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2. Exploring concurrent validity of the CLN2 Clinical Rating Scale: Comparison to PedsQL using cerliponase alfa clinical trial data

Author

Specchio, Nicola, primary, Gissen, Paul, additional, de los Reyes, Emily, additional, Olaye, Andrew, additional, Camp, Charlotte, additional, Curteis, Tristan, additional, Griffiths, Annabel, additional, Butt, Thomas, additional, Cohen-Pfeffer, Jessica, additional, Slasor, Peter, additional, Sisic, Zlatko, additional, Jain, Mohit, additional, and Schulz, Angela, additional

Published
2024
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4. Investigating health-related quality of life in rare diseases: a case study in utility value determination for patients with CLN2 disease (neuronal ceroid lipofuscinosis type 2)

Author

Gissen, Paul, Specchio, Nicola, Olaye, Andrew, Jain, Mohit, Butt, Thomas, Ghosh, Wrik, Ruban-Fell, Benjamin, Griffiths, Annabel, Camp, Charlotte, Sisic, Zlatko, Schwering, Christoph, Wibbeler, Eva, Trivisano, Marina, Lee, Laura, Nickel, Miriam, Mortensen, Amanda, and Schulz, Angela

Published
2021
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7. sj-pdf-8-tah-10.1177_20406207211007058 – Supplemental material for Expert opinion on the UK standard of care for haemophilia patients with inhibitors: a modified Delphi consensus study

Author

Khair, Kate, Chalmers, Elizabeth, Thuvia Flannery, Griffiths, Annabel, Rowley, Felicity, Tobaruela, Guillermo, and Chowdary, Pratima

Subjects
FOS: Clinical medicine, Cardiology, 111599 Pharmacology and Pharmaceutical Sciences not elsewhere classified, 111299 Oncology and Carcinogenesis not elsewhere classified
Abstract

Supplemental material, sj-pdf-8-tah-10.1177_20406207211007058 for Expert opinion on the UK standard of care for haemophilia patients with inhibitors: a modified Delphi consensus study by Kate Khair, Elizabeth Chalmers, Thuvia Flannery, Annabel Griffiths, Felicity Rowley, Guillermo Tobaruela and Pratima Chowdary in Therapeutic Advances in Hematology

Published
2021
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8. sj-pdf-4-tah-10.1177_20406207211007058 – Supplemental material for Expert opinion on the UK standard of care for haemophilia patients with inhibitors: a modified Delphi consensus study

Author

Khair, Kate, Chalmers, Elizabeth, Thuvia Flannery, Griffiths, Annabel, Rowley, Felicity, Tobaruela, Guillermo, and Chowdary, Pratima

Subjects
FOS: Clinical medicine, Cardiology, 111599 Pharmacology and Pharmaceutical Sciences not elsewhere classified, 111299 Oncology and Carcinogenesis not elsewhere classified
Abstract

Supplemental material, sj-pdf-4-tah-10.1177_20406207211007058 for Expert opinion on the UK standard of care for haemophilia patients with inhibitors: a modified Delphi consensus study by Kate Khair, Elizabeth Chalmers, Thuvia Flannery, Annabel Griffiths, Felicity Rowley, Guillermo Tobaruela and Pratima Chowdary in Therapeutic Advances in Hematology

Published
2021
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9. sj-pdf-7-tah-10.1177_20406207211007058 – Supplemental material for Expert opinion on the UK standard of care for haemophilia patients with inhibitors: a modified Delphi consensus study

Author

Khair, Kate, Chalmers, Elizabeth, Thuvia Flannery, Griffiths, Annabel, Rowley, Felicity, Tobaruela, Guillermo, and Chowdary, Pratima

Subjects
FOS: Clinical medicine, Cardiology, 111599 Pharmacology and Pharmaceutical Sciences not elsewhere classified, 111299 Oncology and Carcinogenesis not elsewhere classified
Abstract

Supplemental material, sj-pdf-7-tah-10.1177_20406207211007058 for Expert opinion on the UK standard of care for haemophilia patients with inhibitors: a modified Delphi consensus study by Kate Khair, Elizabeth Chalmers, Thuvia Flannery, Annabel Griffiths, Felicity Rowley, Guillermo Tobaruela and Pratima Chowdary in Therapeutic Advances in Hematology

Published
2021
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10. Additional file 1 of Investigating health-related quality of life in rare diseases: a case study in utility value determination for patients with CLN2 disease (neuronal ceroid lipofuscinosis type 2)

Author

Gissen, Paul, Specchio, Nicola, Olaye, Andrew, Mohit Jain, Butt, Thomas, Wrik Ghosh, Ruban-Fell, Benjamin, Griffiths, Annabel, Camp, Charlotte, Sisic, Zlatko, Schwering, Christoph, Wibbeler, Eva, Trivisano, Marina, Lee, Laura, Nickel, Miriam, Mortensen, Amanda, and Schulz, Angela

Subjects
InformationSystems_INFORMATIONSTORAGEANDRETRIEVAL, ComputingMethodologies_DOCUMENTANDTEXTPROCESSING, ComputingMilieux_COMPUTERSANDEDUCATION, Data_FILES, ComputerApplications_COMPUTERSINOTHERSYSTEMS
Abstract

Additional file 1. Supplementary Information.

