147 results on '"Goold SD"'
Search Results
2. Patient-Centered Research: The Nature and Prevalence of Patient Expectations in a VA General Medicine Clinic
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Tulsky, JA, Peck, BM, Ubel, PA, Roter, DL, Goold, SD, Asch, DA, Shearin, AL, Grambow, SC, and Koropchak, CM
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Patient-Centered Research Abstracts - Published
- 2000
3. The Nature and Prevalence of Patient Expectations in a VA General Medicine Clinic
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Tulsky, JA, primary, Peck, BM, additional, Ubel, PA, additional, Roter, DL, additional, Goold, SD, additional, Asch, DA, additional, Shearin, AL, additional, Grambow, SC, additional, and Koropchak, CM, additional
- Published
- 2000
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4. 'Listen to the people': Public deliberation about social distancing measures in a pandemic.
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Baum NM, Jacobson PD, and Goold SD
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PREVENTION of communicable diseases ,PREVENTION of epidemics ,CIVIL rights ,EMPLOYMENT ,ETHNIC groups ,FOCUS groups ,HEALTH education ,HEALTH policy ,POLICY sciences ,PUBLIC administration ,PUBLIC opinion ,QUARANTINE ,RESEARCH ,QUALITATIVE research ,SOCIAL attitudes ,EDUCATIONAL attainment ,THEMATIC analysis ,DATA analysis software ,DESCRIPTIVE statistics - Abstract
Public engagement in ethically laden pandemic planning decisions may be important for transparency, creating public trust, improving compliance with public health orders, and ultimately, contributing to just outcomes. We conducted focus groups with members of the public to characterize public perceptions about social distancing measures likely to be implemented during a pandemic. Participants expressed concerns about job security and economic strain on families if businesses or school closures are prolonged. They shared opposition to closure of religious organizations, citing the need for shared support and worship during times of crises. Group discussions elicited evidence of community-mindedness (e.g., recognition of an extant duty not to infect others), while some also acknowledged strong self-interest. Participants conveyed desire for opportunities for public input and education, and articulated distrust of government. Social distancing measures may be challenging to implement and sustain due to strains on family resources and lack of trust in government. [ABSTRACT FROM AUTHOR]
- Published
- 2009
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5. Do we practice what we preach? A qualitative assessment of resident-preceptor interactions for adherence to evidence-based practice.
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Tilburt JC, Mangrulkar RS, Goold SD, Siddiqui NY, and Carrese JA
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Background Evidence-based medicine (EBM) is important in training doctors for high-quality care. Yet little is known about whether ambulatory precepting incorporates the concepts and principles of EBM.Methods The authors observed and audiotaped 95 internal medicine residency precepting interactions and rated interactions using a qualitative analytic template consisting of three criteria: (1) presence of clinical questions; (2) presence of an evidence-based process; and (3) resident ability to articulate a clinical question.Results Sixty-seven of 95 audio tapes (71%) were of acceptable quality to allow template analysis. Thirty (45%) contained explicit clinical questions; 11 (16%) included an evidence-based process. Resident ability to articulate a clinical question when promptedwas rated as at least 'fair' in 59 of 67 interactions (88%).Conclusions EBM was not optimally implemented in these clinics. Future research could explore more systematically what factors facilitate or impair the use of EBM in the real-time ambulatory training context. [ABSTRACT FROM AUTHOR]
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- 2008
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6. When prisoners are patients.
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Douglas S and Goold SD
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- 2008
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7. Institutional academic industry relationships.
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Campbell EG, Weissman JS, Ehringhaus S, Rao SR, Moy B, Feibelmann S, Goold SD, Campbell, Eric G, Weissman, Joel S, Ehringhaus, Susan, Rao, Sowmya R, Moy, Beverly, Feibelmann, Sandra, and Goold, Susan Dorr
- Abstract
Context: Institutional academic-industry relationships have the potential of creating institutional conflicts of interest. To date there are no empirical data to support the establishment and evaluation of institutional policies and practices related to managing these relationships.Objective: To conduct a national survey of department chairs about the nature, extent, and consequences of institutional-academic industry relationships for medical schools and teaching hospitals.Design, Setting, and Participants: National survey of department chairs in the 125 accredited allopathic medical schools and the 15 largest independent teaching hospitals in the United States, administered between February 2006 and October 2006.Main Outcome Measure: Types of relationships with industry.Results: A total of 459 of 688 eligible department chairs completed the survey, yielding an overall response rate of 67%. Almost two-thirds (60%) of department chairs had some form of personal relationship with industry, including serving as a consultant (27%), a member of a scientific advisory board (27%), a paid speaker (14%), an officer (7%), a founder (9%), or a member of the board of directors (11%). Two-thirds (67%) of departments as administrative units had relationships with industry. Clinical departments were more likely than nonclinical departments to receive research equipment (17% vs 10%, P = .04), unrestricted funds (19% vs 3%, P < .001), residency or fellowship training support (37% vs 2%, P < .001), and continuing medial education support (65% vs 3%, P < .001). However, nonclinical departments were more likely to receive funding from intellectual property licensing (27% vs 16%, P = .01). More than two-thirds of chairs perceived that having a relationship with industry had no effect on their professional activities, 72% viewed a chair's engaging in more than 1 industry-related activity (substantial role in a start-up company, consulting, or serving on a company's board) as having a negative impact on a department's ability to conduct independent unbiased research.Conclusion: Overall, institutional academic-industry relationships are highly prevalent and underscore the need for their active disclosure and management. [ABSTRACT FROM AUTHOR]- Published
- 2007
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8. (De)constructing 'basic' benefits: citizens define the limits of coverage: the views of 798 community members provide a starting point for discussions about compromises and trade-offs.
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Ginsburg M, Goold SD, and Danis M
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Many initiatives for covering the uninsured call for 'basic' health care coverage, yet few define that term. The Just Coverage project used a computer-based simulation exercise to learn how nearly 800 community members in northern California identified the inclusions and exclusions that would constitute basic coverage. Working with a limited budget, participants distinguished essential from nonessential health care needs, resisted high patient cost sharing, and tolerated tight restrictions on provider choice. They also supported practice guidelines and standards of effectiveness, and they excluded high-cost, low-value interventions. These results reinforce the importance of community input to policymakers. [ABSTRACT FROM AUTHOR]
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- 2006
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9. Ethics and professionalism: what does a resident need to learn?
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Goold SD and Stern DT
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Training in ethics and professionalism is a fundamental component of residency education, yet there is little empirical information to guide curricula. The objective of this study is to describe empirically derived ethics objectives for ethics and professionalism training for multiple specialties. Study design is a thematic analysis of documents, semi-structured interviews, and focus groups conducted in a setting of an academic medical center, Veterans Administration, and community hospital training more than 1000 residents. Participants were 84 informants in 13 specialties including residents, program directors, faculty, practicing physicians, and ethics committees. Thematic analysis identified commonalities across informants and specialties. Resident and nonresident informants identified consent, interprofessional relationships, family interactions, communication skills, and end-of-life care as essential components of training. Nonresidents also emphasized formal ethics instruction, resource allocation, and self-monitoring, whereas residents emphasized the learning environment and resident-attending interactions. Conclusions are that empirically derived learning needs for ethics and professionalism included many topics, such as informed consent and resource allocation, relevant for most specialties, providing opportunities for shared curricula and resources. [ABSTRACT FROM AUTHOR]
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- 2006
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10. Measuring patient expectations: does the instrument affect satisfaction or expectations?
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Peck BM, Asch DA, Goold SD, Roter DL, Ubel PA, McIntyre LM, Abbott KH, Hoff JA, Koropchak CM, Tulsky JA, Peck, B M, Asch, D A, Goold, S D, Roter, D L, Ubel, P A, McIntyre, L M, Abbott, K H, Hoff, J A, Koropchak, C M, and Tulsky, J A
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- 2001
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11. A detailed examination of advance directives.
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LoBuono C, Emanuel E, Goold SD, Hammes BJ, Lynn J, and Tonelli M
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Prudent, specific planning for care will ensure that you can honor patients' wishes and respect their values as the end of life approaches. We offer practical advice for incorporating advance planning into your practice. [ABSTRACT FROM AUTHOR]
- Published
- 2000
12. End-of-life care. A detailed examination of advanced directives.
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LoBuono C, Emanuel E, Goold SD, Hammes BJ, Lynn J, and Tonelli M
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Prudent, specific planning for care will ensure that you can honor patients' wishes and respect their value as the end of life approaches. We offer practical advice for incorporating advance planning into your practice. [ABSTRACT FROM AUTHOR]
- Published
- 2000
13. The primacy of autonomy, honesty, and disclosure--Council on Ethical and Judicial Affairs' placebo opinions.
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Shah KR and Goold SD
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- 2009
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14. Case study. Dirty blood. Commentary.
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Keirns CC and Goold SD
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- 2009
15. Where are we in the rationing debate? Improved tools and public participation can inform fair systems.
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Goold SD and Baum NM
- Published
- 2008
16. Urinary catheters: a one-point restraint?.
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Munasinghe RL, Nagappan V, Siddique M, Saint S, Lipsky BA, Goold SD, Munasinghe, Rajika L, Nagappan, Vijayalakshmi, and Siddique, Mohamed
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- 2003
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17. Case study. [Commentary on] conjectural mixed motives.
