3,960 results on '"ENDOWMENT of research"'
Search Results
2. Strengths and limitations of the Inclusive Society research model: an autoethnography.
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Tessier, Alexandra, Latulippe, Karine, Routhier, François, Raymond, Émilie, Fiset, David, Corcuff, Maëlle, and Archambault, Philippe S.
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MEDICAL care research , *INTERPROFESSIONAL relations , *FOCUS groups , *OCCUPATIONAL roles , *RESEARCH funding , *ETHNOLOGY research , *INTERVIEWING , *RESPONSIBILITY , *COMMUNITIES , *MEMBERSHIP , *TEAM building , *SOCIAL integration , *THEMATIC analysis , *RESEARCH methodology , *ENDOWMENT of research , *BUSINESS networks , *TELEPHONES , *VIDEOCONFERENCING , *NEEDS assessment , *REPORT writing , *SOCIAL support , *INTERPERSONAL relations , *PEOPLE with disabilities , *COMMITTEES - Abstract
Purpose: The Inclusive Society partnership research model aims to promote change in society for people with disabilities by supporting research teams composed of researchers and partner organizations. The objective of this article is to identify the strengths and limitations of this research model. Material and methods: An autoethnography approach was used. Thematic analysis of four methods was undertaken: semi-directed interviews with members of the research teams funded by Inclusive Society (researchers, partners), a focus group with the Inclusive Society's intersectoral collaboration agents, their logbooks, and Inclusive Society's annual reports. Results: Strengths and limitations of the Inclusive Society model were identified through their networking activities, the role and support of the intersectoral collaboration agents and the partnership research program. Conclusions: Networking activities are an essential element of Inclusive Society. They are indispensable for composing intersectoral research teams that will work on answering needs of people with disabilities. Intersectoral collaboration agents are also a strength of the model, but their role could be clarified to better frame what tasks are in their scope of practice and what the research teams could ask from them. Finally, the research program eligibility criteria could be improved to support, among others, the projects' appropriation phases. Networking activities stimulate the creation of intersectoral research teams centered on answering the needs of people with disabilities that are identified in the field Hired facilitators can play an important role in the emergence of research teams, merging the academic and non-academic worlds, and supporting the teams during their research project In participatory research projects, some funding should be reserved to support the partner organization's participation and the appropriation phase of the research projects [ABSTRACT FROM AUTHOR]
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- 2024
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3. Global Research on Osteoarthritis During 1994–2023: A Scientometric Assessment of Publications and Citations.
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Vaishya, Raju, Gupta, Brij Mohan, Mamdapur, Ghouse Modin Nabeesab, Kappi, Mallikarjun M, and Vaish, Abhishek
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SERIAL publications , *DATABASES , *MEDICAL information storage & retrieval systems , *PERIODICAL articles , *CITATION analysis , *DESCRIPTIVE statistics , *AUTHORSHIP , *ALTMETRICS , *OSTEOARTHRITIS , *MEDICAL research , *BIBLIOMETRICS , *IMPACT factor (Citation analysis) , *MEDICAL writing , *PUBLISHING , *MEDICAL literature , *ENDOWMENT of research - Abstract
Introduction: This study presents a global research scenario in the broad domain of osteoarthritis (OA) research, using quantitative and qualitative publication and citation indicators. Methods: The study is based on 45,368 global publications, sourced from the Scopus bibliographical database, covering three decades (1994–2023). We studied the performance of the top 12 developed and top 12 developing countries. The key countries, organizations and authors at national and international levels were identified. The broad subject areas and key journals contributing to global OA research were delineated, besides identifying the broad characteristics of highly cited papers in the field. Results: The United States and China were the most productive countries, while the Netherlands and Canada made the largest citation impact. Harvard Medical School and the University of Sydney made the most contribution, while Boston University and Pfizer Inc., USA registered the highest citation impact. Hunter DJ and Guermazi A were the most productive authors, while Lohmander LS, and Hochberg MC registered the highest citation impact. Osteoarthritis and Cartilage (n = 4879) and Annals of the Rheumatic Diseases (n = 786) published the maximum papers, while Arthritis and Rheumatism and Nature Reviews Rheumatology registered the largest citation impact. The highly cited papers with 100 or more citations constituted 6.25% of the total publications. Conclusions: There has been a systematic growth of publications on OA. The research on OA was mainly done in developed countries, with the maximum publications coming from the United States of America, China and Canada. The most impactful publications on OA were from the Netherlands, Canada and the United States of America. [ABSTRACT FROM AUTHOR]
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- 2024
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4. How developing a point of need training tool for evidence synthesis can improve librarian support for researchers.
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Chiang, Bronte and McClurg, Caitlin
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LEARNING , *TEACHING , *DECISION making , *GOAL (Psychology) , *MEDICAL research , *ENDOWMENT of research , *HOSPITAL libraries - Abstract
Medical and health sciences librarians who are involved in evidence synthesis projects will know that systematic reviews are intensely rigorous, requiring research teams to devote significant resources to the methodological process. As expert searchers, librarians are often identified as personnel to conduct the database searching portion and/or are approached as experts in the methodology to guide research teams through the lifecycle of the project. This research method has surged in popularity at our campus and demand for librarian participation is unsustainable. As a response to this, the library created self‐directed learning objects in the form of roadmap to assist researchers in learning about the knowledge synthesis methodology in an expedient, self‐directed manner. This paper will discuss the creation, implementation and feedback around our educational offering: Systematic & Scoping Reviews: Your Roadmap to Conducting an Evidence Synthesis. [ABSTRACT FROM AUTHOR]
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- 2024
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5. Accounting for future populations in health research.
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Pierson, Leah
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RESOURCE allocation , *HEALTH status indicators , *RESPONSIBILITY , *DECISION making , *DISEASES , *ENDOWMENT of research , *MEDICAL research , *PRIORITY (Philosophy) , *NEEDS assessment ,RESEARCH evaluation - Abstract
The research we fund today will improve the health of people who will live tomorrow. But future people will not all benefit equally: decisions we make about what research to prioritize will predictably affect when and how much different people benefit from research. Organizations that fund health research should thus fairly account for the health needs of future populations when setting priorities. To this end, some research funders aim to allocate research resources in accordance with disease burden, prioritizing illnesses that cause more morbidity and mortality. In this article, I defend research funders' practice of aligning research funding with disease burden but argue that funders should aim to align research funding with future—rather than present—disease burden. I suggest that research funders should allocate research funding in proportion to aggregated estimates of disease burden over the period when research could plausibly start to yield benefits until indefinitely into the future. [ABSTRACT FROM AUTHOR]
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- 2024
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6. Experiences and Lessons Learned From the RADx-UP Consortium Community Engagement Projects.
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Farrar, Brandy, Middleton, Ann, Thompson, Lee, Akiwumi, Ann-Marie, Gallo, Inigo Verduzco, Munoz, Perfecto, Nuño, Miriam A., and Alaniz, Mariela
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QUALITATIVE research , *INTERPROFESSIONAL relations , *MEETINGS , *EVALUATION of human services programs , *WORK environment , *DESCRIPTIVE statistics , *PUBLIC relations , *SURVEYS , *MEDICAL research , *RESEARCH , *ENDOWMENT of research , *INTERPERSONAL relations , *PUBLIC health , *COOPERATIVENESS - Abstract
In this study, we used emerging community engagement frameworks to describe the structure and outcomes of a large-scale, community-engaged, research-to-practice initiative, RADx-UP. Qualitative methods were used to analyze survey and meeting data from 2022 for RADx-UP projects. Most projects had diverse partners, achieved moderate levels of community engagement, and experienced positive outcomes. Challenges related to engagement readiness and partnership functioning. These findings demonstrate that community engagement is measurable and valuable. However, additional support is needed to achieve the highest engagement. (Am J Public Health. 2024;114(S5):S405–S409. https://doi.org/10.2105/AJPH.2024.307615) [ABSTRACT FROM AUTHOR]
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- 2024
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7. Asian American and Native Hawaiian and Pacific Islander Visibility and Data Equity: Insights From NIH RADx-UP.
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Sabado-Liwag, Melanie D., Kwan, Patchareeya P., Okihiro, May, Sy, Angela, Tsoh, Janice Y., Juarez, Ruben, Choi, JiWon, Martorell, Chanchanit, and McElfish, Pearl A.
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HAWAIIANS , *HEALTH services accessibility , *COMMUNITY health services , *SERIAL publications , *ASIAN Americans , *COVID-19 testing , *PACIFIC Islanders , *AT-risk people , *COVID-19 vaccines , *GOVERNMENT aid , *COMMON data elements (Metadata) , *MEDICAL research , *EMPLOYEE recruitment , *ENDOWMENT of research , *STAKEHOLDER analysis , *CONSORTIA , *COVID-19 , *PATIENT participation , *TIME - Abstract
The authors describe a collective process of validating community-based work that actively highlights Asian American and Native Hawaiian and Pacific Islander (AANHP)-led partnerships with community leaders and other stakeholders. Topics discussed include community-driven approaches for recruitment, changes to data infrastructure, and funding and timeline considerations.
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- 2024
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8. Advancing the Science of Palliative Care: Contributions of the Palliative Care Research Cooperative Group.
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Kutner, Jean S., Pollak, Kathryn I., Kehl, Karen A., and Ritchie, Christine S.
