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2. Stigma of Palliative Care among Patients with Advanced Cancer and Their Caregivers on Early Palliative Care

Author

Bandieri, Elena, primary, Borelli, Eleonora, additional, Gilioli, Fabio, additional, Bigi, Sarah, additional, Mucciarini, Claudia, additional, Ferrari, Umberto, additional, Eliardo, Sonia, additional, Pinto, Lidia, additional, Porro, Carlo Adolfo, additional, Efficace, Fabio, additional, Luppi, Mario, additional, and Potenza, Leonardo, additional

Published
2023
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3. Perceptions of Death Among Patients with Advanced Cancer Receiving Early Palliative Care and Their Caregivers: Results from a Mixed-Method Analysis

Author

Bigi, Sarah, primary, Ganfi, Vittorio, additional, Borelli, Eleonora, additional, Potenza, Leonardo, additional, Artioli, Fabrizio, additional, Eliardo, Sonia, additional, Mucciarini, Claudia, additional, Cottafavi, Luca, additional, Ferrari, Umberto, additional, Lombardo, Laura, additional, Cagossi, Katia, additional, Pietramaggiori, Alessandra, additional, Fantuzzi, Valeria, additional, Bernardini, Ilaria, additional, Cruciani, Massimiliano, additional, Cacciari, Cristina, additional, Odejide, Oreofe, additional, Adolfo Porro, Carlo, additional, Zimmermann, Camilla, additional, Efficace, Fabio, additional, Bruera, Eduardo, additional, Luppi, Mario, additional, and Bandieri, Elena, additional

Published
2022
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4. Perceptions of Hope Among Bereaved Caregivers of Cancer Patients Who Received Early Palliative Care: A Content and Lexicographic Analysis

Author

Bigi, Sarah, primary, Ganfi, Vittorio, additional, Borelli, Eleonora, additional, Potenza, Leonardo, additional, Artioli, Fabrizio, additional, Eliardo, Sonia, additional, Mucciarini, Claudia, additional, Cottafavi, Luca, additional, Cruciani, Massimiliano, additional, Cacciari, Cristina, additional, Odejide, Oreofe, additional, Porro, Carlo Adolfo, additional, Zimmermann, Camilla, additional, Efficace, Fabio, additional, Bruera, Eduardo, additional, Luppi, Mario, additional, and Bandieri, Elena, additional

Published
2022
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5. Perceptions of Death Among Patients with Advanced Cancer Receiving Early Palliative Care and Their Caregivers: Results from a Mixed-Method Analysis.

Author

Bigi, Sarah, Ganfi, Vittorio, Borelli, Eleonora, Potenza, Leonardo, Artioli, Fabrizio, Eliardo, Sonia, Mucciarini, Claudia, Cottafavi, Luca, Ferrari, Umberto, Lombardo, Laura, Cagossi, Katia, Pietramaggiori, Alessandra, Fantuzzi, Valeria, Bernardini, Ilaria, Cruciani, Massimiliano, Cacciari, Cristina, Odejide, Oreofe, Porro, Carlo Adolfo, Zimmermann, Camilla, and Efficace, Fabio

Subjects
TUMOR treatment, CANCER patient psychology, CAREGIVER attitudes, PHYSICIAN-patient relations, RESEARCH methodology, PATIENTS' attitudes, PSYCHOLOGY of caregivers, RESEARCH funding, PALLIATIVE treatment, ATTITUDES toward death
Abstract

Background Oncologists are often concerned that talking about death with patients may hinder their relationship. However, the views of death held by patients have not been thoroughly investigated. This study aimed to describe the perception of death among patients with advanced cancer receiving early palliative care (EPC) and their caregivers. Material and Methods Qualitative and quantitative analyses were performed on 2 databases: (a) transcripts of open-ended questionnaires administered to 130 cancer patients receiving EPC with a mean age of 68.4 years and to 115 primary caregivers of patients on EPC with a mean age of 56.8; (b) texts collected from an Italian forum, containing instances of web-mediated interactions between patients and their caregivers. Results Quantitative analysis shows that: (a) patients and caregivers are not afraid of speaking about death; (b) patients and caregivers on EPC use the word "death" significantly more than patients on standard oncology care (SOC) and their caregivers (P  < .0001). For both participants on EPC and SOC, the adjectives and verbs associated with the word "death" have positive connotations; however, these associations are significantly more frequent for participants on EPC (verbs, P s < .0001; adjectives, P s < .003). Qualitative analysis reveals that these positive connotations refer to an actual, positive experience of the end of life in the EPC group and a wish or a negated event in the SOC group. Conclusions EPC interventions, along with proper physician-patient communication, may be associated with an increased acceptance of death in patients with advanced cancer and their caregivers. [ABSTRACT FROM AUTHOR]

