240 results on '"Grob, Rachel"'
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2. Contents
3. Index
4. Epilogue: Principles for Engaging Patients in U.S. Health Care and Policy
5. Notes on Contributors
6. Part I: Voices of the Silent
7. Chapter 1. Solitary Advocates: The Severely Brain Injured and Their Surrogates
8. Chapter 7. The Canary in Gemeinschaft: Using the Public Voice of Patients to Enhance Health System Performance
9. Part III: How Patients Matter
10. Chapter 3. Is It Time to Push Yet?: The Challenges to Advocacy in U.S. Childbirth
11. Title Page, Copyright
12. Chapter 2. Physician-Patient Communication in the Care of Vulnerable Populations: The Patient’s Voice in Interpersonal Policy
13. Introduction: Patients as Policy Actors
14. Chapter 6. “Don’t Scream Alone': The Health Care Activism of Poor Americans in the 1970s
15. Chapter 12. Measuring Success: Scientific, Institutional, and Cultural Effects of Patient Advocacy
16. Chapter 8. Patient Appeals as Policy Disputes: Individual and Collective Action in Managed Care
17. Chapter 10. Patients and the Rise of the Nurse-Practitioner Profession
18. Chapter 4. A Pound of Flesh: Patient Legal Action for Human Research Protections in the Biotech Age
19. Chapter 5. From Outsiders to Insiders: The Consumer-Survivor Movement and Its Impact on U.S. Mental Health Policy
20. Part II: From Individual to Collective
21. Chapter 9. The Power of Us: A New Approach to Advocacy for Rare Cancers
22. Chapter 11. A House on Fire: Newborn Screening, Parents’ Advocacy, and the Discourse of Urgency
23. Assessing an innovative method to promote learning from patient narratives: Findings from a field experiment in ambulatory care
24. “Nothing Is More Powerful than Words: ” How Patient Experience Narratives Enable Improvement
25. Navigating responsible bio-political citizenship: Cross-country comparison of stigma in Covid-19 illness narratives in Germany, Japan, the UK and the USA
26. Evaluation of a protocol for eliciting narrative accounts of pediatric inpatient experiences of care
27. The familial canopy as thought space for meaning making, emotional calibration and planful action around inherited cancer risk
28. Talking about inequities: A comparative analysis of COVID-19 narratives in the UK, US, and Brazil
29. Negotiation of collective and individual candidacy for long Covid healthcare in the early phases of the Covid-19 pandemic: Validated, diverted and rejected candidacy
30. Developing catalyst films of health experiences: an analysis of a robust multi-stakeholder involvement journey
31. Cross country analysis of qualitative interviews: Developing a method, a community and an understanding of how Covid has been experienced around the globe
32. Qualitative Research on Expanded Prenatal and Newborn Screening : Robust but Marginalized
33. What Words Convey: The Potential for Patient Narratives to Inform Quality Improvement
34. Wobbly moments: Trust considerations for evolving cystic fibrosis care models.
35. Leveraging Patients’ Creative Ideas for Innovation in Health Care
36. Learning from patients
37. Gaps in benefits, awareness, and comprehension that leave those with long COVID vulnerable
38. Assessing an innovative method to promote learning from patient narratives: Findings from a field experiment in ambulatory care
39. Families' Experiences with Newborn Screening: A Critical Source of Evidence
40. Testing Baby
41. Using Natural Language Processing to Code Patient Experience Narratives: Capabilities and Challenges
42. 'Oh, the Places You'll Go' by Bringing Developmental Science into the World!
43. Playing with Ideas: Evaluating the Impact of the Ultimate Block Party, a Collective Experiential Intervention to Enrich Perceptions of Play
44. Improving Patients’ Choice of Clinician by Including Roll-up Measures in Public Healthcare Quality Reports: an Online Experiment
45. Treating, Fast and Slow: Americans' Understanding of and Responses to Low-Value Care
46. “You have to trust yourself”: The Overlooked Role of Self‐Trust in Coping with Chronic Illness
47. When Mistakes Multiply: How Inadequate Responses to Medical Mishaps Erode Trust in American Medicine
48. Learning from Patients: The Impact of Using Patient Narratives on Patient Experience Scores
49. Including Patients in the Governance of Learning Health Systems
50. Leveraging Patients' Creative Ideas for Innovation in Health Care.
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