95 results on '"Eychmüller, S"'
Search Results
2. An online international comparison of palliative care identification in primary care using the Surprise Question
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White, N., Oostendorp, L.J., Vickerstaff, V., Gerlach, C., Engels, Y., Maessen, M., Tomlinson, C., Wens, J., Leysen, B., Biasco, G., Zambrano, S., Eychmüller, S., Avgerinou, C., Chattat, R., Ottoboni, G., Veldhoven, C., Stone, P., White, N., Oostendorp, L.J., Vickerstaff, V., Gerlach, C., Engels, Y., Maessen, M., Tomlinson, C., Wens, J., Leysen, B., Biasco, G., Zambrano, S., Eychmüller, S., Avgerinou, C., Chattat, R., Ottoboni, G., Veldhoven, C., and Stone, P.
- Abstract
Item does not contain fulltext, BACKGROUND: The Surprise Question ('Would I be surprised if this patient died within 12 months?') identifies patients in the last year of life. It is unclear if 'surprised' means the same for each clinician, and whether their responses are internally consistent. AIM: To determine the consistency with which the Surprise Question is used. DESIGN: A cross-sectional online study of participants located in Belgium, Germany, Italy, The Netherlands, Switzerland and UK. Participants completed 20 hypothetical patient summaries ('vignettes'). Primary outcome measure: continuous estimate of probability of death within 12 months (0% [certain survival]-100% [certain death]). A threshold (probability estimate above which Surprise Question responses were consistently 'no') and an inconsistency range (range of probability estimates where respondents vacillated between responses) were calculated. Univariable and multivariable linear regression explored differences in consistency. Trial registration: NCT03697213. SETTING/PARTICIPANTS: Registered General Practitioners (GPs). Of the 307 GPs who started the study, 250 completed 15 or more vignettes. RESULTS: Participants had a consistency threshold of 49.8% (SD 22.7) and inconsistency range of 17% (SD 22.4). Italy had a significantly higher threshold than other countries (p = 0.002). There was also a difference in threshold levels depending on age of clinician, for every yearly increase, participants had a higher threshold. There was no difference in inconsistency between countries (p = 0.53). CONCLUSIONS: There is variation between clinicians regarding the use of the Surprise Question. Over half of GPs were not internally consistent in their responses to the Surprise Question. Future research with standardised terms and real patients is warranted.
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- 2022
3. Über das Sterben sprechen: Zur Wirksamkeit eines Blended-Learning-Angebots für den deutschsprachigen Raum
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Schmitz, FM, Felber, SJ, Buzzi, AL, Schnabel, KP, Eychmüller, S, Brem, B, Sofia, Z, Guttormsen, S, Schmitz, FM, Felber, SJ, Buzzi, AL, Schnabel, KP, Eychmüller, S, Brem, B, Sofia, Z, and Guttormsen, S
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- 2022
4. Live well, die well - an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study
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Yildiz, B, Allan, S, Bakan, M, Barnestein-Fonseca, P, Berger, M, Boughey, M, Christen, A, De Simone, GG, Egloff, M, Ellershaw, J, Elsten, EECM, Eychmüller, S, Fischer, C, Fürst, CJ, Geijteman, ECT, Goldraij, G, Goossensen, A, Halfdanardottir, SI, Haugen, DF, Hedman, C, Hoppe, T, Hughes, R, Iversen, GS, Joshi, M, Kodba-Ceh, H, Korfage, IJ, Lunder, U, Lüthi, N, Martín-Roselló, ML, Mason, S, Mcglinchey, T, Montilla, S, Rasmussen, BH, Ruiz-Torreras, I, Schelin, MEC, Sigurdardottir, KR, Sigurdardottir, V, Simon, J, Smeding, R, Solvåg, K, Strupp, J, Tripodoro, V, Van Der Kuy, HM, Van Der Rijt, CCD, Van Zuylen, L, Veloso, VI, Vibora-Martin, E, Voltz, R, Zambrano, SC, Van Der Heide, A, Yildiz, B, Allan, S, Bakan, M, Barnestein-Fonseca, P, Berger, M, Boughey, M, Christen, A, De Simone, GG, Egloff, M, Ellershaw, J, Elsten, EECM, Eychmüller, S, Fischer, C, Fürst, CJ, Geijteman, ECT, Goldraij, G, Goossensen, A, Halfdanardottir, SI, Haugen, DF, Hedman, C, Hoppe, T, Hughes, R, Iversen, GS, Joshi, M, Kodba-Ceh, H, Korfage, IJ, Lunder, U, Lüthi, N, Martín-Roselló, ML, Mason, S, Mcglinchey, T, Montilla, S, Rasmussen, BH, Ruiz-Torreras, I, Schelin, MEC, Sigurdardottir, KR, Sigurdardottir, V, Simon, J, Smeding, R, Solvåg, K, Strupp, J, Tripodoro, V, Van Der Kuy, HM, Van Der Rijt, CCD, Van Zuylen, L, Veloso, VI, Vibora-Martin, E, Voltz, R, Zambrano, SC, and Van Der Heide, A
- Abstract
Introduction Adequately addressing the needs of patients at the end of life and their relatives is pivotal in preventing unnecessary suffering and optimising their quality of life. The purpose of the iLIVE study is to contribute to high-quality personalised care at the end of life in different countries and cultures, by investigating the experiences, concerns, preferences and use of care of terminally ill patients and their families. Methods and analysis The iLIVE study is an international cohort study in which patients with an estimated life expectancy of 6 months or less are followed up until they die. In total, 2200 patients will be included in 11 countries, that is, 200 per country. In addition, one relative per patient is invited to participate. All participants will be asked to fill in a questionnaire, at baseline and after 4 weeks. If a patient dies within 6 months of follow-up, the relative will be asked to fill in a post-bereavement questionnaire. Healthcare use in the last week of life will be evaluated as well; healthcare staff who attended the patient will be asked to fill in a brief questionnaire to evaluate the care that was provided. Qualitative interviews will be conducted with patients, relatives and healthcare professionals in all countries to gain more in-depth insights. Ethics and dissemination The cohort study has been approved by ethics committees and the institutional review boards (IRBs) of participating institutes in all countries. Results will be disseminated through the project website, publications in scientific journals and at conferences. Within the project, there will be a working group focusing on enhancing the engagement of the community at large with the reality of death and dying. Trial registration number NCT04271085.
