1. What do pediatric surgeons think about sexual issues in dealing with patients with anorectal malformations? The ARM-Net consortium members’ opinion
- Author
-
Amerstorfer, Ee, Grano, C, Verhaak, C, Garcia-Vasquez, A, Miserez, M, Radleff-Schlimme, A, Schwarzer, N, Haanen, M, de Blaauw, I, Jenetzky, E, van der Steeg, A, van Rooij, Ialm, Aminoff, D, Bagolan, P, Iacobelli, B, Broens, P, Deluggi, S, Ludwiczek, J, Fanjul, M, Fascetti-Leon, F, Gamba, P, Gine, C, Giuliani, S, Goseman, J, Lacher, M, Grasshoff-Derr, S, Holland-Cunz, S, Leva, E, Morandi, A, Lisi, G, Madadi-Sanjan, O, Makedonsky, I, Marcelis, C, Midrio, P, Ozen, O, Piniprato, A, Reck-Burneo, C, Reutter, H, Rohleder, S, Samuk, I, Schmiedeke, E, Sloots, P, van der Steeg, H, Stenstrom, P, Till, H, Volk, P, and Wester, T
- Subjects
Male ,Human sexuality ,Anorectal malformation ,sexuality ,sexual functioning ,adolescence ,training ,ARM-Net ,Pediatrics ,DISEASE ,0302 clinical medicine ,QUALITY-OF-LIFE ,Surveys and Questionnaires ,Pediatric surgery ,Child ,Referral and Consultation ,General Medicine ,Middle Aged ,Anorectal Malformations ,3. Good health ,Adolescence ,Europe ,Reconstructive and regenerative medicine Radboud Institute for Molecular Life Sciences [Radboudumc 10] ,030211 gastroenterology & hepatology ,Original Article ,Female ,HEALTH ,Life Sciences & Biomedicine ,Sexuality ,Sexual functioning ,medicine.medical_specialty ,Attitude of Health Personnel ,Multidisciplinary team ,03 medical and health sciences ,All institutes and research themes of the Radboud University Medical Center ,030225 pediatrics ,medicine ,Training ,Humans ,Surgeons ,Science & Technology ,business.industry ,Metabolic Disorders Radboud Institute for Health Sciences [Radboudumc 6] ,Pediatric Surgeon ,ADULTS ,CARE ,Reconstructive and regenerative medicine Radboud Institute for Health Sciences [Radboudumc 10] ,Family medicine ,Pediatrics, Perinatology and Child Health ,Settore MED/20 ,Surgery ,business - Abstract
PURPOSE: Since pediatric surgeons aim to follow their patients with anorectal malformations (ARM) into adulthood the aim of this study was to investigate how pediatric surgeons deal with sexual issues related to ARM. METHODS: In 2018, a questionnaire was developed by the working group "Follow-up and sexuality" of the ARM-Net consortium and sent to all consortium-linked pediatric surgeons from 31 European pediatric surgical centers. Obtained data were statistically analyzed. RESULTS: Twenty-eight of 37 pediatric surgeons (18 males/10 females) answered the questionnaire. The majority of pediatric surgeons (82%) think they should talk about sexual issues with their patient. More than 50% of pediatric surgeons do not feel at all or only moderately confident discussing the topic of sexuality. Most pediatric surgeons require more support (96%) and wish to be trained in sexuality and sexual issues (78%) to feel confident towards their ARM-patients/parents. For optimal care, sexual issues with ARM-patients should be managed by a multidisciplinary team. CONCLUSIONS: Pediatric surgeons feel that sexuality is an important issue for their ARM-patients, which they are primarily responsible of but should be managed in concert with a multidisciplinary team. A training in sexuality is wished to feel more confident about this specific issue. ispartof: PEDIATRIC SURGERY INTERNATIONAL vol:35 issue:9 pages:935-943 ispartof: location:Germany status: published
- Published
- 2019