2022. Interviews focused on changes in clinical services, protocols, and care provision strategies during and at the onset of the COVID-19 pandemic. Interviews were transcribed and coded using thematic analysis.ResultsCommonly endorsed themes included both positive and negative changes in care and care provision during the pandemic. Negative impacts of the pandemic included the loss of physical space, exacerbated mental health needs and disengagement in HIV care, patient barriers to telehealth and the digital divide, and increased healthcare workforce burnout. Positive changes included improved healthcare delivery and care engagement through telehealth, new opportunities to provide a wide range of social services, paradoxical increases in engagement in HIV care for certain patients, and broad institution of workforce wellness practices.ConclusionsThough COVID-19 presented several complex barriers to care for providers serving patients with comorbid HIV and SMI, the increased flexibility afforded by telehealth and a greater focus on collaborative approaches to patient care may benefit this patient population in the future. Additionally, the focus on workforce wellness may serve to increase retention and avoid burnout among providers. The strategies and lessons learned through adapting to COVID-19 may be invaluable moving forward as healthcare systems respond to future pandemics.
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- 2024
23. Understanding the implementation and sustainability needs of evidence-based programs for racial and ethnic minoritized older adults in under-resourced communities with limited aging services
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Castellon-Lopez, Yelba, Carson, Savanna L, Ward, Katherine T, Ramirez, Karina D, Vo, Lynn Phan, Kuo, Tony, Seeman, Teresa, Vassar, Stefanie D, Trejo, Laura, Eidem, Ellen, Aranda, María P, and Brown, Arleen F
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Health Services and Systems ,Public Health ,Health Sciences ,Health Services ,Aging ,Behavioral and Social Science ,Prevention ,Clinical Research ,Health and social care services research ,8.1 Organisation and delivery of services ,Generic health relevance ,Good Health and Well Being ,Humans ,Aged ,Racial Groups ,Arthritis ,Behavior Therapy ,Data Collection ,Community health services ,Disease management ,Evidence-based practice ,Health equity ,Older adults ,Library and Information Studies ,Nursing ,Public Health and Health Services ,Health Policy & Services ,Health services and systems ,Public health - Abstract
BackgroundEvidence-based programs (EBPs) for older adults effectively improve health outcomes. However, there is a limited understanding of the unique needs of service providers as they consider adopting, implementing, and maintaining programs for older minority adults in low-income communities with limited aging services.MethodsWe conducted semi-structured interviews with key informants of community-based organizations (CBOs) to understand implementation and sustainability needs of CBOs within four racial and ethnically diverse Los Angeles County geographic areas. We performed thematic analysis of interview transcripts.ResultsInterviews were conducted with representatives from 25 senior-serving agencies providing aging-related EBPs. CBO representatives reported implementing EBPs in 8 domains: Falls Prevention (68%), Mental Health (64%), Caregiver Health (48%), Chronic Disease Management (48%), Diabetes Management (36%), Arthritis Management (28%), Physical Activity (24%), and Multiple Conditions Management (8%). Themes are presented using the six domains of the Bass and Judge framework for factors impacting successful and sustained EBP implementation. CBOs in low-income and diverse communities described unique challenges with tailoring interventions based on local community context (literacy, language), cultural context, and locally available resources (technology, safe community spaces, transportation) and faced resource-intensive administrative burdens through staff turnover, data collection, sustainable funding, and networking.ConclusionsServing racial and ethnic communities has unique challenges that require tailored approaches and additional resources to ensure equitable access to EBPs for all communities. We describe suggestions for enhancing the effective adoption of EBPs among service agencies in under-resourced and diverse aging communities serving populations with aging-related health disparities.
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- 2024
24. Peer-reviewed publications in orthopaedic surgery from lower income countries: A comparative analysis
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Sabharwal, Sanjeev, Leung, Andrea, Rodarte, Patricia, Singh, Gurbinder, Bwemelo, Joel Johansen, Taylor, Annelise S, Tan, Josephine, and Trott, Richard
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Information and Computing Sciences ,Library and Information Studies ,Peer-reviewed publications ,Low and middle income country ,LMIC authors ,Bibliometric study - Abstract
IntroductionMusculoskeletal (MSK) disease is a substantial global burden, especially in lower income countries. However, limited research has been published on MSK health by scholars from these countries. We aimed to study the distribution of authorships, including trends in peer-reviewed orthopaedic publications based on each author's affiliated institution's country income status.MethodsBased on a bibliometric search, 119 orthopaedic-related journals were identified using the Journal Citation Reports database. Details of all scientific articles published in these journals between 2012 and 2021 were used to study trends and association between each of the author's affiliated institution's country income status, using the World Bank Classification.ResultsOf the 133,718 unique articles, 87.6% had at least one author affiliation from a high-income country (HIC), 7.0% from an upper-middle income country (UMIC), 5.2% from a lower-middle income country (LMIC), and 0.2% from a low-income country (LIC). Overall, these articles were cited 1,825,365 times, with 92.5% of citations from HIC-affiliated authors and
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- 2024
25. A national program to advance dementia research in Vietnam
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Vu, Huyen Thi Thanh, Nguyen, Tuan Anh, Nguyen, Thu Thi Hoai, Nguyen, Anh Trung, Tran, Duyen, Nguyen, Huong, Hinton, Ladson, and Pham, Thang
