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204 results on '"Glaser, Adam W."'

1. Protocol for the ‘Supporting Young Cancer Survivors who Smoke’ study (PRISM): Informing the development of a smoking cessation intervention for childhood, adolescent and young adult cancer survivors in England

Author

Brown, Morven C., primary, Araújo-Soares, Vera, additional, Skinner, Roderick, additional, Brown, Jamie, additional, Glaser, Adam W., additional, Hanratty, Helena, additional, McCabe, Martin G., additional, Amariutei, Ana-Ecaterina, additional, Mauri, Sabrina, additional, and Sharp, Linda, additional

Published
2024
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6. Educational attainment of children with congenital heart disease in the United Kingdom

Author

Cave, Daniel G W, Wands, Zoë E, Cromie, Kirsten, Hough, Amy, Johnson, Kathryn, Mon-Williams, Mark, Bentham, James R, Feltbower, Richard G, and Glaser, Adam W

Abstract

Graphical AbstractKey question—What is the educational attainment of UK children with congenital heart disease (CHD)?Key finding—Children with CHD have lower educational attainment compared with age-matched children with no congenital anomalies. This worsens with age, whilst the amount of support provided reduces.Take-home message—All children with CHD in the UK are at increased risk of educational difficulties and should be considered for early support.

Published
2024
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14. Quality of life in men living with advanced and localised prostate cancer in the UK: a population-based study

Author

Downing, Amy, Wright, Penny, Hounsome, Luke, Selby, Peter, Wilding, Sarah, Watson, Eila, Wagland, Richard, Kind, Paul, Donnelly, David W, Butcher, Hugh, Catto, James W F, Cross, William, Mason, Malcolm, Sharp, Linda, Weller, David, Velikova, Galina, McCaughan, Eilis, Mottram, Rebecca, Allen, Majorie, Kearney, Therese, McSorley, Oonagh, Huws, Dyfed W, Brewster, David H, McNair, Emma, Gavin, Anna, and Glaser, Adam W

Published
2019
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20. Collection of cancer Patient Reported Outcome Measures (PROMS) to link with primary and secondary electronic care records to understand and improve long term cancer outcomes: A protocol paper

Author

Stamp, Elizabeth, primary, Clarke, Gemma, additional, Wright, Penny, additional, Velikova, Galina, additional, Crossfield, Samantha S. R., additional, Zucker, Kieran, additional, McInerney, Ciarán, additional, Bojke, Chris, additional, Martin, Adam, additional, Baxter, Paul, additional, Woroncow, Barbara, additional, Wilson, David, additional, Warrington, Lorraine, additional, Absolom, Kate, additional, Burke, Dermot, additional, Stables, Graeme I., additional, Mitra, Angana, additional, Hutson, Richard, additional, Glaser, Adam W., additional, and Hall, Geoff, additional

Published
2022
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21. Impact of patient and public (PPI) involvement in the Life after Prostate Cancer Diagnosis (LAPCD) study: A mixed methods study

Author

Brett, Joanne, Davey, Zoe, Matley, Fiona, Butcher, Hugh, Keenan, John, Catton, Darryl, Watson, Eila, Wright, Penny, Gavin, Anna, and Glaser, Adam W.

Abstract

Objectives: Standardised reporting of patient and public involvement (PPI) in research studies is needed to facilitate learning about how to achieve effective PPI. The aim of this evaluation was to explore the impact of PPI in a large UK study, the Life After Prostate Cancer Diagnosis (LAPCD) study, and to explore the facilitators and challenges experienced. Design: Mixed methods study using an online survey and semi-structured interviews. Survey and topic guide were informed by systematic review evidence of the impact of PPI and by realist evaluation. Descriptive analysis of survey data and thematic analysis of interview data were conducted. Results are reported using the GRIPP2 reporting guidelines. Setting: Life After Prostate Cancer Diagnosis (LAPCD) study, a UK-wide patient-reported outcomes study Participants: User Advisory Group (UAG) members (n=9) and researchers (n=29) from the LAPCD study Results: Impact was greatest on improving survey design and topic guides for interviews, enhancing clarity of patient facing materials, informing best practice around data collection, and ensuring steering group meetings were grounded in what is important to the patient. Further impacts included ensuring patient focussed dissemination of study findings at conference presentations and in lay summaries. Facilitating context factors included clear aims, time to contribute, confidence to contribute, and feeling valued and supported by researchers and other UAG members. Facilitating mechanisms included embedding the UAG within the study as a separate work-stream, allocating time and resources to the UAG reflecting the value of input, and putting in place clear communication channels. Hindering factors included time commitment, geographical distance, and lack of standardised feedback mechanisms. Conclusion: Including PPI as an integral component of the LAPCD study and providing the right context and mechanisms for involving the UAG helped maximise the programme’s effectiveness and impact.

