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1. Definition, acronyms, nomenclature, and classification of angioedema (DANCE): AAAAI, ACAAI, ACARE, and APAAACI DANCE consensus

Author

Reshef, Avner, Buttgereit, Thomas, Betschel, Stephen D., Caballero, Teresa, Farkas, Henriette, Grumach, Anete S., Hide, Michihiro, Jindal, Ankur K., Longhurst, Hilary, Peter, Jonathan, Riedl, Marc A., Zhi, Yuxiang, Aberer, Werner, Abuzakouk, Mohamed, Al Farsi, Tariq, Al Sukaiti, Nashat, Al-Ahmad, Mona, Altrichter, Sabine, Aygören-Pürsün, Emel, Baeza, Maria Luisa, Bara, Noemi Anna, Bauer, Andrea, Bernstein, Jonathan A., Boccon-Gibod, Isabelle, Bonnekoh, Hanna, Bouillet, Laurence, Brzoza, Zenon, Bygum, Anette, Calderon, Oscar, de Albuquerque Campos, Regis, Campos Romero, Freya Helena, Cancian, Mauro, Chong-Neto, Herberto Jose, Christoff, George, Cimbollek, Stefan, Cohn, Danny M., Craig, Timothy, Danilycheva, Inna, Darlenski, Razvigor, Du-Thanh, Aurélie, Ensina, Luis Felipe, Fomina, Daria, Fonacier, Luz, Fukunaga, Atsushi, Gelincik, Asli, Giavina-Bianchi, Pedro, Godse, Kiran, Gompels, Mark, Goncalo, Margarida, Gotua, Maia, Guidos-Fogelbach, Guillermo, Guilarte, Mar, Kasperska-Zajac, Alicja, Katelaris, Constance H., Kinaciyan, Tamar, Kolkhir, Pavel, Kulthanan, Kanokvalai, Kurowski, Marcin, Latysheva, Elena, Lauerma, Antti, Launay, David, Lleonart, Ramon, Lumry, William, Malbran, Alejandro, Ali, Ramzy Mohammed, Nasr, Iman, Nieto-Martinez, Sandra, Parisi, Claudio, Pawankar, Ruby, Piñero-Saavedra, Macarena, Popov, Todor A., Porebski, Grzegorz, Prieto Garcia, Alicia, Pyatilova, Polina, Rudenko, Michael, Sekerel, Bulent Enis, Serpa, Faradiba Sarquis, Sheikh, Farrukh, Siebenhaar, Frank, Soria, Angèle, Staevska, Maria, Staubach, Petra, Stobiecki, Marcin, Thomsen, Simon Francis, Triggiani, Massimo, Valerieva, Anna, Valle, Solange, Van Dinh, Nguyen, Vera Ayala, Carolina Elisa, Zalewska-Janowska, Anna, Zanichelli, Andrea, Magerl, Markus, and Maurer, Marcus

Published
2024
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2. Patients With Chronic Spontaneous Urticaria Who Have Wheals, Angioedema, or Both, Differ Demographically, Clinically, and in Response to Treatment—Results From CURE

Author

Buttgereit, Thomas, Vera, Carolina, Aulenbacher, Felix, Church, Martin K., Hawro, Tomasz, Asero, Riccardo, Bauer, Andrea, Bizjak, Mojca, Bouillet, Laurence, Dissemond, Joachim, Fomina, Daria, Giménez-Arnau, Ana M., Grattan, Clive, Gregoriou, Stamatios, Kulthanan, Kanokvalai, Kasperska-Zajac, Alicja, Kocatürk, Emek, Makris, Michael, Kolkhir, Pavel, Weller, Karsten, Magerl, Markus, and Maurer, Marcus

Published
2023
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3. Urticaria exacerbations and adverse reactions in patients with chronic urticaria receiving COVID-19 vaccination: Results of the UCARE COVAC-CU study

Author

Kocatürk, Emek, Salameh, Pascale, Sarac, Esra, Vera Ayala, Carolina E., Thomsen, Simon Francis, Zuberbier, Torsten, Ensina, Luis Felipe, Popov, Todor A., van Doorn, Martijn B.A., Giménez-Arnau, Ana Maria, Asero, Riccardo, Criado, Paulo Ricardo, Aarestrup, Fernando M., AbdulHameed Ansari, Zainab, Al Abri, Salma, Al-Ahmad, Mona, Al Hinai, Bushra, Allenova, Anastasiia, Al-Nesf, Maryam, Altrichter, Sabine, Arnaout, Rand, Bartosińska, Joanna, Bauer, Andrea, Bernstein, Jonathan A., Bizjak, Mojca, Bonnekoh, Hanna, Bouillet, Laurence, Brzoza, Zenon, Calvalcanti Dela Bianca Melo, Ana Caroline, Campinhos, Fernanda L., Carne, Emily, Purayil, Saleema Cherichi, Cherrez-Ojeda, Ivan, Chong-Neto, Herberto Jose, Christoff, George, Conlon, Niall, Jardim Criado, Roberta Fachini, Cvenkel, Klara, Damadoglu, Ebru, Danilycheva, Inna, Day, Cascia, de Montjoye, Laurence, Demir, Semra, Ferucci, Silvia Mariel, Fomina, Daria, Fukunaga, Atsushi, Garcia, Elizabeth, Gelincik, Asli, Göbel, Joe Hannah, Godse, Kiran, Gonçalo, Margarida, Gotua, Maia, Grattan, Clive, Gugala, Agata, Guillet, Carole, Kalyoncu, Ali Fuat, Karakaya, Gul, Kasperska-Zając, Alicja, Katelaris, Constance H., Khoshkhui, Maryam, Kleinheinz, Andreas, Kolacinska-Flont, Marta, Kolkhir, Pavel, Košnik, Mitja, Krasowska, Dorota, Kumaran, Muthu Sendhil, Kuprys-Lipinska, Izabela, Kurowski, Marcin, Kuznetsova, Elizaveta V., Larenas-Linnemann, Désirée, Lebedkina, Marina S., Lee, Youngsoo, Makris, Michael, Gómez, René Maximiliano, Nasr, Iman, Neisinger, Sophia, Oda, Yoshiko, Kara, Rabia Öztaş, Palitot, Esther Bastos, Papapostolou, Niki, Salvador Parisi, Claudio Alberto, Pesque, David, Peter, Jonathan, Petkova, Elena, Ridge, Katie, Rudenko, Michael, Rutkowski, Krzysztof, Saini, Sarbjit S., Salman, Andac, Sanchez, Jorge, Şekerel, Bülent, Serdotetskova, Sofia A., Serpa, Faradiba S., Dikicier, Bahar Sevimli, Sidiropoulos, Nikitas, Sikora, Agnieszka, Sørensen, Jennifer Astrup, Soria, Angele, Kucuk, Ozlem Su, Thalappil, Sherin Rahim, Tomaszewska, Katarzyna, Tuncay, Gulseren, Unal, Derya, Valle, Solange, van Lindonk, Esmee, Vestergaard, Christian, Meshkova, Raisa Y., Vitchuk, Aleksandr, Xepapadaki, Paraskevi, Ye, Young-Min, Zalewska-Janowska, Anna, Zamlynski, Mateusz, and Maurer, Marcus

Published
2023
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4. The Benefit of Complete Response to Treatment in Patients With Chronic Spontaneous Urticaria—CURE Results

Author

Kolkhir, Pavel, Laires, Pedro A., Salameh, Pascale, Asero, Riccardo, Bizjak, Mojca, Košnik, Mitja, Dissemond, Joachim, van Doorn, Martijn, Hawro, Tomasz, Kasperska-Zajac, Alicja, Zajac, Magdalena, Kocatürk, Emek, Peter, Jonny, Parisi, Claudio A.S., Ritchie, Carla A., Kulthanan, Kanokvalai, Tuchinda, Papapit, Fomina, Daria, Kovalkova, Elena, Khoshkhui, Maryam, Kouzegaran, Samaneh, Papapostolou, Niki, Du-Thanh, Aurélie, Kamegashira, Akiko, Meshkova, Raisa, Vitchuk, Alexander, Bauer, Andrea, Grattan, Clive, Staubach, Petra, Bouillet, Laurence, Giménez-Arnau, Ana M., Maurer, Marcus, and Weller, Karsten

