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7. Contents

Author

Johnson, David W.

Published
2019

17. Notes

Author

Johnson, David W.

Published
2019

24. Global variations in funding and use of hemodialysis accesses: an international report using the ISN Global Kidney Health Atlas

Author

Ghimire, Anukul, Shah, Samveg, Chauhan, Utkarsh, Ibrahim, Kwaifa Salihu, Jindal, Kailash, Kazancioglu, Rumeyza, Luyckx, Valerie A., MacRae, Jennifer M., Olanrewaju, Timothy O., Quinn, Robert R., Ravani, Pietro, Shah, Nikhil, Thompson, Stephanie, Tungsanga, Somkanya, Vachharanjani, Tushar, Arruebo, Silvia, Caskey, Fergus J., Damster, Sandrine, Donner, Jo-Ann, Jha, Vivekanand, Levin, Adeera, Malik, Charu, Nangaku, Masaomi, Saad, Syed, Tonelli, Marcello, Ye, Feng, Okpechi, Ikechi G., Bello, Aminu K., and Johnson, David W.

Published
2024
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26. Notes and Comments

Author

Gribble, Richard, Johnson, David W., Beagle, Donald Robert, Giemza, Bryan Albin, and O'Connell, David

Published
2010

29. Australian Workshops on Patients’ Perspectives on Hemodialysis and Incremental Start

Author

Hegerty, Katharine, Jaure, Allison, Scholes-Robertson, Nicole, Howard, Kirsten, Ju, Angela, Evangelidis, Nicole, Wolley, Martin, Baumgart, Amanda, Johnson, David W, Hawley, Carmel M, Reidlinger, Donna, Hickey, Laura, Welch, Alyssa, Cho, Yeoungjee, Kerr, Peter G, Roberts, Matthew A, Shen, Jenny I, Craig, Jonathan, Krishnasamy, Rathika, Viecelli, Andrea K, and investigators, INCremental dialysis to improve Health outcomes people starting Hemodialysis

Subjects
Assistive Technology, Kidney Disease, Bioengineering, Renal and urogenital, Good Health and Well Being, hemodialysis, incremental dialysis, patient-centered care, patient perspectives, quality of life, kidney function, INCremental dialysis to improve Health outcomes people starting Hemodialysis (INCH-HD) investigators, residual kidney function
Abstract

IntroductionMost patients with kidney failure commence and continue hemodialysis (HD) thrice weekly. Incremental initiation (defined as HD less than thrice weekly) is increasingly considered to be safe and less burdensome, but little is known about patients' perspectives. We aimed to describe patients' priorities and concerns regarding incremental HD.MethodsPatients currently, previously, or soon to be receiving HD in Australia participated in two 90-minute online workshops to discuss views about HD focusing on incremental start and priorities for trial outcomes. Transcripts were analyzed using thematic analysis. Outcomes were ranked on the basis of the sum of participants' priority scores (i.e., single allocation of 3 points for most important, 2 for second, and 1 for third most important outcome).ResultsAll 26 participants (1 caregiver and 25 patients) preferred an incremental HD approach. The top prioritized outcomes were quality of life (QOL) (56 points), residual kidney function (RKF) (27 points), and mortality (16 points). The following 4 themes underpinning outcome priorities, experience, and safety concerns were identified: (i) unpreparedness and pressure to adapt, (ii) disruption to daily living, (iii) threats to safety, and (iv) hope and future planning.ConclusionPatients with kidney failure preferred an incremental start to HD to minimize disruption to daily living and reduce the negative impacts on their education, ability to work, and family life. QOL was the most critically important outcome, followed by RKF and survival.

Published
2023

30. This Issue

Author

Johnson, David W. and Johnson, Roger T.