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PALLIATIVE treatment , *RESEARCH funding , *ENDOWMENTS , *QUESTIONNAIRES , *MENTORING , *INFORMATION resources , *ENDOWMENT of research , *MEDICAL research , *SOCIAL support , *QUALITY assurance , *COOPERATIVENESS - Abstract
The Palliative Care Research Cooperative Group (PCRC) formed to lead, catalyze, and empower a community of scientists to build an evidence base to ensure high-quality care and optimal well-being for persons with serious illness and their caregivers. The PCRC grew to 630 members representing 220 distinct sites. The PCRC awarded 44 pilot grant awards (total investment $1.4 million), resulting in $15.8 million in extramural grant funding, supported monthly webinars, an annual mentorship selective, "Clinical Trials Intensives," research consultation, and grant review. Among the 169 Clinical Trials Intensive participants, 74 subsequently achieved extramural grant award funding with direct costs of over $139 million. The PCRC supported the submission of extramural research applications and fostered community through annual meetings, special interest groups, newsletters, and its website. The PCRC filled an important void in serious illness science and set the stage for the next era of advancing serious illness research. [ABSTRACT FROM AUTHOR]
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- 2024
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9. Quality Criteria for Studies Assessing the Acute Effects of Heading: Results from a UEFA Expert Panel.
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Peek, Kerry, Franchi, Martino, Lemmink, Koen, Balsom, Paul, and Meyer, Tim
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SPORTS medicine , *PATIENT selection , *SOCCER , *PHENOMENOLOGICAL biology , *PROFESSIONAL practice , *HUMAN research subjects , *NEURODEGENERATION , *BIOCHEMISTRY , *EXPERIMENTAL design , *MEDICAL research , *RESEARCH methodology , *ENDOWMENT of research , *EVIDENCE-based medicine , *HEAD injuries , *BRAIN concussion , *ATHLETIC associations , *SOCCER injuries , *COGNITION , *DISEASE risk factors , *STANDARDS - Abstract
There is increasing concern regarding the effects of heading in football on brain health including cognitive, behavioural and neuromotor function, with research suggesting an association between repeated ball-head impacts and neurodegenerative disease. While longitudinal studies to determine the long-term consequences of heading are challenging, there have been short-term 'acute' studies conducted, with some studies lacking appropriate methodology to ensure valid results. The Union of European Football Associations (UEFA) established a panel of experts to determine methodological recommendations for the conduct of studies that explore the acute effects of heading (defined as a single session of heading conducted either in a laboratory setting or following match play or a training session). The aim of this panel was to create quality criteria for acute heading studies that will form part of the eligibility assessment when applying for UEFA research funding (although the criteria can be applied to the conduct of acute heading research more widely). This process was deemed necessary to counter studies with poor methodological quality that used heading trials that did not accurately represent player exposure to ball-head impacts through football practice and match play (such as small sample sizes, unrealistically high heading exposure, and a lack of consideration of confounding variables). The panel identified core design decisions that authors should consider when designing and conducting acute heading research, with key methodological requirements for each domain pertaining to participants, heading trials, confounding variables, statistics and dependent/target variables and their measurement. After two rounds of reviews, the final list of quality criteria was agreed by the panel and will be applied to the next round of UEFA grant applications. [ABSTRACT FROM AUTHOR]
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- 2024
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10. A Portfolio Analysis of the National Institutes of Health, National Institute on Aging's Diversity Administrative Supplement Program.
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Espinoza, Melissa, Carranza, Maria, Lahvic, Jamie L., and Jones, Patricia
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HUMAN services programs , *AFRICAN Americans , *SEX distribution , *HISPANIC Americans , *MEDICAL societies , *DIVERSITY in the workplace , *RACE , *ENDOWMENT of research , *MINORITIES , *PEOPLE with disabilities - Abstract
The article presents a study on the National Institutes of Health, National Institute on Aging's Diversity Administrative Supplement Program. Topics discussed include purpose of establishing the NIH Diversity Supplements (DS) program in 1989, demographics and scientific areas of interest, and institutional characteristics.
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- 2024
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11. The National Institute on Aging Edward R. Roybal Centers: Past, present, and future of research to foster healthy aging.
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Butler, Mark J., Davidson, Karina W., and Suls, Jerry
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WORLD Wide Web , *DIFFUSION of innovations , *INTERPROFESSIONAL relations , *ACADEMIC medical centers , *GOVERNMENT agencies , *INFLUENZA vaccines , *ENDOWMENT of research , *HEALTH promotion , *DEMENTIA , *ACTIVE aging , *SOCIAL distancing - Abstract
The article provides information on the National Institute on Aging Edward R. Roybal Centers which focused on supporting innovative research that fosters the health and independence of older adults while studying conditions that affect the most vulnerable among Americans aging population. Topics discussed include the primary aims of the iteration of the Royal Center foci, categories of the Roybal Center publications, and name and descriptions of Roybal Centers.
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- 2024
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12. Training and supporting subspecialty clinician–scientists in aging research through GEMSSTAR and Clin‐STAR.
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Gill, Thomas M., Sherman, Andrea N., van der Willik, Odette, Yaffe, Kristine, and Walston, Jeremy D.
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MEDICAL specialties & specialists , *CONFERENCES & conventions , *ORGANIZATIONAL structure , *AGING , *MEDICAL research , *ENDOWMENT of research , *SOCIAL support , *VOCATIONAL guidance , *WEBINARS ,SURGERY practice - Abstract
The article discusses the launch of the funding opportunities by the National Institute on Aging (NIA) targeting clinician-scientists focused on aging research from a diverse array of specialties and disciplines. Topics include the Grants for Early Medical and Surgical Specialists' Transition to Aging Research (GEMSSTAR) initiative of the NIA, the expansion made by the NIA on its commitment to support a wider range of clinician-scientists, and the infrastructure grant launched by the NIA.
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- 2024
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13. The Landscape of Observational COVID-19 Cohort Studies Funded by the National Institute of Allergy and Infectious Diseases.
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Shabman, Reed S, Booth, Mason, Cooper, Michael, DeGrace, Marciela M, Fulkerson, Patricia C, Hauguel, Teresa, Lane, Chelsea, Meyer, Alyssa, Newman, Lori, Post, Diane, Prabhudas, Mercy, Qidwai, Rubya, Rojas, Cynthia, Schuster, Claire, Williams, Carolyn, and Brown, Liliana
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SCIENTIFIC observation , *DECISION making , *CITATION analysis , *LONGITUDINAL method , *MEDICAL research , *ENDOWMENT of research , *PRIORITY (Philosophy) , *METADATA , *BIBLIOMETRICS , *ORGANIZATIONAL goals , *PUBLIC health , *COVID-19 ,RESEARCH evaluation - Abstract
The spread of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) since late 2019 represented an unprecedented public health emergency, which included a need to fully understand coronavirus disease 2019 (COVID-19) across all ages and populations. In response, the US National Institute of Allergy and Infectious Diseases (NIAID) rapidly funded epidemiology studies that monitored COVID-19. However, the diversity and breadth of the populations studied in NIAID-funded COVID-19 observational cohorts were not easy to extrapolate because of siloed approaches to collect and report data within NIAID. Here, we describe the effort to develop a harmonized cohort-study reporting tool that includes common epidemiologic data elements as well as NIAID priorities. We report its implementation to analyze metadata from 58 COVID-19 cohort studies funded from February 2020 to June 2021, and we visualize key metadata, including geographic distribution, study duration, participant demographic characteristics, sample types collected, and scientific priorities addressed. A bibliographic analysis highlights the scientific publications and citations across these funded studies and demonstrates their enormous impact on the COVID-19 field. These analyses highlight how common data elements and reporting tools can assist funding agencies to capture the landscape and potential gaps during public health responses and how they can assist in decision making. [ABSTRACT FROM AUTHOR]
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- 2024
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14. An Introduction to Implementing and Conducting the Study.
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Capili, Bernadette and Anastasi, Joyce K.
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PATIENT selection , *MEDICAL protocols , *HUMAN services programs , *HUMAN research subjects , *LEADERSHIP , *EXPERIMENTAL design , *ENDOWMENT of research - Abstract
Editor's note: This is the 21st article in a series on clinical research by nurses. The series is designed to be used as a resource for nurses to understand the concepts and principles essential to research. Each column will present the concepts that underpin evidence-based practice—from research design to data interpretation. To see all the articles in the series, go to https://links.lww.com/AJN/A204. This article, one in a series on clinical research by nurses, focuses on study implementation: gathering essential resources such as space, funding, and personnel; managing the budget process; and finalizing protocols and standard operating procedures. [ABSTRACT FROM AUTHOR]
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- 2024
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15. The State School Mental Health Profile: Findings from 25 States.
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Orenstein, Shawn, Yarnell, Jordy, Connors, Elizabeth, Bohnenkamp, Jill, Hoover, Sharon, and Lever, Nancy
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DOCUMENTATION , *HEALTH services administration , *SELF-evaluation , *CONSENSUS (Social sciences) , *COMMUNITY health services , *MENTAL health , *MENTAL health services , *DIFFUSION of innovations , *RESEARCH funding , *HEALTH policy , *LEADERSHIP , *INTERVIEWING , *STATE governments , *WORKING hours , *FEDERAL government , *STUDENT health , *ENDOWMENT of research , *RESEARCH methodology , *QUALITY assurance , *SOCIAL support - Abstract
BACKGROUND: State‐level leadership and conditions are instrumental to local and regional comprehensive school mental health system (CSMHS) quality, sustainability, and growth. However, systematic documentation of state‐level school mental health (SMH) policy, infrastructure, funding, and practice is limited. METHODS: Using a multi‐phase, multi‐method process, we developed the State School Mental Health Profile (State Profile) to offer a comprehensive landscape of state SMH efforts. State leaders in 25 states completed the State Profile once over a 3‐year data collection period. Mixed methods results are reported in 8 domains. RESULTS: State education agencies were reportedly most involved in SMH technical assistance, advocacy, leadership, funding, and service provision, with mental health agencies reported as second most involved. Nearly half of state respondents reported having a state‐level SMH director or coordinator. Policies with the greatest perceived impact require implementation of and funding for SMH services and supports. Despite leveraging multiple sources of funding, most states emphasized lack of funding as a primary barrier to establishing CSMHSs. All states reported staffing shortages. CONCLUSION: The State Profile can assist multi‐agency state leadership teams to self‐assess policy, infrastructure, and resources to support CSMHSs statewide. Findings point to areas of opportunity to advance equity across resource allocation, service provision, and policy development. [ABSTRACT FROM AUTHOR]
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- 2024
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16. Evolution of public funding since primary care research was considered as a priority research domain in france.
