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1. Impact of a Regional Pediatric Hematology/Oncology Fellowship Program in Guatemala

Author

Moreira, Daniel C., Garrido, Claudia, Rosado, Roy, Girón, Verónica, Letona, Tomás, Morales, Gerson, Valverde, Patricia, Velásquez, Thelma, Alfaro, Jeanine, Orellana, Elizabeth, Ortega, Miguel Angel, Salguero, Paola, Fox Irwin, Leeanna, Andujar, Allyson, de Alarcón, Pedro A., Luna-Fineman, Sandra, Manco-Johnson, Marilyn, Conter, Valentino, Verna, Marta, Canesi, Marta, Massimino, Maura, Spreafico, Filippo, Ferrari, Andrea, Gassant, Pascale Y., Vásquez, Roberto, Friedrich, Paola, Mack, Ricardo, Ribeiro, Raul, Metzger, Monika L., Rodriguez-Galindo, Carlos, and Antillón-Klussmann, Federico

Published
2024
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2. Global characteristics and outcomes of SARS-CoV-2 infection in children and adolescents with cancer (GRCCC): a cohort study

Author

Ribelles, A Juan, Balduzzi, Adriana, Elhaddad, Alaa, Casanovas, Alejandra, Garcia Velazquez, Alejandra, Laptsevich, Aliaksandra, Chang, Alicia, F. Sampaio, Alessandra Lamenha, González Prieto, Almudena, Lassaletta, Alvaro, Suarez M, Amaranto, Alcasabas, Ana Patricia, Colita, Anca, Morales La Madrid, Andres, Samudio, Angélica, Tondo, Annalisa, Colombini, Antonella, Kattamis, Antonis, Lopez Facundo, N Araceli, Bhattacharyya, Arpita, Alimi, Aurélia, Phulpin, Aurélie, Vakrmanova, Barbora, Aksoy, Basak A, Brethon, Benoit, Kobuin, Jator Brian, Nolasco Monteiro, Carla, Paillard, Catherine, Vezina, Catherine, Ceyhun, Bozkurt, Hentea, Cristiana, Meazza, Cristina, Ortiz-Morales, Daniel, Solorzano, Roque Daniel, Arce Cabrera, Daniela, Zama, Daniele, Ghosh, Debjani, Ramírez-Rivera, Diana, Calle Jara, Doris A, Janic, Dragana, Rey Helo, Elianneth, Gouache, Elodie, Guerrero Quiroz, Enmanuel, Lopez, Enrique, Thebault, Eric, Maradiegue, Essy, de Berranger, Eva, Ebeid, Fatma S E, Galaverna, Federica, Antillon-Klussmann, Federico, Espinoza Chacur, Felipe, Negro, Fernando Daniel, Carraro, Francesca, Compagno, Francesca, Barriga, Francisco, Tamayo Pedraza, Gabriela, Sanchez Fernandez, Gissela, Naidu, Gita, Tokuc, Gülnur, Alias, Hamidah, B Segocio, Hannah Grace, Boudiaf, Houda, Asetre Luna, Imelda, Maia, Iris, Astigarraga, Itziar, Maza, Ivan, Montoya Vásquez, Jacqueline E, Jazbec, Janez, Lazic, Jelena, Beck Dean, Jeniffer, Rouger-Gaudichon, Jeremie, Contreras González, Johanny Carolina, Huerta Aragonés, Jorge, Fuster, José L, Quintana, Juan, Palma, Julia, Svojgr, Karel, Quintero, Karina, Malic Tudor, Karolina, Georgantzi, Kleopatra, P Schultz, Kris Ann, Ureña Horno, Laura, Fraquelli, Lidia, Meneghello, Linda, Shalaby, Lobna, Macias Mora, Lola L, A Renner, Lorna, Nunes Silva, Luciana, Sisinni, Luisa, Hammad, Mahmoud, Fernández Sanmartín, M, Zubieta A, C Marcela, Drozdowski, María Constanza, Kourti, Maria, Palladino, Marcela María, Miranda Madrazo, Maria R, Poiree, Marilyne, Popova, Marina, Melgar, Mario, Baragaño, Marta, Avilés-Robles, Martha J, Provenzi, Massimo, Mendes Lins, Mecneide, Fatih Orhan, Mehmet, Villarroel, Milena, Jerónimo, Mónica, Varas Palma, Mónica, Rafie Raza, Muhammad, M Justin, Mulindwa, Shaheen, Najma, Domínguez-Pinilla, Nerea, Whipple, Nicholas S, André, Nicolas, Hrusak, Ondrej, Velasco Puyó, Pablo, Zacasa Vargas, Pamela, Olate Mellado, Paola, Yola Gassant, Pascale, Diaz Romero, Paulina, De Santis, Raffaella, Kebudi, Rejin, Boranbayeva, Riza, Vasquez, Roberto, Segura, Romel A., Rosado, Roy Enrique, Gómez, Sandra, Raimbault, Sandra, Gunasekera, Sanjeeva, Makkeyah, Sara M, Buyukkapu Bay, Sema, M Gómez, Sergio, Bouttefroy, Séverine, Islam, Shahnoor, Abouelnaga, Sherif, Torres, Silvio Fabio, Cesaro, Simone, Nunes, Sofia, Rouxinol, Soraia, Bhaumik, Sucharita, Saliyeva, Symbat, Inostroza, Tamara, Velasquez, Thelma, Hnin, Tint Myo, Norén-Nyström, Ulrika, Baretta, Valentina, Jimenez-Antolinez, Yajaira Valentine, Pérez Alonso, Vanesa, Ayer Miller, Vanessa, Gandemer, Virginie, Lotero, Viviana, Mishkova, Volha, Gómez-García, Wendy, Margaryan, Yeva, Syed, Yumna, Mukkada, Sheena, Bhakta, Nickhill, Chantada, Guillermo L, Chen, Yichen, Vedaraju, Yuvanesh, Faughnan, Lane, Homsi, Maysam R, Muniz-Talavera, Hilmarie, Ranadive, Radhikesh, Metzger, Monika, Friedrich, Paola, Agulnik, Asya, Jeha, Sima, Lam, Catherine, Dalvi, Rashmi, Hessissen, Laila, Moreira, Daniel C, Santana, Victor M, Sullivan, Michael, Bouffet, Eric, Caniza, Miguela A, Devidas, Meenakshi, Pritchard-Jones, Kathy, and Rodriguez-Galindo, Carlos

Published
2021
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4. Children's understanding of dying and death: A multinational grounded theory study.

