17 results on '"Coolican, Helen"'
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2. Participant Perceptions in a Long-term Clinical Trial of Autosomal Dominant Polycystic Kidney Disease
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Amin, Sneha, Sangadi, Irene, Allman-Farinelli, Margaret, Badve, Sunil V., Boudville, Neil, Coolican, Helen, Coulshed, Susan, Foster, Sheryl, Fernando, Mangalee, Haloob, Imad, Harris, David C.H., Hawley, Carmel M., Holt, Jane, Howell, Martin, Kumar, Karthik, Johnson, David W., Lee, Vincent W., Mai, Jun, Rangan, Anna, Roger, Simon D., Sud, Kamal, Torres, Vicente, Vilayur, Eswari, and Rangan, Gopala K.
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- 2023
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3. Diet and Polycystic Kidney Disease: Nutrients, Foods, Dietary Patterns, and Implications for Practice
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Lambert, Kelly, Gardos, Robert, Coolican, Helen, Pickel, Lauren, Sung, Hoon-Ki, Wang, Angela Yee-Moon, and Ong, Albert CM
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- 2023
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4. Consumer involvement in the development and dissemination of chronic kidney disease guidelines: a summary of a meaningful and sustainable approach developed by Caring for Australians and New ZealandeRs with kidney Impairment guidelines
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Scholes-Robertson, Nicole, primary, Guha, Chandana, additional, Gutman, Talia, additional, Howell, Martin, additional, Yip, Adela, additional, Cashmore, Brydee, additional, Roberts, Ieyesha, additional, Lopez-Vargas, Pamela, additional, Wong, Germaine, additional, MacGinley, Robert, additional, Synnot, Anneliese, additional, Craig, Jonathan C., additional, Jauré, Allison, additional, Krishnasamy, Rathika, additional, Tunnicliffe, David J., additional, Lee, Vincent, additional, Boag, Jane, additional, Coolican, Helen, additional, Cullen, Vanessa, additional, Fortnum, Debbie, additional, Hassan, Hicham, additional, Jun, Min, additional, Lambert, Kelly, additional, Light, Casey, additional, Nguyen, Thu, additional, Palmer, Suetonia, additional, Scuderi, Carla, additional, See, Emily, additional, Viecelli, Andrea, additional, and Walker, Rachael, additional
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- 2024
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5. Australian and New Zealand Living Guideline cholesterol‐lowering therapy for people with chronic kidney disease (CARI Guidelines): Reducing the evidence‐practice gap.
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Cashmore, Brydee, Tunnicliffe, David J., Palmer, Suetonia, Blythen, Llyod, Boag, Jane, Kostner, Karam, Krishnasamy, Rathika, Lambert, Kelly, Miller, Andrea, Mullan, Judy, Patu, Maira, Phoon, Richard K. S., Rix, Liz, Trompf, Natasha, Johnson, David W., Walker, Robert, Lee, Vincent, Coolican, Helen, Cullen, Vanessa, and Fortnum, Debbie
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CHRONIC kidney failure ,INDIGENOUS Australians ,MAORI (New Zealand people) - Abstract