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Scheer, Jordan, Leroy, Taylor, Guillo, Sylvie, Tubach, Florence, Rozès, Antoine, Verga-Gérard, Amandine, Guillemin, Francis, Lapeyre-Mestre, Maryse, and Chapron, Anthony
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PRIMARY health care , *CLINICAL medicine research , *SCIENTIFIC observation , *DESCRIPTIVE statistics , *GOVERNMENT aid , *ENDOWMENT of research , *MEDICAL research , *PRIORITY (Philosophy) , *DATA analysis software ,RESEARCH evaluation - Abstract
Purpose: Annually, the French Ministry of Health funds clinical research projects based on a national call for projects. Since 2013, the Ministry has prioritized funding of primary care. Projects selected for funding are made public without distinguishing the specific area of research. The objective of this study was to identify and describe the evolution of the primary care research projects funded by the Ministry of Health between 2013 and 2019. Method: We reviewed all of the 1796 medical research projects funded between 2013 and 2019 and categorized projects as primary care projects by using a list of specific keywords. This list was established through two approaches: (1) selected by an expert committee, the RECaP primary care working group, and (2) using an automated textual analysis of published articles in the field. The keywords were used to screen the titles of the medical research projects funded. The abstracts (at www.clinicaltrials.gov) or details (from project leaders) were then analyzed by two independent reviewers to determine true primary care projects. Results: Finally, 49 primary care projects were identified, representing 2.7% of all medical research projects funded, without any significant change over the period. These projects were predominantly interventional (69%), with a median number of patients expected per project of 902. Conclusion: Despite the prioritization of primary care research in 2013 by the French ministry of health, the number and proportion of projects funded remains low, with no significant change over the years. Trial registration: Not applicable. [ABSTRACT FROM AUTHOR]
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- 2024
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17. Bibliometric analysis of ChatGPT in medicine.
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Gande, Sharanya, Gould, Murdoc, and Ganti, Latha
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SERIAL publications , *SAFETY , *ARTIFICIAL intelligence , *PRIVACY , *PROFESSIONAL peer review , *MISINFORMATION , *NATURAL language processing , *BIBLIOMETRICS , *PUBLISHING , *MEDICAL research , *ENDOWMENT of research , *MEDICINE , *INTERPERSONAL relations , *OPEN access publishing , *MEDICAL practice , *RELIABILITY (Personality trait) , *MEDICAL ethics , *EVALUATION - Abstract
Introduction: The emergence of artificial intelligence (AI) chat programs has opened two distinct paths, one enhancing interaction and another potentially replacing personal understanding. Ethical and legal concerns arise due to the rapid development of these programs. This paper investigates academic discussions on AI in medicine, analyzing the context, frequency, and reasons behind these conversations. Methods: The study collected data from the Web of Science database on articles containing the keyword "ChatGPT" published from January to September 2023, resulting in 786 medically related journal articles. The inclusion criteria were peer-reviewed articles in English related to medicine. Results: The United States led in publications (38.1%), followed by India (15.5%) and China (7.0%). Keywords such as "patient" (16.7%), "research" (12%), and "performance" (10.6%) were prevalent. The Cureus Journal of Medical Science (11.8%) had the most publications, followed by the Annals of Biomedical Engineering (8.3%). August 2023 had the highest number of publications (29.3%), with significant growth between February to March and April to May. Medical General Internal (21.0%) was the most common category, followed by Surgery (15.4%) and Radiology (7.9%). Discussion: The prominence of India in ChatGPT research, despite lower research funding, indicates the platform's popularity and highlights the importance of monitoring its use for potential medical misinformation. China's interest in ChatGPT research suggests a focus on Natural Language Processing (NLP) AI applications, despite public bans on the platform. Cureus' success in publishing ChatGPT articles can be attributed to its open-access, rapid publication model. The study identifies research trends in plastic surgery, radiology, and obstetric gynecology, emphasizing the need for ethical considerations and reliability assessments in the application of ChatGPT in medical practice. Conclusion: ChatGPT's presence in medical literature is growing rapidly across various specialties, but concerns related to safety, privacy, and accuracy persist. More research is needed to assess its suitability for patient care and implications for non-medical use. Skepticism and thorough review of research are essential, as current studies may face retraction as more information emerges. [ABSTRACT FROM AUTHOR]
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- 2024
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18. Mind the NIH-Funding Gap: Structural Discrimination in Physical Health–Related Research for Cognitively Able Autistic Adults.
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McDonald, T. A. Meridian and Scudder, Audrey
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HEALTH services accessibility , *HEALTH status indicators , *ENDOWMENTS , *RESEARCH funding , *MENTAL health , *AUTISM , *HEALTH policy , *NEURODIVERSITY , *DESCRIPTIVE statistics , *FEDERAL government , *GOVERNMENT aid , *ENDOWMENT of research , *DISCRIMINATION (Sociology) , *HEALTH equity - Abstract
Autistic adults experience disparities in physical health and health care access. A major barrier to addressing these disparities is a lack of federal funding for research on this topic. In seeking funding from the National Institutes of Health (NIH), we discovered nodes that contribute to structural discrimination in physical health–related research for autistic adults. To examine this structural discrimination, we systematically searched funded research on all physical health–disparity conditions in autistic adults using NIH RePORTER. Among 61 unique studies, none focused on improving the relevant physical health condition through intervention, programs, or services for autistic adults. Thus, we need updated policies and procedures that support research on physical health disparities in populations with developmental or mental health conditions. [ABSTRACT FROM AUTHOR]
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- 2024
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19. Research reality of nurses in primary health care: what is the current situation?
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Silva Vera, Maria Eugenia, Bancalero Herrera, Patricia, Manuel Ramos-Rodríguez, Juan, and Gallardo Cabrales, Susana
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CROSS-sectional method , *DIFFUSION of innovations , *INTERPROFESSIONAL relations , *PRIMARY health care , *QUESTIONNAIRES , *MEDICAL care , *SELF medication , *DESCRIPTIVE statistics , *NURSING research , *RESEARCH methodology , *ENDOWMENT of research , *COMMUNICATION , *DATA analysis software , *SOCIODEMOGRAPHIC factors - Abstract
Aim: The aim of this study is to examinate the research activity of nurses in primary health care and to know his dissemination. Mhetidi: It is a descriptive cross-sectional study carried out between May 27 and June 29, 2022, in a Health Management Area Through a self-administrated questionnaire. A total of 242 nurses answered the questionnaire. A total of 5,2% have a Master's degree and none have a PhD. Some 8,3% have collaborated in a funded research project, with 0,4% subscribing to PAIDI groups. Participation is mostly collaborative with only 1 case as PI in funded projects. Contribution to congresses or other dissemination activities is 18.7% for oral communications and 16,5% for written communications. Results: Regarding the publication of results, 16,5% have published at least 1 scientific article, 1,3% in impact journals (none in Q1 or Q2). The subject matter of the publications is very diverse. Collaboration in research with other disciplines was 10,4%, and in research studies carried out with other institutions or health services are 11,3%. Conclusion: It is concluded that the research activity carried out in primary care is of low level and quality. There is dispersion both in the subject matter and in the nursing profiles that carry out research activity, which implies the lack of a consolidated network in research in care that supports care practice based on scientific evidence. [ABSTRACT FROM AUTHOR]
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- 2024
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20. Social innovation in health training to engage researchers in resource-limited settings: process description and evaluation.
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Tao, Yusha, Tan, Rayner Kay Jin, Wohlfarth, Megan, Ahumuza, Emmanuel, Aribodor, Ogechukwu Benedicta, Cruz, Jose Rene Bagani, Fajardo, Marvinson See, Magista, Malida, Marley, Gifty, Mier-Alpaño, Jana Deborah, Ogwaluonye, Uchenna Chukwunonso, Paipilla, Kathleen Agudelo, Scott, Charlotte Pana, Ulitin, Allan, Chen, Elizabeth, Wu, Dan, Awor, Phyllis, Tang, Weiming, Labarda, Meredith, and Tucker, Joseph D
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MIDDLE-income countries , *CROWDSOURCING , *DIFFUSION of innovations , *ENDOWMENTS , *DIVERSITY & inclusion policies , *HUMAN services programs , *RESEARCH funding , *SOCIAL change , *COMMUNITIES , *DESCRIPTIVE statistics , *MANUSCRIPTS , *SURVEYS , *THEMATIC analysis , *PRE-tests & post-tests , *CURRICULUM planning , *RESEARCH methodology , *ADULT education workshops , *ENDOWMENT of research , *MEDICAL research , *PUBLIC health , *RESOURCE-limited settings , *NEEDS assessment , *COMPARATIVE studies , *LOW-income countries ,DEVELOPED countries - Abstract
Research on social innovations in health has increased in recent years. However, little training is geared toward enhancing social innovation research capacity. Most health training for low- and middle-income countries (LMICs) is developed by individuals in high-income countries, disregarding LMIC researchers' wisdom and insights and the communities' needs. Our team organized a multi-phase investigation involving a series of surveys and co-creation group discussions to assess individuals' training needs that directly informed a subsequent co-created training workshop series. We conducted a Hennessy–Hicks Training Needs Assessment among the Social Innovation in Health Initiative (SIHI) network and formed a co-creation group comprising SIHI fellows to design related training workshops. We ran a final evaluation survey and analyzed the workshop series' strengths, weaknesses and threats. Descriptive and thematic analysis were employed to analyze survey data and open-ended responses. The final evaluation survey captured data from 165 learners in 35 countries, including 26 LMICs. Most participants (67.3%, 111/165) rated the training workshop series as excellent, and 30.3% (50/165) rated it as good on a five-point scale. The need for writing research grants and manuscripts was rated the highest priority. Learners were interested in community-engaged research and diversity, equity and inclusion. This workshop illustrated how co-creation could be an effective tool for developing training materials tailored for LMIC researchers. We also offer a template for conducting a needs assessment and subsequent training workshops for LMICs. The ground-up, locally developed courses may be more effective than externally developed training programs intended for LMICs. [ABSTRACT FROM AUTHOR]
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- 2024
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21. Igniting your passion for research impact and success: A guide for early career nutrition researchers!
