23 results on '"Eychmüller, Steffen"'
Search Results
2. Single early palliative care intervention added to usual oncology care for patients with advanced cancer: A randomized controlled trial (SENS Trial).
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Eychmüller, Steffen, Zwahlen, Susanne, Fliedner, Monica C, Jüni, Peter, Aebersold, Daniel M, Aujesky, Drahomir, Fey, Martin F, Maessen, Maud, and Trelle, Sven
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TUMOR treatment , *PREVENTION of psychological stress , *RESEARCH , *MEDICAL cooperation , *TUMOR classification , *RANDOMIZED controlled trials , *COMPARATIVE studies , *QUALITY of life , *HEALTH care teams , *QUESTIONNAIRES , *PALLIATIVE treatment , *CANCER patient medical care , *EARLY medical intervention , *MEDICAL needs assessment - Abstract
Background: International oncology societies recommend early palliative care. Specific models to integrate early palliative care efficiently into clinical practice are debated. The authors designed a study to look at the quantitative and qualitative outcomes of an early palliative care intervention in oncological care to decrease stress and improve quality of life. Aims: To compare a single structured early palliative care intervention added to a usual oncology care in terms of distress and health-related quality of life at baseline compared to 6 months after enrollment. Design: This multicenter randomized controlled trial (NCT01983956) enrolled adult patients with advanced cancer. Participants were either randomly assigned to usual oncology care alone or usual care plus a structured early palliative care intervention. Setting/participants: One hundred fifty adult patients with a variety of advanced cancer diagnoses were randomized. Seventy-four participants were in the intervention and 76 participants in the control group. The primary outcome was the change in patient distress assessed by the National Comprehensive Cancer Network distress thermometer at 6 months. Health-related quality of life, the secondary outcome, was assessed by the Functional Assessment of Cancer Therapy–General Questionnaire. Results: The results showed no significant effect of the early palliative care intervention neither on patient distress nor on health-related quality of life. Conclusion: The addition of an early intervention to usual care for patients with advanced cancer did not improve distress or quality of life. Thus, patients may need more intensive early palliative care with continuous professional support to identify and address their palliative needs early. [ABSTRACT FROM AUTHOR]
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- 2021
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3. Das breite Spektrum der Palliative Care.
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Blum, David and Eychmüller, Steffen
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- 2021
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4. Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study.
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Yildiz, Berivan, van der Heide, Agnes, Bakan, Misa, Iversen, Grethe Skorpen, Haugen, Dagny Faksvåg, McGlinchey, Tamsin, Smeding, Ruthmarijke, Ellershaw, John, Fischer, Claudia, Simon, Judit, Vibora-Martin, Eva, Ruiz-Torreras, Inmaculada, Goossensen, Anne, Allan, Simon, Barnestein-Fonseca, Pilar, Boughey, Mark, Christen, Andri, Lüthi, Nora, Egloff, Martina, and Eychmüller, Steffen
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HEALTH services accessibility , *VOLUNTEER service , *PALLIATIVE treatment , *HUMAN services programs , *FOCUS groups , *RESEARCH funding , *INTERVIEWING , *HOSPITALS , *DESCRIPTIVE statistics , *CONCEPTUAL structures , *MATHEMATICAL models , *THEORY - Abstract
Background: End-of-life (EoL) care volunteers in hospitals are a novel approach to support patients and their close ones. The iLIVE Volunteer Study supported hospital volunteer coordinators from five European countries to design and implement an EoL care volunteer service on general wards in their hospitals. This study aimed to identify and explore barriers and facilitators to the implementation of EoL care volunteer services in the five hospitals. Methods: Volunteer coordinators (VCs) from the Netherlands (NL), Norway (NO), Slovenia (SI), Spain (ES) and United Kingdom (UK) participated in a focus group interview and subsequent in-depth one-to-one interviews. A theory-inspired framework based on the five domains of the Consolidated Framework for Implementation Research (CFIR) was used for data collection and analysis. Results from the focus group were depicted in radar charts per hospital. Results: Barriers across all hospitals were the COVID-19 pandemic delaying the implementation process, and the lack of recognition of the added value of EoL care volunteers by hospital staff. Site-specific barriers were struggles with promoting the service in a highly structured setting with many stakeholders (NL), negative views among nurses on hospital volunteering (NL, NO), a lack of support from healthcare professionals and the management (SI, ES), and uncertainty about their role in implementation among VCs (ES). Site-specific facilitators were training of volunteers (NO, SI, NL), involving volunteers in promoting the service (NO), and education and awareness for healthcare professionals about the role and boundaries of volunteers (UK). Conclusion: Establishing a comprehensive EoL care volunteer service for patients in non-specialist palliative care wards involves multiple considerations including training, creating awareness and ensuring management support. Implementation requires involvement of stakeholders in a way that enables medical EoL care and volunteering to co-exist. Further research is needed to explore how trust and equal partnerships between volunteers and professional staff can be built and sustained. Trial registration: NCT04678310. Registered 21/12/2020. [ABSTRACT FROM AUTHOR]
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- 2024
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5. Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study.