Published
2021
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11. sj-pdf-9-tah-10.1177_20406207211007058 – Supplemental material for Expert opinion on the UK standard of care for haemophilia patients with inhibitors: a modified Delphi consensus study

Author

Khair, Kate, Chalmers, Elizabeth, Thuvia Flannery, Griffiths, Annabel, Rowley, Felicity, Tobaruela, Guillermo, and Chowdary, Pratima

Subjects
FOS: Clinical medicine, Cardiology, 111599 Pharmacology and Pharmaceutical Sciences not elsewhere classified, 111299 Oncology and Carcinogenesis not elsewhere classified
Abstract

Supplemental material, sj-pdf-9-tah-10.1177_20406207211007058 for Expert opinion on the UK standard of care for haemophilia patients with inhibitors: a modified Delphi consensus study by Kate Khair, Elizabeth Chalmers, Thuvia Flannery, Annabel Griffiths, Felicity Rowley, Guillermo Tobaruela and Pratima Chowdary in Therapeutic Advances in Hematology

Published
2021
Full Text
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12. sj-pdf-5-tah-10.1177_20406207211007058 – Supplemental material for Expert opinion on the UK standard of care for haemophilia patients with inhibitors: a modified Delphi consensus study

Author

Khair, Kate, Chalmers, Elizabeth, Thuvia Flannery, Griffiths, Annabel, Rowley, Felicity, Tobaruela, Guillermo, and Chowdary, Pratima

Subjects
FOS: Clinical medicine, Cardiology, 111599 Pharmacology and Pharmaceutical Sciences not elsewhere classified, 111299 Oncology and Carcinogenesis not elsewhere classified
Abstract

Supplemental material, sj-pdf-5-tah-10.1177_20406207211007058 for Expert opinion on the UK standard of care for haemophilia patients with inhibitors: a modified Delphi consensus study by Kate Khair, Elizabeth Chalmers, Thuvia Flannery, Annabel Griffiths, Felicity Rowley, Guillermo Tobaruela and Pratima Chowdary in Therapeutic Advances in Hematology

Published
2021
Full Text
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13. sj-pdf-6-tah-10.1177_20406207211007058 – Supplemental material for Expert opinion on the UK standard of care for haemophilia patients with inhibitors: a modified Delphi consensus study

Author

Khair, Kate, Chalmers, Elizabeth, Thuvia Flannery, Griffiths, Annabel, Rowley, Felicity, Tobaruela, Guillermo, and Chowdary, Pratima

Subjects
FOS: Clinical medicine, Cardiology, 111599 Pharmacology and Pharmaceutical Sciences not elsewhere classified, 111299 Oncology and Carcinogenesis not elsewhere classified
Abstract

Supplemental material, sj-pdf-6-tah-10.1177_20406207211007058 for Expert opinion on the UK standard of care for haemophilia patients with inhibitors: a modified Delphi consensus study by Kate Khair, Elizabeth Chalmers, Thuvia Flannery, Annabel Griffiths, Felicity Rowley, Guillermo Tobaruela and Pratima Chowdary in Therapeutic Advances in Hematology

Published
2021
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20. Why I Do Science, Part II

Author

Vale, Ron, Preciado Lopez, Magdalena, Gutierrez, Natasha, Griffiths, Annabel, Shen, Hannah, Jonsson, Erik, Priya, Rashi, Blot, Antonin, Jurgensen, Sofia, Macias, Silvio, Magani, Fiorella, Ayloo, Swathi, Chircus, Lauren, Seldin, Lindsey, Vale, Ron, Preciado Lopez, Magdalena, Gutierrez, Natasha, Griffiths, Annabel, Shen, Hannah, Jonsson, Erik, Priya, Rashi, Blot, Antonin, Jurgensen, Sofia, Macias, Silvio, Magani, Fiorella, Ayloo, Swathi, Chircus, Lauren, and Seldin, Lindsey

Abstract

Thirteen young scientists tell us why they chose to study science. Fun, friendship, creativity and insatiable curiosity are common themes, The speakers are graduate students and post-doctoral fellows who participated in courses, during the summer of 2012, at the Marine Biological Laboratory in Woods Hole, Massachusetts. They are from universities and institutes throughout the USA and around the world., A version of this talk was first released in iBioMagazine issue 13, Funded and sponsored by the Natinoal Science Foundation (NSF), National Institute of General Medical Sciences, Howard Hughes Medical Institute (HHMI), and American Society for Cell Biology (ASCB)

Published
2013

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