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Health Services and Systems ,Health Sciences ,Neurosciences ,Brain Disorders ,Neurodegenerative ,Aging ,Dementia ,Acquired Cognitive Impairment ,Alzheimer's Disease including Alzheimer's Disease Related Dementias (AD/ADRD) ,Alzheimer's Disease ,Neurological ,Quality Education ,Humans ,United States ,Aged ,Vietnam ,Alzheimer Disease ,Mentoring ,Mentors ,Caregivers ,Research capacity building ,Alzheimer's disease ,Alzheimer’s disease ,Library and Information Studies ,Nursing ,Public Health and Health Services ,Health Policy & Services ,Health services and systems ,Public health - Abstract
BackgroundAs Vietnam and other low- and middle-income countries (LMIC) experience a rapid increase in the number of people living with dementia, an acute need exists to strengthen research capacity to inform policy, improve care and support, and develop national dementia plans. We describe the development and early outcomes of an National Institutes of Health (NIH)/National Institute on Aging (NIA)-funded national dementia research capacity building program in Vietnam.MethodsThe research capacity building program commenced in 2019 and has three components: (1) Vietnam Alzheimer's and other dementias research Network (VAN), (2) a mentored pilot grant program, and (3) research training, networking, and dissemination activities. The pilot grant program funds Vietnamese researchers for one to two years to conduct research focusing on Alzheimer's Disease and Alzheimer's Disease Related Dementias (AD/ADRD). Grants are reviewed and scored using NIH criteria, and priority is given to pilot grants with policy relevance and potential for future funding. An international pool of high-income country (e.g., United States, Australia, and United Kingdom) mentors has been engaged and mentors paired with each funded project. Training and networking activities include workshops on AD/ADRD research topics and regular meetings in conjunction with Vietnam's annual national dementia/geriatric conferences. Dissemination is facilitated through targeted outreach and the creation of a national network of institutions.ResultsOver four years (2019-2023), we received 62 applications, reviewed 58 applications, and funded 21 projects (4-5 per year). Funded investigators were from diverse disciplines and institutions across Vietnam with projects on a range of topics, including biomarkers, prevention, diagnosis, neuropsychological assessment, family caregiver support, dementia education, and clinical trials. A network of 12 leading academic and research institutions nationwide has been created to facilitate dissemination. Six research training workshops have been organized and included presentations from international speakers. Grantees have published or presented their studies at both national and international levels. The mentoring program has helped grantees to build their research skills and expand their research network.ConclusionThis research capacity building program is the first of its kind in Vietnam and may serve as a useful model for other LMIC.
- Published
- 2024
26. Adaptation of the brainwriting premortem technique to inform the co-creation of COVID-19 testing strategies in underserved communities in South San Diego
- Author
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Rabin, Borsika A, Cain, Kelli L, Ayers, Lawrence O, Lomeli, Angel, Escoto, Arleth, Burola, Maria Linda, Aguilar, Melanie, Calvillo, Stephenie Tinoco, Reyes, Breanna, Salgin, Linda, Tukey, Robert, Laurent, Louise C, and Stadnick, Nicole A
- Subjects
Health Services and Systems ,Health Sciences ,Clinical Research ,Infectious Diseases ,Prevention ,Humans ,Qualitative Research ,COVID-19 Testing ,SARS-CoV-2 ,COVID-19 ,Brainwriting premortem ,Implementation science ,Co-creation ,Underserved communities ,Partner engagement ,Qualitative methods ,Rapid adaptations ,Library and Information Studies ,Nursing ,Public Health and Health Services ,Health Policy & Services ,Health services and systems ,Public health - Abstract
IntroductionMeaningful engagement of partners in co-creating and refining health-related programs can increase the initial uptake, sustained implementation, broad reach, and effectiveness of these programs. This is especially important for underserved communities where resources are limited and need to be prioritized. Brainwriting premortem is a novel qualitative approach to partner engagement that combines the strengths of individual idea generation with the concept of premortem exercise that addresses failure points prior to the implementation of new programs.MethodsAn adapted form of brainwriting premortem was used to inform iterative refinements to a COVID-19 testing program at a Federally Qualified Health Center (FQHC) in San Diego. Patients and providers from the FQHC participated in interviews at two time points (early- and mid-implementation of the program). Interview data were transcribed, translated, and analyzed using a rapid qualitative approach. Key themes and sub-themes were identified and used to inform refinements to the program.ResultsA total of 11 patients (7 Spanish- and 4 English-speaking) and 8 providers participated in the brainwriting premortem interviews. Key themes related to possible reasons for COVID-19 testing program failure: advertising/sharing information; access to testing; handling of test results; staff and patient safety; patient beliefs and views regarding the SARS-CoV-2 virus; and COVID-19 testing options offered. Proposed solutions were offered for the key failures except for patient beliefs and views regarding the SARS-CoV-2 virus. Additional solutions offered were related to education, physical operations, and recruitment strategies. Real-time changes to the program flow and components were made in response to 7 suggestions from patients and 11 from providers. Changes related to the process of returning results were the most common, and included sending results via email with distinct workflows based on the test result.ConclusionThe implementation of the adapted brainwriting premortem technique allowed us to incorporate the perspective of key partners in the delivery and iterative refinement of the COVID-19 testing program. This was an effective tool in the context of an FQHC and can be a promising and approach to incorporate iterative input from patients and providers to ensure successful program implementation. Future studies, particularly those requiring rapid response to public health emergencies, should consider the use of this technique.
