44 results on '"Frei IA"'
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2. Prävalenzerfassung auf drei chirurgischen Stationen des Universitätsspitals Basel (USB)
- Author
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Haldemann-Jenni, E, primary, Trachsel, E, additional, Frei, IA, additional, and Spirig, R, additional
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- 2010
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3. [Experiences of Advanced Practice Nurses with a clinical postgraduate education program in the context of their professional development].
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Stürmer N, Frei IA, and Nicca D
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- Clinical Competence, Humans, Qualitative Research, Switzerland, Advanced Practice Nursing, Nurses
- Abstract
Experiences of Advanced Practice Nurses with a clinical postgraduate education program in the context of their professional development Abstract. Background: The Diploma of Advanced Studies in Advanced Nursing Practice (DAS ANP-plus), which has been offered at the University of Basel since 2012, is a clinically oriented postgraduate education program for the still poorly established professional group of the Advanced Practice Nurse (APN). The acquisition of clinical skills plays a central role in the professional biography and for the APN's work in patient healthcare. Aim: The qualitative study aims to explore the experiences of APNs during and after a clinically oriented postgraduate education program in Switzerland and what significant changes they experienced in their professional practice. Methods: Reflexive thematic analysis with a constructivist orientation was used. With fourteen APNs, guided interviews were conducted and analyzed considering the professional biography. Results: "Pursuing the vision for a better care" is the constitutive theme. The graduates all seem to be driven by a strong vision: from striving to know more, to implementing the concept of Advanced Nursing Practice, to initiating changes in the healthcare system. The vision is shaped by three themes: "the challenges of gaining a foothold as an APN" before the program, "gaining security by strengthening clinical skills" during the program and on longer terms "breaking new ground in the healthcare system with allies". Conclusions: The DAS ANP-plus increases the clinical skills of APNs within clinical supervision plays an important role.
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- 2021
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4. Experience of adult patients and professionals with a program for the prevention of alcohol withdrawal delirium in the acute care setting-A case study.
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Soldi M, Mauthner O, Frei IA, and Hasemann W
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- Adult, Humans, Qualitative Research, Alcohol Withdrawal Delirium prevention & control, Delirium prevention & control
- Abstract
Purpose: To investigate the experiences of adult patients and professionals with the prevention of alcohol withdrawal delirium program DESIGN AND METHODS: A simple, descriptive case study with several units of analysis was chosen as the study design., Participants: Six patients, 15 nurses, one family member, and two physicians METHODS: Semi-structured interviews and observation sessions. The Braun and Clarke thematic analysis method was used for the data analysis., Results: Three main themes were identified: "Talking about alcohol," "Monitoring withdrawal symptoms," and "Collaboration with the Advanced Practice Nurse for delirium management.", Conclusion: The program is highly beneficial in this field of practice and is widely accepted by all those involved. The Advanced Practice Nurse played an important role to facilitate the processes., (© 2020 Wiley Periodicals LLC.)
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- 2021
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5. Zwischen Anspruch und Wirklichkeit - Perspektive von fallverantwortlichen Pflegefachpersonen zur Rationierung in der spitalexternen Pflege.
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Zúñiga F and Frei IA
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- Humans, Qualitative Research, Switzerland, Health Care Rationing, Health Resources, Home Care Services, Quality of Health Care
- Abstract
Between demand and reality - Perspectives of case-leading nurses on rationing in home care Abstract. Background: The demand for home care services in Switzerland (Spitex) is growing at an annual rate of 8 %. With increasingly complex client situations, lack of time and professional resources, the risk of rationing care is rising. Objective: This study explores how case-leading nurses (CLNs) experience rationing of care and how they deal with this in their daily practice. Methods: We chose a qualitative approach with an interpretative description. Between September and December 2018, we conducted semi-structured interviews with 12 CLNs from seven Spitex organisations in the German-speaking part of Switzerland. The data were analysed according to the thematic analysis of Brown and Clarke. Results: CLNs often experience not having enough time to fully oversee a client's care plan from the assessment to the evaluation of care needed. They show a high level of commitment to providing good quality of care, but have to walk a tightrope between demand and reality. Additionally, they are under pressure to defend the financing of needed services from health insurance companies. Conclusions: Rationing is an everyday experience of CLNs' practice and they invest a lot of effort in reducing its effects for their clients. CLNs work under pressure, thus targeted measures are necessary both at the political and Spitex organizational level, to reduce rationing of care.
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- 2021
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6. „Aus der Praxis – für die Praxis“ – Perspektiven aus der wissenschaftlichen Praxis.
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Frei IA
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- 2021
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7. Validating a pain assessment tool in heterogeneous ICU patients: Is it possible?
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Emsden C, Schäfer UB, Denhaerynck K, Grossmann F, Frei IA, and Kirsch M
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- Aged, Female, Germany, Humans, Male, Pain Measurement nursing, Reproducibility of Results, Self Report, Surveys and Questionnaires, Switzerland, Critical Care Nursing, Critical Illness, Intensive Care Units, Pain Measurement statistics & numerical data, Respiration, Artificial nursing
- Abstract
Background: Non-communicative adult ICU patients are vulnerable to inadequate pain management with potentially severe consequences. In German-speaking countries, there is limited availability of a validated pain assessment tool for this population., Aim: The aim of this observational study was to test the German version of the Critical-Care Pain Observation Tool (CPOT) in a heterogeneous adult ICU population., Methods: The CPOT's feasibility for clinical use was evaluated via a questionnaire. For validity and reliability testing, the CPOT was compared with the Behavioural Pain Scale (BPS) and patient's self-report in 60 patients during 480 observations simultaneously performed by two raters., Results: The feasibility evaluation demonstrated high satisfaction with clinical usability (85% of responses 4 or 5 on a 5-point Likert scale). The CPOT revealed excellent criterion validity [agreement between CPOT and BPS 94.0%, correlation of CPOT and BPS sum scores r = 0.91 (P < .05), agreement of CPOT with patient self-report 81.4%], good discriminant validity [mean difference of CPOT scores between at rest and non-painful stimulus 0.33 (P < .029), mean difference of CPOT scores between at rest, and painful stimulus 2.19 (P < .001)], for a CPOT cut-off score of >2 a high sensitivity and specificity (93% and 84%), high positive predictive value (85%), and a high negative predictive value (93%). The CPOT showed acceptable internal consistency (Cronbach's α 0.79) and high inter-rater reliability [90% agreement, no differences in CPOT sum scores in 64.2% of observations, and correlation for CPOT sum scores r = 0.72 (P < .05)]. Self-report obtained in patients with delirium did not correlate with the CPOT rating in 62% of patients., Conclusion: This is the first validation study of the CPOT evaluating all of the described validity dimensions, including feasibility, at once. The results are congruent with previous validations of the CPOT with homogeneous samples and show that it is possible to validate a tool with a heterogeneous sample. Further research should be done to improve pain assessment and treatment in ICU patients with delirium., Relevance to Clinical Practice: The German CPOT version can be recommended for ICUs in German-speaking countries., (© 2019 The Authors. Nursing in Critical Care published by John Wiley & Sons, Ltd on behalf of British Association of Critical Care Nurses.)
