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5. Meeting own needs and supporting ability to care:Family caregivers’ and health care professionals’ perspectives on professional support provided through a potential mobile application

Author

Moberg, Cecilia, Grundberg, Åke, Konradsen, Hanne, Kallström, Ana Paula, Leung, Angela Y.M., Kabir, Zarina N., Moberg, Cecilia, Grundberg, Åke, Konradsen, Hanne, Kallström, Ana Paula, Leung, Angela Y.M., and Kabir, Zarina N.

Abstract

Background: A majority of persons with dementia in Sweden live in their own homes and are often cared for by family members. Caring for a family member may be a positive experience. It may, however, also be a negative experience as symptoms like disturbing behavior and delusions may be difficult to encounter. The burden of being a family caregiver has been shown to affect the caregivers’ quality of life. Objective: To explore stakeholders’ perspectives on a potential mobile application through which family caregivers could be supported by healthcare professionals in caring for a person with dementia living at home. Method: Eight individual interviews with family caregivers and a focus group with eight healthcare professionals specialized in dementia care were analyzed using content analysis method. Results: The findings suggest that a mobile application can support family caregivers to meet their own needs in terms of finding structure in everyday life, how to get information and support in their own pace, and how to care for themselves. The findings also suggest the necessity of accessing relevant contact networks to be supported in the ability to care for a family member with dementia. Conclusion: Healthcare and social services mediated support provided through user-friendly mobile application has the potential to support family caregivers both in taking care of a person with dementia and caring for themselves. Moreover, it is important that the information provided to family caregivers is personalized according to the needs of the family caregivers as the family member’s dementia advances.

Published
2022

7. Prevention of acute myocardial infarction and stroke among elderly persons by dual pneumococcal and influenza vaccination: a prospective cohort study

Author

Hung, Ivan F.N., Leung, Angela Y.M., Chu, Daniel W.S., Leung, Doris, Cheung, Terence, Chan, Chi-Kuen, Lam, Cindy L.K., Liu, Shao-Haei, Chu, Chung-Ming, Ho, Pak-Leung, Chan, Sophia, Lam, Tai-Hing, Liang, Raymond, and Yuen, Kwok-Yung

Subjects
Heart attack -- Prevention, Stroke (Disease) -- Prevention, Influenza vaccines -- Usage, Influenza vaccines -- Patient outcomes, Hospital care -- Control, Health, Health care industry, World Health Organization -- Standards
Published
2010

15. Uncovering the Devaluation of Nursing Home Staff During COVID-19: Are We Fuelling the Next Health Care Crisis?

Author

McGilton, Katherine S., primary, Escrig-Pinol, Astrid, additional, Gordon, Adam, additional, Chu, Charlene H., additional, Zúñiga, Franziska, additional, Sanchez, Montserrat Gea, additional, Boscart, Veronique, additional, Meyer, Julienne, additional, Corazzini, Kirsten N., additional, Jacinto, Alessandro Ferrari, additional, Spilsbury, Karen, additional, Backman, Annica, additional, Scales, Kezia, additional, Fagertun, Anette, additional, Wu, Bei, additional, Edvardsson, David, additional, Lepore, Michael J., additional, Leung, Angela Y.M., additional, Siegel, Elena O., additional, Noguchi-Watanabe, Maiko, additional, Wang, Jing, additional, and Bowers, Barbara, additional

Published
2020
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16. Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life

Author

Edvardsson, David, Baxter, Rebecca, Corneliusson, Laura, Anderson, Ruth A., Beeber, Anna, Boas, Paulo Villas, Corazzini, Kirsten, Gordon, Adam L., Hanratty, Barbara, Jacinto, Alessandro, Lepore, Michael, Leung, Angela Y.M., McGilton, Katherine S., Meyer, Julienne, Schols, Jos M.G.A., Schwartz, Lindsay, Shepherd, Victoria, Skoldunger, Anders, Thompson, Roy, Toles, Mark, Wachholz, Patrick, Wang, Jing, and Wu, Bei

Subjects
Personhood, Quality of life, Long-term care, Measurement, Well-being, Care homes
Abstract

To support the development of internationally comparable common data elements (CDEs) that can be used to measure essential aspects of long-term care (LTC) across low-, middle-, and high-income countries, a group of researchers in medicine, nursing, behavioral, and social sciences from 21 different countries have joined forces and launched the Worldwide Elements to Harmonize Research in LTC Living Environments (WE-THRIVE) initiative. This initiative aims to develop a common data infrastructure for international use across the domains of organizational context, workforce and staffing, person-centered care, and care outcomes, as these are critical to LTC quality, experiences, and outcomes. This article reports measurement recommendations for the care outcomes domain, focusing on previously prioritized care outcomes concepts of well-being, quality of life (QoL), and personhood for residents in LTC. Through literature review and expert ranking, we recommend nine measures of well-being, QoL, and personhood, as a basis for developing CDEs for long-term care outcomes across countries. Data in LTC have often included deficit-oriented measures; while important, reductions do not necessarily mean that residents are concurrently experiencing well-being. Enhancing measurement efforts with the inclusion of these positive LTC outcomes across countries would facilitate international LTC research and align with global shifts toward healthy aging and person-centered LTC models.

Published
2019

22. Simple non-laboratory- and laboratory-based risk assessment algorithms and nomogram for detecting undiagnosed diabetes mellitus 检测糖尿病的简化非实验室和实验室风险评估公式和计算图

Author

Wong, Carlos K.H., Siu, Shing ‐ Chung, Wan, Eric Y.F., Jiao, Fang ‐ Fang, Yu, Esther Y.T., Fung, Colman S.C., Wong, Ka ‐ Wai, Leung, Angela Y.M., and Lam, Cindy L.K.

Subjects
DIET therapy for diabetes, RISK management information systems, ALGORITHMIC randomness, MATHEMATICAL models, CARBOHYDRATE intolerance, RISK assessment
Abstract

Copyright of Journal of Diabetes is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)

Published
2016
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