- Published
- 2024
27. From Python to Raspberry Pi: Celebrating Pi Day with data science
- Author
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Deardorff, Ariel and Romero, Dylan
- Subjects
Information and Computing Sciences ,Library and Information Studies ,Rare Diseases ,Quality Education ,Information & Library Sciences - Abstract
The University of California-San Francisco (UCSF) Library is a graduate-only health science university with four professional schools (medicine, pharmacy, nursing, and dentistry), a graduate division, and an academic medical center. For several years UCSF has been the number one public recipient of NIH funding, reflecting the school’s dedication to biomedical research. Around 2015, the UCSF Library began investigating new ways to serve the university’s research population. Seeing a need for more computational and entrepreneurship training the library piloted two new programs: the Data Science Initiative (DSI) and the Makers Lab.
- Published
- 2023
28. Librarianship and the Fulbright Fellowship: Challenges and Opportunities for American Librarians and Polish Libraries
- Author
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Jankowska, Maria
- Subjects
Fulbright Fellowship ,Fulbright Fellows ,Polish Academic Libraries ,Library and Information Studies - Abstract
This article reports on personal observations and experiences gathered while teaching, working and consulting with librarians, students, and faculty during the author’s Fulbright Senior Fellowship in Poland. It discusses multiple opportunities and rewards for American librarians willing to serve as Fulbright Fellows including professional growth, knowledge sharing, meeting new people, experiencing new library cultures, traveling, and increasing the appreciation and visibility of librarians to the academic world. Additionally, it presents a short history of Polish academic libraries and the challenges they are currently facing.
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- 2023
29. Feeling Liberatory Memory Work On the Archival Uses of Joy and Anger
- Author
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Caswell, Michelle
- Subjects
Library and Information Studies ,Curatorial and Related Studies ,Heritage ,archive and museum studies ,Library and information studies - Published
- 2023
30. Xavier Albó: Memory, Chronicle and Profile
- Author
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Delgado-P., Guillermo
- Subjects
Information and Computing Sciences ,Language ,Communication and Culture ,Library and Information Studies ,Bolivian Anthropology ,Aymara Ethnicity ,1960s ,CIPCA ,Bolivian Ethnography ,Socia Sciences in Bolivia - Abstract
Este artículo es un homenaje que historiza el impacto inicial y la recepción de ideas fundacionales del antropólogo y lingüista Xavier Albó en el establecimiento de las ciencias sociales en Bolivia. El autor rememora el interés académico de Albó en la lingüística y la investigación etnográfica y sitúa su influencia en el contexto de los disturbios sociopolíticos de los años 60 y 70. También se recapitula un transfondo para entender la temprana necesidad de establecer CIPCA, hoy día un respetado centro de investigación que se ha convertido en punto de referencia para las ciencias sociales.
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- 2023
31. From Human Rights to Feminist Ethics: Radical Empathy in Archives
- Author
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Caswell, ML
- Subjects
archives ,human rights ,empathy ,Feminist ethics ,Library and Information Studies ,Curatorial and Related Studies ,Heritage ,archive and museum studies ,Library and information studies - Abstract
Much recent discussion about social justice in archival studies has assumed a legalistic, rights-based framework to delineate the role of records, archives, and archivists in both the violation of human rights and in holding individuals and governments accountable for basic human rights, such as the right to life, privacy, and freedom of expression. Yet decades of feminist scholarship have called into question the universality of a rights-based framework, arguing instead that an ethics of care is a more inclusive and apt model for envisioning and enacting a more just society. This article proposes a shift in the theoretical model used by archivists and archival studies scholars to address social justice concerns – from that based on individual rights to a model based on feminist ethics. In a feminist ethics approach, archivists are seen as caregivers, bound to records creators, subjects, users, and communities through a web of mutual affective responsibility. This article proposes four interrelated shifts in these archival relationships, based on radical empathy.
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- 2023
32. Toward a Survivor-Centered Approach to Human Rights Archives: Lessons from Community-Based Archives
- Author
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Caswell, ML
- Subjects
community ,archive ,human rights ,Library and Information Studies ,Information & Library Sciences ,Heritage ,archive and museum studies ,Library and information studies - Abstract
This article proposes a theoretical framework for managing records documenting human rights abuse based on five key principles learned from community archives discourses: participation, shared stewardship, multiplicity, archival activism, and reflexivity. In shifting the focus of human rights archives to these core community-centric values, this paper proposes a survivor-centered approach to such records and argues that survivors should maintain control over the decision-making processes related to records documenting their abuse.
- Published
- 2023
33. Not Just Between Us: A Riposte to Mark Greene
- Author
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Caswell, ML
- Subjects
archive ,social justice ,Library and Information Studies ,Library and information studies - Published
- 2023
34. Three Nex-Generation Catalog Projects. A report on Presentations and a Discussion Hosted by the LITA Next Generation Catalog Interest Group. American Library Association Midwinter Meeting, Philadelphia, January 2008
- Author
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Shafer, S
- Subjects
SolarPac ,Blacklight ,VuFind ,Library and Information Studies ,Information & Library Sciences ,Library and information studies - Abstract
The meeting held presentations and discussion about three locally developed and/or open source catalog projects. Ross Shanley-Roberts, Miami University, Ohio, gave a detailed history, technical overview and description of SolrPac (http://beta.lib.muohio.edu). Bess Sadler, University of Virginia, gave a detailed history, technical overview and presentation on the open source OPAC known as Blacklight. Chris Barr and Andrew Nagy of Villanova discussed the VuFind (http://www.Vufind.org/demo) project.