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Walter JK and Goold SD
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- 2011
18. Community supply of hospice: does wealth play a role?
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Silveira MJ, Connor SR, Goold SD, McMahon LF, and Feudtner C
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CONTEXT: Hospice is underused by older, rural, and minority populations. OBJECTIVE: Because local availability of hospice is an important predictor of use, we aimed to identify geographic variation in hospice supply and examine its community-level determinants, including wealth. METHODS: This was an observational geographic study using the 2008 National Hospice and Palliative Care Organization's National Data Set and the 2000 U.S. census data for 3140 U.S. counties. Our outcome of interest was hospice supply defined according to the number of hospice programs (regardless of level of care) servicing each county. We used binomial multivariable regression to test the relationship between supply and log-transformed counts of population, African Americans, Hispanics, residents aged 65, and high school educated residents as well as area, median household income, and certificate of need status. RESULTS: Hospice availability varied greatly across the United States, with an unadjusted mean of 24.3 hospice programs servicing each county (standard deviation 19.7, range 0-160). After adjusting for all covariates, median household income (incidence rate ratio [IRR] 1.03, P<0.001), population count (IRR 17.9, P<0.001), count of African Americans (IRR 1.26, P<0.001) and elderly adults (IRR 2.81, P<0.001) positively predicted supply, whereas area (IRR 0.84, P<0.001), certificate of need status (IRR 0.89, P<0.001), count of Hispanics (IRR 0.86, P<0.01), and high school educated (IRR 0.03, P<0.001) negatively predicted supply. CONCLUSION: There is gross variation in hospice supply that can be explained by community wealth, population density, age, ethnicity, and race. To address disparate utilization of hospice, the relationship between wealth and availability will need to be better understood. [ABSTRACT FROM AUTHOR]
- Published
- 2011
19. Trust and distrust in low-income Michigan residents during the early COVID-19 pandemic: A qualitative study.
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Waidyaratne G, Steinbrook E, Roy S, Opoku A, Jaffe K, and Goold SD
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- Humans, Michigan epidemiology, Pandemics, Poverty, Trust, COVID-19 epidemiology
- Abstract
Background: Trust and distrust have shaped health behaviour during the COVID-19 pandemic. Since the start of the pandemic, misinformation and polarization eroded trust across the United States. In states like Michigan, pandemic restrictions led to significant unrest. Michiganders also faced disproportionate morbidity and mortality from COVID-19 during this period., Objective: The objective of this qualitative study was to understand the individual experiences of trust in low-income Michiganders during the early COVID-19 pandemic., Participants: Twenty-four participants at or below 200% of the federal poverty line who resided in Michigan were recruited for this study., Approach: Interviews were conducted during the winter of 2020 using a formal interview guide that addressed sources of information, perceptions of risk and exposure, protective behaviours and impacts of the pandemic at home, work and in receiving healthcare., Results: Thematic analysis showed that themes of trust and distrust emerged in multiple facets of our participants' experiences, including in the context of information sources, the behaviours of others, health, financial security, employment and overall safety. Trust and distrust in low-income communities often stemmed from significant financial and economic vulnerabilities and instability in access to healthcare that was exacerbated in the pandemic. Furthermore, participant trust was shaped by internal (e.g., relationships with others) and external (e.g., source of information, social inequity) factors that influenced their perceptions and experiences during the pandemic., Conclusion: Trust has played an important role in many aspects of the experiences of low-income communities during the COVID-19 pandemic. This is important for clinicians to consider as COVID-19 becomes endemic, and trust continues to impact patients' approaches to vaccines, testing and treatment options., Patient or Public Contribution: This study was designed and conducted with the assistance and input of the members of the DECIDERS Steering Committee, a diverse statewide network of community members in Michigan. The DECIDERS team allows community members to have a voice in the design and conduct of health research, and collaborates with researchers to improve health across the state of Michigan., (© 2023 The Authors. Health Expectations published by John Wiley & Sons Ltd.)
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- 2023
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20. Betraying, Earning, or Justifying Trust in Health Organizations.
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Platt J and Goold SD
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- Humans, Trust
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Health care and public health programs increasingly rely on, and often even require, organizational action, which is facilitated, if not dependent on, trust. Case examples in this essay highlight trust, trustworthiness, and distrust in public and private organizations, providing insights into how trust in health-related organizations can be betrayed, earned, and justified and into the consequences of organizational trust and trustworthiness for the health of individuals and communities. These examples demonstrate the need for holistic assessments of trust in clinicians and trust in organizations and for organizations, public health, and the medical profession to address questions concerning their own trustworthiness. Normative and empirical assessments of trust and trustworthiness that capture the experiences of those treated within the walls of a health care organization, as well as the care of those outside, will contribute to more trustworthy systems of care., (© 2023 The Hastings Center.)
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- 2023
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21. Inter-hospital Transfer Decision-making During the COVID-19 Pandemic: a Qualitative Study.
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Harlan EA, Mubarak E, Firn J, Goold SD, and Shuman AG
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- Humans, Pandemics, Decision Making, Qualitative Research, COVID-19, Patient Transfer, Resource Allocation
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Background: Inter-hospital patient transfers to hospitals with greater resource availability and expertise may improve clinical outcomes. However, there is little guidance regarding how patient transfer requests should be prioritized when hospital resources become scarce., Objective: To understand the experiences of healthcare workers involved in the process of accepting inter-hospital patient transfers during a pandemic surge and determine factors impacting inter-hospital patient transfer decision-making., Design: We conducted a qualitative study consisting of semi-structured interviews between October 2021 and February 2022., Participants: Eligible participants were physicians, nurses, and non-clinician administrators involved in the process of accepting inter-hospital patient transfers. Participants were recruited using maximum variation sampling., Approach: Semi-structured interviews were conducted with healthcare workers across Michigan., Key Results: Twenty-one participants from 15 hospitals were interviewed (45.5% of eligible hospitals). About half (52.4%) of participants were physicians, 38.1% were nurses, and 9.5% were non-clinician administrators. Three domains of themes impacting patient transfer decision-making emerged: decision-maker, patient, and environmental factors. Decision-makers described a lack of guidance for transfer decision-making. Patient factors included severity of illness, predicted chance of survival, need for specialized care, and patient preferences for medical care. Decision-making occurred within the context of environmental factors including scarce resources at accepting and requesting hospitals, organizational changes to transfer processes, and alternatives to patient transfer including use of virtual care. Participants described substantial moral distress related to transfer triaging., Conclusions: A lack of guidance in transfer processes may result in considerable variation in the patients who are accepted for inter-hospital transfer and in substantial moral distress among decision-makers involved in the transfer process. Our findings identify potential organizational changes to improve the inter-hospital transfer process and alleviate the moral distress experienced by decision-makers., (© 2023. The Author(s), under exclusive licence to Society of General Internal Medicine.)
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- 2023
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22. Inclusionary Trials: A Review of Lessons Not Learned.
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Adkins-Jackson PB, Burke NJ, Espinosa PR, Ison JM, Goold SD, Rosas LG, Doubeni CA, and Brown AF
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- Humans, United States, Community Participation, Community-Based Participatory Research, Public Health, Pandemics prevention & control, COVID-19 prevention & control
- Abstract
The COVID-19 pandemic revealed weaknesses in the public health infrastructure of the United States, including persistent barriers to engaging marginalized communities toward inclusion in clinical research, including trials. Inclusive participation in clinical trials is crucial for promoting vaccine confidence, public trust, and addressing disparate health outcomes. A long-standing body of literature describes the value of community-based participatory research in increasing marginalized community participation in research. Community-based participatory research emphasizes shared leadership with community members in all phases of the research process, including in the planning and implementation, interpretation, and dissemination. Shared leadership between academic and industry with marginalized communities can assist with inclusive participation in vaccine trials and increase public trust in the development of the vaccines and other therapies used during public emergencies. Nevertheless, epidemiologic and clinical research do not yet have a strong culture of community partnership in the scientific process, which takes time to build and therefore may be difficult to develop and rapidly scale to respond to the pandemic. We outline practices that contribute to a lack of inclusive participation and suggest steps that trialists and other researchers can take to increase marginalized communities' participation in research. Practices include planning for community engagement during the planning and recruitment phases, having regular dialogues with communities about their priorities, supporting them throughout a study, and navigating complex structural determinants of health. Additionally, we discuss how research institutions can support inclusive practices by reexamining their policies to increase participation in clinical trials and instilling institutional trustworthiness., (© The Author(s) 2022. Published by Oxford University Press on behalf of the Johns Hopkins Bloomberg School of Public Health.)
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- 2022
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23. Priority setting for pandemic preparedness and response: A comparative analysis of COVID-19 pandemic plans in 12 countries in the Eastern Mediterranean Region.