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- 2022
5. Über’s Sterben sprechen: Das Wesentliche der Kommunikation über den nahenden Tod aus unterschiedlichen Perspektiven
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Felber, SJ, Guffi, T, Brem, B, Schmitz, FM, Schnabel, K, Guttormsen Schär, S, Eychmüller, S, and Zambrano, SC
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ddc: 610 ,Medicine and health - Abstract
Fragestellung: Obwohl die Betreuung von sterbenden Patientinnen und Patienten und ihren Angehörigen zum Alltag von Gesundheitsfachpersonen gehört, ist entsprechendes Training in Bezug auf die Kommunikation über den bevorstehenden Tod in der Ausbildung von medizinischen Fachkräften [zum vollständigen Text gelangen Sie über die oben angegebene URL]
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- 2021
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6. Development of an international Core Outcome Set (COS) for best care for the dying person : study protocol
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Zambrano, SC, Haugen, DF, Tripodoro, VA, Ellershaw, J, Fürst, CJ, Heide, Agnes, Voltz, R, Mason, S, Daud, ML, De Simone, G, Kremeike, K, Halfdanardottir, SI, Sigurdardottir, V, Johnson, J, Allan, S, Hafeez, H, Simões, C, Sigurdardottir, KR, Rasmussen, BH, Williamson, P, Eychmüller, S, Geijteman, E.C.T. (Eric), van Zuylen, C (Lia), van der Rijt, C.C.D. (Karin), Korfage, I.J. (Ida), van der Kuy, P.H.M. (Hugo), Yildiz, B. (Birivan), Elsten, E.E.C.M. (Eline), Internal medicine, Public Health, Medical Oncology, and Pharmacy
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end of life ,medicine.medical_specialty ,umirajoči ,Palliative care ,Outcome research ,Delphi Technique ,lcsh:Special situations and conditions ,Delphi method ,paliativne nega ,610 Medicine & health ,Outcomes ,Last days of life ,Proxy (climate) ,palliative medicine ,Study Protocol ,Clinical Protocols ,Nursing ,Delphi technique ,Outcome Assessment, Health Care ,Health care ,Core outcomes set ,medicine ,Humans ,dying persons ,Qualitative Research ,palliative care ,business.industry ,paliativna medicina ,lcsh:RC952-1245 ,General Medicine ,udc:616 ,zadnji dnevi življenja ,Delphi study ,Delfska študija ,last days of life ,Treatment Outcome ,Systematic review ,Outcomes research ,Meta-analysis ,raziskava Outcomes ,End of life ,business ,Psychology ,Systematic Reviews as Topic ,Qualitative research - Abstract
Background In contrast to typical measures employed to assess outcomes in healthcare such as mortality or recovery rates, it is difficult to define which specific outcomes of care are the most important in caring for dying individuals. Despite a variety of tools employed to assess different dimensions of palliative care, there is no consensus on a set of core outcomes to be measured in the last days of life. In order to optimise decision making in clinical practice and comparability of interventional studies, we aim to identify and propose a set of core outcomes for the care of the dying person. Methods Following the COMET initiative approach, the proposed study will proceed through four stages to develop a set of core outcomes: In stage 1, a systematic review of the literature will identify outcomes measured in existing peer reviewed literature, as well as outcomes derived through qualitative studies. Grey literature, will also be included. Stage 2 will allow for the identification and determination of patient and proxy defined outcomes of care at the end of life via quantitative and qualitative methods at an international level. In stage 3, from a list of salient outcomes identified through stages 1 and 2, international experts, family members, patients, and patient advocates will be asked to score the importance of the preselected outcomes through a Delphi process. Stage 4 consists of a face-to-face consensus meeting of international experts and patient/family representatives in order to define, endorse, and propose the final Core Outcomes Set. Discussion Core Outcome Sets aim at promoting uniform assessment of care outcomes in clinical practice as well as research. If consistently employed, a robust set of core outcomes for the end of life, and specifically for the dying phase, defined by relevant stakeholders, can ultimately be translated into best care for the dying person. Patient care will be improved by allowing clinicians to choose effective and meaningful treatments, and research impact will be improved by employing internationally agreed clinically relevant endpoints and enabling accurate comparison between studies in systematic reviews and/or in meta-analyses.
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- 2021
7. Der Liverpool Care Pathway of the dying: Gemeinsam für eine gute Qualität in der Betreuung am Lebensende
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Grossenbacher-Gschwend, B. and Eychmüller, S.
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- 2007
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8. Development of an international Core Outcome Set (COS) for best care for the dying person: study protocol
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Zambrano, S.C. (Sofia C.), Haugen, D.F., Heide, A. (Agnes) van der, Tripodoro, V.A. (Vilma A.), Ellershaw, J.E. (John), Furst, C.J., Voltz, R., Mason, S. (Stephen), Daud, M.L. (Maria Laura), Simone, G. (Gustavo) de, Kremeike, K. (Kerstin), Halfdanardottir, S.I. (Svandis Iris), Sigurdardottir, V. (Valgerdur), Johnson, J. (Jeremy), Allan, S. (Simon), Hafeez, H. (Haroon), Simões, C. (Catarina), Sigurdardottir, K.R., Rasmussen, B.H. (Birgit H.), Williamson, P. (Paula), Eychmüller, S. (Steffen), van der Heide, A. (A.), Geijteman, E.C.T. (Eric), Zuylen, C. (Lia) van, van der Rijt, K. (K.), Korfage, I.J. (Ida), Goossensen, A. (Anne), van der Kuy, H. (H.), Yildiz, B. (B.), Elsten, E. (Eline), Ellershaw, J. (J.), Smeding, R.M. (R. M.), Mason, S. (S.), Mc Glinchey, T. (T.), Hughes, R. (R.), Voltz, R. (R.), Strupp, J. (J.), Joshi, M. (M.), Furst, C.J. (C. J.), Rasmussen, B. (B.), Schelin, M. (M.), Lunder, U. (Urska), Kodba-Čeh, H. (H.), Bakan, M. (M.), Zambrano, S.C. (S. C.), Lüthi, N. (N.), Egloff, M. (M.), Christen, A. (A.), Martin Rosello, M. (M.), Barnestein