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- 2020
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8. Individuals With Opioid Dependence Using Polysubstances: How Do They Experience Acute Hospital Care and What Are Their Needs? A Qualitative Study.
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Jaiteh C, Steinauer R, and Frei IA
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- Acute Disease, Adult, Delivery of Health Care statistics & numerical data, Fear, Female, Hospitalization, Humans, Male, Middle Aged, Needs Assessment, Opioid-Related Disorders psychology, Professional-Patient Relations, Stereotyping, Substance Abuse Treatment Centers statistics & numerical data, Switzerland, Attitude to Health, Opioid-Related Disorders nursing
- Abstract
Background: Opioid dependence accompanied by polysubstance use is a chronic illness with severe somatic, psychological and social consequences for those affected. International studies have shown that healthcare provision is inadequate for this population because of stigmatization and lack of expertise among medical professionals. It must be assumed that this is also the case in acute care settings of hospitals in German-speaking areas of Switzerland. To date, there are few studies addressing these patients' experiences that could provide data for targeted interventions., Aims: This qualitative study explored this patient population's perspective in terms of their experiences and needs regarding care provision in acute hospitals. The results should offer potential adaptations to care provision for this vulnerable group of individuals., Methods: Twelve individuals with opioid dependence using polysubstances were interviewed in two urban substitution centers. The data analysis of the material obtained was undertaken using qualitative content analysis according to Mayring., Results: As a whole, individuals with opioid dependence using polysubstances are not dissatisfied with care provided in acute hospitals as long as their relationship with health professionals is positive. Substitution medication is critically important to their treatment, but this group's experiences with its management during hospitalization continue to show widespread stigmatization along with inadequate knowledge and interprofessional collaboration and a failure to integrate these patients and their expertise into treatment and care., Conclusions and Future Directions: The treatment of individuals with substance-related disorders in acute hospitals requires staff with somatic and psychiatric training. In this regard, the principles of evidence-based models of reducing harm and multiprofessional treatment teams should be seen as particularly well suited and promising.
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- 2019
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9. Nurses' Recognition of Hospitalized Older Patients With Delirium and Cognitive Impairment Using the Delirium Observation Screening Scale: A Prospective Comparison Study.
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Hasemann W, Tolson D, Godwin J, Spirig R, Frei IA, and Kressig RW
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- Aged, Aged, 80 and over, Female, Humans, Male, Mass Screening methods, Nurse's Role, Prospective Studies, Switzerland, Cognitive Dysfunction diagnosis, Cognitive Dysfunction nursing, Delirium diagnosis, Delirium nursing, Geriatric Assessment methods, Geriatric Nursing methods, Mental Status and Dementia Tests
- Abstract
The aim of the current study was to report findings about delirium detection when ward nurses screened for delirium in patients with cognitive impairment using the Delirium Observation Screening Scale (DOSS) in comparison to the Confusion Assessment Method (CAM). A secondary analysis was performed of research data collected in 2010 at a Swiss tertiary university hospital. During the first 5 days after admission, patients 70 and older with cognitive impairment were screened for delirium using the DOSS. Throughout patients' hospital stay, research assistants also completed the CAM on a daily basis. A total of 138 patients who did not have delirium initially participated in the study. Of these patients, 44 (32%) developed delirium with a median duration of 3 days (Q1 = 1.25; Q3 = 5.00). Ward nurses correctly identified delirium using the DOSS in 56% of cases (sensitivity) and no delirium in 92% of cases (specificity). Although the DOSS was 100% correct in detecting patients with hyperactive delirium, the identification rate decreased to 60% for patients with mixed delirium subtype and 38% for patients with hypoactive delirium. Delirium screening using observational methods may be insufficiently sensitive and should be supplemented with a formal attention test. [Journal of Gerontological Nursing, 44(12), 35-43.]., (© 2018 Hasemann, Tolson, Godwin, Spirig, Frei, Kressig.)
- Published
- 2018
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10. Using Reflexive Thinking to Establish Rigor in Qualitative Research.
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Rettke H, Pretto M, Spichiger E, Frei IA, and Spirig R
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- Focus Groups, Humans, Qualitative Research, Research Design standards, Thinking
- Abstract
Background: Reflexivity can be helpful in developing the methodological rigor necessary to attaining trustworthy qualitative study results., Objectives: The aim of this study was to evaluate strategies of critical reflexive thinking during a qualitative enquiry rooted in a mixed-methods study., Methods: Guided by the questions of Rolfe and colleagues from 2001 ("what," "so what," and "now what"), we applied reflexive thinking to all aspects of the investigation., Results: Critical reflexive thinking strongly supported our efforts to establish methodological rigor and helped reveal shortcomings., Discussion: Effective strategical use of reflexive thinking takes concerted effort. Both time and space are essential to applying reflexive thinking throughout the qualitative research process.
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- 2018
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11. Taking One's Own Life in Hospital? Patients and Health Care Professionals Vis-à-Vis the Tension between Assisted Suicide and Suicide Prevention in Switzerland.
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Reiter-Theil S, Wetterauer C, and Frei IA
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- Health Policy, Hospitals standards, Humans, Organizational Policy, Suicide ethics, Suicide psychology, Suicide, Assisted legislation & jurisprudence, Suicide, Assisted psychology, Switzerland, Suicide Prevention, Attitude of Health Personnel, Attitude to Health, Hospitals ethics, Patient Rights ethics, Professional-Patient Relations ethics, Suicide, Assisted ethics
- Abstract
In Switzerland, the practice of lay right-to-die societies (RTDS) organizing assisted suicide (AS) is tolerated by the state. Patient counseling and accompaniment into the dying process is overtaken by RTDS lay members, while the role of physicians may be restricted to prescribing the mortal dose after a more or less rigorous exploration of the patient’s decisional capacity. However, Swiss health care facilities and professionals are committed to providing suicide prevention. Despite the liberal attitude in society, the legitimacy of organized AS is ethically questioned. How can health professionals be supported in their moral uncertainty when confronted with patient wishes for suicide? As an approach towards reaching this objective, two ethics policies were developed at the Basel University Hospital to offer orientation in addressing twofold and divergent duties: handling requests for AS and caring for patients with suicidal thoughts or after a suicide attempt. According to the Swiss tradition of “consultation” (“Vernehmlassung”), controversial views were acknowledged in the interdisciplinary policy development processes. Both institutional policies mirror the clash of values and suggest consistent ways to meet the challenges: respect and tolerance regarding a patient’s wish for AS on the one hand, and the determination to offer help and prevent harm by practicing suicide prevention on the other. Given the legal framework lacking specific norms for the practice of RTDS, orientation is sought in ethical guidelines. The comparison between the previous and newly revised guideline of the Swiss Academy of Medical Sciences reveals, in regard to AS, a shift from the medical criterion, end of life is near, to a patient rights focus, i.e., decisional capacity, consistent with the law. Future experience will show whether and how this change will be integrated into clinical practice. In this process, institutional ethics policies may—in addition to the law, national guidelines, or medical standards—be helpful in addressing conflicting duties at the bedside. The article offers an interdisciplinary theoretical reflection with practical illustration.