Published
2023
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5. How are patients with chronic urticaria interested in using information and communication technologies to guide their healthcare? A UCARE study

Author

Cherrez-Ojeda, Ivan, Vanegas, Emanuel, Cherrez, Annia, Felix, Miguel, Weller, Karsten, Magerl, Markus, Maurer, Rasmus Robin, Mata, Valeria L., Kasperska-Zajac, Alicja, Sikora, Agnieszka, Fomina, Daria, Kovalkova, Elena, Godse, Kiran, Rao, Nimmagadda Dheeraj, Khoshkhui, Maryam, Rastgoo, Sahar, Criado, Roberta FJ., Abuzakouk, Mohamed, Grandon, Deepa, Van Doorn, Martijn B.A., Oliveira Rodrigues Valle, Solange, De Souza Lima, Eduardo Magalhães, Thomsen, Simon Francis, Ramón, German D., Matos Benavides, Edgar E., Bauer, Andrea, Giménez-Arnau, Ana M., Kocatürk, Emek, Guillet, Carole, Larco, Jose Ignacio, Zhao, Zuo-Tao, Makris, Michael, Ritchie, Carla, Xepapadaki, Paraskevi, Ensina, Luis Felipe, Cherrez, Sofia, and Maurer, Marcus

Published
2021
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6. The usage, quality and relevance of information and communications technologies in patients with chronic urticaria: A UCARE study

Author

Maurer, Marcus, Weller, Karsten, Magerl, Markus, Maurer, Rasmus Robin, Vanegas, Emanuel, Felix, Miguel, Cherrez, Annia, Mata, Valeria L., Kasperska-Zajac, Alicja, Sikora, Agnieszka, Fomina, Daria, Kovalkova, Elena, Godse, Kiran, Rao, Nimmagadda Dheeraj, Khoshkhui, Maryam, Rastgoo, Sahar, Criado, Roberta Fachini Jardim, Abuzakouk, Mohamed, Grandon, Deepa, van Doorn, Martijn, Valle, Solange Olliveira Rodrigues, de Souza Lima, Eduardo Magalhães, Thomsen, Simon Francis, Ramón, German D., Matos Benavides, Edgar E., Bauer, Andrea, Giménez-Arnau, Ana Maria, Kocatürk, Emek, Guillet, Carole, Ignacio Larco, Jose, Zhao, Zuo-Tao, Makris, Michael, Ritchie, Carla, Xepapadaki, Paraskevi, Ensina, Luis Felipe, Cherrez, Sofia, and Cherrez-Ojeda, Ivan

Published
2020
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7. Non-Skin-Related Symptoms are Common in Chronic Spontaneous Urticaria and Linked to Active and Uncontrolled Disease: Results from CURE

Author

Pyatilova, Polina, primary, Hackler, Yana, additional, Aulenbacher, Felix, additional, Asero, Riccardo, additional, Bauer, Andrea, additional, Bizjak, Mojca, additional, Day, Cascia, additional, Dissemond, Joachim, additional, Du-Thanh, Aurélie, additional, Fomina, Daria, additional, Giménez-Arnau, Ana M., additional, Grattan, Clive, additional, Gregoriou, Stamatis, additional, Hawro, Tomasz, additional, Kasperska-Zajac, Alicja, additional, Khoshkhui, Maryam, additional, Kocatürk, Emek, additional, Kovalkova, Elena, additional, Kulthanan, Kanokvalai, additional, Kuznetsova, Elizaveta, additional, Makris, Michael, additional, Mukhina, Olga, additional, Pesqué, David, additional, Peter, Jonny, additional, Salameh, Pascale, additional, Siebenhaar, Frank, additional, Sikora, Agnieszka, additional, Staubach, Petra, additional, Tuchinda, Papapit, additional, Zamłyński, Mateusz, additional, Weller, Karsten, additional, Maurer, Marcus, additional, and Kolkhir, Pavel, additional

Published
2024
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8. Enhancing Angioedema Patient Care: Unveiling Underutilization and Barriers in the Implementation of Patient-Reported Outcome Measurements

Author

Ojeda, Ivan Cherrez, primary, Maurer, Marcus, additional, Bousquet, Jean, additional, Gimenez-Arnau, Ana, additional, Godse, Kiran, additional, Krasowska, Dorota, additional, Robles-Velasco, Karla, additional, Kolkhir, Pavel, additional, Tkachenko, Sergey, additional, Mitrevska, Natasa Teovska, additional, Kolacinska-Flont, Marta, additional, Kuprys-Lipinska, Izabela, additional, Molinska, Joanna, additional, Kasperska-Zajac, Alicja, additional, Zajac, Magdalena, additional, Zamlynski, Mateusz, additional, Mihaltan, Florin, additional, Zalewska-Janowska, Anna, additional, Tomaszewska, Katarzyna, additional, Al-Ahmad, Mona, additional, Al-Nesf, Maryam Ali, additional, Ibrahim, Tayseer, additional, Pesqué, David, additional, Rodriguez-Gonzalez, Monica, additional, Wakida-Kuzunoki, Guillermo Hideo, additional, Ramon, German, additional, Ramon, Gonzalo, additional, Neisinger, Sophia, additional, Bonnekoh, Hanna, additional, Rukhadze, Maia, additional, Ulmeanu, Ruxandra, additional, Khoshkhui, Maryam, additional, Faytong-Haro, Marco, additional, Fomina, Daria, additional, Rudenko, Michael, additional, Ben-shoshan, Moshe, additional, Linnemann, Desiree Larenas, additional, Kvedariene, Violeta, additional, Košnik, Mitja, additional, Zuberbier, Torsten, additional, Kara, Rabia Oztas, additional, Caballero López, Chrystopherson Gengyny, additional, Criado, Roberta, additional, Liu, Qiang, additional, and Rosario, Nelson, additional

Published
2024
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9. The UCARE Study on the Prevalence of Sleep Disorders and Nighttime Bruxism in People with Chronic Urticaria

Author

Kasperska-Zajac, Alicja, primary, Meshkova, Raisa, additional, Fomina, Daria, additional, ÜNAL, Derya, additional, Demir, Semra, additional, Teovska-Mitrevska, Natasa, additional, Sahiner, Umit Murat, additional, GÜREL, Deniz İLGÜN., additional, Özkaya, Esen, additional, Calderon LLosa, Oscar, additional, Escalante, Luis, additional, Maldonado, Astrid, additional, Escalante, Edgar, additional, Touriz, Maria, additional, Intriago, Belen, additional, Faytong-Haro, Marco, additional, Osorio, Maria, additional, and Robles-Velasco, Karla, additional

Published
2024
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10. Knowledge and satisfaction about the use of Patient Reported Outcomes Measures (PROMs) by patients with chronic urticaria

Author

Ojeda, Ivan Cherrez, primary, Robles-Velasco, Karla, additional, Kasperska-Zajac, Alicja, additional, Kulthanan, Kanokvalai, additional, Saengthong-aram, Phuwakorn, additional, Sahiner, Umit Murat, additional, Soyer, Ozge, additional, Goncu, Emek Kocaturk, additional, GÜREL, Deniz İLGÜN, additional, Sekerel, Bulent, additional, Özkaya, Esen, additional, Latysheva, Elena, additional, Meshkova, Raisa, additional, Dias, Gabriela, additional, Caraballo, Jorge Sanchez, additional, Escalante, Luis, additional, Maldonado, Astrid, additional, Escalante, Edgar, additional, Touriz, Maria, additional, Calderon LLosa, Oscar, additional, Podder, Indrashis, additional, Nasr, Iman, additional, Christoff, George, additional, Intriago, Belen, additional, Faytong-Haro, Marco, additional, Rujitharanawong, Chuda, additional, and Chularojanamontri, Leena, additional

Published
2024
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11. Usage prevalence of angioedema patient–reported outcome measures: Results from the UCARE and ACARE PROMUSE study

