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3. Évaluation globale standardisée systématique des rhumatismes inflammatoires chroniques : intérêts et limites

Author

Fogel, Olivier, Caillet-Portillo, Damien, Najm, Aurélie, Baillet, Athan, Claudepierre, Pascal, Conort, Ornella, Dernis, Emmanuelle, Fayet, Françoise, Gossec, Laure, Goupille, Philippe, Hudry, Christophe, Letarouilly, Jean-Guillaume, Lukas, Cédric, Marotte, Hubert, Molto, Anna, Pouplin, Sophie, Senbel, Eric, Sordet, Christelle, Tournadre, Anne, Truchetet, Marie-Elise, Wendling, Daniel, Ruyssen-Witrand, Adeline, and Dougados, Maxime

Published
2025
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4. Standardized reporting for systematic global evaluation of axial spondyloarthritis: An evidence-based and consensus-driven initiative

Author

Ruyssen-Witrand, Adeline, Caillet-Portillo, Damien, Najm, Aurélie, Fogel, Olivier, Baillet, Athan, Claudepierre, Pascal, Conort, Orenella, Dernis, Emmanuelle, Fayet, Françoise, Gossec, Laure, Goupille, Philippe, Hudry, Christophe, Letarouilly, Jean-Guillaume, Lukas, Cédric, Marotte, Hubert, Molto, Anna, Pouplin, Sophie, Senbel, Eric, Sordet, Christelle, Tournadre, Anne, Truchetet, Marie-Elise, Wendling, Daniel, and Dougados, Maxime

Published
2024
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7. Critères d’évaluation à collecter pour optimiser la prise en charge de routine de la spondyloarthrite axiale : proposition fondée sur des preuves et une rencontre d’experts

Author

Baillet, Athan, Romand, Xavier, Pflimlin, Arnaud, Dalecky, Mickael, Claudepierre, Pascal, Flipo, René-Marc, Ruyssen-Witrand, Adeline, Gaudin, Philippe, Gossec, Laure, Molto, Anna, Lukas, Cédric, Pouplin, Sophie, Soubrier, Martin, Wendling, Daniel, Fayet, Françoise, Hudry, Christophe, Senbel, Eric, Schwartz, Marjorie, Hacquard-Bouder, Cécile, and Dougados, Maxime

Published
2021
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8. Data to be collected for an optimal management of axial spondyloarthritis in daily practice: Proposal from evidence-based and consensual approaches

Author

Baillet, Athan, Romand, Xavier, Pflimlin, Arnaud, Dalecky, Mickael, Claudepierrec, Pascal, Flipo, René-Marc, Ruyssen-Witrand, Adeline, Gaudin, Philippe, Gossec, Laure, Molto, Anna, Lukas, Cédric, Pouplin, Sophie, Soubrier, Martin, Wendling, Daniel, Fayet, Françoise, Hudry, Christophe, Senbel, Eric, Schwartz, Marjorie, Hacquard-Bouder, Cécile, and Dougados, Maxime

Published
2020
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10. Evaluation of the impact of a nurse-led program of systematic screening of comorbidities in patients with axial spondyloarthritis: The results of the COMEDSPA prospective, controlled, one year randomized trial

Author

Molto, Anna, Gossec, Laure, Poiraudeau, Serge, Claudepierre, Pascal, Soubrier, Martin, Fayet, Françoise, Wendling, Daniel, Gaudin, Philippe, Dernis, Emmanuelle, GUIS, Sandrine, Pouplin, Sophie, Ruyssen, Adeline, Chales, Gerard, Mariette, Xavier, Beauvais, Catherine, Combe, Bernard, Flipo, René-Marc, Richette, Pascal, Chary-Valckenaere, Isabelle, Saraux, Alain, Sibilia, Jean, Schaeverbeke, Thierry, and Dougados, Maxime

Published
2020
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11. Evaluation globale standardisée systématique des rhumatismes inflammatoires chroniques: intérêts et limites