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Collins, Clare E.
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SERIAL publications , *SUCCESS , *ENDOWMENTS , *STRATEGIC planning , *AUTHORSHIP , *MENTORING , *ENDOWMENT of research , *PUBLISHING , *COMMUNICATION , *ELECTRONIC publications , *VOCATIONAL guidance ,DIETETICS research - Abstract
The article focuses on motivating early career nutrition researchers to achieve impactful and successful outcomes in their research endeavors. It provides guidance and strategies to ignite passion, enhance research impact, and navigate challenges commonly faced by emerging researchers in the field of nutrition.
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- 2024
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22. What helps or hinders nurses to lead funded research projects? A survey of UK nurse lead-investigators.
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Farquharson, Barbara
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NURSES , *CROSS-sectional method , *INTERPROFESSIONAL relations , *LEADERSHIP , *QUANTITATIVE research , *DESCRIPTIVE statistics , *ENTRY level employees , *MENTORING , *SURVEYS , *NURSING research , *ENDOWMENT of research , *NURSES' attitudes , *INFORMED consent (Medical law) , *MEDICAL research personnel , *COMPARATIVE studies , *HEALTH care teams - Abstract
Background: There have been recurring UK initiatives to increase nurse research capability but little robust evaluation of long-term effectiveness. More nurses undertake doctorates, yet few lead major funded projects. Previous research suggests potential explanations but the perspectives of nurse lead-investigators themselves have not been examined. Aim: To explore the perceptions of nurse lead-investigators about what has helped or hindered them to lead funded research projects. Methods: Lead investigators of research projects from major UK funders (1 Apr 2017–Sept 2022) were identified from publicly available data. University profiles were screened to identify registered nurses. Entire population was approached (no sample size calculation required). Consenting participants completed an online survey (five open questions). Results: A total of 65 nurse-lead investigators were identified, 36 (55%) completed the survey (20 December 2022 to 17 February 2023). Participants identified Building (multi-disciplinary) collaborations and mentorship as having been most important to their success. High-quality mentoring was also identified as most important in helping novice nurse researchers become leaders. Participants highlighted the critical importance of being supported by individuals with a track record of funding success and benefits of being situated in research-supportive environments. Lack of career pathway/ infrastructure and being unable to pursue research due to competing clinical/teaching priorities were identified as most unhelpful to this group AND the most common reasons for peers not going on to lead research. Conclusions: Ensuring access to mentors with an established track record is an important component of schemes to increase research capability in nurses. Funded, protected time for research and career structures that reward the significant skill development required to succeed in a competitive, multi-disciplinary funding arena is important. Impact: Interdisciplinary collaboration and mentorship by experienced researchers are critical to success and should be incorporated into future interventions to increase research capability in nurses. No patient or public contribution (as exploring a professional issue). [ABSTRACT FROM AUTHOR]
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- 2024
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23. Collaboration is Key at Children's Hospital of Philadelphia.
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Reed, Julie and Flood, Eloise
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SCHOOL environment , *INTERPROFESSIONAL relations , *RESOURCE allocation , *CHILDREN'S hospitals , *BOOKS , *MEDICAL literature , *ENDOWMENT of research , *CLINICAL librarians , *MEDICAL referrals - Abstract
The article present an interview with hospital librarianship Julie Reed and Eloise Flood. Topics discussed include the transformation of Children's Hospital of Philadelphia (CHOP) from a decentralized library system to a centralized one with the hiring of medical librarians; the creation of three librarian positions; development of a library discovery portal; instruction services; interlibrary loan management; and raising awareness among staff about library resources.
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- 2024
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24. The increasing costs of medicines and their implications for patients, physicians and the health system.
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Ghinea, Narcyz
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HEALTH services accessibility , *MIDDLE-income countries , *HEALTH insurance reimbursement , *COST analysis , *SOCIOECONOMIC factors , *AT-risk people , *HEALTH care reform , *ENDOWMENT of research , *DRUGS , *DRUG development , *MEDICAL care costs , *HEALTH care rationing , *LOW-income countries - Abstract
Most new medicines entering the market are high‐cost speciality drugs. These drugs can cost tens to hundreds of thousands of dollars per course of treatment and in some cases millions of dollars per dose. Approximately half of all spending on medicines is projected to target only 2–3% of patients, raising important questions about resource allocation. While there is no doubt that breakthrough innovations have transformed clinical care in some disciplines, it is also true that cost is becoming one of the primary barriers to treatment access and that many new medicines do not provide value commensurate with their prices. This article examines pricing trends, the reasons for high prices and their implications for access and clinical practice. [ABSTRACT FROM AUTHOR]
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- 2024
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25. Barriers and facilitators to technology transfer of NIDILRR grantees.
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Higgins, Erin, Zorrilla, Michelle, Murphy, Kathleen M., Robertson, Megan, Goldberg, Mary R., Cohen, Susan K., Augustine, Nancy, and Pearlman, Jonathan L.
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WORK , *ASSISTIVE technology centers , *SCALE analysis (Psychology) , *INTERPROFESSIONAL relations , *ENDOWMENTS , *INTERVIEWING , *MARKETING , *DESCRIPTIVE statistics , *ASSISTIVE technology , *EXPERIENCE , *STUDENTS , *THEMATIC analysis , *ENDOWMENT of research , *ATTITUDES of medical personnel , *RESEARCH methodology , *STUDENT attitudes , *GROUNDED theory , *DATA analysis software , *REHABILITATION research , *EXPERIENTIAL learning , *ACCESS to information , *GOVERNMENT regulation , *PEOPLE with disabilities - Abstract
The objectives of this mixed-methods study were to gather survey and interview data about the barriers and facilitators from grantees funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) and to extract themes that could inform program changes that would increase technology translation (TT) success in assistive technology (AT). We developed a TT Barriers and Facilitators survey consisting of Likert scale and multiple-choice questions about barriers and facilitators to TT. With survey respondents who were willing, we conducting a semi-structured interview and asked pointed questions to expand upon survey response rankings and perceived barriers and facilitators. The questions were framed to explore the grantee's personal experience with ATTT and what helped and hindered their individualised processes. Across survey and interview respondents, the three most common themes when exploring the barriers and facilitators of TT were funding, incentives, and collaboration. Results indicate that there is a need for increased collaboration and access to additional resources such as funding for pilot grants, support to assess technology marketability, help to navigate regulatory and legal aspects, and assistance in establishing goals to help grantees successfully transfer assistive technologies to consumers. A large amount of research and development into assistive technology does not lead to tech transfer which means that these technologies are not getting to the people that need them. Educating tech transfer offices at universities about how to transfer AT would improve outcomes greatly. Creating a community of practice where grantees can find academic or industry partners would also increase the likelihood of tech transfer. Some tools to catalyse these improvements are: mentoring, access to consultants, podcasts, and online training. [ABSTRACT FROM AUTHOR]
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- 2024
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26. The Development and Implementation of Adolescent and Young Adult Oncology Programs: Teen Cancer America's Strategy.
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Haines, Emily R., Gan, Hilary, Kupelian, Alec, Roggenkamp, Betty, Lux, Lauren, Kumar, Bindu, and Davies, Simon
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HUMAN services programs , *TUMORS in children , *INTERPROFESSIONAL relations , *MEDICAL quality control , *CANCER patient medical care , *STRATEGIC planning , *EVALUATION of medical care , *ENDOWMENT of research , *QUALITY assurance , *COUNSELING - Abstract
Reflecting a growing recognition that adolescents and young adults (AYAs) with cancer have unique needs that demand novel approaches to care delivery, AYA-specific cancer programs are emerging across the United States to better serve this population. However, the limited availability of health system funding to support such efforts, in combination with the dearth of guidance that exists to guide AYA program development and implementation, has hampered the effective development and implementation of AYA oncology programs. In this article, we describe Teen Cancer America's strategy for partnering with hospitals to address this gap and improve care and outcomes for AYAs with cancer. [ABSTRACT FROM AUTHOR]
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- 2024
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27. A distinct integration path? Latino economic elites in Los Angeles growing the Latino middle class.
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Vallejo, Jody Agius and Ramirez, Blanca
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ECONOMIC elites , *MIDDLE class , *MINORITIES , *CHARTER schools , *ENDOWMENT of research - Abstract
This research examines Latino economic elites in Los Angeles who engage in 'ethnoracial philanthropy' – giving to or creating ethnic-centric organisations that focus on alleviating socioeconomic inequalities. We draw on 65 in-depth interviews to provide insights into the ethnoracial educational structures created by Latino elites to facilitate the mobility of Latino youth. We compare three ways in which philanthropy manifests: via the creation of Latino scholarship funds; ethnic-centric charter schools in low-income Latino neighbourhoods; Latino youth leadership programmes comprised of college students from the top 100 universities. These institutions may serve to widen the path to inclusion by creating a distinct ethnoracial integration path via education, contrasting with assimilation theory and the minority culture of mobility framework. However, the focus on education, and not on other issues, benefits those who reproduce the elites' image. [ABSTRACT FROM AUTHOR]
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- 2024
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28. Developing a Suicide Crisis Response Team in America: An Islamic Perspective.