Author

Cherrez-Ojeda, Ivan, Bousquet, Jean, Giménez-Arnau, Ana, Godse, Kiran, Krasowska, Dorota, Bartosińska, Joanna, Szczepanik-Kułak, Paulina, Wawrzycki, Bartlomiej, Kolkhir, Pavel, Allenova, Anastasiia, Allenov, Andrey, Tkachenko, Sergey, Mitrevska, Natasa Teovska, Mijakoski, Dragan, Stoleski, Sasho, Kolacinska-Flont, Marta, Kuprys-Lipinska, Izabela, Molinska, Joanna, Kasperska-Zając, Alicja, Zajac, Magdalena, Zamłyński, Mateusz, Mihaltan, Florin, Ulmeanu, Ruxandra, Zalewska-Janowska, Anna, Tomaszewska, Katarzyna, Al-Ahmad, Mona, Al-Nesf, Maryam Ali, Ibrahim, Tayseer, Aqel, Sami, Pesqué, David, Rodríguez-González, Mónica, Wakida-Kuzunoki, Guillermo Hideo, Ramon, German D., Ramon, Gonzalo N., Neisinger, Sophia, Bonnekoh, Hanna, Rukhadze, Maia, Khoshkhui, Maryam, Fomina, Daria, Larenas-Linnemann, Désirée, Košnik, Mitja, Kara, Rabia Oztas, Caballero López, Chrystopherson Gengyny, Liu, Qiang, Ivancevich, Juan Carlos, Ensina, Lius Felipe, Rosario, Nelson, Kvedariene, Violeta, Ben-Shoshan, Moshe, Jardim Criado, Roberta Fachini, Bauer, Andrea, Cherrez, Annia, Cherrez, Sofia, Chong-Neto, Herberto, Rojo-Gutierrez, Maria Isabel, Rudenko, Michael, Larco Sousa, José Ignacio, Lesiak, Aleksandra, Matos, Edgar, Tinoco, Ivan, Shijin, Carolina Crespo, Logroño, Romina Hinostroza, Sagñay, Juan C., Faytong-Haro, Marco, Robles-Velasco, Karla, Zuberbier, Torsten, and Maurer, Marcus

Published
2024
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12. Treatment patterns and outcomes in patients with chronic urticaria during pregnancy: results of PREG-CU, a UCARE study

Author

Göncü, Özgür Emek Kocatürk (ORCID 0000-0003-2801-0959 & YÖK ID 217219); Baygül, Arzu (ORCID 0000-0003-0392-6709 & YÖK ID 272290), Al-Ahmad, Mona; Krause, Karoline; Gimenez-Arnau, Ana M.; Thomsen, Simon Francis; Conlon, Niall; Marsland, Alexander; Şavk, Ekin; Criado, Roberta F.; Danilycheva, Inna; Fomina, Daria; Godse, Kiran; Khoshkhui, Maryam; Değirmentepe, Ece Nur; Demir, Semra; Ensina, Luis Felipe; Kasperska-Zajac, Alicja; Rudenko, Michael; Valle, Solange; Medina, Iris; Bauer, Andrea; Zhao, Zuotao; Staubach, Petra; Bouillet, Laurence; Küçük, Özlem Su; Maurer, Marcus, School of Medicine, Dermatology, Göncü, Özgür Emek Kocatürk (ORCID 0000-0003-2801-0959 & YÖK ID 217219); Baygül, Arzu (ORCID 0000-0003-0392-6709 & YÖK ID 272290), Al-Ahmad, Mona; Krause, Karoline; Gimenez-Arnau, Ana M.; Thomsen, Simon Francis; Conlon, Niall; Marsland, Alexander; Şavk, Ekin; Criado, Roberta F.; Danilycheva, Inna; Fomina, Daria; Godse, Kiran; Khoshkhui, Maryam; Değirmentepe, Ece Nur; Demir, Semra; Ensina, Luis Felipe; Kasperska-Zajac, Alicja; Rudenko, Michael; Valle, Solange; Medina, Iris; Bauer, Andrea; Zhao, Zuotao; Staubach, Petra; Bouillet, Laurence; Küçük, Özlem Su; Maurer, Marcus, School of Medicine, and Dermatology

Abstract

Wiley, The authors wish to thank the patients for their participation in this study. In addition, Leonard Lionnet, PhD providedmedical writing assistance which was funded by UCARE (www.ga2len--ucare.com). Open Access funding enabled and organized by Projekt DEAL.

Published
2023

14. Total IgE levels are linked to the course of chronic spontaneous urticaria during pregnancy

Author

Kocatürk, Emek, primary, Thomsen, Simon Francis, additional, Al-Ahmad, Mona, additional, Gimenez Arnau, Ana M., additional, Conlon, Niall, additional, Şavk, Ekin, additional, Jardim Criado, Roberta Fachini, additional, Danilycheva, Inna, additional, Fomina, Daria, additional, Khoshkhui, Maryam, additional, Gelincik, Aslı, additional, Yüksel, Ece Nur, additional, Ertan, Semra, additional, Ensina, Luis Felipe, additional, Kasperska-Zajac, Alicja, additional, Rudenko, Michael, additional, Bauer, Andrea, additional, Medina, Iris V., additional, and Maurer, Marcus, additional

Published
2023
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15. Treatment patterns and outcomes in patients with chronic urticaria during pregnancy: Results of PREG‐CU , a UCARE study

Author

Kocatürk, Emek, primary, Al‐Ahmad, Mona, additional, Krause, Karoline, additional, Gimenez‐Arnau, Ana M., additional, Thomsen, Simon Francis, additional, Conlon, Niall, additional, Marsland, Alexander, additional, Savk, Ekin, additional, Criado, Roberta F., additional, Danilycheva, Inna, additional, Fomina, Daria, additional, Godse, Kiran, additional, Khoshkhui, Maryam, additional, Gelincik, Aslı, additional, Degirmentepe, Ece Nur, additional, Demir, Semra, additional, Ensina, Luis Felipe, additional, Kasperska‐Zajac, Alicja, additional, Rudenko, Michael, additional, Valle, Solange, additional, Medina, Iris, additional, Bauer, Andrea, additional, Zhao, Zuotao, additional, Staubach, Petra, additional, Bouillet, Laurence, additional, Küçük, Özlem Su, additional, Baygül, Arzu, additional, and Maurer, Marcus, additional

Published
2022
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17. Urticaria in Pregnancy and Lactation

Author

Kocatürk, Emek, primary, Podder, Indrashis, additional, Zenclussen, Ana C., additional, Kasperska Zajac, Alicja, additional, Elieh-Ali-Komi, Daniel, additional, Church, Martin K., additional, and Maurer, Marcus, additional

Published
2022
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18. Adrenaline autoinjector is under-prescribed in typical cold urticaria patients living in tropical climate countries

Author

Bizjak, Mojca, primary, Košnik, Mitja, additional, Dinevski, Dejan, additional, Francis Thomsen, Simon, additional, Fomina, Daria, additional, Borzova, Elena, additional, Kulthanan, Kanokvalai, additional, Meshkova, Raisa, additional, Aarestrup, FernandoM, additional, Melina Ahsan, Dalia, additional, Al-Ahmad, Mona, additional, Altrichter, Sabine, additional, Bauer, Andrea, additional, Brockstädt, Maxi, additional, Costa, Célia, additional, Demir, Semra, additional, Fachini Criado, Roberta, additional, Felipe Ensina, Luis, additional, Gelincik, Asli, additional, Giménez-Arnau, Ana Maria, additional, Gonçalo, Margarida, additional, Gotua, Maia, additional, Grønlund Holm, Jesper, additional, Inomata, Naoko, additional, Kasperska-Zajac, Alicja, additional, Khoshkhui, Maryam, additional, Klyucharova, Aliya, additional, Kocatürk, Emek, additional, Lu, Rongbiao, additional, Makris, Michael, additional, Maltseva, Natalya, additional, Pasali, Maria, additional, Paulino, Marisa, additional, Pesqué, David, additional, Peter, Jonny, additional, Dario Ramón, German, additional, Ritchie, Carla, additional, Oliveira Rodrigues Valle, Solange, additional, Rudenko, Michael, additional, Sikora, Agnieszka, additional, Wagner, Nicola, additional, Xepapadaki, Paraskevi, additional, Xue, Xiaoyang, additional, Zhao, Zuotao, additional, Terhorst-Molawi, Dorothea, additional, and Maurer, Marcus, additional

