1. Analysis of the Spanish national registry for pediatric home enteral nutrition (NEPAD): implementation rates and observed trends during the past 8 years.
- Author
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Pedrón-Giner, C, Navas-López, V M, Martínez-Zazo, A B, Martínez-Costa, C, Sánchez-Valverde, F, Blasco-Alonso, J, Moreno-Villares, J M, Redecillas-Ferreiro, S, Canals-Badía, M J, Rosell-Camps, A, Gil-Ortega, D, Gómez-López, L, García-Romero, R, Gutierrez-Junquera, C, Balmaseda-Serrano, E M, Bousoño-García, C, Marugán-Miguelsanz, J M, Peña-Quintana, L, González-Santana, D, and López-Ruzafa, E
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PEDIATRICS , *CHILDREN'S health , *CHRONIC diseases in children , *CHILD services , *CHILDREN , *TRENDS - Abstract
Background/Objectives:The home enteral nutrition (HEN) provides nutritional support to children with chronic diseases who are nutritionally compromised and allows them to be discharged more quickly from hospitals. In 2003, a web-based registry (Nutrición Enteral Pediátrica Ambulatoria y Domiciliaria, Pediatric Ambulatory and Home Enteral Nutrition -NEPAD-) was created with the objective of gathering information about pediatric HEN practices in Spain.AIM:The aim of this study was to report the implementation of the NEPAD (Nutrición Enteral Pediátrica Ambulatoria y Domiciliaria, Pediatric Ambulatory and Home Enteral Nutrition) registry of pediatric HEN in Spain and to analyze data evolution trends from 2003 to 2010.Subjects/Methods:The data from the Spanish NEPAD registry were analyzed according to the following variables: demographic data, diagnosis, indication for HEN, nutritional support regime and administration route.Results:Over the study period, 952 patients (1048 episodes) from 20 Spanish hospitals were included in the NEPAD registry. The most frequent indication for HEN was decreased oral intake (64%), and neurological disease was the most prevalent illness. HEN was delivered via a nasogastric tube in 573 episodes (54.7%), by gastrostomy in 375 episodes (35.8%), oral feeding in 77 episodes (7.3%) and by jejunal access in 23 episodes (2.2%). Significant differences in the mode of administration were observed based on the pathology of the child (χ2, P<0.0001). The cyclic feeding was the most widely used technique for the administration of HEN. Most of the patients used a pump and a polymeric formula. Transition to oral feeding was the primary reason for discontinuation of this type of support.Conclusions:Since the NEPAD registry was established in Spain, the number of documented patients has increased more than 25-fold. Many children with chronic illness benefit from HEN, mainly those suffering from neurological diseases. [ABSTRACT FROM AUTHOR]
- Published
- 2013
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