Author

Fogel, Olivier, primary, Portillo, Damien Caillet, additional, Najm, Aurélie, additional, Baillet, Athan, additional, Claudepierre, Pascal, additional, Conort, Ornella, additional, Dernis, Emmanuelle, additional, Fayet, Françoise, additional, Gossec, Laure, additional, Goupille, Philippe, additional, Hudry, Christophe, additional, Letarouilly, Jean-Guillaume, additional, Lukas, Cédric, additional, Marotte, Hubert, additional, Molto, Anna, additional, Pouplin, Sophie, additional, Senbel, Eric, additional, Sordet, Christelle, additional, Tournadre, Anne, additional, Truchetet, Marie-Elise, additional, Wendling, Daniel, additional, Witrand, Adeline Ruyssen, additional, and Dougados, Maxime, additional

Published
2024
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14. Collecte et prise en charge de certaines comorbidités et facteurs de risque associés dans le cadre des rhumatismes inflammatoires chroniques dans la pratique quotidienne en France

Author

Gossec, Laure, Baillet, Athan, Dadoun, Sabrina, Daien, Claire, Berenbaum, Francis, Dernis, Emmanuelle, Fayet, Françoise, Hudry, Christophe, Mezieres, Maryse, Pouplin, Sophie, Richez, Christophe, Saraux, Alain, Savel, Carine, Senbel, Eric, Soubrier, Martin, Sparsa, Laëtitia, Wendling, Daniel, and Dougados, Maxime

Published
2017
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15. Collection and management of selected comorbidities and their risk factors in chronic inflammatory rheumatic diseases in daily practice in France

Author

Gossec, Laure, Baillet, Athan, Dadoun, Sabrina, Daien, Claire, Berenbaum, Francis, Dernis, Emmanuelle, Fayet, Françoise, Hudry, Christophe, Mezieres, Maryse, Pouplin, Sophie, Richez, Christophe, Saraux, Alain, Savel, Carine, Senbel, Eric, Soubrier, Martin, Sparsa, Laëtitia, Wendling, Daniel, and Dougados, Maxime

Published
2016
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17. Development and Validation of a Self-Administered Questionnaire Measuring Essential Knowledge in Patients With Axial Spondyloarthritis

Author

Beauvais, Catherine, primary, Pereira, Bruno, additional, Pham, Thao, additional, Sordet, Christelle, additional, Claudepierre, Pascal, additional, Fayet, Françoise, additional, Wendling, Daniel, additional, Costantino, Félicie, additional, Carton, Laurence, additional, Grange, Laurent, additional, Soubrier, Martin, additional, Legoupil, Nathalie, additional, Perdriger, Aleth, additional, Tavares, Isabel, additional, Dernis, Emmanuelle, additional, Gossec, Laure, additional, and Rodère, Malory, additional

Published
2022
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18. Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries

Author

Bennett, Sarah E, primary, Zangi, Heidi A, additional, Larsson, Ingrid, additional, Beauvais, Catherine, additional, Boström, Carina, additional, Domján, Andrea, additional, van Eijk-Hustings, Yvonne, additional, Van der Elst, Kristien, additional, Fayet, Françoise, additional, Ferreira, Ricardo J O, additional, Fusama, Mie, additional, Geneva-Popova, Mariela, additional, Herrero Manso, María del Carmen, additional, Hoeper, Kirsten, additional, Jones, Bethan, additional, Kukkurainen, Marja Leena, additional, Gladys Kwok, Suet Kei, additional, Minnock, Patricia, additional, Nava, Tiziana, additional, Primdahl, Jette, additional, Rawat, Roopa, additional, Sierakowska, Matylda, additional, Stoffer-Marx, Michaela, additional, van Tubergen, Astrid, additional, and Ndosi, Mwidimi, additional

Published
2022
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20. Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: A mixed-methods study with patients' perspectives

