21 results on '"Latha Kumaraswami"'
Search Results
2. Living Well with Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere
- Author
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Kamyar Kalantar-Zadeh, Philip Kam-Tao Li, Ekamol Tantisattamo, Latha Kumaraswami, Vassilios Liakopoulos, Siu-Fai Lui, Ifeoma Ulasi, Sharon Andreoli, Alessandro Balducci, Sophie Dupuis, Tess Harris, Anne Hradsky, Richard Knight, Sajay Kumar, Maggie Ng, Alice Poidevin, Gamal Saadi, and Allison Tong
- Subjects
patient empowerment ,care-partner ,low-middle-income countries ,health policy ,Internal medicine ,RC31-1245 - Abstract
Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize the burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including an emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labelling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities, including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with a prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policy makers, applicable to both developed and developing countries.
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- 2021
- Full Text
- View/download PDF
3. Kidney Health for Everyone Everywhere—From Prevention to Detection and Equitable Access to Care
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Philip Kam-Tao Li, Guillermo Garcia-Garcia, Siu-Fai Lui, Sharon Andreoli, Winston Wing-Shing Fung, Anne Hradsky, Latha Kumaraswami, Vassilios Liakopoulos, Ziyoda Rakhimova, Gamal Saadi, Luisa Strani, Ifeoma Ulasi, Kamyar Kalantar-Zadeh, and Philip Kam Tao Li
- Subjects
awareness ,detection ,kidney diseases ,prevention ,Diseases of the genitourinary system. Urology ,RC870-923 - Published
- 2020
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- View/download PDF
4. Burden, access, and disparities in kidney disease
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Deidra C. Crews, Aminu K. Bello, Gamal Saadi, Philip Kam Tao Li, Guillermo Garcia-Garcia, Sharon Andreoli, Deidra Crews, Kamyar Kalantar-Zadeh, Charles Kernahan, Latha Kumaraswami, and Luisa Strani
- Subjects
Diseases of the genitourinary system. Urology ,RC870-923 - Published
- 2020
- Full Text
- View/download PDF
5. Women and Kidney Diseases: Questions Unanswered and Answers Unquestioned
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Giorgina B. Piccoli, Mona Alrukhaimi, Zhi-Hong Liu, Elena Zakharova, Adeera Levin, Philip Kam, Tao Li, Guillermo Garcia-Garcia, Mohammed Benghanem-Gharbi, Kamyar Kalantar-Zadeh, Charles Kernahan, Latha Kumaraswami, Giorgina Barbara Piccoli, Gamal Saadi, Louise Fox, and Sharon Andreoli
- Subjects
Diseases of the genitourinary system. Urology ,RC870-923 - Published
- 2018
- Full Text
- View/download PDF
6. Patient-centred approaches for the management of unpleasant symptoms in kidney disease
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Kamyar Kalantar-Zadeh, Mark B. Lockwood, Connie M. Rhee, Ekamol Tantisattamo, Sharon Andreoli, Alessandro Balducci, Paul Laffin, Tess Harris, Richard Knight, Latha Kumaraswami, Vassilios Liakopoulos, Siu-Fai Lui, Sajay Kumar, Maggie Ng, Gamal Saadi, Ifeoma Ulasi, Allison Tong, and Philip Kam-Tao Li
- Subjects
Renal Dialysis ,Nephrology ,Quality of Life ,Humans ,Renal Insufficiency, Chronic ,Fatigue ,Uremia - Abstract
Patients with chronic kidney disease (CKD) frequently experience unpleasant symptoms. These can be gastrointestinal (constipation, nausea, vomiting and diarrhoea), psychological (anxiety and sadness), neurological (lightheadedness, headache and numbness), cardiopulmonary (shortness of breath and oedema), dermatological (pruritus and dry skin), painful (muscle cramps, chest pain and abdominal pain) or involve sexual dysfunction, sleep disorders and fatigue. These symptoms often occur in clusters, with one of them as the lead symptom and others as secondary symptoms. Uraemic toxins (also called uremic toxins) are often considered to be the main cause of CKD-associated symptom burden, but treatment of uraemia by dialysis often fails to resolve them and can engender additional symptoms. Indeed, symptoms can be exacerbated by comorbid conditions, pharmacotherapies, lifestyle and dietary regimens, kidney replacement therapy and ageing. Patients with kidney disease, including those who depend on dialysis or transplantation, should feel actively supported in their symptom management through the identification and targeting of unpleasant symptoms via a tailored palliative care approach. Such an approach may help minimize the burden and consequences of kidney disease, and lead to improved patient outcomes including health-related quality of life and better life participation.