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Yildiz, Berivan, van der Heide, Agnes, Bakan, Misa, Iversen, Grethe Skorpen, Haugen, Dagny Faksvåg, McGlinchey, Tamsin, Smeding, Ruthmarijke, Ellershaw, John, Fischer, Claudia, Simon, Judit, Vibora-Martin, Eva, Ruiz-Torreras, Inmaculada, Goossensen, Anne, Allan, Simon, Barnestein-Fonseca, Pilar, Boughey, Mark, Christen, Andri, Lüthi, Nora, Egloff, Martina, and Eychmüller, Steffen
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HEALTH services accessibility , *PALLIATIVE treatment , *HUMAN services programs , *FOCUS groups , *RESEARCH funding , *HOSPITALS , *UNCERTAINTY , *DESCRIPTIVE statistics , *CONCEPTUAL structures , *MATHEMATICAL models , *THEORY , *SOCIAL support , *DATA analysis software - Abstract
Background: End-of-life (EoL) care volunteers in hospitals are a novel approach to support patients and their close ones. The iLIVE Volunteer Study supported hospital volunteer coordinators from five European countries to design and implement an EoL care volunteer service on general wards in their hospitals. This study aimed to identify and explore barriers and facilitators to the implementation of EoL care volunteer services in the five hospitals. Methods: Volunteer coordinators (VCs) from the Netherlands (NL), Norway (NO), Slovenia (SI), Spain (ES) and United Kingdom (UK) participated in a focus group interview and subsequent in-depth one-to-one interviews. A theory-inspired framework based on the five domains of the Consolidated Framework for Implementation Research (CFIR) was used for data collection and analysis. Results from the focus group were depicted in radar charts per hospital. Results: Barriers across all hospitals were the COVID-19 pandemic delaying the implementation process, and the lack of recognition of the added value of EoL care volunteers by hospital staff. Site-specific barriers were struggles with promoting the service in a highly structured setting with many stakeholders (NL), negative views among nurses on hospital volunteering (NL, NO), a lack of support from healthcare professionals and the management (SI, ES), and uncertainty about their role in implementation among VCs (ES). Site-specific facilitators were training of volunteers (NO, SI, NL), involving volunteers in promoting the service (NO), and education and awareness for healthcare professionals about the role and boundaries of volunteers (UK). Conclusion: Establishing a comprehensive EoL care volunteer service for patients in non-specialist palliative care wards involves multiple considerations including training, creating awareness and ensuring management support. Implementation requires involvement of stakeholders in a way that enables medical EoL care and volunteering to co-exist. Further research is needed to explore how trust and equal partnerships between volunteers and professional staff can be built and sustained. Trial registration: NCT04678310. Registered 21/12/2020. [ABSTRACT FROM AUTHOR]
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- 2024
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6. The 'Surprise question' in heart failure: a prospective cohort study.
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Gonzalez-Jaramillo, Valentina, Arenas Ochoa, Luisa Fernanda, Saldarriaga, Clara, Krikorian, Alicia, Vargas, John Jairo, Gonzalez-Jaramillo, Nathalia, Eychmüller, Steffen, and Maessen, Maud
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- 2024
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7. Compassionate communities: How to assess their benefit? A protocol of a collaborative study between different countries.
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González-Jaramillo, Valentina, Krikorian, Alicia, Tripodoro, Vilma, Jorge, Margarita, Zambrano, Sofia C., López, Francy, Vélez, Maria Clara, Noguera, Tatiana, Orellana, Sebastián, Montilla, Silvina, Christen-Cevallos Rosero, Andri, and Eychmüller, Steffen
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INTERNATIONAL relations , *COMMUNITIES , *HEALTH outcome assessment , *PUBLIC health , *COMPASSION , *GOVERNMENT programs , *INTERPROFESSIONAL relations , *PALLIATIVE treatment - Abstract
Background: Communities and local governments invest in compassionate communities (CCs) a great deal of time, money, effort, and work. However, it is not known whether the CCs are having the effect they are expected to have, so the value of continuing with these initiatives is unknown, and there is a need for a model for evaluating CCs to solve the question. Objectives: To identify a set of core outcomes or benefits that should be measured to assess the impact of the CCs. Design: Multiple-methods study involving three communities, each in a different country (Argentina, Colombia, and Switzerland). Methods and analysis: To identifying the set of core outcomes, which is the first step in developing the CC evaluation model, five phases will follow: online meetings, literature review, fieldwork, Delphi survey, and social transfer. We will involve members of the local communities of Bern, Buenos Aires, and Medellin at three different levels: (1) citizens (e.g. patients, caregivers, and family members), (2) organizations and institutions involved in the program implementation (e.g. health care organizations, churches, non-governmental organizations, and schools), and (3) political and governmental sectors. Ethics: The study will be conducted following existing international regulations and guidance such as the Declaration of Helsinki. The ethics committee of Pallium Latin America and the ethics committee of the canton of Bern considered our application exempt from the need for approval. Ethics approval in Bern and Buenos Aires is in the process of being obtained. The ethics committee of the Pontifical Bolivarian University approved this protocol. Discussion: We expect that this project will help bridge the gap in knowledge regarding the measurable impact of the CCs and enhance more CC development. [ABSTRACT FROM AUTHOR]
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- 2023
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8. Applications of Machine Learning in Palliative Care: A Systematic Review.