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Razavi SD, Noorulhuda M, Marcela Velez C, Kapiriri L, Dreyse BA, Danis M, Essue B, Goold SD, Nouvet E, and Williams I
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Background: The COVID-19 pandemic has significantly disrupted health systems and exacerbated pre-existing resource gaps in the Eastern Mediterranean Region (WHO-EMRO). Active humanitarian and refugee crises have led to mass population displacement and increased health system fragility, which has implication for equitable priority setting (PS). We examine whether and how PS was included in national COVID-19 pandemic plans within EMRO., Methods: An analysis of COVID-19 pandemic response and preparedness planning documents from a sample of 12/22 countries in WHO-EMRO. We assessed the degree to which documented PS processes adhere to twenty established quality parameters of effective PS., Results: While all reviewed plans addressed some aspect of PS, none included all quality parameters. Yemen's plan included the highest number (9) of quality parameters, while Egypt's addressed the lowest (3). Most plans used evidence in their planning processes. While no plans explicitly identify equity as a criterion to guide PS; many identified vulnerable populations - a key component of equitable PS. Despite high concentrations of refugees, migrants, and IDPs in EMRO, only a quarter of the plans identified them as vulnerable., Conclusion: PS setting challenges are exacerbated by conflict and the resulting health system fragmentation. Systematic and quality PS is essential to tackle long-term health implications of COVID-19 for vulnerable populations in this region, and to support effective PS and equitable resource allocation., Competing Interests: The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper., (© 2022 Published by Elsevier B.V.)
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- 2022
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24. Longitudinal trends in enrollees' employment and student status after Medicaid expansion.
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Tipirneni R, Kieffer EC, Ayanian JZ, Patel MR, Kirch MA, Luster JE, Karmakar M, and Goold SD
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- Adult, Health Services Accessibility, Humans, Insurance Coverage, Michigan epidemiology, Middle Aged, Patient Protection and Affordable Care Act, Poverty, Students, United States epidemiology, Young Adult, Employment, Medicaid
- Abstract
Background: Medicaid community engagement requirements previously received federal approval in 12 states, despite limited data on their impact on enrollees' employment-related activities. Our objective was to assess longitudinal changes in enrollees' employment and student status after implementation of Michigan's Medicaid expansion., Methods: Longitudinal telephone survey of Michigan Medicaid expansion enrollees in 2016 (response rate [RR] = 53.7%), 2017 (RR = 83.4%), and 2018 (N = 2,608, RR = 89.4%) serially assessing self-reported employment or student status. Survey responses were benchmarked against statewide changes in assessed similar low-income adults in the U.S. Census Bureau Current Population Survey. We used mixed models with individual random effects to assess changes in the proportion of enrollees who were employed or students by year., Results: Most respondents had incomes < 100% FPL (61.7% with 0-35% of the federal poverty level [FPL], 22.9% with 36-99% FPL, and 15.4% with 100-133% FPL), 89.3% had at least a high school diploma/equivalent, and they ranged in age (39.6% age 19-34, 34.5% age 35-50, 25.9% age 51-64). Employment or student status increased significantly among Michigan Medicaid expansion respondents, from 54.5% in 2016 to 61.4% in 2018 (P < 0.001), including among those with a chronic condition (47.8% to 53.8%, P < 0.001) or mental health/substance use disorder (48.5% to 56.0%, P < 0.001). In contrast, the statewide proportion of low-income non-elderly adults who were employed or students did not change significantly (from 42.7% in 2016 to 46.0% in 2018, P = 0.57)., Conclusions: Medicaid expansion, absent a community engagement requirement, was associated with increased employment and related activities. The role of Medicaid in providing safety-net coverage to individuals during times of economic stress is likely to grow., (© 2022. The Author(s).)
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- 2022
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25. "I'm Being Forced to Make Decisions I Have Never Had to Make Before": Oncologists' Experiences of Caring for Seriously Ill Persons With Poor Prognoses and the Dilemmas Created by COVID-19.
- Author
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Perumalswami CR, Chen E, Martin C, Goold SD, De Vries R, Griggs JJ, and Jagsi R
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- Communication, Empathy, Humans, Pandemics, Prognosis, SARS-CoV-2, COVID-19, Oncologists
- Abstract
Purpose: The COVID-19 pandemic has created a new set of problems for clinicians. This study examines the experiences of oncologists providing care to seriously ill persons near the end of life in the context of the COVID-19 pandemic., Methods: Between January 2020 and August 2020, we conducted semistructured, in-depth individual interviews with 22 purposefully sampled oncologists from practices enrolled in the Michigan Oncology Quality Consortium. Deidentified transcripts of the interviews were examined using thematic analysis., Results: Our respondents described several novel problems created by the COVID-19 pandemic, including: (1) ethical challenges, (2) the need to manage uncertainty-physically and emotionally-on the part of both patients and oncologists, and (3) the difficulty of integrating technology and communication for seriously ill persons. These problems were made more complex by features of the pandemic: resource scarcity (and the need to fairly allocate poor resources), delays in care, high levels of fear, and the increased importance of advance care planning. Nonabandonment served as a way to cope with increased stress, and the use of telemedicine became an increasingly important medium of communication., Conclusion: This study offers an in-depth exploration of the problems faced by oncologists as a result of the COVID-19 pandemic and how they navigated them. Optimal decision making for seriously ill persons with cancer during the COVID-19 pandemic must include open acknowledgment of the ethical challenges involved, the emotions experienced by both patients and their oncologists, and the urgent need to integrate technology with compassionate communication in determining patient preferences., Competing Interests: Emily ChenStock and Other Ownership Interests: Tefcord Inc (I), Hepion Pharmaceuticals (I), Teladoc (I), Moderna Therapeutics (I)Patents, Royalties, Other Intellectual Property: US patent pending Pub No: US 2018/0318052 A1 (I) Carly MartinEmployment: Brookdale Senior Living Susan D. GooldPatents, Royalties, Other Intellectual Property: A simulation exercise (CHAT) I coinvented, when others pay to use it, results in royalties to me, my coinventor, and our institutions. My own royalty receipts in the past 2 years have been less than $1,000 US dollars. Jennifer J. GriggsEmployment: Anglona CorporationStock and Other Ownership Interests: Anglona Corporation Reshma JagsiEmployment: University of MichiganStock and Other Ownership Interests: Equity QuotientResearch Funding: GenentechExpert Testimony: Baptist Health/Dressman Benziger Lavalle Law; Kleinbard, LLC; Sherinian and HassoOther Relationship: JAMA OncologyOpen Payments Link: https://openpaymentsdata.cms.gov/physician/373670/summaryNo other potential conflicts of interest were reported.
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- 2022
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26. Beneficiaries' perspectives on improved oral health and its mediators after Medicaid expansion in Michigan: a mixed methods study.
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Kieffer EC, Goold SD, Buchmueller T, Nalliah R, Beathard E, Kirch MA, Solway E, Tipirneni R, Clark SJ, Haggins AN, Patel MR, and Ayanian JZ
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- Adult, Cross-Sectional Studies, Health Services Accessibility, Humans, Michigan, United States, Medicaid, Oral Health
- Abstract
Objective: To investigate self-reported improved oral health and its mediators, and job-related outcomes, of Medicaid expansion beneficiaries in Michigan., Methods: This cross-sectional mixed-methods study of adult "Healthy Michigan Plan" (HMP) Medicaid expansion beneficiaries included qualitative interviews with a convenience sample of 67 beneficiaries enrolled for ≥6 months, a stratified random sample survey of 4,090 beneficiaries enrolled for ≥12 months; and Medicaid claims data. We examined unadjusted associations between demographic variables and awareness of dental coverage, self-reported dental care access, dental visits, and self-reported oral health; and between improved oral health and job seeking and job performance. Multivariate analysis examined factors associated with self-reported oral health improvement, adjusting for sociodemographic characteristics, prior health insurance, and having at least one dental visit claim., Results: Among surveyed beneficiaries, 60 percent received ≥1 dental visit and 40 percent reported improved oral health. Adjusted odds ratios (aOR) for improved oral health were higher for African-American beneficiaries [aOR = 1.61; confidence interval (CI) = 1.28-2.03] and those previously uninsured for ≥12 months (aOR = 1.96; CI = 1.58-2.43). Beneficiaries reporting improved oral health were more likely to report improved job seeking (59.9 percent vs 51 percent; P = 0.04) and job performance (76.1 percent vs 65.0 percent; P < 0.001) due to HMP. Interviewees described previously unmet oral health needs, and treatments that improved oral health, functioning, appearance, confidence, and employability., Conclusion: Michigan's Medicaid expansion contributed to self-reported improved oral health, which was associated with improved job outcomes. Policymakers should consider the importance of Medicaid dental coverage in reducing oral health disparities and improving the health and socioeconomic well-being of low-income adults and communities when considering this optional benefit., (© 2021 American Association of Public Health Dentistry.)
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- 2022
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27. Mediators of Racial Differences in COVID-19 Vaccine Acceptance and Uptake: A Cohort Study in Detroit, MI.