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Awaad, Rania, Durrani, Zuha, Quadri, Yasmeen, Sifat, Munjireen S., Hussein, Anwar, Kouser, Taimur, El-Gabalawy, Osama, Rajeh, Neshwa, and Shareef, Sana
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SUICIDE prevention , *MEDICAL protocols , *HEALTH literacy , *MENTAL health , *SOCIAL workers , *CRISIS intervention (Mental health services) , *RAPID response teams , *POPULATION geography , *MUSLIMS , *SUICIDE , *ENDOWMENT of research , *PUBLIC health , *SOCIAL support , *PSYCHOLOGICAL vulnerability , *DEMOGRAPHY , *SOCIAL stigma - Abstract
Suicide is a critical public health issue in the United States, recognized as the tenth leading cause of death across all age groups (Centers for Disease Control and Prevention, 2020). Despite the Islamic prohibition on suicide, suicidal ideation and suicide mortality persist among Muslim populations. Recent data suggest that U.S. Muslim adults are particularly vulnerable, with a higher attempt history compared to respondents from other faith traditions. While the underlying reasons for this vulnerability are unclear, it is evident that culturally and religiously congruent mental health services can be utilized to steer suicide prevention, intervention, and postvention in Muslim communities across the United States. However, the development of Suicide Response toolkits specific to Muslim populations is currently limited. As a result, Muslim communities lack a detailed framework to appropriately respond in the event of a suicide tragedy. This paper aims to fill this gap in the literature by providing structured guidelines for the formation of a Crisis Response Team (CRT) through an Islamic lens. The CRT comprises of a group of individuals who are strategically positioned to respond to a suicide tragedy. Ideally, the team will include religious leaders, mental health professionals, healthcare providers, social workers, and community leaders. The proposed guidelines are designed to be culturally and religiously congruent and take into account the unique cultural and religious factors that influence Muslim communities' responses to suicide. By equipping key personnel in Muslim communities with the resources to intervene in an emergent situation, provide support to those affected, and mobilize community members to assist in prevention efforts, this model can help save lives and prevent future suicide tragedies in Muslim communities across the United States. [ABSTRACT FROM AUTHOR]
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- 2024
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29. Bibliometric mapping of theme and trends of augmented reality in the field of education.
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Harnal, Shilpi, Sharma, Gaurav, Anupriya, Mishra, Anand Muni, Bagga, Deepak, Saini, Nikhil, Goley, Pankaj Kumar, and Anupam, Kumar
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SERIAL publications , *DOCUMENTATION , *EDUCATION , *DATA mining , *DIFFUSION of innovations , *CITATION analysis , *BIBLIOMETRICS , *ENDOWMENT of research , *COMPUTER assisted instruction , *AUTHORS , *LEARNING strategies , *AUGMENTED reality - Abstract
Background: An innovative and interactive real‐world environment can be presented with augmented reality (AR) that comprises digital visual elements, audio, or other sensory information delivered via technology to enhance one's experience. AR has numerous potential applications in various everyday fields. The education sector is one such arena where AR has been implemented prominently globally. AR in education can impact active students' learning to memorize effectively and can persuade them to engage in a meaningful process of learning. Objectives: This article presents a bibliometric analysis of some recent applications of AR, emphasizing the potential effects, challenges, and trends of AR in the education sector for the past 15 years. Methods: A total of 3909 documents published during 2006–2020 were retrieved from the Scopus database for analysis. The bibliometric analysis included document types, subject categorization, document growth, as well as top contributing sources, countries, authors, and funding sponsors. It also analyses keywords, abstracts, titles, and characteristics of the most cited documents. Additionally, it provides a brief account of the challenges for AR adaptation in education. Results and conclusions: The findings uncover an increased use of AR to promote enhanced learning in the education field. This work will provide the survey, limitations, and drawbacks, as well as open usability and technical issues that may represent new challenges for future research in this field. Lay Description: What is already known about this topic: AR has numerous potential applications in various everyday fields.The education sector is also one arena where AR has been implemented widely.AR in education can provide effective learning processes to students. What this paper adds: Survey of last 15 years (3909 documents) based on the Scopus database.Analysis of AR documents by authors, journals, countries, and funding agencies.Publication trends based on titles, keywords and abstract analysis.Literature survey for top 50 most cited publications on AR in education sector. Implications for practice and/or policy: An increased use of AR to promote enhanced learning in the education field.Reflects the limitations, drawbacks, open usability and technical issues.Future research challenges with AR adaptation in academics and other learners. [ABSTRACT FROM AUTHOR]
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- 2024
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30. Carelessness in higher education: How the neoliberal university shapes the experiences of food insecure student‐parents.
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Sallee, Margaret W., Hine, Joshua C., and Kohler, Christopher W.
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HIGHER education , *NEOLIBERALISM , *FOOD security , *PARENT-student relationships , *ENDOWMENT of research - Abstract
This qualitative case study explores how neoliberalism affects how food insecure student‐parents experience higher education. Drawing on interviews with administrators, student activists, and student‐parents at one U.S. research university, this article argues that neoliberalism's emphasis on revenue generation and a shift toward individualism has significant consequences for the most marginalized students, creating an environment in which the university provides few resources to support them. We suggest that campuses should take steps to dismantle the ethic of carelessness, a lack of attention to students' care responsibilities, that has pervaded higher education. Practical Takeaways: Universities increasingly rely on philanthropy to support marginalized students, but the reach of these philanthropic efforts is limited. In some cases, outside groups put stipulations on the receipt of funds, which shapes university programs.Although food insecurity has received increasing attention at research universities, student‐parents are often neglected in campuswide initiatives, leaving many to seek out supports on their own. [ABSTRACT FROM AUTHOR]
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- 2024
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31. Patterns of publicly funded naltrexone use among patients diagnosed with alcohol use disorder in Ontario.
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Tourchian, Nima, McCormack, Daniel, Leece, Pamela, Tadrous, Mina, and Gomes, Tara
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DIAGNOSIS of alcoholism , *RESEARCH funding , *POPULATION health , *HEALTH policy , *TREATMENT duration , *RETROSPECTIVE studies , *DESCRIPTIVE statistics , *LONGITUDINAL method , *PATIENT-centered care , *ENDOWMENT of research , *ALCOHOLISM , *LENGTH of stay in hospitals , *CONFIDENCE intervals , *NALTREXONE - Abstract
Aims Naltrexone is recommended first-line to manage alcohol use disorder (AUD). With previous studies indicating poor retention on naltrexone, we determined duration of naltrexone use and assessed the association between prescription setting and time to discontinuation in Ontario. Methods We conducted a retrospective population-based cohort study among Ontario public drug beneficiaries diagnosed with AUD who initiated publicly funded naltrexone from June 2018 to September 2019. The primary outcome was time to naltrexone discontinuation, with a secondary analysis assessing receipt of at least one prescription refill. We used Cox proportional hazards models and logistic regression to test the association between prescription setting and each medication persistence outcome. Results Among 2531 new naltrexone patients with AUD, the median duration of naltrexone use was 31 days and 394 (15.6%) continued naltrexone for 6 months or longer. There was no association between setting of initiation and duration of naltrexone use; however, those initiating naltrexone following an acute inpatient hospital stay were more likely to fill a second prescription (aOR 1.43, 95% CI 0.96–2.14), while those initiating after an ED visit were less likely to be dispensed a second prescription (aOR = 0.69, 95% CI 0.52–0.90) compared to those starting in a physician's office. Conclusion Persistence on naltrexone to treat an AUD is low, regardless of the setting of initiation. Further research is needed to elucidate the barriers encountered by patients with AUD that lead to poor treatment persistence in order to develop interventions that facilitate patient-centered access to evidence-based treatment for AUD in the province. [ABSTRACT FROM AUTHOR]
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- 2024
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32. Implementing Dysphagia Outcome Assessments into Clinical Settings: Leveraging Principles of Implementation, Dissemination, and Psychometrics.
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Krisciunas, Gintas P., Scheel, Rebecca, and Slavinc, Mary
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WEIGHT loss , *DIFFUSION of innovations , *MALNUTRITION , *PROFESSIONAL practice , *HEAD & neck cancer , *ASPIRATION pneumonia , *NEURODEGENERATION , *PSYCHOMETRICS , *QUALITY of life , *ENDOWMENT of research , *HEALTH outcome assessment , *STROKE , *BRAIN injuries , *LENGTH of stay in hospitals , *MEDICAL screening , *EVIDENCE-based medicine , *DEGLUTITION disorders , *DEHYDRATION , *MEDICAL care costs , *DISEASE risk factors , *DISEASE complications ,RESEARCH evaluation - Abstract
Purpose: Myriad dysphagia assessment tools have been designed, but their application is variable. This is partly due to a lack of implementation and dissemination strategy as well as to limited guidance regarding which instruments are optimally designed and best used for clinical and research applications. Method: This tutorial provides a high-level overview of implementation and dissemination, their interaction with psychometrics and knowledge coproduction, and how these concepts relate to proper development and widespread application of contextually relevant, psychometrically optimized, evidence-based dysphagia assessment instruments. Results: A review of the literature identified two dysphagia assessment instruments that purposefully integrated implementation and dissemination processes after measurement development. Application of knowledge coproduction was not identified in any papers reporting development and testing of dysphagia assessment instruments. A better understanding of coproduction and psychometrics when developing measures, while simultaneously applying implementation science and dissemination strategies, can result in the development of optimal dysphagia assessment tools that are more consistently adopted into clinical practice. Conclusions: Clinicians and researchers should promote the development of psychometrically sound measures, and employ principles of implementation science and effective dissemination strategies to advocate for, and promote the use of, well-designed instruments within their appropriate clinical contexts. Support from governing bodies and funding agencies could enhance future efforts to develop, and encourage widespread uptake of, optimally developed dysphagia assessment tools. [ABSTRACT FROM AUTHOR]
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- 2024
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33. A university-wide seed grant program accelerates interprofessional education through faculty and staff engagement.