Author

McPoland, Paula, Grossoehme, Daniel H., Sheehan, Denice C., Stephenson, Pamela, Downing, Julia, Deshommes, Theony, Gassant, Pascale Y.H., and Friebert, Sarah

Subjects
DEATH, CHILDREN, SPIRITUALITY, ALTRUISM, GROUNDED theory
Abstract

Objectives: The ways in which children understand dying and death remain poorly understood; most studies have been carried out with samples other than persons with an illness. The objective of this study was to understand the process by which children directly involved with life-limiting conditions understand dying and death. Methods: This qualitative study obtained interview data from N  = 44 5–18-year-old children in the USA, Haiti, and Uganda who were pediatric palliative care patients or siblings of patients. Of these, 32 were children with a serious condition and 12 were siblings of a child with a serious condition. Interviews were recorded, transcribed, verified, and analyzed using grounded theory methodology. Results: Loss of normalcy and of relationships emerged as central themes described by both ill children and siblings. Resilience, altruism, and spirituality had a bidirectional relationship with loss, being strategies to manage both losses and anticipated death, but also being affected by losses. Resiliency and spirituality, but not altruism, had a bidirectional relationship with anticipating death. Themes were consistent across the 3 samples, although the beliefs and behaviors expressing them varied by country. Significance of results: This study partially fills an identified gap in research knowledge about ways in which children in 3 nations understand dying and death. While children often lack an adult vocabulary to express thoughts about dying and death, results show that they are thinking about these topics. A proactive approach to address issues is warranted, and the data identify themes of concern to children. [ABSTRACT FROM AUTHOR]

Published
2024
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5. Factors influencing treatment decision‐making for cancer patients in low‐ and middle‐income countries: A scoping review

Author

Salek, Marta, primary, Silverstein, Allison, additional, Tilly, Alyssa, additional, Gassant, Pascale Yola, additional, Gunasekera, Sanjeeva, additional, Hordofa, Diriba Fufa, additional, Hesson, Donna, additional, Duffy, Caitlyn, additional, Malik, Nauman, additional, McNeil, Michael, additional, Force, Lisa M., additional, Bhakta, Nickhill, additional, Rodin, Danielle, additional, and Kaye, Erica C., additional

Published
2023
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6. Interdisciplinary care of pediatric oncology patients: A survey of clinicians in Central America and the Caribbean

Author

Graetz, Dylan E., primary, Chen, Yichen, additional, Devidas, Meenakshi, additional, Antillon‐Klussmann, Federico, additional, Fu, Ligia, additional, Quintero, Karina, additional, Fuentes‐Alabi, Soad L., additional, Gassant, Pascale Y., additional, Kaye, Erica C., additional, Baker, Justin N., additional, Rodriguez Galindo, Carlos, additional, and Mack, Jennifer W., additional

Published
2023
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7. 2165. Surveillance of Severe Viral Respiratory Infections among Children Presenting to Hôpital Saint Damien in Haiti

Author

Turner, Jasmine C M, primary, Gassant, Pascale, additional, Gautier, Jacqueline, additional, Joseph, Marie Betanie, additional, Gustinvil, Robens, additional, Deroncelay, Alexandra, additional, Dor, Vanessa, additional, Lee, Natalie, additional, Homsi, Maysam R, additional, Webby, Richard, additional, and Caniza, Miguela A, additional

Published
2022
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8. Communication transforms the impact of the COVID‐19 pandemic on children with cancer and their families.

Author

Ferrara, Gia, Aguina, Molly, Mirochnick, Emily, Wiphatphumiprates, Parima, Moreira, Daniel C., Sniderman, Elizabeth, Villegas, César A., Kaye, Erica C., Ragab, Iman, Maliti, Biemba, Naidu, Gita, Gassant, Pascale Y., Arce, Daniela, Arora, Ramandeep Singh, Alcasabas, Ana Patricia, Raza, Muhammad Rafie, Velasco, Pablo, Kambugu, Joyce, Vinitsky, Anna, and Rodriguez Galindo, Carlos

Subjects
COVID-19 pandemic, CHILDHOOD cancer, PATIENTS, PATIENTS' families, FAMILIES
Abstract

Background: The COVID‐19 pandemic altered healthcare systems globally, causing delays in care delivery and increased anxiety among patients and families. This study examined how hospital stakeholders and clinicians perceived the global impact of the COVID‐19 pandemic on children with cancer and their families. Methods: This secondary analysis examined data from a qualitative study consisting of 19 focus groups conducted in 8 languages throughout 16 countries. A codebook was developed with novel codes derived inductively from transcript review. In‐depth analysis focused on the impact of the COVID‐19 pandemic on children with cancer and their families. Results: Eight themes describing the impact of the pandemic on patients and their families were identified and classified into three domains: contributing factors (COVID‐19 Policies, Cancer Treatment Modifications, COVID‐19 Symptoms, Beliefs), patient‐related impacts (Quality of Care, Psychosocial impacts, Treatment Reluctance), and the central transformer (Communication). Participants described the ability of communication to transform the effect of contributing factors on patient‐related impacts. The valence of impacts depended on the quality and quantity of communication among clinicians and between clinicians and patients and families. Conclusions: Communication served as the central factor impacting whether the COVID‐19 pandemic positively or negatively affected children with cancer and families. These findings emphasize the key role communication plays in delivering patient‐centered care and can guide future development of communication‐centered interventions globally. [ABSTRACT FROM AUTHOR]

Published
2023
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9. Defining availability of 100 essential diagnostic items for children with cancer and gaps in implementing WHO recommendations: Global CEDx Working Group survey

Author

Lam, Catherine G, primary, Alcasabas, Ana Patricia, additional, Antillon, Federico, additional, Calderon, Patricia, additional, Dolendo, Mae, additional, Fu, Ligia, additional, Gamboa, Yessika, additional, Gassant, Pascale, additional, Gomez-Garcia, Wendy, additional, Gunasekera, Sanjeeva, additional, Khaing, Aye Aye, additional, Kizyma, Roman, additional, Hessissen, Laila, additional, Mulindwa, Justin, additional, Nogovitsyna, Yuliya, additional, Pascual, Claudia, additional, Quintero, Karina, additional, Renner, Lorna, additional, Soto, Gabriela, additional, Vasquez, Liliana, additional, Vasquez, Roberto, additional, and Metzger, Monika, additional

Published
2022
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11. Impact of COVID‐19 in pediatric oncology care in Latin America during the first year of the pandemic

