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Hemoglobin disorders (thalassemia and sickle cell disease) are a group of hereditary anemias that today occur across the world.The recent population movement has led to a steady increase of carriers and patients in all countries of the European Union.Requiring complex monitoring and treatment and, as a consequence, well-organized and nationally coordinated, supported and funded services, these lifelong conditions are now visible to healthcare services in the EU. The purpose of this study is to provide an overview of the current situation pertaining to these disorders, as perceived by the patient/parent community that the Thalassemia International Federation (TIF)represents. The aim is to establish a comprehensive understanding of the situation and unmet needs faced by migrants with thalassemia. The implementation of activities by TIF in 2018-2020 to identify and address these challenges, paves the way to increased awareness, education and policy changes building on international expertise and knowledge that will enable the provision of state-of-art clinical management services thus guaranteeing an improved quality of life. A bird's eye view of the prevalence of these disorders is presented contributing to the further understanding of challenges met by both patients and healthcare professionals in the receipt and provision of quality healthcare respectively.

The establishment of the Malinowski Forum for Ethnography and Anthropology in South Tyrol provides a good opportunity in the journal of Italy’s relevant academic association for a reconsideration of the current significance of ethnography, as initiated by Malinowski, for various scholarly fields in anthropology and beyond. One of these fields is historical anthropology and history in the broad sense of the term. This article seeks to explore how the Malinowskian legacy in ethnographic fieldwork may be usefully and productively activated and elaborated for historical fields and for historical anthropology. For this purpose, the first section will outline how Malinowski’s notion of an empirical field was open to all kinds of comparative interdisciplinary inquiries. Eventually, these also came to include history, despite Malinowski’s original well-known caveat in his time (Firth 2002). The second section will then elaborate the case example of maritime pilots as well as other cultural brokers with cosmopolitan expertise in the Indian Ocean, in order to demonstrate how ethnographic insights may support, enrich and complement historical data or, if these are absent, how they may become historically relevant indicators in their own right. A summary section points out that this leads to pioneering new tasks for anthropology., L’istituzione del Forum Malinowski per l’Etnografia e l’Antropologia in Sud Tirolo fornisce un’ottima opportunità alla rivista della principale associazione antropologica italiana per riconsiderare il significato dell’etnografia, così come intrapresa da Malinowski, in diversi campi di studio, in antropologia e oltre. Uno di questi campi è l’antropologia storica, e la storia stessa nel più ampio senso del termine. Questo articolo cerca di esplorare come l’eredità malinowskiana nel lavoro di campo etnografico potrebbe essere attivata ed elaborata in maniera utile e produttiva nei campi della storia e dell’antropologia storica. A questo scopo, la prima sezione del testo delinea come la nozione di un lavoro di campo empirico, sviluppata da Malinowski, fosse aperta a tutti i tipi d’indagine comparativa interdisciplinare. Alla fine, questi andranno a includere anche la storia, nonostante il risaputo ammonimento iniziale di Malinowski (Firth 2002). La seconda sezione entra nei dettagli del caso dei piloti marittimi e di altri mediatori culturali con esperienza cosmopolita nell’Oceano Indiano, al fine di dimostrare come le intuizioni etnografiche possano sostenere, arricchire e integrare i dati storici e, in assenza di questi, come possano diventare indicatori storicamente rilevanti a pieno diritto. Una sezione riassuntiva sottolinea come tutto ciò porti a nuovi compiti pionieristici per l’antropologia.

verf. und eingereicht von Eva Maria Knoll Zsfassung in engl. Sprache Wien, Univ. für Bodenkultur, Masterarb., 2013