Search

Aim The aim was to investigate patients' experiences of being prepared for the development of a parastomal bulge in relation to a stoma. Methods The paper draws on a qualitative interview study conducted with 20 Danish patients participating in five focus groups. Analysis was performed using a phenomenological-hermeneutic approach. Results We identified three themes. The first theme is ‘The unforeseen bulge gives rise to increasing concern and a search for an explanation’. Patients searched for explanations in their own life and suspected that their behaviour or previous illness induced the bulge. The second theme is ‘Missing or confusing information leads to counterproductive behaviour’. Patients lacked information on the prevention and treatment of parastomal bulging which led to disappointment with healthcare professionals. The third theme is ‘Weighing the pros and cons of life with the bulge against the gamble of surgical repair’. Some patients came to terms with their situation, but for others a deadlocked situation arose when surgical repair was not an option. Conclusion Healthcare communication directly impacts on patients' experiences and outcomes. When unprepared for the emergence of a parastomal bulge, patients' emotional and psychological well-being are affected and likewise patients' possibility of using their own health beliefs as a preventive strategy. To preserve patient autonomy, satisfaction and well-being, surgeons and stoma nurses should provide patients with tailored information bearing in mind the current lack of clear evidence on the prevention and treatment of parastomal bulging., Aim: The aim was to investigate patients' experiences of being prepared for the development of a parastomal bulge in relation to a stoma. Methods: The paper draws on a qualitative interview study conducted with 20 Danish patients participating in five focus groups. Analysis was performed using a phenomenological-hermeneutic approach. Results: We identified three themes. The first theme is ‘The unforeseen bulge gives rise to increasing concern and a search for an explanation’. Patients searched for explanations in their own life and suspected that their behaviour or previous illness induced the bulge. The second theme is ‘Missing or confusing information leads to counterproductive behaviour’. Patients lacked information on the prevention and treatment of parastomal bulging which led to disappointment with healthcare professionals. The third theme is ‘Weighing the pros and cons of life with the bulge against the gamble of surgical repair’. Some patients came to terms with their situation, but for others a deadlocked situation arose when surgical repair was not an option. Conclusion: Healthcare communication directly impacts on patients' experiences and outcomes. When unprepared for the emergence of a parastomal bulge, patients' emotional and psychological well-being are affected and likewise patients' possibility of using their own health beliefs as a preventive strategy. To preserve patient autonomy, satisfaction and well-being, surgeons and stoma nurses should provide patients with tailored information bearing in mind the current lack of clear evidence on the prevention and treatment of parastomal bulging.

Incisionalhernier og parastomalhernier er hernier, der er udviklet i en cikatrice efter abdominal kirurgi eller omkring en stomi. Incisionalhernier er med en incidens på 11-30% en af de hyppigste langtidskomplikationer efter abdominal kirurgi. Parastomalhernier udvikles hos op til 50% af patienter med stomi. Der foretages knap 500 incisional- og parastomalhernieoperationer i Danmark om året

Introduction Fluid balance monitoring is pivotal to patients' health. Thus, fluid balance charting is an essential part of clinical nursing documentation. This systematic review aimed to investigate and describe the quality of fluid balance monitoring in medical, surgical and intensive care units, with an emphasis on the completeness of charting data, calculation errors and accuracy, and to evaluate methods used to improve fluid balance charting. Materials and methods Quantitative studies involving adult patients and reporting data on fluid balance monitoring were included in the review. We searched MEDLINE, Embase, CINAHL and the Cochrane Library. The risk of bias in the included studies was assessed using tools developed by the Joanna Briggs Institute. Results We included a total of 23 studies, which involved 6649 participants. The studies were quasi-experimental, cohort or prevalence studies, and every third study was of low quality. Definitions of 'completeness' varied, as well as patient categories and time of evaluation. Eighteen studies reported the prevalence of patients with complete fluid balance charts; of those, 10 reported that not more than 50% of fluid balance charts were complete. Studies addressing calculation errors found them in 25%-35% of charts, including omissions of, for example, intravenous medications. The reported interventions consisted of various components such as policies, education, equipment, visual aids, surveillance and dissemination of results. Among studies evaluating interventions, only 38% (5 of 13) achieved compliance with at least 75% of complete fluid balance charts. Due to the heterogeneity of the studies, a meta-analysis was not possible. Conclusion The quality of fluid balance charting is inadequate in most studies, and calculation errors influence quality. Interventions included several components, and the impact on the completion of fluid balance charts varied.