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Wagner AL, Wileden L, Shanks TR, Goold SD, Morenoff JD, and Sheinfeld Gorin SN
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Despite their disparate rates of infection and mortality, many communities of color report high levels of vaccine hesitancy. This paper describes racial differences in COVID-19 vaccine uptake in Detroit, and assesses, using a mediation model, how individuals' personal experiences with COVID-19 and trust in authorities mediate racial disparities in vaccination acceptance. The Detroit Metro Area Communities Study (DMACS) is a panel survey of a representative sample of Detroit residents. There were 1012 respondents in the October 2020 wave, of which 856 (83%) were followed up in June 2021. We model the impact of race and ethnicity on vaccination uptake using multivariable logistic regression, and report mediation through direct experiences with COVID as well as trust in government and in healthcare providers. Within Detroit, only 58% of Non-Hispanic (NH) Black residents were vaccinated, compared to 82% of Non-Hispanic white Detroiters, 50% of Hispanic Detroiters, and 52% of other racial/ethnic groups. Trust in healthcare providers and experiences with friends and family dying from COVID-19 varied significantly by race/ethnicity. The mediation analysis reveals that 23% of the differences in vaccine uptake by race could be eliminated if NH Black Detroiters were to have levels of trust in healthcare providers similar to those among NH white Detroiters. Our analyses suggest that efforts to improve relationships among healthcare providers and NH Black communities in Detroit are critical to overcoming local COVID-19 vaccine hesitancy. Increased study of and intervention in these communities is critical to building trust and managing widespread health crises.
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- 2021
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28. Self-Reported Health Status Improved For Racial And Ethnic Minority Groups After Michigan Medicaid Expansion.
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Su-En Lee M, Beathard E, Kirch M, Solway E, Lewallen M, Tipirneni R, Patel M, Rowe Z, and Goold SD
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- Health Services Accessibility, Health Status, Humans, Michigan, Minority Groups, Patient Protection and Affordable Care Act, Self Report, United States, Ethnicity, Medicaid
- Abstract
Addressing health inequities for racial and ethnic minority populations is challenging. After passage of the Affordable Care Act, Michigan launched its Healthy Michigan Plan, which expanded Medicaid eligibility in the state. Our evaluation of the expansion provided the opportunity to study its impact on racial and ethnic minority groups, including Arab American and Chaldean American enrollees, an understudied population. Using data from telephone surveys collected in 2016, 2017, and 2018, we conducted an analysis to study the plan's impact on access to a regular source of care and health status among racial and ethnic minority groups. More than 90 percent of respondents of all racial and ethnic groups reported having a regular source of care after plan enrollment compared with 74.4 percent before enrollment. Respondents who identified as non-Hispanic White, African American, and Hispanic reported improvements in health status after plan enrollment. Our study demonstrates the potential of health insurance access to narrow health inequities between racial and ethnic groups.
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- 2021
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29. Affordable Care Act and Cancer Survivors' Financial Barriers to Care: Analysis of the National Health Interview Survey, 2009-2018.
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Su CT, Okullo D, Hingtgen S, Levine DA, and Goold SD
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- Adolescent, Adult, Aged, Health Services Accessibility, Humans, Insurance, Health, Medicare, Middle Aged, Patient Protection and Affordable Care Act, United States, Young Adult, Cancer Survivors, Neoplasms therapy
- Abstract
Purpose: Since Affordable Care Act (ACA) implementation in 2014, studies have demonstrated gains in insurance coverage for cancer survivors < 65 years. We assessed the impact of ACA implementation on financial barriers to care by stratifying survivors at age 65 years, when individuals typically become Medicare-eligible., Methods: We used data from respondents with cancer in the 2009-2018 National Health Interview Survey. We identified 21,954 respondents representing approximately 7.4 million survivors, who were then age-stratified at age 65 years. Survey responses regarding financial barriers to medical care and medications were analyzed, and age-stratified multivariable logistic regression modeling was performed, which evaluated the impact of ACA implementation on these measures, adjusted for demographic and socioeconomic variables., Results: After multivariable logistic regression, ACA implementation was associated with higher adjusted odds of Medicaid insurance (odds ratio [95% CI] 2.02 [1.72 to 2.36]; P < .0001) and lower adjusted odds of no insurance (0.57 [0.48 to 0.68]; P < .0001). Regarding financial barriers, ACA implementation was associated with lower adjusted odds of inability to afford medications (0.68 [0.59 to 0.79]; P < .0001), inability to afford dental care (0.83 [0.73 to 0.94]; P = .004), and delaying care (0.78 [0.69 to 0.89]; P = .002) in the 18-64 years group. Similarly, ACA implementation was associated with lower adjusted odds of secondary outcomes such as delaying refills, skipping doses, and anxiety over medical bills. Similar associations were not seen in the > 65 years group., Conclusion: Survivor-reported measures of financial barriers in cancer survivors age 18-64 years significantly improved following ACA implementation. Similar changes were not seen in the Medicare-eligible cohort, likely because of high Medicare enrollment and few uninsured., Competing Interests: Susan D. GooldPatents, Royalties, Other Intellectual Property: A simulation exercise (CHAT) that I coinvented, when others pay to use it, results in royalties to me, my coinventor, and our institutions. My own royalty receipts in the past 2 years have been < $1,000 USDNo other potential conflicts of interest were reported.
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- 2021
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30. The COVID-19 Pandemic: Critical Care Allocated in Extremis .
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Goold SD
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- COVID-19, Coronavirus Infections prevention & control, Critical Care methods, Humans, Pandemics ethics, Pandemics prevention & control, Pneumonia, Viral prevention & control, SARS-CoV-2, United States epidemiology, Betacoronavirus, Coronavirus Infections epidemiology, Critical Care ethics, Decision Making ethics, Pneumonia, Viral epidemiology, Triage ethics
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- 2020
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31. Examination of Changes in Health Status Among Michigan Medicaid Expansion Enrollees From 2016 to 2017.
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Patel MR, Tipirneni R, Kieffer EC, Kullgren JT, Ayanian JZ, Chang T, Solway E, Beathard E, Kirch M, Lee S, Clark S, Skillicorn J, Rowe Z, and Goold SD
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- Adult, Demography, Female, Health Status Disparities, Humans, Male, Michigan epidemiology, Middle Aged, Patient Reported Outcome Measures, Surveys and Questionnaires, United States, Chronic Disease epidemiology, Health Status, Medicaid statistics & numerical data, Minority Health statistics & numerical data
- Abstract
Importance: Evidence about the health benefits of Medicaid expansion has been mixed and has largely come from comparing expansion and nonexpansion states., Objective: To examine the self-reported health of enrollees in Michigan's Medicaid expansion, the Healthy Michigan Plan (HMP), over time., Design, Setting, and Participants: A telephone survey from January 1 to October 31, 2016 (response rate, 53.7%), and a follow-up survey from March 1, 2017, to January 31, 2018 (response rate, 83.4%), were conducted in Michigan, which expanded Medicaid in 2014 through a Section 1115 waiver permitting state-specific modifications. Four thousand ninety HMP beneficiaries aged 19 to 64 years with at least 12 months of HMP coverage and at least 9 months in a Medicaid health plan were eligible to participate. Data were analyzed from April 1 to November 30, 2018., Main Outcomes and Measures: Surveys measured demographic characteristics and health status. Analyses included weights for sampling probability and nonresponse. Comparisons between 2016 and 2017 included those who responded to both surveys (n = 3097)., Results: Of the 3097 respondents to the 2017 follow-up survey, 2388 (77.1%) were still enrolled in HMP (current enrollees) and 709 (22.9%) were no longer enrolled when surveyed (former enrollees). Among all follow-up respondents, a weighted 37.5% (95% CI, 35.3%-39.9%) were aged 19 to 34 years, 34.0% (95% CI, 31.8%-36.2%) were aged 35 to 50 years, and 28.5% (95% CI, 26.7%-30.3%) were aged 51 to 64 years; 53.0% (95% CI, 50.8%-55.3%) were female. Respondents who reported fair or poor health decreased from 30.7% (95% CI, 28.7%-32.8%) in 2016 to 27.0% (95% CI, 25.1%-29.0%) in 2017 (adjusted odds ratio [AOR], 0.66 [95% CI, 0.53-0.81]; P < .001), with the largest decreases observed in respondents who were non-Hispanic black (from 31.5% [95% CI, 27.1%-35.9%] in 2016 to 26.0% [95% CI, 21.9%-30.1%] in 2017; P = .009), from the Detroit metropolitan area (from 30.7% [95% CI, 27.0%-34.4%] in 2016 to 24.9% [95% CI, 21.6%-28.3%] in 2017; P = .001), and with an income of 0% to 35% of the federal poverty level (from 37.6% [95% CI, 34.2%-40.9%] in 2016 to 32.3% [95% CI, 29.1%-35.5%] in 2017; P < .001). From 2016 to 2017, the mean number of days of poor physical health in the past month decreased significantly from 6.9 (95% CI, 6.5-7.4) to 5.7 (95% CI, 5.3-6.0) (coefficient, -6.10; P < .001), including among current (from 7.0 [95% CI, 6.5-7.5] to 5.6 [95% CI, 5.1-6.0]; P < .001) and former (from 6.8 [95% CI, 5.9-7.7] to 5.8 [95% CI, 5.0-6.7]; P = .02) enrollees, those with 2 or more chronic conditions (from 9.9 [95% CI, 9.3-10.6] to 8.5 [95% CI, 7.8-9.1]; P < .001), across all age groups (19-34 years, from 4.3 [95% CI, 3.7-4.9] to 3.0 [95% CI, 2.5-3.5]; P < .001; 35-50 years, from 8.2 [95% CI, 7.3-9.0] to 6.9 [95% CI, 6.1-7.7]; P = .002; 51-64 years, from 9.0 [95% CI, 8.2-9.8] to 7.6 [95% CI, 6.9-8.3]; P = .001), and among non-Hispanic white (from 7.5 [95% CI, 7.0-8.1] to 6.1 [95% CI, 5.6-6.6]; P < .001) and black (from 5.9 [95% CI, 5.1-6.8] to 4.4 [95% CI, 3.6-5.1]; P < .001) respondents. No changes in days of poor mental health or usual activities missed owing to poor physical or mental health were observed., Conclusions and Relevance: These findings suggest that HMP enrollees in Michigan have experienced improvements in self-reported health over time, including minority groups with a history of health disparities and enrollees with chronic health conditions.