- Published
- 2023
35. Reflections on the PCC Wikidata Pilot at UCLA Library: Undertaking the PCC Learning Objectives
- Author
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Zhang, Erica, Biswas, Paromita, and Dagher, Iman
- Subjects
Information and Computing Sciences ,Library and Information Studies ,Wikidata ,identity management ,linked data ,Program for Cooperative Cataloging ,metadata ,Information & Library Sciences ,Library and information studies - Abstract
In 2020, the Program for Cooperative Cataloging (PCC) Task Group on Identity Management in NACO sponsored a 14-month PCC Wikidata Pilot, complete with learning objectives, for participants to experiment with Wikidata, an open linked data platform. UCLA Library joined the Pilot to create and edit Wikidata items related to UCLA Library’s collections and UCLA Library entities. With the Pilot’s conclusion, the UCLA Library Pilot team reflected on lessons learned. By assessing UCLA Library’s experience against the Pilot’s learning objectives, the authors hope to contribute on-the-ground insights that may be relevant to PCC’s progress toward identity management, and the role Wikidata may play in this transition.
- Published
- 2023
36. Data sharing and ontology use among agricultural genetics, genomics, and breeding databases and resources of the Agbiodata Consortium
- Author
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Clarke, Jennifer L, Cooper, Laurel D, Poelchau, Monica F, Berardini, Tanya Z, Elser, Justin, Farmer, Andrew D, Ficklin, Stephen, Kumari, Sunita, Laporte, Marie-Angélique, Nelson, Rex T, Sadohara, Rie, Selby, Peter, Thessen, Anne E, Whitehead, Brandon, and Sen, Taner Z
- Subjects
Biological Sciences ,Genetics ,Networking and Information Technology R&D (NITRD) ,Data Format ,Library and Information Studies ,Bioinformatics and computational biology ,Data management and data science - Abstract
Over the last couple of decades, there has been a rapid growth in the number and scope of agricultural genetics, genomics and breeding databases and resources. The AgBioData Consortium (https://www.agbiodata.org/) currently represents 44 databases and resources (https://www.agbiodata.org/databases) covering model or crop plant and animal GGB data, ontologies, pathways, genetic variation and breeding platforms (referred to as 'databases' throughout). One of the goals of the Consortium is to facilitate FAIR (Findable, Accessible, Interoperable, and Reusable) data management and the integration of datasets which requires data sharing, along with structured vocabularies and/or ontologies. Two AgBioData working groups, focused on Data Sharing and Ontologies, respectively, conducted a Consortium-wide survey to assess the current status and future needs of the members in those areas. A total of 33 researchers responded to the survey, representing 37 databases. Results suggest that data-sharing practices by AgBioData databases are in a fairly healthy state, but it is not clear whether this is true for all metadata and data types across all databases; and that, ontology use has not substantially changed since a similar survey was conducted in 2017. Based on our evaluation of the survey results, we recommend (i) providing training for database personnel in a specific data-sharing techniques, as well as in ontology use; (ii) further study on what metadata is shared, and how well it is shared among databases; (iii) promoting an understanding of data sharing and ontologies in the stakeholder community; (iv) improving data sharing and ontologies for specific phenotypic data types and formats; and (v) lowering specific barriers to data sharing and ontology use, by identifying sustainability solutions, and the identification, promotion, or development of data standards. Combined, these improvements are likely to help AgBioData databases increase development efforts towards improved ontology use, and data sharing via programmatic means. Database URL https://www.agbiodata.org/databases.
- Published
- 2023
37. Reimagining Ambulatory Care in Urology: Conversion of the Urology Clinic into a Procedure Center Improves Patient's Experience
- Author
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Hamouche, Fadl, Hakam, Nizar, Unno, Rei, Ahn, Justin, Yang, Heiko, Bayne, David, Stoller, Marshall L, Smith, Susan, Finlayson, Emily, Smith, James, and Chi, Thomas
- Subjects
Health Services and Systems ,Health Sciences ,Clinical Research ,Health Services ,Good Health and Well Being ,outpatient care ,patient experience ,patient satisfaction ,telehealth ,urology clinic ,Library and Information Studies ,Biomedical Engineering ,Public Health and Health Services ,Medical Informatics ,Health services and systems ,Public health - Abstract
Introduction: The coronavirus disease 2019 (COVID-19) pandemic made it necessary to practice social distancing and limited in-person encounters in health care. These restrictions created alternative opportunities to enhance patient access to care in the ambulatory setting. We hypothesized that by transforming clinics into centers that prioritize procedures and transitioning ambulatory appointments to telehealth, we could establish a secure, streamlined, and productive method for providing patient care. Methods: Clinic templates were restructured to allow the use of the physical space to perform procedure-based clinics exclusively, while switching to virtual telemedicine for all nonprocedural encounters. Staff members were given specific roles to support one of the patient care modalities for a given day (Procedures vs. Telehealth). Performance and patient satisfaction metrics were collected between two periods of time defined as P1 (February-June 2019) and P2 Post-COVID (February-June 2020) and compared. These served as proxies of periods when the clinic workflow and templates were structured in the traditional versus the emerging way. Statistical analysis was performed using bivariate analyses. Results: The percentage of procedures performed among all in-person visits were higher in P2 compared to P1 (45% vs. 29%, p < 0.001). Although total charges and relative value units were lower in P2, the overall revenue generated was higher compared to P1 ($4,597,846 vs. $4,517,427$, respectively). This increase in revenue was mainly driven by the higher relative income generated by procedures. Patient experience, reflected through patient-reported outcomes, was more favorable in P2 where patients seemed more likely to "Recommend this provider office" (90% vs. 85.7%, p = 0.01), report improved "Access overall" (56% vs. 49%, p = 0.02), and felt they were "Moving through your visit overall" (59% vs. 51%, p = 0.007). Conclusions: Our data suggest that reorganizing urology clinics into a space that is centered around outpatient procedures can represent a model that improves the patient's access to care and clinical experience, while simultaneously improving operational financial strength. This efficient care model could be considered for many practice settings and drive high-value outpatient care.