Author

Villanueva, Gabriela, primary, Sampor, Claudia, additional, Palma, Julia, additional, Villarroel, Milena, additional, Valencia, Diana, additional, Lombardi, Mercedes García, additional, Garcia, Wendy Gomez, additional, Caceres, Eva Lezcano, additional, Sobrero, Victoria, additional, Garcia, Lilia, additional, Cabrera, Victor, additional, Maza, Ivan, additional, Velasquez, Thelma, additional, Ugaz, Cecilia, additional, Vasquez, Jacqueline Montoya, additional, Coronado, Rosdali Diaz, additional, Gonzalez, Natalia, additional, Aguiar, Simone, additional, Dabezies, Agustin, additional, Moreno, Florencia, additional, Sardinas, Susan, additional, Gamboa, Yessika, additional, Maradiegue, Essy, additional, Fu, Ligia, additional, Gassant, Pascale, additional, Moreno, Katiuska, additional, Gonzales, Oscar, additional, Schelotto, Magdalena, additional, Luna‐Fineman, Sandra, additional, Antoneli, Celia Gianotti, additional, Fuentes‐Alabi, Soad, additional, Luciani, Silvana, additional, Cappellano, Andrea, additional, Chantada, Guillermo, additional, and Vasquez, Liliana, additional

Published
2022
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12. Utilizing Multilingual Methods and Rapid Analysis for Global Qualitative Research During a Pandemic

Author

Graetz, Dylan E., primary, Sniderman, Elizabeth, additional, Villegas, Cesar, additional, Ragab, Iman, additional, Laptsevich, Aliaksandra, additional, Maliti, Biemba, additional, Naidu, Gita, additional, Zhang, Hui, additional, Gassant, Pascale, additional, Nunes, Luciana, additional, Arce, Daniela, additional, Vasquez, Jacqueline Montoya, additional, Arora, Ramandeep S, additional, Alcasabas, Ana P, additional, Rusmawatiningtyas, Desy, additional, Raza, Muhammad Rafie, additional, Hamid, Syed A, additional, Velasco, Pablo, additional, Kambugu, Joyce, additional, Vinitsky, Anna, additional, Bolous, Nancy S., additional, Haidar, Cyrine E., additional, Bihannic, Laure, additional, Sa da Bandeira, Diana, additional, Wang, Jade X, additional, Li, Dongfang, additional, Graca, Flavia, additional, Vasilyeva, Aksana, additional, Lesmana, Harry, additional, Galindo, Carlos R, additional, Agulnik, Asya, additional, and Moreira, Daniel C., additional

Published
2022
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13. Pediatric Oncology Palliative Care Programs in Central America: Pathways to Success

Author

Gómez García, Wendy Cristhyna, primary, Rivas, Silvia, additional, Paz, Gabriela, additional, Bustamante, Marisol, additional, Castro, Gerardo, additional, Gutiérrez, Hazel, additional, Ah Chu, Maria Sabina, additional, Gassant, Pascale Yola, additional, Larin Lovo, Rolando, additional, Gamboa, Yessika, additional, Torres Núñez, Marleni, additional, García Quintero, Ximena, additional, and Okhuysen-Cawley, Regina, additional

Published
2021
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14. Global characteristics and outcomes of SARS-CoV-2 infection in children and adolescents with cancer (GRCCC): a cohort study