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- 2020
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32. Responsibilities, Strategies, and Practice Factors in Clinical Cost Conversations: a US Physician Survey.
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Warsame R, Riordan L, Jenkins S, Lackore K, Pacyna J, Antiel R, Beebe T, Liebow M, Thorsteinsdottir B, Grover M, Wynia M, Goold SD, DeCamp M, Danis M, and Tilburt J
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- Attitude of Health Personnel, Communication, Cost Control, Cross-Sectional Studies, Humans, Surveys and Questionnaires, Physicians
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Background: Physicians play a key role in mitigating and managing costs in healthcare which are rising., Objective: Conduct a cross-sectional survey in 2017, comparing results to a 2012 survey to understand US physicians' evolving attitudes and strategies concerning healthcare costs., Participants: Random sample of 1200 US physicians from the AMA Masterfile., Measures: Physician views on responsibility for costs of care, enthusiasm for cost-saving strategies, cost-consciousness scale, and practice strategies on addressing cost., Key Results: Among 1200 physicians surveyed in 2017, 489 responded (41%). In 2017, slightly more physicians reported that physicians have a major responsibility for addressing healthcare costs (32% vs. 27%, p = 0.03). In 2017, more physicians attributed "major responsibility" for addressing healthcare costs to pharmaceutical companies (68% vs. 56%, p < 0.001) and hospital and health systems (63% vs. 56%%, p = 0.008) in contrast to 2012. Fewer respondents in 2017 attributed major responsibility for addressing costs to trial lawyers (53% vs. 59%, p = 0.007) and patients (42% vs. 52%, p < 0.0001) as compared to 2012. Physician enthusiasm for patient-focused cost-containment strategies like high deductible health plans and higher co-pays (62% vs. 42%, p < 0.0001 and 62% vs. 39%, p < 0.0001, not enthusiastic, respectively) declined. Physicians reported that when they discussed cost, it resulted in a change in disease management 56% of the time. Cost-consciousness within surveyed physicians had not changed meaningfully in 2017 since 2012 (31.7 vs. 31.2). Most physicians continued to agree that decision support tools showing costs would be helpful in their practice (> 70%). After adjusting for specialty, political affiliation, practice setting, age, and gender, only democratic/independent affiliation remained a significant predictor of cost-consciousness., Conclusions and Relevance: US physicians increasingly attribute responsibility for rising healthcare costs to organizations and express less enthusiasm for strategies that increase patient out-of-pocket cost. Interventions that focus on physician knowledge and communication strategies regarding cost of care may be helpful.
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- 2020
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33. Does Group Deliberation Mobilize? The Effect of Public Deliberation on Willingness to Participate in Politics.
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Myers CD, Gordon HG, Kim HM, Rowe Z, and Goold SD
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Proponents of public deliberation suggest that engaging in deliberation increases deliberators' subsequent participation in other forms of politics. We evaluate this "deliberative participation hypothesis" using data drawn from a deliberative field experiment in which members of medically underserved communities in Michigan deliberated in small groups about the design of that state's Medicaid program. Participants were randomly assigned to deliberate about the program in a group or to think about the decision individually, and then completed a post-survey that included measures of willingness to engage in a variety of political acts. We measured willingness to engage in common forms of political participation, as well as willingness to participate in particularistic resistance to adverse decisions by insurance bureaucracies. Contrary to the claims of much of the existing literature, we find no impact of deliberation on willingness to engage in political participation. These results suggest that the ability of public deliberation to increase broader political engagement may be limited or may only occur in particularly intensive, directly empowered forms of public deliberation.
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- 2020
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34. How Would Low-Income Communities Prioritize Medicaid Spending?
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Myers CD, Kieffer EC, Fendrick AM, Kim HM, Calhoun K, Szymecko L, LaHahnn L, Ledón C, Danis M, Rowe Z, and Goold SD
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- Eligibility Determination, Humans, Policy Making, Poverty, United States, Medicaid, Patient Protection and Affordable Care Act
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Context: Medicaid plays a critical role in low-income, minority, and medically underserved communities, particularly in states that have expanded Medicaid under the Affordable Care Act. Yet, the voices of underresourced communities are often unheard in decisions about how to allocate Medicaid's scarce resources, and traditional methods of public engagement are poorly suited to gathering such input. We argue that deliberative public engagement can be a useful tool for involving communities in setting Medicaid priorities., Method: We engaged 209 residents of low-income, medically underserved Michigan communities in discussions about Medicaid spending priorities using an exercise in informed deliberation: CHAT (CHoosing All Together). Participants learned about Medicaid, deliberated in small groups, and set priorities both individually and collectively., Findings: Participants prioritized broad eligibility consistent with the ACA expansion, accepted some cost sharing, and prioritized spending in areas-including mental health-that are historically underfunded. Participants allocated less funding beyond benefit coverage, such as spending on healthy communities. Participants perceived the deliberative process as fair and informative, and they supported using it in the policy-making process., Conclusion: The choices of participants from low-income, medically underserved communities reflect a unique set of priorities and suggest that engaging low-income communities more deeply in Medicaid policy making might result in different prioritization decisions., (Copyright © 2020 by Duke University Press.)
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- 2020
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35. Primary Care, Health Promotion, and Disease Prevention with Michigan Medicaid Expansion.
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Goold SD, Tipirneni R, Chang T, Kirch MA, Bryant C, Rowe Z, Beathard E, Solway E, Lee S, Clark SJ, Skillicorn J, Ayanian JZ, and Kullgren JT
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- Adult, Health Promotion, Humans, Michigan epidemiology, Middle Aged, Primary Health Care, United States epidemiology, Young Adult, Health Services Accessibility, Medicaid
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Background: Medicaid expansion in Michigan, known as the Healthy Michigan Plan (HMP), emphasizes primary care and preventive services., Objective: Evaluate the impact of enrollment in HMP on access to and receipt of care, particularly primary care and preventive services., Design: Telephone survey conducted during January-November 2016 with stratified random sampling by income and geographic region (response rate = 53.7%). Logistic regression analyses accounted for sampling and nonresponse adjustment., Participants: 4090 HMP enrollees aged 19-64 with ≥ 12 months of HMP coverage MAIN MEASURES: Surveys assessed demographic factors, health, access to and use of health care before and after HMP enrollment, health behaviors, receipt of counseling for health risks, and knowledge of preventive services' copayments. Utilization of preventive services was assessed using Medicaid claims., Key Results: In the 12 months prior to HMP enrollment, 33.0% of enrollees reported not getting health care they needed. Three quarters (73.8%) of enrollees reported having a regular source of care (RSOC) before enrollment; 65.1% of those reported a doctor's office/clinic, while 16.2% reported the emergency room. After HMP enrollment, 92.2% of enrollees reported having a RSOC; 91.7% had a doctor's office/clinic and 1.7% the emergency room. One fifth (20.6%) of enrollees reported that, before HMP enrollment, it had been over 5 years since their last primary care visit. Enrollees who reported a visit with their primary care provider after HMP enrollment (79.3%) were significantly more likely than those who did not report a visit to receive counseling about health behaviors, improved access to cancer screening, new diagnoses of chronic conditions, and nearly all preventive services. Enrollee knowledge that some services have no copayments was also associated with greater utilization of most preventive services., Conclusions: After enrolling in Michigan's Medicaid expansion program, beneficiaries reported less forgone care and improved access to primary care and preventive services.
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- 2020
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36. Health Risk Assessments in Michigan's Medicaid Expansion: Early Experiences in Primary Care.
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Zhang E, Tipirneni R, Beathard ER, Lee S, Kirch MA, Salman C, Solway E, Clark SJ, Haggins AN, Kieffer EC, Ayanian JZ, and Goold SD
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- Female, Humans, Logistic Models, Male, Michigan, Patient Protection and Affordable Care Act, Primary Health Care organization & administration, Surveys and Questionnaires, United States, Attitude of Health Personnel, Health Services Accessibility statistics & numerical data, Medicaid organization & administration, Primary Health Care statistics & numerical data, Risk Assessment economics
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Introduction: Michigan is one of 3 states that have implemented health risk assessments for enrollees as a feature of its Medicaid expansion, the Healthy Michigan Plan. This study describes primary care providers' early experiences with completing health risk assessments with enrollees and examines provider- and practice-level factors that affect health risk assessment completion., Methods: All primary care providers caring for ≥12 Healthy Michigan Plan enrollees (n=4,322) were surveyed from June to November 2015, with 2,104 respondents (55.5%). Analyses in 2016-2017 described provider knowledge, attitudes, and experiences with the health risk assessment early in Healthy Michigan Plan implementation; multivariable analyses examined relationships of provider- and practice-level characteristics with health risk assessment completion, as recorded in state data., Results: Of the primary care provider respondents, 73% found health risk assessments very or somewhat useful for identifying and discussing health risks, although less than half (47.2%) found them very or somewhat useful for getting patients to change health behaviors. Most primary care provider respondents (65.3%) were unaware of financial incentives for their practices to complete health risk assessments. Nearly all primary care providers had completed at least 1 health risk assessment. The mean health risk assessment completion rate (completed health risk assessments/number of Healthy Michigan Plan enrollees assigned to that primary care provider) was 19.6%; those who lacked familiarity with the health risk assessment had lower completion rates., Conclusions: Early in program implementation, health risk assessment completion rates by primary care providers were low and awareness of financial incentives limited. Most primary care provider respondents perceived health risk assessments to be very or somewhat useful in identifying health risks, and about half of primary care providers viewed health risk assessments as very or somewhat useful in helping patients to change health behaviors., (Copyright © 2019 American Journal of Preventive Medicine. Published by Elsevier Inc. All rights reserved.)