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- 2022
7. Reprint of: Living well with kidney disease by patient and care-partner empowerment: kidney health for everyone everywhere
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Kamyar Kalantar-Zadeh, Philip Kam-Tao Li, Ekamol Tantisattamo, Latha Kumaraswami, Vassilios Liakopoulos, Siu-Fai Lui, Ifeoma Ulasi, Sharon Andreoli, Alessandro Balducci, Sophie Dupuis, Tess Harris, Anne Hradsky, Richard Knight, Sajay Kumar, Maggie Ng, Alice Poidevin, Gamal Saadi, Allison Tong, and Philip Kam Tao Li
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medicine.medical_specialty ,business.industry ,Patient Empowerment ,media_common.quotation_subject ,030232 urology & nephrology ,COVID-19 ,Developing country ,Early detection ,medicine.disease ,Coronavirus ,03 medical and health sciences ,0302 clinical medicine ,Nephrology ,Family medicine ,Pandemic ,medicine ,Empowerment ,business ,Health policy ,Tertiary Prevention ,media_common ,Kidney disease - Abstract
Living with chronic kidney disease (CKD) is associated with hardships for patients and their care partners. Empowering patients and their care partners, including family members and friends involved in their care, may help minimize the burden and consequences of CKD-related symptoms to enable increased life participation. There is a need to broaden the focus on living well with kidney disease and reengagement in life, including emphasis on the patient being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education about and awareness of the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labeling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care partners should feel supported to live well through concerted efforts by kidney care communities, including during pandemics. In the overall wellness program for patients with kidney disease, the need for prevention should be reiterated. Early detection with prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures across populations, professionals, and policy makers, applicable to both developed and developing countries.
- Published
- 2021
8. World Kidney Day 2021: Living Well With Kidney Disease by Patient and Care Partner Empowerment—Kidney Health for Everyone Everywhere
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Allison Tong, Maggie Ng, Kamyar Kalantar-Zadeh, Sophie Dupuis, Vassilios Liakopoulos, Sharon Andreoli, Ifeoma Ulasi, Richard A. Knight, Philip Kam-Tao Li, Siu-Fai Lui, Latha Kumaraswami, Sajay Kumar, Anne Hradsky, Alice Poidevin, Alessandro Balducci, Gamal Saadi, Ekamol Tantisattamo, and Tess Harris
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Kidney ,medicine.medical_specialty ,business.industry ,media_common.quotation_subject ,MEDLINE ,Global Health ,medicine.disease ,Health Services Accessibility ,medicine.anatomical_structure ,Caregivers ,Nephrology ,Family medicine ,medicine ,Humans ,Kidney Diseases ,Patient Participation ,business ,Empowerment ,Kidney disease ,media_common - Published
- 2021
9. Challenges Faced By Nursing and Dialysis Staffs during COVID-19 Pandemic - Tanker Foundation a Model Organization
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Thyagarajan N, Jinu Kumar R, Abdul Sukur H, Vetrichelvi G, Latha Kumaraswami, Samuel G, Marteen N, Umashankar, Geetha S, Georgi Abraham, Guganathan M, Jagadeeshwari C, Amirtharani R, and Giridharan G
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Coronavirus disease 2019 (COVID-19) ,Nursing ,business.industry ,medicine.medical_treatment ,Pandemic ,medicine ,Foundation (evidence) ,business ,medicine.disease ,Dialysis ,Kidney disease - Abstract
Tamilnad Kidney Research Foundation (TANKER Foundation) which was established in 1993 to support kidney disease related care to underprivileged people. It has now eleven dialysis units in the state of Tamilnadu, India. COVID-19 pandemic has put enormous challenges for the dialysis staff. Here we describe how we face the challenges from March 2020 till now without interrupting or closing down the dialysis units. The no of dialysis staff who have got infected are 21% which required only home quarantine and symptomatic remedies. Our experience can be emulated by other charity organization which provide kidney care.
