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2. National Perinatal Association 2024 Respiratory Syncytial Virus (RSV) Prevention Clinical Practice Guideline: Clinical Presentation, Prevention Strategies, and Social Impacts in Children: An Evidence-Based Interdisciplinary Collaboration.

Author

Goldstein, Mitchell, Hopkins, Benjamin, Kadri, Munaf, Fayard, Elba, Kraus, Nicole, Patterson, Angela, Scala, Melissa, Love, Kristy, Grogan, Cristal, Kraft, Colleen, Null, Donald, and Merritt, T. Allen

Subjects
MATERNAL health services, MEDICAL protocols, HEALTH care teams, INTERPROFESSIONAL relations, RESPIRATORY syncytial virus infections, SYMPTOMS, CHILDREN
Abstract

The National Perinatal Association (NPA) is an interdisciplinary organization that strives to be a leading voice for perinatal care in the United States. Our diverse membership is comprised of healthcare providers, parents & caregivers, educators, and service providers, all driven by their desire to give voice to and support babies and families at risk across the country. Members of the NPA write a regular peer-reviewed column in Neonatology Today. [ABSTRACT FROM AUTHOR]

Published
2024

4. National Perinatal Association, "Towards Trauma-Responsive Perinatal Care," May 15-17, 2024 Anaheim, CA.

Author

Ballas, Jerry and Grogan, Cristal

Subjects
*WOUND care, *PREVENTION of injury, *MATERNAL health services, *PROFESSIONAL associations, *MEDICAL care, *CONFERENCES & conventions, *BUSINESS networks, *ORGANIZATIONAL goals, *PUBLIC speaking
Abstract

The article discusses the annual "Towards Trauma-Responsive Perinatal Care meeting held by the National Perinatal Association on May 15-17, 2024 in Anaheim, California. Highlights of the conference include inspirational keynote address by Mary Coughlin entitled "All We Need Is Love: Trauma-Responsive Living," events participated by the attendees, and awards given to posters that best exemplify the spirit of each abstract domain.

Published
2024

5. Beyond Isolation: The Power of Advocacy.

Author

Grogan, Cristal

Subjects
*HEALTH services accessibility, *PSYCHOLOGICAL resilience, *MEDICAL quality control, *PATIENT advocacy, *NEONATAL necrotizing enterocolitis, *HEALTH promotion, *HEALTH equity
Abstract

The article offers information on the power of advocacy in the context of NEC (Necrotizing Enterocolitis) awareness. Topics include the experience of isolation and uncertainty felt by parents dealing with NEC, the importance of collective advocacy and support, and the need for comprehensive mental health services for affected families.

Published
2024

6. Necrotizing Enterocolitis: Using Regulatory Science and Drug Development to Improve Outcomes

Author

Allen, Marilee, Baer, Gerri, Besner, Gail, Canvasser, Jennifer, Chaaban, Hala, Clay, Robert, Connolly, Eamonn, Davis, Jonathan M., Duchon, Jennifer, Eklund, Wakako, Ferguson, Joanne, Good, Misty, Grogan, Cristal, Hudson, Lynn, Khashu, Minesh, Kim, Jae, Lotze, Andrea, Mangili, Alexandra, Markel, Troy, Martin, Laura, Miyazawa, Tokuo, Neu, Josef, Noel, Gary, Portman, Ron, Rosito, Simone, Schwartz, Ann, Scottoline, Brian, Seo, Suna, Stromberg, Staffan, Treem, William, Umberger, Erin, Warren, Tracy, West, Alicia, Caplan, Michael S., Underwood, Mark A., Modi, Neena, Patel, Ravi, Gordon, Phillip V., Sylvester, Karl G., McElroy, Steven, Manzoni, Paolo, Gephart, Sheila, Chwals, Walter J., and Turner, Mark A.

Published
2019
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7. Development of a neonatal adverse event severity scale through a Delphi consensus approach

Author

Salaets, Thomas, Turner, Mark A, Short, Mary, Ward, Robert M, Hokuto, Isamu, Ariagno, Ronald L, Klein, Agnes, Beauman, Sandra, Wade, Kelly, Thomson, Merran, Roberts, Eve, Harrison, Judy, Quinn, Theresa, Baer, Gerri, Davis, Jonathan, Allegaert, Karel, Allen, Marilee, Allen, Albert, Freimane, Dina Apele, Aschner, Judy, Ballard, Roberta, Belew, Yodit, Bax, Ralph, Bellflower, Bobby, Bhatt-Mehta, Varsha, Blum, Mike, Bonardi, Chiara, Bondurant, Patti, Boylan, Geraldine, Buracchio, Teresa, Burckart, Gilbert, Burnett, Amber, Burnham, Janelle, Carlson, Cheryl, Chen, Alice, Clay, Bob, Cohen, Alan, Connolly, Eamonn, Connor, Edward, Darsey, Edress, De Lisa, Roberto, Degl, Jennifer, Dempsey, Eugene, Diacovo, Tom, Dionne, Janis, Duchon, Jennifer, Eklund, Wakako, Fabbri, Laura, Fielder, Alistair, Freilich, Emily, Furst-Recktenwald, Sabine, Graham, Tamorah, Green, Dionna, Grogan, Cristal, Heiselman, Darell, Hellstrom, Ann, Herold, Ralf, Hibbs, Anna Maria, Hirschfeld, Steven, Brown, Mary Hise, Holberton, Jim, Iveli, Pablo, Jobe, Alan, Kayton, Allyson, Kenner, Carole, Kraft, Walter, Kusuda, Satoshi, Lacaze, Thierry, Lewis, Tamorah, Lui, Kei, Lutsar, Irja, Mangili, Alexandra, Mangum, Barry, McCune, Susan, McDonald, Karen, McGuire, Courtney, McPherson, Christopher, Miller, Thomas, Ming, Jeffrey, Mitzner, Alison, Modi, Neena, Morrison, Maya, Morsing, Eva, Mulugeta, Lily, Nakamura, Hide, Nelson, Skip, Noel, Gary, Olshansky, Miki, Oschman, Alex, Ozsahin, Hulya, Padula, Mike, Peiris, Vasum, Koplowitz, Luana Pesco, Pham, Josh, Pilon, Aprile, Portman, Ron, Pressler, Ronit, Rabe, Heike, Raju, Tonse, Roepke, Douglas Andrew, Savani, Rashmin, Schnell, Patrick, Segal, Robert, Senterre, Thibault, Shah, Prakesh, Sheridan, Philip, Sherwin, Catherine, Singh, Rajendra, Soll, Roger, Soul, Janet, Spence, Kaye, Storari, Linda, Taminiau, Jan, Tseng, Brian, Van Den Anker, John, Varga, Judy, Venkataraman, Preeti, Vivas, Norma, Walker, Karen, Wilson, Janice, Zajicek, Anne, Zaloga, Gary, Zeldis, Stav, and Pediatrics

