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19. Measuring Incompatibilities between Areas of Life in Cancer Survivors: Development and Psychometric Evaluation of the INCOMPAT‐CS Instrument.

Author

Hiltrop, Kati, Breidenbach, Clara, Degenhardt, Marie, Heidkamp, Paula, Heier, Lina, Kowalski, Christoph, Schellack, Sophie, Soff, Johannes, Ernstmann, Nicole, and Mahla, Ranjeet Singh

Subjects
CRONBACH'S alpha, SATISFACTION, WORK-life balance, RESEARCH methodology evaluation, QUESTIONNAIRES, RESEARCH evaluation, CHI-squared test, DESCRIPTIVE statistics, EXPERIMENTAL design, QUALITY of life, RESEARCH methodology, PSYCHOMETRICS, STATISTICS, STATISTICAL reliability, CANCER patient psychology, FACTOR analysis, EVALUATION
Abstract

Objective. Due to various long‐term consequences of the disease, cancer survivors (CS) can experience incompatibilities between areas of life (work, family, household, leisure time, and disease) that can be associated with reduced satisfaction with these areas of life. To be able to assess such incompatibilities quantitatively, a six‐item instrument (INCOMPAT‐CS) was developed and psychometrically evaluated. Methods. Based on relevant theories, a multidisciplinary team developed the items of the INCOMPAT‐CS. Descriptive analyses, exploratory and confirmatory factor analyses, as well as validity and reliability assessments were conducted using survey data from n = 293 CS collected as part of the CARES study. Incompatibilities between areas of life were measured with the newly developed INCOMPAT‐CS instrument. Results. A one component solution with satisfactory model fit (normed χ2 = 1.90, RMSEA = 0.06, CFI = 0.99, and TLI = 0.97) was identified in exploratory and confirmatory factor analyses. The INCOMPAT‐CS demonstrated acceptable internal consistency (Cronbach's α = 0.790) and high test‐retest reliability ρ = 0.569 (p < 0.001). Convergent validity could be demonstrated (CR = 0.858 and AVE = 0.506). Hypothesis‐consistent correlations with role and social functioning measures further indicate convergent validity. Conclusions. The INCOMPAT‐CS is useful to assess incompatibilities among areas of life in CS quantitatively. Moreover, it helps to reveal the areas negatively affected due to incompatibilities. This short instrument can be useful in aftercare or psychosocial support interventions to detect incompatibilities and work towards reducing them as a consequence to increase CS' wellbeing. [ABSTRACT FROM AUTHOR]

Published
2024
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22. Comprehensive support for families with parental cancer (Family-SCOUT), evaluation of a complex intervention: study protocol for a non-randomized controlled trial

Author

Dohmen, Marc, Petermann-Meyer, Andrea, Blei, Daniel, Bremen, Rebecca, Brock-Midding, Evamarie, Brüne, Manuela, Geiser, Franziska, Haastert, Burkhard, Halbach, Sarah Maria, Heuser, Christian, Holsteg, Steffen, Heier, Lina, Icks, Andrea, Karger, Andre, Montalbo, Joseph, Nakata, Hannah, Panse, Jens, Rottmann, Till-Philip, Sättler, Kristina, Viehmann, Anja, Vomhof, Markus, Ernstmann, Nicole, and Brümmendorf, Tim H.

Published
2021
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23. No evidence to support the impact of migration background on treatment response rates and cancer survival: a retrospective matched-pair analysis in Germany

Author

Rüdiger, Roman, Geiser, Franziska, Ritter, Manuel, Brossart, Peter, Keyver-Paik, Mignon-Denise, Faridi, Andree, Vatter, Hartmut, Bootz, Friedrich, Landsberg, Jennifer, Kalff, Jörg C., Herrlinger, Ulrich, Kristiansen, Glen, Pietsch, Torsten, Aretz, Stefan, Thomas, Daniel, Radbruch, Lukas, Kramer, Franz-Josef, Strassburg, Christian P., Gonzalez-Carmona, Maria, Skowasch, Dirk, Essler, Markus, Schmid, Matthias, Nadal, Jennifer, Ernstmann, Nicole, Sharma, Amit, Funke, Benjamin, and Schmidt-Wolf, Ingo G. H.