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- 2021
10. Reprint of: Kidney health for everyone everywhere—from prevention to detection and equitable access to care
- Author
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Philip Kam-Tao Li, Guillermo Garcia-Garcia, Siu-Fai Lui, Sharon Andreoli, Winston Wing-Shing Fung, Anne Hradsky, Latha Kumaraswami, Vassilios Liakopoulos, Ziyoda Rakhimova, Gamal Saadi, Luisa Strani, Ifeoma Ulasi, Kamyar Kalantar-Zadeh, and Philip Kam Tao Li
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medicine.medical_specialty ,Nephrology ,business.industry ,Family medicine ,Reprint ,medicine ,business - Published
- 2020
11. Carga, acceso y disparidades en enfermedad renal
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Deidra C. Crews, Gamal Saadi, Aminu K. Bello, Sharon Andreoli, Latha Kumaraswami, Kamyar Kalantar-Zadeh, Guillermo Garcia-Garcia, Charles Kernahan, Luisa Strani, and Philip Kam-Tao Li
- Subjects
Pediatrics ,medicine.medical_specialty ,Nephrology ,business.industry ,Hypertension complications ,Cost of illness ,MEDLINE ,Medicine ,business ,Health policy - Published
- 2020
12. Reprint of: Burden, access, and disparities in kidney disease
- Author
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Deidra C. Crews, Aminu K. Bello, Gamal Saadi, Philip Kam Tao Li, Guillermo Garcia-Garcia, Sharon Andreoli, Deidra Crews, Kamyar Kalantar-Zadeh, Charles Kernahan, Latha Kumaraswami, and Luisa Strani
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medicine.medical_specialty ,business.industry ,Reprint ,Acute kidney injury ,medicine.disease ,Health equity ,End stage renal disease ,Nephrology ,Global health ,Medicine ,Social determinants of health ,business ,Intensive care medicine ,Kidney disease - Published
- 2019
13. Burden, access and disparities in kidney disease
- Author
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Kamyar Kalantar-Zadeh, Guillermo Garcia-Garcia, Luisa Strani, Philip Kam-Tao Li, Deidra C. Crews, Gamal Saadi, Aminu K. Bello, Charles Kernahan, Latha Kumaraswami, and Sharon Andreoli
- Subjects
History ,medicine.medical_treatment ,Endocrinology, Diabetes and Metabolism ,Universal design ,8.1 Organisation and delivery of services ,030230 surgery ,lcsh:RC870-923 ,Global Health ,Biochemistry ,Health Services Accessibility ,Global Burden of Disease ,Race (biology) ,0302 clinical medicine ,Health care ,Medicine ,Health Workforce ,General Pharmacology, Toxicology and Pharmaceutics ,Policy Making ,lcsh:QH301-705.5 ,end-stage renal disease ,lesión renal aguda ,Health Policy ,Acute kidney injury ,General Medicine ,Health Services ,Prognosis ,Health equity ,Renal Replacement Therapy ,Psychiatry and Mental health ,Editorial ,Nephrology ,030220 oncology & carcinogenesis ,Workforce ,Public Health ,lcsh:Medicine (General) ,Family Practice ,medicine.medical_specialty ,Immunology ,Renal and urogenital ,Biophysics ,Developing country ,Ocean Engineering ,Public Policy ,Minor (academic) ,Dialysis patients ,Risk Assessment ,End stage renal disease ,03 medical and health sciences ,Clinical Research ,Humans ,Renal Insufficiency, Chronic ,Intensive care medicine ,Developing Countries ,Socioeconomic status ,Prevention ,Public health ,lcsh:R ,lcsh:Diseases of the genitourinary system. Urology ,medicine.disease ,030104 developmental biology ,World Kidney Day Steering Committee ,Surgery ,Morbidity ,Gerontology ,0301 basic medicine ,Kidney Disease ,Physiology ,030232 urology & nephrology ,Ethnic group ,lcsh:Medicine ,030204 cardiovascular system & hematology ,Medical and Health Sciences ,Social determinants of health ,Cost of Illness ,World Kidney Day ,Universal Health Insurance ,Risk Factors ,Global health ,030212 general & internal medicine ,lcsh:R5-920 ,Kidney ,determinantes sociales de la salud ,Health Care Rationing ,Health Equity ,General Neuroscience ,Kidney donation ,Health Care Costs ,Hematology ,Acute Kidney Injury ,Quality Improvement ,Spelling ,medicine.anatomical_structure ,Neuropsychology and Physiological Psychology ,social determinants of health ,enfermedad renal crónica terminal ,Kidney Diseases ,equidad en salud ,Health and social care services research ,Urology ,MEDLINE ,salud global ,World Kidney Day 2019: Editorial ,Special Article ,Environmental health ,Internal medicine ,Development economics ,parasitic diseases ,Internal Medicine ,Urology, Nephrology ,Renal replacement therapy ,acute kidney injury ,end stage renal disease ,global health ,health equity ,Healthcare Disparities ,Sustainable development ,Transplantation ,Neurology & Neurosurgery ,urogenital system ,business.industry ,Developed Countries ,Cell Biology ,Targeted interventions ,Health Status Disparities ,Patient Care Management ,Good Health and Well Being ,lcsh:Biology (General) ,Socioeconomic Factors ,Family medicine ,Pediatrics, Perinatology and Child Health ,Residence ,Patient Care ,business ,Delivery of Health Care ,Kidney disease - Abstract