Published
2023
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6. Changes in Cancer Patients' and Caregivers' Disease Perceptions While Receiving Early Palliative Care: A Qualitative and Quantitative Analysis

Author

Borelli, Eleonora, primary, Bigi, Sarah, additional, Potenza, Leonardo, additional, Eliardo, Sonia, additional, Artioli, Fabrizio, additional, Mucciarini, Claudia, additional, Cottafavi, Luca, additional, Cagossi, Katia, additional, Razzini, Giorgia, additional, Cruciani, Massimiliano, additional, Pietramaggiori, Alessandra, additional, Fantuzzi, Valeria, additional, Lombardo, Laura, additional, Ferrari, Umberto, additional, Ganfi, Vittorio, additional, Lui, Fausta, additional, Odejide, Oreofe, additional, Cacciari, Cristina, additional, Porro, Carlo Adolfo, additional, Zimmermann, Camilla, additional, Efficace, Fabio, additional, Bruera, Eduardo, additional, Luppi, Mario, additional, and Bandieri, Elena, additional

Published
2021
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7. Changes in Cancer Patients' and Caregivers' Disease Perceptions While Receiving Early Palliative Care: A Qualitative and Quantitative Analysis

Author

Borelli, Eleonora, Bigi, Sarah, Potenza, Leonardo, Eliardo, Sonia, Artioli, Fabrizio, Mucciarini, Claudia, Cottafavi, Luca, Cagossi, Katia, Razzini, Giorgia, Cruciani, Massimiliano, Pietramaggiori, Alessandra, Fantuzzi, Valeria, Lombardo, Laura, Ferrari, Umberto, Ganfi, Vittorio, Lui, Fausta, Odejide, Oreofe, Cacciari, Cristina, Porro, Carlo Adolfo, Zimmermann, Camilla, Efficace, Fabio, Bruera, Eduardo, Luppi, Mario, and Bandieri, Elena

Subjects
Patients, Palliative Care, Caregivers, Early palliative care, Pain, Qualitative research, Quantitative tool, Symptom Management and Supportive Care, Neoplasms, cardiovascular system, Humans, Advance Directives
Abstract

Background Little is known about the underlying mechanisms through which early palliative care (EPC) improves multiple outcomes in patients with cancer and their caregivers. The aim of this study was to qualitatively and quantitatively analyze patients’ and caregivers’ thoughts and emotional and cognitive perceptions about the disease prior to and during the EPC intervention, and in the end of life, following the exposure to EPC. Materials and Methods Seventy‐seven patients with advanced cancer and 48 caregivers from two cancer centers participated in semistructured interviews. Their reports were qualitatively and quantitatively analyzed by the means of the grounded theory and a text‐analysis program. Results Participants reported their past as overwhelmed by unmanaged symptoms, with detrimental physical and psychosocial consequences. The EPC intervention allowed a prompt resolution of symptoms and of their consequences and empowerment, an appreciation of its multidimensional approach, its focus on the person and its environment, and the need for EPC for oncologic populations. Patients reported that conversations with the EPC team increased their acceptance of end of life and their expectation of a painless future. Quantitative analysis revealed higher use of Negative Affects (p, Early palliative care can improve experiences and outcomes for patients with advanced cancer. This article analyzes disease perceptions of cancer patients and their caregivers before and after early palliative care intervention.

Published
2021

8. Different semantic and affective meaning of the words associated to physical and social pain in cancer patients on early palliative/supportive care and in healthy, pain-free individuals

Author

Borelli, Eleonora, primary, Bigi, Sarah, additional, Potenza, Leonardo, additional, Artioli, Fabrizio, additional, Eliardo, Sonia, additional, Mucciarini, Claudia, additional, Cagossi, Katia, additional, Razzini, Giorgia, additional, Pasqualini, Antonella, additional, Lui, Fausta, additional, Ferlazzo, Fabio, additional, Cruciani, Massimiliano, additional, Bruera, Eduardo, additional, Efficace, Fabio, additional, Luppi, Mario, additional, Cacciari, Cristina, additional, Porro, Carlo Adolfo, additional, and Bandieri, Elena, additional

Published
2021
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9. Pain Words Measure

Author

Borelli, Eleonora, primary, Bigi, Sarah, additional, Potenza, Leonardo, additional, Artioli, Fabrizio, additional, Eliardo, Sonia, additional, Mucciarini, Claudia, additional, Cagossi, Katia, additional, Razzini, Giorgia, additional, Pasqualini, Antonella, additional, Lui, Fausta, additional, Ferlazzo, Fabio, additional, Cruciani, Massimiliano, additional, Bruera, Eduardo, additional, Efficace, Fabio, additional, Luppi, Mario, additional, Cacciari, Cristina, additional, Porro, Carlo Adolfo, additional, and Bandieri, Elena, additional

Published
2021
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