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- 2020
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37. Engagement with Health Risk Assessments and Commitment to Healthy Behaviors in Michigan's Medicaid Expansion Program.
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Kelley AT, Goold SD, Ayanian JZ, Patel M, Zhang E, Beathard E, Chang T, Solway E, and Tipirneni R
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- Adult, Health Behavior, Humans, Michigan epidemiology, Middle Aged, Risk Assessment, United States epidemiology, Young Adult, Health Services Accessibility, Medicaid
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Background: Health risk assessments (HRAs) and healthy behavior incentives are increasingly used by state Medicaid programs to promote enrollees' health., Objective: To evaluate enrollee experiences with HRAs and healthy behavior engagement in the Healthy Michigan Plan (HMP), a state Medicaid expansion program., Design: Telephone survey conducted in Michigan January-October 2016., Participants: A random sample of HMP enrollees aged 19-64 with ≥ 12 months of enrollment, stratified by income and geographic region., Main Measures: Self-reported completion of an HRA, reasons for completing an HRA, commitment to a healthy behavior, and choice of healthy behavior., Key Results: Among respondents (N = 4090), 49.3% (95% CI 47.3-51.2%) reported completing an HRA; among those with a primary care provider (PCP) (n = 3851), 85.2% (95% CI 83.5-86.7%) reported visiting their PCP during the last 12 months. Most enrollees having a recent PCP visit reported discussing healthy behaviors with them (91.1%, 95% CI 89.6-92.3%) and were more likely to have completed an HRA than enrollees without a recent PCP visit (52.7%, 95% CI 50.5-52.8% vs. 36.2%, 95% CI 31.7-41.1%; p < 0.01). Among enrollees completing an HRA, nearly half said they did it because their PCP suggested it (45.9%, 95% CI 43.2-48.7%), and most reported it helped their PCP understand their health needs (89.7%). Awareness of financial incentives was limited (28.1%, 95% CI 26.3-30.0%), and very few reported it as the primary reason for HRA completion (2.5%, 95% CI 1.8-3.4%). Most committed to a healthy behavior (80.7%, 95% CI 78.5-82.8%), and common behaviors chosen were nutrition/diet (57.2%, 95% CI 54.2-60.2%) and exercise/activity (52.6%, 95% CI 49.5-55.7%)., Conclusions: In the Healthy Michigan Plan, PCPs appeared influential in enrollees' completion of HRAs and healthy behavior engagement, while knowledge of financial incentives was limited. Additional study is needed to understand the relative importance of financial incentives and PCP engagement in impacting healthy behaviors in state Medicaid programs.
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- 2020
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38. Association of Medicaid Expansion With Enrollee Employment and Student Status in Michigan.
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Tipirneni R, Ayanian JZ, Patel MR, Kieffer EC, Kirch MA, Bryant C, Kullgren JT, Clark SJ, Lee S, Solway E, Chang T, Haggins AN, Luster J, Beathard E, and Goold SD
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- Adult, Female, Humans, Male, Michigan, Middle Aged, Patient Protection and Affordable Care Act, Surveys and Questionnaires, United States, Young Adult, Employment statistics & numerical data, Health Services Accessibility statistics & numerical data, Insurance Coverage statistics & numerical data, Insurance, Health statistics & numerical data, Medicaid statistics & numerical data, Students statistics & numerical data
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Importance: Medicaid community engagement requirements (work, school, job searching, or community service) are being implemented by several states for the first time, but the association of Medicaid coverage with enrollees' employment and school attendance is unclear., Objective: To assess longitudinal changes in enrollees' employment or student status after Michigan's Medicaid expansion., Design, Setting, and Participants: This survey study included 4090 nonelderly, adult Healthy Michigan Plan enrollees from March 1, 2017, to January 31, 2018., Main Outcomes and Measures: Self-reported employment or student status. Proportionate sampling was stratified by income and geographic region. Mixed-effects regression models with time indicators were used to assess longitudinal changes in the proportion of enrollees who were employed or students., Results: The response rate for the initial survey was 53.7% and for the follow-up survey was 83.4%. Of the 3104 respondents to the 2017 follow-up survey (mean [SD] age in 2017, 42.2 [13.0] years; 1867 [53.0%] female), 54.3% were employed or students in 2016, and this number increased to 60.0% in 2017 (percentage point change, 5.7; P < .001). Non-Hispanic black enrollees had significantly larger gains in employment or student status compared with non-Hispanic white enrollees (percentage point change, 10.7 vs 3.5; P = .02). Changes in employment or student status were not associated with improved health status., Conclusions and Relevance: Employment or student status increased from 2016 to 2017 among Michigan Medicaid expansion enrollees. These findings provide information about whether Medicaid coverage or community engagement requirements are best to promote the desired outcomes of employment and student status.
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- 2020
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39. Association of Expanded Medicaid Coverage With Health and Job-Related Outcomes Among Enrollees With Behavioral Health Disorders.
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Tipirneni R, Patel MR, Goold SD, Kieffer EC, Ayanian JZ, Clark SJ, Lee S, Bryant C, Kirch MA, Solway E, Luster J, Lewallen M, and Zivin K
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- Adult, Employment economics, Female, Health Policy, Humans, Logistic Models, Male, Medicaid economics, Mental Disorders therapy, Michigan epidemiology, Middle Aged, Multivariate Analysis, Patient Protection and Affordable Care Act, Risk Assessment, United States, Workplace statistics & numerical data, Young Adult, Employment statistics & numerical data, Health Services Accessibility statistics & numerical data, Insurance Coverage statistics & numerical data, Mental Disorders epidemiology, Workplace psychology
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Objectives: The study objective was to assess the impact of Medicaid expansion on health and employment outcomes among enrollees with and without a behavioral health disorder (either a mental or substance use disorder)., Methods: Between January and October 2016, the authors conducted a telephone survey of 4,090 enrollees in the Michigan Medicaid expansion program and identified 2,040 respondents (48.3%) with potential behavioral health diagnoses using claims-based diagnoses., Results: Enrollees with behavioral health diagnoses were less likely than enrollees without behavioral health diagnoses to be employed but significantly more likely to report improvements in health and ability to do a better job at work. In adjusted analyses, both enrollees with behavioral health diagnoses and those without behavioral health diagnoses who reported improved health were more likely than enrollees without improved health to report that Medicaid expansion coverage helped them do a better job at work and made them better able to look for a job. Among enrollees with improved health, those with a behavioral health diagnosis were as likely as those without a behavioral health diagnosis to report improved ability to work and improved job seeking after Medicaid expansion., Conclusions: Coverage interruptions for enrollees with behavioral health diagnoses should be minimized to maintain favorable health and employment outcomes.
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- 2020
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40. Low-Value Care and Clinician Engagement in a Large Medicare Shared Savings Program ACO: a Survey of Frontline Clinicians.
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Markovitz AA, Rozier MD, Ryan AM, Goold SD, Ayanian JZ, Norton EC, Peterson TA, and Hollingsworth JM
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- Aged, Cost Savings, Cross-Sectional Studies, Humans, Longitudinal Studies, Michigan, United States, Accountable Care Organizations, Medicare
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Background: Although the Medicare Shared Savings Program (MSSP) created new incentives for organizations to improve healthcare value, Accountable Care Organizations (ACOs) have achieved only modest reductions in the use of low-value care., Objective: To assess ACO engagement of clinicians and whether engagement was associated with clinicians' reported difficulty implementing recommendations against low-value care., Design: Cross-sectional survey of ACO clinicians in 2018., Participants: 1289 clinicians in the Physician Organization of Michigan ACO, including generalist physicians (18%), internal medicine specialists (16%), surgeons (10%), other physician specialists (27%), and advanced practice providers (29%). Response rate was 34%., Main Measures: Primary exposures included clinicians' participation in ACO decision-making, awareness of ACO incentives, perceived influence on practice, and perceived quality improvement. Our primary outcome was clinicians' reported difficulty implementing recommendations against low-value care., Results: Few clinicians participated in the decision to join the ACO (3%). Few clinicians were aware of ACO incentives, including knowing the ACO was accountable for both spending and quality (23%), successfully lowered spending (9%), or faced upside risk only (3%). Few agreed (moderately or strongly) the ACO changed compensation (20%), practice (19%), or feedback (15%) or that it improved care coordination (17%) or inappropriate care (13%). Clinicians reported they had difficulty following recommendations against low-value care 18% of the time; clinicians reported patients had difficulty accepting recommendations 36% of the time. Increased ACO awareness (1 standard deviation [SD]) was associated with decreased difficulty (- 2.3 percentage points) implementing recommendations (95% confidence interval [CI] - 3.8, - 0.7), as was perceived quality improvement (1 SD increase, - 2.1 percentage points, 95% CI, - 3.4, - 0.8). Participation in ACO decision-making and perceived influence on practice were not associated with recommendation implementation., Conclusions: Clinicians participating in a large Medicare ACO were broadly unaware of and unengaged with ACO objectives and activities. Whether low clinician engagement limits ACO efforts to reduce low-value care warrants further longitudinal study.