For the World Kidney Day Steering Committee Kidney disease is a global public health problem that affects more than 750 million persons worldwide. The burden of kidney disease varies substantially across the world, as does its detection and treatment. Although the magnitude and impact of kidney disease is better defined in developed countries, emerging evidence suggests that developing countries have a similar or even greater kidney disease burden. In many settings, rates of kidney disease and the provision of its care are defined by socioeconomic, cultural, and political factors, leading to significant disparities in disease burden, even in developed countries. These disparities exist across the spectrum of kidney disease - from preventive efforts to curb development of acute kidney injury or chronic kidney disease, to screening for kidney disease among persons at high risk, to access to subspecialty care and treatment of kidney failure with renal replacement therapy. World Kidney Day 2019 offers an opportunity to raise awareness of kidney disease and highlight disparities in its burden and current state of global capacity for prevention and management. In this editorial, we highlight these disparities and emphasize the role of public policies and organizational structures in addressing them. We outline opportunities to improve our understanding of disparities in kidney disease, the best ways for them to be addressed, and how to streamline efforts toward achieving kidney health equity across the globe.Для Организационного комитета Всемирного дня почки Заболевания почек - глобальная проблема общественного здравоохранения, затрагивающая более 750 млн человек во всем мире Распространенность заболеваний почек, а также их диагностика и лечение в разных странах существенно различаются. Значение и последствия заболеваний почек наиболее хорошо изучены в развитых странах, но в последнее время появляется все больше данных, свидетельствующих об аналогичной и даже более высокой распространенности заболеваний почек и в развивающихся странах. Во многих ситуациях частота заболеваний почек и обеспечение медицинской помощью определяются социально - экономическими, культурными и политическими факторами, что даже в развитых странах приводит к существенным различиям наносимого болезнью ущерба. Эти различия наблюдаются на разных этапах оказания помощи при заболеваниях болезнях почек: от профилактических мероприятий, направленных на предотвращение развития острого повреждения почек и хронической болезни почек, до скрининга на наличие болезни почек у лиц с высоким риском заболевания и доступа к специализированной медицинской помощи и проведению заместительной почечной терапии для лечения почечной недостаточности. Всемирный день почки - 2019 дает возможность повысить осведомленность о заболеваниях почек, а также осветить несоответствия между причиняемым ими ущербом и потенциальными возможностями их профилактики и лечения. В публикуемой передовой статье мы хотим заострить внимание на этих несоответствиях и подчеркиваем роль общественной политики и организационных структур в их устранении. Мы намечаем пути улучшения понимания этих различий, определяем основные подходы к достижению этого понимания, а также возможности оптимизации усилий для обеспечения равенства в вопросах поддержания здоровья почек во всем мире. Данная статья опубликована в журнале «Kidney International» и одновременно перепечатана в нескольких журналах. Эти публикации включают идентичные понятия и формулировки, но немного различаются по стилю и орфографии, мелким подробностям и объему рукописи в зависимости от стиля каждого журнала. Любая из этих версий может быть использована при цитировании данной статьи. Все авторы внесли равный вклад в концепцию, подготовку и редактирование рукописи. Авторы благодарят Рабочую группу по разработке Global Kidney Health Atlas, M. Lunney и M.A. Osman. Приложение Члены Организационного комитета Всемирного дня почки: Филипп Кам Тао Ли (Philip Kam Tao Li), Гильермо Гарсиа-Гарсиа (Guillermo Garcia-Garcia), Шэрон Андреоли (Sharon Andreoli), Дейдра Крю (Deidra Crews), Камьяр Калантар-Заде (Kamyar Kalantar-Zadeh), Чарльз Кернан (Charles Kernahan), Лата Кумарасвами (Latha Kumaraswami), Гамаль Саади (Gamal Saadi) и Луиза Страни (Luisa Strani). Перевод с английского Е.С. Камышовой и И.Н. Бобковой под редакцией Е.В. Захаровой. Перевод осуществлен по инициативе Российского диализного общества и одобрен Организационным комитетом Всемирного дня почки.
