17 results on '"Hives, L."'
Search Results
2. Clinical practice guidelines for videofluoroscopic swallowing studies: A systematic review
- Author
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Boaden, E., Nightingale, J., Bradbury, C., Hives, L., and Georgiou, R.
- Published
- 2020
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3. Psychological and psychosocial aspects of major trauma care: A survey of current practice across UK and Ireland.
- Author
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Olive, P., Hives, L., Ashton, A., O'Brien, M. C., Taylor, A., Mercer, G., Horsfield, C., Carey, R., Jassat, R., Spencer, J., and Wilson, N.
- Subjects
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FAMILIES & psychology , *WOUNDS & injuries , *CROSS-sectional method , *CLINICAL psychology , *PSYCHOLOGICAL distress , *MENTAL health services , *RESEARCH funding , *DESCRIPTIVE statistics , *DATA analysis software - Abstract
Introduction: Psychological and psychosocial impacts of major trauma, defined as any injury that has the potential to be life-threatening and/or life changing, are common, far-reaching and often enduring. There is evidence that these aspects of major trauma care are often underserved. The aim of this research was to gain insight into the current provision and operationalisation of psychological and psychosocial aspects of major trauma care across the UK and Ireland. Methods: A cross-sectional online survey, open to health professionals working in major trauma network hospitals was undertaken. The survey had 69 questions across six sections: Participant Demographics, Psychological First Aid, Psychosocial Assessment and Care, Assessing and Responding to Distress, Clinical Psychology Services, and Major Trauma Keyworker (Coordinator) Role. Results: There were 102 respondents from across the regions and from a range of professional groups. Survey findings indicate a lack of formalised systems to assess, respond and evaluate psychological and psychosocial aspects of major trauma care, most notably for patients with lower-level distress and psychosocial support needs, and for trauma populations that don't reach threshold for serious injury or complex health need. The findings highlight the role of major trauma keyworkers (coordinators) in psychosocial aspects of care and that although major trauma clinical psychology services are increasingly embedded, many lack the capacity to meet demand. Conclusion: Neglecting psychological and psychosocial aspects of major trauma care may extend peritraumatic distress, result in preventable Years Lived with Disability and widen post-trauma health inequalities. A stepped psychological and psychosocial care pathway for major trauma patients and their families from the point of injury and continuing as they move through services towards recovery is needed. Research to fulfil knowledge gaps to develop and implement such a model for major trauma populations should be prioritised along with the development of corresponding service specifications for providers. [ABSTRACT FROM AUTHOR]
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- 2024
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4. Psychological and psychosocial aspects of major trauma care: A survey of current practice across UK and Ireland
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Olive, P, primary, Hives, L, additional, Ashton, A, additional, O’Brien, MC, additional, Taylor, A, additional, Mercer, G, additional, Horsfield, C, additional, Carey, R, additional, Jassat, R, additional, Spencer, J, additional, and Wilson, N, additional
- Published
- 2023
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5. sj-docx-1-tra-10.1177_14604086221145529 - Supplemental material for Psychological and psychosocial aspects of major trauma care: A survey of current practice across UK and Ireland
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Olive, P, Hives, L, Ashton, A, O’Brien, MC, Taylor, A, Mercer, G, Horsfield, C, Carey, R, Jassat, R, Spencer, J, and Wilson, N
- Subjects
111708 Health and Community Services ,FOS: Clinical medicine ,FOS: Health sciences ,110305 Emergency Medicine - Abstract
Supplemental material, sj-docx-1-tra-10.1177_14604086221145529 for Psychological and psychosocial aspects of major trauma care: A survey of current practice across UK and Ireland by P Olive, L Hives, A Ashton, MC O’Brien, A Taylor, G Mercer, C Horsfield, R Carey, R Jassat, J Spencer and N Wilson in Trauma