Published
2022
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20. Urticaria in Pregnancy and Lactation

Author

Kocatürk, Emek, Podder, Indrashis, Zenclussen, Ana C., Kasperska Zajac, Alicja, Elieh-Ali-Komi, Daniel, Church, Martin K., Maurer, Marcus, Kocatürk, Emek, Podder, Indrashis, Zenclussen, Ana C., Kasperska Zajac, Alicja, Elieh-Ali-Komi, Daniel, Church, Martin K., and Maurer, Marcus

Abstract

Chronic urticaria (CU) is a mast cell-driven chronic inflammatory disease with a female predominance. Since CU affects mostly females in reproductive age, pregnancy is an important aspect to consider in the context of this disease. Sex hormones affect mast cell (MC) biology, and the hormonal changes that come with pregnancy can modulate the course of chronic inflammatory conditions, and they often do. Also, pregnancy-associated changes in the immune system, including local adaptation of innate and adaptive immune responses and skewing of adaptive immunity toward a Th2/Treg profile have been linked to changes in the course of inflammatory diseases. As of now, little is known about the effects of pregnancy on CU and the outcomes of pregnancy in CU patients. Also, there are no real-life studies to show the safety of urticaria medications during pregnancy. The recent PREG-CU study provided the first insights on this and showed that CU improves during pregnancy in half of the patients, whereas it worsens in one-third; and two of five CU patients experience flare-ups of their CU during pregnancy. The international EAACI/GA²LEN/EuroGuiDerm/APAAACI guideline for urticaria recommends adopting the samemanagement strategy in pregnant and lactating CU patients; starting treatment with standard doses of second-generation (non-sedative) H1 antihistamines, to increase the dose up to 4-folds in case of no response, and to add omalizumab in antihistamine-refractory patients; but also emphasizes the lack of evidence-based information on the safety and efficacy of urticaria treatments during pregnancy. The PREG-CU study assessed treatments and their outcomes during pregnancy. Here, we review the reported effects of sex hormones and pregnancy-specific immunological changes on urticaria, we discuss the impact of pregnancy on urticaria, and we provide information and guidance on the management of urticaria during pregnancy and lactation.

Published
2022

21. Risk factors for systemic reactions in typical cold urticaria:Results from the COLD-CE study

Author

Bizjak, Mojca, Košnik, Mitja, Dinevski, Dejan, Thomsen, Simon Francis, Fomina, Daria, Borzova, Elena, Kulthanan, Kanokvalai, Meshkova, Raisa, Ahsan, Dalia Melina, Al-Ahmad, Mona, Altrichter, Sabine, Bauer, Andrea, Brockstädt, Maxi, Costa, Célia, Demir, Semra, Fachini Criado, Roberta, Ensina, Luis Felipe, Gelincik, Asli, Giménez-Arnau, Ana Maria, Gonçalo, Margarida, Gotua, Maia, Holm, Jesper Grønlund, Inomata, Naoko, Kasperska-Zajac, Alicja, Khoshkhui, Maryam, Klyucharova, Aliya, Kocatürk, Emek, Lu, Rongbiao, Makris, Michael, Maltseva, Natalya, Miljković, Jovan, Pasali, Maria, Paulino, Marisa, Pesqué, David, Peter, Jonny, Ramón, German Dario, Ritchie, Carla, Rodrigues Valle, Solange Oliveira, Rudenko, Michael, Sikora, Agnieszka, de Souza Lima, Eduardo M., Wagner, Nicola, Xepapadaki, Paraskevi, Xue, Xiaoyang, Zhao, Zuotao, Terhorst-Molawi, Dorothea, Maurer, Marcus, Bizjak, Mojca, Košnik, Mitja, Dinevski, Dejan, Thomsen, Simon Francis, Fomina, Daria, Borzova, Elena, Kulthanan, Kanokvalai, Meshkova, Raisa, Ahsan, Dalia Melina, Al-Ahmad, Mona, Altrichter, Sabine, Bauer, Andrea, Brockstädt, Maxi, Costa, Célia, Demir, Semra, Fachini Criado, Roberta, Ensina, Luis Felipe, Gelincik, Asli, Giménez-Arnau, Ana Maria, Gonçalo, Margarida, Gotua, Maia, Holm, Jesper Grønlund, Inomata, Naoko, Kasperska-Zajac, Alicja, Khoshkhui, Maryam, Klyucharova, Aliya, Kocatürk, Emek, Lu, Rongbiao, Makris, Michael, Maltseva, Natalya, Miljković, Jovan, Pasali, Maria, Paulino, Marisa, Pesqué, David, Peter, Jonny, Ramón, German Dario, Ritchie, Carla, Rodrigues Valle, Solange Oliveira, Rudenko, Michael, Sikora, Agnieszka, de Souza Lima, Eduardo M., Wagner, Nicola, Xepapadaki, Paraskevi, Xue, Xiaoyang, Zhao, Zuotao, Terhorst-Molawi, Dorothea, and Maurer, Marcus

Abstract

Background: Cold urticaria (ColdU), that is, the occurrence of wheals or angioedema in response to cold exposure, is classified into typical and atypical forms. The diagnosis of typical ColdU relies on whealing in response to local cold stimulation testing (CST). It can also manifest with cold-induced anaphylaxis (ColdA). We aimed to determine risk factors for ColdA in typical ColdU. Methods: An international, cross-sectional study COLD-CE was carried out at 32 urticaria centers of reference and excellence (UCAREs). Detailed history was taken and CST with an ice cube and/or TempTest® performed. ColdA was defined as an acute cold-induced involvement of the skin and/or visible mucosal tissue and at least one of: cardiovascular manifestations, difficulty breathing, or gastrointestinal symptoms. Results: Of 551 ColdU patients, 75% (n = 412) had a positive CST and ColdA occurred in 37% (n = 151) of the latter. Cold-induced generalized wheals, angioedema, acral swelling, oropharyngeal/laryngeal symptoms, and itch of earlobes were identified as signs/symptoms of severe disease. ColdA was most commonly provoked by complete cold water immersion and ColdA caused by cold air was more common in countries with a warmer climate. Ten percent (n = 40) of typical ColdU patients had a concomitant chronic spontaneous urticaria (CSU). They had a lower frequency of ColdA than those without CSU (4% vs. 39%, p =.003). We identified the following risk factors for cardiovascular manifestations: previous systemic reaction to a Hymenoptera sting, angioedema, oropharyngeal/laryngeal symptoms, and itchy earlobes. Conclusion: ColdA is common in typical ColdU. High-risk patients require education about their condition and how to use an adrenaline autoinjector.

Published
2022

22. Adrenaline autoinjector is underprescribed in typical cold urticaria patients

Author

Bizjak, Mojca, Košnik, Mitja, Dinevski, Dejan, Thomsen, Simon Francis, Fomina, Daria, Borzova, Elena, Kulthanan, Kanokvalai, Meshkova, Raisa, Aarestrup, Fernando Monteiro, Ahsan, Dalia Melina, Al-Ahmad, Mona, Altrichter, Sabine, Bauer, Andrea, Brockstädt, Maxi, Costa, Célia, Demir, Semra, Criado, Roberta Fachini, Ensina, Luis Felipe, Gelincik, Asli, Giménez-Arnau, Ana Maria, Gonçalo, Margarida, Gotua, Maia, Holm, Jesper Grønlund, Inomata, Naoko, Kasperska-Zajac, Alicja, Khoshkhui, Maryam, Klyucharova, Aliya, Kocatürk, Emek, Lu, Rongbiao, Makris, Michael, Maltseva, Natalya, Pasali, Maria, Paulino, Marisa, Pesqué, David, Peter, Jonny, Ramón, German Dario, Ritchie, Carla, Rodrigues Valle, Solange Oliveira, Rudenko, Michael, Sikora, Agnieszka, Wagner, Nicola, Xepapadaki, Paraskevi, Xue, Xiaoyang, Zhao, Zuotao, Terhorst-Molawi, Dorothea, Maurer, Marcus, Bizjak, Mojca, Košnik, Mitja, Dinevski, Dejan, Thomsen, Simon Francis, Fomina, Daria, Borzova, Elena, Kulthanan, Kanokvalai, Meshkova, Raisa, Aarestrup, Fernando Monteiro, Ahsan, Dalia Melina, Al-Ahmad, Mona, Altrichter, Sabine, Bauer, Andrea, Brockstädt, Maxi, Costa, Célia, Demir, Semra, Criado, Roberta Fachini, Ensina, Luis Felipe, Gelincik, Asli, Giménez-Arnau, Ana Maria, Gonçalo, Margarida, Gotua, Maia, Holm, Jesper Grønlund, Inomata, Naoko, Kasperska-Zajac, Alicja, Khoshkhui, Maryam, Klyucharova, Aliya, Kocatürk, Emek, Lu, Rongbiao, Makris, Michael, Maltseva, Natalya, Pasali, Maria, Paulino, Marisa, Pesqué, David, Peter, Jonny, Ramón, German Dario, Ritchie, Carla, Rodrigues Valle, Solange Oliveira, Rudenko, Michael, Sikora, Agnieszka, Wagner, Nicola, Xepapadaki, Paraskevi, Xue, Xiaoyang, Zhao, Zuotao, Terhorst-Molawi, Dorothea, and Maurer, Marcus