- Published
- 2019
14. Living well with kidney disease by patient and care partner empowerment: kidney health for everyone everywhere
- Author
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Kamyar Kalantar-Zadeh, Philip Kam-Tao Li, Ekamol Tantisattamo, Latha Kumaraswami, Vassilios Liakopoulos, Siu-Fai Lui, Ifeoma Ulasi, Sharon Andreoli, Alessandro Balducci, Sophie Dupuis, Tess Harris, Anne Hradsky, Richard Knight, Sajay Kumar, Maggie Ng, Alice Poidevin, Gamal Saadi, Allison Tong, and Philip Kam Tao Li
- Subjects
Kidney Disease ,030232 urology & nephrology ,Medicine (miscellaneous) ,030230 surgery ,030204 cardiovascular system & hematology ,low-middle-income countries ,Kidney ,Health Services Accessibility ,0302 clinical medicine ,7.1 Individual care needs ,Pandemic ,Medicine ,030212 general & internal medicine ,Empowerment ,media_common ,Nutrition and Dietetics ,Outcome measures ,health policy ,Psychiatry and Mental health ,Editorial ,Neuropsychology and Physiological Psychology ,medicine.anatomical_structure ,Caregivers ,Nephrology ,Kidney Diseases ,030211 gastroenterology & hepatology ,Tertiary Prevention ,care partner ,medicine.medical_specialty ,2019-20 coronavirus outbreak ,Coronavirus disease 2019 (COVID-19) ,Patient Empowerment ,Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) ,media_common.quotation_subject ,Renal and urogenital ,MEDLINE ,Quality care ,Developing country ,Early detection ,Health Promotion ,03 medical and health sciences ,Nursing ,Clinical Research ,Humans ,Renal Insufficiency, Chronic ,AcademicSubjects/MED00340 ,Intensive care medicine ,Editorial Comments ,Health policy ,Transplantation ,business.industry ,Prevention ,COVID-19 ,medicine.disease ,patient empowerment ,Coronavirus ,Early Diagnosis ,Good Health and Well Being ,Family medicine ,World Kidney Day Steering Committee ,Management of diseases and conditions ,Generic health relevance ,Patient Participation ,business ,Kidney disease - Abstract
Living with chronic kidney disease (CKD) is associated with hardships for patients and their care partners. Empowering patients and their care partners, including family members or friends involved in their care, may help minimize the burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including an emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of ‘Living Well with Kidney Disease’ in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labeling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with a prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals and policymakers, applicable to both developed and developing countries.
- Published
- 2020
15. Viver bem com doença renal através da capacitação do paciente e do cuidador: saúde dos rins para todos em todos os lugares
- Author
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Kamyar Kalantar-Zadeh, Philip Kam-Tao Li, Ekamol Tantisattamo, Latha Kumaraswami, Vassilios Liakopoulos, Siu-Fai Lui, Ifeoma Ulasi, Sharon Andreoli, Alessandro Balducci, Sophie Dupuis, Tess Harris, Anne Hradsky, Richard Knight, Sajay Kumar, Maggie Ng, Alice Poidevin, Gamal Saadi, Allison Tong, and Philip Kam Tao Li
- Subjects
Health Knowledge, Attitudes, Practice ,Medicine (General) ,Patient empowerment, care-partner, low-middle-income countries, health policy ,lcsh:RC870-923 ,low-middle-income countries ,Biochemistry ,Low-middle-income countries ,Health Services Accessibility ,0302 clinical medicine ,7.1 Individual care needs ,Integrated ,Adaptation, Psychological ,General Pharmacology, Toxicology and Pharmaceutics ,Biology (General) ,Chronic ,media_common ,Practice ,Health Knowledge ,care-partner ,health policy ,Cuidadores ,General Medicine ,Urology & Nephrology ,política sanitaria ,middle-income countries ,Editorial ,Special situations and conditions ,Nephrology ,030220 oncology & carcinogenesis ,Medicine ,del paciente ,cuidadores ,países de ingresosmediosbajos ,0305 other medical science ,Attitude to Health ,medicine.medical_specialty ,World Kidney Day 2021: Editorial ,RD1-811 ,QH301-705.5 ,Patient Empowerment ,media_common.quotation_subject ,Immunology ,Clinical Sciences ,Biophysics ,Renal and urogenital ,Quality care ,Early detection ,Developing country ,Ocean Engineering ,Patient Advocacy ,Health Promotion ,03 medical and health sciences ,R5-920 ,Participação do Paciente ,Clinical Research ,Physiology (medical) ,Humans ,low middle