Aim: People with chronic kidney disease experience high rates of cardiovascular disease. Cholesterol‐lowering therapy is a mainstay in the management but there is uncertainty in the treatment effects on patient‐important outcomes, such as fatigue and rhabdomyolysis. Here, we summarise the updated CARI Australian and New Zealand Living Guidelines on cholesterol‐lowering therapy in chronic kidney disease. Methods: We updated a Cochrane review and monitored newly published studies weekly to inform guideline development according to international standards. The Working Group included expertise from nephrology, cardiology, Indigenous Health, guideline development and people with lived experience of chronic kidney disease. Results: The guideline recommends people with chronic kidney disease (eGFR ≥15 mL/min/1.73 m2) and an absolute cardiovascular risk of 10% or higher should receive statin therapy (with or without ezetimibe) to reduce the risk of cardiovascular events and death (strong recommendation, moderate certainty evidence). The guidelines also recommends a lower absolute cardiovascular risk threshold (≥5%) for Aboriginal and Torres Strait Islander Peoples and Māori with chronic kidney disease to receive statin therapy (with or without ezetimibe) (strong recommendation, low certainty evidence). The evidence was actively surveyed from 2020–2023 and updated as required. No changes to guideline recommendations were made, with no new data on the balance and benefits of harms. Conclusions: The development of living guidelines was feasible and provided the opportunity to update recommendations to improve clinical decision‐making in real‐time. Living guidelines provide the opportunity to transform chronic kidney disease guidelines. Summary at a glance: In people >30 with chronic kidney disease not requiring dialysis and a 5‐year cardiovascular risk ≥10% cholesterol‐lowering therapy is effective at preventing death and cardiovascular events with minimal harms. Indigenous populations should receive cholesterol‐lowering therapy at a lower absolute cardiovascular risk (≥5%) due to a higher burden of cardiovascular disease. [ABSTRACT FROM AUTHOR]
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- 2024
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6. Prescribed Water Intake in Autosomal Dominant Polycystic Kidney Disease
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Rangan, Gopala K., primary, Wong, Annette T.Y., additional, Munt, Alexandra, additional, Zhang, Jennifer Q.J., additional, Saravanabavan, Sayanthooran, additional, Louw, Sandra, additional, Allman-Farinelli, Margaret, additional, Badve, Sunil V., additional, Boudville, Neil, additional, Chan, Jessie, additional, Coolican, Helen, additional, Coulshed, Susan, additional, Edwards, Marie E., additional, Erickson, Bradley J., additional, Fernando, Mangalee, additional, Foster, Sheryl, additional, Gregory, Adriana V., additional, Haloob, Imad, additional, Hawley, Carmel M., additional, Holt, Jane, additional, Howard, Kirsten, additional, Howell, Martin, additional, Johnson, David W., additional, Kline, Timothy L., additional, Kumar, Karthik, additional, Lee, Vincent W., additional, Lonergan, Maureen, additional, Mai, Jun, additional, McCloud, Philip, additional, Pascoe, Elaine, additional, Peduto, Anthony, additional, Rangan, Anna, additional, Roger, Simon D., additional, Sherfan, Julie, additional, Sud, Kamal, additional, Torres, Vicente E., additional, Vilayur, Eswari, additional, and Harris, David C.H., additional
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- 2022
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7. Establishing core outcome domains in pediatric kidney disease: report of the Standardized Outcomes in Nephrology—Children and Adolescents (SONG-KIDS) consensus workshops