Fonseca, P. (P.), Ruiz, I. (I.), Haugen, D.R.F. (D. R.F.), Sigurdardottir, K. (K.), Solvag, K. (K.), Skorpen Iversen, G. (G.), Simon, J. (J.), Fisher, C. (C.), Berger, M. (M.), Allan, S. (S.), Boughey, M. (Mark), Zambrano, S.C. (Sofia C.), Haugen, D.F., Heide, A. (Agnes) van der, Tripodoro, V.A. (Vilma A.), Ellershaw, J.E. (John), Furst, C.J., Voltz, R., Mason, S. (Stephen), Daud, M.L. (Maria Laura), Simone, G. (Gustavo) de, Kremeike, K. (Kerstin), Halfdanardottir, S.I. (Svandis Iris), Sigurdardottir, V. (Valgerdur), Johnson, J. (Jeremy), Allan, S. (Simon), Hafeez, H. (Haroon), Simões, C. (Catarina), Sigurdardottir, K.R., Rasmussen, B.H. (Birgit H.), Williamson, P. (Paula), Eychmüller, S. (Steffen), van der Heide, A. (A.), Geijteman, E.C.T. (Eric), Zuylen, C. (Lia) van, van der Rijt, K. (K.), Korfage, I.J. (Ida), Goossensen, A. (Anne), van der Kuy, H. (H.), Yildiz, B. (B.), Elsten, E. (Eline), Ellershaw, J. (J.), Smeding, R.M. (R. M.), Mason, S. (S.), Mc Glinchey, T. (T.), Hughes, R. (R.), Voltz, R. (R.), Strupp, J. (J.), Joshi, M. (M.), Furst, C.J. (C. J.), Rasmussen, B. (B.), Schelin, M. (M.), Lunder, U. (Urska), Kodba-Čeh, H. (H.), Bakan, M. (M.), Zambrano, S.C. (S. C.), Lüthi, N. (N.), Egloff, M. (M.), Christen, A. (A.), Martin Rosello, M. (M.), Barnestein Fonseca, P. (P.), Ruiz, I. (I.), Haugen, D.R.F. (D. R.F.), Sigurdardottir, K. (K.), Solvag, K. (K.), Skorpen Iversen, G. (G.), Simon, J. (J.), Fisher, C. (C.), Berger, M. (M.), Allan, S. (S.), and Boughey, M. (Mark)
- Abstract
Background: In contrast to typical measures employed to assess outcomes in healthcare such as mortality or recovery rates, it is difficult to define which specific outcomes of care are the most important in caring for dying individuals. Despite a variety of tools employed to assess different dimensions of palliative care, there is no consensus on a set of core outcomes to be measured in the last days of life. In order to optimise decision making in clinical practice and comparability of interventional studies, we aim to identify and propose a set of core outcomes for the care of the dying person. Methods: Following the COMET initiative approach, the proposed study will proceed through four stages to develop a set of core outcomes: In stage 1, a systematic review of the literature will identify outcomes measured in existing peer reviewed literature, as well as outcomes derived through qualitative studies. Grey literature, will also be included. Stage 2 will allow for the identification and determination of patient and proxy defined outcomes of care at the end of life via quantitative and qualitative methods at an international level. In stage 3, from a list of salient outcomes identified through stages 1 and 2
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- 2020
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9. Unmet device reprogramming needs at the end of life among patients with implantable cardioverter defibrillator: A systematic review and meta-analysis
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Gonzalez-Jaramillo, V. (Valentina), Sobanski, P. (Piotr), Calvache, J.A. (Jose Andrés), Arenas-Ochoa, L.F. (Luisa F), Franco, O.H. (Oscar), Hunziker, L. (Lukas), Eychmüller, S. (Steffen), Maessen, M. (Maud), Gonzalez-Jaramillo, V. (Valentina), Sobanski, P. (Piotr), Calvache, J.A. (Jose Andrés), Arenas-Ochoa, L.F. (Luisa F), Franco, O.H. (Oscar), Hunziker, L. (Lukas), Eychmüller, S. (Steffen), and Maessen, M. (Maud)
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Background: Use of implantable cardioverter defibrillators is increasingly common. As patients approach the end of life, it is appropriate to deactivate the shock function. Aim: To assess the prevalence of implantable cardioverter defibrillator reprogramming to deactivate the shock function at the end of life and the prevalence of advance directives among this population. Design: Following a previously established protocol available in PROSPERO, we performed a narrative synthesis of our findings and used the logit transformat
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- 2020
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10. Unmet device reprogramming needs at the end of life among patients with implantable cardioverter defibrillator: A systematic review and meta-analysis
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Gonzalez Jaramillo, Valentina, Sobanski, P, Calvache España, Jose, Arenas-Ochoa, LF, Franco, OH, Hunziker, L, Eychmüller, S, Maessen, M, Gonzalez Jaramillo, Valentina, Sobanski, P, Calvache España, Jose, Arenas-Ochoa, LF, Franco, OH, Hunziker, L, Eychmüller, S, and Maessen, M
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- 2020
11. Development of an international Core Outcome Set (COS) for best care for the dying person: study protocol
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Zambrano, SC, Haugen, DF, Tripodoro, VA, Ellershaw, J, Fürst, CJ, Heide, Agnes, Voltz, R, Mason, S, Daud, ML, De Simone, G, Kremeike, K, Halfdanardottir, SI, Sigurdardottir, V, Johnson, J, Allan, S, Hafeez, H, Simões, C, Sigurdardottir, KR, Rasmussen, BH, Williamson, P, Eychmüller, S, Geijteman, E.C.T. (Eric), van Zuylen, C (Lia), van der Rijt, C.C.D. (Karin), Korfage, I.J. (Ida), van der Kuy, P.H.M. (Hugo), Yildiz, B. (Birivan), Elsten, E.E.C.M. (Eline), Zambrano, SC, Haugen, DF, Tripodoro, VA, Ellershaw, J, Fürst, CJ, Heide, Agnes, Voltz, R, Mason, S, Daud, ML, De Simone, G, Kremeike, K, Halfdanardottir, SI, Sigurdardottir, V, Johnson, J, Allan, S, Hafeez, H, Simões, C, Sigurdardottir, KR, Rasmussen, BH, Williamson, P, Eychmüller, S, Geijteman, E.C.T. (Eric), van Zuylen, C (Lia), van der Rijt, C.C.D. (Karin), Korfage, I.J. (Ida), van der Kuy, P.H.M. (Hugo), Yildiz, B. (Birivan), and Elsten, E.E.C.M. (Eline)
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- 2020
12. Flüssigkeitssubstitution in der Terminalphase – eine kontroverse Diskussion
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Eychmüller, S.
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- 2001
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13. Diagnosing dying - challenging the Liverpool Care Pathway: V143
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Domeisen, F., Eychmüller, S., Latten, R., Grossenbacher-Gschwend, B., Schuler, S., and Costantini, M.