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- 2023
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6. sj-docx-2-tra-10.1177_14604086221145529 - Supplemental material for Psychological and psychosocial aspects of major trauma care: A survey of current practice across UK and Ireland
- Author
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Olive, P, Hives, L, Ashton, A, O’Brien, MC, Taylor, A, Mercer, G, Horsfield, C, Carey, R, Jassat, R, Spencer, J, and Wilson, N
- Subjects
111708 Health and Community Services ,FOS: Clinical medicine ,FOS: Health sciences ,110305 Emergency Medicine - Abstract
Supplemental material, sj-docx-2-tra-10.1177_14604086221145529 for Psychological and psychosocial aspects of major trauma care: A survey of current practice across UK and Ireland by P Olive, L Hives, A Ashton, MC O’Brien, A Taylor, G Mercer, C Horsfield, R Carey, R Jassat, J Spencer and N Wilson in Trauma
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- 2023
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7. sj-docx-3-tra-10.1177_14604086221145529 - Supplemental material for Psychological and psychosocial aspects of major trauma care: A survey of current practice across UK and Ireland
- Author
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Olive, P, Hives, L, Ashton, A, O’Brien, MC, Taylor, A, Mercer, G, Horsfield, C, Carey, R, Jassat, R, Spencer, J, and Wilson, N
- Subjects
111708 Health and Community Services ,FOS: Clinical medicine ,FOS: Health sciences ,110305 Emergency Medicine - Abstract
Supplemental material, sj-docx-3-tra-10.1177_14604086221145529 for Psychological and psychosocial aspects of major trauma care: A survey of current practice across UK and Ireland by P Olive, L Hives, A Ashton, MC O’Brien, A Taylor, G Mercer, C Horsfield, R Carey, R Jassat, J Spencer and N Wilson in Trauma
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- 2023
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8. Can physical assessment techniques aid diagnosis in people with chronic fatigue syndrome/myalgic encephalomyelitis? A diagnostic accuracy study.
- Author
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Hives, L, Bradley, A, Richards, J, Sutton, C, Selfe, J, Basu, B, Maguire, K, Sumner, G, Gaber, T, Mukherjee, A, Perrin, RN, Hives, L, Bradley, A, Richards, J, Sutton, C, Selfe, J, Basu, B, Maguire, K, Sumner, G, Gaber, T, Mukherjee, A, and Perrin, RN
- Abstract
To assess five physical signs to see whether they can assist in the screening of patients with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) and potentially lead to quicker treatment.This was a diagnostic accuracy study with inter-rater agreement assessment. Participants recruited from two National Health Service hospitals, local CFS/ME support groups and the community were examined by three practitioners on the same day in a randomised order. Two allied health professionals (AHPs) performed independent examinations of physical signs including: postural/mechanical disturbances of the thoracic spine, breast varicosities, tender Perrin's point, tender coeliac plexus and dampened cranial flow. A physician conducted a standard clinical neurological and rheumatological assessment while looking for patterns of illness behaviour. Each examination lasted approximately 20 min.Ninety-four participants were assessed, 52 patients with CFS/ME and 42 non-CFS/ME controls, aged 18-60. Cohen's kappa revealed that agreement between the AHPs was substantial for presence of the tender coeliac plexus (κ=0.65, p<0.001) and moderate for postural/mechanical disturbance of the thoracic spine (κ=0.57, p<0.001) and Perrin's point (κ=0.56, p<0.001). A McNemar's test found no statistically significant bias in the diagnosis by the experienced AHP relative to actual diagnosis (p=1.0) and a marginally non-significant bias by the newly trained AHP (p=0.052). There was, however, a significant bias in the diagnosis made by the physician relative to actual diagnosis (p<0.001), indicating poor diagnostic utility of the clinical neurological and rheumatological assessment.Using the physical signs appears to improve the accuracy of identifying people with CFS/ME and shows agreement with current diagnostic techniques. However, the present study concludes that only two of these may be needed. Examining for physical signs is both quick and simple for the AHP and may be used as an efficient scr