Published
2022

23. Adrenaline autoinjector is underprescribed in typical cold urticaria patients

Author

Bizjak, Mojca, primary, Košnik, Mitja, additional, Dinevski, Dejan, additional, Thomsen, Simon Francis, additional, Fomina, Daria, additional, Borzova, Elena, additional, Kulthanan, Kanokvalai, additional, Meshkova, Raisa, additional, Aarestrup, Fernando Monteiro, additional, Ahsan, Dalia Melina, additional, Al‐Ahmad, Mona, additional, Altrichter, Sabine, additional, Bauer, Andrea, additional, Brockstädt, Maxi, additional, Costa, Célia, additional, Demir, Semra, additional, Criado, Roberta Fachini, additional, Ensina, Luis Felipe, additional, Gelincik, Asli, additional, Giménez‐Arnau, Ana Maria, additional, Gonçalo, Margarida, additional, Gotua, Maia, additional, Holm, Jesper Grønlund, additional, Inomata, Naoko, additional, Kasperska‐Zajac, Alicja, additional, Khoshkhui, Maryam, additional, Klyucharova, Aliya, additional, Kocatürk, Emek, additional, Lu, Rongbiao, additional, Makris, Michael, additional, Maltseva, Natalya, additional, Pasali, Maria, additional, Paulino, Marisa, additional, Pesqué, David, additional, Peter, Jonny, additional, Ramón, German Dario, additional, Ritchie, Carla, additional, Rodrigues Valle, Solange Oliveira, additional, Rudenko, Michael, additional, Sikora, Agnieszka, additional, Wagner, Nicola, additional, Xepapadaki, Paraskevi, additional, Xue, Xiaoyang, additional, Zhao, Zuotao, additional, Terhorst‐Molawi, Dorothea, additional, and Maurer, Marcus, additional

Published
2022
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25. Treatment patterns and outcomes in patients with chronic urticaria during pregnancy: Results of PREG‐CU, a UCARE study.

Author

Kocatürk, Emek, Al‐Ahmad, Mona, Krause, Karoline, Gimenez‐Arnau, Ana M., Thomsen, Simon Francis, Conlon, Niall, Marsland, Alexander, Savk, Ekin, Criado, Roberta F., Danilycheva, Inna, Fomina, Daria, Godse, Kiran, Khoshkhui, Maryam, Gelincik, Aslı, Degirmentepe, Ece Nur, Demir, Semra, Ensina, Luis Felipe, Kasperska‐Zajac, Alicja, Rudenko, Michael, and Valle, Solange

Subjects
PREGNANCY outcomes, TREATMENT effectiveness, PREGNANCY, URTICARIA, PREMATURE labor, CESAREAN section
Abstract

Background: Although chronic urticaria (CU) is a common and primarily affects females, there is little data on how pregnancy interacts with the disease. Objective: To analyse the treatment use by CU patients before, during and after pregnancy as well as outcomes of pregnancy. Methods: PREG‐CU is an international, multicentre study of the Urticaria Centers of Reference and Excellence network. Data were collected via a 47‐item‐questionnaire completed by CU patients who became pregnant during their disease course. Results: Questionnaires from 288 CU patients from 13 countries were analysed. During pregnancy, most patients (60%) used urticaria medication including standard‐dose second generation H1‐antihistamines (35.1%), first generation H1‐antihistamines (7.6%), high‐dose second‐generation H1‐antihistamines (5.6%) and omalizumab (5.6%). The preterm birth rate was 10.2%; rates were similar between patients who did and did not receive treatment during pregnancy (11.6% vs. 8.7%, respectively). Emergency referrals for CU and twin birth were risk factors for preterm birth. The caesarean delivery rate was 51.3%. More than 90% of new‐borns were healthy at birth. There was no link between any patient or disease characteristics or treatments and medical problems at birth. Conclusion: Most CU patients used treatment during pregnancy especially second‐generation antihistamines which seem to be safe during pregnancy regardless of the trimester. The rates of preterm births and medical problems of new‐borns in CU patients were similar to population norms and not linked to treatment used during pregnancy. Emergency referrals for CU increased the risk of preterm birth and emphasize the importance of sufficient treatment to keep urticaria under control during pregnancy. [ABSTRACT FROM AUTHOR]

Published
2023
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26. Risk factors for systemic reactions in typical cold urticaria: Results from the COLD‐CE study

Author

Bizjak, Mojca, primary, Košnik, Mitja, additional, Dinevski, Dejan, additional, Thomsen, Simon Francis, additional, Fomina, Daria, additional, Borzova, Elena, additional, Kulthanan, Kanokvalai, additional, Meshkova, Raisa, additional, Ahsan, Dalia Melina, additional, Al‐Ahmad, Mona, additional, Altrichter, Sabine, additional, Bauer, Andrea, additional, Brockstädt, Maxi, additional, Costa, Célia, additional, Demir, Semra, additional, Fachini Criado, Roberta, additional, Ensina, Luis Felipe, additional, Gelincik, Asli, additional, Giménez‐Arnau, Ana Maria, additional, Gonçalo, Margarida, additional, Gotua, Maia, additional, Holm, Jesper Grønlund, additional, Inomata, Naoko, additional, Kasperska‐Zajac, Alicja, additional, Khoshkhui, Maryam, additional, Klyucharova, Aliya, additional, Kocatürk, Emek, additional, Lu, Rongbiao, additional, Makris, Michael, additional, Maltseva, Natalya, additional, Miljković, Jovan, additional, Pasali, Maria, additional, Paulino, Marisa, additional, Pesqué, David, additional, Peter, Jonny, additional, Ramón, German Dario, additional, Ritchie, Carla, additional, Rodrigues Valle, Solange Oliveira, additional, Rudenko, Michael, additional, Sikora, Agnieszka, additional, de Souza Lima, Eduardo M., additional, Wagner, Nicola, additional, Xepapadaki, Paraskevi, additional, Xue, Xiaoyang, additional, Zhao, Zuotao, additional, Terhorst‐Molawi, Dorothea, additional, and Maurer, Marcus, additional

Published
2021
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27. Chronic urticaria patients are interested in apps to monitor their disease activity and control: A UCARE CURICT analysis

Author

Cherrez‐Ojeda, Ivan, primary, Vanegas, Emanuel, additional, Cherrez, Annia, additional, Felix, Miguel, additional, Weller, Karsten, additional, Magerl, Markus, additional, Maurer, Rasmus Robin, additional, Mata, Valeria L., additional, Kasperska‐Zajac, Alicja, additional, Sikora, Agnieszka, additional, Fomina, Daria, additional, Kovalkova, Elena, additional, Godse, Kiran, additional, Rao, Nimmagadda Dheeraj, additional, Khoshkhui, Maryam, additional, Rastgoo, Sahar, additional, Criado, Roberta F. J., additional, Abuzakouk, Mohamed, additional, Grandon, Deepa, additional, Van Doorn, Martijn B. A., additional, Rodrigues Valle, Solange Oliveira, additional, De Souza Lima, Eduardo Magalhães, additional, Thomsen, Simon Francis, additional, Ramón, German D., additional, Matos Benavides, Edgar E., additional, Bauer, Andrea, additional, Giménez‐Arnau, Ana M., additional, Kocatürk, Emek, additional, Guillet, Carole, additional, Larco, Jose Ignacio, additional, Zhao, Zuo‐Tao, additional, Makris, Michael, additional, Ritchie, Carla, additional, Xepapadaki, Paraskevi, additional, Ensina, Luis Felipe, additional, Cherrez, Sofia, additional, and Maurer, Marcus, additional