- Published
- 2023
38. Methods for measuring social and conceptual dimensions of convergence science
- Author
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Petersen, Alexander Michael, Arroyave, Felber, and Pavlidis, Ioannis
- Subjects
Information and Computing Sciences ,Library and Information Studies ,Clinical Research ,convergence ,team science ,team assembly ,ontology ,interdisciplinary distance ,alignment ,evaluation ,Applied Economics ,Policy and Administration ,Science Studies ,Policy and administration ,Library and information studies - Abstract
Abstract: Convergence science is an intrepid form of interdisciplinarity defined by the US National Research Council as ‘the coming together of insights and approaches from originally distinct fields’ to strategically address grand challenges. Despite its increasing relevance to science policy and institutional design, there is still no practical framework for measuring convergence. We address this gap by developing a measure of disciplinary distance based upon disciplinary boundaries delineated by hierarchical ontologies. We apply this approach using two widely used ontologies—the Classification of Instructional Programs and the Medical Subject Headings—each comprised of thousands of entities that facilitate classifying two distinct research dimensions, respectively. The social dimension codifies the disciplinary pedigree of individual scholars, connoting core expertise associated with traditional modes of mono-disciplinary graduate education. The conceptual dimension codifies the knowledge, methods, and equipment fundamental to a given target problem, which together may exceed the researchers’ core expertise. Considered in tandem, this decomposition facilitates measuring social-conceptual alignment and optimizing team assembly around domain-spanning problems—a key aspect that eludes other approaches. We demonstrate the utility of this framework in a case study of the human brain science (HBS) ecosystem, a relevant convergence nexus that highlights several practical considerations for designing, evaluating, institutionalizing, and accelerating convergence. Econometric analysis of 655,386 publications derived from 9,121 distinct HBS scholars reveals a 11.4% article-level citation premium attributable to research featuring full topical convergence, and an additional 2.7% citation premium if the social (disciplinary) configuration of scholars is maximally aligned with the conceptual (topical) configuration of the research.
- Published
- 2023
39. Editorial workflow of a community-led, all-volunteer scientific journal: lessons from the launch of Seismica
- Author
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Mark, Hannah, Ragon, Théa, Funning, Gareth, Hicks, Stephen P, Rowe, Christie, Teplitzky, Samantha, Convers, Jaime, Karasözen, Ezgi, Corona-Fernandez, R Daniel, and Fagereng, Åke
- Subjects
Information and Computing Sciences ,Library and Information Studies - Abstract
Seismica is a community-led, volunteer-run, diamond open-access journal for seismology and earthquake science, and Seismica's mission and core values align with the principles of Open Science. This article describes the editorial workflow that Seismica uses to go from a submitted manuscript to a published article. In keeping with Open Science principles, the main goals of sharing this workflow description are to increase transparency around academic publishing, and to enable others to use elements of Seismica's workflow for journals of a similar size and ethos. We highlight aspects of Seismica's workflow that differ from practices at journals with paid staff members, and also discuss some of the challenges encountered, solutions developed, and lessons learned while this workflow was developed and deployed over Seismica's first year of operations.
- Published
- 2023
40. Pro- and Anti-Tax Framing in News Articles About California Sugar-Sweetened Beverage Tax Campaigns from 2014-2018
- Author
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Garcia, Kim, Mejia, Pamela, Perez-Sanz, Sarah, Dorfman, Lori, Madsen, Kristine, and Schillinger, Dean
- Subjects
Language ,Communication and Culture ,Public Health ,Health Sciences ,Prevention ,Minority Health ,Health Disparities ,Child ,Humans ,Sugar-Sweetened Beverages ,Taxes ,Beverages ,Dissent and Disputes ,California ,Library and Information Studies ,Public Health and Health Services ,Communication and Media Studies ,Public health ,Communication and media studies - Abstract
Sugar-sweetened beverages (SSB) contribute to illness, especially among marginalized communities and children targeted by the beverage industry. SSB taxes can reduce consumption, illness burden, and health inequities, while generating revenue for health programs, and as one way to hold the industry responsible for their harmful products and marketing malpractices. Supporters and opponents have debated SSB tax proposals in news coverage - a key source of information that helps to shape public policy debates. To learn how four successful California-based SSB tax campaigns were covered in the news, we conducted a content analysis, comparing how SSB taxes were portrayed. We found that pro-tax arguments frequently reported data to expose the beverage industry's outsized campaign spending and emphasize the health harms of SSBs, often from health professionals. However, pro-tax arguments rarely described the benefits of SSB taxes, or how they can act as a tool for industry accountability. By contrast, anti-tax arguments overtly appealed to values and promoted misinformation, often from representatives from industry-funded front groups. As experts recommend additional SSB tax proposals, and as the industry mounts legislative counter-tactics to prevent them, advocates should consider harnessing community representatives as messengers and values-based messages to highlight the benefits of SSB taxes.
- Published
- 2023
41. The Work in Question
- Author
-
de Fremery, Wayne and Buckland, Michael
- Subjects
Information and Computing Sciences ,Library and Information Studies ,Information & Library Sciences - Abstract
The International Conference on Cataloging Principles (Paris, 1961) led to wide acceptance of Seymour Lubetzky's distinction between books and works, where books denoted particular physical objects and works concerned conceptual abstractions associated with the creative labor of particular authors. Lubetzky's formulation of works is included in many of the world's cataloging frameworks, including the Functional Requirements for Bibliographic Records (FRBR). Several conceptual and practical difficulties arise from the widespread adoption of Lubetzkian works in practices associated with knowledge organization. However, FRBR and other knowledge organization frameworks that utilize works as central entities could be made more useable and useful if work, as an organizing principle, were de-emphasized and seen as one among many concepts used for aggregating sets and supersets of objects according to how likely they are to be useful to users of knowledge organization tools like catalogs.