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- 2018
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12. Patient complaints as a means to improve quality of hospital care. Results of a qualitative content analysis
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Hoffmann S, Dreher-Hummel T, Dollinger C, and Frei IA
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- Documentation methods, Documentation standards, Humans, Patient-Centered Care organization & administration, Patient-Centered Care standards, Statistics as Topic methods, Statistics as Topic organization & administration, Switzerland, Total Quality Management organization & administration, Total Quality Management standards, Communication, Nursing Service, Hospital organization & administration, Nursing Service, Hospital standards, Patient Satisfaction, Quality Improvement organization & administration, Quality Improvement standards
- Abstract
Background: Many hospitals have defined procedures for a complaint management. A systematic analysis of patient complaints helps to identify similar complaints and patterns so that targeted improvement measures can be derived (Gallagher & Mazor, 2015). Aim: Our three-month, nurse-led practice development project aimed 1) to identify complaints regarding communication issues, 2) to systemise and prioritise complaints regarding communication issues, and 3) to derive clinic-specific recommendations for improvement. Method: We analysed 273 complaints of patients documented by the quality management (secondary data analysis). Using content analysis and applying the coding taxonomy for inpatient complaints by Reader, Gillespie and Roberts (2014), we distinguished communication-related complaints. By further inductive differentiation of these complaints, we identified patterns and prioritised fields of action. Results: We identified 186 communication-related complaints divided into 16 subcategories. For each subcategory, improvement interventions were derived, discussed and prioritised. Conclusions: Thus, patient complaints provided an excellent opportunity for reflection and workplace learning for nurses. The analysis gave impulse to exemplify the subject “person-centered care” for nurses.
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- 2018
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13. Patient-related complexity of care: a challenge or overwhelming burden for nurses - a qualitative study.
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Kentischer F, Kleinknecht-Dolf M, Spirig R, Frei IA, and Huber E
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- Adult, Aged, Aged, 80 and over, Female, Humans, Male, Middle Aged, Qualitative Research, Attitude of Health Personnel, Clinical Competence, Geriatric Nursing organization & administration, Nurse's Role psychology, Nursing Staff, Hospital psychology, Patient-Centered Care organization & administration, Systems Analysis
- Abstract
Background: Patient-related complexity of nursing care in acute care hospitals has increased in recent years, in part due to shorter hospital stays and the increase in multimorbid patients. However, little research has been conducted on how nurses experience complex nursing care situations., Aims: The aim of this study was to gain a better understanding of how nurses experience complex nursing care situations in Swiss acute care hospitals., Methods: This qualitative study utilised focus group interviews and thematic analysis. Focus groups facilitate different perspectives of the topic. Thematic analysis is suitable for the analysis of everyday stories. Participants were 24 Registered Nurses with experience in their field, from four Swiss hospitals. The evaluation was performed in six steps according to themes. Participation was voluntary. This study was part of a multicentre research project that had been approved by the responsible ethics committees., Results: Three main themes regarding the experience of complex nursing care situations were found: complexity as a challenge, complexity as an overwhelming burden and mediating factors. Mediating factors included time resources and teamwork and interprofessional collaboration as contextual conditions. Additionally, nurses' individual characteristics such as their professional experience and expertise, as well as their personal and professional values and beliefs were considered as mediating factors. These mediating factors may determine whether complex nursing care situations are experienced as challenging or overwhelming., Limitations: The findings from this study are limited as only experienced nurses participated in the study., Conclusions: Nurses are ambivalent with regard to how they experience complex nursing care situations. The contextual conditions and the nurses' personal characteristics play a key role in whether nurses perceive complex nursing care situations as positive challenges or overwhelming burdens. These findings are important for managers, as they can support nurses to master complex nursing care situations., (© 2017 Nordic College of Caring Science.)
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- 2018
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14. Women's experiences of nurse case management on a gynaecological oncology unit in a Swiss tertiary hospital. A thematic analysis.
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Grob S, Bläuer C, and Frei IA
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- Female, Humans, Switzerland, Case Management, Genital Neoplasms, Female nursing, Nursing Staff, Hospital, Tertiary Care Centers organization & administration
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Rationale: Women with gynaecological cancer face various physical, social and emotional challenges concerning their health. Existing research shows that case management can improve patient satisfaction and reduce readmission rates. Although nurse case management was introduced on a gynaecological oncology unit in a Swiss university hospital in 2013, little is known about the experiences of female patients on a unit that uses this model of care., Aims: The aims were to explore women's experiences and to gain deeper understanding about hospital-based nurse case management on a gynaecological oncology unit and to qualitatively evaluate the concept of nurse case management., Methods: Sound research knowledge suggests that experiences are best explored with a qualitative research design. Ten participant interviews were conducted and inductively analysed between September 2014 and May 2015 as described by the thematic analysis method. Ethical approval was obtained, and the women signed a consent form., Results: The first theme was named continuous relationship, with the nurse case manager as contact person and trusted partner. Study participants explained that friendliness and being present were essential qualities of nurse case management. Secondly, an essential support for women dealing with the situation of gynaecological cancer was described in the theme sharing information. The organisation of rehabilitation and other services by the nurse case management defined the third theme coordinating care., Conclusions and Limitations: Trust was seen as the basis of the continuous relationship, marked by friendliness and presence of the nurse case manager. The helpful approach of persons practicing nurse case management made dealing with the situation of illness easier for women with gynaecological cancer. Coordination of information between the nurse case management and other healthcare services could be improved. Further evaluation is suggested to explore effects of the concept on family members., (© 2017 Nordic College of Caring Science.)
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- 2017
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15. [Not Available].