Published
2021
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31. How are patients with chronic urticaria interested in using information and communication technologies to guide their healthcare? A UCARE study

Author

Cherrez-Ojeda, Ivan Vanegas, Emanuel Cherrez, Annia Felix, Miguel Weller, Karsten Magerl, Markus Maurer, Rasmus Robin and Mata, Valeria L. Kasperska-Zajac, Alicja Sikora, Agnieszka and Fomina, Daria Kovalkova, Elena Godse, Kiran Rao, Nimmagadda Dheeraj Khoshkhui, Maryam Rastgoo, Sahar Criado, Roberta FJ. Abuzakouk, Mohamed Grandon, Deepa Van Doorn, Martijn B. A. Valle, Solange Oliveira Rodrigues Lima, Eduardo Magalhaes De Souza Thomsen, Simon Francis Ramon, German D. and Benavides, Edgar E. Matos Bauer, Andrea Gimenez-Arnau, Ana M. and Kocaturk, Emek Guillet, Carole Larco, Jose Ignacio Zhao, Zuo-Tao Makris, Michael Ritchie, Carla Xepapadaki, Paraskevi and Ensina, Luis Felipe Cherrez, Sofia Maurer, Marcus

Subjects
parasitic diseases
Abstract

Background: Patients with chronic urticaria (CU) are increasingly using information and communication technologies (ICTs) to manage their health. What CU patients expect from ICTs and which ICTs they prefer remains unknown. We assessed why CU patients use ICTs, which ones they prefer, and what drives their expectations and choices. Methods: In this cross-sectional study, 1841 patients across 17 countries were recruited at UCAREs (Urticaria Centers of Reference and Excellence). Patients with CU who were >12 years old completed a 23-item questionnaire. Results: Most patients were interested in receiving disease information (87.3%), asking physicians about CU (84.1%), and communicating with other patients through ICTs (65.6%). For receiving disease information, patients preferred one-to-one and one-to-many ICTs, especially web browsers. One-to-one ICTs were also the ICTs of choice for asking physicians about urticaria and for communicating with other patients, and e-mail and WhatsApp were the preferred ICTs, respectively. Many-to-many ICTs such as Facebook, Instagram, LinkedIn, and Twitter were least preferred for all 3 purposes. Living in rural areas and higher education were linked to higher odds of being interested in receiving disease information, asking physicians, and communicating with patients through ICTs. Conclusions: Most patients and especially patients with higher education who live in rural areas are interested in using ICTs for their healthcare, but prefer different ICTs for different purposes, ie, web browsers for obtaining information, e-mail for asking physicians, and WhatsApp for communicating with other patients. Our findings may help to improve ICTs for CU.

Published
2021

33. Effects of pregnancy on chronic urticaria: Results of the PREG‐CU UCARE study

Author

Kocatürk, Emek, primary, Al‐Ahmad, Mona, additional, Krause, Karoline, additional, Gimenez‐Arnau, Ana M., additional, Thomsen, Simon Francis, additional, Conlon, Niall, additional, Marsland, Alexander, additional, Savk, Ekin, additional, Criado, Roberta F., additional, Danilycheva, Inna, additional, Fomina, Daria, additional, Godse, Kiran, additional, Khoshkhui, Maryam, additional, Gelincik, Aslı, additional, Degirmentepe, Ece Nur, additional, Demir, Semra, additional, Ensina, Luis Felipe, additional, Kasperska‐Zajac, Alicja, additional, Rudenko, Michael, additional, Valle, Solange, additional, Medina, Iris, additional, Bauer, Andrea, additional, Zhao, Zuotao, additional, Staubach, Petra, additional, Bouillet, Laurence, additional, Küçük, Özlem Su, additional, Ateş, Can, additional, and Maurer, Marcus, additional

Published
2021
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36. Chronic urticaria patients are interested in apps to monitor their disease activity and control: A UCARE CURICT analysis

Author

Göncü, Özgür Emek Kocatürk (ORCID 0000-0003-2801-0959 & YÖK ID 217219), Cherrez-Ojeda, Ivan; Vanegas, Emanuel; Cherrez, Annia; Felix, Miguel; Weller, Karsten; Magerl, Markus; Maurer, Rasmus Robin; Mata, Valeria L.; Kasperska-Zajac, Alicja; Sikora, Agnieszka; Fomina, Daria; Kovalkova, Elena; Godse, Kiran; Rao, Nimmagadda Dheeraj; Khoshkhui, Maryam; Rastgoo, Sahar; Criado, Roberta F. J.; Abuzakouk, Mohamed; Grandon, Deepa; Van Doorn, Martijn B. A.; Rodrigues Valle, Solange Oliveira; De Souza Lima, Eduardo Magalhaes; Thomsen, Simon Francis; Ramón, German D.; Matos Benavides, Edgar E.; Bauer, Andrea; Giménez-Arnau, Ana M.; Guillet, Carole; Larco, Jose Ignacio; Zhao, Zuo-Tao; Makris, Michael; Ritchie, Carla; Xepapadaki, Paraskevi; Ensina, Luis Felipe; Cherrez, Sofia; Maurer, Marcus, School of Medicine, Göncü, Özgür Emek Kocatürk (ORCID 0000-0003-2801-0959 & YÖK ID 217219), Cherrez-Ojeda, Ivan; Vanegas, Emanuel; Cherrez, Annia; Felix, Miguel; Weller, Karsten; Magerl, Markus; Maurer, Rasmus Robin; Mata, Valeria L.; Kasperska-Zajac, Alicja; Sikora, Agnieszka; Fomina, Daria; Kovalkova, Elena; Godse, Kiran; Rao, Nimmagadda Dheeraj; Khoshkhui, Maryam; Rastgoo, Sahar; Criado, Roberta F. J.; Abuzakouk, Mohamed; Grandon, Deepa; Van Doorn, Martijn B. A.; Rodrigues Valle, Solange Oliveira; De Souza Lima, Eduardo Magalhaes; Thomsen, Simon Francis; Ramón, German D.; Matos Benavides, Edgar E.; Bauer, Andrea; Giménez-Arnau, Ana M.; Guillet, Carole; Larco, Jose Ignacio; Zhao, Zuo-Tao; Makris, Michael; Ritchie, Carla; Xepapadaki, Paraskevi; Ensina, Luis Felipe; Cherrez, Sofia; Maurer, Marcus, and School of Medicine

Abstract

Background: information/communication technologies such as mobile phone applications (apps) would enable chronic urticaria (CU) patients to self-evaluate their disease activity and control. Yet, recently Antó et al (2021) reported a global paucity of such apps for patients with CU. In this analysis, we assessed patient interest in using apps to monitor CU disease activity and control using questions from the chronic urticaria information and communication technologies (CURICT) study. Methods: the methodology for CURICT has been reported. Briefly, a 23-item questionnaire was completed by 1841 CU patients from 17 UCAREs across 17 countries. Here, we analyzed patient responses to the CURICT questions on the use of apps for urticaria-related purposes. Results: as previously published, the majority of respondents had chronic spontaneous urticaria (CSU; 63%; 18% chronic inducible urticaria (CIndU) [CIndu]; 19% with both), were female (70%) and in urban areas (75%). Over half of patients were very/extremely interested in an app to monitor disease activity (51%) and control (53%), while only ?1/10 were not. Patients with both urticaria types versus those with CSU only (odds ratio [OR], 1.36 [1.03-1.79]) and females versus males (OR [95% CI], 1.47 [1.17-1.85]) were more likely to be very to extremely interested in an app to assess disease control. Conclusions: overall, half of the patients with CU were very to extremely interested in using an app to assess their disease activity and control. Development of well-designed apps, specific to disease types (CSU, CIndU, CSU + CIndU, etc), validated by experts across platforms would help improve the management and possibly outcomes of CU treatment while providing important patient information to be used in future research. Keywords: UCARE; apps; chronic inducible urticaria; chronic spontaneous urticaria; chronic urticaria; chronische induzierbare urtikaria; chronische spontane urtikaria; chronische urtikaria., UCARE

