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4. Growth patterns in children with spinal muscular atrophy

Author

De Amicis, Ramona, Baranello, Giovanni, Foppiani, Andrea, Leone, Alessandro, Battezzati, Alberto, Bedogni, Giorgio, Ravella, Simone, Giaquinto, Ester, Mastella, Chiara, Agosto, Caterina, Bertini, Enrico, D’Amico, Adele, Pedemonte, Marina, Bruno, Claudio, Wells, Jonathan C., Fewtrell, Mary, and Bertoli, Simona

Published
2021
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7. Health services utilization in patients with eating disorders: evidence from a cohort study in Emilia-Romagna

Author

Piazza, Antonella, Rucci, Paola, Clo, Massimo, Gibertoni, Dino, Camellini, Lucia, Di Stani, Marinella, Fantini, Maria Pia, Ferri, Mila, Fioritti, Angelo, Limonta, Giuliano, Rossetti, Massimo, Gibin, Anna Maria, Manicardi, Enrica, Annovi, Claudio, Gentili, Carlotta, Franzoni, Emilio, Della Gala, Carlo, Caracciolo, Stefano, Giaquinto, Ester, Ghigi, Daniela, and The Regional Group on Eating Disorders

Published
2016
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8. Additional file 4 of Growth patterns in children with spinal muscular atrophy

Author

De Amicis, Ramona, Baranello, Giovanni, Foppiani, Andrea, Leone, Alessandro, Battezzati, Alberto, Bedogni, Giorgio, Ravella, Simone, Giaquinto, Ester, Mastella, Chiara, Agosto, Caterina, Bertini, Enrico, D’Amico, Adele, Pedemonte, Marina, Bruno, Claudio, Wells, Jonathan C., Fewtrell, Mary, and Bertoli, Simona

Abstract

Additional file 4: Figure S3. Body weight, supine length, and BMI-for-age percentile curves (10th, 25th, 50th, 75th and 90th) of SMA2 patients.

Published
2021
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9. Additional file 2 of Growth patterns in children with spinal muscular atrophy

Author

De Amicis, Ramona, Baranello, Giovanni, Foppiani, Andrea, Leone, Alessandro, Battezzati, Alberto, Bedogni, Giorgio, Ravella, Simone, Giaquinto, Ester, Mastella, Chiara, Agosto, Caterina, Bertini, Enrico, D’Amico, Adele, Pedemonte, Marina, Bruno, Claudio, Wells, Jonathan C., Fewtrell, Mary, and Bertoli, Simona

Abstract

Additional file 2: Fig. S2. Body weight, supine length, and BMI-for-age percentile curves (10th, 25th, 50th, 75th and 90th) of SMA1 patients.

Published
2021
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10. Paediatric Home Artificial Nutrition in Italy: Report from 2016 Survey on Behalf of Artificial Nutrition Network of Italian Society for Gastroenterology, Hepatology and Nutrition (SIGENP)

Author

Lezo, Antonella, primary, Capriati, Teresa, additional, Spagnuolo, Maria, additional, Lacitignola, Laura, additional, Goreva, Irina, additional, Di Leo, Grazia, additional, Cecchi, Nicola, additional, Gandullia, Paolo, additional, Amarri, Sergio, additional, Forchielli, Maria, additional, Dipasquale, Valeria, additional, Parma, Barbara, additional, Gatti, Simona, additional, Ravaioli, Elisa, additional, Salvatore, Silvia, additional, Mainetti, Martina, additional, Norsa, Lorenzo, additional, Pellegrino, Maristella, additional, Fornaro, Martina, additional, Fiorito, Valentina, additional, Lanari, Marcello, additional, Giaquinto, Ester, additional, Verduci, Elvira, additional, Baldassarre, Maria, additional, and Diamanti, Antonella, additional

Published
2018
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12. Paediatric Home Artificial Nutrition in Italy: Report from 2016 Survey on Behalf of Artificial Nutrition Network of Italian Society for Gastroenterology, Hepatology and Nutrition (SIGENP)