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Kar, Rekha, Moote, Rebecca, Krolick, Keith A., Farokhi, Moshtagh R., Ford, Lark A., Quinene, Meredith, Ratcliffe, Temple A., Rockne, Meagan, and Zorek, Joseph A.
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PILOT projects , *PROFESSIONAL peer review , *PUBLISHING , *INTERDISCIPLINARY research , *ACADEMIC medical centers , *COLLEGE teachers , *HEALTH outcome assessment , *ENDOWMENT of research , *HUMAN services programs , *COMMUNICATION , *STUDENTS , *INTERDISCIPLINARY education , *ENDOWMENTS - Abstract
The University of Texas Health Science Center at San Antonio launched an annual university-wide seed grant program in 2019 to foster innovation in interprofessional education (IPE) and increase IPE opportunities for learners. Program objectives included leveraging hypothesis-driven research to identify sustainable IPE activities for integration into educational programs (i.e. mandated for at least one cohort of learners), increasing scholarly dissemination of IPE efforts, and using pilot data to secure extramural funding. Over the first four funding cycles (2019–2022), US$100,509.00 was awarded to support 22 IPE projects (10 curricular, 12 co-curricular) involving 80 faculty and staff collaborators and over 2,100 student participants. To date, funded projects have yielded nine sustained IPE activities (four of which have been integrated), produced 24 scholarly presentations and three peer-reviewed publications, and contributed to the success of one extramural grant. Barriers experienced are discussed in this report alongside lessons learned and unexpected positive outcomes, including identification of future IPE champions. [ABSTRACT FROM AUTHOR]
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- 2024
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34. Building bridges and breaking down silos: A framework for developing interdisciplinary, international academic-community research collaborations for the benefit of sexual and gender minority youth.
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Craig, Shelley L., Eaton, Andrew D., Brooks, Ashley S., McInroy, Lauren B., Lozano-Verduzco, Ignacio, Austin, Ashley, Dentato, Michael P., Mendoza Pérez, Juan Carlos, and McDermott, Daragh T.
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RESEARCH , *CULTURE , *INTERNATIONAL relations , *TIME , *PRACTICAL politics , *LANGUAGE & languages , *POPULATION geography , *ORGANIZATIONAL goals , *ENDOWMENT of research , *SEXUAL minorities , *INTERPROFESSIONAL relations , *EMPLOYEES' workload , *STUDENTS , *CONSORTIA , *ENDOWMENTS , *MEDICAL research , *CONCEPTS , *INFORMATION technology , *GOAL (Psychology) , *REFLECTION (Philosophy) , *POWER (Social sciences) - Abstract
Interdisciplinary collaboration fuels research innovation and funders are increasingly offering long-term grants prioritising partnerships. However, a gap remains regarding the effective development, evaluatation, and sustainment of research partnerships; particularly those supporting marginalised populations like sexual and gender minority youth (SGMY). There is a concomitant need to expand research internationally to cross-culturally conceptualise SGMY's experiences, which information and communication technologies (ICTs) may facilitate. The International Partnership for Queer Youth Resilience (INQYR) is a research consortium comprising over 40 academic and community representatives investigating and addressing issues faced by SGMY in Canada, the United Kingdom (UK), United States of America (USA), and Mexico from an interdisciplinary perspective by: (a) conducting and disseminating interventions and exploratory research on SGMY's ICT use, and (b) training cohorts of SGMY scholars and practitioners. This article details INQYR's rationale and formation, including its objectives and organisational framework. Facilitators and barriers are discussed through reflection on INQYR's first operational phase from 2018–2021, considering collaboration with diverse stakeholders and settings; shared goals; language and technology barriers; personal and workload barriers; infrastructure; and power and historical tensions. Implications for other research partnerships and concrete tools such as author guidelines for large-scale research partnership formation, operation, and evaluation are discussed. [ABSTRACT FROM AUTHOR]
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- 2024
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35. Knowledge mapping of surgical smoke from 2003 to 2022: a bibliometric analysis.
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Li, Chuang, Geng, Meng, Li, Shujun, Li, Xianglan, Li, Huiqin, Yuan, Hufang, and Liu, Fengxia
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AUTHORS , *BIBLIOMETRICS , *SERIAL publications , *ENDOSCOPIC surgery , *SURGICAL smoke , *CITATION analysis , *ENDOWMENT of research , *DESCRIPTIVE statistics , *DATA analysis software , *MEDICAL research , *ENDOSCOPY - Abstract
Purpose: The purpose of this study is to identify and characterize the literature on surgical smoke, visualize the data and sketch a certain trending outline. Methods: In the Web of Science Core Collection (WoSCC), all the data were acquired from January 1st 2003 to December 31st 2022. VOSviewer and CiteSpace were employed to visualize data, based on publications, bibliographic coupling, co-citation, or co-authorship relations. Microsoft Excel 2019 was used to comb and categorize all the statistics. Result: A total 363 of journal papers were retrieved. The publication number was in a slow but steady growth between 2003 and 2019, followed by a sharp surge in 2020, and then the publication kept in a productive way. Surgical endoscopy and other interventional techniques was the most active journal on surgical smoke. USA played an important role among all the countries/regions. There were 1847 authors for these 363 papers, among whom 44 authors published more than three articles on surgical smoke. "Surgical smoke", "covid-19" and "surgery" were the top 3 appeared keywords, while the latest hot-spot keywords were "COVID-19", "virus", "transmission", "exposure" and "risk". There were 1105 co-cited references and 3786 links appeared in all 363 articles. Among them, 38 references are cited more than 10 times. The most co-cited article was "Detecting hepatitis B virus in surgical smoke emitted during laparoscopic surgery." Based on the titles of references and calculated by CiteSpace, the top 3 cluster trend network are "laparoscopic surgery", "COVID-19 pandemic" and "surgical smoke". Conclusion: According to bibliometric analysis, the research on surgical smoke has been drawing attention of more scholars in the world. Increasing number of countries or regions added in this field, and among them, USA, Italy, and China has been playing important roles, however, more wide and intense cooperation is still in expectation. [ABSTRACT FROM AUTHOR]
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- 2024
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36. How "international" is international research collaboration?
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Gök, Abdullah and Karaulova, Maria
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CULTURE , *INTERNATIONAL relations , *AUTHORS , *CONFIDENCE intervals , *SERIAL publications , *PROFESSIONAL employee training , *POPULATION geography , *ENDOWMENT of research , *MAPS , *INTERPROFESSIONAL relations , *DESCRIPTIVE statistics , *MEDICAL research , *CORPORATE culture - Abstract
In the context of the increasing global connectivity in science, this article investigates the internal heterogeneity of international research collaborations (IRCs). We focus on the prevalence of shared heritage collaborations and the rise of multiple institutional affiliations as a collaboration mechanism. An analytical typology of IRCs based on the characteristics of collaborating researchers' location and heritage is developed and empirically tested on the dataset of Russia's publications in 2015. We found that shared heritage IRC and IRC via multiple affiliations are the cornerstones of internationalization. Significant structural differences are revealed between conventional IRC and these nonconventional IRCs across fields of science, locations, visibility of international partners, and the sources of funding. These results contribute towards a better understanding of IRC as a complex, heterogeneous phenomenon, which encompasses a variety of arrangements for knowledge creation across borders. A more nuanced understanding of IRC is needed for smarter university strategy, metric development, and policymaking. [ABSTRACT FROM AUTHOR]
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- 2024
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37. Collective effort to enhance the quality of research evidence in intellectual and developmental disabilities: a case study of an academic-practice network.
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Grindle, Corinna, Denne, Louise D., Roberts-Tyler, Emily J., Sapiets, Suzi Jayne, Apanasionok, Magda M., Hughes, J. Carl, Hastings, Richard P., Gore, Nick, Baker, Peter, and McDowell, Claire
- Subjects
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PATIENT selection , *INTERPROFESSIONAL relations , *PROFESSIONAL practice , *HUMAN research subjects , *ACADEMIA , *INTELLECTUAL disabilities , *DEVELOPMENTAL disabilities , *INSTITUTIONAL cooperation , *MEDICAL research , *BUSINESS networks , *PRIORITY (Philosophy) , *ENDOWMENT of research , *QUALITY assurance , *HEALTH facilities , *EVIDENCE-based medicine , *BEHAVIOR therapy ,RESEARCH evaluation - Abstract
Purpose: With a historic lack of attention to synthesis methods such as systematic review and meta-analysis and a lack of randomised controlled trials, the evidence base for behavioural interventions for children and adults who are autistic or are diagnosed with developmental disabilities is patchy. The Sharland Foundation Developmental Disabilities Applied Behavioural Research and Impact Network (SF-DDARIN), a network of like-minded researchers and practitioners across the UK, aims to address this. The purpose of this paper is to describe the network's work and provide the context for the remaining articles in the special issue that exemplify network projects. Design/methodology/approach: In this case study paper, the authors describe how the SF-DDARIN works and is resourced, detailing the process used to maximise research opportunities by facilitating network members working together. The authors outline the progressive research steps that the SF-DDARIN has identified are needed to develop and improve the evidence base for behavioural interventions systematically and, with examples, describe how the network delivers these steps. Findings: Since its establishment in 2016, the SF-DDARIN network members have collectively worked on more than 53 projects involving over 50 researchers, had over 120 special schools contribute to projects and have recruited over 500 participants. This has been achieved through funding from the Sharland Foundation, primarily to cover the staffing costs of a small support team and internship partnerships with external organisations. Some projects have attracted external funding. Originality/value: SF-DDARIN may provide an innovative, effective and resource-efficient model for other groups seeking to develop and extend their evidence base in developmental disability research. [ABSTRACT FROM AUTHOR]
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- 2024
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38. Health and Social Care Integration in Scotland: Evidence vs Rhetoric.