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- 2011
14. OP22 Consideration and impact of advance directives on therapeutic decisions in ten intensive care units in german speaking switzerland
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Affolter, B, primary, Schefold, J, additional, and Eychmüller, S, additional
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- 2019
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15. Cancer patients’ experiences with an early palliative care conversation: A qualitative study of an intervention based on the SENS-structure
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Fliedner, MC, Zambrano, S, Lohrmann, C, Schols, JMGA, Halfens, R, and Eychmüller, S
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610 Medicine & health - Published
- 2018
16. Core competencies in primary palliative care: nominal group technique with international experts and GP educators (interim results)
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Moine, Sébastien, S, Murray, Engels Y, Eychmüller S, Jünger S, Lynch M, and G, Mitchell
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- 2017
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17. Palliativmedizin Essentials : Das 1x1 der Palliative Care
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Abbühl, L, Bock, F, Büche, D, Christen, S, Cina, C, Eychmüller, S, Gudat, H, Marti, M, Neuenschwander, H, Obrist, S, Pautex, S, Romann, V, Schaub, M, Tissot, E, and University of Zurich
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610 Medicine & health ,10044 Clinic for Radiation Oncology - Published
- 2015
18. Undergraduate palliative care teaching in Swiss medical faculties: a nationwide survey and improved learning objectives
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Eychmüller, S., primary, Forster, M., additional, Gudat, H., additional, Lütolf, U. M., additional, and Borasio, G. D., additional
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- 2015
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19. Bildung und Forschung. Verankerung der Palliativmedizin im Medizinstudium: Erste Etappe geschafft
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Borasio, G.D., Eychmüller, S., and Lütolf, U.M.
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- 2013
20. Vom „Liverpool Care Pathway (LCP)“ zur „Bestmöglichen Betreuung von Patienten in der Sterbephase (Best Care for the Dying Patient)“
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Montag, T, primary, Eychmüller, S, additional, Grossenbacher, B, additional, and Voltz, R, additional
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- 2014
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21. Clinically Significant Bleeding in Incurable Cancer Patients: Effectiveness of Hemostatic Radiation Therapy
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Cihoric, N., primary, Crowe, S., additional, Eychmüller, S., additional, Aebersold, D.M., additional, and Ghadjar, P., additional
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- 2012
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22. Sterbebegleitung im Krankenhaus – erste Erfahrungen mit dem „Liverpool Care Pathway” (LCP) in Deutschland
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Simon, S, primary, Martens, M, additional, Sachse, M, additional, Bausewein, C, additional, Eychmüller, S, additional, and Schwarz-Eywill, M, additional
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- 2009
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23. Recommandations pour l'opiothérapie des douleurs chroniques. 2e partie
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Aeschlimann, A, primary, Buettner, UW, additional, Desmeules, J, additional, De Stoutz, N, additional, Eychmüller, S, additional, Limacher, F, additional, Müller, P, additional, Pance, T, additional, Pautex, S, additional, Ridolfi, A, additional, Sturzenegger, M, additional, and Uchtenhagen, A, additional
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- 2005
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24. Recommandations pour l'usage des opioïdes lors de douleurs chroniques. 1re partie
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Aeschlimann, A, primary, Buettner, UW, additional, Desmeules, J, additional, De Stoutz, N, additional, Eychmüller, S, additional, Limacher, F, additional, Müller, P, additional, Pance, T, additional, Pautex, S, additional, Ridolfi, A, additional, Sturzenegger, M, additional, and Uchtenhagen, A, additional
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- 2005
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25. Empfehlungen zur Opioidtherapie chronischer Schmerzen. Teil 2
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Aeschlimann, A, primary, Buettner, UW, additional, Desmeules, J, additional, De Stoutz, N, additional, Eychmüller, S, additional, Limacher, F, additional, Müller, P, additional, Pance, T, additional, Pautex, S, additional, Ridolfi, A, additional, Sturzenegger, M, additional, and Uchtenhagen, A, additional
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- 2005
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26. Empfehlungen zur Opioidtherapie chronischer Schmerzen. Teil 1
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Aeschlimann, A, primary, Buettner, UW, additional, Desmeules, J, additional, De Stoutz, N, additional, Eychmüller, S, additional, Limacher, F, additional, Müller, P, additional, PancePerisa, T, additional, Pautex, S, additional, Ridolfi Lüthy, A, additional, Sturzenegger, M, additional, and Uchtenhagen, AA, additional
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- 2005
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27. Prognose Scores
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Eychmüller, S, primary
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- 2005
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28. Intermediate results of health related quality of life after vertical banded gastroplasty
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Sabbioni, MEE, primary, Dickson, MH, additional, Eychmüller, S, additional, Franke, D, additional, Goetz, S, additional, Hürny, C, additional, Naef, M, additional, Balsiger, B, additional, de Marco, D, additional, Bürgi, U, additional, and Büchler, MW, additional
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- 2002
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29. Atemprobleme bei Patienten mit amyotropher Lateralsklerose: Therapeutische Optionen
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Knoblauch, A, primary, Fitting, JW, additional, Gugger, M, additional, Keller, R, additional, Baumberger, M, additional, Eychmüller, S, additional, and Arbeitsgruppe für mech, Heimve, additional
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- 2001
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30. Problèmes respiratoires chez les patients atteints de sclérose latérale amyotrophique: options thérapeutiques
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Knoblauch, A, primary, Fitting, JW, additional, Gugger, M, additional, Keller, R, additional, Baumberger, M, additional, Eychmüller, S, additional, and Arbeitsgruppe für mech, Heimve, additional
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- 2001
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31. Integration of complementary medicine into a palliative care unit—Final results
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Schoop, B., Schlaeppi, M., Eychmueller, S., Schneider, N., Wolf, U., Heusser, P., and Mesenholl, E.
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- 2010
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32. Diagnosing dying' in cancer patients - a systematic literature review
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Eychmüller, S., Benedetti, F. D., Latten, R., Kali Tal, Walker, J., and Costantini, M.
33. Introducing the EAPC steering group on medical education and training
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Elsner, F., Stephen Mason, Blumhuber, H., Centeno, C., Cetto, G., Conno, F., Ellershaw, J. E., Eychmüller, S., Filbet, M., and Larkin, P.