Published
2022

22. Data Resource Profile: Yorkshire Specialist Register of Cancer in Children and Young People (Yorkshire Register).

Author

Cromie, Kirsten J, Crump, Paul, Hughes, Nicola F, Milner, Sarah, Greenfield, Diana, Jenkins, Anna, McNally, Richard, Stark, Dan, Stiller, Charles A, Glaser, Adam W, and Feltbower, Richard G

Subjects
CHILDHOOD cancer, YOUNG adults, ONCOLOGISTS, ETHNICITY, MEDICAL personnel, MENTAL health services, TEENAGERS
Abstract

Data resource basics Cancer is a rare disease in children and young people[8],[9] and is commonly defined such that it includes any malignant tumour or benign central nervous system (CNS) tumour. Innovative data linkages with routinely collected administrative data facilitate the Yorkshire Register's world-leading programme of research on childhood and young-adult cancer outcomes, extending into ground-breaking areas of social and psychosocial morbidity. Key Features The Yorkshire Register is an established population-based research database of tumours diagnosed in the childhood, adolescent and young-adult age ranges.[1] Set up in 1984 to describe medium- and long-term outcomes for cancer survivors, it remains one of only three specialist databases in the UK covering the paediatric age range and the only one of its kind covering individuals diagnosed aged 25-29 years. 5 SMNs are defined as a malignant neoplasm of any site with a different morphology from that of the primary tumour regardless of time since diagnosis according to the recommended coding of multiple primary cancers.[21],[22] 6 ICCC-3, International Classification of Childhood Cancer (third edition)[20]; CNS, central nervous system. [Extracted from the article]

Published
2023
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24. Stability of health-related quality of life and morbidity burden from 18 months after diagnosis of prostate cancer: results of a UK-wide population-based outcome cohort

Author

Mason, Samantha J., primary, Downing, Amy, additional, Wilding, Sarah, additional, Hounsome, Luke, additional, Wright, Penny, additional, Watson, Eila, additional, Wagland, Richard, additional, Butcher, Hugh, additional, Kind, Paul, additional, Selby, Peter, additional, Gavin, Anna, additional, and Glaser, Adam W., additional

Published
2021
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25. International variation in childhood cancer mortality rates from 2001 to 2015: Comparison of trends in the International Cancer Benchmarking Partnership countries

Author

Smith, Lesley, primary, Stiller, Charles A., additional, Aitken, Joanne F., additional, Hjalgrim, Lisa L., additional, Johannesen, Tom, additional, Lahteenmaki, Paivi, additional, McCabe, Martin G., additional, Phillips, Robert, additional, Pritchard‐Jones, Kathy, additional, Steliarova‐Foucher, Eva, additional, Winther, Jeanette F., additional, Woods, Ryan R., additional, Glaser, Adam W., additional, and Feltbower, Richard G., additional

Published
2021
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26. Inconsistencies in fertility preservation for young people with cancer in the UK

Author

Newton, Hannah L, primary, Picton, Helen M, additional, Friend, Amanda Jane, additional, Hayden, Catherine M, additional, Brougham, Mark, additional, Cox, Rachel, additional, Grandage, Victoria, additional, Kwok-Williams, Michelle, additional, Lane, Sheila, additional, Mitchell, Rod Thomas, additional, Skinner, Roderick, additional, Wallace, W Hamish, additional, Yeomanson, Daniel, additional, and Glaser, Adam W, additional

