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5. Hand Hygiene

Author

Murphy, Steven, primary, Forbes, Caitlin, additional, Smyth, Katie, additional, and Bowlt Blacklock, Kelly L., additional

Published
2023
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7. End-of-Life Symptom Burden among Patients with Cancer Who Were Provided Medical Assistance in Dying (MAID): A Longitudinal Propensity-Score-Matched Cohort Study

Author

Russell, K. Brooke, primary, Forbes, Caitlin, additional, Qi, Siwei, additional, Link, Claire, additional, Watson, Linda, additional, Deiure, Andrea, additional, Lu, Shuang, additional, Silvius, James, additional, Kelly, Brian, additional, Bultz, Barry D., additional, and Schulte, Fiona, additional

Published
2024
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9. Mental health and health behaviors of parents of survivors of childhood cancer in the early COVID-19 pandemic: Exploring the role of intolerance of uncertainty

Author

Hou, Sharon H. J., primary, Forbes, Caitlin, additional, Cho, Sara, additional, Tran, Andrew, additional, Forster, Victoria J., additional, Wakefield, Claire E., additional, Heathcote, Lauren C., additional, Wiener, Lori, additional, Michel, Gisela, additional, Patterson, Pandora, additional, Stokoe, Mehak, additional, Reynolds, Kathleen, additional, and Schulte, Fiona M. S., additional

Published
2023
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10. The Impact of the Early COVID-19 Global Pandemic on Children Undergoing Active Cancer Treatment and Their Parents

Author

Tran, Andrew, Hou, Sharon H. J., Forbes, Caitlin, Cho, Sara, Forster, Victoria J., Stokoe, Mehak, Wakefield, Claire E., Wiener, Lori, Heathcote, Lauren C., Michel, Gisela, Patterson, Pandora, Reynolds, Kathleen, Schulte, Fiona S. M., Tran, Andrew, Hou, Sharon H. J., Forbes, Caitlin, Cho, Sara, Forster, Victoria J., Stokoe, Mehak, Wakefield, Claire E., Wiener, Lori, Heathcote, Lauren C., Michel, Gisela, Patterson, Pandora, Reynolds, Kathleen, and Schulte, Fiona S. M.

Abstract

(1) Background: The COVID-19 global pandemic has impacted people worldwide with unique implications for vulnerable groups. In this cross-sectional study, we examined the impact of the early pandemic on children undergoing active cancer treatment and their parents. (2) Methods: In May 2020, 30 parents of children undergoing active cancer treatment completed an online survey regarding the impact of COVID-19 on their child's cancer care, perceived utility of telemedicine, and child and parent mental health status. (3) Results: Most participants (87%) reported that they did not experience any changes to major cancer treatments. Among those who reported using telemedicine, 78% reported this to be beneficial. Over half of the participants reported that their child's mental health status was worse now than prior to the COVID-19 global pandemic. Parent-reported child anxiety scores were significantly higher for those who reported changes to mental health care for their child compared to those who did not report the same, t(25.99) = −3.04, p = 0.005. (4) Conclusion: Child and parent mental health status were affected when compared to pre-pandemic. Telemedicine appears to be a promising complement to face-to-face meetings for some families and warrants further exploration., + ID der Publikation: unilu_64488 + Sprache: Englisch + Letzte Aktualisierung: 2023-03-31 13:00:18

Published
2023

11. The Impact of the Early COVID-19 Global Pandemic on Children Undergoing Active Cancer Treatment and Their Parents

Author

Tran, Andrew, primary, Hou, Sharon H. J., additional, Forbes, Caitlin, additional, Cho, Sara, additional, Forster, Victoria J., additional, Stokoe, Mehak, additional, Wakefield, Claire E., additional, Wiener, Lori, additional, Heathcote, Lauren C., additional, Michel, Gisela, additional, Patterson, Pandora, additional, Reynolds, Kathleen, additional, and Schulte, Fiona S. M., additional

Published
2023
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12. Health related quality of life in children with sickle cell disease: A systematic review and meta-analysis

Author

Stokoe, Mehak, primary, Zwicker, Hailey M., additional, Forbes, Caitlin, additional, Abu-Saris, Nur E.L. Huda, additional, Fay-McClymont, Taryn B., additional, Désiré, Naddley, additional, Guilcher, Gregory M.T., additional, Singh, Gurpreet, additional, Leaker, Michael, additional, Yeates, Keith Owen, additional, Russell, K. Brooke, additional, Cho, Sara, additional, Carrels, Tessa, additional, Rahamatullah, Iqra, additional, Henry, Brianna, additional, Dunnewold, Nicole, additional, and Schulte, Fiona S.M., additional