Author

Mukkada, Sheena, primary, Bhakta, Nickhill, additional, Chantada, Guillermo L, additional, Chen, Yichen, additional, Vedaraju, Yuvanesh, additional, Faughnan, Lane, additional, Homsi, Maysam R, additional, Muniz-Talavera, Hilmarie, additional, Ranadive, Radhikesh, additional, Metzger, Monika, additional, Friedrich, Paola, additional, Agulnik, Asya, additional, Jeha, Sima, additional, Lam, Catherine, additional, Dalvi, Rashmi, additional, Hessissen, Laila, additional, Moreira, Daniel C, additional, Santana, Victor M, additional, Sullivan, Michael, additional, Bouffet, Eric, additional, Caniza, Miguela A, additional, Devidas, Meenakshi, additional, Pritchard-Jones, Kathy, additional, Rodriguez-Galindo, Carlos, additional, Ribelles, A Juan, additional, Balduzzi, Adriana, additional, Elhaddad, Alaa, additional, Casanovas, Alejandra, additional, Garcia Velazquez, Alejandra, additional, Laptsevich, Aliaksandra, additional, Chang, Alicia, additional, F. Sampaio, Alessandra Lamenha, additional, González Prieto, Almudena, additional, Lassaletta, Alvaro, additional, Suarez M, Amaranto, additional, Alcasabas, Ana Patricia, additional, Colita, Anca, additional, Morales La Madrid, Andres, additional, Samudio, Angélica, additional, Tondo, Annalisa, additional, Colombini, Antonella, additional, Kattamis, Antonis, additional, Lopez Facundo, N Araceli, additional, Bhattacharyya, Arpita, additional, Alimi, Aurélia, additional, Phulpin, Aurélie, additional, Vakrmanova, Barbora, additional, Aksoy, Basak A, additional, Brethon, Benoit, additional, Kobuin, Jator Brian, additional, Nolasco Monteiro, Carla, additional, Paillard, Catherine, additional, Vezina, Catherine, additional, Ceyhun, Bozkurt, additional, Hentea, Cristiana, additional, Meazza, Cristina, additional, Ortiz-Morales, Daniel, additional, Solorzano, Roque Daniel, additional, Arce Cabrera, Daniela, additional, Zama, Daniele, additional, Ghosh, Debjani, additional, Ramírez-Rivera, Diana, additional, Calle Jara, Doris A, additional, Janic, Dragana, additional, Rey Helo, Elianneth, additional, Gouache, Elodie, additional, Guerrero Quiroz, Enmanuel, additional, Lopez, Enrique, additional, Thebault, Eric, additional, Maradiegue, Essy, additional, de Berranger, Eva, additional, Ebeid, Fatma S E, additional, Galaverna, Federica, additional, Antillon-Klussmann, Federico, additional, Espinoza Chacur, Felipe, additional, Negro, Fernando Daniel, additional, Carraro, Francesca, additional, Compagno, Francesca, additional, Barriga, Francisco, additional, Tamayo Pedraza, Gabriela, additional, Sanchez Fernandez, Gissela, additional, Naidu, Gita, additional, Tokuc, Gülnur, additional, Alias, Hamidah, additional, B Segocio, Hannah Grace, additional, Boudiaf, Houda, additional, Asetre Luna, Imelda, additional, Maia, Iris, additional, Astigarraga, Itziar, additional, Maza, Ivan, additional, Montoya Vásquez, Jacqueline E, additional, Jazbec, Janez, additional, Lazic, Jelena, additional, Beck Dean, Jeniffer, additional, Rouger-Gaudichon, Jeremie, additional, Contreras González, Johanny Carolina, additional, Huerta Aragonés, Jorge, additional, Fuster, José L, additional, Quintana, Juan, additional, Palma, Julia, additional, Svojgr, Karel, additional, Quintero, Karina, additional, Malic Tudor, Karolina, additional, Georgantzi, Kleopatra, additional, P Schultz, Kris Ann, additional, Ureña Horno, Laura, additional, Fraquelli, Lidia, additional, Meneghello, Linda, additional, Shalaby, Lobna, additional, Macias Mora, Lola L, additional, A Renner, Lorna, additional, Nunes Silva, Luciana, additional, Sisinni, Luisa, additional, Hammad, Mahmoud, additional, Fernández Sanmartín, M, additional, Zubieta A, C Marcela, additional, Drozdowski, María Constanza, additional, Kourti, Maria, additional, Palladino, Marcela María, additional, Miranda Madrazo, Maria R, additional, Poiree, Marilyne, additional, Popova, Marina, additional, Melgar, Mario, additional, Baragaño, Marta, additional, Avilés-Robles, Martha J, additional, Provenzi, Massimo, additional, Mendes Lins, Mecneide, additional, Fatih Orhan, Mehmet, additional, Villarroel, Milena, additional, Jerónimo, Mónica, additional, Varas Palma, Mónica, additional, Rafie Raza, Muhammad, additional, M Justin, Mulindwa, additional, Shaheen, Najma, additional, Domínguez-Pinilla, Nerea, additional, Whipple, Nicholas S, additional, André, Nicolas, additional, Hrusak, Ondrej, additional, Velasco Puyó, Pablo, additional, Zacasa Vargas, Pamela, additional, Olate Mellado, Paola, additional, Yola Gassant, Pascale, additional, Diaz Romero, Paulina, additional, De Santis, Raffaella, additional, Kebudi, Rejin, additional, Boranbayeva, Riza, additional, Vasquez, Roberto, additional, Segura, Romel A., additional, Rosado, Roy Enrique, additional, Gómez, Sandra, additional, Raimbault, Sandra, additional, Gunasekera, Sanjeeva, additional, Makkeyah, Sara M, additional, Buyukkapu Bay, Sema, additional, M Gómez, Sergio, additional, Bouttefroy, Séverine, additional, Islam, Shahnoor, additional, Abouelnaga, Sherif, additional, Torres, Silvio Fabio, additional, Cesaro, Simone, additional, Nunes, Sofia, additional, Rouxinol, Soraia, additional, Bhaumik, Sucharita, additional, Saliyeva, Symbat, additional, Inostroza, Tamara, additional, Velasquez, Thelma, additional, Hnin, Tint Myo, additional, Norén-Nyström, Ulrika, additional, Baretta, Valentina, additional, Jimenez-Antolinez, Yajaira Valentine, additional, Pérez Alonso, Vanesa, additional, Ayer Miller, Vanessa, additional, Gandemer, Virginie, additional, Lotero, Viviana, additional, Mishkova, Volha, additional, Gómez-García, Wendy, additional, Margaryan, Yeva, additional, and Syed, Yumna, additional

Published
2021
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15. #42: COVID-19 in Pediatric Hemato-Oncology Patients from Three Hispaniola Hospitals

Author

Santana, Genara, primary, Gil, María Dolores, additional, Morel, Manauri H, additional, Contreras, Johanny, additional, Rivera, Karina, additional, Castillo, María, additional, Gassant, Pascale Yola, additional, Fleury, Marie Immacula, additional, Happ, Brooke, additional, Vázquez, Milka, additional, Homsi, Maysam R, additional, and Caniza, Miguela A, additional

Published
2021
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16. #44: Hand Hygiene during the COVID-19 Pandemic in Three Pediatric Oncology Units in Hispaniola Island

Author

Gassant, Pascale Yola, primary, Fleury, Marie Immacula, additional, Santana, Genara, additional, Gil, María Dolores, additional, Morel, Manauri H, additional, Contreras, Johanny, additional, Rivera, Karina, additional, Castillo, María, additional, Happ, Brooke, additional, Vázquez, Milka, additional, Homsi, Maysam R, additional, and Caniza, Miguela A, additional

Published
2021
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17. #38: Bacteremia Analysis of Three Hospitals in Hispaniola Island

Author

Contreras, Johanny, primary, Rivera, Karina, additional, Castillo, María, additional, Santana, Genara, additional, Gil, María Dolores, additional, Morel, Manauri H, additional, Gassant, Pascale Yola, additional, Fleury, Marie Immacula, additional, Happ, Brooke, additional, Vázquez, Milka, additional, Homsi, Maysam R, additional, and Caniza, Miguela A, additional

Published
2021
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18. Early impact of the COVID-19 pandemic on paediatric cancer care in Latin America

Author

Vasquez, Liliana, Sampor, Claudia, Villanueva, Gabriela, Maradiegue, Essy, Garcia-Lombardi, Mercedes, Gomez-García, Wendy, Moreno, Florencia, Diaz, Rosdali, Cappellano, Andrea M, Portilla, Carlos Andres, Salas, Beatriz, Nava, Evelinda, Brizuela, Silvia, Jimenez, Soledad, Espinoza, Ximena, Gassant, Pascale Yola, Quintero, Karina, Fuentes-Alabi, Soad, Velasquez, Thelma, Fu, Ligia, Gamboa, Yessika, Quintana, Juan, Castiglioni, Mariela, Nuñez, Cesar, Moreno, Arturo, Luna-Fineman, Sandra, Luciani, Silvana, and Chantada, Guillermo

Published
2020
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21. Interdisciplinary care of pediatric oncology patients in Central America and the Caribbean

Author

Graetz, Dylan E., primary, Chen, Yichen, additional, Devidas, Meenakshi, additional, Antillon‐Klussmann, Federico, additional, Fu, Ligia, additional, Quintero, Karina, additional, Fuentes‐Alabi, Soad L., additional, Gassant, Pascale Y., additional, Kaye, Erica C., additional, Baker, Justin N., additional, Rodriguez Galindo, Carlos, additional, and Mack, Jennifer W., additional

Published
2020
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22. Resilient health care in global pediatric oncology during the COVID‐19 pandemic.