Published
2021
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27. International perspectives on suboptimal patient‐reported outcome trial design and reporting in cancer clinical trials: A qualitative study

Author

Retzer, Ameeta, primary, Calvert, Melanie, additional, Ahmed, Khaled, additional, Keeley, Thomas, additional, Armes, Jo, additional, Brown, Julia M., additional, Calman, Lynn, additional, Gavin, Anna, additional, Glaser, Adam W., additional, Greenfield, Diana M., additional, Lanceley, Anne, additional, Taylor, Rachel M., additional, Velikova, Galina, additional, Brundage, Michael, additional, Efficace, Fabio, additional, Mercieca‐Bebber, Rebecca, additional, King, Madeleine T., additional, and Kyte, Derek, additional

Published
2021
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29. Severity of COVID-19 in children with cancer: Report from the United Kingdom Paediatric Coronavirus Cancer Monitoring Project

Author

Millen, Gerard C., primary, Arnold, Roland, additional, Cazier, Jean-Baptiste, additional, Curley, Helen, additional, Feltbower, Richard G., additional, Gamble, Ashley, additional, Glaser, Adam W., additional, Grundy, Richard G., additional, Lee, Lennard Y. W., additional, McCabe, Martin G., additional, Phillips, Robert S., additional, Stiller, Charles A., additional, Várnai, Csilla, additional, and Kearns, Pamela R., additional

Published
2020
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30. Using qualitative and co-design methods to inform the development of an intervention to support and improve physical activity in childhood cancer survivors: a study protocol for BEing Active after ChildhOod caNcer (BEACON)

Author

Brown, Morven C, primary, Araújo-Soares, Vera, additional, Skinner, Roderick, additional, Glaser, Adam W, additional, Sarwar, Naseem, additional, Saxton, John M, additional, Montague, Kyle, additional, Hall, Jamie, additional, Burns, Olivia, additional, and Sharp, Linda, additional

Published
2020
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31. The Impact of the COVID-19 Pandemic on Genitourinary Cancer Care: Re-envisioning the Future

Author

Wallis, Christopher J.D., primary, Catto, James W.F., additional, Finelli, Antonio, additional, Glaser, Adam W., additional, Gore, John L., additional, Loeb, Stacy, additional, Morgan, Todd M., additional, Morgans, Alicia K., additional, Mottet, Nicolas, additional, Neal, Richard, additional, O’Brien, Tim, additional, Odisho, Anobel Y., additional, Powles, Thomas, additional, Skolarus, Ted A., additional, Smith, Angela B., additional, Szabados, Bernadett, additional, Klaassen, Zachary, additional, and Spratt, Daniel E., additional

Published
2020
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32. Inconsistencies in fertility preservation for young people with cancer in the UK.

Author

Newton, Hannah L., Picton, Helen M., Friend, Amanda Jane, Hayden, Catherine M., Brougham, Mark, Cox, Rachel, Grandage, Victoria, Kwok-Williams, Michelle, Lane, Sheila, Mitchell, Rod Thomas, Skinner, Roderick, Wallace, W. Hamish, Yeomanson, Daniel, Glaser, Adam W., and Children’s Cancer and Leukaemia Group Late-effects Working Group

Subjects
ONCOLOGISTS, YOUNG adults, FERTILITY preservation, CANCER patients, PEDIATRIC oncology, SPERM banks
Abstract