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Vu, Erwin, Steinmann, Nina, Schröder, Christina, Förster, Robert, Aebersold, Daniel M., Eychmüller, Steffen, Cihoric, Nikola, Hertler, Caroline, Windisch, Paul, and Zwahlen, Daniel R.
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DEEP learning , *DATA curation , *SYSTEMATIC reviews , *NATURAL language processing , *MACHINE learning , *ARTIFICIAL intelligence , *RESEARCH funding , *MEDLINE , *ARTIFICIAL neural networks , *PALLIATIVE treatment - Abstract
Simple Summary: To investigate the adoption of machine learning in palliative care research and clinical practice, we systematically searched for published research papers on the topic. We found several publications that used different kinds of machine learning in palliative care for different use cases. However, on average, there needs to be more rigorous testing of the models to ensure that they work well in different settings. Objective: To summarize the available literature on using machine learning (ML) for palliative care practice as well as research and to assess the adherence of the published studies to the most important ML best practices. Methods: The MEDLINE database was searched for the use of ML in palliative care practice or research, and the records were screened according to PRISMA guidelines. Results: In total, 22 publications using machine learning for mortality prediction (n = 15), data annotation (n = 5), predicting morbidity under palliative therapy (n = 1), and predicting response to palliative therapy (n = 1) were included. Publications used a variety of supervised or unsupervised models, but mostly tree-based classifiers and neural networks. Two publications had code uploaded to a public repository, and one publication uploaded the dataset. Conclusions: Machine learning in palliative care is mainly used to predict mortality. Similarly to other applications of ML, external test sets and prospective validations are the exception. [ABSTRACT FROM AUTHOR]
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- 2023
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9. An online international comparison of palliative care identification in primary care using the Surprise Question.
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White, Nicola, Oostendorp, Linda JM, Vickerstaff, Victoria, Gerlach, Christina, Engels, Yvonne, Maessen, Maud, Tomlinson, Christopher, Wens, Johan, Leysen, Bert, Biasco, Guido, Zambrano, Sofia, Eychmüller, Steffen, Avgerinou, Christina, Chattat, Rabih, Ottoboni, Giovanni, Veldhoven, Carel, and Stone, Patrick
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SURVIVAL , *STATISTICS , *LIFE expectancy , *CROSS-sectional method , *MULTIVARIATE analysis , *PHYSICIANS' attitudes , *REGRESSION analysis , *PRIMARY health care , *COMPARATIVE studies , *CASE studies , *PALLIATIVE treatment - Abstract
Background: The Surprise Question ('Would I be surprised if this patient died within 12 months?') identifies patients in the last year of life. It is unclear if 'surprised' means the same for each clinician, and whether their responses are internally consistent. Aim: To determine the consistency with which the Surprise Question is used. Design: A cross-sectional online study of participants located in Belgium, Germany, Italy, The Netherlands, Switzerland and UK. Participants completed 20 hypothetical patient summaries ('vignettes'). Primary outcome measure: continuous estimate of probability of death within 12 months (0% [certain survival]–100% [certain death]). A threshold (probability estimate above which Surprise Question responses were consistently 'no') and an inconsistency range (range of probability estimates where respondents vacillated between responses) were calculated. Univariable and multivariable linear regression explored differences in consistency. Trial registration: NCT03697213. Setting/participants: Registered General Practitioners (GPs). Of the 307 GPs who started the study, 250 completed 15 or more vignettes. Results: Participants had a consistency threshold of 49.8% (SD 22.7) and inconsistency range of 17% (SD 22.4). Italy had a significantly higher threshold than other countries (p = 0.002). There was also a difference in threshold levels depending on age of clinician, for every yearly increase, participants had a higher threshold. There was no difference in inconsistency between countries (p = 0.53). Conclusions: There is variation between clinicians regarding the use of the Surprise Question. Over half of GPs were not internally consistent in their responses to the Surprise Question. Future research with standardised terms and real patients is warranted. [ABSTRACT FROM AUTHOR]
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- 2022
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10. Prevalence and characteristics of patients with heart failure needing palliative care.