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Guha, Abhjit, Solarin, Adaobi, Sinha, Aditi, Platona, Adriana, Hamilton, Alexander, Woods-Barnard, Alice, Neu, Alicia, Tong, Allison, Dart, Allison, Eddy, Allison, Karathanas, Alyssa, Baumgart, Amanda, Fielding, Amelia, LePage, Amelia, Bernier-Jean, Amelie, Kelly, Amy, Teixeira, Ana, Viecelli, Andrea, Matus, Andrea, Narva, Andrew, Ju, Angela, Wang, Angela Yee-Moon, Sharma, Ankit, Fielding, Anna, Francis, Anna, Meza, Anthony, Fielding, Aria, Teixeira-Pinto, Armando, Bagga, Arvind, Jankauskienė, Augustina, Kelly, Ayano, Gillespie, Barbara, Sautenet, Benedicte, Vogt, Beth, Foster, Bethany, Warady, Bradley, Dixon, Bradley, Manns, Braden, Hemmelgarn, Brenda, Bscardark, Brittney, Romeo, Brooklyn, Hanson, Camilla, Meza, Carlos, Brockett, Carter, Guha, Chandana, Prestidge, Chanel, Logeman, Charlotte, Green, Charmaine, Sanchez-Kazi, Cheryl, Perkins, Christy, Schmitt, Claus Peter, Fielding, Craig, Settee, Craig, Sumpton, Daniel, Meza, Daniel, Karathanas, Darien, Harris, David, Wheeler, David, Hooper, David, Gipson, Debbie, Geary, Denis, Bockenhauer, Detlef, Haffner, Dieter, Mekahli, Djalila, Drozdz, Dorota, Romeo, Ed, Ku, Elaine, Urbina, Elaine, Levtchenko, Elena, Balovlenkov, Elena, Hodson, Elisabeth, Morales, Emily, O'Lone, Emma, Machuca, Emma, Carlton, Emmah, Au, Eric, Olver, Erin, Morales, Estefania, Mirza, Fatima, Mackie, Fiona, Tentori, Francesca, Schaefer, Franz, Higgins, Gail, Deschenes, Georges, Plunkett, Georgia, Yoder, Gerilyn, Wong, Germaine, Morales, Giselle, Germino, Greg, Desmond, Hailey, Perkins, Hayley, Mitchell-Smith, Harrison, Coolican, Helen, Xu, Hong, Yap, Hui-Kim, Anochie, Ifeoma, Ha, Il-Soo, Davis, Ira, Liu, Isaac, Samaniego, Israel, Groothoff, Jaap, Machuca, Jaime, Machuca, James, Kerklaan, Jasmijn, Brockett, Jeff, Norton, Jenna, Shen, Jenny, Goebel, Jens, Rao, Jia, Machuca, Jimmy, Mitchell-Smith, Jo, Watson, Jo, Gill, John, Craig, Jonathan, Flynn, Joseph T., Kausman, Joshua, Samuels, Joshua, Bacchetta, Justine, Yoder, Kaleb, Manera, Karine, Azukaitis, Karolis, Twombley, Katherine, McMichael, Kelly-Ann, Ishikura, Kenji, Romeo, Kennedy, Settee, Kevin, Van, Kim Linh, McMichael, Lachlan, Trinh, Lany, Greenbaum, Larry, Sanchez, Laura, Fielding, Leo, Rees, Lesley, Lippincott, Leslie, Mejia-Saldivar, Levi, Saldivar, Lidia, Guay-Woodford, Lisa, Samaniego, Lizett, Hamiwka, Lorraine, Bell, Lorraine, Dunn, Louese, Barry, Lucinda, Macauley, Luke, Holmes, Luke, Karathanas, Madelynn, Mitchell-Smith, Madison, Walker, Mandy, Benavides, Manuel, Tonelli, Marcello, Ferris, Maria, Vivarelli, Marina, Wolfenden, Mark, Howell, Martin, Christian, Martin, Schreiber, Martin, Moxey-Mims, Marva, Leonard, Mary, Karathanas, Matthew, Pearl, Meghan, Natatmadja, Melissa, Brockett, Melissa, Bonilla-Felix, Melvin, Atkinson, Meredith, Zappitelli, Michael, Baum, Michel, Rheault, Michelle, McCulloch, Mignon, Matsuda-Abedini, Mina, Michael, Mini, Khan, Mohammad, Salih, Mohammad, Carlton, Mycah Ann, Benador, Nadine, Plunkett, Ngairre, Webb, Nick, Scholes-Robertson, Nicki, Larkins, Nicolas, Evangelidis, Nicole, Yoder, Nigel, Meza, Norma, Olver, Paige, Carlton, Paiyton, Brophy, Patrick, Tugwell, Peter, Cochat, Pierre, Mehrotra, Rajnish, Wolfenden, Raphael, Gbadegesin, Rasheed, Benavides, Raymond, Johnson, Rebecca, Morales, Ricardo, Jr., McGee, Richard, Fish, Richard, Gardos, Robert, Pecoits-Filho, Roberto, Vargas, Rocio, Saldivar, Rodolfo, Coppo, Rosanna, Shroff, Rukshana, Raina, Rupesh, Youssouf, Sajeda, Crowe, Sally, Anumudu, Samaya, Chan, Samuel, Baldacchino, Sarah, Wenderfer, Scott, Wolfenden, Sebastian, Carlton, Selah, Sutton, Shanna, Murphy, Shannon, Teo, Sharon, Salih, Sheyma, Sahney, Shobha, Carlton, Silas, Carter, Simon, Pearson, Simone, Khan, Simra, Wilson, Skyla, Sharma, Sonia, Alexander, Stephen, Marks, Stephen, Cornish, Stephen, Goldstein, Stuart, Samuel, Susan, Furth, Susan, Mendley, Susan, Lippincott, Susan, Charles, Symone, Gutman, Talia, Mitchell-Smith, Terri, Harris, Tess, Vetter, Thorsten, Carlton, Tiffany, Carlton, Timothy, Querfeld, Uwe, Saglimbene, Valeria, Charles, Virginia, van