Objective: To assess the utilisation of and funding structure for fertility preservation for children diagnosed with cancer in the UK.Design: Survey of paediatric oncologists/haematologists. Questionnaires were sent electronically with reminder notifications to non-responders.Setting: UK Paediatric Oncology Principal Treatment Centres (PTCs).Participants: Paediatric oncologists/haematologists with an interest in the effects of treatment on fertility representing the 20 PTCs across the UK.Main Outcome Measures: Referral practices, sources and length of funding for storage of gametes or gonadal tissue for children diagnosed with cancer in the preceding 12 months.Results: Responses were received from 18 PTCs (90%) with responses to 98.3% of questions. All centres had referred patients for fertility preservation: ovarian tissue collection/storage 100% (n=18 centres), sperm banking 100% (n=17; one centre was excluded due to the age range of their patients), testicular tissue storage 83% (n=15), mature oocyte collection 35% (n=6; one centre was excluded due to the age range of their patients). All centres with knowledge of their funding source reported sperm cryopreservation was NHS funded. Only 60% (n=9) centres reported the same for mature oocyte storage. Of the centres aware of their funding source, half reported that ovarian and testicular tissue storage was funded by charitable sources; this increased in England compared with the rest of the UK.Conclusions: Inequality exists in provision of fertility preservation for children with cancer across the UK. There is lack of formalised government funding to support international guidelines, with resultant geographical variation in care. Centralised funding of fertility preservation for children and young adults is needed alongside establishment of a national advisory panel to support all PTCs. [ABSTRACT FROM AUTHOR]

Published
2022
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33. International variation in childhood cancer mortality rates from 2001 to 2015: Comparison of trends in the International Cancer Benchmarking Partnership countries.

Author

Smith, Lesley, Stiller, Charles A., Aitken, Joanne F., Hjalgrim, Lisa L., Johannesen, Tom, Lahteenmaki, Paivi, McCabe, Martin G., Phillips, Robert, Pritchard‐Jones, Kathy, Steliarova‐Foucher, Eva, Winther, Jeanette F., Woods, Ryan R., Glaser, Adam W., and Feltbower, Richard G.

Subjects
DEATH rate, CANCER-related mortality, CHILDHOOD cancer, AGE groups, CENTRAL nervous system tumors, SURVIVAL rate, MORTALITY, NURSE practitioners
Abstract

Despite improved survival rates, cancer remains one of the most common causes of childhood death. The International Cancer Benchmarking Partnership (ICBP) showed variation in cancer survival for adults. We aimed to assess and compare trends over time in cancer mortality between children, adolescents and young adults (AYAs) and adults in the six countries involved in the ICBP: United Kingdom, Denmark, Australia, Canada, Norway and Sweden. Trends in mortality between 2001 and 2015 in the six original ICBP countries were examined. Age standardised mortality rates (ASR per million) were calculated for all cancers, leukaemia, malignant and benign central nervous system (CNS) tumours, and non‐CNS solid tumours. ASRs were reported for children (age 0‐14 years), AYAs aged 15 to 39 years and adults aged 40 years and above. Average annual percentage change (AAPC) in mortality rates per country were estimated using Joinpoint regression. For all cancers combined, significant temporal reductions were observed in all countries and all age groups. However, the overall AAPC was greater for children (−2.9; 95% confidence interval = −4.0 to −1.7) compared to AYAs (−1.8; −2.1 to −1.5) and adults aged >40 years (−1.5; −1.6 to −1.4). This pattern was mirrored for leukaemia, CNS tumours and non‐CNS solid tumours, with the difference being most pronounced for leukaemia: AAPC for children −4.6 (−6.1 to −3.1) vs AYAs −3.2 (−4.2 to −2.1) and over 40s −1.1 (−1.3 to −0.8). AAPCs varied between countries in children for all cancers except leukaemia, and in adults over 40 for all cancers combined, but not in subgroups. Improvements in cancer mortality rates in ICBP countries have been most marked among children aged 0 to 14 in comparison to 15 to 39 and over 40 year olds. This may reflect better care, including centralised service provision, treatment protocols and higher trial recruitment rates in children compared to older patients. What's new? Cancer mortality rates and trends are a function of both cancer incidence and survival and reflect the success of public health policy. Here, the authors compared mortality among children, adolescents and young adults, and older adults across six high‐income, universal health‐coverage nations between 2001 and 2015. They found a consistent temporal reduction in mortality rates in all populations. Changes in cancer mortality rates were larger among children than among adolescent and young adults or older adults. This may reflect the more centralised cancer care provision, more consistent uptake of treatment protocols, and higher trial recruitment rates in children compared to other age groups in these high‐income countries. [ABSTRACT FROM AUTHOR]