- Published
- 2017
9. Social media influencers in the space of pregnancy and parenting: a scoping review protocol.
- Author
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Hives L, Bray EP, Nowland R, and Thomson G
- Subjects
- Female, Humans, Pregnancy, Research Design, Parenting, Social Media
- Abstract
Introduction: Social media influencers (SMIs) are popular sources of online information on various topics, including many aspects of health. Recently, there has been an upsurge in SMIs creating content about pregnancy and parenting, including from midwives, pregnant women and parents. Despite its popularity, SMI content on pregnancy and parenting is not currently regulated, which allows for misinformation and potential harm to women and their children. Research has also found that most women do not discuss the information they access online with their healthcare providers.This is the first scoping review to map the existing evidence on SMIs in the context of pregnancy and early parenting., Methods and Analysis: The scoping review will be conducted from May to December 2024 and reported using guidance from Arksey and O'Malley and the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews checklist. 10 academic databases will be searched for relevant studies, using keywords and subject headings for the concepts of "social media", "influencers", "pregnancy" and "parenting." All primary and secondary research studies of pregnancy and early parenting SMIs will be included. Two authors will screen the identified studies for eligibility. The risk of bias of the included studies will not be assessed. Extracted data will be presented in tables and will be described narratively., Ethics and Dissemination: Ethical approval was not needed for this scoping review. Results will be published in a peer-reviewed journal, presented at conferences, posted on social media and presented to relevant groups., Registration Details: The review is registered with the Open Science Framework (https://osf.io/7v4qb https://osf.io/7v4qb)., Competing Interests: Competing interests: None declared., (© Author(s) (or their employer(s)) 2024. Re-use permitted under CC BY. Published by BMJ.)
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- 2024
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10. Building Engagement-Capable Environments for Health System Transformation: Development and Early Implementation of a Capability Framework for Patient, Family and Caregiver Engagement in Ontario Health Teams.
- Author
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Abelson J, Tripp L, Abdelhalim R, Hives L, Kristy BL, Smith M, Tenhagen L, and Wingham-Smith L
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- Humans, Ontario, Patient Participation, Patient Care Team, Family, Delivery of Health Care, Surveys and Questionnaires, Capacity Building, Caregivers
- Abstract
Introduction: Despite widespread calls to involve patients, families and caregivers (PFCs) as partners at all levels of health system planning and design, there is unevenness in how engagement efforts are supported across these settings. The concept of 'engagement-capable environments' offers a way forward to uncover the key requirements for sustainable, high-quality engagement, but more work is needed to identify the specific competencies required to create these environments. We addressed this gap by developing a capability framework for Ontario Health Teams (OHTs), a newly established structure for planning, designing, organizing and delivering care in Ontario, Canada., Methods: The framework was co-developed by a Working Group of OHT staff and leaders, PFC partners, researchers and government personnel. Project activities occurred over four phases: (1) planning, (2) evidence review and surveying of intended users to identify key competencies, (3) framework design and (4) implementation., Results: An evidence review identified more than 90 potential competencies for this work. These results were contextualized and expanded through a survey of OHT stakeholders to brainstorm potential competencies, supports and enablers for engagement. Surveys were completed by 69 individuals; 689 knowledge and skill competency statements, 462 attitude and behaviour competency statements and 250 supports and enablers were brainstormed. The statements were analysed and organized into initial competency categories, which were reviewed, discussed and iteratively refined by Working Group members and through broader consultations with the OHT community. The final framework includes six competency domains and four support and enabler domains, each with sub-domain elements, mapped across a three-stage maturity model. The framework has been disseminated across OHTs, and its adoption and implementation are now requirements within OHT agreements., Conclusion: The framework combines a strong conceptual foundation with actionable elements informed by the literature and consultations with the intended users of the framework. Although developed for OHTs, the framework should be broadly applicable to other health system organizations seeking similar health system transformation goals., Patient Contribution: Patient, family and caregiver partners were involved at all stages and in all aspects of the work. As end users of the framework, their perspectives, knowledge and opinions were critical., (© 2024 The Author(s). Health Expectations published by John Wiley & Sons Ltd.)
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- 2024
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11. Fidelity to and utility of a home blood pressure self-monitoring regime in people with pre-hypertension: results from the REVERSE study.