Author

Jones, Bethan, Bennett, Sarah, Larsson, Ingrid, Zangi, Heidi, Boström, Carina, Van der Elst, Kristien, Fayet, Françoise, Fusama, Mie, Herrero Manso, María del Carmen, Hoeper, Juliana Rachel, Kukkurainen, Marja Leena, Kwok, Suet Kei, Frãzao-Mateus, Elsa, Minnock, Patricia, Nava, Tiziana, Pavic Nikolic, Milena, Primdahl, Jette, Rawat, Roopa, Schoenfelder, Mareen, Sierakowska, Matylda, Voshaar, Marieke, Wammervold, Edgar, van Tubergen, Astrid, Ndosi, Mwidimi, Jones, Bethan, Bennett, Sarah, Larsson, Ingrid, Zangi, Heidi, Boström, Carina, Van der Elst, Kristien, Fayet, Françoise, Fusama, Mie, Herrero Manso, María del Carmen, Hoeper, Juliana Rachel, Kukkurainen, Marja Leena, Kwok, Suet Kei, Frãzao-Mateus, Elsa, Minnock, Patricia, Nava, Tiziana, Pavic Nikolic, Milena, Primdahl, Jette, Rawat, Roopa, Schoenfelder, Mareen, Sierakowska, Matylda, Voshaar, Marieke, Wammervold, Edgar, van Tubergen, Astrid, and Ndosi, Mwidimi

Abstract

Objectives: To explore patients' agreement and reasons for agreement or disagreement with the EULAR recommendations for patient education (PE) for people with inflammatory arthritis (IA). Methods: This mixed-method survey collected data using snowball sampling. The survey had been translated into 20 languages by local healthcare professionals, researchers and patient research partners. It explored the degree to which patients with IA agreed with each recommendation for PE (0=do not agree at all and 10=agree completely) and their rationale for their agreement level in free text questions. Descriptive statistics summarised participants' demographics and agreement levels. Qualitative content analysis was used to analyse the free text data. Sixteen subcategories were developed, describing the reasons for agreement or disagreement with the recommendations, which constituted the categories. Results: The sample comprised 2779 participants (79% female), with a mean (SD) age 55.1 (13.1) years and disease duration 17.1 (13.3) years. Participants strongly agreed with most recommendations (median 10 (IQR: 9-10) for most recommendations). Reasons for agreement with the recommendations included the benefit of using PE to facilitate collaborative care and shared decision making, the value of flexible and tailored PE, and the value of gaining support from other patients. Reasons for disagreement included lack of resources for PE, not wanting information to be tailored by healthcare professionals and a reluctance to use telephone-based PE. Conclusion: The EULAR recommendations for PE have been disseminated among patients with IA. Overall, agreement levels were very high, suggesting that they reflect patients' preferences for engaging in collaborative clinical care and using PE to facilitate and supplement their own understanding of IA. Reasons for not completely agreeing with the recommendations can inform implementation strategies and education of healthcare professionals.

Published
2022

21. Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis : a mixed-methods study with rheumatology professionals in 23 European and Asian countries

Author

Bennett, Sarah E., Zangi, Heidi A., Larsson, Ingrid, Beauvais, Catherine, Boström, Carina, Domján, Andrea, Van Eijk-Hustings, Yvonne, Van Der Elst, Kristien, Fayet, Françoise, Ferreira, Ricardo J.O., Fusama, Mie, Geneva-Popova, Mariela, Herrero Manso, María Del Carmen, Hoeper, Kirsten, Jones, Bethan, Kukkurainen, Marja Leena, Gladys Kwok, Suet Kei, Minnock, Patricia, Nava, Tiziana, Primdahl, Jette, Rawat, Roopa, Sierakowska, Matylda, Stoffer-Marx, Michaela, Van Tubergen, Astrid, Ndosi, Mwidimi, Bennett, Sarah E., Zangi, Heidi A., Larsson, Ingrid, Beauvais, Catherine, Boström, Carina, Domján, Andrea, Van Eijk-Hustings, Yvonne, Van Der Elst, Kristien, Fayet, Françoise, Ferreira, Ricardo J.O., Fusama, Mie, Geneva-Popova, Mariela, Herrero Manso, María Del Carmen, Hoeper, Kirsten, Jones, Bethan, Kukkurainen, Marja Leena, Gladys Kwok, Suet Kei, Minnock, Patricia, Nava, Tiziana, Primdahl, Jette, Rawat, Roopa, Sierakowska, Matylda, Stoffer-Marx, Michaela, Van Tubergen, Astrid, and Ndosi, Mwidimi