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- 2020
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41. Predicting a "Lazarus Effect" in Patients With Advanced Cancer Near the End of Life: Prognostic Uncertainty, Oncologists' Emotions, and Ethical Questions.
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Perumalswami CR, Jagsi R, and Goold SD
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- Emotions, Humans, Prognosis, Uncertainty, Neoplasms, Oncologists, Terminal Care
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- 2019
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42. Diagnosis and Care of Chronic Health Conditions Among Medicaid Expansion Enrollees: a Mixed-Methods Observational Study.
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Rosland AM, Kieffer EC, Tipirneni R, Kullgren JT, Kirch M, Arntson EK, Clark SJ, Lee S, Solway E, Beathard E, Ayanian JZ, and Goold SD
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- Adult, Case-Control Studies, Chronic Disease economics, Chronic Disease therapy, Female, Health Services Accessibility statistics & numerical data, Humans, Male, Michigan epidemiology, Middle Aged, Patient Protection and Affordable Care Act, Prevalence, Self Report, United States epidemiology, Young Adult, Chronic Disease epidemiology, Health Services Accessibility standards, Health Status, Medicaid statistics & numerical data
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Background: It is uncertain how Medicaid expansion under the Affordable Care Act influences the diagnosis of chronic health conditions, and the care and health of enrollees with chronic conditions., Objective: Describe the prevalence of new and pre-existing chronic health conditions among Medicaid expansion enrollees. Examine whether perceived changes in specific types of access and self-rated health status differed between enrollees with chronic conditions and those without. Examine how gaining Medicaid coverage affected chronic disease management and well-being., Design: Mixed-methods study including a telephone survey and semi-structured interviews., Setting: Michigan's Medicaid expansion, the "Healthy Michigan Plan" (HMP)., Participants: 4090 survey respondents (response rate 54%) with ≥ 12 months HMP enrollment and 67 interviewees with ≥ 6 months enrollment., Main Measures: Self-reported chronic condition diagnoses, changes in physical/mental health, and healthcare access. Descriptive survey data were adjusted for survey design and nonresponse. Semi-structured interview questions about how gaining HMP coverage led to changes in health status., Key Results: Among enrollees, 68% had a self-reported diagnosis of a chronic health condition; 42% of those were newly diagnosed since HMP enrollment. In multivariable models, enrollees with chronic conditions were significantly more likely to report improved physical (adjusted odds ratio (aOR) 1.70, 95% CI (1.40, 2.07)) and mental health (aOR 1.75, (1.43, 2.15)) since HMP enrollment than enrollees without chronic conditions. Among enrollees with chronic conditions, the strongest predictors of improvements in health were having seen a primary care physician, improved mental health care access, and improved medication access. Interviewees with chronic conditions described how increased access to health care led to improvements in both physical and mental health., Conclusions: Enrollees with expanded Medicaid coverage commonly reported detection of previously undiagnosed chronic conditions. Perceived health status and access improved more often among enrollees with chronic health conditions. Improved access was associated with improved physical and mental health among this vulnerable group.
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- 2019
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43. Which Ethical Considerations Should Inform Hospice Decisions About Caring for Patients With Obesity?
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Perumalswami CR, Hanslits BD, and Goold SD
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- Health Priorities ethics, Hospice Care methods, Humans, Obesity complications, Quality of Life, Resource Allocation ethics, Resource Allocation methods, Terminal Care ethics, Terminal Care methods, Decision Making ethics, Hospice Care ethics, Obesity therapy
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Hospice and palliative care clinicians have the potential to advocate for high-quality medical care for patients with obesity. This article explores current evidence on obesity at the end of life and ethical questions that emerge when a decision is made to enroll a patient with obesity in hospice., (© 2019 American Medical Association. All Rights Reserved.)
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- 2019
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44. US Physicians' Reactions To ACA Implementation, 2012-17.
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Riordan L, Warsame R, Jenkins S, Lackore K, Pacyna JE, Antiel RM, Beebe T, Liebow M, Thorsteinsdottir B, Wynia M, Goold SD, DeCamp M, Danis M, and Tilburt J
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- Female, Humans, Male, Middle Aged, Surveys and Questionnaires, Attitude of Health Personnel, Patient Protection and Affordable Care Act, Physicians psychology
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Physicians play a key role in implementing health policy, and US physicians were split in their opinions about the Affordable Care Act (ACA) soon after its implementation began. We readministered elements of a prior survey of US physicians to a similar sample to understand how US physicians' opinions of the ACA may have changed over a crucial five-year implementation period (2012-17), and we compared responses across both surveys. Of the 1,200 physicians to whom we sent a survey in the summer of 2017, 489 responded (a response rate of 41 percent). A majority of respondents (60 percent) believed that the ACA had improved access to care and insurance, yet many (43 percent) felt that it had reduced the affordability of coverage. More physicians agreed in 2017 than in 2012 that the ACA "would turn United States health care in the right direction" (53 percent versus 42 percent), despite reporting perceived worsening in several practice conditions over the same time period. After we adjusted for specialty, political party affiliation, practice setting type, perceived social responsibility, age, and sex, we found that only political party affiliation was a significant predictor of support for the ACA in the 2017 results.
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- 2019
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45. Evaluating community deliberations about health research priorities.
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Goold SD, Danis M, Abelson J, Gornick M, Szymecko L, Myers CD, Rowe Z, Kim HM, and Salman C
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- Adolescent, Adult, Aged, Aged, 80 and over, Female, Group Processes, Healthcare Disparities organization & administration, Humans, Interviews as Topic, Male, Michigan, Middle Aged, Young Adult, Community Participation methods, Health Status Disparities, Medically Underserved Area, Minority Groups psychology, Research organization & administration
- Abstract
Context: Engaging underrepresented communities in health research priority setting could make the scientific agenda more equitable and more responsive to their needs., Objective: Evaluate democratic deliberations engaging minority and underserved communities in setting health research priorities., Methods: Participants from underrepresented communities throughout Michigan (47 groups, n = 519) engaged in structured deliberations about health research priorities in professionally facilitated groups. We evaluated some aspects of the structure, process, and outcomes of deliberations, including representation, equality of participation, participants' views of deliberations, and the impact of group deliberations on individual participants' knowledge, attitudes, and points of view. Follow-up interviews elicited richer descriptions of these and also explored later effects on deliberators., Results: Deliberators (age 18-88 years) overrepresented minority groups. Participation in discussions was well distributed. Deliberators improved their knowledge about disparities, but not about health research. Participants, on average, supported using their group's decision to inform decision makers and would trust a process like this to inform funding decisions. Views of deliberations were the strongest predictor of these outcomes. Follow-up interviews revealed deliberators were particularly struck by their experience hearing and understanding other points of view, sometimes surprised at the group's ability to reach agreement, and occasionally activated to volunteer or advocate., Conclusions: Deliberations using a structured group exercise to engage minority and underserved community members in setting health research priorities met some important criteria for a fair, credible process that could inform policy. Deliberations appeared to change some opinions, improved some knowledge, and were judged by participants worth using to inform policymakers., (© 2019 The Authors Health Expectations published by John Wiley & Sons Ltd.)
- Published
- 2019
- Full Text
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46. The Value of Engaging the Public in CHATing About Healthcare Priorities: A Response to Recent Commentaries.
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Danis M, Goold SD, Schindler M, and Hurst SA
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- Humans, Insurance Coverage, Delivery of Health Care, Health Priorities
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- 2019
- Full Text
- View/download PDF
47. Factors influencing primary care providers' decisions to accept new Medicaid patients under Michigan's Medicaid expansion.