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Bray E, Hives L, Spencer J, Georgiou R, Benedetto V, Clegg A, Rutter P, Watkins C, and Williams N
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- Humans, Female, Male, Middle Aged, Aged, Prospective Studies, Adult, England, Blood Pressure physiology, Self Care, Blood Pressure Monitoring, Ambulatory methods, Feasibility Studies, Prehypertension diagnosis
- Abstract
Introduction: Around 40% of adults have pre-hypertension (120-139/80-89mmHg) increasing their risk of developing hypertension and associated cardiovascular conditions. Guidance on pre-hypertension management focuses on improving lifestyle. Self-monitoring may improve awareness and understanding of blood pressure (BP) for people with pre-hypertension, allowing them to modify their lifestyle risks., Aim: To determine the fidelity to and utility of a home BP self-monitoring regime in people with pre-hypertension., Method: This sub-study is part of a larger prospective, non-randomised feasibility study. Individuals with pre-hypertension were identified via GP records and pharmacy NHS Health Checks in Northwest England. Participants received training for home BP self-monitoring. They were asked to complete two readings (leaving a 5-minute interval) on the first three days of the month for six months, colour-code their readings and take action using a simple algorithm, then send them to the research team within 7 days., Results: Eighty participants (aged 40-79, mean=59) enrolled. The majority were female (n=45, 56%), White British (n=79, 99%), and had not previously monitored their BP (n=55, 69%). Seventy-five (94%) participants completed the training. Sixty-one (81%) received online training and 14 (19%) opted for a face-to-face session. Sixty-one (81%) completed all six months of readings, 51 (68%) also returned them on time. All in-person training participants completed all six months of readings on time. Reasons for non-compliance to the protocol included battery issues, forgetting, and struggling to find a consistent time for readings., Conclusion: Home BP self-monitoring can be feasible and easily implementable for people with pre-hypertension - however, some barriers were identified., (© British Journal of General Practice 2024.)
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- 2024
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12. Non-pharmacological interventions for the reduction and maintenance of blood pressure in people with prehypertension: a systematic review protocol.
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Bray EP, Georgiou RF, Hives L, Iqbal N, Benedetto V, Spencer J, Harris C, Clegg A, Williams N, Rutter P, and Watkins C
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- Humans, Blood Pressure, Systematic Reviews as Topic, Physical Examination, Prehypertension therapy, Hypertension therapy
- Abstract
Introduction: Prehypertension is defined as blood pressure that is above the normal range but not high enough to be classed as hypertension. Prehypertension is a warning of development of hypertension as well as a risk for cardiovascular disease, heart attack and stroke. In the UK, non-pharmacological interventions are recommended for prehypertension management but no reviews have focused on the effectiveness of these types of interventions solely in people with prehypertension. Therefore, the proposed systematic review will assess the clinical effectiveness and cost-effectiveness of non-pharmacological interventions in reducing or maintaining blood pressure in prehypertensive people., Methods and Analysis: This systematic review will follow the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. The databases/trial registries that will be searched to identify relevant randomised controlled trials (RCTs) and economic evaluations include Medline, EMBASE, CINAHL, PsycINFO, CENTRAL, the WHO International Clinical Trials Registry Platform, ClinicalTrials.gov, Cochrane Library, Scopus and the International HTA Database. Search terms have been identified by the team including an information specialist. Three reviewers will be involved in the study selection process. Risk of bias will be evaluated using the Cochrane risk-of-bias tool for RCTs and the Consensus Health Economic Criteria list for economic evaluations. Findings from the included studies will be tabulated and synthesised narratively. Heterogeneity will be assessed through visual inspection of forest plots and the calculation of the χ
2 and I2 statistics and causes of heterogeneity will be assessed where sufficient data are available. If possible, we plan to investigate differential effects on specific subgroups and from different types of interventions using meta-regression. Where relevant, the Grading of Recommendations, Assessment, Development and Evaluations (GRADE) will be used to assess the certainty of the evidence found., Ethics and Dissemination: Ethical approval is not needed. Results will be published in a peer-reviewed journal, disseminated via the wider study website and shared with the study sites and participants., Registration Details: The review is registered with PROSPERO (CRD420232433047)., Competing Interests: Competing interests: VB, CH, AC, JS and CW are partly funded by the National Institute for Health Research Applied Research Collaboration North West Coast (NIHR ARC NWC). The views expressed are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health and Social Care., (© Author(s) (or their employer(s)) 2024. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)- Published
- 2024
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13. Risk reduction intervention for raised blood pressure (REVERSE): protocol for a mixed-methods feasibility study.