Published
2021
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27. Lactation support in neonatal intensive care units in Germany from the mothers' perspective – a mixed-method study of the current status and needs.

Author

Schwab, Isabella, Wullenkord, Ricarda, Eyssel, Friederike, Dresbach, Till, Scholten, Nadine, Müller, Andreas, Hellmich, Martin, Ernstmann, Nicole, Hammer, Antje, Kribs, Angela, Köberlein-Neu, Juliane, Lugani, Katharina, Mildenberger, Eva, Rüffer, Jens Ulrich, Matthias, Katja, Klotz, Daniel, Sunder-Plaßmann, Anne, Wiesen, Daniel, Horenkamp-Sonntag, Dirk, and Klein, Iris

Subjects
NEONATAL intensive care units, VERY low birth weight, BREAST milk, LACTATION, MOTHERS
Abstract

Background: Establishing successful lactation in mothers of very low birth weight (VLBW, <1500g) infants requires structured lactation support. Little is known about mothers' perspectives on lactation support in German neonatal intensive care units (NICUs). Methods: This paper features a convergent mixed-method approach that includes a retrospective, cross-sectional questionnaire and interview data to showcase mothers' perceptions of lactation support in NICUs. Content analysis of the interviews (n = 12) and a descriptive analysis of quantitative data (n = 533) were performed to illustrate the current status and need for lactation support in German NICUs. Results: The results show that lactation support in German NICUs is often inadequate and does not comply with recommendations based on the existing literature to encourage pumping and breastfeeding in mothers. The data imply that even if lactation is successfully initiated in most cases, it is often not maintained over time, which may be due to a lack of personal support and consistent information. Conclusion: The overall structures and institutional guidelines for lactation support should be encouraged to promote nutrition with mother´s own milk in German NICUs. [ABSTRACT FROM AUTHOR]

Published
2024
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30. Caring for dependent children impacts practical and emotional problems and need for support, but not perceived distress among cancer patients

Author

Fugmann, Dominik, primary, Richter, Peter, additional, Karger, André, additional, Ernstmann, Nicole, additional, Hönig, Klaus, additional, Bergelt, Corinna, additional, Faller, Hermann, additional, Maatouk, Imad, additional, Hornemann, Beate, additional, Stein, Barbara, additional, Teufel, Martin, additional, Goerling, Ute, additional, Erim, Yesim, additional, Geiser, Franziska, additional, Albus, Christian, additional, Senf, Bianca, additional, Wickert, Martin, additional, and Weis, Joachim, additional

Published
2023
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34. Pressure to provide milk among mothers of very low birth weight infants: an explorative study.

Author

Schwab, Isabella, Dresbach, Till, Ohnhäuser, Tim, Horenkamp-Sonntag, Dirk, Scholten, Nadine, Neo-MILK, Müller, Andreas, Hellmich, Martin, Ernstmann, Nicole, Hammer, Antje, Eyssel, Friederike, Kribs, Angela, Köberlein-Neu, Juliane, Lugani, Katharina, Mildenberger, Eva, Rüffer, Jens Ulrich, Matthias, Katja, Sunder-Plaßmann, Anne, Wiesen, Daniel, and Klein, Iris