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DONALDSON, CAM, KNIGHT, PETER, NOBLE, ALASTAIR L., and STRATHEARN, SANDY
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DIFFUSION of innovations , *HEALTH policy , *GOAL (Psychology) , *HEALTH care reform , *ENDOWMENT of research , *SOCIAL support , *QUALITY assurance , *INTEGRATED health care delivery - Abstract
In this perspective paper we use publicly-available data to show that, despite much positive rhetoric in support of reforms in Scotland to integrate health and social care, these reforms, in their current state, have failed to meet their stated objectives. Rather than regress to the previous system, we propose continued evaluation of even more radical forms of such integration. This analysis, and set of future proposals, are timely given current considerations with respect to a National Care Service in Scotland and recent similar reforms in England and in other countries. [ABSTRACT FROM AUTHOR]
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- 2024
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39. Measuring the social impact of funded research over nonfunded: a case study of BRICS.
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Shueb, Sheikh, Gul, Sumeer, Kharadi, Aabid Hussain, Nisa, Nahida Tun, and Gulzar, Farzana
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SERIAL publications , *PERIODICAL articles , *DESCRIPTIVE statistics , *ALTMETRICS , *ENDOWMENT of research , *MEDICAL research , *BIBLIOMETRICS , *ONE-way analysis of variance , *IMPACT factor (Citation analysis) , *DATA analysis software , *COMPARATIVE studies ,DEVELOPING countries - Abstract
Purpose: The study showcases the social impact (online attention) of funded research compared to nonfunded for the BRICS nations. The key themes achieving online attention across the funded and nonfunded publications have also been identified. Design/methodology/approach: A total of 1,507,931 articles published across the BRICS nations for a period of three (03) years were downloaded from the Clarivate Analytics' InCites database of Web of Science (WoS). "Funding Acknowledgement Analysis (FAA)" was used to identify the funded and nonfunded publications. The altmetric score of the top highly cited (1%) publications was gauged from the largest altmetric data provider, "Altmetric.com", using the DOI of each publication. One-way ANOVA test was used to know the impact of funding on the mentions (altmetrics) across different data sources covered by Altmetric.com. The highly predominant keywords (hotspots) have been mapped using bibliometric software, "VOSviewer". Findings: The mentions across all the altmetric sources for funded research are higher compared to nonfunded research for all nations. It indicates the altmetric advantage for funded research, as funded publications are more discussed, tweeted, shared and have more readers and citations; thus, acquiring more social impact/online attention compared to nonfunded publications. The difference in means for funded and nonfunded publications varies across various altmetric sources and nations. Further, the authors' keyword analysis reveals the prominence of the respective nation names in publications of the BRICS. Research limitations/implications: The study showcases the utility of indexing the funding information and whether research funding increases social impact return (online attention). It presents altmetrics as an important impact assessment and evaluation framework indicator, adding one more dimension to the research performance. The linking of funding information with the altmetric score can be used to assess the online attention and multi-flavoured impact of a particular funding programme and source/agency of a nation so that necessary strategies would be framed to improve the reach and impact of funded research. It identifies countries that achieve significant online attention for their funded publications compared to nonfunded ones, along with the key themes that can be utilised to frame research and investment plans. Originality/value: The study represents the social impact of funded research compared to nonfunded across the BRICS nations. [ABSTRACT FROM AUTHOR]
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- 2024
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40. Clinical academics' experiences of REF2021.
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Davies, Angharad P., McKinley, Robert, Gabbay, Mark, Katz, David, and Strain, W. David
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ENDOWMENTS , *UNIVERSITIES & colleges , *QUESTIONNAIRES , *RESEARCH , *ENDOWMENT of research , *CLINICAL education , *QUALITY assurance , *EVALUATION - Abstract
The UK Research Excellence Framework (REF) is an assessment of the quality of research carried out in UK Higher Education Institutions (HEIs), performed in 7-year cycles. The outcome impacts the rankings and funding of UK HEIs, which afford the exercise high priority. Much of what REF measures is known to be biased against academics with protected characteristics: for example, women and ethnic minority researchers are less likely to win grants or be published in prestigious journals. Despite changes to REF since 2014, the risk remains that the process might amplify well-recognised existing disparities. The BMA Women in Academic Medicine and Medical Academic Staff Committee carried out a survey of UK clinical academics' experiences of REF2021. The data indicated the persistence of activities previously characterised as 'extremely harmful' in Research England-commissioned work, affecting up to 10% of clinical academics. While acknowledging the limitations of the data, women appeared to be disproportionately affected. [ABSTRACT FROM AUTHOR]
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- 2024
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41. Science is not a Straight Line: An Interview with Dr. Alan Bernstein.
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Ladak, Aly Muhammad and Nwajei, Ekenedilichukwu
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VOCATIONAL guidance , *SOCIAL support , *GENETICS , *SCHOLARLY method , *REPORT writing , *MOTIVATION (Psychology) , *AGE distribution , *WORK , *ENDOWMENT of research , *MEDICAL care research , *ORGANIZATIONAL goals , *RESPONSIBILITY , *GOVERNMENT agencies , *INTERPROFESSIONAL relations , *STUDENTS , *EMOTIONS , *MEDICAL research , *AUTHORSHIP , *CORPORATE culture , *GOAL (Psychology) - Published
- 2024
42. Providing technical assistance to inclusive postsecondary education programs on paid employment experiences of college students with intellectual and developmental disabilities: A case study.
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McKelvey, Susan P., Lambert, Aliza, Camden, Jaclyn, Getzel, Elizabeth Evans, and Norris, Spenser
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SPECIAL education , *COLLEGE students , *EMPLOYMENT of people with disabilities , *STRATEGIC planning , *WORK , *DEVELOPMENTAL disabilities , *CURRICULUM , *HUMAN services programs , *INTERNSHIP programs , *ENDOWMENT of research , *EXPERIENTIAL learning , *UNIVERSITIES & colleges , *RESEARCH funding , *NEEDS assessment , *PSYCHOLOGICAL adaptation , *INTELLECTUAL disabilities , *GOAL (Psychology) - Abstract
BACKGROUND: Students with intellectual and developmental disabilities lag behind their peers without disabilities when it comes to participation in college and employment. In response to this, researchers at Virginia Commonwealth University (VCU) created an online, six-week course for staff who work with students with disabilities in inclusive postsecondary education (IPSE) programs. OBJECTIVE: To create a course and technical assistance (TA) based on implementing supported employment strategies through VCU's ACE-IT in College model, using evidence-based employment practices. The course and TA were developed to increase the skills of IPSE program staff, as well as increase the number of paid internship opportunities for the students in their programs. METHODS: VCU staff offered a six-week training program, followed by yearlong technical assistance to college and university staff who implement inclusive postsecondary education programs. The researchers conducted a case study of one program and followed them through the course and their TA activities. Data examined were: facilitated discussion board responses, needs assessment results, meeting notes and case study notes, as well as goals and strategies they developed. RESULTS: Results indicate a need for more staff and funding, as well as university buy-in. The fidelity of implementation allowed researchers to make slight adjustments for future TA participants. CONCLUSION: One participating program emerged as a case study site, and results indicate a need for more staff and funding. Detailed descriptions and technical assistant support strategies are provided, as well as implications for further research. [ABSTRACT FROM AUTHOR]
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- 2024
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43. Women's health in 2024: change now for tomorrow will be too late.
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Carneiro, Márcia Mendonça
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VIOLENCE prevention , *INVESTMENTS , *NON-communicable diseases , *SERIAL publications , *MEDICAL care , *MEDICAL care research , *ENDOWMENT of research , *HEALTH equity , *SUSTAINABLE development , *ECONOMIC aspects of diseases , *RESPECT , *WOMEN'S health , *WOMEN'S health services , *MEDICAL needs assessment - Published
- 2024
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44. Federally funded genomic research probes cognitive link to illness.
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Enos, Gary
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COGNITION , *GENETIC variation , *ENDOWMENT of research , *GENOMES , *GENOTYPES , *GOVERNMENT aid , *GENETIC research , *MENTAL illness - Abstract
An investigator at the New York‐based Feinstein Institutes for Medical Research contends that a new $3.1 million grant from the National Institutes of Health (NIH) will help expand understanding of the genetics of cognitive function and their connection to major mental illnesses. Findings in this area could ultimately lead to breakthrough treatments for neuropsychiatric disorders such as schizophrenia, major depression, autism spectrum disorders and attention deficit hyperactivity disorder (ADHD). [ABSTRACT FROM AUTHOR]
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- 2024
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45. Involving patients and the public in nursing PhD projects: practical guidance, potential benefits and points to consider.
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McParland, Chris, Johnston, Bridget, Alassoud, Bahaa, Drummond, Maria, Farnood, Annabel, Purba, Chandra Isabella Hostanida, Seckin, Muzeyyen, and Thanthong, Saengrawee
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HUMAN research subjects , *PARTICIPANT-researcher relationships , *GRADUATE nursing education , *PATIENT selection , *MEDICAL research personnel , *ENDOWMENT of research , *NURSING research , *DOCTORAL programs , *NURSES , *ACADEMIC dissertations - Abstract
Why you should read this article: • To gain insight into patient and public involvement in research • To understand how PhD students can involve patients and the public in the planning and conduct of their research • To find out about the benefits of involving patients and the public in PhD research projects Background: Funders, academic publishers and governance bodies increasingly require research to involve patients and the public. This also enables nurse researchers to increase the visibility of scholarly nursing roles, which are poorly understood by the public. There are different approaches to involvement, and a wealth of guidance about how it can and should be implemented. Less is known about how it should be done in the context of a nursing PhD. Aim: To discuss the experiences of the authors' nursing research group in involving patients and the public in PhD research, reflect on the benefits to be gained from doing so, and highlight considerations for those planning to involve patients and the public in their doctoral research projects. Discussion: It is essential to decide in advance of a study who you will involve, how to reach them and why you are involving patients and the public. Some potential benefits of involvement are: more accessible documentation, refined methods and better research outputs created in collaboration with patients and the public. Conclusion: Patients and the public should be involved in nursing PhD projects. Not only does this improve the quality of the research and raise the profile of nursing research, but it provides the opportunity for students to learn skills that they can develop further throughout their academic careers. Implications for practice: Obtaining high-quality patient and public involvement is an important skill for nurse researchers. The first steps in acquiring this skill should be taken during research training. [ABSTRACT FROM AUTHOR]
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- 2023
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46. Reducing Fear to Help Build Healthy Families: Investing in Non-Punitive Approaches to Helping People with Substance Use Disorder.