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Hives L, Georgiou RF, Spencer J, Benedetto V, Clegg A, Rutter P, Watkins C, Williams N, and Bray EP
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- Adult, Humans, Blood Pressure physiology, Feasibility Studies, Prospective Studies, Risk Reduction Behavior, Prehypertension
- Abstract
Introduction: Around 40% of adults have pre-hypertension (blood pressure between 120-139/80-89), meaning they are at increased risk of developing hypertension and other cardiovascular disease-related conditions. There are limited studies on the management of pre-hypertension; however, guidance recommends that it should be focused on lifestyle modification rather than on medication. Self-monitoring of blood pressure could allow people to monitor and manage their risk status and may allow individuals to modify lifestyle factors. The purpose of this study is to determine the feasibility and acceptability, to both healthcare professionals and people with pre-hypertension, of blood pressure self-monitoring., Methods and Analysis: A prospective, non-randomised feasibility study, with a mixed-methods approach will be employed. Eligible participants (n=114) will be recruited from general practices, pharmacies and community providers across Lancashire and South Cumbria. Participants will self-monitor their blood pressure at home for 6 months and will complete questionnaires at three timepoints (baseline, 6 and 12 months). Healthcare professionals and participants involved in the study will be invited to take part in follow-up interviews and a focus group. The primary outcomes include the willingness to engage with the concept of pre-hypertension, the acceptability of self-monitoring, and the study processes. Secondary outcomes will inform the design of a potential future trial. A cost-analysis and cost-benefit analysis will be conducted., Ethics and Dissemination: Ethics approval has been obtained from London-Fulham NHS Research Ethics Committee, the University of Central Lancashire Health Ethics Review Panel and the HRA. The results of the study will be disseminated via peer-reviewed publications, feedback to service users and healthcare professionals, and to professional bodies in primary care and pharmacy., Trial Registration Number: ISRCTN13649483., Competing Interests: Competing interests: NW is a GP principal in Plas Menai Health Centre, Llanfairfechan, LL33 0PE. He is the deputy chair of the NIHR HTA Programme funding committee (commissioned research) and the chief investigator of two NIHR HTA Programme funded trials. VB, AC and CW are funded by the National Institute for Health and Care Research (NIHR) Applied Research Collaboration North West Coast., (© Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY. Published by BMJ.)
- Published
- 2023
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14. Screening for aspiration risk associated with dysphagia in acute stroke.
- Author
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Boaden E, Burnell J, Hives L, Dey P, Clegg A, Lyons MW, Lightbody CE, Hurley MA, Roddam H, McInnes E, Alexandrov A, and Watkins CL
- Subjects
- Humans, Mass Screening, Reproducibility of Results, Sensitivity and Specificity, Deglutition Disorders diagnosis, Deglutition Disorders etiology, Stroke complications
- Abstract
Background: Stroke can affect people's ability to swallow, resulting in passage of some food and drink into the airway. This can cause choking, chest infection, malnutrition and dehydration, reduced rehabilitation, increased risk of anxiety and depression, longer hospital stay, increased likelihood of discharge to a care home, and increased risk of death. Early identification and management of disordered swallowing reduces risk of these difficulties., Objectives: Primary objective • To determine the diagnostic accuracy and the sensitivity and specificity of bedside screening tests for detecting risk of aspiration associated with dysphagia in people with acute stroke Secondary objectives • To assess the influence of the following sources of heterogeneity on the diagnostic accuracy of bedside screening tools for dysphagia - Patient demographics (e.g. age, gender) - Time post stroke that the study was conducted (from admission to 48 hours) to ensure only hyperacute and acute stroke swallow screening tools are identified - Definition of dysphagia used by the study - Level of training of nursing staff (both grade and training in the screening tool) - Low-quality studies identified from the methodological quality checklist - Type and threshold of index test - Type of reference test SEARCH METHODS: In June 2017 and December 2019, we searched CENTRAL, MEDLINE, Embase, CINAHL, and the Health Technology Assessment (HTA) database via the Centre for Reviews and Dissemination; the reference lists of included studies; and grey literature sources. We contacted experts in the field to identify any ongoing studies and those potentially missed by the search strategy., Selection Criteria: We included studies that were single-gate or two-gate studies comparing a bedside screening tool administered by nurses or other healthcare professionals (HCPs) with expert or instrumental assessment for detection of aspiration associated with dysphagia in adults with acute stroke admitted to hospital., Data Collection and Analysis: Two review authors independently screened each study using the eligibility criteria and then extracted data, including the sensitivity and specificity of