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19 results on '"Jarvis, Stuart William"'

11. Place of death of children and young adults with a life-limiting condition in England: a retrospective cohort study.

Author

Gibson-Smith, Deborah, Jarvis, Stuart William, and Fraser, Lorna K.

Subjects
CHILD death, YOUNG adults, ONCOLOGY nursing, HOSPICE nurses, COHORT analysis
Abstract

Objective: To assess trends in place of death for children with a life-limiting condition and the factors associated with death at home or hospice rather than hospital.Design: Observational cohort study using linked routinely collected data.Setting: England.Patients: Children aged 0-25 years who died between 2003 and 2017.Main Outcome Measures: Place of death: hospital, hospice, home. Multivariable multinomial logistic regression models.Results: 39 349 children died: 73% occurred in hospital, 6% in hospice and 16% at home. In the multivariable models compared with dying in a hospital: neonates were less likely, and those aged 1-10 years more likely, than those aged 28 days to <1 year to die in hospice. Children from all ethnic minority groups were significantly less likely to die in hospice, as were those in the most deprived group (RR 0.8, 95% CI 0.7 to 0.9). Those who died from 2008 were more likely than those who died earlier to die in a hospice.Children with cancer (RR 4.4, 95% CI 3.8 to 5.1), neurological (RR 2.0, 95% CI 1.7 to 2.3) or metabolic (RR 3.7, 95% CI 3.0 to 4.6) diagnoses were more likely than those with a congenital diagnosis to die in a hospice.Similar patterns were seen for clinical/demographic factors associated with home versus hospital deaths.Conclusions: Most children with a life-limiting condition continue to die in the hospital setting. Further research on preferences for place of death is needed especially in children with conditions other than cancer. Paediatric palliative care services should be funded adequately to enable equal access across all settings, diagnostic groups and geographical regions. [ABSTRACT FROM AUTHOR]

Published
2021
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14. Comparing routine inpatient data and death records as a means of identifying children and young people with life limiting conditions

Author

Jarvis, Stuart William and Fraser, Lorna Katharine

Abstract

Background Recent estimates of the number of children and young people with life limiting conditions derived from routine inpatient data are higher than earlier estimates using death record data. Aim To compare routine inpatient data and death records as means of identifying life limiting conditions in children and young people. Design Two national cohorts of children and young people with a life limiting condition (primary cohort from England with a comparator cohort from Scotland) were identified using linked routinely collected healthcare and administrative data. Participants 37563 children and young people with a life limiting condition in England who died between 1 April 2001 and 30 March 2015 and 2249 children and young people with a life limiting condition in Scotland who died between 1 April 2003 and 30 March 2014. Results In England, 16642 (57%) non-neonatal cohort members had a life limiting condition recorded as the underlying cause of death; 3364 (12%) had a life limiting condition -related condition recorded as the underlying cause and 3435 (12%) had life limiting conditions recorded only among contributing causes. 5651 (19%) non-neonates and 3443 (41%) neonates had no indication of a life limiting condition recorded in their death records. Similar results were seen in Scotland (overall, 16% had no indication of life limiting conditions). In both cohorts, the recording of life limiting condition was highest amongst those with haematology or oncology diagnoses and lowest for genitourinary and gastrointestinal diagnoses.

Published
2017

19. Children in Scotland Requiring Palliative Care : identifying numbers and needs (The ChiSP Study)

Author

Fraser, Lorna Katharine, Jarvis, Stuart William, Moran, Nicola Elizabeth, Aldridge, Jan, Parslow, Roger C, and Beresford, Bryony Anne

Abstract

This report sets out the findings from an investigation into the numbers of children and young people with life-limiting conditions in Scotland, and what current evidence tells us about their, and their families’, psychosocial support needs. The overall purpose of the study was to develop an evidence base to support and inform planning for children’s palliative care in Scotland. It is hoped that the evidence generated will be a resource to organisations with responsibility for, or delivering services to, children and young people with life-limiting conditions.

Published
2015

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