34. Recommendations for Deprescribing of Medication in the Last Phase of Life: An International Delphi Study.
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Elsten EECM, Pot IE, Geijteman ECT, Hedman C, van der Heide A, van der Kuy PHM, Fürst CJ, Eychmüller S, van Zuylen L, and van der Rijt CCD
- Abstract
Context: Medications may become inappropriate for patients in the last phase of life and may even compromise their quality of life., Objective: To find consensus on recommendations regarding deprescribing of medications for adult patients with a life expectancy of six months or less., Methods: Experts working in palliative care or other relevant disciplines were asked to participate in this international Delphi study. Existing tools for deprescribing of medication in the last phase of life were integrated in a list of 42 recommendations regarding potential deprescription of various medication types. In two Delphi rounds, experts were asked to rate their agreement with each recommendation on a 5-point Likert-scale (strongly agree-strongly disagree). Recommendations were accepted, if at least 70% of the experts (strongly) agreed, the interquartile range (IQR) was one or less, and less than 10% strongly disagreed., Results: About 47 experts from 10 countries participated (response rate 53%). In most cases (76%), consensus was reached on deprescribing recommendations for patients with a life expectancy of six months or less. The highest level of consensus was reached for recommendations on the deprescription of diuretics in case of decreasing fluid intake or increasing fluid loss, lipid modifying agents if prescribed for primary prevention, and vitamin K antagonists and direct oral anticoagulants in case of high bleeding risk., Conclusion: A high level of consensus was reached on recommendations on potential deprescription of several medications for patients with a life expectancy of six months or less., (Copyright © 2024 The Authors. Published by Elsevier Inc. All rights reserved.)
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- 2024
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35. [Can we learn to die?]
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Seiler A, Hertler C, Evstigneev SR, Schettle M, Eychmüller S, Gärtner J, Eckstein S, Camartin C, Müller B, Buschor-Bichsel M, Fusi-Schmidhauser T, Hauswirth Siegenthaler C, Boothe B, Peng-Keller S, and Blum D
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- Humans, Terminal Care psychology, Communication, Switzerland, Fear, Attitude to Death, Physician-Patient Relations
- Abstract
Introduction: The topic of death and the dying is a crucial aspect of patient care, especially for individuals with terminal illnesses. However, discussions about death and dying are often avoided during patient interactions. In this article, our aim is to explore the reasons behind our fear of death and dying and to assess the importance of addressing these issues in shaping and cultivating relationships with our patients and in our personal lives. We argue that being open to impermanence is a valuable tool in our work with patients and their families and should be integrated into conversations with them. Furthermore, discussions about death and dying should play a central role in medical and nursing education as well as professional development., Competing Interests: Die Autorinnen und Autoren haben keine Interessenkonflikte im Zusammenhang mit diesem Artikel deklariert, (© 2024 Aerzteverlag medinfo AG.)
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- 2024
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36. How to talk about dying? The development of an evidence-based model for communication with patients in their last days of life and their family caregivers.
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Felber SJ, Zambrano SC, Guffi T, Schmitz FM, Brem BG, Schnabel KP, Guttormsen S, and Eychmüller S
- Abstract
Objective: To help healthcare professionals (HCP) act with more confidence when communicating about approaching death, we sought to develop a communication model for HCP to facilitate conversations with dying patients and family caregivers (FC) in nonemergency situations., Methods: We used a four-phase integrative approach: (1) creation of a preliminary model based on a systematic literature review and expert knowledge, (2) review of the model draft by international palliative care experts, (3) review by key stakeholders, and (4) final appraisal by communication experts., Results: After the clinical recognition of dying, the communication model provides a structure and practical communication aids for navigating the conversation based on three phases. It describes the content and relational level as core dimensions of effective conversations about approaching death and highlights the importance of HCP self-awareness and self-care when caring for the dying., Conclusion: Based on systematic involvement of key stakeholders, the model supports clinicians navigating challenging conversations about approaching death with dying patients and their FC successfully and with more confidence., Innovation: This study expands the theoretical basis for communication about approaching death and offers a pragmatic model for educational interventions and clinical use., Competing Interests: Sissel Guttormsen reports financial support was provided by Swiss Cancer Research Foundation (KFS-4522-08-2018). If there are other authors, they declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper., (© 2024 The Author(s).)
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- 2024
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37. Outcomes of care during the last month of life: a systematic review to inform the development of a core outcome set.
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González-Jaramillo V, Luethi N, Egloff M, Roa-Díaz ZM, González-Jaramillo N, Díaz-Ríos C, Christen-Cevallos Rosero A, Dodd S, Eychmüller S, and Zambrano SC
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- Humans, Palliative Care, Terminal Care standards, Outcome Assessment, Health Care
- Abstract
Background: To date, there is a lack of standardization and consensus on which outcomes are central to assess the care provided to patients in the last month of life. Therefore, we aimed to conduct a systematic review to identify relevant outcomes to inform the development of a core outcome set for the best care for the dying person., Methods: We conducted a systematic review of outcomes reported in the scientific literature about the care for the dying person in the last month of life. We searched for peer-reviewed studies published before February 2022 in four electronic databases. To categorise the outcomes, we employed the taxonomy developed by the "Core Outcome Measures in Effectiveness Trials" collaboration., Results: Out of the 2,933 articles retrieved, 619 were included for analyses. The majority of studies (71%) were retrospective and with data extracted from chart reviews (71%). We extracted 1,951 outcomes in total, from which, after deletion of repeated outcomes, we identified 256 unique ones. The most frequently assessed outcomes were those related to medication or therapeutic interventions and those to hospital/healthcare use. Outcomes related to psychosocial wellbeing were rarely assessed. The closer to death, the less frequently the outcomes were studied., Conclusions: Most outcomes were related to medical interventions or to hospital use. Only a few studies focused on other components of integrated care such as psychosocial aspects. It remains to be defined which of these outcomes are fundamental to achieve the best care for the dying.
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- 2024
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38. The 'Surprise question' in heart failure: a prospective cohort study.
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Gonzalez-Jaramillo V, Arenas Ochoa LF, Saldarriaga C, Krikorian A, Vargas JJ, Gonzalez-Jaramillo N, Eychmüller S, and Maessen M
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- Male, Humans, Female, Aged, Stroke Volume, Prospective Studies, Palliative Care methods, Prognosis, Ventricular Function, Left, Heart Failure diagnosis
- Abstract
Objective: The Surprise Question (SQ) is a prognostic screening tool used to identify patients with limited life expectancy. We assessed the SQ's performance predicting 1-year mortality among patients in ambulatory heart failure (HF) clinics. We determined that the SQ's performance changes according to sex and other demographic (age) and clinical characteristics, mainly left ventricular ejection fraction (LVEF) and the New York Heart Association (NYHA) functional classifications., Methods: We conducted a prospective cohort study in two HF clinics. To assess the performance of the SQ in predicting 1-year mortality, we calculated the sensitivity, specificity, positive and negative likelihood ratios, and the positive and negative predictive values. To illustrate if the results of the SQ changes the probability that a patient dies within 1 year, we created Fagan's nomograms. We report the results from the overall sample and for subgroups according to sex, age, LVEF and NYHA functional class., Results: We observed that the SQ showed a sensitivity of 85% identifying ambulatory patients with HF who are in the last year of life. We determined that the SQ's performance predicting 1-year mortality was similar among women and men. The SQ performed better for patients aged under 70 years, for patients with reduced or mildly reduced ejection fraction, and for patients NYHA class III/IV., Conclusions: We consider the tool an easy and fast first step to identify patients with HF who might benefit from an advance care planning discussion or a referral to palliative care due to limited life expectancy., Competing Interests: Competing interests: None declared., (© Author(s) (or their employer(s)) 2024. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)
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- 2024
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39. An economic evaluation of an early palliative care intervention among patients with advanced cancer.