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Wehrle M, Frei IA, and Grossmann F
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- Humans, Nebulizers and Vaporizers, Nurse-Patient Relations, Patient Education as Topic methods, Patient-Centered Care methods, Pulmonary Disease, Chronic Obstructive psychology, Quality of Life psychology, Respiratory Insufficiency nursing, Respiratory Insufficiency psychology, Self Care psychology, Switzerland, Pulmonary Disease, Chronic Obstructive nursing, Self Care methods
- Published
- 2017
16. Analysis of adverse events as a contribution to safety culture in the context of practice development
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Hoffmann S and Frei IA
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- Health Knowledge, Attitudes, Practice, Health Plan Implementation organization & administration, Humans, Inservice Training statistics & numerical data, Nurse Clinicians education, Problem-Based Learning, Research Design statistics & numerical data, Switzerland, Adverse Outcome Pathways statistics & numerical data, Inservice Training organization & administration, Inservice Training standards, Nurse Clinicians organization & administration, Nurse Clinicians standards, Patient Safety standards, Safety Management organization & administration
- Abstract
Background: Analysing adverse events is an effective patient safety measure. Aim: We show, how clinical nurse specialists have been enabled to analyse adverse events with the „Learning from Defects-Tool“ (LFD-Tool). Method: Our multi-component implementation strategy addressed both, the safety knowledge of clinical nurse specialists and their attitude towards patient safety. The culture of practice development was taken into account. Results: Clinical nurse specialists relate competency building on patient safety due to the application of the LFD-tool. Applying the tool, fosters the reflection of adverse events in care teams. Conclusion: Applying the „Learning from Defects-Tool“ promotes work-based learning. Analysing adverse events with the „Learning from Defects-Tool“ contributes to the safety culture in a hospital.
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- 2017
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17. [Between intent and inability-management of malnutrition on medical wards of a centre hospital in Switzerland: patients' experience and perceptions].
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Haldemann-Jenni E, Fierz K, and Frei IA
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- Adult, Aged, Aged, 80 and over, Caregivers education, Caregivers psychology, Feeding and Eating Disorders diagnosis, Feeding and Eating Disorders psychology, Female, Humans, Interview, Psychological, Male, Middle Aged, Nutrition Assessment, Protein-Energy Malnutrition diagnosis, Protein-Energy Malnutrition psychology, Qualitative Research, Self Care psychology, Switzerland, Feeding and Eating Disorders nursing, Hospitalization, Patient Satisfaction, Protein-Energy Malnutrition nursing
- Abstract
Background: Malnutrition is a common phenomenon in acute care institutions accounting for many negative health consequences for the patient. In many hospitals, therefore, malnutrition risk screening and nutrition management programs were established; however, programs were commonly developed without integrating the patients' perspective. It is unknown if the program covers the patients' needs and if the interventions are worthwhile., Aim: Because patient experience is known solely from everyday conversations, the aim of the study was to explore affected patients' experience regarding nutrition management., Method: The study has a qualitative, inductive approach. From September 2011 till May 2012, seven women and one man were interviewed. To analyse the guided interviews, content analysis was used., Results: The analysis shows that patients find themselves between ‘to want but not be able to eat’. Patients at risk encounter barriers due to their physical condition, such as swallowing- and chewing pain, nausea and dysgeusia and barriers associated with the system when ordering meals, such as fixed mealtimes, a limited variety of the menu and non-tasting supplements. To overcome these barriers patients are left to develop self-management strategies and to be in charge of their nutrition., Conclusions: Therefore, targeted training for caregivers is a key, enabling them to support patients individually in their nutrition management. At the same time, institutional barriers must be removed.
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- 2016
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18. A before and after study of a nurse led comprehensive delirium management programme (DemDel) for older acute care inpatients with cognitive impairment.
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Hasemann W, Tolson D, Godwin J, Spirig R, Frei IA, and Kressig RW
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- Aged, Algorithms, Humans, Cognition Disorders complications, Delirium nursing, Delirium therapy
- Abstract
Background: Studies estimate that approximately one-third of episodes of delirium are preventable and that delirium prevention and management are often suboptimal in practice. While there is no doubt that prevention is desirable, the evidence of the benefits of early intervention and treatment for older hospitalised patients with dementia is unclear., Aim: To determine the effects of DemDel, a comprehensive delirium management programme, in inpatient acute care elders with cognitive impairment., Design and Methods: This paper reports the quantitative part of a mixed methods study, comparing an intervention with treatment as usual using validated outcome measures. After training, ward nurses and physicians administered the intervention based on the DemDel algorithm that focused on delirium prevention, including an intensive systematic screening schedule for cognitive impairment and delirium, as well as comprehensive delirium management. The delirium management regimen included timely administration of pro re nata medication., Settings: The study was conducted within four medical wards of an acute care university hospital in urban Switzerland., Participants: A total of 268 patients with cognitive impairment participated in the pre/post comparison study. The intervention and treatment as usual groups consisted of 138 and 130 patients, respectively., Results: Eighty-seven (32.5%) out of 268 patients developed delirium, of whom 51 (58.6%) were of mixed, 10 (11.5%) hyperactive and 26 (29.9%) hypoactive delirium subtypes. Delirium appeared within the first five days after admission in 81.6% of cases. The 44 (31.9%) patients with delirium in the intervention group with systematic delirium management had less severe episodes of delirium and required medication for management than the 43 (33.1%) delirious patients in the control group. Intervention compliance was good on three of the four units., Conclusions: The DemDel programme was effective with regard to improvement of outcomes associated with delirium in patients with cognitive impairment. The intervention was feasible and possible to be embedded within routine practice on four busy general medical wards., (Copyright © 2015 Elsevier Ltd. All rights reserved.)
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- 2016
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19. [Better prepared for umbilical care].
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Bläuer C, Trautmann S, and Frei IA
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- Clinical Nursing Research, Evidence-Based Nursing, Guideline Adherence, Humans, Infant, Newborn, Switzerland, Infant Care methods, Neonatal Nursing methods, Parents education, Umbilical Cord
- Published
- 2016
20. [Family members' experiences of caring for persons with dementia and outreach counseling--an interpretative phenomenological study].
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Vögeli S, Frei IA, and Spichiger E
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- Adult, Aged, Aged, 80 and over, Communication, Cost of Illness, Female, Health Services Needs and Demand, Humans, Interview, Psychological, Male, Middle Aged, Qualitative Research, Social Support, Switzerland, Alzheimer Disease nursing, Alzheimer Disease psychology, Caregivers psychology, Community-Institutional Relations, Counseling, Home Nursing psychology
- Abstract
Background: Almost two-thirds of the 110,000 people living with dementia in Switzerland receive home care from family members. Outreach counselling can reduce the burden for family caregivers and delay nursing home placement. However, little is known of how this works and how caregivers experience the counselling. The Canton of Aargau Alzheimer's Association has been conducting a pilot project to demonstrate the necessity, effectiveness and practicability of outreach counselling in (their canton)., Aim: As a part of the evaluation of the project this study explored how family members experience the process of caring for a relative with dementia and outreach counselling., Method: Interpretive phenomenology–a qualitative approach–was used to analyse data from interviews with twelve family caregivers., Results: Most family members felt supported in caregiving by outreach counselling. Three aspects of the counselling were especially important to the participants: being understood and taken seriously by the counsellor; receiving answers to their most pressing questions concerning the illness and being supported when difficult decision had to be taken; regaining personal time and learning how to better interact with the person with dementia. Two participants would have wished for more help by the counsellor., Conclusions: To meet the needs of the family members, consultants should have sufficient experience in dementia patient care and should be strongly networked across the local health and welfare system. This study shows that family members can experience outreach counselling as a great support in their caregiving roles.