- Published
- 2023
42. Automated indexing using NLM's Medical Text Indexer (MTI) compared to human indexing in Medline: a pilot study
- Author
-
Chen, Eileen, Bullard, Julia, and Giustini, Dean
- Subjects
Information and Computing Sciences ,Library and Information Studies ,Abstracting and Indexing ,Medical Subject Headings ,MEDLINE ,National Library of Medicine (U.S.) ,Pilot Projects ,United States ,Automated indexing ,human indexers ,information retrieval ,Medical Text Indexer ,Medline ,PubMed ,PubMed. ,Information & Library Sciences ,Library and information studies - Abstract
ObjectiveIn 2002, the National Library of Medicine (NLM) introduced semi-automated indexing of Medline using the Medical Text Indexer (MTI). In 2021, NLM announced that it would fully automate its indexing in Medline with an improved MTI by mid-2022. This pilot study examines indexing using a sample of records in Medline from 2000, and how an early, public version of MTI's outputs compares to records created by human indexers.MethodsThis pilot study examines twenty Medline records from 2000, a year before the MTI was introduced as a MeSH term recommender. We identified twenty higher- and lower-impact biomedical journals based on Journal Impact Factor (JIF) and examined the indexing of papers by feeding their PubMed records into the Interactive MTI tool.ResultsIn the sample, we found key differences between automated and human-indexed Medline records: MTI assigned more terms and used them more accurately for citations in the higher JIF group, and MTI tended to rank the Male check tag more highly than the Female check tag and to omit Aged check tags. Sometimes MTI chose more specific terms than human indexers but was inconsistent in applying specificity principles.ConclusionNLM's transition to fully automated indexing of the biomedical literature could introduce or perpetuate inconsistencies and biases in Medline. Librarians and searchers should assess changes to index terms, and their impact on PubMed's mapping features for a range of topics. Future research should evaluate automated indexing as it pertains to finding clinical information effectively, and in performing systematic searches.
- Published
- 2023
43. Evaluating the accessibility and value of U.S. ambulatory care among Medicaid expansion states and non-expansion states, 2012-2015.
- Author
-
Parzuchowski, Aaron, Oronce, Carlos, Guo, Rong, Tseng, Chi-Hong, Fendrick, A Mark, and Mafi, John N
- Subjects
Humans ,Adult ,Aged ,Middle Aged ,Medically Uninsured ,Medicaid ,Medicare ,Insurance Coverage ,Health Services Accessibility ,United States ,Female ,Male ,Patient Protection and Affordable Care Act ,Affordable care act ,Ambulatory care ,Health policy ,Quality ,Value ,Clinical Research ,Health Services ,Behavioral and Social Science ,Good Health and Well Being ,Library and Information Studies ,Nursing ,Public Health and Health Services ,Health Policy & Services - Abstract
BackgroundWhile the Affordable Care Act's Medicaid expansion improved healthcare coverage and access for millions of uninsured Americans, less is known about its effects on the overall accessibility and quality of care across all payers. Rapid volume increases of newly enrolled Medicaid patients might have unintentionally strained accessibility or quality of care. We assessed changes in physician office visits and high- and low-value care associated with Medicaid expansion across all payers.MethodsPrespecified, quasi-experimental, difference-in-differences analysis pre and post Medicaid expansion (2012-2015) in 8 states that did and 5 that did not choose to expand Medicaid. Physician office visits sampled from the National Ambulatory Medical Care Survey, standardized with U.S. Census population estimates. Outcomes included visit rates per state population and rates of high or low-value service composites of 10 high-value measures and 7 low-value care measures respectively, stratified by year and insurance.ResultsWe identified approximately 143 million adults utilizing 1.9 billion visits (mean age 56; 60% female) during 2012-2015. Medicaid visits increased in expansion states post-expansion compared to non-expansion states by 16.2 per 100 adults (p = 0.031 95% CI 1.5-31.0). New Medicaid visits increased by 3.1 per 100 adults (95% CI 0.9-5.3, p = 0.007). No changes were observed in Medicare or commercially-insured visit rates. High or low-value care did not change for any insurance type, except high-value care during new Medicaid visits, which increased by 4.3 services per 100 adults (95% CI 1.1-7.5, p = 0.009).ConclusionsFollowing Medicaid expansion, the U.S. healthcare system increased access to care and use of high-value services for millions of Medicaid enrollees, without observable reductions in access or quality for those enrolled in other insurance types. Provision of low-value care continued at similar rates post-expansion, informing future federal policies designed to improve the value of care.
- Published
- 2023
44. A Descriptive Comparative Pilot Study: Association Between Use of a Self-monitoring Device and Sleep and Stress Outcomes in Pregnancy.