Published
2022
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13. The perceived impact of COVID-19 on the mental health status of adolescent and young adult survivors of childhood cancer and the development of a knowledge translation tool to support their information needs

Author

Michel, Gisela, Hou, Sharon, Tran, Andrew, Cho, Sara, Forbes, Caitlin, Forster, Victoria J., Stokoe, Mehak, Allapitan, Elleine, Wakefield, Claire E., Wiener, Lori, Heathcote, Lauren C., Patterson, Pandora, Reynold, Kathleen, and Schulte, Fiona S. M.

Subjects
adolescent and young adult cancer, survivors of childhood cancers, COVID-19, pediatric oncology, psychosocial oncology, humanities, mental health
Abstract

Introduction: Adolescent and young adult (AYA; 13 to 39 years) survivors of childhood cancer may be especially vulnerable to physical health and mental health concerns during the pandemic. We investigated the impact of COVID-19 on the mental health status of AYA survivors (Aim 1) and shared tailored, evidence-based health-related information on COVID-19 (Aim 2). Methods: Between May and June 2020, participants completed a cross-sectional online survey assessing their cancer history, current mental health status, and their COVID-19 information needs Results: Ninety-four participants (78 females, 13 males, 2 non-binary) with a mean age of 26.9 years (SD = 6.2) were included in the final sample. Participants reported residing from 10 countries and 94% identified as White. Nearly half of the participants (49%) described their mental health status as worse now than before the pandemic. Thirty-nine participants (41%) that indicated their current mental health status was tied to fears/worries about their past cancer and treatment experienced a higher level of anxiety and PTSS than those who did not report the same. Most participants (77%) had not received any information related to the potential risks of COVID-19 and expressed an interest in receiving this information. In response, an infographic detailing recommended strategies for coping with mental health in the pandemic, along with preliminary study findings, was developed. Discussion: AYA survivors reporting their mental health status was linked to their past cancer experienced poorer mental health. There is a value to educating survivors on their potential health risks, but accounting for their perceived mental health vulnerabilities should be considered when disseminating knowledge. The use of an infographic is a unique contribution towards the development of innovative and personalized means of sharing health education to this vulnerable yet resilient group. This research on the mental health status of AYA survivors very early in the pandemic informs continued initiatives investigating the rapidly changing nature of how COVID-19 may impact AYA survivors today and in the future., + ID der Publikation: unilu_59488 + Sprache: Englisch + Letzte Aktualisierung: 2022-06-27 15:03:13

Published
2022
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14. The Perceived Impact of COVID-19 on the Mental Health Status of Adolescent and Young Adult Survivors of Childhood Cancer and the Development of a Knowledge Translation Tool to Support Their Information Needs

Author

Hou, Sharon H. J., primary, Tran, Andrew, additional, Cho, Sara, additional, Forbes, Caitlin, additional, Forster, Victoria J., additional, Stokoe, Mehak, additional, Allapitan, Elleine, additional, Wakefield, Claire E., additional, Wiener, Lori, additional, Heathcote, Lauren C., additional, Michel, Gisela, additional, Patterson, Pandora, additional, Reynolds, Kathleen, additional, and Schulte, Fiona S. M., additional

Published
2022
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20. Childhood Cancer Survivorship

Author

Schulte, Fiona, primary, Forbes, Caitlin, additional, Wurz, Amanda, additional, Patton, Michaela, additional, Russell, K. Brooke, additional, Pluijm, Saskia, additional, and Krull, Kevin R., additional

Published
2020
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22. Pain in long‐term survivors of childhood cancer: A systematic review of the current state of knowledge and a call to action from the Children's Oncology Group

Author

Schulte, Fiona S. M., primary, Patton, Michaela, additional, Alberts, Nicole M., additional, Kunin‐Batson, Alicia, additional, Olson‐Bullis, Barbara A., additional, Forbes, Caitlin, additional, Russell, K. Brooke, additional, Neville, Alexandra, additional, Heathcote, Lauren C., additional, Karlson, Cynthia W., additional, Racine, Nicole M., additional, Charnock, Courtney, additional, Hocking, Matthew C., additional, Banerjee, Pia, additional, Tutelman, Perri R., additional, Noel, Melanie, additional, and Krull, Kevin R., additional

