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5. Exploring changes in distress among individuals with bleeding disorders: What is linked to improvements in distress?

Author

Barry, Vaughn, Lynch, Mary Ellen, Tran, Duc Q, Antun, Ana, DeBalsi, Anthony, Hicks, Denise, Lasseter, Francie, Mattis, Shanna, Ribeiro, Maria JA, Stein, Sidney F, and Kempton, Christine L

Subjects
PREVENTION of psychological stress, BLOOD coagulation disorders, CHRONIC diseases, CLINICAL health psychology, MENTAL depression, QUALITY of life, RACE, PSYCHOLOGICAL stress, PHYSICAL activity, DESCRIPTIVE statistics
Abstract

Adults with chronic bleeding disorders report high distress, but it is unclear how distress varies over time. Patients rated their distress on a 10-point scale at two clinic visits. Of 83 patients, roughly one-quarter reported consistent no/low distress (29%), one-quarter reported consistent distress (22%), and half (49%) reported a change in distress of at least two points. Overall activity levels, depressive symptoms, and non-White race were significantly associated with worsening and consistent distress in adjusted analyses while improvements in activity levels and depressive symptoms during the study period were associated with distress improvement. Our results suggest that distress is modifiable. [ABSTRACT FROM AUTHOR]

Published
2019
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