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3 results on '"Fatine Elaraki"'

1. Signs and symptoms of acromegaly at diagnosis: the physician’s and the patient’s perspectives in the ACRO-POLIS study

Author

Thierry Brue, Fatine Elaraki, Aude Houchard, Peggy Pierre Renoult, Brigitte Delemer, Anne Cailleux, Philippe Caron, Philippe Chanson, Gérald Raverot, Antoine Tabarin, Marseille medical genetics - Centre de génétique médicale de Marseille (MMG), Aix Marseille Université (AMU)-Institut National de la Santé et de la Recherche Médicale (INSERM), Service d'endocrinologie, diabète, maladies métaboliques [Hôpital de la Conception - APHM], and Aix Marseille Université (AMU)

Subjects
Pediatrics, medicine.medical_specialty, Demographics, Endocrinology, Diabetes and Metabolism, 030209 endocrinology & metabolism, Signs and symptoms, Disease, 03 medical and health sciences, Cubital tunnel syndrome, 0302 clinical medicine, Endocrinology, Diabetes mellitus, Diagnosis, Acromegaly, medicine, [SDV.GEN]Life Sciences [q-bio]/Genetics, business.industry, Enlarged hands, medicine.disease, Multiple correspondence analysis, 3. Good health, Sign-and-symptom association, 030220 oncology & carcinogenesis, Observational study, business
Abstract

International audience; PurposeAcromegaly is characterized by a broad range of manifestations. Early diagnosis is key to treatment success, but is often delayed as symptomatology overlaps with common disorders. We investigated sign-and-symptom associations, demographics, and clinical characteristics at acromegaly diagnosis.MethodsObservational, cross-sectional, multicenter non-interventional study conducted at 25 hospital departments in France that treat acromegaly (ClinicalTrials.gov: NCT02012127). Adults diagnosed with acromegaly

Published
2018
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2. Daily life, needs and expectations of patients with acromegaly in France: An on-line survey

Author

Fatine Elaraki, Frédérique Albarel, Brigitte Delemer, Marseille medical genetics - Centre de génétique médicale de Marseille (MMG), Institut National de la Santé et de la Recherche Médicale (INSERM)-Aix Marseille Université (AMU), Hôpital de la Conception [CHU - APHM] (LA CONCEPTION), Laboratoires Ipsen Pharma [Boulogne-Billancourt, France], Service d'Endocrinologie - Diabète - Nutrition [Reims], Université de Reims Champagne-Ardenne (URCA)-Hôpital Robert Debré-Centre Hospitalier Universitaire de Reims (CHU Reims), CCSD, Accord Elsevier, and Aix Marseille Université (AMU)-Institut National de la Santé et de la Recherche Médicale (INSERM)

Subjects
Gerontology, Adult, Male, Activities of daily living, Adolescent, Endocrinology, Diabetes and Metabolism, MEDLINE, 030209 endocrinology & metabolism, [SDV.GEN] Life Sciences [q-bio]/Genetics, 03 medical and health sciences, Young Adult, 0302 clinical medicine, Endocrinology, Quality of life (healthcare), Cost of Illness, Daily life, Surveys and Questionnaires, Acromegaly, Activities of Daily Living, medicine, Cost of illness, Humans, Young adult, Aged, Aged, 80 and over, [SDV.GEN]Life Sciences [q-bio]/Genetics, Health Services Needs and Demand, Internet, Motivation, e-Survey, business.industry, General Medicine, Expectations, Middle Aged, medicine.disease, 3. Good health, Impact, 030220 oncology & carcinogenesis, Quality of Life, Female, France, Line (text file), business, Needs
Abstract

International audience; Acromegaly can impair quality of life, but impact on patients' daily life, needs and expectations have been poorly explored. Objectives. - To better understand the impact of acromegaly on patients' daily life, and evaluate their needs and expectations. Patients and methods. - An on-line questionnaire survey of acromegaly patient and relative community members was conducted on the Carenity website. Results. - Twenty-five patients and 3 relatives, with a mean age of 48.9 years, responded. Diagnosis of acromegaly was recent (60% within 10 years). Signs at diagnosis were mainly clinical (fatigue, headache) and physical changes (acral enlargement). Reported complications comprised morphological changes (93%), bone and joint symptoms (75%) and metabolic disorders (75%). Pain and fatigue impacted the daily life of 61% and 54% patients, respectively. Acromegaly had strong impact on mood (79%), leisure (75%) and social life (71%). Patients mostly got information from specialized websites (71%), their endocrinologist (61%) and patient associations (54%). The information sought was patient testimony (82%), practical advice (64%), and information on clinical trials (61%) and treatments (50%). Patients wished to have patient-physician discussion groups (25%), and better knowledge of acromegaly on the part of those they were in contact with (25%). Conclusion. - Acromegaly has a major impact on patients' daily life and mood. Patients wished their disease to be better known, and advocated setting up discussion groups. This study should encourage acromegaly education programs to adapt the services and information that are needed by acromegalic patients. (C) 2018 Elsevier Masson SAS. All rights reserved.

Published
2018
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3. Correction to: Signs and symptoms of acromegaly at diagnosis: the physician’s and the patient’s perspectives in the ACRO-POLIS study

Author

Aude Houchard, Fatine Elaraki, Thierry Brue, Brigitte Delemer, Gérald Raverot, Philippe Caron, Philippe Chanson, Antoine Tabarin, Anne Cailleux, and Peggy Pierre Renoult

Subjects
Adult, Male, medicine.medical_specialty, Delayed Diagnosis, Patients, Endocrinology, Diabetes and Metabolism, Section (typography), 030209 endocrinology & metabolism, Signs and symptoms, Mistake, Cubital Tunnel Syndrome, 03 medical and health sciences, 0302 clinical medicine, Endocrinology, Sex Factors, Physicians, Diagnosis, Acromegaly, Medicine, Humans, Age of Onset, Aged, business.industry, Foot, General surgery, Correction, Middle Aged, medicine.disease, Hand, Carpal Tunnel Syndrome, Multiple correspondence analysis, Sign-and-symptom association, Cross-Sectional Studies, Early Diagnosis, Socioeconomic Factors, 030220 oncology & carcinogenesis, Child, Preschool, Hypertension, Original Article, Female, France, business, Author name
Abstract

Purpose Acromegaly is characterized by a broad range of manifestations. Early diagnosis is key to treatment success, but is often delayed as symptomatology overlaps with common disorders. We investigated sign-and-symptom associations, demographics, and clinical characteristics at acromegaly diagnosis. Methods Observational, cross-sectional, multicenter non-interventional study conducted at 25 hospital departments in France that treat acromegaly (ClinicalTrials.gov: NCT02012127). Adults diagnosed with acromegaly

Published
2018

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