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Introduction: Healthcare advances have allowed an increase in the survival of paediatric patients with neurological diseases. As a result, it is increasingly common to find these patients in adult neurology consultations. The aim of this study is to evaluate the current level of consensus on the transition of neuropaediatric patients among neurology and paediatric professionals in the Balearic Islands. Material and methods: We conducted an observational, analytical, cross-sectional study through an anonymous questionnaire consisting of 27 questions, which was distributed to neurologists, paediatric neurologists, hospital paediatricians, and primary care paediatricians in the healthcare network of the Balearic Islands. It was developed using Google Forms and distributed by the competent professional societies. Consensus was considered to exist for answers with 70% or more agreement. Results: Responses were received from 58 professionals; 46.6% were hospital paediatricians, 29.9% were neurologists, 13.8% were paediatric neurologists, and 13.8% were primary care paediatricians. Among other issues, consensus was observed on the need for a transition programme for patients with neurological diseases. No consensus was observed regarding the duration of the transition (P=.029) and how long simultaneous follow-up must last after the transfer (P=.09). Conclusions: Due to increased survival rates, there is a need to create transition programmes for paediatric patients with neurological diseases. In our study, more than 70% of professionals believed that it would be beneficial to create such programmes. Resumen: Introducción: Los avances sanitarios han permitido un aumento de la supervivencia de pacientes pediátricos con enfermedades neurológicas. Por ello, cada vez es más frecuente encontrarlos en consultas de neurología de adultos. El objetivo de este estudio es evaluar el nivel de consenso actual sobre la transición del paciente neuropediátrico entre los profesionales de la neurología y de la pediatría de nuestra comunidad autónoma. Material y métodos: Estudio observacional, analítico y transversal a través de una encuesta anónima que consta de 27 preguntas realizada a neurólogos, neuropediatras, pediatras hospitalarios y pediatras de atención primaria de la red sanitaria de las Islas Baleares. Se ha llevado a cabo mediante un formulario Google y la difusión se ha realizado a través de las sociedades profesionales correspondientes. Se considera que existe consenso en aquellas respuestas que han obtenido el 70% o más de coincidencia. Resultados: Han respondido 58 participantes, donde el 46,6% son pediatras hospitalarios, 29,9% neurÓlogos, 13,8% neuropediatras y 13,8% pediatras de atención primaria. Se ha alcanzado consenso, entre otras cuestiones, en la necesidad de un programa de transición para pacientes con enfermedades neurológicas. No se ha alcanzado en la duración de la transición (p = 0,029) y cuánto tiempo tiene que durar el seguimiento simultáneo tras la transferencia (p = 0,09). Conclusiones: Debido a la mayor supervivencia de los pacientes pediátricos con enfermedades neurológicas se plantea la necesidad de crear programas de transición para estos pacientes. En nuestro estudio más del 70% de los profesionales cree que sería beneficioso formar programas de transición.

Introduction: Sleep disorders are common in children with neurological disorders. The aim of this study is to know the opinion of neuropediatricians and the prevalence of these disturbances in Spain., Patients and Methods: Multicenter cross-sectional study (12 Spanish hospitals, 15 researchers). BEARS survey was collected in three groups: A (2-5 years), (6-12 years), and C (> 12 years). The opinion of neuropediatricians was also collected., Results: 939 questionnaires were filled. The main results in groups B and C were ADHD (32.4% and 30.1% respectively) and headache (25.1% and 27.6% respectively), whereas in group A neurodevelopmental disorders (32.4%) and epilepsy (21.4%) were the main diagnoses. Disturbances in at least one area of sleep were found in 92% of children in group A (n = 209, mean 3 years), 64.2% in group B (n = 534, mean 9.4 years) and 58.2% in group C (n = 196, mean 13.7 years). Sixty-one surveys were answered by neuropediatricians (16.75% of the total sent), estimating that less than a quarter of the patients (24.5%) suffered. Even, up to 23% of doctors claimed that the prevalence of sleep disorders was < 10%., Conclusions: 58-92% of parents-patients under follow up at a neuropediatrician office in Spain have some degree of disturbed sleep. Although most neurologists emphasize the importance of an early diagnosis and treatment of sleep disorders in children with neurological disorders, its frequency is often underestimated (risk of underdiagnosis).