Published
2020
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23. Fear of cancer recurrence among survivors of childhood cancer

Author

Wroot, Hayley, primary, Afzal, Arfan R., additional, Forbes, Caitlin, additional, Russell, K. Brooke, additional, Trepanier, Lindsey, additional, Patton, Michaela, additional, Fidler‐Benaoudia, Miranda, additional, Reynolds, Kathleen, additional, and Schulte, Fiona, additional

Published
2020
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24. Pain in long‐term survivors of childhood cancer: A systematic review of the current state of knowledge and a call to action from the Children's Oncology Group.

Author

Schulte, Fiona S. M., Patton, Michaela, Alberts, Nicole M., Kunin‐Batson, Alicia, Olson‐Bullis, Barbara A., Forbes, Caitlin, Russell, K. Brooke, Neville, Alexandra, Heathcote, Lauren C., Karlson, Cynthia W., Racine, Nicole M., Charnock, Courtney, Hocking, Matthew C., Banerjee, Pia, Tutelman, Perri R., Noel, Melanie, and Krull, Kevin R.

Subjects
CHILDHOOD cancer, PAIN measurement, CANCER survivors, NOSOLOGY, CHRONIC pain, SECONDARY primary cancer
Abstract

Survivors of childhood cancer may be at risk of experiencing pain, and a systematic review would advance our understanding of pain in this population. The objective of this study was to describe: 1) the prevalence of pain in survivors of childhood cancer, 2) methods of pain measurement, 3) associations between pain and biopsychosocial factors, and 4) recommendations for future research. Data sources for the study were articles published from January 1990 to August 2019 identified in the PubMed, PsycINFO, EMBASE, and Web of Science data bases. Eligible studies included: 1) original research, 2) quantitative assessments of pain, 3) articles published in English, 4) cancers diagnosed between birth and age 21 years, 5) survivors at 5 years from diagnosis and/or at 2 years after therapy completion, and 6) a sample size >20. Seventy‐three articles were included in the final review. Risk of bias was considered using the Cochrane risk of bias tool. The quality of evidence was evaluated according to Grading of Recommendations Assessment Development and Evaluation (GRADE) criteria. Common measures of pain were items created by the authors for the purpose of the study (45.2%) or health‐related quality‐of‐life/health status questionnaires (42.5%). Pain was present in from 4.3% to 75% of survivors across studies. Three studies investigated chronic pain according the definition in the International Classification of Diseases. The findings indicated that survivors of childhood cancer are at higher risk of experiencing pain compared with controls. Fatigue was consistently associated with pain, females reported more pain than males, and other factors related to pain will require stronger evidence. Theoretically grounded, multidimensional measurements of pain are absent from the literature. Survivors of childhood cancer are at higher risk of experiencing pain compared with controls. Future research is urgently needed to discern the true prevalence of pain among this vulnerable population and to develop interventions to enhance the quality of survivorship. [ABSTRACT FROM AUTHOR]

Published
2021
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25. Patient and family advisors.

Author

Forbes, Caitlin

Subjects
*PATIENTS, *CAREGIVERS, *ONCOLOGY, *PSYCHOSOCIAL factors, *EMPLOYEE training
Published
2018

26. Childhood Cancer Survivorship: Daily Challenges.

Author

Schulte F, Forbes C, Wurz A, Patton M, Russell KB, Pluijm S, and Krull KR

Subjects
Exercise, Fatigue, Health Behavior, Humans, Life Style, Pain Measurement, Risk Factors, Social Adjustment, Cancer Survivors, Quality of Life
Abstract

Survivors of childhood cancer are at risk of experiencing fatigue, pain, lower levels of physical activity, increased engagement in risky health behavior, and poor social adjustment, after finishing treatment. Risks are more pronounced for survivors of specific diagnoses or receiving specific treatment protocols. Interventions to address these outcomes are in their infancy. Future research should focus on exploring the antecedents and consequences of these outcomes. In the meantime, researchers and cancer centers should attempt to provide high-quality and accessible health information to survivors through various media outlets to encourage healthy behaviors., Competing Interests: Disclosure The authors have no conflicts of interest to declare., (Copyright © 2020 Elsevier Inc. All rights reserved.)

Published
2020
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