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Scott, Karen A., Shogren, Maridee, and Shatzkes, Kenneth
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MATERNAL health services , *HEALTH policy , *CHARITY , *SOCIAL support , *SUBSTANCE abuse treatment , *CONVALESCENCE , *DRUG overdose , *FEAR , *FAMILY health , *PREGNANT women , *HELP-seeking behavior , *RULES , *SOCIAL stigma , *ENDOWMENT of research , *CHILD welfare , *COMMUNITY-based social services , *INTERPROFESSIONAL relations , *MATERNAL mortality , *DRUG abusers , *PARENTS , *TRUST , *OPIOID abuse - Abstract
Background: Many pregnant and parenting people with substance use disorders (SUD) refrain from seeking perinatal care or treatment for their SUD for fear of being treated poorly by health care providers and/or triggering a child welfare investigation. For those who do seek treatment, there are relatively few clinicians willing and able to prescribe medications for opioid use disorder (MOUD) to pregnant people. Both stigma and lack of access to treatment put many pregnant and parenting people at risk. Drug-related deaths contribute significantly to U.S. maternal mortality rates, with people at especially high risk of drug overdose in the months following delivery. Methods: The Foundation for Opioid Response Efforts (FORE) is a national philanthropy focused on finding and fostering solutions to the opioid crisis. We draw lessons from our grantees' efforts to expand access to substance use treatment and recovery supports for pregnant and parenting people. Results: To build systems of care that ensure more pregnant people get timely perinatal care, we need to expand training for perinatal providers on how to provide OUD treatment, clarify child welfare reporting rules, and engage and support trusted organizations and community-based services. Conclusions: In addition to changes to our systems of SUD treatment and recovery, we need greater philanthropic investment in efforts to combat the public health crisis of substance use and overdose among pregnant and parenting people. Private funders have the leeway to act quickly, take risks, and demonstrate the effectiveness of new approaches, building the case for investment of public resources in such initiatives. Significance: The continuing high rates of overdose deaths in the U.S. intersect with maternal mortality and morbidity, as well as family health. Private foundations along with public agencies have significant opportunities to align work on both issues to save lives. [ABSTRACT FROM AUTHOR]
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- 2023
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47. Development of a consumer involvement strategy for a small university‐based musculoskeletal research centre.
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Nelligan, Rachel K., Haber, Travis, Bennell, Kim L., Hinman, Rana S., Bidgood, Neil, Marlow, Jennifer, and Lawford, Belinda J.
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PATIENT participation , *MUSCULOSKELETAL system , *HUMAN services programs , *ENDOWMENT of research , *RESEARCH funding , *INTERPROFESSIONAL relations , *UNIVERSITIES & colleges , *OSTEOARTHRITIS , *MEDICAL research - Abstract
Objective: To develop a Consumer Involvement Strategy which adheres to best practice recommendations and is feasible to implement in a small musculoskeletal research centre funded solely by external grants. Methods: The Strategy development involved five collaborative and iterative stages: (1) conceptualisation and initial consultation; (2) formation of the Consumer Involvement Strategy Action Group; (3) defining the scope and developing the strategy; (4) consultation and refinement; and (5) presentation and implementation. The final three stages were overseen by a Consumer Involvement Strategy Action Group comprising two post‐doctoral research fellows, a PhD student representative, and two consumers (people with osteoarthritis), all with experience in consumer involvement activities in research. Results: The final strategy aligns with best practice recommendations and includes five unique levels of consumer involvement that were devised to encompass the wide variety of consumer involvement activities across the research centre. It includes a policy document with five strategic aims, each supported by an implementation plan, and includes a suite of resources for researchers and consumers to support its application. Conclusion: The Consumer Involvement Strategy and its described development may serve as a template for other research teams facing similar resource constraints, both at a national and international level. [ABSTRACT FROM AUTHOR]
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- 2023
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48. Delivering complex surgical services: lessons learned from the evolution of a specialised pelvic exenteration centre.
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Brown, Kilian G. M., McBride, Kate E., Anderson, Teresa, and Solomon, Michael J.
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AUDITING , *PELVIC exenteration , *SOCIAL support , *OPERATIVE surgery , *HEALTH facility administration , *MEDICAL care , *ENDOWMENT of research , *HEALTH care teams , *INTERPROFESSIONAL relations ,PELVIC tumors - Abstract
Pelvic exenteration (PE) is a potentially curative, ultra-radical surgical procedure for the treatment of advanced pelvic tumours, which involves surgical resection of multiple pelvic organs. Delivering such a complex low-volume, high-cost surgical program presents a number of unique health management challenges, and requires an organisation-wide approach involving both clinical and administrative teams. In contrast to the United Kingdom and France, where PE services have been historically decentralised, a centralised approach was developed early on in Australia and New Zealand (ANZ) with referral of these complex patients to a small number of quaternary centres. The PE program at the authors’ institution was established in 1994 and has since evolved into the highest volume PE centre in the ANZ region and the largest single institution experience globally. These achievements have required navigation of specific funding and management issues, supported from inception by a proactive and collaborative relationship with hospital administration and management. The comprehensive statewide quaternary referral model that has been developed has subsequently been successfully applied to other complex surgical services at the authors’ institution, as well as by more recently established PE centres in Australia. This article aims to summarise the authors’ experience with establishing and expanding this service and the lessons learned from a health management perspective. [ABSTRACT FROM AUTHOR]
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- 2023
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49. The state of integrated disease surveillance in seven countries: a synthesis report.
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Lee, A.C.K., Iversen, B.G., Lynes, S., Rahman-Shepherd, A., Erondu, N.A., Khan, M.S., Tegnell, A., Yelewa, M., Arnesen, T.M., Gudo, E.S., Macicame, I., Cuamba, L., Auma, V.O., Ocom, F., Ario, A.R., Sartaj, M., Wilson, A., Siddiqua, A., Nadon, C., and MacVinish, S.
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PUBLIC health surveillance , *FOCUS groups , *CLINICAL governance , *ORGANIZATIONAL structure , *PUBLIC health , *INTERVIEWING , *HUMAN services programs , *CONCEPTUAL structures , *LABOR supply , *ABILITY , *TRAINING , *ENDOWMENT of research , *QUALITATIVE research , *INTEGRATED health care delivery , *THEMATIC analysis , *FINANCIAL management - Abstract
Integrated disease surveillance (IDS) offers the potential for better use of surveillance data to guide responses to public health threats. However, the extent of IDS implementation worldwide is unknown. This study sought to understand how IDS is operationalized, identify implementation challenges and barriers, and identify opportunities for development. Synthesis of qualitative studies undertaken in seven countries. Thirty-four focus group discussions and 48 key informant interviews were undertaken in Pakistan, Mozambique, Malawi, Uganda, Sweden, Canada, and England, with data collection led by the respective national public health institutes. Data were thematically analysed using a conceptual framework that covered governance, system and structure, core functions, finance and resourcing requirements. Emerging themes were then synthesised across countries for comparisons. None of the countries studied had fully integrated surveillance systems. Surveillance was often fragmented, and the conceptualization of integration varied. Barriers and facilitators identified included: 1) the need for clarity of purpose to guide integration activities; 2) challenges arising from unclear or shared ownership; 3) incompatibility of existing IT systems and surveillance infrastructure; 4) workforce and skills requirements; 5) legal environment to facilitate data sharing between agencies; and 6) resourcing to drive integration. In countries dependent on external funding, the focus on single diseases limited integration and created parallel systems. A plurality of surveillance systems exists globally with varying levels of maturity. While development of an international framework and standards are urgently needed to guide integration efforts, these must be tailored to country contexts and guided by their overarching purpose. [ABSTRACT FROM AUTHOR]
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- 2023
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50. Shared goals for mental health research: what, why and when for the 2020s.
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Wykes, Til, Bell, Andy, Carr, Sarah, Coldham, Tina, Gilbody, Simon, Hotopf, Matthew, Johnson, Sonia, Kabir, Thomas, Pinfold, Vanessa, Sweeney, Angela, Jones, Peter B., and Creswell, Cathy
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MENTAL illness treatment , *MENTAL illness prevention , *PSYCHIATRY , *RESEARCH , *PUBLIC health , *CLINICAL medicine research , *NATIONAL health services , *ENDOWMENT of research , *MEDICAL referrals , *DECISION making , *GOAL (Psychology) - Abstract
Mental health problems bring substantial individual, community and societal costs and the need for innovation to promote good mental health and to prevent and treat mental health problems has never been greater. However, we know that research findings can take up to 20 years to implement. One way to push the pace is to focus researchers and funders on shared, specific goals and targets. We describe a consultation process organised by the Department of Health and Social Care and convened by the Chief Medical Officer to consider high level goals for future research efforts and to begin to identify UK-specific targets to measure research impact. The process took account of new scientific methods and evidence, the UK context with a universal health care system (the NHS) and the embedded research support from the National Institute for Health Research Clinical Research Network, as well as the views of individual service users and service user organisations. The result of the consultation is a set of four overarching goals with the potential to be measured at intervals of three, five or ten years. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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