Abstract

Objectives: To disseminate and assess the level of acceptability and applicability of the European Alliance of Associations for Rheumatology (EULAR) recommendations for patient education among professionals in rheumatology across Europe and three Asian countries and identify potential barriers and facilitators to their application. Methods: A parallel convergent mixed-methods design with an inductive approach was used. A web-based survey, available in 20 different languages, was distributed to health professionals by non-probability sampling. The level of agreement and applicability of each recommendation was assessed by (0-10) rating scales. Barriers and facilitators to implementation were assessed using free-text responses. Quantitative data were analysed descriptively and qualitative data by content analysis and presented in 16 categories supported by quotes. Results: A total of 1159 completed the survey; 852 (73.5%) were women. Most of the professionals were nurses (n=487), rheumatologists (n=320), physiotherapists (n=158). For all recommendations, the level of agreement was high but applicability was lower. The four most common barriers to application were lack of time, lack of training in how to provide patient education, not having enough staff to perform this task and lack of evaluation tools. The most common facilitators were tailoring patient education to individual patients, using group education, linking patient education with diagnosis and treatment and inviting patients to provide feedback on patient education delivery. Conclusions: This project has disseminated the EULAR recommendations for patient education to health professionals across 23 countries. Potential barriers to their application were identified and some are amenable to change, namely training patient education providers and developing evaluation tools. © Author(s) (or their employer(s)) 2022. No commercial re-use. See rights and permissions. Published by BMJ.

Published
2022
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22. Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients’ perspectives

Author

Jones, Bethan, primary, Bennett, Sarah, additional, Larsson, Ingrid, additional, Zangi, Heidi, additional, Boström, Carina, additional, Van der Elst, Kristien, additional, Fayet, Françoise, additional, Fusama, Mie, additional, Herrero Manso, María del Carmen, additional, Hoeper, Juliana Rachel, additional, Kukkurainen, Marja Leena, additional, Kwok, Suet Kei, additional, Frãzao-Mateus, Elsa, additional, Minnock, Patricia, additional, Nava, Tiziana, additional, Pavic Nikolic, Milena, additional, Primdahl, Jette, additional, Rawat, Roopa, additional, Schoenfelder, Mareen, additional, Sierakowska, Matylda, additional, Voshaar, Marieke, additional, Wammervold, Edgar, additional, van Tubergen, Astrid, additional, and Ndosi, Mwidimi, additional

Published
2022
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23. Efficacy of a nurse-led patient education intervention in promoting safety skills of patients with inflammatory arthritis treated with biologics: a multicentre randomised clinical trial

Author

Beauvais, Catherine, primary, Fayet, Françoise, additional, Rousseau, Alexandra, additional, Sordet, Christelle, additional, Pouplin, Sophie, additional, Maugars, Yves, additional, Poilverd, Rose Marie, additional, Savel, Carine, additional, Ségard, Véronique, additional, Godon, Béatrice, additional, L’amour, Christian, additional, Perdriger, Aleth, additional, Brin, Fabienne, additional, Peyrard, Patricia, additional, Chalier, Fabienne, additional, Pallot-Prades, Béatrice, additional, Tuffet, Sophie, additional, Griffoul, Isabelle, additional, and Gossec, Laure, additional

Published
2022
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26. Development and Validation of a Self-Administered Questionnaire Measuring Essential Knowledge in Patients With Axial Spondyloarthritis.