Author

Graetz, Dylan E., Sniderman, Elizabeth, Villegas, Cesar A., Kaye, Erica C., Ragab, Iman, Laptsevich, Aliaksandra, Maliti, Biemba, Naidu, Gita, Huang, Haiying, Gassant, Pascale Y., Nunes Silva, Luciana, Arce, Daniela, Montoya Vasquez, Jacqueline, Arora, Ramandeep Singh, Alcasabas, Ana Patricia, Rusmawatiningtyas, Desy, Raza, Muhammad Rafie, Velasco, Pablo, Kambugu, Joyce, and Vinitsky, Anna

Subjects
PEDIATRIC oncology, ONCOLOGY nursing, MEDICAL care, COVID-19 pandemic, PEDIATRIC nursing, COVID-19, PEDIATRIC therapy
Abstract

Background: In the face of unprecedented challenges because of coronavirus disease 2019, interdisciplinary pediatric oncology teams have developed strategies to continue providing high‐quality cancer care. This study explored factors contributing to health care resilience as perceived by childhood cancer providers in all resource level settings. Methods: This qualitative study consisted of 19 focus groups conducted in 16 countries in 8 languages. Seven factors have been previously defined as important for resilient health care including: 1) in situ practical experience, 2) system design, 3) exposure to diverse views on the patient's situation, 4) protocols and checklists, 5) teamwork, 6) workarounds, and 7) trade‐offs. Rapid turn‐around analysis focused on these factors. Results: All factors of health care resilience were relevant to groups representing all resource settings. Focus group participants emphasized the importance of teamwork and a flexible and coordinated approach to care. Participants described collaboration within and among institutions, as well as partnerships with governmental, private, and nonprofit organizations. Hierarchies were advantageous to decision‐making and information dissemination. Clinicians were inspired by their patients and explained creative trade‐offs and workarounds used to maintain high‐quality care. Conclusions: Factors previously described as contributing to resilient health care manifested differently in each institution but were described in all resource settings. These insights can guide pediatric oncology teams worldwide as they provide cancer care during the next phases of the pandemic. Understanding these elements of resilience will also help providers respond to inevitable future stressors on health care systems. This multinational, multicenter, qualitative study illustrates how pediatric oncology providers used resilient health care strategies, illuminating creative solutions to mitigate impact, many of which may outlast the pandemic. [ABSTRACT FROM AUTHOR]

Published
2022
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23. Interdisciplinary care of pediatric oncology patients in Central America and the Caribbean.

Author

Graetz, Dylan E., Chen, Yichen, Devidas, Meenakshi, Antillon‐Klussmann, Federico, Fu, Ligia, Quintero, Karina, Fuentes‐Alabi, Soad L., Gassant, Pascale Y., Kaye, Erica C., Baker, Justin N., Rodriguez Galindo, Carlos, and Mack, Jennifer W.

Subjects
PEDIATRIC therapy, PEDIATRIC oncology, CHILD patients, CANCER treatment, JOB satisfaction, ONCOLOGISTS, PEDIATRIC nursing
Abstract

Background: Interdisciplinary teamwork supports high‐quality cancer care and effective utilization of limited resources. This study purposed to examine the value, structure, process, and effectiveness of interdisciplinary care (IDC) among pediatric oncology providers in low‐income and middle‐income countries in Central America and the Caribbean. Methods: A cross‐sectional survey was disseminated to pediatric oncology providers at 5 centers participating in the Pediatric Hematology‐Oncology Association of Central America. The survey included previously validated items and novel questions assessing the value (importance), structure (multidisciplinary meeting attendance), process (team climate), and effectiveness (job satisfaction, quality of care and communication) of IDC. Results: The survey was completed by 174 providers, including 22 oncologists, 9 pathologists, 9 radiologists, 5 radiation oncologists, 12 surgeons, 35 subspecialists, 60 nurses, 20 psychosocial providers, and 2 other staff. Participants agreed that IDC benefits team members (95%) and patients (96%). IDC structure and processes varied across the region. Multidisciplinary meeting attendance differed by center (P =.005) and discipline (P <.0001). Participants who frequently attended multidisciplinary meetings reported a more positive team climate (P =.0003). Team climate was positively associated with job satisfaction (P <.001). In multivariable analyses, team climate was predictive of an improved perception of communication between professionals (P <.0001), with families (P <.0001), and with patients (P =.0005), as well as with quality of the care environment (P =.006) and overall care quality (P <.0001). Conclusions: Nearly all surveyed participants valued IDC, and the structure and processes supporting IDC varied by center. Associations between a collaborative professional climate, job satisfaction, and the perception of quality care encourage continued investigation and prioritization of IDC in these settings. Structures and processes supporting interdisciplinary care for pediatric oncology patients in Central America and the Caribbean vary. Associations between a collaborative professional climate, job satisfaction, and perception of quality care support the continued investigation and prioritization of interdisciplinary care in these settings. [ABSTRACT FROM AUTHOR]

Published
2021
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24. Global Retinoblastoma Presentation and Analysis by National Income Level