- Author
-
Auxier, Jennifer, Asgari Mehrabadi, Milad, Rahmani, Amir M, and Axelin, Anna
- Subjects
Humans ,Pilot Projects ,Sleep ,Pregnancy ,Pregnant Women ,Patient Participation ,Female ,Sleep Duration ,Sleep Research ,Behavioral and Social Science ,Clinical Research ,Basic Behavioral and Social Science ,Reproductive health and childbirth ,Good Health and Well Being ,Behavioral changes ,Self-care ,Wearable sensors ,Library and Information Studies ,Nursing - Abstract
Pregnancy is a challenging time for maintaining quality sleep and managing stress. Digital self-monitoring technologies are popular because of assumed increased patient engagement leading to an impact on health outcomes. However, the actual association between wear time of such devices and improved sleep/stress outcomes remains untested. Here, a descriptive comparative pilot study of 20 pregnant women was conducted to examine associations between wear time (behavioral engagement) of self-monitoring devices and sleep/stress pregnancy outcomes. Women used a ring fitted to their finger to monitor sleep/stress data, with access to a self-monitoring program for an average of 9½ weeks. Based on wear time, participants were split into two engagement groups. Using a linear mixed-effects model, the high engagement group showed higher levels of stress and a negative trend in sleep duration and quality. The low engagement group showed positive changes in sleep duration, and quality and experienced below-normal sleep onset latency at the start of the pilot but trended toward normal levels. Engagement according to device wear time was not associated with improved outcomes. Further research should aim to understand how engagement with self-monitoring technologies impacts sleep/stress outcomes in pregnancy.
- Published
- 2023
45. Process and costs for readiness to safely implement immediate kangaroo mother care: a mixed methods evaluation from the OMWaNA trial at five hospitals in Uganda.
- Author
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Medvedev, Melissa M, Tumukunde, Victor, Kirabo-Nagemi, Charity, Greco, Giulia, Mambule, Ivan, Katumba, Kenneth, Waiswa, Peter, Tann, Cally J, Elbourne, Diana, Allen, Elizabeth, Ekirapa-Kiracho, Elizabeth, Pitt, Catherine, and Lawn, Joy E
- Subjects
Humans ,Premature Birth ,Pregnancy ,Infant ,Newborn ,Hospitals ,Uganda ,Female ,Kangaroo-Mother Care Method ,Implementation ,Intervention costs ,Kangaroo mother care ,Low birthweight ,Newborn care ,Preterm ,Service readiness ,Health Services ,Clinical Research ,Pediatric ,Health and social care services research ,8.1 Organisation and delivery of services ,Good Health and Well Being ,Library and Information Studies ,Nursing ,Public Health and Health Services ,Health Policy & Services - Abstract
BackgroundPreterm birth complications result in > 1 million child deaths annually, mostly in low- and middle-income countries. A World Health Organisation (WHO)-led trial in hospitals with intensive care reported reduced mortality within 28 days among newborns weighing 1000-1799 g who received immediate kangaroo mother care (iKMC) compared to those who received standard care. Evidence is needed regarding the process and costs of implementing iKMC, particularly in non-intensive care settings.MethodsWe describe actions undertaken to implement iKMC, estimate financial and economic costs of essential resources and infrastructure improvements, and assess readiness for newborn care after these improvements at five Ugandan hospitals participating in the OMWaNA trial. We estimated costs from a health service provider perspective and explored cost drivers and cost variation across hospitals. We assessed readiness to deliver small and sick newborn care (WHO level-2) using a tool developed by Newborn Essential Solutions and Technologies and the United Nations Children's Fund.ResultsFollowing the addition of space to accommodate beds for iKMC, floor space in the neonatal units ranged from 58 m2 to 212 m2. Costs of improvements were lowest at the national referral hospital (financial: $31,354; economic: $45,051; 2020 USD) and varied across the four smaller hospitals (financial: $68,330-$95,796; economic: $99,430-$113,881). In a standardised 20-bed neonatal unit offering a level of care comparable to the four smaller hospitals, the total financial cost could be in the range of $70,000 to $80,000 if an existing space could be repurposed or remodelled, or $95,000 if a new unit needed to be constructed. Even after improvements, the facility assessments demonstrated broad variability in laboratory and pharmacy capacity as well as the availability of essential equipment and supplies.ConclusionsThese five Ugandan hospitals required substantial resource inputs to allow safe implementation of iKMC. Before widespread scale-up of iKMC, the affordability and efficiency of this investment must be assessed, considering variation in costs across hospitals and levels of care. These findings should help inform planning and budgeting as well as decisions about if, where, and how to implement iKMC, particularly in settings where space, devices, and specialised staff for newborn care are unavailable.Trial registrationClinicalTrials.gov, NCT02811432 . Registered: 23 June 2016.
- Published
- 2023
46. The Impact of Patient Travel Distance on Outpatient Visit Satisfaction: Comparison of Telehealth and Traditional In-Person Visits
- Author
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Shaw, Nathan M, Abbasi, Behzad, Odisho, Anobel Y, Hills, Nancy, Holler, Jordan, Sliwka, Diane, and Breyer, Benjamin N
- Subjects
Clinical Research ,7.1 Individual care needs ,Management of diseases and conditions ,Good Health and Well Being ,patient satisfaction ,telemedicine ,telehealth ,Library and Information Studies ,Biomedical Engineering ,Public Health and Health Services ,Medical Informatics - Abstract
Introduction: Patient satisfaction has been shown to changes based on the distance a patient to see their physician. We sought to examine the effects of telehealth on patient satisfaction. Methods: We examined patient satisfaction survey scores from outpatient clinics at University of California, San Francisco. Patient home and clinic addresses were used to calculate distance in kilometers (km). Outcomes were "top scores (9-10)" and "low scores (100 km for in-person visits had more top scores (84%) than those traveled 100 km had the highest odds of top score for telehealth (OR: 1.86). Conclusions: Patients receiving care through telehealth, particularly those far from the outpatient clinic, are more likely to provide high patient satisfaction scores for the visit provider.