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- 2016
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21. [Acute care nurses’ ethical reasoning: a thematic analysis].
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Barandun Schäfer U, Ulrich A, Meyer-Zehnder B, and Frei IA
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- Attitude of Health Personnel, Cooperative Behavior, Focus Groups, Hierarchy, Social, Humans, Interdisciplinary Communication, Nurse's Role, Nurse-Patient Relations ethics, Switzerland, Acute Disease nursing, Ethics, Nursing, Nursing Care ethics, Physician-Nurse Relations
- Abstract
Background: In the day-to-day course of nursing, ethical issues are being openly articulated to a growing extent. However, nurses only rarely systematically address these issues. This subject was explored in interviews with professionals who have a particular focus on ethics., Objective: Gain input for further developing the skills of nursing staff in ethical reasoning., Method: In two focus groups and four individual interviews, we questioned 14 professionals, including nine nurses, who have a special interest in ethics., Results: Nurses find it ethically problematic when the wishes of patients are not respected or something is forced on them, creating the impression that the care being given is exacerbating rather than alleviating the patient’s suffering. These problematic aspects are often overlooked because the consequences of the action in question are not immediately apparent. Ethical issues in nursing are often addressed in informal, non-systematic discussions among nursing staff. Nurses actively and confidently engage in discussions on treatment goals, and the teamwork with doctors is usually experienced as being based on mutual respect and partnership. The inherent hierarchical role differences between nursing and medical staff nevertheless manifest in ethical issues., Conclusion: Through the practical application of ethical reasoning in day-to-day nursing, structured discussions of the ethical aspects of cases and dedicated further education, nurses should learn to better recognise ethical issues in nursing and effectively analyse them and find solutions.
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- 2015
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22. [Nursing care in the run-up to Swiss DRG – Nurses' experiences with interprofessional collaboration, leadership, work load and job satisfaction].
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Rettke H, Frei IA, Horlacher K, Kleinknecht-Dolf M, Spichiger E, and Spirig R
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- Adult, Attitude of Health Personnel, Cost Control economics, Cost Control organization & administration, Diagnosis-Related Groups economics, Female, Hospital Costs organization & administration, Hospital Costs statistics & numerical data, Humans, Male, Middle Aged, National Health Programs economics, Nurse-Patient Relations, Nursing Staff, Hospital economics, Nursing, Team economics, Nursing, Team organization & administration, Quality Assurance, Health Care economics, Quality Assurance, Health Care organization & administration, Switzerland, Cooperative Behavior, Diagnosis-Related Groups organization & administration, Interdisciplinary Communication, Job Satisfaction, Leadership, National Health Programs organization & administration, Nursing Staff, Hospital organization & administration, Nursing Staff, Hospital psychology
- Abstract
Background: The literature reports critically on the consequences of the introduction of case-based hospital reimbursement systems, which hamper the delivery of professional nursing care. For this reason, we examined the characteristics of nursing service context factors (work environment factors) in acute care hospitals with regards to the introduction of the new reimbursement system in Switzerland., Aim: This qualitative study describes practice experiences of nurses in the context of the characteristics of the nursing service context factors interprofessional collaboration, leadership, workload and job satisfaction., Methods: Twenty focus group interviews were conducted with a total of 146 nurses in five acute care hospitals., Results: The results indicated that for quite some time the participants had observed an increase in complexity of nursing care and a growing invasiveness of clinical diagnostics and treatment. At the same time they noticed a decrease in patient length of stay. They strived to offer high quality nursing care even in situations where demands outweighed resources. Good interprofessional collaboration and supportive leadership contributed substantially to nurses' ability to overcome daily challenges. Job satisfaction was bolstered by interactions with patients. Also, the role played by the nursing team itself is not to be underestimated., Conclusions: From the participants' point of view, context factors harbor great potential for attaining positive patient outcomes and higher job satisfaction and have to be monitored repeatedly.
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- 2015
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23. [Monitoring of nursing service context factors: first descriptive results of a cross-sectional Swiss study prior the introduction of SwissDRG].
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Kleinknecht-Dolf M, Spichiger E, Frei IA, Müller M, Martin JS, and Spirig R
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- Adult, Attitude of Health Personnel, Cross-Sectional Studies, Female, Humans, Job Satisfaction, Male, Middle Aged, Nursing Administration Research, Quality Assurance, Health Care economics, Quality Assurance, Health Care organization & administration, Surveys and Questionnaires, Switzerland, Clinical Nursing Research, Diagnosis-Related Groups economics, Diagnosis-Related Groups organization & administration, Financing, Government economics, Financing, Government organization & administration, Insurance, Nursing Services economics, National Health Programs economics, National Health Programs organization & administration
- Abstract
Background: The adoption of DRG-based payment systems has narrowed hospitals' financial margins, necessitating streamlining and process optimization. The experience of other countries shows that this restructuring can influence context factors essential to the delivery of nursing care. As a result, nursing care quality and patient safety may be impacted., Aim: The Sinergia Project aims to develop a monitoring model and related instruments to continuously monitor the impact of DRG-based reimbursement on central nursing service context factors., Method: The descriptive, quantitative results were collected within the framework of a study with a mixed methods design by means of an online survey in which nurses from five hospitals participated., Results: The results show that the nursing service context factors examined (nursing care complexity, quality of the work environment, management, moral distress and job satisfaction), have relevance in all practice areas as regards practice setting and nursing care delivery. Patterns can be recognized that are consistent with those found in the literature and which could be an indication of the relationships between the context factors above, as was hypothesized in the model., Conclusions: The study has provided the participating hospitals with useful data upon which to base discussions on ensuring quality of nursing care and practice development, in addition to information important to the further development of the model and the instruments employed.
- Published
- 2015
- Full Text
- View/download PDF
24. [Daily routine of informal caregivers-needs and concerns with regard to the discharge of their elderly family members from the hospital setting-a qualitative study].