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Arenas Ochoa, Luisa Fernanda, González-Jaramillo, Valentina, Saldarriaga, Clara, Lemos, Mariantonia, Krikorian, Alicia, Vargas, John Jairo, Gómez-Batiste, Xavier, Gonzalez-Jaramillo, Nathalia, and Eychmüller, Steffen
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PAIN , *CROSS-sectional method , *DYSPNEA , *DISEASE prevalence , *QUALITY of life , *SYMPTOMS , *QUESTIONNAIRES , *DESCRIPTIVE statistics , *NEEDS assessment , *FATIGUE (Physiology) , *HEART failure , *PALLIATIVE treatment , *MEDICAL needs assessment , *PSYCHOLOGICAL distress , *PSYCHOLOGICAL stress , *DROWSINESS - Abstract
Background: Few hospitals and heart failure (HF) clinics offer concurrent palliative care (PC) together with life-prolonging therapies. To know the prevalence of patients in HF clinics needing PC and useful tools to recognize them are the first steps to extending PC in those settings. However, it is still unknown whether tools commonly used to identify patients with HF needing PC can correctly distinguish them. Two systematic reviews found that the NECesidades PALiativas (NECPAL) tool was one of the two most commonly used tools to asses PC needs in HF patients. Therefore, we assessed 1) the prevalence of PC needs in HF clinics according to the NECPAL tool, and 2) the characteristics of the patients identified as having PC; mainly, their quality of life (QoL), symptom burden, and psychosocial problems. Methods: This cross-sectional study was conducted at two HF clinics in Colombia. We assessed the prevalence of PC in the overall sample and in subgroups according to clinical and demographic variables. We assessed QoL, symptom burden, and psychosocial problems using the 12-Item Short-Form Health Survey (SF-12), the Kansas City Cardiomyopathy Questionnaire (KCCQ) and the Edmonton Symptom Assessment System (ESAS). We compared the results of these tools between patients identified as having PC needs (+NECPAL) and patients identified as not having PC needs (–NECPAL). Results: Among the 178 patients, 78 (44%) had PC needs. The prevalence of PC needs was twice as nigh in patients NYHA III/IV as in patients NYHA I/II and almost twice as high in patients older than 70 years as in patients younger than 70 years. Compared to –NECPAL patients, +NECPAL patients had worse QoL, more severe shortness of breath, tiredness, drowsiness, and pain, and more psychosocial problems. Conclusion: The prevalence of PC needs in outpatient HF clinics is high and is even higher in older patients and in patients at more advanced NYHA stages. Compared to patients identified as not having PC needs, patients identified as having PC needs have worse QoL, more severe symptoms, and greater psychosocial problems. Including a PC provider in the multidisciplinary team of HF clinics may help to assess and cover these needs. [ABSTRACT FROM AUTHOR]
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- 2021
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11. Telemedizin in der Palliative Care: Digitale Kommunikation in einem beziehungsbasierten Fachgebiet – ist das sinnvoll?
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Ebneter, Andreas Samuel, Fliedner, Monica, Trapp, Daniela, Ramseier, Friederike, Sauter, Thomas C., and Eychmüller, Steffen
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DIGITAL health , *TELEMEDICINE , *PALLIATIVE treatment - Abstract
Telemedicine in palliative care is established especially in countries with large geographical distances. Digital forms of communication (virtual consultations) are most frequently used and well-accepted by patients and caregivers. The main benefit lies in the reduction of the access barrier in the outpatient setting. Advantages are stress reduction for patients (travel, accessibility) and reduction in the care burden for relatives. Additional benefits compared to the physical visit for symptom-control, quality of life and costs are unclear. Risks are influenced by the lack of physical interaction and data security. To what extent telepalliative care makes sense in a high-density health system is difficult to predict. It is therefore important to use these new tools in a carefully adapted and scientifically verified way. [ABSTRACT FROM AUTHOR]
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- 2021
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12. Compassionate Cities: Stärkung der sozialen Ressourcen in den Gemeinden für ein gemeinsam getragenes Lebensende.
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Michel, Claudia, Felber, Sibylle J., Affolter, Barbara, Greusing, Marie-Hélène, and Eychmüller, Steffen
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ADVANCE directives (Medical care) , *CAREGIVERS , *PALLIATIVE treatment , *URBAN community development - Abstract
People at the end of life often wish to remain at home for as long as possible. To make this possible to a greater extent, not only health professionals who accompany those affected and their relatives are needed, but also educational programmes to strengthen health literacy at the end of life. Within the framework of the project "Compassionate City Lab of the Bernese People", experiences in dealing with the end of life were collected and published, and a course on advance care planning for elderly people was developed. The project is funded by Health Promotion Switzerland and supported by a partnership between Bernese institutions of higher education, specialised palliative care and primary care, the community, and volunteers in the city of Bern and the Bernese Oberland. [ABSTRACT FROM AUTHOR]
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- 2021
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13. Validation of the German version of the needs assessment tool: progressive disease-heart failure.