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Maessen M, Fliedner MC, Gahl B, Maier M, Aebersold DM, Zwahlen S, and Eychmüller S
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- Humans, Cost-Benefit Analysis, Quality of Life, Behavior Therapy, Palliative Care, Neoplasms therapy
- Abstract
Background: Early integration of palliative care into oncology care has shown positive effects on patient symptoms and quality of life. It may also reduce health care costs. However given the heterogeneity of settings and interventions and the lack of information on the minimally effective dose for influencing care utilisation and costs, it remains uncertain whether early palliative care reduces costs., Objectives: We sought to determine whether an early palliative care intervention integrated in usual oncology care in a Swiss hospital setting reduced utilisation and costs of health care in the last month of life when compared with usual oncology care alone., Methods: We performed a cost-consequences analysis alongside a multicentre trial. We extracted costs from administrative health insurance data and health care utilisation from family caregiver surveys to compare two study arms: usual oncology care and usual oncology care plus the palliative care intervention. The intervention consisted of a single-structured, multiprofessional conversation with the patient about symptoms, end-of-life decisions, network building and support for carers (SENS). The early palliative care intervention was performed within 16 weeks of the diagnosis of a tumour stage not amenable or responsive to curative treatment., Results: We included 58 participants with advanced cancer in our economic evaluation study. Median overall health care costs in the last month of life were 7892 Swiss Francs (CHF) (interquartile range: CHF 5637-13,489) in the intervention arm and CHF 8492 [CHF 5411-12,012] in the control arm. The average total intervention treatment cost CHF 380 per patient. Integrating an early palliative care intervention into usual oncology care showed no significant difference in health care utilisation or overall health care costs between intervention and control arms (p = 0.98)., Conclusion: Although early palliative care is often presented as a cost-reducing care service, we could not show a significant effect of the SENS intervention on health care utilisation and costs in the last month of life. However, it may be that the intervention was not intensive enough, the timeframe too short or the study population too small for measurable effects. Patients appreciated the intervention. Single-structured early palliative care interventions are easy to implement in clinical practice and present low treatment costs. Further research about the economic impact of early palliative care should focus on extracting large, detailed cost databases showing potential shifts in cost and cost-effectiveness., Clinical Trials: gov Identifier: NCT01983956.
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- 2024
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40. Palliative sedation - revised recommendations.
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Beauverd M, Mazzoli M, Pralong J, Tomczyk M, Eychmüller S, and Gaertner J
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- Humans, Palliative Care methods, Uncertainty, Health Personnel, Communication, Hypnotics and Sedatives therapeutic use, Physicians, Deep Sedation methods, Terminal Care methods
- Abstract
Palliative sedation is defined as the monitored use of medications intended to induce a state of decreased or absent awareness (unconsciousness) to relieve the burden of otherwise intractable suffering in a manner ethically acceptable to the patient, their family, and healthcare providers. In Switzerland, the prevalence of continuous deep sedation until death increased from 4.7% in 2001 to 17.5% of all deceased in 2013, depending on the research method used and on regional variations. Yet, these numbers may be overestimated due to a lack of understanding of the term "continuous deep sedation" by for example respondents of the questionnaire-based study. Inadequately trained and inexperienced healthcare professionals may incorrectly or inappropriately perform palliative sedation due to uncertainties regarding its definitions and practice. Therefore, the expert members of the Bigorio group and the authors of this manuscript believe that national recommendations should be published and made available to healthcare professionals to provide practical, terminological, and ethical guidance. The Bigorio group is the working group of the Swiss Palliative Care Society whose task is to publish clinical recommendations at a national level in Switzerland. These recommendations aim to provide guidance on the most critical questions and issues related to palliative sedation. The Swiss Society of Palliative Care (palliative.ch) mandated a writing board comprising four clinical experts (three physicians and one ethicist) and two national academic experts to revise the 2005 Bigorio guidelines. A first draft was created based on a narrative literature review, which was internally reviewed by five academic institutions (Lausanne, Geneva, Bern, Zürich, and Basel) and the heads of all working groups of the Swiss Society of Palliative Care before finalising the guidelines. The following themes are discussed regarding palliative sedation: (a) definitions and clinical aspects, (b) the decision-making process, (c) communication with patients and families, (d) patient monitoring, (e) pharmacological approaches, and (f) ethical and controversial issues. Palliative sedation must be practised with clinical and ethical accuracy and competence to avoid harm and ethically questionable use. Specialist palliative care teams should be consulted before initiating palliative sedation to avoid overlooking other potential treatment options for the patient's symptoms and suffering.
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- 2024
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41. Talking about dying and death: Essentials of communicating about approaching death from the perspective of major stakeholders.
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Felber SJ, Guffi T, Brem BG, Schmitz FM, Schnabel KP, Guttormsen Schär S, Eychmüller S, and Zambrano SC
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Objectives: Although caring for dying patients and their family caregivers (FC) is integral to patient care, training in communication about approaching death is almost inexistent in medical and nursing curricula. Consequently, many health professionals have insufficient knowledge about conducting these conversations. In order to gain a broader insight into essential aspects of this communication from different perspectives, we conducted focus groups with key stakeholders., Methods: Medical specialists, nurses, medical students, bereaved FC and patient representatives participated in five focus groups ( n = 30). Following a focus group schedule, we elicited relevant aspects of communication about approaching death, associated emotions, and appropriate communication frameworks. We analyzed data thematically., Results: Four main themes were central to conversations about approaching death: (1) embracing care within medical expertise, (2) preparing the conversation while remaining open to the unexpected, (3) recognizing and reflecting on own emotions and reactions, and (4) establishing a meaningful connection with others., Significance of Results: Communicating about approaching death with dying patients and their FC can be complex and challenging at a professional and personal level. With the recognition of the dying phase, a process is initiated for which health professionals need solid clinical knowledge about but also effective communication skills, constant self-reflection and self-care strategies. Comprehensive training and supervision while dealing with the challenges of communicating approaching death to dying patients and their FC are key, particularly for trainees, less experienced physicians and nurses. The essential components identified in this study can help health professionals to master these conversations.
