1. Their Last Breath
- Author
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Deborah Helsel, Kao Shoua Thao, and Robin L. Whitney
- Subjects
Adult ,Male ,Hmong American ,Attitude to Death ,Palliative care ,common ,MEDLINE ,Grounded theory ,Interviews as Topic ,03 medical and health sciences ,0302 clinical medicine ,Nursing ,030502 gerontology ,Surveys and Questionnaires ,Health care ,Humans ,Qualitative Research ,Biomedicine ,Advanced and Specialized Nursing ,Community and Home Care ,Terminal Care ,Asian ,Family caregivers ,business.industry ,common.demographic_type ,Middle Aged ,030220 oncology & carcinogenesis ,Grounded Theory ,Female ,0305 other medical science ,business ,Psychology ,Qualitative research - Abstract
Hmong Americans have typically been unwilling to use biomedical palliative care for end-of-life needs. This has resulted in confusion and frustration for Hmong patients, families, and nurses. Hmongs' end-of-life care choices for family members usually involve in-home caregiving provided by the family using a combination of biomedicine and traditional healing methods. Health care decisions are made for the patient by the family and community in this familistic culture. A qualitative approach was used to explore the beliefs that ultimately determine end-of-life care goals and strategies for Hmong patients. Semistructured interviews were conducted with 15 family caregivers of terminally ill patients and 5 shamans and Hmong funeral officiants. Several themes affecting care choices were identified, including cultural legacies of the responsibility of end-of-life caregiving by the family, the desire for family privacy in caregiving, and the role of community in the care for the dying, as well as completion of the rituals that ensure the soul of the deceased reaches the afterlife. Suggestions for improving communication between Hmongs and biomedical providers include providing information about end-of-life care beliefs and strategies to biomedical care providers and providing information to Hmong patients and families about hospice and palliative care options and services to support family care.
- Published
- 2020