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Gonzalez-Jaramillo, Valentina, Guyer, Jelena, Luethi, Nora, Sobanski, Piotr, Zbinden, Rut, Rodriguez, Eveline, Hunziker, Lukas, Eychmüller, Steffen, and Maessen, Maud
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MEDICAL personnel , *NEEDS assessment , *MEDICAL personnel as patients , *HEART failure , *CAREGIVERS , *CRONBACH'S alpha - Abstract
Background: The Needs Assessment Tool: Progressive Disease-Heart Failure (NAT: PD-HF) is a tool created to assess the needs of people living with heart failure and their informal caregivers to assist delivering care in a more comprehensive way that addresses actual needs that are unmet, and to improve quality of life. In this study, we aimed to (1) Translate the tool into German and culturally adapt it. (2) Assess internal consistency, inter-rater reliability, and test-retest reliability of the German NAT: PD-HF. (3) Evaluate whether and how patients and health care personnel understand the tool and its utility. (4) Assess the tool's face validity, applicability, relevance, and acceptability among health care personnel.Methods: Single-center validation study. The tool was translated from English into German using a forward-backward translation. To assess internal consistency, we used Cronbach´s alpha. To assess inter-rater reliability and test-retest reliability, we used Cohen´s kappa, and to assess validity we used face validity.Results: The translated tool showed good internal consistency. Raters were in substantial agreement on a majority of the questions, and agreement was almost perfect for all the questions in the test-retest analysis. Face validity was rated high by health care personnel.Conclusion: The German NAT: PD-HF is a reliable, valid, and internally consistent tool that is well accepted by both patients and health care personnel. However, it is important to keep in mind that effective use of the tool requires training of health care personnel. [ABSTRACT FROM AUTHOR]- Published
- 2021
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14. Compassion training: Towards a better understanding of patients through self‐exposure.
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Felber, Sibylle Jeanine, Lerch, Seraina Petra, Bauer, Daniel, Liaudet, Florence, Eychmüller, Steffen, and Lörwald, Andrea
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MINDFULNESS , *SELF-perception , *MOTIVATIONAL interviewing , *MEDICAL students , *PHYSICIAN-patient relations , *SIMULATION methods in education , *COMMUNICATION , *MEDICAL education - Abstract
The article provides information on an elective blended course designed and piloted by an interdisciplinary team at the University of Bern with one day of classroom training to improve sixth-year medical students' compassion in patient-physician communication. Topics discussed include the learning goals of the pilot, preparatory reading made, and lessons learned from the course.
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- 2023
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15. Unmet device reprogramming needs at the end of life among patients with implantable cardioverter defibrillator: A systematic review and meta-analysis.
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Gonzalez-Jaramillo, Valentina, Sobanski, Piotr, Calvache, Jose A, Arenas-Ochoa, Luisa F, Franco, Oscar H, Hunziker, Lukas, Eychmüller, Steffen, and Maessen, Maud
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PREVENTION of psychological stress , *CARDIAC pacing , *CARDIOGENIC shock , *CINAHL database , *CONFIDENCE intervals , *HEART failure , *IMPLANTABLE cardioverter-defibrillators , *INFORMATION storage & retrieval systems , *MEDICAL databases , *MEDICAL information storage & retrieval systems , *PSYCHOLOGY information storage & retrieval systems , *MEDICAL needs assessment , *MEDICAL protocols , *MEDLINE , *META-analysis , *TERMINAL care , *TERMINALLY ill , *SYSTEMATIC reviews , *DECISION making in clinical medicine , *ADVANCE directives (Medical care) , *MULTIPLE regression analysis , *DESCRIPTIVE statistics - Abstract
Background: Use of implantable cardioverter defibrillators is increasingly common. As patients approach the end of life, it is appropriate to deactivate the shock function. Aim: To assess the prevalence of implantable cardioverter defibrillator reprogramming to deactivate the shock function at the end of life and the prevalence of advance directives among this population. Design: Following a previously established protocol available in PROSPERO, we performed a narrative synthesis of our findings and used the logit transformation method to perform our quantitative synthesis. Data sources: We searched seven bibliographic databases (Embase, Cochrane Central register of controlled Trials, Medline-Ovid, Web-of-Science, Scopus, PsychInfo, and CINAHL) and additional sources until April 2019. Results: Of the references we identified, 14 were included. We found a pooled prevalence of implantable cardioverter defibrillator reprogramming at the end of life of 28% (95% confidence interval, 22%–36%) with higher reprogramming rates after the recommendations for managing the device at the end of life were published. Among patients with advance directives, the pooled prevalence of advance directives that explicitly mentioned the device was 1% (95% confidence interval, 1%–3%). Conclusions: The prevalence of implantable cardioverter defibrillator reprogramming and advance directives that explicitly mentioned the device was very low. Study data suggested reprogramming decisions were made very late, after the patient experienced multiple shocks. Patient suffering could be ameliorated if physicians and other healthcare professionals adhere to clinical guidelines for the good management of the device at the end of life and include deactivating the shock function in the discussion that leads to the advance directive. [ABSTRACT FROM AUTHOR]
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- 2020
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16. Using the Term "Palliative Care": International Survey of How Palliative Care Researchers and Academics Perceive the Term "Palliative Care".