Published
2021

37. Risk factors for systemic reactions in typical cold urticaria: results from the COLD-CE study

Author

Göncü, Özgür Emek Kocatürk (ORCID 0000-0003-2801-0959 & YÖK ID 217219), Bizjak, Mojca; Kosnik, Mitja; Dinevski, Dejan; Thomsen, Simon Francis; Fomina, Daria; Borzova, Elena; Kulthanan, Kanokvalai; Meshkova, Raisa; Ahsan, Dalia Melina; Al-Ahmad, Mona; Altrichter, Sabine; Bauer, Andrea; Brockstadt, Maxi; Costa, Celia; Demir, Semra; Criado, Roberta Fachini; Ensina, Luis Felipe; Gelincik, Aslı; Gimenez-Arnau, Ana Maria; Goncalo, Margarida; Gotua, Maia; Holm, Jesper Gronlund; Inomata, Naoko; Kasperska-Zajac, Alicja; Khoshkhui, Maryam; Klyucharova, Aliya; Lu, Rongbiao; Makris, Michael; Maltseva, Natalya; Miljkovic, Jovan; Pasali, Maria; Paulino, Marisa; Pesque, David; Peter, Jonny; Ramon, German Dario; Ritchie, Carla; Valle, Solange Oliveira Rodrigues; Rudenko, Michael; Sikora, Agnieszka; Lima, Eduardo M. Souza; Wagner, Nicola; Xepapadaki, Paraskevi; Xue, Xiaoyang; Zhao, Zuotao; Terhorst-Molawi, Dorothea; Maurer, Marcus, School of Medicine, Göncü, Özgür Emek Kocatürk (ORCID 0000-0003-2801-0959 & YÖK ID 217219), Bizjak, Mojca; Kosnik, Mitja; Dinevski, Dejan; Thomsen, Simon Francis; Fomina, Daria; Borzova, Elena; Kulthanan, Kanokvalai; Meshkova, Raisa; Ahsan, Dalia Melina; Al-Ahmad, Mona; Altrichter, Sabine; Bauer, Andrea; Brockstadt, Maxi; Costa, Celia; Demir, Semra; Criado, Roberta Fachini; Ensina, Luis Felipe; Gelincik, Aslı; Gimenez-Arnau, Ana Maria; Goncalo, Margarida; Gotua, Maia; Holm, Jesper Gronlund; Inomata, Naoko; Kasperska-Zajac, Alicja; Khoshkhui, Maryam; Klyucharova, Aliya; Lu, Rongbiao; Makris, Michael; Maltseva, Natalya; Miljkovic, Jovan; Pasali, Maria; Paulino, Marisa; Pesque, David; Peter, Jonny; Ramon, German Dario; Ritchie, Carla; Valle, Solange Oliveira Rodrigues; Rudenko, Michael; Sikora, Agnieszka; Lima, Eduardo M. Souza; Wagner, Nicola; Xepapadaki, Paraskevi; Xue, Xiaoyang; Zhao, Zuotao; Terhorst-Molawi, Dorothea; Maurer, Marcus, and School of Medicine

Abstract

Background: cold urticaria (ColdU), that is, the occurrence of wheals or angioedema in response to cold exposure, is classified into typical and atypical forms. The diagnosis of typical ColdU relies on whealing in response to local cold stimulation testing (CST). It can also manifest with cold-induced anaphylaxis (ColdA). We aimed to determine risk factors for ColdA in typical ColdU. Methods: an international, cross-sectional study COLD-CE was carried out at 32 urticaria centers of reference and excellence (UCAREs). Detailed history was taken and CST with an ice cube and/or TempTest(R) performed. ColdA was defined as an acute cold-induced involvement of the skin and/or visible mucosal tissue and at least one of: cardiovascular manifestations, difficulty breathing, or gastrointestinal symptoms. Results: of 551 ColdU patients, 75% (n = 412) had a positive CST and ColdA occurred in 37% (n = 151) of the latter. Cold-induced generalized wheals, angioedema, acral swelling, oropharyngeal/laryngeal symptoms, and itch of earlobes were identified as signs/symptoms of severe disease. ColdA was most commonly provoked by complete cold water immersion and ColdA caused by cold air was more common in countries with a warmer climate. Ten percent (n = 40) of typical ColdU patients had a concomitant chronic spontaneous urticaria (CSU). They had a lower frequency of ColdA than those without CSU (4% vs. 39%, p = .003). We identified the following risk factors for cardiovascular manifestations: previous systemic reaction to a Hymenoptera sting, angioedema, oropharyngeal/laryngeal symptoms, and itchy earlobes. Conclusion: coldA is common in typical ColdU. High-risk patients require education about their condition and how to use an adrenaline autoinjector., GA(2)LEN UCARE Network

Published
2021

38. Chronic urticaria patients are interested in apps to monitor their disease activity and control:A UCARE CURICT analysis

Author

Cherrez-Ojeda, Ivan, Vanegas, Emanuel, Cherrez, Annia, Felix, Miguel, Weller, Karsten, Magerl, Markus, Maurer, Rasmus Robin, Mata, Valeria L., Kasperska-Zajac, Alicja, Sikora, Agnieszka, Fomina, Daria, Kovalkova, Elena, Godse, Kiran, Rao, Nimmagadda Dheeraj, Khoshkhui, Maryam, Rastgoo, Sahar, Criado, Roberta F.J., Abuzakouk, Mohamed, Grandon, Deepa, Van Doorn, Martijn B.A., Rodrigues Valle, Solange Oliveira, De Souza Lima, Eduardo Magalhães, Thomsen, Simon Francis, Ramón, German D., Matos Benavides, Edgar E., Bauer, Andrea, Giménez-Arnau, Ana M., Kocatürk, Emek, Guillet, Carole, Larco, Jose Ignacio, Zhao, Zuo Tao, Makris, Michael, Ritchie, Carla, Xepapadaki, Paraskevi, Ensina, Luis Felipe, Cherrez, Sofia, Maurer, Marcus, Cherrez-Ojeda, Ivan, Vanegas, Emanuel, Cherrez, Annia, Felix, Miguel, Weller, Karsten, Magerl, Markus, Maurer, Rasmus Robin, Mata, Valeria L., Kasperska-Zajac, Alicja, Sikora, Agnieszka, Fomina, Daria, Kovalkova, Elena, Godse, Kiran, Rao, Nimmagadda Dheeraj, Khoshkhui, Maryam, Rastgoo, Sahar, Criado, Roberta F.J., Abuzakouk, Mohamed, Grandon, Deepa, Van Doorn, Martijn B.A., Rodrigues Valle, Solange Oliveira, De Souza Lima, Eduardo Magalhães, Thomsen, Simon Francis, Ramón, German D., Matos Benavides, Edgar E., Bauer, Andrea, Giménez-Arnau, Ana M., Kocatürk, Emek, Guillet, Carole, Larco, Jose Ignacio, Zhao, Zuo Tao, Makris, Michael, Ritchie, Carla, Xepapadaki, Paraskevi, Ensina, Luis Felipe, Cherrez, Sofia, and Maurer, Marcus

Abstract

Background: Information/communication technologies such as mobile phone applications (apps) would enable chronic urticaria (CU) patients to self-evaluate their disease activity and control. Yet, recently Antó et al (2021) reported a global paucity of such apps for patients with CU. In this analysis, we assessed patient interest in using apps to monitor CU disease activity and control using questions from the chronic urticaria information and communication technologies (CURICT) study. Methods: The methodology for CURICT has been reported. Briefly, a 23-item questionnaire was completed by 1841 CU patients from 17 UCAREs across 17 countries. Here, we analyzed patient responses to the CURICT questions on the use of apps for urticaria-related purposes. Results: As previously published, the majority of respondents had chronic spontaneous urticaria (CSU; 63%; 18% chronic inducible urticaria (CIndU) [CIndu]; 19% with both), were female (70%) and in urban areas (75%). Over half of patients were very/extremely interested in an app to monitor disease activity (51%) and control (53%), while only ∼1/10 were not. Patients with both urticaria types versus those with CSU only (odds ratio [OR], 1.36 [1.03–1.79]) and females versus males (OR [95% CI], 1.47 [1.17–1.85]) were more likely to be very to extremely interested in an app to assess disease control. Conclusions: Overall, half of the patients with CU were very to extremely interested in using an app to assess their disease activity and control. Development of well-designed apps, specific to disease types (CSU, CIndU, CSU + CIndU, etc), validated by experts across platforms would help improve the management and possibly outcomes of CU treatment while providing important patient information to be used in future research.