Author

Beauvais, Catherine, Pereira, Bruno, Thao Pham, Sordet, Christelle, Claudepierre, Pascal, Fayet, Françoise, Wendling, Daniel, Costantino, Félicie, Carton, Laurence, Grange, Laurent, Soubrier, Martin, Legoupil, Nathalie, Perdriger, Aleth, Tavares, Isabel, Dernis, Emmanuelle, Gossec, Laure, and Rodère, Malory

Published
2023
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27. Compétences et besoins éducatifs rapportés par les infirmiers de rhumatologie : résultats d’une enquête nationale française

Author

Beauvais, Catherine, Gossec, Laure, Mulliez, Aurélien, Fayet, Françoise, Poilverd, Rose Marie, Pouplin, Sophie, Perrot, Serge, L’amour, Christian, Carton, Laurence, Aubert, Marie Pierre, Miconnet, Sylvie, Grange, Laurent, Flipon-Cousin, Elisabeth, Mézieres, Maryse, Dougados, Maxime, Jaccaz-Vallée, Nelly, and Savel, Carine

Published
2020
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30. Evaluation of the impact of a nurse-led program of patient self-assessment and self-management in axial spondyloarthritis: results of a prospective, multicentre, randomized, controlled trial (COMEDSPA)

Author

Molto, Anna, primary, Gossec, Laure, additional, Poiraudeau, Serge, additional, Claudepierre, Pascal, additional, Soubrier, Martin, additional, Fayet, Françoise, additional, Wendling, Daniel, additional, Gaudin, Philippe, additional, Dernis, Emmanuelle, additional, Guis, Sandrine, additional, Pouplin, Sophie, additional, Ruyssen-Witrand, Adeline, additional, Chales, Gerard, additional, Mariette, Xavier, additional, Beauvais, Catherine, additional, Combe, Bernard, additional, Flipo, René-Marc, additional, Richette, Pascal, additional, Chary-Valckenaere, Isabelle, additional, Saraux, Alain, additional, Sibilia, Jean, additional, Schaeverbeke, Thierry, additional, and Dougados, Maxime, additional

Published
2020
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32. Freins et motivations des patients atteints de polyarthrite rhumatoïde pour la vaccination antigrippale et antipneumococcique : étude qualitative. Commentaire de l’article : « Couverture vaccinale anti-pneumococcique et anti-grippale chez les patients traités par corticothérapie et/ou immunosuppresseurs pour une maladie auto-immune : étude transversale » d’Assala et al., Revue du Rhumatisme 2018;85:208–10.

Author

Fayet, Françoise, primary, Savel, Carine, additional, Rodere, Malory, additional, Soubrier, Martin, additional, and Mathieu, Sylvain, additional

Published
2020
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33. 2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis

Author

Bech, Bianca, primary, Primdahl, Jette, additional, van Tubergen, Astrid, additional, Voshaar, Marieke, additional, Zangi, Heidi A, additional, Barbosa, Lurdes, additional, Boström, Carina, additional, Boteva, Boryana, additional, Carubbi, Francesco, additional, Fayet, Françoise, additional, Ferreira, Ricardo J O, additional, Hoeper, Kirsten, additional, Kocher, Agnes, additional, Kukkurainen, Marja Leena, additional, Lion, Vivienne, additional, Minnock, Patricia, additional, Moretti, Antonella, additional, Ndosi, Mwidimi, additional, Pavic Nikolic, Milena, additional, Schirmer, Michael, additional, Smucrova, Hana, additional, de la Torre-Aboki, Jenny, additional, Waite-Jones, Jennifer, additional, and van Eijk-Hustings, Yvonne, additional

Published
2019
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34. Screening for and management of comorbidities after a nurse-led program: results of a 3-year longitudinal study in 769 established rheumatoid arthritis patients

