235 results on '"GROB, RACHEL"'
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2. Index
3. Epilogue: Principles for Engaging Patients in U.S. Health Care and Policy
4. Notes on Contributors
5. Part I: Voices of the Silent
6. Chapter 1. Solitary Advocates: The Severely Brain Injured and Their Surrogates
7. Chapter 7. The Canary in Gemeinschaft: Using the Public Voice of Patients to Enhance Health System Performance
8. Part III: How Patients Matter
9. Chapter 3. Is It Time to Push Yet?: The Challenges to Advocacy in U.S. Childbirth
10. Title Page, Copyright
11. Chapter 2. Physician-Patient Communication in the Care of Vulnerable Populations: The Patient’s Voice in Interpersonal Policy
12. Introduction: Patients as Policy Actors
13. Chapter 6. “Don’t Scream Alone': The Health Care Activism of Poor Americans in the 1970s
14. Chapter 12. Measuring Success: Scientific, Institutional, and Cultural Effects of Patient Advocacy
15. Chapter 8. Patient Appeals as Policy Disputes: Individual and Collective Action in Managed Care
16. Chapter 10. Patients and the Rise of the Nurse-Practitioner Profession
17. Chapter 4. A Pound of Flesh: Patient Legal Action for Human Research Protections in the Biotech Age
18. Chapter 5. From Outsiders to Insiders: The Consumer-Survivor Movement and Its Impact on U.S. Mental Health Policy
19. Part II: From Individual to Collective
20. Chapter 9. The Power of Us: A New Approach to Advocacy for Rare Cancers
21. Chapter 11. A House on Fire: Newborn Screening, Parents’ Advocacy, and the Discourse of Urgency
22. Assessing an innovative method to promote learning from patient narratives: Findings from a field experiment in ambulatory care
23. A qualitative feasibility study of a prototype patient-centered video intervention to increase uptake of cancer genetic testing among Black Americans
24. “Nothing Is More Powerful than Words: ” How Patient Experience Narratives Enable Improvement
25. Navigating responsible bio-political citizenship: Cross-country comparison of stigma in Covid-19 illness narratives in Germany, Japan, the UK and the USA
26. Evaluation of a protocol for eliciting narrative accounts of pediatric inpatient experiences of care
27. The familial canopy as thought space for meaning making, emotional calibration and planful action around inherited cancer risk
28. Talking about inequities: A comparative analysis of COVID-19 narratives in the UK, US, and Brazil
29. Negotiation of collective and individual candidacy for long Covid healthcare in the early phases of the Covid-19 pandemic: Validated, diverted and rejected candidacy
30. Developing catalyst films of health experiences: an analysis of a robust multi-stakeholder involvement journey
31. Leveraging Patients’ Creative Ideas for Innovation in Health Care
32. Learning from patients
33. Gaps in benefits, awareness, and comprehension that leave those with long COVID vulnerable
34. Assessing an innovative method to promote learning from patient narratives: Findings from a field experiment in ambulatory care
35. Qualitative Research on Expanded Prenatal and Newborn Screening : Robust but Marginalized
36. What Words Convey: The Potential for Patient Narratives to Inform Quality Improvement
37. Leveraging Patients' Creative Ideas for Innovation in Health Care.
38. Learning from patients: The impact of using patients' narratives on patient experience scores.
39. “You have to trust yourself”: The Overlooked Role of Self‐Trust in Coping with Chronic Illness
40. When Mistakes Multiply: How Inadequate Responses to Medical Mishaps Erode Trust in American Medicine
41. Learning from Patients: The Impact of Using Patient Narratives on Patient Experience Scores
42. Families' Experiences with Newborn Screening: A Critical Source of Evidence
43. Testing Baby
44. Using Natural Language Processing to Code Patient Experience Narratives: Capabilities and Challenges
45. 'Oh, the Places You'll Go' by Bringing Developmental Science into the World!
46. Playing with Ideas: Evaluating the Impact of the Ultimate Block Party, a Collective Experiential Intervention to Enrich Perceptions of Play
47. Improving Patients’ Choice of Clinician by Including Roll-up Measures in Public Healthcare Quality Reports: an Online Experiment
48. Including Patients in the Governance of Learning Health Systems
49. "Oh, the Places You'll Go" by Bringing Developmental Science Into the World!
50. Playing With Ideas: Evaluating the Impact of the Ultimate Block Party, a Collective Experiential Intervention to Enrich Perceptions of Play
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