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Zambrano, Sofia C., Centeno, Carlos, Larkin, Philip J., and Eychmüller, Steffen
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AGE distribution , *ATTITUDE (Psychology) , *CONTENT analysis , *MEDICAL personnel , *NONPARAMETRIC statistics , *PALLIATIVE treatment , *PHYSICIANS , *QUESTIONNAIRES , *TERMS & phrases , *CROSS-sectional method , *COLLEGE teacher attitudes , *DESCRIPTIVE statistics - Abstract
Background: The term "palliative care" (PC) has often been found to have a negative connotation leading some to suggest rebranding and some services to change their name. Perceptions of the PC community about the term remain largely unexplored. Objective: To explore how PC researchers/academics perceive the term is the objective of this study. Design: This is a cross-sectional survey of attendees to the 10th World Research Congress of the EAPC. The questionnaire covered areas of academic activity, including the use of the term. We analyzed data through descriptive and nonparametric statistics and open responses through content analysis. Participants: Academics and researchers in PC were the participants in this study. Results: Of 318 respondents, the majority were women (65%), physicians (48%), and had a postgraduate degree (90%). For 40%, the term hindered the positioning of PC, 28% worried about using the term, and 55% did not discuss these difficulties. We found significant differences between responses and several demographics (e.g., younger age and higher likelihood of worrying about the term). Through open responses, we identified that the term is widely in use, and that its limitations are seen as a cultural by-product, and not as something that a name change would solve. Conclusions: Senior PC academics, researchers, and clinicians have an onus to ensure that colleagues with limited PC experience have the opportunity to discuss and explore the impact of the term on the practice of research. Regarding the term itself, the community's views are conclusive: although using the term will remain a difficult task, the field's identity is in the name. [ABSTRACT FROM AUTHOR]
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- 2020
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17. An early palliative care intervention can be confronting but reassuring: A qualitative study on the experiences of patients with advanced cancer.
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Fliedner, Monica, Zambrano, Sofia, Schols, Jos MGA, Bakitas, Marie, Lohrmann, Christa, Halfens, Ruud JG, and Eychmüller, Steffen
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TUMOR diagnosis , *TUMOR treatment , *CANCER patient psychology , *COGNITION , *CONTENT analysis , *CONVERSATION , *DECISION making , *EMOTIONS , *INTERVIEWING , *RESEARCH methodology , *PATIENT-family relations , *HEALTH outcome assessment , *PALLIATIVE treatment , *SOCIAL networks , *PSYCHOLOGICAL stress , *TUMOR classification , *ADVANCE directives (Medical care) , *QUALITATIVE research , *SOCIAL support , *EARLY medical intervention - Abstract
Background: Intervention trials confirm that patients with advanced cancer receiving early palliative care experience a better quality of life and show improved knowledge about and use of palliative care services. To involve patients in future health-care decisions, health professionals should understand patients' perspectives. However, little is known about how patients' experience such interventions. Aim: To explore advanced cancer patients' experiences with a structured early palliative care intervention, its acceptability and impact on the patients' life including influencing factors. Design: Qualitative content analysis of in-depth, semi-structured interviews. Setting/participants: Patients with various advanced cancer diagnoses were enrolled in a multicenter randomized controlled trial (NCT01983956), which investigated the impact of "Symptoms, End-of-life decisions, Network, Support," a structured early palliative care intervention, on distress. Of these, 20 patients who underwent the intervention participated in this study. Results: Participants received the intervention well and gained a better understanding of their personal situation. Patients reported that the intervention can feel "confronting" but with the right timing it can be confirming and facilitate family conversations. Patients' personal background and the intervention timing within their personal disease trajectory influenced their emotional and cognitive experiences; it also impacted their understanding of palliative care and triggered actions toward future care planning. Conclusion: Early palliative care interventions like "Symptoms, End-of-life decisions, Network, Support" may provoke emotions and feel "confrontational" often because this is the first time when issues about one's end of life are openly discussed; yet, advanced cancer patients found it beneficial and felt it should be incorporated into routine care. [ABSTRACT FROM AUTHOR]
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- 2019
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18. O.5.4 - Identifying the essentials of communicating about imminent death from key stakeholders' perspectives: Presenter(s): Sibylle J. Felber, University Centre for Palliative Care, Inselspital, University Hospital Bern, Switzerland.
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Guffi, Tommaso, Brem, Beate G., Schmitz, Felix M., Schnabel, Kai P., Schär, Sissel Guttormsen, Eychmüller, Steffen, and Zambrano, Sofia C.