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- 2023
47. Review of databases for experimentally validated human microRNA–mRNA interactions
- Author
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Kariuki, Dorian, Asam, Kesava, Aouizerat, Bradley E, Lewis, Kimberly A, Florez, Jose C, and Flowers, Elena
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Genetics ,Biotechnology ,Humans ,MicroRNAs ,RNA ,Messenger ,Databases ,Nucleic Acid ,Computational Biology ,PubMed ,Data Format ,Library and Information Studies - Abstract
MicroRNAs (miRs) may contribute to disease etiology by influencing gene expression. Numerous databases are available for miR target prediction and validation, but their functionality is varied, and outputs are not standardized. The purpose of this review is to identify and describe databases for cataloging validated miR targets. Using Tools4miRs and PubMed, we identified databases with experimentally validated targets, human data, and a focus on miR-messenger RNA (mRNA) interactions. Data were extracted about the number of times each database was cited, the number of miRs, the target genes, the interactions per database, experimental methodology and key features of each database. The search yielded 10 databases, which in order of most cited to least were: miRTarBase, starBase/The Encyclopedia of RNA Interactomes, DIANA-TarBase, miRWalk, miRecords, miRGator, miRSystem, miRGate, miRSel and targetHub. Findings from this review suggest that the information presented within miR target validation databases can be enhanced by adding features such as flexibility in performing queries in multiple ways, downloadable data, ongoing updates and integrating tools for further miR-mRNA target interaction analysis. This review is designed to aid researchers, especially those new to miR bioinformatics tools, in database selection and to offer considerations for future development and upkeep of validation tools. Database URL http://mirtarbase.cuhk.edu.cn/.
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- 2023
48. Standardized naming of microbiome samples in Genomes OnLine Database
- Author
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Mukherjee, Supratim, Ovchinnikova, Galina, Stamatis, Dimitri, Li, Cindy Tianqing, Chen, I-Min A, Kyrpides, Nikos C, and Reddy, TBK
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Microbiology ,Biological Sciences ,Bioinformatics and Computational Biology ,Genetics ,Human Genome ,Microbiome ,1.5 Resources and infrastructure (underpinning) ,Generic health relevance ,Software ,Microbiota ,Metagenome ,Metagenomics ,Data Management ,Data Format ,Library and Information Studies ,Bioinformatics and computational biology ,Data management and data science - Abstract
The power of next-generation sequencing has resulted in an explosive growth in the number of projects aiming to understand the metagenomic diversity of complex microbial environments. The interdisciplinary nature of this microbiome research community, along with the absence of reporting standards for microbiome data and samples, poses a significant challenge for follow-up studies. Commonly used names of metagenomes and metatranscriptomes in public databases currently lack the essential information necessary to accurately describe and classify the underlying samples, which makes a comparative analysis difficult to conduct and often results in misclassified sequences in data repositories. The Genomes OnLine Database (GOLD) (https:// gold.jgi.doe.gov/) at the Department of Energy Joint Genome Institute has been at the forefront of addressing this challenge by developing a standardized nomenclature system for naming microbiome samples. GOLD, currently in its twenty-fifth anniversary, continues to enrich the research community with hundreds of thousands of metagenomes and metatranscriptomes with well-curated and easy-to-understand names. Through this manuscript, we describe the overall naming process that can be easily adopted by researchers worldwide. Additionally, we propose the use of this naming system as a best practice for the scientific community to facilitate better interoperability and reusability of microbiome data.
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- 2023
49. Correction to: Standardized naming of microbiome samples in Genomes OnLine Database
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Mukherjee, S, Ovchinnikova, G, Stamatis, D, Li, CT, Chen, IMA, Kyrpides, NC, and Reddy, TBK
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Data Management and Data Science ,Information and Computing Sciences ,Biological Sciences ,Bioinformatics and Computational Biology ,Data Format ,Library and Information Studies ,Bioinformatics and computational biology ,Data management and data science - Abstract
In the originally published version of this manuscript em dashes were inadvertently added in place of short dashes and spaces, particularly in the canonical name of the database being described. In addition to this changes have also been made to the formatting of Table 1 to aid understanding. No changes have been made to the content. These errors, for which the publisher apologizes, have been corrected.
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- 2023
50. Impact of library information literacy training on entrepreneurship competition scores: A quantitative study at University of California, Irvine
- Author
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Heimann, Sara
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Behavioral and Social Science ,Academic libraries ,embedded librarianship ,entrepreneurship ,entrepreneurship competition ,information literacy ,Library and Information Studies ,Business and Management - Abstract
The University of California, Irvine’s (UCI) Innovation and Entrepreneurship Librarian partnered with UCI’s New Venture Competition to provide embedded research support for teams participating in the competition, including a research workshop and individual team research consultations. To assess the impact of these library services, a quantitative study of three years of competition scores was conducted involving a control group and two experimental groups; the difference in the experimental groups was the mode in which the services were provided: in-person and virtually. The study hypothesized that teams who received information literacy training (i.e., attended a research workshop and/or participated in a research consultation) earned higher Concept Paper scores, as well as higher evidence question scores (i.e., scores for a rubric question related to providing evidence in support of claims made in the Concept Paper), than teams who did not receive information literacy training. Statistical analysis showed significant increases in both Concept Paper scores and evidence question scores for both experimental groups when compared to the control group, indicating that information literacy training positively impacted teams’ performance. Additional analysis revealed no statistically significant differences in teams’ scores based on training delivery mode, in-person or virtual. The results are of value to librarians seeking to initiate partnerships with entrepreneurship competitions on campus, as well as entrepreneurship educators interested in enhancing existing entrepreneurship competitions by incorporating research and information literacy training.
- Published
- 2023
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