Published
2021

39. How are patients with chronic urticaria interested in using information and communication technologies to guide their healthcare?:A UCARE study

Author

Cherrez-Ojeda, Ivan, Vanegas, Emanuel, Cherrez, Annia, Felix, Miguel, Weller, Karsten, Magerl, Markus, Maurer, Rasmus Robin, Mata, Valeria L., Kasperska-Zajac, Alicja, Sikora, Agnieszka, Fomina, Daria, Kovalkova, Elena, Godse, Kiran, Rao, Nimmagadda Dheeraj, Khoshkhui, Maryam, Rastgoo, Sahar, Criado, Roberta FJ., Abuzakouk, Mohamed, Grandon, Deepa, Van Doorn, Martijn B. A., Valle, Solange Oliveira Rodrigues, Lima, Eduardo Magalhaes De Souza, Thomsen, Simon Francis, Ramon, German D., Benavides, Edgar E. Matos, Bauer, Andrea, Gimenez-Arnau, Ana M., Kocaturk, Emek, Guillet, Carole, Larco, Jose Ignacio, Zhao, Zuo-Tao, Makris, Michael, Ritchie, Carla, Xepapadaki, Paraskevi, Ensina, Luis Felipe, Cherrez, Sofia, Maurer, Marcus, Cherrez-Ojeda, Ivan, Vanegas, Emanuel, Cherrez, Annia, Felix, Miguel, Weller, Karsten, Magerl, Markus, Maurer, Rasmus Robin, Mata, Valeria L., Kasperska-Zajac, Alicja, Sikora, Agnieszka, Fomina, Daria, Kovalkova, Elena, Godse, Kiran, Rao, Nimmagadda Dheeraj, Khoshkhui, Maryam, Rastgoo, Sahar, Criado, Roberta FJ., Abuzakouk, Mohamed, Grandon, Deepa, Van Doorn, Martijn B. A., Valle, Solange Oliveira Rodrigues, Lima, Eduardo Magalhaes De Souza, Thomsen, Simon Francis, Ramon, German D., Benavides, Edgar E. Matos, Bauer, Andrea, Gimenez-Arnau, Ana M., Kocaturk, Emek, Guillet, Carole, Larco, Jose Ignacio, Zhao, Zuo-Tao, Makris, Michael, Ritchie, Carla, Xepapadaki, Paraskevi, Ensina, Luis Felipe, Cherrez, Sofia, and Maurer, Marcus

Abstract

Background: Patients with chronic urticaria (CU) are increasingly using information and communication technologies (ICTs) to manage their health. What CU patients expect from ICTs and which ICTs they prefer remains unknown. We assessed why CU patients use ICTs, which ones they prefer, and what drives their expectations and choices. Methods: In this cross-sectional study, 1841 patients across 17 countries were recruited at UCAREs (Urticaria Centers of Reference and Excellence). Patients with CU who were >12 years old completed a 23-item questionnaire. Results: Most patients were interested in receiving disease information (87.3%), asking physicians about CU (84.1%), and communicating with other patients through ICTs (65.6%). For receiving disease information, patients preferred one-to-one and one-to-many ICTs, especially web browsers. One-to-one ICTs were also the ICTs of choice for asking physicians about urticaria and for communicating with other patients, and e-mail and WhatsApp were the preferred ICTs, respectively. Many-to-many ICTs such as Facebook, Instagram, LinkedIn, and Twitter were least preferred for all 3 purposes. Living in rural areas and higher education were linked to higher odds of being interested in receiving disease information, asking physicians, and communicating with patients through ICTs. Conclusions: Most patients and especially patients with higher education who live in rural areas are interested in using ICTs for their healthcare, but prefer different ICTs for different purposes, ie, web browsers for obtaining information, e-mail for asking physicians, and WhatsApp for communicating with other patients. Our findings may help to improve ICTs for CU.

Published
2021

48. Definition, aims, and implementation of GA(2)LEN/HAEi Angioedema Centers of Reference and Excellence

Author

Maurer, Marcus Werner, Aberer Agondi, Rosana Al-Ahmad, Mona and Al-Nesf, Maryam Ali Ansotegui, Ignacio Arnaout, Rand and Arruda, Luisa Karla Asero, Riccardo Aygoeren-Puersue, Emel and Banerji, Aleena Bauer, Andrea Ben-Shoshan, Moshe Berardi, Alejandro Bernstein, Jonathan A. Betschel, Stephen and Bindslev-Jensen, Carsten Bizjak, Mojca Boccon-Gibod, Isabelle and Bork, Konrad Bouillet, Laurence Boysen, Henrik Balle and Brodszki, Nicholas Broesby-Olsen, Sigurd Busse, Paula and Buttgereit, Thomas Bygum, Anette Caballero, Teresa Campos, Regis A. Cancian, Mauro Cherrez-Ojeda, Ivan Cohn, Danny M. and Costa, Celia Craig, Timothy Criado, Paulo Ricardo and Criado, Roberta F. Csuka, Dorottya Dissemond, Joachim and Du-Thanh, Aurelie Ensina, Luis Felipe Ertas, Ragip Fabiani, Jose E. Fantini, Claudio Farkas, Henriette Ferrucci, Silvia Mariel Figueras-Nart, Ignasi Fili, Natalia L. Fomina, Daria and Fukunaga, Atsushi Gelincik, Asli Gimenez-Arnau, Ana and Godse, Kiran Gompels, Mark Goncalo, Margarida Gotua, Maia and Gower, Richard Grumach, Anete S. Guidos-Fogelbach, Guillermo and Hide, Michihiro Ilina, Natalia Inomata, Naoko Jakob, Thilo Josviack, Dario O. Kang, Hye-Ryun Kaplan, Allen and Kasperska-Zajac, Alicja Katelaris, Constance Kessel, Aharon and Kleinheinz, Andreas Kocaturk, Emek Kosnik, Mitja Krasowska, Dorota Kulthanan, Kanokvalai Kumaran, M. Sendhil Larco Sousa, Jose Ignacio Longhurst, Hilary J. Lumry, William and MacGinnitie, Andrew Magerl, Markus Makris, Michael P. and Malbran, Alejandro Marsland, Alexander Martinez-Saguer, Inmaculada Medina, Iris V. Meshkova, Raisa Metz, Martin and Nasr, Iman Nicolay, Jan Nishigori, Chikako Ohsawa, Isao and Ozyurt, Kemal Papadopoulos, Nikolaos G. Parisi, Claudio A. S. and Peter, Jonathan Grant Pfuetzner, Wolfgang Popov, Todor and Prior, Nieves Ramon, German D. Reich, Adam Reshef, Avner and Riedl, Marc A. Ritchie, Bruce Rockmann-Helmbach, Heike and Rudenko, Michael Salman, Andac Sanchez-Borges, Mario and Schmid-Grendelmeier, Peter Serpa, Faradiba S. Serra-Baldrich, Esther Sheikh, Farrukh R. Smith, William Soria, Angele and Staubach, Petra Steiner, Urs C. Stobiecki, Marcin Sussman, Gordon Tagka, Anna Thomsen, Simon Francis Treudler, Regina and Valle, Solange van Doorn, Martijn Varga, Lilian Vazquez, Daniel O. Wagner, Nicola Wang, Liangchun Weber-Chrysochoou, Christina Ye, Young-Min Zalewska-Janowska, Anna Zanichelli, Andrea Zhao, Zuotao Zhi, Yuxiang Zuberbier, Torsten and Zwiener, Ricardo D. Castaldo, Anthony

Published
2020

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