income countries ,Patient empowerment ,Family ,Adaptation ,Renal Insufficiency, Chronic ,Special Report ,Poverty ,Developing Countries ,Health policy ,Quality of Health Care ,Advanced and Specialized Nursing ,Health Priorities ,Prevention ,lcsh:Diseases of the genitourinary system. Urology ,medicine.disease ,Coronavirus ,030104 developmental biology ,Early Diagnosis ,Health promotion ,Attitudes ,Kidney Failure, Chronic ,World Kidney Day Steering Committee ,Psychological ,Surgery ,Management of diseases and conditions ,Generic health relevance ,0301 basic medicine ,Kidney Disease ,Physiology ,Países em Desenvolvimento ,030232 urology & nephrology ,Medicine (miscellaneous) ,Care-partner ,030204 cardiovascular system & hematology ,Kidney ,Medical and Health Sciences ,Cost of Illness ,World Kidney Day ,Pandemic ,030212 general & internal medicine ,Renal Insufficiency ,Empowerment ,Nutrition and Dietetics ,Delivery of Health Care, Integrated ,General Neuroscience ,030503 health policy & services ,RC952-1245 ,Patient Preference ,medicine.anatomical_structure ,Caregivers ,Kidney Diseases ,Low–middle-income countries ,Tertiary Prevention ,care partner ,MEDLINE ,Care partner. Health policy. Low- to middle-income countries. Patient empowerment ,Día Mundial del Riñón ,Política de Saúde ,Special Article ,Patient Education as Topic ,Internal medicine ,Behavioral and Social Science ,Internal Medicine ,medicine ,patient empowerment, care-partner, low-middle-income countries, health policy ,Patient participation ,Family Health ,Transplantation ,Neurology & Neurosurgery ,business.industry ,COVID-19 ,Cell Biology ,RC31-1245 ,patient empowerment ,Care partner ,Diseases of the genitourinary system. Urology ,Low– ,Good Health and Well Being ,nephrology ,transplantation ,psychosocial ,low- to middle-income countries ,Family medicine ,Pediatrics, Perinatology and Child Health ,Quality of Life ,RC870-923 ,Power, Psychological ,Patient Participation ,business ,Delivery of Health Care ,Kidney disease - Abstract
Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of "Living Well with Kidney Disease" in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labeling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policy makers, applicable to both developed and developing countries.Vivre avec l’insuffisance rénale chronique (IRC) représente un fardeau pour les patients et leurs partenaires soignants, dont leurs familles et amis. Une façon d’alléger ce fardeau et de réduire les conséquences des symptômes de l’IRC sur la participation à la vie serait de favoriser une plus grande autonomie des patients et de leurs partenaires soignants. Pour ce faire, l’accent mis sur le bien vivre avec la maladie et sur la participation à la vie doit être élargi en privilégiant notamment de mettre les patients en contrôle. Pour accroître l’éducation et la sensibilisation sur la responsabilisation des patients et, ultimement, encourager leur participation à la vie, le Comité directeur bipartite de la Journée Mondiale du Rein (JMR) a déclaré 2021 l’année du « bien vivre avec une maladie rénale ». Une stratégie qui nécessite l’élaboration et la mise en œuvre de mesures validées des résultats signalés par le patient afin d’aborder la participation à la vie dans les soins courants. Cette stratégie pourrait être appuyée par les organismes de réglementation comme mesure de qualité des soins ou pour appuyer les demandes relatives à l’étiquetage des médicaments et des dispositifs. Les organismes subventionnaires pourraient quant à eux établir des appels d’offres à objectifs de recherche définis afin de répondre aux priorités des patients. Les patients et leurs partenaires soignants devraient se sentir soutenus, même en contexte de pandémie, par des efforts concertés des communautés de soins en santé rénale. Dans le cadre du program de bien-être global destiné aux patients atteints d’une néphropathie, il convient de réitérer la prévention. À la suite de programs efficaces de prévention secondaire et tertiaire, il convient également de promouvoir une détection précoce avec une évolution prolongée du bien-être malgré une maladie rénale. La JMR 2021 continue d’appeler à une plus grande sensibilisation des populations, des professionnels et des décideurs quant à l’importance de mesures préventives applicables tant dans les pays développés que dans les pays en développement.