Author

Fabian, Ido Didi, Abdallah, Elhassan, Abdullahi, Shehu U., Abdulqader, Rula A., Adamou Boubacar, Sahadatou, Ademola-Popoola, Dupe S., Adio, Adedayo, Afshar, Armin R., Aggarwal, Priyanka, Aghaji, Ada E., Ahmad, Alia, Akib, Marliyanti N. R., Al Harby, Lamis, Al Ani, Mouroge H., Alakbarova, Aygun, Portabella, Silvia Alarcón, Al-Badri, Safaa A. F., Alcasabas, Ana Patricia A., Al-Dahmash, Saad A., Alejos, Amanda, Alemany-Rubio, Ernesto, Alfa Bio, Amadou I., Alfonso Carreras, Yvania, Al-Haddad, Christiane, Al-Hussaini, Hamoud H. Y., Ali, Amany M., Alia, Donjeta B., Al-Jadiry, Mazin F., Al-Jumaly, Usama, Alkatan, Hind M., All-Eriksson, Charlotta, Al-Mafrachi, Ali A. R. M., Almeida, Argentino A., Alsawidi, Khalifa M., Al-Shaheen, Athar A. S. M., Al-Shammary, Entissar H., Amiruddin, Primawita O., Antonino, Romanzo, Astbury, Nicholas J., Atalay, Hatice T., Atchaneeyasakul, La-ongsri, Atsiaya, Rose, Attaseth, Taweevat, Aung, Than H., Ayala, Silvia, Baizakova, Baglan, Balaguer, Julia, Balayeva, Ruhengiz, Balwierz, Walentyna, Barranco, Honorio, Bascaran, Covadonga, Beck Popovic, Maja, Benavides, Raquel, Benmiloud, Sarra, Bennani Guebessi, Nissrine, Berete, Rokia C., Berry, Jesse L., Bhaduri, Anirban, Bhat, Sunil, Biddulph, Shelley J., Biewald, Eva M., Bobrova, Nadia, Boehme, Marianna, Boldt, H.C., Bonanomi, Maria Teresa B. C., Bornfeld, Norbert, Bouda, Gabrielle C., Bouguila, Hédi, Boumedane, Amaria, Brennan, Rachel C., Brichard, Bénédicte G., Buaboonnam, Jassada, Calderón-Sotelo, Patricia, Calle Jara, Doris A., Camuglia, Jayne E., Cano, Miriam R., Capra, Michael, Cassoux, Nathalie, Castela, Guilherme, Castillo, Luis, Català-Mora, Jaume, Chantada, Guillermo L., Chaudhry, Shabana, Chaugule, Sonal S., Chauhan, Argudit, Chawla, Bhavna, Chernodrinska, Violeta S., Chiwanga, Faraja S., Chuluunbat, Tsengelmaa, Cieslik, Krzysztof, Cockcroft, Ruellyn L., Comsa, Codruta, Correa, Zelia M., Correa Llano, Maria G., Corson, Timothy W., Cowan-Lyn, Kristin E., Csóka, Monika, Cui, Xuehao, Da Gama, Isac V., Dangboon, Wantanee, Das, Anirban, Das, Sima, Davanzo, Jacquelyn M., Davidson, Alan, De Potter, Patrick, Delgado, Karina Q., Demirci, Hakan, Desjardins, Laurence, Diaz Coronado, Rosdali Y., Dimaras, Helen, Dodgshun, Andrew J., Donaldson, Craig, Donato Macedo, Carla R., Dragomir, Monica D., Du, Yi, Du Bruyn, Magritha, Edison, Kemala S., Eka Sutyawan, I. Wayan, El Kettani, Asmaa, Elbahi, Amal M., Elder, James E., Elgalaly, Dina, Elhaddad, Alaa M., Elhassan, Moawia M. Ali, Elzembely, Mahmoud M., Essuman, Vera A., Evina, Ted Grimbert A., Fadoo, Zehra, Fandiño, Adriana C., Faranoush, Mohammad, Fasina, Oluyemi, Fernández, Delia D. P. G., Fernández-Teijeiro, Ana, Foster, Allen, Frenkel, Shahar, Fu, Ligia D., Fuentes-Alabi, Soad L., Gallie, Brenda L., Gandiwa, Moira, Garcia, Juan L., García Aldana, David, Gassant, Pascale Y., Geel, Jennifer A., Ghassemi, Fariba, Girón, Ana V., Gizachew, Zelalem, Goenz, Marco A., Gold, Aaron S., Goldberg-Lavid, Maya, Gole, Glen A., Gomel, Nir, Gonzalez, Efren, Gonzalez Perez, Graciela, González-Rodríguez, Liudmira, Garcia Pacheco, Henry N., Graells, Jaime, Green, Liz, Gregersen, Pernille A., Grigorovski, Nathalia D. A. K., Guedenon, Koffi M., Gunasekera, D. Sanjeeva, Gündüz, Ahmet K., Gupta, Himika, Gupta, Sanjiv, Hadjistilianou, Theodora, Hamel, Patrick, Hamid, Syed A., Hamzah, Norhafizah, Hansen, Eric D., Harbour, J. William, Hartnett, M. Elizabeth, Hasanreisoglu, Murat, Hassan, Sadiq, Hassan, Shadab, Hederova, Stanislava, Hernandez, Jose, Hernandez, Lorelay Marie Carcamo, Hessissen, Laila, Hordofa, Diriba F., Huang, Laura C., Hubbard, G. B., Hummlen, Marlies, Husakova, Kristina, Hussein Al-Janabi, Allawi N., Ida, Russo, Ilic, Vesna R., Jairaj, Vivekaraj, Jeeva, Irfan, Jenkinson, Helen, Ji, Xunda, Jo, Dong Hyun, Johnson, Kenneth P., Johnson, William J., Jones, Michael M., Kabesha, Theophile B. Amani, Kabore, Rolande L., Kaliki, Swathi, Kalinaki, Abubakar, Kantar, Mehmet, Kao, Ling-Yuh, Kardava, Tamar, Kebudi, Rejin, Kepak, Tomas, Keren-Froim, Naama, Khan, Zohora J., Khaqan, Hussain A., Khauv, Phara, Kheir, Wajiha J., Khetan, Vikas, Khodabande, Alireza, Khotenashvili, Zaza, Kim, Jonathan W., Kim, Jeong Hun, Kiratli, Hayyam, Kivelä, Tero T., Klett, Artur, Komba Palet, Jess Elio Kosh, Krivaitiene, Dalia, Kruger, Mariana, Kulvichit, Kittisak, Kuntorini, Mayasari W., Kyara, Alice, Lachmann, Eva S., Lam, Carol P. S., Lam, Geoffrey C., Larson, Scott A., Latinovic, Slobodanka, Laurenti, Kelly D., Le, Bao Han