Published
2004

31. International variation in evidence-based emergency department management of bronchiolitis: a retrospective cohort study

Author

Lirette, Marie-Pier, Kuppermann, Nathan, Finkelstein, Yaron, Zemek, Roger, Plint, Amy C, Florin, Todd Adam, Babl, Franz E, Dalziel, Stuart, Freedman, Stephen, Roland, Damian, Lyttle, Mark David, Schnadower, David, Steele, Dale, Fernandes, Ricardo M, Stephens, Derek, Kharbanda, Anupam, Johnson, David W, Macias, Charles, Benito, Javier, Schuh, Suzanne, and Networks, the Pediatric Emergency Research

Subjects
Biomedical and Clinical Sciences, Public Health, Health Sciences, Emergency Care, Clinical Research, Respiratory, Infant, Humans, Child, Retrospective Studies, Hospitalization, Bronchodilator Agents, Bronchiolitis, Emergency Service, Hospital, Dyspnea, PAEDIATRICS, Paediatric A&E and ambulatory care, Paediatric infectious disease & immunisation, Pediatric Emergency Research Networks, Clinical Sciences, Public Health and Health Services, Other Medical and Health Sciences, Biomedical and clinical sciences, Health sciences, Psychology
Abstract

ObjectivesWe aimed to evaluate the international variation in the use of evidence-based management (EBM) in bronchiolitis. We hypothesised that management consistent with full-EBM practices is associated with the research network of care, adjusted for patient-level characteristics. Secondary objectives were to determine the association between full-EBM and (1) hospitalisation and (2) emergency department (ED) revisits resulting in hospitalisation within 21 days.DesignA secondary analysis of a retrospective cohort study.Setting38 paediatric EDs belonging to the Paediatric Emergency Research Network in Canada, USA, Australia/New Zealand UK/Ireland and Spain/Portugal.PatientsOtherwise healthy infants 2-11 months old diagnosed with bronchiolitis between 1 January 2013 and 31 December, 2013.Outcome measuresPrimary outcome was management consistent with full-EBM, that is, no bronchodilators/corticosteroids/antibiotics, no chest radiography or laboratory testing. Secondary outcomes included hospitalisations during the index and subsequent ED visits.Results1137/2356 (48.3%) infants received full-EBM (ranging from 13.2% in Spain/Portugal to 72.3% in UK/Ireland). Compared with the UK/Ireland, the adjusted ORs (aOR) of full-EBM receipt were lower in Spain/Portugal (aOR 0.08, 95% CI 0.02 to 0.29), Canada (aOR 0.13 (95% CI 0.06 to 0.31) and USA (aOR 0.16 (95% CI 0.07 to 0.35). EBM was less likely in infants with dehydration (aOR 0.49 (95% CI 0.33 to 0.71)), chest retractions (aOR 0.69 (95% CI 0.52 to 0.91)) and nasal flaring (aOR 0.69 (95% CI 0.52 to 0.92)). EBM was associated with reduced odds of hospitalisation at the index visit (aOR 0.77 (95% CI 0.60 to 0.98)) but not at revisits (aOR 1.17 (95% CI 0.74 to 1.85)).ConclusionsInfants with bronchiolitis frequently do not receive full-EBM ED management, particularly those outside of the UK/Ireland. Furthermore, there is marked variation in full-EBM between paediatric emergency networks, and full-EBM delivery is associated with lower likelihood of hospitalisation. Given the global bronchiolitis burden, international ED-focused deimplementation of non-indicated interventions to enhance EBM is needed.

