Search

Your search keyword '"Gair, Rachel"' showing total 23 results
Start Over Author "Gair, Rachel"
23 results on '"Gair, Rachel"'

3. Putting patients at the centre: including the patient perspective in UK kidney care and research. A roadmap for collecting electronic patient-reported outcome measures (ePROMs)

Author

van der Veer, Sabine N, Kyte, Derek, Cockwell, Paul, Chadwick, Helen, Ercia, Angelo, Gair, Rachel, Finnigan, Robert, Fraser, Simon DS, Sharma, Shivani, and Knowles, Sarah

Subjects
Health informatics and information systems, Health systems, Digital health
Abstract

This document sets out the practical steps required for the further development and adoption of ePROMs that can benefit all people with kidney disease. At the centre of the report are core principles that include evidence, integration, implementation, and equality. The report also provides a rationale for these principles and delivery principles on how to take them forward.

Published
2023
Full Text
View/download PDF

6. Additional file 1 of Patient activation and its association with symptom burden and quality of life across the spectrum of chronic kidney disease stages in England

Author

Magadi, Winnie, Lightfoot, Courtney J., Memory, Katherine E., Santhakumaran, Shalini, van der Veer, Sabine N., Thomas, Nicola, Gair, Rachel, and Smith, Alice C.

Subjects
urologic and male genital diseases
Abstract

Additional file 1 Table S1. Baseline characteristics for participants who had missing data on all EQ-5D-5L dimensions or POS-S Renal items who were excluded from the analyses, presented with column percentages unless indicated otherwise. Table S2. Comparison of baseline characteristics of all prevalent CKD and RRT patients in the UK Renal Registry at 31st December 2016 and the English TP-CKD study cohort (values are numbers (% after excluding missing), unless indicated otherwise). Table S3. Multinomial regression analysis of the association between patient activation with health-related quality of life and symptom burden, stratified by treatment type.

Published
2022
Full Text
View/download PDF

9. A breakthrough series collaborative to increase patient participation with hemodialysis tasks: A stepped wedge cluster randomised controlled trial

Author

Fotheringham, James, primary, Barnes, Tania, additional, Dunn, Louese, additional, Lee, Sonia, additional, Ariss, Steven, additional, Young, Tracey, additional, Walters, Stephen J., additional, Laboi, Paul, additional, Henwood, Andy, additional, Gair, Rachel, additional, and Wilkie, Martin, additional

Published
2021
Full Text
View/download PDF

10. Clinical Assessment of Dialysis Recovery Time and Symptom Burden: Impact of Switching Hemodialysis Therapy Mode

Author

Bolton,Stephanie, Gair,Rachel, Nilsson,Lars-Göran, Matthews,Michael, Stewart,Louanne, McCullagh,Natasha, Bolton,Stephanie, Gair,Rachel, Nilsson,Lars-Göran, Matthews,Michael, Stewart,Louanne, and McCullagh,Natasha

Abstract

Stephanie Bolton,1 Rachel Gair,2 Lars-Göran Nilsson,3 Michael Matthews,1 Louanne Stewart,1 Natasha McCullagh1 1Renal Unit, Antrim Area Hospital, Northern Health and Social Care Trust, Northern Ireland, UK; 2UK Renal Registry, Bristol, UK; 3Baxter International Inc., Lund, SwedenCorrespondence: Stephanie BoltonRenal Unit, Antrim Area Hospital, Northern Health and Social Care Trust, Northern Ireland, UKEmail Stephanie.Bolton@northerntrust.hscni.netIntroduction: Most people on hemodialysis (HD) report a high symptom burden. Fatigue and lack of energy are prominent, interfering with daily life and associated with poor outcome. Prolonged recovery time after each of the thrice weekly dialysis treatments is common. The impact of HD therapies, like expanded hemodialysis (HDx), on patient reported recovery time and symptom burden is unclear.Methods: A dialysis unit decided to perform regular assessments of patient-reported symptom burden, using the POS-S Renal Symptom questionnaire and the “Recovery time from last dialysis session” question as part of routine patient focused care. At a similar time, a clinical evidence-based decision was taken to switch the in-center dialysis cohort from regular high-flux dialysis membrane to medium cut-off (MCO) membrane, introducing HDx therapy.Results: Quarterly assessment of patient-reported symptom burden was well accepted. A sustained clinically relevant reduction in post-dialysis recovery time was observed following the therapy switch. In patients providing data up to 12 months (N = 58), median recovery time decreased from 210 min (IQR 7.5– 600) to 60 min (0– 210; p = 0.002) and 105 min (0– 180; p = 0.001) at 6 and 12 months, respectively. Thirty-six percent of individuals reported a recovery time longer than 360 minutes at the initial assessment, which decreased to 9% at 12 months. The POS-S Renal total symptom score showed a decrease at 6 months but no difference from baseline at 12 months. The “fatigue/lack of energyâ€

Published
2021

11. Contributions of treatment centre and patient characteristics to patient-reported experience of haemodialysis: a national cross-sectional study

Author

Hawkins, Janine, primary, Smeeton, Nigel, additional, Busby, Amanda, additional, Wellsted, David, additional, Rider, Beth, additional, Jones, Julia, additional, Steenkamp, Retha, additional, Stannard, Catherine, additional, Gair, Rachel, additional, van der Veer, Sabine N, additional, Corps, Claire, additional, and Farrington, Ken, additional

Published
2021
Full Text
View/download PDF

19. UK Renal Registry 20th Annual Report: Introduction

Author

Evans, Katharine, primary, Pyart, Rhodri, additional, Steenkamp, Retha, additional, Whitlock, Tim, additional, Stannard, Catherine, additional, Gair, Rachel, additional, McCann, James, additional, Slevin, Julie, additional, Medcalf, James, additional, and Caskey, Fergus, additional

Published
2018
Full Text
View/download PDF

20. Rationale and design for SHAREHD: a quality improvement collaborative to scale up Shared Haemodialysis Care for patients on centre based haemodialysis

Author

Fotheringham, James, primary, Barnes, Tania, additional, Dunn, Louese, additional, Lee, Sonia, additional, Ariss, Steven, additional, Young, Tracey, additional, Walters, Stephen J., additional, Laboi, Paul, additional, Henwood, Andy, additional, Gair, Rachel, additional, and Wilkie, Martin, additional

Published
2017
Full Text
View/download PDF

22. Incorporating patient-reported symptom assessments into routine care for people with chronic kidney disease

Author

van der Veer, Sabine N, Aresi, Giovanni Umberto, Gair, Rachel, Aresi, Giovanni (ORCID:0000-0002-5974-4106), van der Veer, Sabine N, Aresi, Giovanni Umberto, Gair, Rachel, and Aresi, Giovanni (ORCID:0000-0002-5974-4106)

Abstract

In this issue of Clinical Kidney Journal, Brown and colleagues show that symptom burden is high across all stages of chronic kidney disease (CKD). Still, management of symptoms in kidney patients leaves room for improvement, which may partly stem from symptoms being underreported. The use of patient-reported questionnaires may facilitate a more systematic approach to symptom assessment, but to date, the majority of these instruments have been used only in the context of research studies. In this editorial, we review how systematic patient-reported symptom assessments can be incorporated in CKD care. We show examples from an initiative in the UK where 14 renal units explored how to collect and use symptom burden assessments as part of their routine ways of working. We also discuss how to move from paper-based questionnaires towards digital collection of patient-reported symptom data. Lastly, we introduce wearable and smartphone sensors as novel methods for collecting information to support and enrich symptom assessments while minimizing data collection burden.

Published
2017

Catalog

Books, media, physical & digital resources
See catalog results