A., Lecuona, Karin, Leverant, Amy A., Li, Cairui, Limbu, Ben, Long, Quah Boon, López, Juan P., Lukamba, Robert M., Lumbroso, Livia, Luna-Fineman, Sandra, Lutfi, Delfitri, Lysytsia, Lesia, Magrath, George N., Mahajan, Amita, Majeed, Abdul Rahim, Maka, Erika, Makan, Mayuri, Makimbetov, Emil K., Manda, Chatonda, Martín Begue, Nieves, Mason, Lauren, Mason, John O., Matende, Ibrahim O., Materin, Miguel, Mattosinho, Clarissa C. D. S., Matua, Marchelo, Mayet, Ismail, Mbumba, Freddy B., McKenzie, John D., Medina-Sanson, Aurora, Mehrvar, Azim, Mengesha, Aemero A., Menon, Vikas, Mercado, Gary John V. D., Mets, Marilyn B., Midena, Edoardo, Mishra, Divyansh K. C., Mndeme, Furahini G., Mohamedani, Ahmed A., Mohammad, Mona T., Moll, Annette C., Montero, Margarita M., Morales, Rosa A., Moreira, Claude, Mruthyunjaya, Prithvi, Msina, Mchikirwa S., Msukwa, Gerald, Mudaliar, Sangeeta S., Muma, Kangwa I., Munier, Francis L., Murgoi, Gabriela, Murray, Timothy G., Musa, Kareem O., Mushtaq, Asma, Mustak, Hamzah, Muyen, Okwen M., Naidu, Gita, Nair, Akshay Gopinathan, Naumenko, Larisa, Ndoye Roth, Paule Aïda, Nency, Yetty M., Neroev, Vladimir, Ngo, Hang, Nieves, Rosa M., Nikitovic, Marina, Nkanga, Elizabeth D., Nkumbe, Henry, Nuruddin, Murtuza, Nyaywa, Mutale, Obono-Obiang, Ghislaine, Oguego, Ngozi C., Olechowski, Andrzej, Oliver, Scott C. N., Osei-Bonsu, Peter, Ossandon, Diego, Paez-Escamilla, Manuel A., Pagarra, Halimah, Painter, Sally L, Paintsil, Vivian, Paiva, Luisa, Pal, Bikramjit P., Palanivelu, Mahesh Shanmugam, Papyan, Ruzanna, Parrozzani, Raffaele, Parulekar, Manoj, Pascual Morales, Claudia R., Paton, Katherine E., Pawinska-Wasikowska, Katarzyna, Pe'er, Jacob, Peña, Armando, Peric, Sanja, Pham, Chau T. M., Philbert, Remezo, Plager, David A., Pochop, Pavel, Polania, Rodrigo A., Polyakov, Vladimir G., Pompe, Manca T., Pons, Jonathan J., Prat, Daphna, Prom, Vireak, Purwanto, Ignatius, Qadir, Ali O., Qayyum, Seema, Qian, Jiang, Rahman, Ardizal, Rahman, Salman, Rahmat, Jamalia, Rajkarnikar, Purnima, Ramanjulu, Rajesh, Ramasubramanian, Aparna, Ramirez-Ortiz, Marco A., Raobela, Léa, Rashid, Riffat, Reddy, M. Ashwin, Reich, Ehud, Renner, Lorna A., Reynders, David, Ribadu, Dahiru, Riheia, Mussagy M., Ritter-Sovinz, Petra, Rojanaporn, Duangnate, Romero, Livia, Roy, Soma R., Saab, Raya H., Saakyan, Svetlana, Sabhan, Ahmed H, Sagoo, Mandeep S., Said, Azza M. A., Saiju, Rohit, Salas, Beatriz, San Román Pacheco, Sonsoles, Sánchez, Gissela L., Sayalith, Phayvanh, Scanlan, Trish A., Schefler, Amy C., Schoeman, Judy, Sedaghat, Ahad, Seregard, Stefan, Seth, Rachna, Shah, Ankoor S., Shakoor, Shawkat A., Sharma, Manoj K., Sherief, Sadik T., Shetye, Nandan G., Shields, Carol L., Siddiqui, Sorath Noorani, Sidi Cheikh, Sidi, Silva, Sónia, Singh, Arun D., Singh, Niharika, Singh, Usha, Singha, Penny, Sitorus, Rita S., Skalet, Alison H., Soebagjo, Hendrian D., Sorochynska, Tetyana, Ssali, Grace, Stacey, Andrew W., Staffieri, Sandra E., Stahl, Erin D., Stathopoulos, Christina, Stirn Kranjc, Branka, Stones, David K., Strahlendorf, Caron, Suarez, Maria Estela Coleoni, Sultana, Sadia, Sun, Xiantao, Sundy, Meryl, Superstein, Rosanne, Supriyadi, Eddy, Surukrattanaskul, Supawan, Suzuki, Shigenobu, Svojgr, Karel, Sylla, Fatoumata, Tamamyan, Gevorg, Tan, Deborah, Tandili, Alketa, Tarrillo Leiva, Fanny F., Tashvighi, Maryam, Tateshi, Bekim, Tehuteru, Edi S., Teixeira, Luiz F., Teh, Kok Hoi, Theophile, Tuyisabe, Toledano, Helen, Trang, Doan L., Traoré, Fousseyni, Trichaiyaporn, Sumalin, Tuncer, Samuray, Tyau-Tyau, Harba, Umar, Ali B., Unal, Emel, Uner, Ogul E., Urbak, Steen F., Ushakova, Tatiana L., Usmanov, Rustam H., Valeina, Sandra, van Hoefen Wijsard, Milo, Varadisai, Adisai, Vasquez, Liliana, Vaughan, Leon O., Veleva-Krasteva, Nevyana V., Verma, Nishant, Victor, Andi A., Viksnins, Maris, Villacís Chafla, Edwin G., Vishnevskia-Dai, Vicktoria, Vora, Tushar, Wachtel, Antonio E., Wackernagel, Werner, Waddell, Keith, Wade, Patricia D., Wali, Amina H., Wang, Yi-Zhuo, Weiss, Avery, Wilson, Matthew W., Wime, Amelia D. C., Wiwatwongwana, Atchareeya, Wiwatwongwana, Damrong, Wolley Dod, Charlotte, Wongwai, Phanthipha, Xiang, Daoman, Xiao, Yishuang, Yam, Jason C., Yang, Huasheng, Yanga, Jenny M., Yaqub, Muhammad A, Yarovaya, Vera A., Yarovoy, Andrey A., Ye, Huijing, Yousef, Yacoub A., Yuliawati, Putu, Zapata López, Arturo M., Zein, Ekhtelbenina, Zhang, Chengyue, Zhang, Yi, Zhao, Junyang, Zheng, Xiaoyu, Zhilyaeva, Katsiaryna, Zia, Nida, Ziko, Othman A. O., Zondervan, Marcia, and Bowman, Richard