Published
2022
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34. Guidance regarding COVID‐19 for survivors of childhood, adolescent, and young adult cancer: A statement from the International Late Effects of Childhood Cancer Guideline Harmonization Group

Author

Verbruggen, Lisanne C., primary, Wang, Yuehan, additional, Armenian, Saro H., additional, Ehrhardt, Matthew J., additional, van der Pal, Helena J.H., additional, van Dalen, Elvira C., additional, van As, Jorrit W., additional, Bardi, Edit, additional, Baust, Katja, additional, Berger, Claire, additional, Castagnola, Elio, additional, Devine, Katie A., additional, Gebauer, Judith, additional, Marchak, Jordan Gilleland, additional, Glaser, Adam W., additional, Groll, Andreas H., additional, Haeusler, Gabrielle M., additional, den Hartogh, Jaap, additional, Haupt, Riccardo, additional, Hjorth, Lars, additional, Kato, Miho, additional, Kepák, Tomáš, additional, Koopman, Maria M.W. (Rianne), additional, Langer, Thorsten, additional, Maeda, Miho, additional, Michel, Gisela, additional, Muraca, Monica, additional, Nathan, Paul C., additional, van den Oever, Selina R., additional, Pavasovic, Vesna, additional, Sato, Satomi, additional, Schulte, Fiona, additional, Sung, Lillian, additional, Tissing, Wim, additional, Uyttebroeck, Anne, additional, Mulder, Renée L., additional, Kuehni, Claudia, additional, Skinner, Roderick, additional, Hudson, Melissa M., additional, and Kremer, Leontien C.M., additional

Published
2020
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37. Adjustment strategies amongst black African and black Caribbean men following treatment for prostate cancer: Findings from the Life After Prostate Cancer Diagnosis (LAPCD) study

Author

Wagland, Richard, primary, Nayoan, Johana, additional, Matheson, Lauren, additional, Rivas, Carol, additional, Brett, Jo, additional, Collaco, Nicole, additional, Alexis, Obrey, additional, Gavin, Anna, additional, Glaser, Adam W, additional, and Watson, Eila, additional

Published
2019
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39. PMS2 Mutations in Childhood Cancer

Author

De Vos, Michel, Hayward, Bruce E., Charlton, Ruth, Taylor, Graham R., Glaser, Adam W., Picton, Susan, Cole, Trevor R., Maher, Eamonn R., McKeown, Carole M. E., Mann, Jill R., Yates, John R., Baralle, Diana, Rankin, Julia, Bonthron, David T., and Sheridan, Eamonn

Published
2006

40. Regional Variations in Quality of Survival Among Men with Prostate Cancer Across the United Kingdom

Author

Donnelly, David W., primary, Gavin, Anna, additional, Downing, Amy, additional, Hounsome, Luke, additional, Kearney, Therese, additional, McNair, Emma, additional, Allan, Dawn, additional, Huws, Dyfed W., additional, Wright, Penny, additional, Selby, Peter J., additional, Kind, Paul, additional, Watson, Eila, additional, Wagland, Richard, additional, Wilding, Sarah, additional, Butcher, Hugh, additional, Mottram, Rebecca, additional, Allen, Majorie, additional, McSorley, Oonagh, additional, Sharp, Linda, additional, Mason, Malcolm D., additional, Cross, William R., additional, Catto, James W.F., additional, and Glaser, Adam W., additional

Published
2019
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42. Systematic Evaluation of Patient-Reported Outcome Protocol Content and Reporting in Cancer Trials

Author

Kyte, Derek, primary, Retzer, Ameeta, additional, Ahmed, Khaled, additional, Keeley, Thomas, additional, Armes, Jo, additional, Brown, Julia M, additional, Calman, Lynn, additional, Gavin, Anna, additional, Glaser, Adam W, additional, Greenfield, Diana M, additional, Lanceley, Anne, additional, Taylor, Rachel M, additional, Velikova, Galina, additional, Brundage, Michael, additional, Efficace, Fabio, additional, Mercieca-Bebber, Rebecca, additional, King, Madeleine T, additional, Turner, Grace, additional, and Calvert, Melanie, additional

Published
2019
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