Abstract

Background: Pump-dependent mothers of very low birth weight (VLBW, < 1500g) infants experience specific challenges achieving sufficient milk supply in the neonatal intensive care unit (NICU) and are therefore less frequently able to achieve (exclusive) breast milk feeding. Stress due to the limitations on participating in the infant's care may contribute to this problem. Some explorative studies suggest that pressure to provide milk may be an additional stressor in mothers. However, the type of pressure to provide milk perceived by mothers of VLBW infants has rarely been examined. Methods: A retrospective and anonymous questionnaire was conducted with mothers of VLBW infants aged 6 to 24 months at the time of data collection. Quantitative data and written comments were used to examine the mothers' perceptions. Descriptive and bivariate tests (Spearman´s rho, Pearson's chi2) were performed to show correlations between pressure to provide breast milk, parental stress (PSS:NICU: role alteration subscale), milk volume, and maternal factors. Pressure to provide milk was measured through two self-developed single items to differentiate between internal and external pressures. Results: Data of n = 533 mothers of VLBW infants was analysed. More than 70% of the mothers agreed that they pressured themselves to provide milk for their infant. In contrast, 34% of the mothers agreed that they felt pressure from outside to provide milk. Higher milk volume 14 days post-partum was significantly correlated with higher internal (Spearman´s rho = 0.2017, p = 0.000) and higher external pressure to provide milk (Spearman´s rho = 0.2991; p = 0.000). Higher PSS:NICU parental role alteration scores were significantly correlated with more internal (Spearman´s rho = -0.2865, p = 0.000) and more external pressure to provide milk (Spearman´s rho = -0.1478; p = 0.002). Milk volume 14 days post-partum and the PSS:NICU were not significantly correlated (Spearman´s rho = -0.0190; p = 0.701). Qualitative analyses highlighted these results and enhanced the bidirectional relationships between maternal pressure to provide milk and milk volume. Conclusions: Especially internal pressure to provide milk is perceived by many mothers, being mutually dependent on milk supply and parental stress. Pressure to provide milk may be an important factor to decrease maternal stress in the NICU and, therefore, lead to more positive pumping and breastfeeding experiences. More research and validated instruments are needed to adequately measure pressure to provide milk with its different psychological, social, and environmental dimensions. [ABSTRACT FROM AUTHOR]

Published
2024
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36. Recommendations for a Core Curriculum for Master's Degree Programs in Health Services Research

Author

Ernstmann, Nicole, Kuske, Silke, Holmberg, Christine, Wensing, Michel, Reuschenbach, Bernd, Buescher, Andreas, Neugebauer, Edmund, Karbach, Ute, Bethge, Matthias, Ansmann, Lena, Pfaff, Holger, Ernstmann, Nicole, Kuske, Silke, Holmberg, Christine, Wensing, Michel, Reuschenbach, Bernd, Buescher, Andreas, Neugebauer, Edmund, Karbach, Ute, Bethge, Matthias, Ansmann, Lena, and Pfaff, Holger

Abstract

The aim of the present study was to develop recommendations for a core curriculum for master's degree programs in health services research. For this purpose, a standardized online survey of university lecturers was conducted in the first step. In the second step, the curricula of the existing study programs were analyzed. In the third step, a literature search was conducted. In the last step, the resulting recommendations were discussed in a panel of experts. The final recommendations comprise 13 topics on five guiding questions with 26 subtopics. The main topics come from the areas of basic sciences in the context of health services research, the health care system and health policy, the (empirical) health services research process, and knowledge transfer. The present recommendations will serve as a basis for discussion and as a starting point. The development of recommendations should be seen as an ongoing process, as the core competencies of health services researchers will have to be continuously adapted to new research topics, new research methods and regulations.

Published
2023

37. Shared-Decision-Making Experiences in Breast Cancer Care with and without Patient Participation in Multidisciplinary Tumor Conferences: A Mixed-Methods-Study

Author

Heuser,Christian, Schellenberger,Barbara, Ernstmann,Nicole, Diekmann,Annika, Krüger,Emily, Schreiber,Leonie, Scholl,Isabelle, Ansmann,Lena, Heuser,Christian, Schellenberger,Barbara, Ernstmann,Nicole, Diekmann,Annika, Krüger,Emily, Schreiber,Leonie, Scholl,Isabelle, and Ansmann,Lena