Author

Martina Mainetti, Simona Gatti, Ester Giaquinto, Sergio Amarri, Antonella Lezo, Laura Lacitignola, Maria Immacolata Spagnuolo, Maristella Pellegrino, Martina Fornaro, Maria Elisabetta Baldassarre, Maria Luisa Forchielli, B. Parma, Lorenzo Norsa, Paolo Gandullia, Irina Goreva, Marcello Lanari, Elisa Ravaioli, Teresa Capriati, Nicola Cecchi, Valeria Dipasquale, Grazia Di Leo, Silvia Salvatore, Antonella Diamanti, Elvira Verduci, Valentina Fiorito, Lezo, Antonella, Capriati, Teresa, Spagnuolo, Maria Immacolata, Lacitignola, Laura, Goreva, Irina, Di Leo, Grazia, Cecchi, Nicola, Gandullia, Paolo, Amarri, Sergio, Forchielli, Maria Luisa, Dipasquale, Valeria, Parma, Barbara, Gatti, Simona, Ravaioli, Elisa, Salvatore, Silvia, Mainetti, Martina, Norsa, Lorenzo, Pellegrino, Maristella, Fornaro, Martina, Fiorito, Valentina, Lanari, Marcello, Giaquinto, Ester, Verduci, Elvira, Baldassarre, Maria Elisabetta, and Diamanti, Antonella

Subjects
Home Care Service, Male, 0301 basic medicine, Time Factors, Children, Home enteral nutrition, Home parenteral nutrition, Oral nutritional supplements, Pediatrics, 0302 clinical medicine, Quality of life, Epidemiology, Age Factor, Child, Pediatric, Nutrition and Dietetics, Incidence (epidemiology), Age Factors, Home Care Services, Nutritional Statu, Italy, Child, Preschool, oral nutritional supplements, population characteristics, Female, 030211 gastroenterology & hepatology, Child Nutritional Physiological Phenomena, Parenteral Nutrition, Home, lcsh:Nutrition. Foods and food supply, geographic locations, Human, medicine.medical_specialty, Adolescent, Time Factor, Demographics, MEDLINE, Nutritional Status, lcsh:TX341-641, Oral nutritional supplement, Artificial nutrition, Article, Young Adult, 03 medical and health sciences, Enteral Nutrition, Internal medicine, medicine, Humans, 030109 nutrition & dietetics, business.industry, Infant, Newborn, nutritional and metabolic diseases, Infant, Hepatology, eye diseases, stomatognathic diseases, Parenteral nutrition, Health Care Survey, Health Care Surveys, Family medicine, business, Food Science
Abstract

Home Artificial Nutrition (HAN) is a safe and efficacious technique that insures children&rsquo, s reintegration into the family, society and school. Epidemiological data on paediatric HAN in Italy are not available. Aim: to detect the prevalence and incidence of Home Parenteral Nutrition (HPN) and Home Enteral Nutrition (HEN), either via tube or mouth, in Italy in 2016. Materials and methods: a specific form was sent to all registered SIGENP members and investigators of local HAN centres, inviting them to provide the requested centre&rsquo, s data and demographics, underlying diseases and HAN characteristics of the patients. Results: we recorded 3403 Italian patients on HAN aged 0 to 19 years from 22 centres: 2277 HEN, 950 Oral Nutritional Supplements (ONS) and 179 HPN programs. The prevalence of HEN (205 pts/million inhabitants) and HPN (16 pts/million inhabitants) has dramatically increased in Italy in the last 9 years. Neurodisabling conditions were the first indication for HEN by tube or mouth while HPN is mainly requested in digestive disorders. Conclusions: HAN is a widespread and rapidly growing treatment in Italy, as well as in other European countries. Awareness of its extent and characteristics helps improving HAN service and patients&rsquo, quality of life.

Published
2018
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