Author

Gossec, Laure, primary, Soubrier, Martin, additional, Foissac, Frantz, additional, Molto, Anna, additional, Richette, Pascal, additional, Beauvais, Catherine, additional, Ruyssen-Witrand, Adeline, additional, Perdriger, Aleth, additional, Chary-Valckenaere, Isabelle, additional, Mouterde, Gael, additional, Dernis, Emanuelle, additional, Euller-Ziegler, Liana, additional, Flipo, René-Marc, additional, Gilson, Mélanie, additional, Guis, Sandrine, additional, Mariette, Xavier, additional, Pouplin, Sophie, additional, Marhadour, Thierry, additional, Schaeverbeke, Thierry, additional, Sordet, Christelle, additional, Fayet, Françoise, additional, and Dougados, Maxime, additional

Published
2019
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36. Is self-assessment by patients of disease activity acceptable over the long term in rheumatoid arthritis? A 3-year follow-up of 771 patients

Author

Gossec, Laure, primary, Fayet, Françoise, additional, Soubrier, Martin, additional, Foissac, Frantz, additional, Molto, Anna, additional, Richette, Pascal, additional, Beauvais, Catherine, additional, Ruyssen-Witrand, Adeline, additional, Perdriger, Aleth, additional, Chary-Valckenaere, Isabelle, additional, Mouterde, Gaël, additional, Dernis, Emmanuelle, additional, Euller-Ziegler, Liana, additional, Flipo, René-Marc, additional, Gilson, Mélanie, additional, Balandraud, Nathalie, additional, Mariette, Xavier, additional, Pouplin, Sophie, additional, Marhadour, Thierry, additional, Schaeverbeke, Thierry, additional, Sordet, Christelle, additional, and Dougados, Maxime, additional

Published
2019
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37. Obstacles and motivations to influenza and pneumococcal vaccination in patients with rheumatoid arthritis. A qualitative study. Comment on: “Pneumococcal and influenza vaccination rates in patients treated with corticosteroids and/or immunosuppressive therapies for systemic auto-immune diseases: A cross-sectional study” by Assala et al., Joint Bone Spine 2017;84:365–6

Author

Fayet, Françoise, primary, Savel, Carine, additional, Rodere, Malory, additional, Soubrier, Martin, additional, and Mathieu, Sylvain, additional

Published
2019
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38. Evaluation of the impact of a nurse-led program of patient self-assessment and self-management in axial spondyloarthritis: results of a prospective, multicentre, randomized, controlled trial (COMEDSPA).

Author

Molto, Anna, Gossec, Laure, Poiraudeau, Serge, Claudepierre, Pascal, Soubrier, Martin, Fayet, Françoise, Wendling, Daniel, Gaudin, Philippe, Dernis, Emmanuelle, Guis, Sandrine, Pouplin, Sophie, Ruyssen-Witrand, Adeline, Chales, Gerard, Mariette, Xavier, Beauvais, Catherine, Combe, Bernard, Flipo, René-Marc, Richette, Pascal, Chary-Valckenaere, Isabelle, and Saraux, Alain

Subjects
ANKYLOSING spondylitis, EXERCISE, LONGITUDINAL method, MEDICAL cooperation, HEALTH outcome assessment, PATIENT education, QUESTIONNAIRES, RESEARCH, STATISTICAL sampling, SELF-evaluation, SELF-management (Psychology), RANDOMIZED controlled trials, SEVERITY of illness index, PHYSICAL activity, EVALUATION of human services programs, DESCRIPTIVE statistics, NURSING interventions
Abstract