Published
2022

33. The Efficacy and Safety of Reduced-Dose Oral Methylprednisolone in High-Risk Immunoglobulin A Nephropathy

Author

Levin, Adeera, Cattran, Daniel, Johnson, David W., Wheeler, David, Flöge, Jürgen, Woodward, Mark, Jardine, Meg, Zhao, Ming-hui, Agarwal, Rajiv, Glassock, Richard, Chan, Tak Mao, Wu, Yangfeng, Liu, Zhihong, Kim, Dana, Lv, Jicheng, Hladunewich, Michelle, Jha, Vivekanand, Hooi, Lai Seong, Monaghan, Helen, Shan, Sana, Reich, Heather N., Barbour, Sean, Billot, Laurent, Zhang, Hong, Perkovic, Vlado, and Wong, Muh Geot

Published
2024
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35. Health care impact of implementing a clinical pathway for acute care of pediatric concussion: a stepped wedge, cluster randomised trial

Author

Yeates, Keith Owen, Barlow, Karen M., Wright, Bruce, Tang, Ken, Barrett, Olesya, Berdusco, Edward, Black, Amanda M., Clark, Brenda, Conradi, Alf, Godfrey, Heather, Kolstad, Ashley T., Ly, Anh, Mikrogianakis, Angelo, Purser, Ross, Schneider, Kathryn, Stang, Antonia S., Zemek, Roger, Zwicker, Jennifer D., and Johnson, David W.

Published
2023
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38. Fortune telling healthcare's dismal future

Author

Johnson, David W.

Subjects
Business, Health care industry
Abstract

January 1970 was a long time ago. Richard Nixon celebrated the first anniversary of his presidency. The Vietnam War was raging. The Paris Peace Accords, the Arab oil embargo, stagflation, [...]

Published
2024

40. Establishing a Core Outcome Measure for Peritoneal Dialysis-related Peritonitis: A Standardized Outcomes in Nephrology—Peritoneal Dialysis Consensus Workshop Report

Author

Shen, Jenny I, Cho, Yeoungjee, Manera, Karine E, Brown, Fiona, Dong, Jie, Sahlawi, Muthana Al, Acevedo, Rafael G, Htay, Htay, Ito, Yasuhiko, Kanjanabuch, Talerngsak, Nessim, Sharon J, Ngaruiya, Grace, Piraino, Beth, Szeto, Cheuk-Chun, Teitelbaum, Isaac, Amir, Noa, Craig, Jonathan C, Baumgart, Amanda, Gonzalez, Andrea M, Scholes-Robertson, Nicole, Viecelli, Andrea K, Wilkie, Martin, Tong, Allison, Perl, Jeffrey, Committee, SONG Executive, Craig, Jonathan, Wang, Angela, Hemmelgarn, Brenda, Manns, Braden, Wheeler, David, Gill, John, Tugwell, Peter, Pecoits-Filho, Roberto, Crowe, Sally, Harris, Tess, Van Biesen, Wim, Winkelmayer, Wolfgang, Group, SONG-PD Steering, Johnson, David W, Brown, Edwina, Brunier, Gillian, Manera, Karine, Mehrotra, Rajnish, Dunning, Sue-Ann, Dunning, Tony, Group, SONG-PD Infection Expert Working, Perl, Jeff, Szeto, CC, Forfang, Derek, Gomez, Rafael, Nessim, Sharon, Shen, Jenny, Committee, SONG Coordinating, Martin, Adam, Bernier-Jean, Amelie, Gonzalez, Andrea Matus, Viecelli, Andrea, Ju, Angela, Teixera-Pinto, Armando, Sautenet, Benedicte, Hanson, Camilla, Guha, Chandana, Sumpton, Daniel, Hannan, Elyssa, O’Lone, Emma, Au, Eric, Kerklaan, Jasmijn, Dunn, Louese, Howell, Martin, Nataatmadja, Melissa, Evangelidis, Nicole, Natale, Patrizia, Cazzolli, Rosanna, Anumudu, Samaya, Carter, Simon, Gutman, Talia, and Vastani, Thomas Vastani Rahim

Subjects
Health Services and Systems, Biomedical and Clinical Sciences, Clinical Sciences, Health Sciences, Clinical Research, Clinical Trials and Supportive Activities, Neurodegenerative, core outcome measure, peritoneal dialysis, peritonitis, trial design, SONG-PD Infection Workshop Investigators, Biomedical and clinical sciences, Health sciences
Abstract