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- 2023
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42. Compassionate communities: How to assess their benefit? A protocol of a collaborative study between different countries.
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González-Jaramillo V, Krikorian A, Tripodoro V, Jorge M, Zambrano SC, López F, Vélez MC, Noguera T, Orellana S, Montilla S, Christen-Cevallos Rosero A, and Eychmüller S
- Abstract
Background: Communities and local governments invest in compassionate communities (CCs) a great deal of time, money, effort, and work. However, it is not known whether the CCs are having the effect they are expected to have, so the value of continuing with these initiatives is unknown, and there is a need for a model for evaluating CCs to solve the question., Objectives: To identify a set of core outcomes or benefits that should be measured to assess the impact of the CCs., Design: Multiple-methods study involving three communities, each in a different country (Argentina, Colombia, and Switzerland)., Methods and Analysis: To identifying the set of core outcomes, which is the first step in developing the CC evaluation model, five phases will follow: online meetings, literature review, fieldwork, Delphi survey, and social transfer. We will involve members of the local communities of Bern, Buenos Aires, and Medellin at three different levels: (1) citizens (e.g. patients, caregivers, and family members), (2) organizations and institutions involved in the program implementation (e.g. health care organizations, churches, non-governmental organizations, and schools), and (3) political and governmental sectors., Ethics: The study will be conducted following existing international regulations and guidance such as the Declaration of Helsinki. The ethics committee of Pallium Latin America and the ethics committee of the canton of Bern considered our application exempt from the need for approval. Ethics approval in Bern and Buenos Aires is in the process of being obtained. The ethics committee of the Pontifical Bolivarian University approved this protocol., Discussion: We expect that this project will help bridge the gap in knowledge regarding the measurable impact of the CCs and enhance more CC development., Competing Interests: The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article., (© The Author(s), 2023.)
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- 2023
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43. Compassion training: Towards a better understanding of patients through self-exposure.
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Felber SJ, Lerch SP, Bauer D, Liaudet F, Eychmüller S, and Lörwald A
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- Humans, Empathy, Patients
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- 2023
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44. Applications of Machine Learning in Palliative Care: A Systematic Review.
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Vu E, Steinmann N, Schröder C, Förster R, Aebersold DM, Eychmüller S, Cihoric N, Hertler C, Windisch P, and Zwahlen DR
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Objective: To summarize the available literature on using machine learning (ML) for palliative care practice as well as research and to assess the adherence of the published studies to the most important ML best practices. Methods: The MEDLINE database was searched for the use of ML in palliative care practice or research, and the records were screened according to PRISMA guidelines. Results: In total, 22 publications using machine learning for mortality prediction (n = 15), data annotation (n = 5), predicting morbidity under palliative therapy (n = 1), and predicting response to palliative therapy (n = 1) were included. Publications used a variety of supervised or unsupervised models, but mostly tree-based classifiers and neural networks. Two publications had code uploaded to a public repository, and one publication uploaded the dataset. Conclusions: Machine learning in palliative care is mainly used to predict mortality. Similarly to other applications of ML, external test sets and prospective validations are the exception.
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- 2023
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45. Palliative care and COVID-19: a bibliometric analysis.
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Bernardis A, Gonzalez-Jaramillo V, Ebneter AS, and Eychmüller S
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Objective: To assess the impact of COVID-19 on the palliative care (PC) publication trend in the last 10 years and the collaboration between countries and main topics that were discussed in the papers., Methods: We used Scopus to identify publications on PC between 2012 and 2021 and publications about PC and COVID-19 between 2020 and 2021. We used VOSviewer to assess the main topics using the keywords from the papers and to assess country collaboration., Results: 1937 publications resulted. An increase in publications about PC was observed during the pandemic, only partially explained by OVID-19-related publications. Cancer-related PC publications were the ones with the most marked increase. We identified six clusters in the distribution of the keywords: bioethics, cancer, nursing home/telemedicine, public health, caring and PC following the WHO definition. The countries with higher number of publications were the United States and England., Conclusion: We showed an increase in the number of PC publications in the last 2 years that was only partially explained by COVID-19-related publications. Most of the publications increase was due to cancer-related publications, since, during the time of the pandemic, publications on cancer and PC increased markedly, while those on heart failure, lung disease and dementia, remained constant., Competing Interests: Competing interests: None declared., (© Author(s) (or their employer(s)) 2023. No commercial re-use. See rights and permissions. Published by BMJ.)
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- 2023
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46. Unmet Needs in Patients With Heart Failure: The Importance of Palliative Care in a Heart Failure Clinic.
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Gonzalez-Jaramillo V, Maessen M, Luethi N, Guyer J, Hunziker L, Eychmüller S, and Zambrano SC
- Abstract
Background: There are increasing calls to establish heart failure (HF) clinics due to their effectiveness in the interdisciplinary management of people living with HF. However, although a recommendation exists for palliative care (PC) providers to be part of the interdisciplinary team, few of the established HF clinics include them in their teams. Therefore, in this qualitative study, we aimed to understand the unmet PC needs of patients with HF attending an already established HF clinic., Methods: Secondary qualitative analysis of structured interviews undertaken within a larger study to validate the German version of the Needs Assessment Tool: Progressive Disease-Heart Failure (NAT: PD-HF). The NAT: PD-HF is a tool that aims to assess unmet needs in patients with HF. The interviews took place between January and March 2020 with patients from the ambulatory HF Clinic of a University Hospital in Switzerland. For this analysis, we transcribed and thematically analyzed the longest and most content-rich interviews until we reached data saturation at 31 participants. The interviews lasted 31 min on average (24-48 min)., Results: Participants ( n = 31) had a median age of 64 years (IQR 56-77), the majority had reduced ejection fraction, were men, and were classified as having a New York Heart Association functional class II. Participants were in general satisfied with the treatment and information received at the HF clinic. However, they reported several unmet needs. We therefore identified three ambivalences as main themes: (I) "feeling well-informed but missing essential discussions", (II) "although feeling mostly satisfied with the care, remaining with unmet care needs", and (III) "fearing a referral to palliative care but acknowledging its importance"., Conclusion: Although patients who are receiving multidisciplinary management in ambulatory HF clinics are generally satisfied with the care received, they remain with unmet needs. These unmet needs, such as the need for advance care planning or the need for timely and tactful end-of-life discussions, can be fulfilled by PC providers. Including personnel trained in PC as part of the multidisciplinary team could help to address patients' needs, thus improving the quality of care and the quality of life of people living with HF., Competing Interests: The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest., (Copyright © 2022 Gonzalez-Jaramillo, Maessen, Luethi, Guyer, Hunziker, Eychmüller and Zambrano.)