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PALLIATIVE treatment , *UNIVERSITY hospitals , *MEDICAL personnel , *MEDICAL students , *NURSING students - Abstract
Caring for dying patients is an integral aspect of care, however medical and nursing students lack training and exposure to conversations with dying patients and their families. Thus, many health professionals lack the skills to communicate about imminent death causing a long-lasting impact to all involved. As a basis to develop an educational module, this study aimed at identifying aspects that are essential to conversations about imminent death from the perspective of key stakeholders. Five focus groups were conducted with medical specialists, nurses, medical students, patient representatives, and bereaved relatives (n=30). Based on a semi-structured guide, relevant verbal and nonverbal aspects of conversations about imminent death, associated emotions, and appropriate frameworks for communication were elicited. All conversations were recorded and thematically analyzed. Based on participants' experiences four main themes were identified as essential to conversations about imminent death: (1) embracing care within medical expertise, (2) preparing the conversation while remaining open to the unexpected, (3) recognizing and reflecting on own emotions and reactions, and (4) establishing a meaningful connection with others. The Findings: indicate that communicating about imminent death with dying patients and their family members is a complex and challenging task for health professionals at a professional as well as personal level. Hence, comprehensive training is needed in order to impart clinical and interpersonal skills that support health professionals to recognize when and how to engage in these conversations. Furthermore, self-reflection processes and self-care practices are to be taught and encouraged to promote positive coping strategies in the long term. Guidance and supervision are also essential to support debriefing practices in order to revisit confronting experiences, as well as to consolidate and optimize what has been learned. [ABSTRACT FROM AUTHOR]
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- 2023
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19. Endstation Notfallstation: Perzeption und Rezeption des Begriffs «palliativer Patient» sowie Ansätze zur Verbesserung der interdisziplinären Zusammenarbeit - ein Survey unter notfallmedizinischem Personal auf einer Schweizer Notfallstation
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Klenk, Laurence, lucolano, Nicoletta M., Braun, Christian Tasso, Exadaktylos, Aristomenis K., and Eychmüller, Steffen
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Background: As the demand for palliative care (PC) in emergency wards continues to increase, emergency medicine is increasingly focusing on the care of extremely ill patients with incurable, chronic and/or advanced diseases. There is no consistent definition of the profile of PC or understanding of what PC involves. The mistake is often made of confusing PC with end-of-life or terminal care. The present study was intended to assess the situation at the Department of Emergency Medicine, Inselspital, Bern University Hospital (UNZ), which cares for about 32 400 patients annually. The plan was to find out how much staff members knew about PC and to survey their personal attitudes. Methods: The employees of the UNZ were surveyed with an online questionnaire by a special institution outside the hospital. This is based on an instrument [1] developed in a comparative study in an emergency ward in the USA and used for physicians. Results: 60 of 154 staff members (physicians and nurses) completed the questionnaire, corresponding to a response rate of 39%. The definition of palliative care (n=60) was very mixed and could be classified into 6 areas. In response to questions about specific services, the staff members mentioned that their access to existing patient data should be facilitated. They also expressed the wish for a 24 h palliative consultation service and thought that, during normal working days, more time should be allotted to discussing issues related to palliative care. Conclusions: It has been confirmed that the definition of palliative care is not consistent. Within the UNZ, there is no clear procedure, but lack of time for detailed discussions with patients needing palliative care. Patient wishes or living wills with the DNR/DNI procedure do not contradict the personal ethics of most staff members. UNZ staff members would welcome the 24 h availability of a specialized PC team, as well as the development of guidelines and increased training in PC. [ABSTRACT FROM AUTHOR]
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- 2015
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20. International palliative care experts' view on phenomena indicating the last hours and days of life.
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Domeisen Benedetti, Franzisca, Ostgathe, Christoph, Clark, Jean, Costantini, Massimo, Daud, Maria, Grossenbacher-Gschwend, Barbara, Latten, Richard, Lindqvist, Olav, Peternelj, Andreja, Schuler, Stefanie, Tal, Kali, Heide, Agnes, and Eychmüller, Steffen
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PALLIATIVE treatment , *DELPHI method , *HUMAN life cycle , *MEDICAL personnel , *VOLUNTEERS - Abstract
Background: Providing the highest quality care for dying patients should be a core clinical proficiency and an integral part of comprehensive management, as fundamental as diagnosis and treatment. The aim of this study was to provide expert consensus on phenomena for identification and prediction of the last hours or days of a patient's life. This study is part of the OPCARE9 project, funded by the European Commission's Seventh Framework Programme. Method: The phenomena associated with approaching death were generated using Delphi technique. The Delphi process was set up in three cycles to collate a set of useful and relevant phenomena that identify and predict the last hours and days of life. Each cycle included: (1) development of the questionnaire, (2) distribution of the Delphi questionnaire and (3) review and synthesis of findings. Results: The first Delphi cycle of 252 participants (health care professionals, volunteers, public) generated 194 different phenomena, perceptions and observations. In the second cycle, these phenomena were checked for their specific ability to diagnose the last hours/days of life. Fifty-eight phenomena achieved more than 80 % expert consensus and were grouped into nine categories. In the third cycle, these 58 phenomena were ranked by a group of palliative care experts (78 professionals, including physicians, nurses, psycho-social-spiritual support; response rate 72 %, see Table 1) in terms of clinical relevance to the prediction that a person will die within the next few hours/days. Twenty-one phenomena were determined to have 'high relevance' by more than 50 % of the experts. Based on these findings, the changes in the following categories (each consisting of up to three phenomena) were considered highly relevant to clinicians in identifying and predicting a patient's last hours/days of life: 'breathing', 'general deterioration', 'consciousness/cognition', 'skin', 'intake of fluid, food, others', 'emotional state' and 'non-observations/expressed opinions/other'. Conclusion: Experts from different professional backgrounds identified a set of categories describing a structure within which clinical phenomena can be clinically assessed, in order to more accurately predict whether someone will die within the next days or hours. However, these phenomena need further specification for clinical use. [ABSTRACT FROM AUTHOR]
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- 2013
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21. Correction to: An online international comparison of thresholds for triggering a negative response to the "Surprise Question": a study protocol.