Objective To evaluate the impact of a nurse-led program of self-management and self-assessment of disease activity in axial spondyloarthritis. Methods Prospective, randomized, controlled, open, 12-month trial (NCT02374749). Participants were consecutive axial spondyloarthritis patients (according to the rheumatologist) and nurses having participated in a 1-day training meeting. The program included self-management: educational video and specific video of graduated, home-based exercises for patients; and self-assessment: video presenting the rationale of tight monitoring of disease activity with composite scores (Ankylosing Spondylitis Disease activity Score, ASDAS/Bath Ankyslosing Spondylitis Disease Activity Index, BASDAI). The nurse trained patients to collect, calculate and report (monthly) ASDAS/BASDAI. Treatment allocation was by random allocation to this program or a comorbidities assessment (not presented here and considered here as the control group). Results A total of 502 patients (250 and 252 in the active and control groups, respectively) were enrolled (age: 46.7 (12.2) years, male gender: 62.7%, disease duration: 13.7 (11.0) years). After the one-year follow-up period, the adherence to the self-assessment program was considered good (i.e. 79% reported scores >6 times). Despite a lack of statistical significance in the primary outcome (e.g. coping) there was a statistically significant difference in favor of this program for the following variables: change in BASDAI, number and duration of the home exercises in the active group, and physical activity (international physical activity score, IPAQ). Conclusion This study suggests a short-term benefit of a nurse-led program on self-management and self-assessment for disease activity in a young axial spondyloarthritis population in terms of disease activity, exercises and physical activity. [ABSTRACT FROM AUTHOR]

Published
2021
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41. 2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis.

Author

Bech, Bianca, Primdahl, Jette, van Tubergen, Astrid, Voshaar, Marieke, Zangi, Heidi A., Barbosa, Lurdes, Boström, Carina, Boteva, Boryana, Carubbi, Francesco, Fayet, Françoise, Ferreira, Ricardo J. O., Hoeper, Kirsten, Kocher, Agnes, Kukkurainen, Marja Leena, Lion, Vivienne, Minnock, Patricia, Moretti, Antonella, Ndosi, Mwidimi, Nikolic, Milena Pavic, and Schirmer, Michael

Subjects
OCCUPATIONAL roles, PSORIATIC arthritis, NURSING, HEALTH services accessibility, RHEUMATOLOGY, ANKYLOSING spondylitis, PATIENT satisfaction, SPONDYLOARTHROPATHIES, NURSES, RHEUMATOID arthritis, PATIENT education, CONTINUING education of nurses, DISEASE management, TELEMEDICINE
Abstract

To update the European League Against Rheumatism (EULAR) recommendations for the role of the nurse in the management of chronic inflammatory arthritis (CIA) using the most up to date evidence. The EULAR standardised operating procedures were followed. A task force of rheumatologists, health professionals and patients, representing 17 European countries updated the recommendations, based on a systematic literature review and expert consensus. Higher level of evidence and new insights into nursing care for patients with CIA were added to the recommendation. Level of agreement was obtained by email voting. The search identified 2609 records, of which 51 (41 papers, 10 abstracts), mostly on rheumatoid arthritis, were included. Based on consensus, the task force formulated three overarching principles and eight recommendations. One recommendation remained unchanged, six were reworded, two were merged and one was reformulated as an overarching principle. Two additional overarching principles were formulated. The overarching principles emphasise the nurse's role as part of a healthcare team, describe the importance of providing evidence-based care and endorse shared decision-making in the nursing consultation with the patient. The recommendations cover the contribution of rheumatology nursing in needs-based patient education, satisfaction with care, timely access to care, disease management, efficiency of care, psychosocial support and the promotion of self-management. The level of agreement among task force members was high (mean 9.7, range 9.6-10.0). The updated recommendations encompass three overarching principles and eight evidence-based and expert opinion-based recommendations for the role of the nurse in the management of CIA. [ABSTRACT FROM AUTHOR]

Published
2020
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44. Impact of a nurse-led programme on comorbidity management and impact of a patient self-assessment of disease activity on the management of rheumatoid arthritis: results of a prospective, multicentre, randomised, controlled trial (COMEDRA)