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- 2022
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47. An online international comparison of palliative care identification in primary care using the Surprise Question.
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White N, Oostendorp LJ, Vickerstaff V, Gerlach C, Engels Y, Maessen M, Tomlinson C, Wens J, Leysen B, Biasco G, Zambrano S, Eychmüller S, Avgerinou C, Chattat R, Ottoboni G, Veldhoven C, and Stone P
- Subjects
- Cross-Sectional Studies, Humans, Primary Health Care, Prognosis, Hospice and Palliative Care Nursing, Palliative Care
- Abstract
Background: The Surprise Question ('Would I be surprised if this patient died within 12 months?') identifies patients in the last year of life. It is unclear if 'surprised' means the same for each clinician, and whether their responses are internally consistent., Aim: To determine the consistency with which the Surprise Question is used., Design: A cross-sectional online study of participants located in Belgium, Germany, Italy, The Netherlands, Switzerland and UK. Participants completed 20 hypothetical patient summaries ('vignettes'). Primary outcome measure: continuous estimate of probability of death within 12 months (0% [certain survival]-100% [certain death]). A threshold (probability estimate above which Surprise Question responses were consistently 'no') and an inconsistency range (range of probability estimates where respondents vacillated between responses) were calculated. Univariable and multivariable linear regression explored differences in consistency. Trial registration: NCT03697213., Setting/participants: Registered General Practitioners (GPs). Of the 307 GPs who started the study, 250 completed 15 or more vignettes., Results: Participants had a consistency threshold of 49.8% (SD 22.7) and inconsistency range of 17% (SD 22.4). Italy had a significantly higher threshold than other countries ( p = 0.002). There was also a difference in threshold levels depending on age of clinician, for every yearly increase, participants had a higher threshold. There was no difference in inconsistency between countries ( p = 0.53)., Conclusions: There is variation between clinicians regarding the use of the Surprise Question. Over half of GPs were not internally consistent in their responses to the Surprise Question. Future research with standardised terms and real patients is warranted.
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- 2022
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48. Prevalence and characteristics of patients with heart failure needing palliative care.
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Arenas Ochoa LF, González-Jaramillo V, Saldarriaga C, Lemos M, Krikorian A, Vargas JJ, Gómez-Batiste X, Gonzalez-Jaramillo N, and Eychmüller S
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- Aged, Cross-Sectional Studies, Humans, Palliative Care, Prevalence, Heart Failure epidemiology, Heart Failure therapy, Quality of Life
- Abstract
Background: Few hospitals and heart failure (HF) clinics offer concurrent palliative care (PC) together with life-prolonging therapies. To know the prevalence of patients in HF clinics needing PC and useful tools to recognize them are the first steps to extending PC in those settings. However, it is still unknown whether tools commonly used to identify patients with HF needing PC can correctly distinguish them. Two systematic reviews found that the NECesidades PALiativas (NECPAL) tool was one of the two most commonly used tools to asses PC needs in HF patients. Therefore, we assessed 1) the prevalence of PC needs in HF clinics according to the NECPAL tool, and 2) the characteristics of the patients identified as having PC; mainly, their quality of life (QoL), symptom burden, and psychosocial problems., Methods: This cross-sectional study was conducted at two HF clinics in Colombia. We assessed the prevalence of PC in the overall sample and in subgroups according to clinical and demographic variables. We assessed QoL, symptom burden, and psychosocial problems using the 12-Item Short-Form Health Survey (SF-12), the Kansas City Cardiomyopathy Questionnaire (KCCQ) and the Edmonton Symptom Assessment System (ESAS). We compared the results of these tools between patients identified as having PC needs (+NECPAL) and patients identified as not having PC needs (-NECPAL)., Results: Among the 178 patients, 78 (44%) had PC needs. The prevalence of PC needs was twice as nigh in patients NYHA III/IV as in patients NYHA I/II and almost twice as high in patients older than 70 years as in patients younger than 70 years. Compared to -NECPAL patients, +NECPAL patients had worse QoL, more severe shortness of breath, tiredness, drowsiness, and pain, and more psychosocial problems., Conclusion: The prevalence of PC needs in outpatient HF clinics is high and is even higher in older patients and in patients at more advanced NYHA stages. Compared to patients identified as not having PC needs, patients identified as having PC needs have worse QoL, more severe symptoms, and greater psychosocial problems. Including a PC provider in the multidisciplinary team of HF clinics may help to assess and cover these needs., (© 2021. The Author(s).)
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- 2021
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49. [Compassionate Cities: Strengthening Social Resources in Communities for Mutual Support at the End of Life].
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Michel C, Felber SJ, Affolter B, Greusing MH, and Eychmüller S
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- Aged, Cities, Death, Humans, Palliative Care, Social Support, Switzerland, Advance Care Planning, Terminal Care
- Abstract
Compassionate Cities: Strengthening Social Resources in Communities for Mutual Support at the End of Life Abstract. People at the end of life often wish to remain at home for as long as possible. To make this possible to a greater extent, not only health professionals who accompany those affected and their relatives are needed, but also educational programmes to strengthen health literacy at the end of life. Within the framework of the project "Compassionate City Lab of the Bernese People", experiences in dealing with the end of life were collected and published, and a course on advance care planning for elderly people was developed. The project is funded by Health Promotion Switzerland and supported by a partnership between Bernese institutions of higher education, specialised palliative care and primary care, the community, and volunteers in the city of Bern and the Bernese Oberland.
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- 2021
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50. [Telemedicine in Palliative Care: Digital Communication in a Relationship-Based Speciality - Does It Make Sense?]
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Ebneter AS, Fliedner M, Trapp D, Ramseier F, Sauter TC, and Eychmüller S
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- Communication, Humans, Quality of Life, Referral and Consultation, Palliative Care, Telemedicine
- Abstract
Telemedicine in Palliative Care: Digital Communication in a Relationship-Based Speciality - Does It Make Sense? Abstract. Telemedicine in palliative care is established especially in countries with large geographical distances. Digital forms of communication (virtual consultations) are most frequently used and well-accepted by patients and caregivers. The main benefit lies in the reduction of the access barrier in the outpatient setting. Advantages are stress reduction for patients (travel, accessibility) and reduction in the care burden for relatives. Additional benefits compared to the physical visit for symptom-control, quality of life and costs are unclear. Risks are influenced by the lack of physical interaction and data security. To what extent telepalliative care makes sense in a high-density health system is difficult to predict. It is therefore important to use these new tools in a carefully adapted and scientifically verified way.
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- 2021
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