- Author
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Küttel C, Schäfer-Keller P, Brunner C, Conca A, Schütz P, and Frei IA
- Subjects
- Activities of Daily Living classification, Activities of Daily Living psychology, Aged, Aged, 80 and over, Disability Evaluation, Female, Humans, Male, Middle Aged, Qualitative Research, Quality of Life psychology, Switzerland, Caregivers psychology, Chronic Disease nursing, Chronic Disease psychology, Frail Elderly, Health Services Needs and Demand, Patient Discharge
- Abstract
Background: The care of an elderly frail and ill family member places a great responsibility on informal caregivers. Following discharge of the older person from the hospital setting it can be observed that caregivers are often inadequately informed about aspects such as health status, prognosis, complications, and care interventions. Concerns and needs of caregivers regarding their daily living and routine following hospital discharge has not been investigated and is considered important for an optimized discharge management., Aim: To explore personal needs and concerns of informal caregivers with regard to daily living prior to discharge of their family member., Method: Eight narrative interviews were conducted with caregivers and were analysed using Mayring's content analysing method., Results: All caregivers had concerns regarding the maintenance of a functional daily routine. As well as caring and household duties, this functional daily routine included negotiating one's own personal time off duties, the reality of the deteriorating health status of the family member and the associated sense of hope. The intensity of family ties affected the functional daily routine. Caregivers had different expectations with regard to their integration during the hospital period., Conclusions: To support caregivers in their situation it is advisable to assess the functional daily routine of caregivers. Their need for time off their household and caring duties and their informational and educational needs to pertaining to disease progression, possible sources of support and symptom management should be recognised. Further inquiries into caregiver's involvement and responsibilities in the discharge process are needed.
- Published
- 2015
- Full Text
- View/download PDF
25. Moral distress in nurses at an acute care hospital in Switzerland: results of a pilot study.
- Author
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Kleinknecht-Dolf M, Frei IA, Spichiger E, Müller M, Martin JS, and Spirig R
- Subjects
- Adult, Conflict, Psychological, Cross-Sectional Studies, Female, Humans, Male, Middle Aged, Nurses psychology, Pilot Projects, Reproducibility of Results, Surveys and Questionnaires, Switzerland, Attitude of Health Personnel, Morals, Nursing Staff, Hospital psychology, Stress, Psychological etiology, Stress, Psychological psychology
- Abstract
Background: In the context of new reimbursement systems like diagnosis-related groups, moral distress is becoming a growing problem for healthcare providers. Moral distress can trigger emotional and physical reactions in nurses and can cause them to withdraw emotionally from patients or can cause them to change their work place., Objective: The aim of this pilot study was to develop an instrument to measure moral distress among acute care nurses in the German-speaking context, to test its applicability, and to obtain initial indications of the instrument's validity., Method: The study was designed in 2011 as a cross-sectional pilot survey. Conducted on eight units of one university hospital in German-speaking Switzerland, 294 registered nurses were asked to fill out a web-based questionnaire on moral distress., Ethical Considerations: The study proposal was approved by the cantonal ethics committee. All participating nurses provided informed consent and were assured of data confidentiality., Results: The survey had a response rate of 55%. The results show the prevalence of statements on the questionnaire indicating situations with the potential to trigger moral distress. The entire range of answers was used in the responses. Most participants found the questionnaire comprehensible, while some criticized the phraseology of certain statements. Many more found the registration process prior to online access to be too time consuming. Nurses confirmed that the results reflect their subjective assessment of their situation and their experience of moral distress., Conclusion: The newly developed moral distress questionnaire appears to produce face validity and is sufficiently applicable for use in our study. The results indicate that moral distress appears to be a relevant phenomenon also in Swiss hospitals and that nurses were experiencing it prior to the introduction of Swiss diagnosis-related groups., (© The Author(s) 2014.)
- Published
- 2015
- Full Text
- View/download PDF
26. [Preventing aspiration with deglutition screening].
- Author
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Schäfer UB, Krebs E, Niemann T, Wesch C, and Frei IA
- Subjects
- Hospitals, University, Humans, Intubation, Intratracheal nursing, Switzerland, Critical Care Nursing, Deglutition Disorders nursing, Deglutition Disorders prevention & control, Mass Screening nursing, Pneumonia, Aspiration nursing, Pneumonia, Aspiration prevention & control
- Published
- 2015
27. [What women want: a qualitative study about postnatal midwifery care at home].
- Author
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Blöchlinger P, Kurth E, Kammerer M, and Frei IA
- Subjects
- Adult, Female, Humans, Interview, Psychological, Length of Stay, Nurse-Patient Relations, Patient Discharge, Patient Satisfaction, Postnatal Care psychology, Qualitative Research, Switzerland, Home Care Services, Midwifery, Postnatal Care methods
- Abstract
In Switzerland, decreases in regular hospital treatment after birth are leading increasingly to mother and child being cared for at home by independent midwives. The research herein was carried out in order to understand the needs of mothers in their home once they leave the hospital and what this midwife provided care consists of. In 2008, eight women from central Switzerland were interviewed on two separate occasions after the birth of their child, and the interviews were analysed using content analysing techniques. Mothers explained that they wanted their baby and themselves to be well cared for. They needed rest and support for recuperation and wished to spend quality time with their new family. The midwifes assisted the mothers to fulfil their needs by counselling, by instructing and by giving information, but they rarely encouraged them to be together as a family. The relationship between midwife and mother turned out to be an important support. Mothers were satisfied if mutual trust was built and if the midwife perceived their needs, respected their autonomy and took the time to be with them. Midwives contribute to the basic well-being of families and support women with medical expertise and ongoing care. Furthermore families need support in general household issues so that new mothers can recover sufficiently.
- Published
- 2014
- Full Text
- View/download PDF
28. Monitoring the impact of the DRG payment system on nursing service context factors in Swiss acute care hospitals: Study protocol.
