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3 results on '"Klemens Karssen"'

1. Development of a patient decision aid for patients with breast cancer who consider immediate breast reconstruction after mastectomy

Author

Jacqueline A. ter Stege, Daniela B. Raphael, Hester S. A. Oldenburg, Martine A. vanHuizum, Frederieke H. vanDuijnhoven, Daniela E. E. Hahn, Regina The, Klemens Karssen, Eveline M. L. Corten, Irene S. Krabbe‐Timmerman, Menno Huikeshoven, Quinten (P. Q.) Ruhé, Nikola (A. N.) Kimmings, Wies Maarse, Kerry A. Sherman, Arjen J. Witkamp, Leonie A. E. Woerdeman, and Eveline M. A. Bleiker

Subjects
breast cancer, immediate breast reconstruction, information needs, patient decision aid, Medicine (General), R5-920, Public aspects of medicine, RA1-1270
Abstract

Abstract Purpose The aim of this study was to develop a patient decision aid (pDA) that could support patients with breast cancer (BC) in making an informed decision about breast reconstruction (BR) after mastectomy. Methods The development included four stages: (i) Establishment of a multidisciplinary team; (ii) Needs assessment consisting of semi‐structured interviews in patients and a survey among healthcare professionals (HCPs); (iii) Creation of content, design and technical system; and (iv) Acceptability and usability testing using a think‐aloud approach in patients and interviews among HCPs and representatives of the Dutch Breast Cancer Patient Organization. Results From the needs assessment, three themes were identified: Challenging period to make a decision, Diverse motivations for a personal decision and Information needed to make a decision about BR. HCPs valued the development of a pDA, especially to prepare patients for consultation. The pDA that was developed contained three parts: first, a consultation sheet for oncological breast surgeons to introduce the choice; second, an online tool including an overview of reconstructive options, the pros and cons of each option, information on the consequences of each option for daily life, exercises to clarify personal values and patient stories; and third, a summary sheet with patients’ values, preferences and questions to help inform and guide the discussion between the patient and her plastic surgeon. The pDA was perceived to be informative, helpful and easy to use by patients and HCPs. Conclusion Consistent with information needs, a pDA was developed to support patients with BC who consider immediate BR in making an informed decision together with their plastic surgeon. Patient or Public Contribution Patients participated in the needs assessment and in acceptability and usability testing.

Published
2022
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3. Development of a patient decision aid for patients with breast cancer who consider immediate breast reconstruction after mastectomy

Author

Martine A. van Huizum, Klemens Karssen, Quinten P Q Ruhé, Eveline M. A. Bleiker, Jacqueline A Ter Stege, Daniela E E Hahn, Eveline M L Corten, Nikola A N Kimmings, Hester S. A. Oldenburg, Daniela B Raphael, Kerry A. Sherman, Wies Maarse, Irene S Krabbe-Timmerman, Arjen J. Witkamp, Menno Huikeshoven, Frederieke van Duijnhoven, Leonie A. E. Woerdeman, Radiotherapie, RS: GROW - R3 - Innovative Cancer Diagnostics & Therapy, and Plastic and Reconstructive Surgery and Hand Surgery

Subjects
Medicine (General), INFORMATION, SATISFACTION, SURGERY, information needs, Mammaplasty, medicine.medical_treatment, Decision Making, education, Breast Neoplasms, Information needs, GOALS, STYLE, Decision Support Techniques, DELIVERY, R5-920, Breast cancer, breast cancer, SDG 3 - Good Health and Well-being, Nursing, QUALITY-OF-LIFE, patient decision aid, medicine, Humans, Decision-making, Mastectomy, COMPLICATIONS, Motivation, business.industry, Breast surgeons, Public Health, Environmental and Occupational Health, WOMEN, Usability, immediate breast reconstruction, EFFICACY, medicine.disease, EXPERIENCES, Needs assessment, Female, Public aspects of medicine, RA1-1270, business, Breast reconstruction
Abstract

Purpose: The aim of this study was to develop a patient decision aid (pDA) that could support patients with breast cancer (BC) in making an informed decision about breast reconstruction (BR) after mastectomy. Methods: The development included four stages: (i) Establishment of a multidisciplinary team; (ii) Needs assessment consisting of semi-structured interviews in patients and a survey among healthcare professionals (HCPs); (iii) Creation of content, design and technical system; and (iv) Acceptability and usability testing using a think-aloud approach in patients and interviews among HCPs and representatives of the Dutch Breast Cancer Patient Organization. Results: From the needs assessment, three themes were identified: Challenging period to make a decision, Diverse motivations for a personal decision and Information needed to make a decision about BR. HCPs valued the development of a pDA, especially to prepare patients for consultation. The pDA that was developed contained three parts: first, a consultation sheet for oncological breast surgeons to introduce the choice; second, an online tool including an overview of reconstructive options, the pros and cons of each option, information on the consequences of each option for daily life, exercises to clarify personal values and patient stories; and third, a summary sheet with patients’ values, preferences and questions to help inform and guide the discussion between the patient and her plastic surgeon. The pDA was perceived to be informative, helpful and easy to use by patients and HCPs. Conclusion: Consistent with information needs, a pDA was developed to support patients with BC who consider immediate BR in making an informed decision together with their plastic surgeon. Patient or Public Contribution: Patients participated in the needs assessment and in acceptability and usability testing.

Published
2021

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