Author

Dougados, Maxime, primary, Soubrier, Martin, additional, Perrodeau, Elodie, additional, Gossec, Laure, additional, Fayet, Françoise, additional, Gilson, Mélanie, additional, Cerato, Marie-Hélène, additional, Pouplin, Sophie, additional, Flipo, René-Marc, additional, Chabrefy, Laurent, additional, Mouterde, Gael, additional, Euller-Ziegler, Liana, additional, Schaeverbeke, Thierry, additional, Fautrel, Bruno, additional, Saraux, Alain, additional, Chary-Valckenaere, Isabelle, additional, Chales, Gérard, additional, Dernis, Emmanuelle, additional, Richette, Pascal, additional, Mariette, Xavier, additional, Berenbaum, Francis, additional, Sibilia, Jean, additional, and Ravaud, Philippe, additional

Published
2014
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45. Impact of a nurse-led programme on comorbidity management and impact of a patient self-assessment of disease activity on the management of rheumatoid arthritis: results of a prospective, multicentre, randomised, controlled trial (COMEDRA).

Author

Dougados, Maxime, Soubrier, Martin, Perrodeau, Elodie, Gossec, Laure, Fayet, Françoise, Gilson, Mélanie, Cerato, Marie-Hélène, Pouplin, Sophie, Flipo, René-Marc, Chabrefy, Laurent, Mouterde, Gael, Euller-Ziegler, Liana, Schaeverbeke, Thierry, Fautrel, Bruno, Saraux, Alain, Chary-Valckenaere, Isabelle, Chales, Gérard, Dernis, Emmanuelle, Richette, Pascal, and Mariette, Xavier

Published
2015
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46. Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries

Author

Bennett, Sarah, Zangi, Heidi A, Larsson, Ingrid, Beauvais, Catherine, Boström, Carina, Domján, Andrea, Van Eijk-Hustings, Yvonne, Van Der Elst, Kristien, Fayet, Françoise, Ferreira, Ricardo J O, Fusama, Mie, Geneva-Popova, Mariela, Del Carmen, María, Manso, Herrero, Hoeper, Kirsten, Jones, Bethan, Kukkurainen, Marja Leena, Kwok, Suet Kei, Minnock, Patricia, Nava, Tiziana, Primdahl, Jette, Rawat, Roopa, Sierakowska, Matylda, Stoffer-Marx, Michaela, van Tubergen, Astrid, and Ndosi, Mwidimi

Subjects
Health, Patient education, Inflammatory arthritis, Recommendations, Dissemination, Implementation, Care Team, Health services research, Qualitative research, Arthritis, Health & Wellbeing, Centre for Health and Clinical Research
Abstract

Objectives: To disseminate and assess the level of acceptability and applicability of the European Alliance of Associations for Rheumatology (EULAR) recommendations for patient education among professionals in rheumatology across Europe and three Asian countries and identify potential barriers and facilitators to their application. Methods: A parallel convergent mixed-methods design with an inductive approach was used. A web-based survey, available in 20 different languages, was distributed to health professionals by non-probability sampling. The level of agreement and applicability of each recommendation was assessed by (0-10) rating scales. Barriers and facilitators to implementation were assessed using free-text responses. Quantitative data were analysed descriptively and qualitative data by content analysis and presented in 16 categories supported by quotes. Results: A total of 1159 completed the survey; 852 (73.5%) were women. Most of the professionals were nurses (n=487), rheumatologists (n=320), physiotherapists (n=158). For all recommendations, the level of agreement was high but applicability was lower. The four most common barriers to application were lack of time, lack of training in how to provide patient education, not having enough staff to perform this task and lack of evaluation tools. The most common facilitators were tailoring patient education to individual patients, using group education, linking patient education with diagnosis and treatment and inviting patients to provide feedback on patient education delivery. Conclusions: This project has disseminated the EULAR recommendations for patient education to health professionals across 23 countries. Potential barriers to their application were identified and some are amenable to change, namely training patient education providers and developing evaluation tools.

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