- Author
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Spirig R, Spichiger E, Martin JS, Frei IA, Müller M, and Kleinknecht M
- Subjects
- Adult, Attitude of Health Personnel, Critical Care Nursing economics, Diagnosis-Related Groups statistics & numerical data, Female, Health Care Rationing statistics & numerical data, Humans, Male, Middle Aged, Nursing Service, Hospital statistics & numerical data, Practice Patterns, Nurses' statistics & numerical data, Switzerland, Workload economics, Young Adult, Critical Care Nursing statistics & numerical data, Diagnosis-Related Groups economics, Health Care Rationing economics, Job Satisfaction, Nursing Service, Hospital economics, Practice Patterns, Nurses' economics, Workload statistics & numerical data
- Abstract
Aims: With this study protocol, a research program is introduced. Its overall aim is to prepare the instruments and to conduct the first monitoring of nursing service context factors at three university and two cantonal hospitals in Switzerland prior to the introduction of the reimbursement system based on Diagnosis Related Groups (DRG) and to further develop a theoretical model as well as a methodology for future monitoring following the introduction of DRGs., Background: DRG was introduced to all acute care hospitals in Switzerland in 2012. In other countries, DRG introduction led to rationing and subsequently to a reduction in nursing care. As result, nursing-sensitive patient outcomes were seriously jeopardised. Switzerland has the opportunity to learn from the consequences experienced by other countries when they introduced DRGs. Their experiences highlight that DRGs influence nursing service context factors such as complexity of nursing care or leadership, which in turn influence nursing-sensitive patient outcomes. For this reason, the monitoring of nursing service context factors needs to be an integral part of the introduction of DRGs. However, most acute care hospitals in Switzerland do not monitor nursing service context data. Nursing managers and hospital executive boards will be in need of this data in the future, in order to distribute resources effectively., Methods/design: A mixed methods design in the form of a sequential explanatory strategy was chosen. During the preparation phase, starting in spring 2011, instruments were selected and prepared, and the access to patient and nursing data in the hospitals was organized. Following this, online collection of quantitative data was conducted in fall 2011. In summer 2012, qualitative data was gathered using focus group interviews, which helped to describe the processes in more detail. During 2013 and 2014, an integration process is being conducted involving complementing, comparing and contrasting quantitative and qualitative findings., Conclusion: The research program will produce baseline data on nursing service context factors in Swiss acute care hospitals prior to DRG introduction as well as a theoretical model and a methodology to support nursing managers and hospital executive boards in distributing resources effectively. The study was approved by the ethics committees of Basel, Bern, Solothurn and Zürich.
- Published
- 2014
- Full Text
- View/download PDF
29. [Including family in nursing care of patients with delirium on intensive care units].
- Author
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Wesch C, Barandun Schäfer U, Frei IA, and Massarotto P
- Subjects
- Caregivers education, Communication, Delirium psychology, Humans, Nursing, Team, Caregivers psychology, Delirium nursing, Intensive Care Units, Professional-Family Relations
- Published
- 2013
- Full Text
- View/download PDF
30. [Ethnography and fieldwork: the crisis of representation and beyond].
- Author
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Beil-Hildebrand MB and Frei IA
- Subjects
- Anthropology, Cultural education, Clinical Nursing Research education, Communication, Curriculum trends, Education, Nursing, Graduate trends, Forecasting, Humans, Nurse-Patient Relations, Social Values, Transcultural Nursing education, Anthropology, Cultural trends, Clinical Nursing Research trends, Transcultural Nursing trends
- Abstract
Writing as a nursing researcher about the subjects that comprise the nursing profession means writing about oneself. Conducting ethnographic research on subjects within one's own professional culture and interacting with these subjects in the field poses a challenge. Ethnographic research analyses and opens out the horizon of one's own professional culture for the benefit of the potential reader. However, at the same time, the researcher's self within an ethnographic framework is called into question. In anthropology the researcher-subject relationship is deemed a special relationship, and in this article both authors reveal the precarious status of their research object. In this article an attempt is made to let the nursing subjects speak for themselves, while at the same time the authors write about their subjects' social practices an communication processes. To date there has hardly been any German research work within nursing dealing with this critical area of interest. The authors seek to provide an introduction to the constitutive parts of ethnography and the crisis of representation and beyond. In addition, they present two reflexive accounts.
- Published
- 2013
- Full Text
- View/download PDF
31. [Nursing care continuity after acute inpatient treatment. Nursing case management].
- Author
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D'Astolfo S, Ulrich A, and Frei IA
- Subjects
- Chronic Disease nursing, Cooperative Behavior, Hospitals, University, Humans, Interdisciplinary Communication, Models, Nursing, Quality Assurance, Health Care organization & administration, Switzerland, Case Management organization & administration, Continuity of Patient Care organization & administration, Patient Discharge
- Published
- 2013
32. [Reducing to a minimum].
- Author
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Helberg D, Frei IA, Barbezat I, Botta M, Hilfiker M, Krause M, Müller R, Ulrich A, Fröhlich RM, and Molls S
- Subjects
- Accidental Falls prevention & control, Cognition Disorders psychology, Confusion psychology, Critical Care, Dementia psychology, Evidence-Based Nursing, Humans, Practice Guidelines as Topic, Restraint, Physical psychology, Risk Assessment, Switzerland, Cognition Disorders nursing, Confusion nursing, Dementia nursing, Hospitalization, Restraint, Physical adverse effects
- Published
- 2013
33. [Acute and long-term care. Effective prevention of decubitus ulcer allows targeted nursing].
- Author
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Hürlimann B, Bühlmann J, Trachsel E, and Frei IA
- Subjects
- Acute Disease, Aged, Aged, 80 and over, Female, Hospitals, University, Humans, Risk Assessment standards, Switzerland, Evidence-Based Nursing standards, Long-Term Care standards, Nursing Assessment standards, Pressure Ulcer nursing, Pressure Ulcer prevention & control
- Published
- 2011
34. [Osteoporosis. Good patient education can prevent fractures].
- Author
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Muri-John V, Pretto M, and Frei IA
- Subjects
- Cooperative Behavior, Humans, Interdisciplinary Communication, Risk Assessment, Switzerland, Osteoporosis nursing, Osteoporosis prevention & control, Osteoporotic Fractures nursing, Osteoporotic Fractures prevention & control, Patient Education as Topic methods
- Published
- 2011
35. [Nursing care of wounds. Silver in wound treatment].
- Author
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Haidorfer J, Egger B, and Frei IA
- Subjects
- Anti-Infective Agents, Local adverse effects, Humans, Methicillin-Resistant Staphylococcus aureus drug effects, Nanospheres, Silver adverse effects, Staphylococcal Infections nursing, Anti-Infective Agents, Local administration & dosage, Bandages, Silver administration & dosage, Wound Infection nursing
- Published
- 2011
36. [Palliative care research. Data before and after DRG introduction].
- Author
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Kleinknecht M, Frei IA, Spichiger E, Müller M, Martin JS, Straudacher D, and Spirig R
- Subjects
- Cost Savings trends, Forecasting, Humans, Nurse's Role, Patient Satisfaction economics, Professional Competence economics, Quality Assurance, Health Care economics, Switzerland, Workload economics, Clinical Nursing Research, Diagnosis-Related Groups economics, National Health Programs economics, Nursing Staff, Hospital economics, Palliative Care economics, Reimbursement Mechanisms economics
- Published
- 2011
37. [Evaluation of nursing and leadership competencies - a baseline for practice development].