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White, Nicola, Oostendorp, Linda, Vickerstaff, Victoria, Gerlach, Christina, Engels, Yvonne, Maessen, Maud, Tomlinson, Christopher, Wens, Johan, Leysen, Bert, Biasco, Guido, Zambrano, Sofia, Eychmüller, Steffen, Avgerinou, Christina, Chattat, Rabih, Ottoboni, Giovanni, Veldhoven, Carel, and Stone, Patrick
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RESEARCH protocols , *PALLIATIVE treatment - Abstract
Following publication of the original article [1], an error in reference 18 was reported. [ABSTRACT FROM AUTHOR]
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- 2020
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22. Which Cost Components Influence the Cost of Palliative Care in the Last Hospitalization? A Retrospective Analysis of Palliative Care Versus Usual Care at a Swiss University Hospital.
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Hagemann, Monika, Zambrano, Sofia C., Bütikofer, Lukas, Bergmann, Antje, Voigt, Karen, and Eychmüller, Steffen
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MEDICAL care costs , *PALLIATIVE treatment , *UNIVERSITY hospitals , *HOSPITAL costs , *RETROSPECTIVE studies - Abstract
Context: Although the number of studies on the economic impact of palliative care (PC) is growing, the great majority report costs from North America.Objectives: We aimed to provide a comprehensive overview of PC hospital cost components from the perspective of a European mixed funded health care system by identifying cost drivers of PC and quantifying their effect on hospital costs compared to usual care (UC).Methods: We performed a retrospective, observational analysis examining cost data from the last hospitalization of patients who died at a large academic hospital in Switzerland comparing patients receiving PC vs. UC.Results: Total hospital costs were similar in PC and UC with a mean difference of CHF -2777 [95% CI -12,713 to 8506, P = 0.60]. Average costs per day decreased by CHF -3224 [95% CI -3811 to -2631, P < 0.001] for PC patients with significant reduction of costs for diagnostic intervention and medication. Higher cost components for PC patients were catering, room, nursing, social counseling, and nonmedical therapists. In sensitivity analyses, when we restricted PC exposure to three days from admission, total costs and average costs per day were significantly lower for PC.Conclusion: Studies measuring the impact of PC on hospital costs should analyze various cost components beyond total costs to understand wanted and potentially unwanted cost-reducing effects. An international definition of a set of cost components, specific for cost-impact PC studies, may help avoid superficial and potentially dangerous cost discussions. [ABSTRACT FROM AUTHOR]- Published
- 2020
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23. An online international comparison of thresholds for triggering a negative response to the "Surprise Question": a study protocol.
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White, Nicola, Oostendorp, Linda, Vickerstaff, Victoria, Gerlach, Christina, Engels, Yvonne, Maessen, Maud, Tomlinson, Christopher, Wens, Johan, Leysen, Bert, Biasco, Guido, Zambrano, Sofia, Eychmüller, Steffen, Avgerinou, Christina, Chattat, Rabih, Ottoboni, Giovanni, Veldhoven, Carel, and Stone, Patrick
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CAUSES of death , *INTERNET , *CASE studies , *PALLIATIVE treatment , *GENERAL practitioners , *POPULATION geography , *PROBABILITY theory , *REGRESSION analysis , *SURVIVAL , *DECISION making in clinical medicine , *CERTIFICATION , *JOB performance , *PSYCHOSOCIAL factors , *WORK experience (Employment) - Abstract
Background: The Surprise Question (SQ) "would I be surprised if this patient were to die in the next 12 months?" has been suggested to help clinicians, and especially General Practitioners (GPs), identify people who might benefit from palliative care. The prognostic accuracy of this approach is unclear and little is known about how GPs use this tool in practice. Are GPs consistent, individually and as a group? Are there international differences in the use of the tool? Does including the alternative Surprise Question ("Would I be surprised if the patient were still alive after 12 months?") alter the response? What is the impact on the treatment plan in response to the SQ? This study aims to address these questions. Methods: An online study will be completed by 600 (100 per country) registered GPs. They will be asked to review 20 hypothetical patient vignettes. For each vignette they will be asked to provide a response to the following four questions: (1) the SQ [Yes/No]; (2) the alternative SQ [Yes/No]; (3) the percentage probability of dying [0% no chance – 100% certain death]; and (4) the proposed treatment plan [multiple choice]. A "surprise threshold" for each participant will be calculated by comparing the responses to the SQ with the probability estimates of death. We will use linear regression to explore any differences in thresholds between countries and other clinician-related factors, such as years of experience. We will describe the actions taken by the clinicians and explore the differences between groups. We will also investigate the relationship between the alternative SQ and the other responses. Participants will receive a certificate of completion and the option to receive feedback on their performance. Discussion: This study explores the extent to which the SQ is consistently used at an individual, group, and national level. The findings of this study will help to understand the clinical value of using the SQ in routine practice. Trial registration: Clinicaltrials.gov NCT03697213 (05/10/2018). Prospectively registered. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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