Biesen, Wim, Winkelmayer, Wolfgang, Machuca, Yenissey, Cho, Yeoungjee, Salih, Yusuf, Anh, Yo Han, Perkins, Zachary, Salih, Zeynab, Hanson, Camilla S., Craig, Jonathan C., Eddy, Allison A., Gipson, Debbie S., Webb, Nicholas J.A., Alexander, Stephen I., Furth, Susan L., Viecelli, Andrea K., Au, Eric H., Shen, Jenny I., Manera, Karine E., Carter, Simon A., and Walker, Amanda
- Published
- 2020
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8. Establishing a Core Outcome Set for Autosomal Dominant Polycystic Kidney Disease: Report of the Standardized Outcomes in Nephrology–Polycystic Kidney Disease (SONG-PKD) Consensus Workshop
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Cho, Yeoungjee, primary, Tong, Allison, additional, Craig, Jonathan C., additional, Mustafa, Reem A., additional, Chapman, Arlene, additional, Perrone, Ronald D., additional, Ahn, Curie, additional, Fowler, Kevin, additional, Torres, Vicente, additional, Gansevoort, Ron T., additional, Ong, Albert C.M., additional, Coolican, Helen, additional, Tze-Wah Kao, Juliana, additional, Harris, Tess, additional, Gutman, Talia, additional, Shen, Jenny I., additional, Viecelli, Andrea K., additional, Johnson, David W., additional, Au, Eric, additional, El-Damanawi, Ragada, additional, Logeman, Charlotte, additional, Ju, Angela, additional, Manera, Karine E., additional, Chonchol, Michel, additional, Odland, Dwight, additional, Baron, David, additional, Pei, York, additional, Sautenet, Benedicte, additional, Rastogi, Anjay, additional, Sharma, Ankit, additional, Rangan, Gopala, additional, Levin, Adeera, additional, Yu, Alan, additional, Ong, Albert, additional, Thompson, Aliza, additional, Baumgart, Amanda, additional, Bernier-Jean, Amelie, additional, Kelly, Amy, additional, Viecelli, Andrea, additional, Mallett, Andrew, additional, Wang, Angela, additional, Rastog, Anjay, additional, Nadeau-Fredette, Annie-Claire, additional, Teixeira-Pinto, Armando, additional, Kelly, Ayano, additional, Gillespie, Barbara, additional, Canaud, Bernard, additional, Manns, Braden, additional, Hemmelgarn, Brenda, additional, Hanson, Camilla, additional, Hawley, Carmel, additional, Pollock, Carol, additional, Chao, Chia-Ter, additional, Rutherford, Claudia, additional, Sumpton, Daniel, additional, Harris, David, additional, Johnson, David, additional, Wheeler, David, additional, Mekahli, Djalila, additional, O’Donoghue, Donal, additional, Peters, Dorien, additional, Oberdhan, Dorothee, additional, Balovlenkov, Elena, additional, O'Lone, Emma, additional, Tentori, Francesca, additional, Czerwiec, Frank, additional, Oskoui, Frederic Rahbari, additional, Rangan, Gopi, additional, Germino, Gregory, additional, Park, Hayne, additional, Htay, Htay, additional, Ryu, Hyunjin, additional, Norton, Jenna, additional, Shen, Jenny, additional, Gill, John, additional, Kao, Juliana, additional, Eckardt, Kai-Uwe, additional, Manera, Karine, additional, Van, Kim Linh, additional, Guay-Woodford, Lisa, additional, Krishnan, Mahesh, additional, Hogan, Marie, additional, Howell, Martin, additional, Park, Meyeon, additional, Mrug, Michal, additional, Ta, Michelle, additional, Evangelidis, Nicole, additional, Harris, Peter, additional, Tugwell, Peter, additional, Garimella, Pranav, additional, Krishnasamy, Rathika, additional, Mustafa, Reem, additional, McGee, Richard, additional, Pecoits-Filho, Roberto, additional, Gansevoort, Ron, additional, Perrone, Ronald, additional, Torra, Roser, additional, Crowe, Sally, additional, Anumudu, Samaya, additional, Chan, Samuel, additional, Bernays, Sarah, additional, Horie, Shigeo, additional, Carter, Simon, additional, Palmer, Suetonia, additional, Mendley, Susan, additional, Watnick, Terry, additional, Hiemstra, Thomas, additional, Weimbs, Thomas, additional, Jha, Vivek, additional, van