- Published
- 2020
16. Correction to: Living Well with Kidney Disease by patient and care-partner empowerment: Kidney Health for Everyone Everywhere
- Author
-
Kamyar Kalantar-Zadeh, Ifeoma Ulasi, Sophie Dupuis, Philip Kam-Tao Li, Siu-Fai Lui, Allison Tong, Ekamol Tantisattamo, Sajay Kumar, Alessandro Balducci, Anne Hradsky, Vassilios Liakopoulos, Tess Harris, Alice Poidevin, Richard J. Knight, Sharon P. Andreoli, Gamal Saadi, Latha Kumaraswami, and Maggie C.Y. Ng
- Subjects
Nephrology ,Kidney ,medicine.medical_specialty ,business.industry ,media_common.quotation_subject ,Correction ,Health Promotion ,medicine.disease ,Health Services Accessibility ,medicine.anatomical_structure ,Early Diagnosis ,Internal medicine ,Family medicine ,medicine ,Humans ,Renal Insufficiency, Chronic ,Empowerment ,business ,Kidney disease ,media_common - Abstract
Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize the burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including an emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of "Living Well with Kidney Disease" in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labeling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with a prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policy makers, applicable to both developed and developing countries.
- Published
- 2021
17. Salud renal para todos en todas partes - desde la prevención hasta la detección y el acceso equitativo a la atención
- Author
-
Philip Kam-Tao Li, Ifeoma Ulasi, Siu-Fai Lui, Anne Hradsky, Guillermo Garcia-Garcia, Kamyar Kalantar-Zadeh, Gamal Saadi, Sharon Andreoli, Winston Wing-Shing Fung, Luisa Strani, Ziyoda Rakhimova, Latha Kumaraswami, and Vassilios Liakopoulos
- Published
- 2020
18. The impact of kidney foundations in alleviating the burden of CKD in India – an example, Tamilnad Kidney Research Foundation
- Author
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Madhusudan Vijayan, Georgi Abraham, Latha Kumaraswami, Malathy Venkatesan, and Rajalakshmi Ravi
- Subjects
0301 basic medicine ,Nephrology ,medicine.medical_specialty ,Biomedical Research ,medicine.medical_treatment ,030232 urology & nephrology ,India ,Health Promotion ,urologic and male genital diseases ,Vulnerable Populations ,03 medical and health sciences ,0302 clinical medicine ,Cost of Illness ,Renal Dialysis ,Internal medicine ,Epidemiology ,medicine ,Humans ,Mass Screening ,Registries ,Renal replacement therapy ,Renal Insufficiency, Chronic ,Developing Countries ,Dialysis ,Health Services Needs and Demand ,Health economics ,business.industry ,Public health ,General Medicine ,medicine.disease ,Renal Replacement Therapy ,Early Diagnosis ,030104 developmental biology ,Family medicine ,Public Health ,Rural area ,business ,Foundations ,Kidney disease - Abstract
Chronic kidney disease (CKD) is a major public health problem in India. The CKD registry of India has been formed to understand the epidemiology of CKD in India. Due to health economics in India, the majority of CKD-affected patients cannot afford renal replacement therapy (RRT) services. There is an unmet need to improve the awareness of kidney disease in India, and the focus should be on prevention and early detection of CKD by screening high risk populations. The Tamilnad Kidney Research (TANKER) Foundation is a charitable trust established in 1993 with the aim to improve awareness and provide quality affordable treatment to underprivileged patients. TANKER is supported by contributions from well-wishers. It has three arms: i) treatment arm, ii) research arm, and iii) awareness and screening arm. TANKER Foundation offers free and subsidized dialysis twice weekly to 227 underprivileged patients. TANKER dialysis has been supported by state government funding schemes. TANKER actively supports and conducts research in nephrology. More than 100,000 people have benefitted from TANKER's kidney awareness programs. The screening programs have provided for early detection of CKD in both urban and rural areas. TANKER award functions are held annually to recognize research and exemplary service to society. The TANKER Foundation can be used as a model for developing countries to address the unmet needs in CKD management.