Abstract

Christian Heuser,1,2 Barbara Schellenberger,1,2 Nicole Ernstmann,1,2 Annika Diekmann,1 Emily Krüger,1 Leonie Schreiber,1 Isabelle Scholl,3 Lena Ansmann4 1Center for Health Communication and Health Services Research (CHSR), Department for Psychosomatic Medicine and Psychotherapy, Center for Integrated Oncology (CIO Bonn), University Hospital Bonn, Bonn, 53127, Germany; 2Chair for Health Services Research, Institute of Medical Sociology, Health Services Research, and Rehabilitation Science (IMVR), Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, 50933, Germany; 3Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, 20246, Germany; 4Division for Organizational Health Services Research, School of Medicine and Health Sciences, Carl von Ossietzky University Oldenburg, Oldenburg, 26129, GermanyCorrespondence: Christian Heuser, Chair for Health Services Research, Institute of Medical Sociology, Health Services Research and Rehabilitation Science (IMVR), Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, 50933, Germany, Tel +49-221-478-97133, Email christian.heuser1@uk-koeln.dePurpose: This study aimed (1) to analyze patients’ perceived shared decision-making (SDM) experiences over 4 weeks between patients participating or not in multidisciplinary tumor conferences (MTCs) and (2) to analyze the association of patients’ active participation in and organizational variables of MTCs with patients’ perceived SDM experience directly after MTC.Patients and Methods: From the N=317 patients, this observational study included patient surveys, observations, and audio transcripts from MTCs with (N=82) and without (N=145) patient participation in six breast and gynecologic cancer centers. We performed t tests for within- and between-group comparisons and linear regression with “patients’ perceived SDM experiences in MTC” as the dependent variable.Results: Patients’ perce

Published
2023

41. A matched-pair analysis on survival and response rates between German and non-German cancer patients treated at a Comprehensive Cancer Center

Author

Budde, Marie K., Kuhn, Walther, Keyver-Paik, Mignon-Denise, Bootz, Friedrich, Kalff, Jörg C., Müller, Stefan C., Bieber, Thomas, Brossart, Peter, Vatter, Hartmut, Herrlinger, Ulrich, Wirtz, Dieter C., Schild, Hans H., Kristiansen, Glen, Pietsch, Thorsten, Aretz, Stefan, Geiser, Franziska, Radbruch, Lukas, Reich, Rudolf H., Strassburg, Christian P., Skowasch, Dirk, Essler, Markus, Ernstmann, Nicole, Landsberg, Jennifer, Funke, Benjamin, and Schmidt-Wolf, Ingo G. H.

Published
2019
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47. Effectiveness of interprofessional communication skills training for oncology teams: study protocol for a three-arm cluster randomised trial (KommRhein Interpro)

Author

Karger, Andre, primary, Petermann-Meyer, Andrea, additional, Vitinius, Frank, additional, Geiser, Franziska, additional, Kraus, Daria, additional, Ernsten, Luisa, additional, Mayers, Antonia J, additional, Heuser, Christian, additional, Hiltrop, Kati, additional, Bremen, Rebecca, additional, Marx, Ambra, additional, and Ernstmann, Nicole, additional

Published
2022
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48. Caring for dependent children impacts practical and emotional problems and need for support, but not perceived distress among cancer patients

Author

Fugmann, Dominik, Richter, Peter, Karger, André, Ernstmann, Nicole, Hönig, Klaus, Bergelt, Corinna, Faller, Hermann, Maatouk, Imad, Hornemann, Beate, Stein, Barbara, Teufel, Martin, Goerling, Ute, Erim, Yesim, Geiser, Franziska, Albus, Christian, Senf, Bianca, Wickert, Martin, and Weis, Joachim

Subjects
Medizin
Abstract

Objective: More than one in 10 cancer patients care for dependent children. It is unclear whether this status makes a difference in terms of the distress and associated problems they experience, or whether it is linked to differences in the need for or utilization of psychosocial support. Methods: Secondary analysis of a cross-sectional German study in National Comprehensive Cancer Centers using self-report standardized questionnaires administered to inpatients. Patients living with dependent children (n = 161) were matched by age and sex with a subsample of 161 cancer patients not living with dependent children. The resulting sample was tested for between-group differences in Distress Thermometer (DT) scores and the corresponding DT Problem List. Additionally, between-group differences in measures of the need for and utilization of psychosocial support were examined. Results: More than 50% of all patients suffered from clinically relevant distress. Patients living with dependent children reported significantly more practical (p

Published
2023

49. KommRHein Interpro MANUAL

Author

Karger, André, Petermann-Meyer, Andrea, Vitinius, Frank, Geiser, Franziska, Marx, Ambra, Ernstmann, Nicole, Ernsten, Luisa, Röhlinger, Madita, Buller, Stefanie, and Panse, Jens

Published
2023
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