Purpose: Abdominal exercises are being advocated after stoma surgery and investigated in clinical research. Little is known about the patients' perspective of doing abdominal exercises in the first three months after getting a stoma. The aim of this study was to explore patients’ experiences with and attitudes toward abdominal exercises after stoma surgery. Materials and methods: Patients with a new ileostomy or colostomy were invited to participate in an interview after having performed a set of abdominal exercises one time as part of a preceding study. Semi-structured interviews were conducted at inpatient wards and outpatient clinics at two hospitals. Audio recordings were transcribed to text verbatim and analyzed with inductive content analysis. Results: Analysis of 14 interviews resulted in four categories: “The attitude toward abdominal exercises is positive”; “Treatment and illness form barriers to abdominal exercises”; “Wish for help with abdominal exercises after stoma surgery”; and “Abdominal exercises are experienced as being easy”. Conclusions: Participants with a new stoma wished for guidance in abdominal exercises. Health professionals should be aware of potential barriers to participation in abdominal exercise in patients with a stoma. Abdominal exercises were easy to perform with a stoma in a supervised setting.Implications for rehabilitation Participants were positive toward abdominal exercises, and the stoma was rarely in the way. Help and guidance with abdominal exercises is important after stoma surgery. Health professionals should consider possible barriers and concerns to exercise.

Objectives: In the current study, we aimed to explore the experiences and attitudes among healthcare professionals as they transitioned from their familiar disciplines to respiratory medicine, intensive care or other departments during the first wave of the COVID-19 pandemic. Background: In preparation for the increasing number of patients suspected of having or who would be severely ill from COVID-19, a major reconstruction of the Danish Healthcare System was initiated. The capacity of the healthcare system to respond to the unprecedented situation was dependent on healthcare professionals’ willingness and ability to engage in these new circumstances. For some, this may have resulted in uncertainty, anxiety and fear. Design: The study was a descriptive study using semi-structured focus group interviews. Healthcare professionals (n = 62) from seven departments were included, and 11 focus group interviews were conducted. The focus group interviews took place during June 2020. Analyses was conducted using thematic analysis. The current study was reported using the consolidated criteria for reporting Qualitative research (COREQ). Results: Healthcare professionals experiences was described by five themes: 1) Voluntary involvement, 2) Changes within the organisation, 3) Risks, 4) Professional identity and 5) Personal investment. Common to all five themes was the feeling of being on a pendulum from a meaningful experience to an experience of mental overload, when situations and decisions no longer seemed to be worthwhile. Conclusions: Healthcare professionals experienced a pendulum between a meaningful experience and one of mental overload during the COVID-19 pandemic. The swinging was conditioned by the prevailing context and was unavoidable. Relevance to clinical practice. To balance the continuous pendulum swing, leaders must consider involvement, and to be supportive and appreciative in their leader style. This is consistent with a person-centred leadership that fa

Objective: To investigate stoma specific and generic HRQoL in patients with and without a parastomal bulge.Background: Most patients have to live with their stoma complicated by a parastomal bulge. How this affects quality of life remains unclear.Methods: Patients in the Danish Stoma Database completed the Short-form 36 health survey and the stoma-QOL questionnaire. Linear regression analysis, adjusted for potential confounding factors, provided mean and mean score differences and 95% confidence intervals for each HRQoL scale and item. Cohens d provided estimates of effect size.Results: A total of 1265 patients (65%) completed the questionnaire 4.4 (interquartile range 3.1 6.0) years after stoma surgery. Of these. 693 (55%) patients with a parastomal bulge had significantly impaired (P < 0.01) HRQoL across all stoma specific and generic health domains compared to patients without a parastomal bulge. In patients with a benign diagnosis or an ileostomy, a parastomal bulge impacted significantly on Social Functioning and Mental Health resulting in a worse Mental Component Summary. A large bulge >10cm impaired HRQoL (P < 0.01) across all stoma specific and generic domains. The impact on HRQoL was independent of time with the bulge.Conclusions: A novel finding in this large, unselected sample from high-quality regional registries was that parastomal bulging was associated with substantial and sustained impairment of HRQoL.

AIMS AND OBJECTIVES: To investigate experienced symptoms of parastomal bulging in relation to an ileostomy or colostomy.BACKGROUND: Parastomal bulging is a common complication of stoma formation that can affect patients' physical, psychological and social function. Symptom burdens reported by health professionals vary from asymptomatic to high symptom load; however, patients' experiences of symptoms are lacking.DESIGN AND METHOD: A qualitative design with focus group interviews was chosen for data collection. Twenty patients participated in five semi-structured interviews. Analysis was performed using a phenomenological-hermeneutic approach.FINDINGS: The bulge caused different unfamiliar bodily sensations that interacted with patients' everyday lives. Some but not all of these sensations were modifiable. As the bulge and the ostomy changed size and shape, patients had to adjust and readjust stoma care continuously. The physical change called for patients' awareness and posed a threat to patients' control of the ostomy and challenged stoma self-care. The bulge caused a bodily asymmetry that deformed the patients' bodies in a way that exceeded the perceived alteration already caused by the stoma. To cover the physical disfigurement, new clothing solutions, garment wear and creativity were essential in everyday life. Patients gradually adapted to the bulge over time. Easy access to professional help was crucial in order to find the best appliance and garment solution in relation to the bulge.CONCLUSIONS: Various symptoms related to the parastomal bulge affected patients' everyday lives in different ways and underpinned that an individualised approach is important when addressing patients' problems and complaints. Research into nonsurgical treatments and patient perspectives is limited and highly warranted to improve clinical outcome.RELEVANCE TO CLINICAL PRACTICE: The ever-changing bulge posed a threat to patients' control of the o