IntroductionPeritoneal dialysis (PD)-related peritonitis is one of the leading causes of discontinuation of PD and is considered a critically important outcome for patients on PD. However, there is no universally accepted method of measuring this outcome in clinical trials.MethodsWe convened an online consensus workshop to establish a core outcome measure for PD-related peritonitis in clinical trials.ResultsA total of 53 participants, including 18 patients and caregivers, from 12 countries engaged in breakout discussions in this workshop. Transcripts were analyzed thematically. We identified the following 3 themes: (i) feasibility and applicability across diverse settings, which reflected the difficulty with implementing laboratory-based measures in resource-limited environments; (ii) ensuring validity, which included minimizing false positives and considering the specificity of symptoms; and (iii) being meaningful and tangible to patients, which meant that the measure should be easy to interpret, reflect the impact that symptoms have on patients, and promote transparency by standardizing the reporting of peritonitis among dialysis units.ConclusionA core outcome measure for PD-related peritonitis should include both symptom-based and laboratory-based criteria. Thus, the International Society for Peritoneal Dialysis (ISPD) definition of peritonitis is acceptable. However, there should be consideration of reporting suspected peritonitis in cases where laboratory confirmation is not possible. The measure should include all infections from the time of catheter insertion and capture both the rate of infection and the number of patients who remain peritonitis free. A core outcome measure with these features would increase the impact of clinical trials on the care and decision-making of patients receiving PD.

Published
2022

43. Multi-center, pragmatic, cluster-randomized, controlled trial of standardized peritoneal dialysis (PD) training versus usual care on PD-related infections (the TEACH-PD trial): trial protocol

Author

Chow, Josephine S. F., Boudville, Neil, Cho, Yeoungjee, Palmer, Suetonia, Pascoe, Elaine M., Hawley, Carmel M., Reidlinger, Donna M., Hickey, Laura E., Stastny, Ruth, Valks, Andrea, Vergara, Liza, Movva, Ramya, Kiriwandeniya, Charani, Candler, Hayley, Mihala, Gabor, Buisman, Bernadette, Equinox, Keri-Lu, Figueiredo, Ana E., Fuge, Trudi, Howard, Kirsten, Howell, Martin, Jaure, Allison, Jose, Matthew D., Lee, Anna, Miguel, Susana S., Moodie, Jo-anne, Nguyen, Thu T., Pinlac, Geraldine, Reynolds, Annie, Saweirs, Walaa W. M., Steiner-Lim, Genevieve Z., TeWhare, Bronwen, Tomlins, Melinda, Upjohn, Megan, Voss, David, Walker, Rachael C., Wilson, Joanne, and Johnson, David W.

Published
2023
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47. A Focus Group Study of Self-Management in Patients With Glomerular Disease

Author

Carter, Simon A, Teng, Claris, Gutman, Talia, Logeman, Charlotte, Cattran, Dan, Lightstone, Liz, Bagga, Arvind, Barbour, Sean J, Barratt, Jonathan, Boletis, John, Caster, Dawn J, Coppo, Rosanna, Fervenza, Fernando C, Floege, Jürgen, Hladunewich, Michelle A, Hogan, Jonathan J, Kitching, A Richard, Lafayette, Richard A, Malvar, Ana, Radhakrishnan, Jai, Rovin, Brad H, Scholes-Robertson, Nicole, Trimarchi, Hernán, Zhang, Hong, Azukaitis, Karolis, Cho, Yeoungjee, Viecelli, Andrea K, Dunn, Louese, Harris, David, Johnson, David W, Kerr, Peter G, Laboi, Paul, Ryan, Jessica, Shen, Jenny I, Ruiz, Lorena, Wang, Angela Yee-Moon, Lee, Achilles Hoi Kan, Shun, Samuel Fung Ka, Tong, Matthew Ka-Hang, Teixeira-Pinto, Armando, Wilkie, Martin, Alexander, Stephen I, Craig, Jonathan C, Martin, Adam, and Tong, Allison

