238 results on '"Gouw, Samantha C"'
Search Results
2. Psychometrics of patient-reported outcomes measurement information system in von Willebrand disease, inherited platelet function disorders, and rare bleeding disorders
3. Inhibitor development according to concentrate after 50 exposure days in severe hemophilia: data from the European HAemophilia Safety Surveillance (EUHASS)
4. Patient-relevant health outcomes for von Willebrand disease, platelet function disorders, and rare bleeding disorders: a Delphi study
5. Psychometrics of the patient-reported outcomes measurement information system measures in hemophilia: the applicability of the pediatric item banks
6. Desmopressin in nonsevere hemophilia A: patient perspectives on use and efficacy
7. Poor correlation between biomarkers and MRI-detected joint damage in a cross-sectional study of persons with nonsevere hemophilia A (DYNAMO study)
8. Patients’ and health care providers’ perspectives on quality of hemophilia care in the Netherlands: a questionnaire and interview study
9. Colorectal cancer screening in patients with inherited bleeding disorders: high cancer detection rate in hemophilia patients
10. Little discrepancy between one-stage and chromogenic factor VIII (FVIII)/IX assays in a large international cohort of persons with nonsevere hemophilia A and B
11. In patients with hemophilia, a decreased thrombin generation profile is associated with a severe bleeding phenotype
12. Illustrated State-of-the-Art Capsules of the ISTH 2023 Congress
13. Determinants of successful immune tolerance induction in hemophilia A: systematic review and meta-analysis
14. Patients with moderate hemophilia A and B with a severe bleeding phenotype have an increased burden of disease
15. SYMPHONY consortium: Orchestrating personalized treatment for patients with bleeding disorders
16. The bleeding phenotype in people with nonsevere hemophilia
17. Joint status of patients with nonsevere hemophilia A
18. Myocardial infarction due to thrombotic occlusion despite anticoagulation in Kawasaki disease – a case report
19. Generic PROMIS item banks in adults with hemophilia for patient‐reported outcome assessment: Feasibility, measurement properties, and relevance
20. Hepatitis C virus in hemophilia: Health‐related quality of life after successful treatment in the sixth Hemophilia in the Netherlands study
21. The spectrum of neutralizing and non-neutralizing anti-FVIII antibodies in a nationwide cohort of 788 persons with hemophilia A
22. Validation of PROMIS Profile‐29 in adults with hemophilia in the Netherlands
23. Health and treatment outcomes of patients with hemophilia in the Netherlands, 1972–2019
24. Treatment‐related risk factors for inhibitor development in non‐severe hemophilia A after 50 cumulative exposure days: A case‐control study
25. Patient‐relevant health outcomes for hemophilia care: Development of an international standard outcomes set
26. Mortality, life expectancy, and causes of death of persons with hemophilia in the Netherlands 2001–2018
27. The factor VIII treatment history of non‐severe hemophilia A
28. Patient Perspectives on Novel Treatments in Haemophilia: A Qualitative Study
29. Transition readiness among adolescents and young adults with haemophilia in the Netherlands: Nationwide questionnaire study
30. Harmonizing patient-reported outcome measurements in inherited bleeding disorders with PROMIS
31. Pharmacodynamics of rituximab in paediatric immune mediated diseases: B cell depletion and repopulation, effects on immunoglobulin levels and risk for infections
32. Little discrepancy between one-stage and chromogenic factor VIII (FVIII)/IX assays in a large international cohort of persons with nonsevere hemophilia A and B
33. Anti-rituximab antibodies affect pharmacokinetics and pharmacodynamics of rituximab in children with immune-mediated diseases
34. Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review
35. Little discrepancy between one-stage and chromogenic FVIII/IX assays in a large international cohort of persons with non-severe hemophilia A and B
36. Colorectal Cancer Screening in Patients with Inherited Bleeding Disorders: High Cancer Detection Rate in Hemophilia Patients
37. Colorectal Cancer Screening in Patients with Inherited Bleeding Disorders: High Cancer Detection Rate in Hemophilia Patients
38. Congenital amegakaryocytic thrombocytopenia presenting with a new thrombopoietin receptor (MPL) pathogenic variant: An instructive neonatal case
39. Socioeconomic participation of persons with hemophilia: Results from the sixth hemophilia in the Netherlands study
40. Desmopressin for bleeding in non‐severe hemophilia A: Suboptimal use in a real‐world setting
41. Validation of the pedHALshort and HALshort in Dutch children and adults with haemophilia
42. Intensity of factor VIII treatment and inhibitor development in children with severe hemophilia A: the RODIN study
43. F8 gene mutation type and inhibitor development in patients with severe hemophilia A: systematic review and meta-analysis
44. SYMPHONYconsortium: Orchestrating personalized treatment for patients with bleeding disorders
45. The factor VIII treatment history of non‐severe hemophilia A—Response from original authors Abdi et al
46. Incidence and mortality rates of intracranial hemorrhage in hemophilia: a systematic review and meta-analysis
47. Validation of the pedHALshort and HALshort in Dutch children and adults with haemophilia.
48. Prophylactic anticoagulation in children receiving home parenteral nutrition.
49. Identifying Nongenetic Risk Factors for Inhibitor Development in Severe Hemophilia A
50. Patient‐centred care in haemophilia: patient perspectives on visualization and participation in decision‐making
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