each index test against the reference test. A third review author was available at each stage to settle disagreements. The methodological quality of each study was assessed using the Quality Assessment of Studies of Diagnostic Accuracy (QUADAS-2) tool. We identified insufficient studies for each index test, so we performed no meta-analysis. Diagnostic accuracy data were presented as sensitivities and specificities for the index tests., Main Results: Overall, we included 25 studies in the review, four of which we included as narratives (with no accuracy statistics reported). The included studies involved 3953 participants and 37 screening tests. Of these, 24 screening tests used water only, six used water and other consistencies, and seven used other methods. For index tests using water only, sensitivity and specificity ranged from 46% to 100% and from 43% to 100%, respectively; for those using water and other consistencies, sensitivity and specificity ranged from 75% to 100% and from 69% to 90%, respectively; and for those using other methods, sensitivity and specificity ranged from 29% to 100% and from 39% to 86%, respectively. Twenty screening tests used expert assessment or the Mann Assessment of Swallowing Ability (MASA) as the reference, six used fibreoptic endoscopic evaluation of swallowing (FEES), and 11 used videofluoroscopy (VF). Fifteen screening tools had an outcome of aspiration risk, 20 screening tools had an outcome of dysphagia, and two narrative papers did not report the outcome. Twenty-one screening tests were carried out by nurses, and 16 were carried out by other HCPs (not including speech and language therapists (SLTs)). We assessed a total of six studies as low risk across all four QUADAS-2 risk of bias domains, and we rated 15 studies as low concern across all three applicability domains. No single study demonstrated 100% sensitivity and specificity with low risk of bias for all domains. The best performing combined water swallow and instrumental tool was the Bedside Aspiration test (n = 50), the best performing water plus other consistencies tool was the Gugging Swallowing Screen (GUSS; n = 30), and the best water only swallow screening tool was the Toronto Bedside Swallowing Screening Test (TOR-BSST; n = 24). All tools demonstrated combined highest sensitivity and specificity and low risk of bias for all domains. However, clinicians should be cautious in their interpretation of these findings, as these tests are based on single studies with small sample sizes, which limits the estimates of reliability of screening tests., Authors' Conclusions: We were unable to identify a single swallow screening tool with high and precisely estimated sensitivity and specificity based on at least one trial with low risk of bias. However, we were able to offer recommendations for further high-quality studies that are needed to improve the accuracy and clinical utility of bedside screening tools., (Copyright © 2021 The Cochrane Collaboration. Published by John Wiley & Sons, Ltd.)
- Published
- 2021
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15. Harms to health and well-being experienced by adult victims of interpersonal violence: a scoping review protocol.
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Olive P, Hives L, Wilson N, Nowland R, and Clegg A
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- Adult, Humans, Review Literature as Topic, Mental Health, Violence
- Abstract
Objective: The purpose of this scoping review is to identify the extent of research exploring the harms to health and well-being experienced by adult victims of different types of interpersonal violence., Introduction: Interpersonal violence is defined as violence between individuals. It can take many forms and may be physical, sexual, psychological, coercive, or deprivational in nature. Harms to health and well-being from being subjected to interpersonal violence are common and often endure long-term. Interpersonal violence may cause physical injury, often has mental health impacts, and is associated with greater risk for long-term medical conditions. Although a substantial body of research of the harms of different types of interpersonal violence exists, to date this has not been collated and mapped; this scoping review will address this gap., Inclusion Criteria: Peer-reviewed primary and secondary research studies that address the negative effects of interpersonal violence on the health and well-being of adult victims will be included. Studies of group violence, military veterans, and violence as acts of war will be excluded., Methods: Six electronic databases (MEDLINE, CINAHL Complete, Embase, PsycINFO, SocINDEX, and Cochrane Library) and web sources of specialist gray literature will be searched. The search will be restricted to publications from 2000 onward. Only studies published in English will be included. Screening and data extraction will be assessed by independent researcher verification processes. Relevant studies and their characteristics will be summarized using a pre-designed data extraction form. Further data synthesis will be undertaken to produce a coherent and comprehensive map of research in the field, identify gaps, and inform priorities for future directions of research and innovation., Competing Interests: The authors declare no conflict of interest., (Copyright © 2021 JBI.)
- Published
- 2021
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16. Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review.