Subjects
Health Services and Systems, Health Sciences, Behavioral and Social Science, Health Services, Clinical Research, Management of diseases and conditions, 7.1 Individual care needs, Good Health and Well Being, focus groups, glomerulonephritis, personal autonomy, self-management, therapeutic alliance, Biomedical and clinical sciences, Health sciences
Abstract

IntroductionPatients with glomerular disease experience symptoms that impair their physical and mental health while managing their treatments, diet, appointments and monitoring general and specific indicators of health and their illness. We sought to describe the perspectives of patients and their care partners on self-management in glomerular disease.MethodsWe conducted 16 focus groups involving adult patients with glomerular disease (n = 101) and their care partners (n = 34) in Australia, Hong Kong, the United Kingdom, and United States. Transcripts were analyzed thematically.ResultsWe identified the following 4 themes: empowered in autonomy (gaining confidence through understanding, taking ownership of disease and treatment, learning a positive health approach); overwhelmed by compounding treatment burdens (financially undermined and depleted, demoralized by side effects and harms, frustrated by fragmented and inflexible care, fear of possible drug harms); striving for stability and normalcy (making personal sacrifices, maximizing life participation, attentiveness to bodily signs, avoiding precarious health states, integrating medicines into routines); and necessity of health-sustaining relationships (buoyed by social support, fulfilling meaningful responsibilities, sharing and normalizing experiences, seeking a trusting and respectful alliance).ConclusionPatients with glomerular disease and their care partners value their capacity for autonomy and disease ownership, stability of their health, and relationships that support self-management. Strategies directed at strengthening these factors may increase self-efficacy and improve the care and outcomes for patients with glomerular disease.

Published
2022

49. Self-Directed Learning for the 21st Century

Author

Bergamin, Per B., Bosch, Chantelle, du Toit, Adri, Goede, Roelien, Golightly, Aubrey, Johnson, David W., Johnson, Roger T., Kruger, Corné, Laubscher, Dorothy, Lubbe, Anitia, Olivier, Jako, van der Westhuizen, Christo, van Zyl, Sukie, Bailey, Roxanne, de Beer, Josef, and Mentz, Elsa

Subjects
Self-directed learning, learning, student, educator, cooperative learning, theory, context, bic Book Industry Communication::J Society & social sciences::JN Education::JNM Higher & further education, tertiary education
Abstract

This book is devoted to scholarship in the field of self-directed learning in the 21st century, with specific reference to higher education. The target audience of the book includes scholars in the field of self-directed learning and higher education. The book contributes to the discourse on the quality of education in the 21st century and adds to the body of scholarship in terms of self-directed learning, and specifically its role in higher education. Although all the chapters in the book directly address self-directed learning, the different foci and viewpoints raised make the book a rich knowledge bank of work on self-directed learning.

Published
2019
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50. Baseline characteristics of participants in the NAVKIDS2 trial: a patient navigator program in children with chronic kidney disease

Author

Guha, Chandana, Khalid, Rabia, van Zwieten, Anita, Francis, Anna, Hawley, Carmel M., Jauré, Allison, Teixeira-Pinto, Armando, Mallard, Alistair R., Bernier-Jean, Amelie, Johnson, David W., Hahn, Deirdre, Reidlinger, Donna, Pascoe, Elaine M., Ryan, Elizabeth G., Mackie, Fiona, McCarthy, Hugh J., Craig, Jonathan C., Varghese, Julie, Kiriwandeniya, Charani, Howard, Kirsten, Larkins, Nicholas G., Macauley, Luke, Walker, Amanda, Howell, Martin, Irving, Michelle, Caldwell, Patrina H. Y., Woodleigh, Reginald, Jesudason, Shilpanjali, Carter, Simon A., Kennedy, Sean E., Alexander, Stephen I., McTaggart, Steven, and Wong, Germaine

Published
2023
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