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Tipirneni R, Kieffer EC, Ayanian JZ, Campbell EG, Salman C, Clark SJ, Chang T, Haggins AN, Solway E, Kirch MA, and Goold SD
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- Adult, Female, Health Services Accessibility statistics & numerical data, Humans, Insurance, Health, Reimbursement, Interviews as Topic, Male, Michigan, Middle Aged, Patient Protection and Affordable Care Act, Practice Patterns, Physicians', Residence Characteristics, Sex Factors, Specialization statistics & numerical data, United States, Health Personnel statistics & numerical data, Medicaid statistics & numerical data, Primary Health Care statistics & numerical data
- Abstract
Objectives: Michigan expanded Medicaid under the Affordable Care Act (ACA) through a federal waiver that permitted state-mandated features, including an emphasis on primary care. We investigated the factors associated with Michigan primary care providers (PCPs)' decision to accept new Medicaid patients under Medicaid expansion., Study Design: Statewide survey of PCPs informed by semistructured interviews., Methods: After Michigan expanded Medicaid on April 1, 2014, we surveyed 2104 PCPs (including physician and nonphysician providers, such as nurse practitioners and physician assistants) with 12 or more assigned Medicaid expansion enrollees (response rate, 56%). To guide survey development and interpretation, we interviewed a separate group of 19 PCPs with Medicaid expansion enrollees from diverse urban and rural regions. Survey questions assessed PCPs' current acceptance of new Medicaid patients., Results: Of the 2104 surveyed PCPs, 78% reported that they were currently accepting additional Medicaid patients; 58% reported having at least some influence on the decision. Factors considered very/moderately important to the Medicaid acceptance decision included practice capacity to accept any new patients (69%), availability of specialists for Medicaid patients (56%), reimbursement amount (56%), psychosocial needs of Medicaid patients (50%), and illness burden of Medicaid patients (46%). PCPs accepting new Medicaid patients tended to be female, minorities, nonphysician providers, specialized in internal medicine, paid by salary, or working in practices with Medicaid-predominant payer mixes., Conclusions: In the era after Medicaid expansion, PCPs placed importance on practice capacity, specialist availability, and patients' medical and psychosocial needs when deciding whether to accept new Medicaid patients. To maintain primary care access for low-income patients with Medicaid, future efforts should focus on enhancing the diversity of the PCP workforce, encouraging healthcare professional training in underserved settings, and promoting practice-level innovations in scheduling and integration of specialist care.
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- 2019
48. Changes in Health and Ability to Work Among Medicaid Expansion Enrollees: a Mixed Methods Study.
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Tipirneni R, Kullgren JT, Ayanian JZ, Kieffer EC, Rosland AM, Chang T, Haggins AN, Clark SJ, Lee S, Solway E, Kirch MA, Mrukowicz C, Beathard E, Sears E, and Goold SD
- Subjects
- Adult, Employment economics, Female, Humans, Male, Medicaid economics, Michigan epidemiology, Middle Aged, Patient Protection and Affordable Care Act economics, Poverty economics, United States epidemiology, Young Adult, Employment trends, Health Status, Medicaid trends, Patient Protection and Affordable Care Act trends, Poverty trends, Surveys and Questionnaires
- Abstract
Background: Michigan expanded Medicaid under the Affordable Care Act (Healthy Michigan Plan [HMP]) to improve the health of low-income residents and the state's economy., Objective: To understand HMP's impact on enrollees' health, ability to work, and ability to seek employment DESIGN: Mixed methods study, including 67 qualitative interviews and 4090 computer-assisted telephone surveys (response rate 53.7%) PARTICIPANTS: Non-elderly adult HMP enrollees MAIN MEASURES: Changes in health status, ability to work, and ability to seek employment KEY RESULTS: Half (47.8%) of respondents reported better physical health, 38.2% better mental health, and 39.5% better dental health since HMP enrollment. Among employed respondents, 69.4% reported HMP helped them do a better job at work. Among out-of-work respondents, 54.5% agreed HMP made them better able to look for a job. Among respondents who changed jobs, 36.9% agreed HMP helped them get a better job. In adjusted analyses, improved health was associated with the ability to do a better job at work (aOR 4.08, 95% CI 3.11-5.35, p < 0.001), seek a job (aOR 2.82, 95% CI 1.93-4.10, p < 0.001), and get a better job (aOR 3.20, 95% CI 1.69-6.09, p < 0.001), but not with employment status (aOR 1.08, 95% CI 0.89-1.30, p = 0.44). In interviews, several HMP enrollees attributed their ability to get or maintain employment to improved physical, mental, and dental health because of services covered by HMP. Remaining barriers to work cited by enrollees included older age, disability, illness, and caregiving responsibilities., Conclusions: Many low-income HMP enrollees reported improved health, ability to work, and job seeking after obtaining health insurance through Medicaid expansion.
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- 2019
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49. Members of Minority and Underserved Communities Set Priorities for Health Research.
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Goold SD, Myers CD, Danis M, Abelson J, Barnett S, Calhoun K, Campbell EG, LaHAHNN L, Hammad A, Rosenbaum RP, Kim HM, Salman C, Szymecko L, and Rowe ZE
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- Adolescent, Adult, Aged, Aged, 80 and over, Female, Humans, Male, Middle Aged, Research Design, United States, Young Adult, Biomedical Research methods, Health Policy, Health Priorities, Minority Groups, Patient Selection, Vulnerable Populations
- Abstract
Policy Points Engaging and involving underrepresented communities when setting research priorities could make the scientific research agenda more equitable, more just, and more responsive to their needs and values. Groups and individuals from minority and underserved communities strongly prioritized child health and mental health research, often choosing to invest at the highest possible level. Groups consisting of predominantly Native American or Arab American participants invested in culture and beliefs research at the highest level, while many groups did not select it at all. The priority given to culture and beliefs research by these groups illustrates the importance of paying special attention to unique preferences, and not just commonly held views, when getting public input on spending priorities for research., Context: A major contributor to health disparities is the relative lack of resources-including resources for science-allocated to address the health problems of those with disproportionately greater needs. Engaging and involving underrepresented communities in setting research priorities could make the scientific research agenda more equitable, more just, and more responsive to their needs and values. We engaged minority and underserved communities in informed deliberations and report here their priorities for health research., Methods: Academic-community partnerships adapted the simulation exercise CHAT for setting health research priorities. We had participants from minority and medically underserved communities (47 groups, n = 519) throughout Michigan deliberate about health research priorities, and we used surveys and CHAT software to collect the demographic characteristics and priorities selected by individuals and groups., Findings: The participants ranged in age (18 to 88), included more women than men, and were overrepresented by minority groups. Nearly all the deliberating groups selected child health and mental health research (93.6% and 95.7%), and most invested at the highest level. Aging, access, promote health, healthy environment, and what causes disease were also prioritized by groups. Research on mental health and child health were high priorities for individuals both before and after group deliberations. Access was the only category more likely to be selected by individuals after group deliberation (77.0 vs 84.0%, OR = 1.63, p = .005), while improve research, health policy, and culture and beliefs were less likely to be selected after group deliberations (all, p < .001). However, the level of investment in many categories changed after the group deliberations. Participants identifying as Black/African American were less likely to prioritize mental health research, and those of Other race were more likely to prioritize culture and beliefs research., Conclusions: Minority and medically underserved communities overwhelmingly prioritized mental health and child health research in informed deliberations about spending priorities., (© 2018 Milbank Memorial Fund.)
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- 2018
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50. Attitudes toward cost-conscious care among U.S. physicians and medical students: analysis of national cross-sectional survey data by age and stage of training.
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Leep Hunderfund AN, Dyrbye LN, Starr SR, Mandrekar J, Tilburt JC, George P, Baxley EG, Gonzalo JD, Moriates C, Goold SD, Carney PA, Miller BM, Grethlein SJ, Fancher TL, Wynia MK, and Reed DA
- Subjects
- Adult, Age Factors, Animals, Cross-Sectional Studies, Decision Making, Female, Health Care Costs, Humans, Male, Mice, Middle Aged, Physician's Role, United States, Attitude of Health Personnel, Cost Control statistics & numerical data, Education, Medical statistics & numerical data, Physicians psychology, Physicians statistics & numerical data, Students, Medical psychology, Students, Medical statistics & numerical data
- Abstract
Background: The success of initiatives intended to increase the value of health care depends, in part, on the degree to which cost-conscious care is endorsed by current and future physicians. This study aimed to first analyze attitudes of U.S. physicians by age and then compare the attitudes of physicians and medical students., Methods: A paper survey was mailed in mid-2012 to 3897 practicing physicians randomly selected from the American Medical Association Masterfile. An electronic survey was sent in early 2015 to all 5,992 students at 10 U.S. medical schools. Survey items measured attitudes toward cost-conscious care and perceived responsibility for reducing healthcare costs. Physician responses were first compared across age groups (30-40 years, 41-50 years, 51-60 years, and > 60 years) and then compared to student responses using Chi square tests and logistic regression analyses (controlling for sex)., Results: A total of 2,556 physicians (65%) and 3395 students (57%) responded. Physician attitudes generally did not differ by age, but differed significantly from those of students. Specifically, students were more likely than physicians to agree that cost to society should be important in treatment decisions (p < 0.001) and that physicians should sometimes deny beneficial but costly services (p < 0.001). Students were less likely to agree that it is unfair to ask physicians to be cost-conscious while prioritizing patient welfare (p < 0.001). Compared to physicians, students assigned more responsibility for reducing healthcare costs to hospitals and health systems (p < 0.001) and less responsibility to lawyers (p < 0.001) and patients (p < 0.001). Nearly all significant differences persisted after controlling for sex and when only the youngest physicians were compared to students., Conclusions: Physician attitudes toward cost-conscious care are similar across age groups. However, physician attitudes differ significantly from medical students, even among the youngest physicians most proximate to students in age. Medical student responses suggest they are more accepting of cost-conscious care than physicians and attribute more responsibility for reducing costs to organizations and systems rather than individuals. This may be due to the combined effects of generational differences, new medical school curricula, students' relative inexperience providing cost-conscious care within complex healthcare systems, and the rapidly evolving U.S. healthcare system.
- Published
- 2018
- Full Text
- View/download PDF
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