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2. Friedreich Ataxia Caregiver-Reported Health Index

3. Results from a 12-month Natural History Study of Patients with Cerebral Cavernous Malformations (S41.006)

4. The Myotonic Dystrophy Type 2 Health Index (MD2HI): A Multifactorial, Disease-specific, Patient-reported Outcome Measure for Use in Therapeutic Trials (P3-11.003)

5. Development and Validation of Two Patient-reported Outcome Measures: The Adrenoleukodystrophy-Health Index (ALD-HI) and Adrenomyeloneuropathy-Health Index (AMN-HI) (P11-4.001)

6. Longitudinal Evaluation of the Parkinson’s Disease-health Index: A Novel, Disease-specific Patient-reported Outcome Measure (P11-3.017)

7. Initial Development of the Myasthenia Gravis-Health Index (MG-HI): Measuring the Most Prevalent and Impactful Symptoms Identified in Myasthenia Gravis (P10-11.013)

8. Patient-Reported Impact of Symptoms in Fibromyalgia (PRISM-FM)

9. Development, validation, and translation of patient- and caregiver- reported outcome measures for Duchenne Muscular Dystrophy (DMD): DMD-HI and DMDCR-HI

11. Development and validation of a caregiver‐reported outcome measure for Alzheimer’s disease: the Alzheimer’s Disease Caregiver Reported‐Health Index (ADCR‐HI), a fully validated tool to bolster clinical trial and research infrastructure

12. The inclusion body myositis-health index (IBM-HI): Development and validation of a novel, disease-specific, patient-reported outcome measure

13. Development of a patient‐reported outcome measure for Alzheimer’s disease: the Alzheimer’s Disease‐Health Index (AD‐HI), a fully validated tool to bolster clinical trial and research infrastructure

14. The Facioscapulohumeral Muscular Dystrophy‐Health Index: Development and evaluation of a disease‐specific outcome measure

15. Patient-Reported Impact of Symptoms in Adrenoleukodystrophy (PRISM-ALD)

16. Abstract 4383: Development and validation of the Lung Cancer-Health Index (LC-HI), a clinically-relevant, disease-specific patient-reported outcome measure

18. DEVELOPMENT AND VALIDATION OF A PATIENT-REPORTED OUTCOME MEASURE FOR CROHN’S DISEASE: THE CROHN’S DISEASE-HEALTH INDEX (CD-HI), A FULLY VALIDATED TOOL TO BOLSTER CLINICAL TRIAL AND RESEARCH INFRASTRUCTURE

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