Abstract

IMPORTANCE: Early diagnosis of retinoblastoma, the most common intraocular cancer, can save both a child’s life and vision. However, anecdotal evidence suggests that many children across the world are diagnosed late. To our knowledge, the clinical presentation of retinoblastoma has never been assessed on a global scale. OBJECTIVES: To report the retinoblastoma stage at diagnosis in patients across the world during a single year, to investigate associations between clinical variables and national income level, and to investigate risk factors for advanced disease at diagnosis. DESIGN, SETTING, AND PARTICIPANTS: A total of 278 retinoblastoma treatment centers were recruited from June 2017 through December 2018 to participate in a cross-sectional analysis of treatment-naive patients with retinoblastoma who were diagnosed in 2017. MAIN OUTCOMES AND MEASURES: Age at presentation, proportion of familial history of retinoblastoma, and tumor stage and metastasis. RESULTS: The cohort included 4351 new patients from 153 countries; the median age at diagnosis was 30.5 (interquartile range, 18.3-45.9) months, and 1976 patients (45.4%) were female. Most patients (n = 3685 [84.7%]) were from low- and middle-income countries (LMICs). Globally, the most common indication for referral was leukocoria (n = 2638 [62.8%]), followed by strabismus (n = 429 [10.2%]) and proptosis (n = 309 [7.4%]). Patients from high-income countries (HICs) were diagnosed at a median age of 14.1 months, with 656 of 666 (98.5%) patients having intraocular retinoblastoma and 2 (0.3%) having metastasis. Patients from low-income countries were diagnosed at a median age of 30.5 months, with 256 of 521 (49.1%) having extraocular retinoblastoma and 94 of 498 (18.9%) having metastasis. Lower national income level was associated with older presentation age, higher proportion of locally advanced disease and distant metastasis, and smaller proportion of familial history of retinoblastoma. Advanced disease at diagnosis was more common in LMICs even after adjusting for age (odds ratio for low-income countries vs upper-middle–income countries and HICs, 17.92 [95% CI, 12.94-24.80], and for lower-middle–income countries vs upper-middle–income countries and HICs, 5.74 [95% CI, 4.30-7.68]). CONCLUSIONS AND RELEVANCE: This study is estimated to have included more than half of all new retinoblastoma cases worldwide in 2017. Children from LMICs, where the main global retinoblastoma burden lies, presented at an older age with more advanced disease and demonstrated a smaller proportion of familial history of retinoblastoma, likely because many do not reach a childbearing age. Given that retinoblastoma is curable, these data are concerning and mandate intervention at national and international levels. Further studies are needed to investigate factors, other than age at presentation, that may be associated with advanced disease in LMICs.

Published
2020
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25. International Society of Paediatric Oncology (SIOP) Global Mapping Program: Analysis of healthcare centers in countries of the Latin American Society of Pediatric Oncology (SLAOP).

Author

Gorostegui-Obanos M, Chantada L, Filho NPC, Gonzalez-Ramella O, Serrano B MJ, Valencia D, Sampor C, Macedo C, Ramirez O, Sardinas S, Lezcano E, Calderón P, Gamboa Y, Fu L, Gómez W, Schelotto M, Ugaz C, Lobos P, Moreno K, Palma J, Sánchez G, Moschella F, Gassant PYH, Velasquez T, Quintero K, Forteza M, Villarroel M, Moreno F, Alabi SF, Vasquez L, Lowe J, Cappellano A, Challinor J, and Chantada GL

Subjects
Humans, Latin America epidemiology, Child, Neoplasms therapy, Surveys and Questionnaires, Pediatrics statistics & numerical data, Medical Oncology statistics & numerical data, Societies, Medical
Abstract

Background: The International Society of Paediatric Oncology Society Global Mapping Program aims to describe the local pediatric oncology capacities. Here, we report the data from Latin America., Methods: A 10-question survey was distributed among chairs of pediatric oncology services. Centers were classified according to patient volume into high- (HVC; 100 or more new cases per year), medium- (MVC; 31-99 cases), and low-volume centers (LVC; 30 cases or less), respectively. National referral centers (NRC) were identified., Results: Total 307 centers in 20 countries were identified (271 responded), and 264 responses were evaluable, accounting for 78% of the expected cases (21,359 cases per year). Seventy-seven percent of patients are treated in public centers, including additional support by civil society organizations. We found that 66% of the patients are treated in 70 centers of excellence, including 21 NRC. There was a median of one pediatric oncologist every 21 newly diagnosed patients (44 for NRC), and in 84% of the centers, nurses rotated to other services. A palliative care team was lacking in 25% of the centers. LVC with public funding have significantly lower probability of having a palliative care team or trained pediatric oncology surgeons. Psychosocial, pharmacy, and nutrition services were available in more than 93% of the centers. No radiotherapy facility was available on campus in nine of 21 NRC., Conclusions: Most children with cancer in Latin America are treated in public HVC. There is a scarcity of pediatric oncologists, specialized nurses and surgeons, and palliative care teams, especially in centers with public funding., (© 2024 Wiley Periodicals LLC.)

Published
2024
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26. International Society of Paediatric Oncology (SIOP) Global Mapping Programme: Latin American Society of Pediatric Oncology (SLAOP) country-level report.

Author

Cappellano A, Gorostegui M, Gonzalez-Ramella O, Filho NPC, Valencia D, Chantada L, Sampor C, Serrano MJ, Macedo C, Ramirez O, Sardinas S, Lezcano E, Calderón P, Gamboa Y, Fu L, Gómez W, Schelotto M, Ugaz C, Lobos P, Aguiar SDS, Moreno K, Palma J, Sánchez G, Moschella F, Gassant PYH, Velasquez T, Quintero K, Moreno F, Villarroel M, Fuentes Alabi S, Vasquez L, Challinor J, and Chantada GL

Abstract

Background: Latin American countries are improving childhood cancer care, showing strong commitment to implement the Global Initiative for Childhood Cancer, but there are scant publications of the situation at a continental level., Methods: As part of the International Society of Paediatric Oncology Global Mapping project, delegates of each country participating in the Latin American Society of Pediatric Oncology (SLAOP) and chairs of national pediatric oncology societies and cooperative groups were invited to provide information regarding availability of national pediatric cancer control programs (NPCCP), pediatric oncology laws, pediatric oncology tumor registries, and training programs and support to diagnosis and treatment., Results: Nineteen of the 20 countries participating in SLAOP responded. National delegates reported nine countries with NPCCP and four of them were launched in the past 5 years. National pediatric tumor registries are available in eight countries, and three provided published survival results. Fellowship programs for training pediatric oncologists are available in 12 countries. National delegates reported that eight countries provide support to most essential diagnosis and treatments and 11 provide partial or minimal support that is supplemented by civil society organizations. Seven countries have a pediatric oncology law. There are three international cooperative groups and four national societies for pediatric oncology., Conclusion: Despite many challenges, there were dramatic advances in survivorship, access to treatment, and availability of NPCCP in Latin America. Countries with highest social development scores in general provide more complete support and are more likely to have NPCCP, training programs, and reported survival results., (© 2024 Wiley‐Liss, Inc., A Wiley Company.)

Published
2024
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