- Author
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Martin JS, Frei IA, Suter-Hofmann F, Fierz K, Schubert M, and Spirig R
- Subjects
- Economics, Nursing, Evidence-Based Nursing standards, Humans, Nurse Administrators psychology, Nurses psychology, Nursing Services standards, Reimbursement Mechanisms, Switzerland, Leadership, Nursing Care standards
- Abstract
Competent nursing and effective leadership are essential attributes for the provision of high-quality care which is patient-centred, evidence-based and outcome-oriented. The Department of Clinical Nursing science (DCN) of the University Hospital Basel (USB) initiated and implemented programmes of targeted practice development to promote competence in nursing and leadership. With the aim of generating data on nursing and leadership competencies, as well as on the quality of nursing care and the nursing work environment, an evaluation study with a mixed-method design was implemented in 2007. Within the quantitative portion of the study 679 nurses and 27 nurse managers participated. The descriptive results showed that nurses rated their overall level of competence on the Nurse Competence Scale high with a mean score of 75.1 (VAS 0 - 100). The rating of leadership competencies of nurse managers on the Leadership Practice Inventory was in the upper third of the 10-point Likert scale with mean scores of 40 to 50 (6 - 60). In order to permit ongoing monitoring of practice development, follow-up evaluations at regularly scheduled intervals are planned. With the introduction of a reimbursement system on the basis of Diagnosis Related Groups into Swiss health care, effective monitoring of nursing service contextual factors is crucial, now and in the future.
- Published
- 2010
- Full Text
- View/download PDF
38. [Career model for nurses. From the specialist to the expert].
- Author
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Spirig R, Eze G, Wehrli M, Rageth ES, Zogg K, Frei IA, and Rosery S
- Subjects
- Humans, Career Choice, Models, Nursing, Nursing standards, Specialties, Nursing
- Published
- 2010
39. [Obesity. High demands for nursing].
- Author
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Ohlhorst S, Trachsel E, Schärli D, and Frei IA
- Subjects
- Beds, Body Mass Index, Communication, Early Ambulation, Humans, Nurse-Patient Relations, Patient Education as Topic, Prejudice, Obesity nursing
- Published
- 2009
40. [A nurse-led multidisciplinary malnutrition program to assess and treat patients with malnutrition or those at risk of malnutrition].
- Author
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Bläuer C, Schierz-Hungerbühler J, Trachsel E, Spirig R, and Frei IA
- Subjects
- Hospitals, University, Humans, Inservice Training, Mass Screening, Nursing Staff, Hospital education, Switzerland, Nursing Assessment, Patient Care Team, Protein-Energy Malnutrition nursing
- Abstract
Malnutrition is a world-wide problem that does not only affect developing countries. People in industrialised countries, in particular the elderly, the poor and the sick, are at risk. In Switzerland, it is estimated that between 15 and 20% of patients (depending on patient population) show signs of malnutrition upon hospital admission. In response and based on a systematic review of the literature, a working group of the internal medicine department at the University Hospital Basel has developed a malnutrition programme comprising a screening instrument, a multidisciplinary care guideline, an information brochure, and a training programme for nursing staff. It is the aim of this article to report how the programme to recognise and treat malnutrition was developed, implemented, and evaluated.
- Published
- 2008
- Full Text
- View/download PDF
41. [Objective understanding of and therapy for nutritional defects].
- Author
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Trachsel E, Bläuer C, Schierz-Hungerbühler J, and Frei IA
- Subjects
- Humans, Nutrition Disorders epidemiology, Nutrition Disorders prevention & control, Switzerland epidemiology, Nutrition Disorders nursing
- Published
- 2008
42. [Precise decisions about health conditions].
- Author
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Helberg D, Frei IA, and Spirig R
- Subjects
- Humans, Quality Assurance, Health Care, Switzerland, Delivery of Health Care, Nursing Care standards
- Published
- 2008
43. Quality and efficacy of educational materials on cancer-related fatigue: views of patients from two European countries.
- Author
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Ream E, Browne N, Glaus A, Knipping C, and Frei IA
- Subjects
- Comorbidity, Fatigue etiology, Female, Focus Groups, Health Knowledge, Attitudes, Practice, Humans, Male, Multicenter Studies as Topic, Neoplasms complications, Neoplasms diagnosis, Oncology Nursing, Risk Assessment, Sampling Studies, Severity of Illness Index, Switzerland epidemiology, United Kingdom epidemiology, Fatigue epidemiology, Fatigue nursing, Neoplasms epidemiology, Nurse's Role, Patient Education as Topic methods, Quality of Health Care, Teaching Materials
- Abstract
Cancer-related fatigue is a symptom with great implications for the quality of life of those that experience it. It is regarded as one of the most distressing symptoms that people with cancer develop. Its aetiology is complex, and although the mechanisms underlying fatigue have not been fully clarified it is evident that it is exacerbated by treatments intended to cure or palliate the disease. Patients at risk of cancer-related fatigue need access to information that will enable them to manage it effectively. There are a growing number of materials available to patients in different European countries on this topic, but it is unclear how useful patients find these. This study was undertaken to explore this through conducting focus groups with patients in the United Kingdom and Switzerland. One focus group was conducted in each country. Findings from these determined that individuals voiced common concerns: fatigue had not been addressed in the clinical setting - individuals surmised why this occurred; participants had not accessed materials on cancer-related fatigue previously; they made recommendations for future resources for patients. However, what was evident was that unless patients can access materials on this topic, their quality becomes purely an academic issue.
- Published
- 2003
- Full Text
- View/download PDF
44. [Attitude of cancer patients to fatigue: patient attitude in Switzerland and England].
- Author
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Glaus A, Frei IA, Knipping C, Ream E, and Browne N
- Subjects
- Awareness, Clinical Nursing Research, England, Fatigue psychology, Female, Humans, Male, Middle Aged, Neoplasms psychology, Switzerland, Cross-Cultural Comparison, Fatigue nursing, Neoplasms nursing, Nurse-Patient Relations, Patient Education as Topic, Sick Role
- Abstract
Unlabelled: In the course of a cancer trajectory, many patients suffer from distressing fatigue. In past years, research has shown that care givers tend to underestimate or even to ignore this frequent phenomenon. Despite increasing knowledge, fatigue seems to remain an orphan topic in symptom management., Aim: A qualitative research strategy was used to explore the perception of cancer patients regarding the awareness of fatigue in professionals and the way they deal with it. Patients also evaluated the usefulness of some currently available information material about fatigue., Methods: The expert-opinion of cancer patients in Switzerland and England was analysed. Convenient sampling guided the selection process of seven patients in each country. A tape-recorded focus-group interview served as method to collect and transcribe data. Data were analysed according to the framework analyses by Richie & Spencer., Results: Results were very similar in both countries. Patients stated a great need for more information regarding fatigue. They feel that care givers are not sufficiently aware of it and that a specific support is not part of current standard practice. The information material was well received and generally judged as very good and helpful., Conclusions: Communication barriers in professionals as well as in patients continue to exist. Patients wish to be better informed by care givers. The available information material serves well to support this information as they provide words for the unmentioned phenomenon. Far more professional fatigue education is needed to raise care givers' awareness.
- Published
- 2002
- Full Text
- View/download PDF
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