- Published
- 2016
19. Burden, Access, and Disparities in Kidney Disease
- Author
-
Deidra C. Crews, Aminu K. Bello, Gamal Saadi, Philip Kam Tao Li, Guillermo Garcia-Garcia, Sharon Andreoli, Deidra Crews, Kamyar Kalantar-Zadeh, Charles Kernahan, Latha Kumaraswami, and Luisa Strani
- Subjects
Kidney ,medicine.medical_specialty ,business.industry ,Steering committee ,General surgery ,030232 urology & nephrology ,Review ,030204 cardiovascular system & hematology ,medicine.disease ,03 medical and health sciences ,0302 clinical medicine ,medicine.anatomical_structure ,Nephrology ,medicine ,business ,Kidney disease - Abstract
Author(s): Crews, Deidra C; Bello, Aminu K; Saadi, Gamal; World Kidney Day Steering Committee
- Published
- 2019
20. Burden, access, and disparities in kidney disease
- Author
-
Deidra C. Crews, Aminu K. Bello, Gamal Saadi, Philip Kam Tao Li, Guillermo Garcia-Garcia, Sharon Andreoli, Deidra Crews, Kamyar Kalantar-Zadeh, Charles Kernahan, Latha Kumaraswami, and Luisa Strani
- Subjects
Nephrology ,medicine.medical_specialty ,Health Personnel ,lcsh:RC870-923 ,Risk Assessment ,Vulnerable Populations ,Health Services Accessibility ,End stage renal disease ,Global Burden of Disease ,Cost of Illness ,Renal Dialysis ,Risk Factors ,Internal medicine ,medicine ,Global health ,Humans ,Diabetic Nephropathies ,Social determinants of health ,Healthcare Disparities ,Intensive care medicine ,Developing Countries ,urogenital system ,business.industry ,Public health ,Developed Countries ,Health Policy ,Acute kidney injury ,Health Status Disparities ,Acute Kidney Injury ,medicine.disease ,lcsh:Diseases of the genitourinary system. Urology ,Health equity ,Socioeconomic Factors ,Hypertension ,Workforce ,Kidney Diseases ,business ,Kidney disease - Abstract
Kidney disease is a global public health problem, affecting over 750 million persons worldwide. The burden of kidney disease varies substantially across the world, as does its detection and treatment. In many settings, rates of kidney disease and the provision of its care are defined by socio-economic, cultural, and political factors leading to significant disparities. World Kidney Day 2019 offers an opportunity to raise awareness of kidney disease and highlight disparities in its burden and current state of global capacity for prevention and management. Here, we highlight that many countries still lack access to basic diagnostics, a trained nephrology workforce, universal access to primary health care, and renal replacement therapies. We point to the need for strengthening basic infrastructure for kidney care services for early detection and management of acute kidney injury and chronic kidney disease across all countries and advocate for more pragmatic approaches to providing renal replacement therapies. Achieving universal health coverage worldwide by 2030 is one of the World Health Organization's Sustainable Development Goals. While universal health coverage may not include all elements of kidney care in all countries, understanding what is feasible and important for a country or region with a focus on reducing the burden and consequences of kidney disease would be an important step toward achieving kidney health equity.
- Published
- 2018
21. Women and kidney disease: reflections on World Kidney Day 2018
- Author
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Giorgina B. Piccoli, Mona Alrukhaimi, Zhi-Hong Liu, Elena Zakharova, Adeera Levin, Philip Kam Tao Li, Guillermo Garcia-Garcia, Mohammed Benghanem-Gharbi, Kamyar Kalantar-Zadeh, Charles Kernahan, Latha Kumaraswami, Giorgina Barbara Piccoli, Gamal Saadi, Louise Fox, and Sharon Andreoli
- Subjects
medicine.medical_specialty ,Steering committee ,030232 urology & nephrology ,Health Promotion ,Global Health ,03 medical and health sciences ,0302 clinical medicine ,Sex Factors ,Risk Factors ,medicine ,Humans ,030212 general & internal medicine ,Healthcare Disparities ,Renal Insufficiency, Chronic ,Kidney ,business.industry ,General surgery ,Health Status Disparities ,medicine.disease ,Prognosis ,medicine.anatomical_structure ,Nephrology ,Women's Health ,women health world kidney day ,Female ,business ,Kidney disease - Abstract
Author(s): Piccoli, Giorgina B; Alrukhaimi, Mona; Liu, Zhi-Hong; Zakharova, Elena; Levin, Adeera; World Kidney Day Steering Committee
- Published
- 2017
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