Subjects
medicine.medical_specialty, Consensus, severity grading, drug safety, Delphi Technique, Endpoint Determination, Delphi method, adverse event, Severity grading, macromolecular substances, Severity of Illness Index, 03 medical and health sciences, 0302 clinical medicine, 030225 pediatrics, Medicine, Humans, 030212 general & internal medicine, Adverse effect, computer.programming_language, Clinical Trials as Topic, business.industry, Infant, Newborn, Age appropriate, Clinical trial, Scale (social sciences), Pediatrics, Perinatology and Child Health, Emergency medicine, Severity Criteria, Original Article, neonate, business, computer, Delphi
Abstract

BackgroundAssessment of the seriousness, expectedness and causality are necessary for any adverse event (AE) in a clinical trial. In addition, assessing AE severity helps determine the importance of the AE in the clinical setting. Standardisation of AE severity criteria could make safety information more reliable and comparable across trials. Although standardised AE severity scales have been developed in other research fields, they are not suitable for use in neonates. The development of an AE severity scale to facilitate the conduct and interpretation of neonatal clinical trials is therefore urgently needed.MethodsA stepwise consensus process was undertaken within the International Neonatal Consortium (INC) with input from all relevant stakeholders. The consensus process included several rounds of surveys (based on a Delphi approach), face-to-face meetings and a pilot validation.ResultsNeonatal AE severity was classified by five grades (mild, moderate, severe, life threatening or death). AE severity in neonates was defined by the effect of the AE on age appropriate behaviour, basal physiological functions and care changes in response to the AE. Pilot validation of the generic criteria revealed κ=0.23 and guided further refinement. This generic scale was applied to 35 typical and common neonatal AEs resulting in the INC neonatal AE severity scale (NAESS) V.1.0, which is now publicly available.DiscussionThe INC NAESS is an ongoing effort that will be continuously updated. Future perspectives include further validation and the development of a training module for users.

Published
2019

8. Necrotizing Enterocolitis: Using Regulatory Science and Drug Development to Improve Outcomes

Author

Caplan, Michael S., primary, Underwood, Mark A., additional, Modi, Neena, additional, Patel, Ravi, additional, Gordon, Phillip V., additional, Sylvester, Karl G., additional, McElroy, Steven, additional, Manzoni, Paolo, additional, Gephart, Sheila, additional, Chwals, Walter J., additional, Turner, Mark A., additional, Davis, Jonathan M., additional, Allen, Marilee, additional, Baer, Gerri, additional, Besner, Gail, additional, Canvasser, Jennifer, additional, Chaaban, Hala, additional, Clay, Robert, additional, Connolly, Eamonn, additional, Duchon, Jennifer, additional, Eklund, Wakako, additional, Ferguson, Joanne, additional, Good, Misty, additional, Grogan, Cristal, additional, Hudson, Lynn, additional, Khashu, Minesh, additional, Kim, Jae, additional, Lotze, Andrea, additional, Mangili, Alexandra, additional, Markel, Troy, additional, Martin, Laura, additional, Miyazawa, Tokuo, additional, Neu, Josef, additional, Noel, Gary, additional, Portman, Ron, additional, Rosito, Simone, additional, Schwartz, Ann, additional, Scottoline, Brian, additional, Seo, Suna, additional, Stromberg, Staffan, additional, Treem, William, additional, Umberger, Erin, additional, Warren, Tracy, additional, and West, Alicia, additional

Published
2019
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9. National Perinatal Association: The Hidden Side of Maternal Mental Health.

Author

Grogan, Cristal

Subjects
*MATERNAL health services, *WELL-being, *HEALTH services accessibility, *POSTPARTUM depression, *SOCIAL support, *PSYCHOLOGY of mothers, *MENTAL health, *MEDICAL screening, *HEALTH literacy, *ANXIETY disorders, *MENTAL health services, *INSURANCE, *HEALTH promotion
Abstract

The article focuses on the importance of maternal mental health for a child's healthy development and highlights the need for open discussions and increased resources in addressing this issue. It emphasizes the significance of reducing the stigma surrounding maternal mental health and implementing proactive changes to support mothers in seeking help when needed.

Published
2023

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