- Author
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Doherty AJ, Atherton H, Boland P, Hastings R, Hives L, Hood K, James-Jenkinson L, Leavey R, Randell E, Reed J, Taggart L, Wilson N, and Chauhan U
- Abstract
Background: Globally, people with intellectual disabilities and/or autism experience health inequalities. Death occurs at a younger age and the prevalence of long-term morbidities is higher than in the general population. Despite this, their primary healthcare access rates are lower than the general population, their health needs are often unmet, and their views and experiences are frequently overlooked in research, policy, and practice., Aim: To investigate the barriers and facilitators reported by individuals with intellectual disabilities, autism, or both, and/or their carers, to accessing and utilising primary health care for their physical and mental health needs., Design & Setting: An integrative review was undertaken, which used systematic review methodology., Method: Electronic databases MEDLINE, Embase, CINAHL (Cumulative Index to Nursing and Allied Health Literature), and Cochrane were searched for relevant studies (all languages) using a search strategy. Two researchers independently screened the results and assessed the quality of the studies., Results: Sixty-three international studies were identified. Six main themes relating to barriers and facilitators emerged from an analysis of these studies. The main themes were: training; knowledge and awareness; communication; fear and embarrassment; involvement in healthcare decision-making; and time. All the themes were underpinned by the need for greater care, dignity, respect, collaborative relationships, and reasonable adjustments. Opposing barriers and facilitators were identified within each of the main themes., Conclusion: Adolescents and adults with intellectual disabilities and/or autism experience several barriers to accessing and utilising primary health care. The findings highlight the reasonable adjustments and facilitators that can be implemented to ensure that these individuals are not excluded from primary health care., (Copyright © 2020, The Authors.)
- Published
- 2020
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17. Can physical assessment techniques aid diagnosis in people with chronic fatigue syndrome/myalgic encephalomyelitis? A diagnostic accuracy study.
- Author
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Hives L, Bradley A, Richards J, Sutton C, Selfe J, Basu B, Maguire K, Sumner G, Gaber T, Mukherjee A, and Perrin RN
- Subjects
- Adolescent, Adult, Allied Health Personnel, Diagnostic Tests, Routine, Fatigue, Female, Humans, Male, Middle Aged, Physicians, Reproducibility of Results, Young Adult, Fatigue Syndrome, Chronic diagnosis, Physical Examination methods
- Abstract
Objective: To assess five physical signs to see whether they can assist in the screening of patients with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) and potentially lead to quicker treatment., Methods: This was a diagnostic accuracy study with inter-rater agreement assessment. Participants recruited from two National Health Service hospitals, local CFS/ME support groups and the community were examined by three practitioners on the same day in a randomised order. Two allied health professionals (AHPs) performed independent examinations of physical signs including: postural/mechanical disturbances of the thoracic spine, breast varicosities, tender Perrin's point, tender coeliac plexus and dampened cranial flow. A physician conducted a standard clinical neurological and rheumatological assessment while looking for patterns of illness behaviour. Each examination lasted approximately 20 min., Results: Ninety-four participants were assessed, 52 patients with CFS/ME and 42 non-CFS/ME controls, aged 18-60. Cohen's kappa revealed that agreement between the AHPs was substantial for presence of the tender coeliac plexus (κ=0.65, p<0.001) and moderate for postural/mechanical disturbance of the thoracic spine (κ=0.57, p<0.001) and Perrin's point (κ=0.56, p<0.001). A McNemar's test found no statistically significant bias in the diagnosis by the experienced AHP relative to actual diagnosis (p=1.0) and a marginally non-significant bias by the newly trained AHP (p=0.052). There was, however, a significant bias in the diagnosis made by the physician relative to actual diagnosis (p<0.001), indicating poor diagnostic utility of the clinical neurological and rheumatological assessment., Conclusions: Using the physical signs appears to improve the accuracy of identifying people with CFS/ME and shows agreement with current diagnostic techniques. However, the present study concludes that only two of these may be needed. Examining for physical signs is both quick and simple for the AHP and may be used as an efficient screening tool for CFS/ME. This is a small single-centre study, and therefore, further validation in other centres and larger populations is needed., Competing Interests: Competing interests: This research explored the findings by one of the co-authors, RNP. To avoid any conflict of interest, he was not involved in any of the recruitment of participants, clinical examinations, data collection or analysis. RNP’s role in the study was to assist with developing the design, writing the protocol, setting up the project coordinating committee with the different clinical recruitment centres, applying for ethical approval and assisting with the writing of the introduction and methods of the paper. There were no other conflicts of interest., (© Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2017. All rights reserved. No commercial use is permitted unless otherwise expressly granted.)
- Published
- 2017
- Full Text
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