Biesen, Wim, additional, Winkelmayer, Wolfgang, additional, Cho, Yeoungjee, additional, Oh, Yun Kyu, additional, Clark, David, additional, McGinty-Poteet, Debra, additional, King, Elizabeth, additional, Vickers, Frances, additional, Odland, Jean, additional, Lee, Lynore, additional, Vickers, Marvin, additional, Johnston-Clark, Mary, additional, Dorsey, Robin, additional, and Baron, Zachary, additional
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- 2021
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9. Assessment of Dietary Sodium Intake Using the Scored Salt Questionnaire in Autosomal Dominant Polycystic Kidney Disease
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Wong, Annette T. Y., primary, Munt, Alexandra, additional, Allman-Farinelli, Margaret, additional, Badve, Sunil V., additional, Boudville, Neil, additional, Coolican, Helen, additional, Chandra, Ashley N., additional, Coulshed, Susan, additional, Fernando, Mangalee, additional, Grantham, Jared, additional, Haloob, Imad, additional, Harris, David C. H., additional, Hawley, Carmel M., additional, Holt, Jane, additional, Johnson, David W., additional, Kumar, Karthik, additional, Lee, Vincent W., additional, Lonergan, Maureen, additional, Mai, Jun, additional, Rangan, Anna, additional, Roger, Simon D., additional, Saravanabavan, Sayanthooran, additional, Sud, Kamal, additional, Torres, Vicente E., additional, Vilayur, Eswari, additional, Zhang, Jennifer Q. J., additional, and Rangan, Gopala K., additional
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- 2020
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10. ‘A sword of Damocles’: patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group study
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Logeman, Charlotte, primary, Cho, Yeoungjee, additional, Sautenet, Benedicte, additional, Rangan, Gopala K, additional, Gutman, Talia, additional, Craig, Jonathan, additional, Ong, Albert, additional, Chapman, Arlene, additional, Ahn, Curie, additional, Coolican, Helen, additional, Tze-Wah Kao, Juliana, additional, Gansevoort, Ron T, additional, Perrone, Ronald, additional, Harris, Tess, additional, Torres, Vincent, additional, Fowler, Kevin, additional, Pei, York, additional, Kerr, Peter, additional, Ryan, Jessica, additional, Johnson, David, additional, Viecelli, Andrea, additional, Geneste, Clair, additional, Kim, Hyunsuk, additional, Kim, Yaerim, additional, Howell, Martin, additional, Ju, Angela, additional, Manera, Karine E, additional, Teixeira-Pinto, Armando, additional, Parasivam, Gayathri, additional, and Tong, Allison, additional
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- 2020
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11. Establishing core outcome domains in pediatric kidney disease: report of the Standardized Outcomes in Nephrology—Children and Adolescents (SONG-KIDS) consensus workshops
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Hanson, Camilla S., primary, Craig, Jonathan C., additional, Logeman, Charlotte, additional, Sinha, Aditi, additional, Dart, Allison, additional, Eddy, Allison A., additional, Guha, Chandana, additional, Gipson, Debbie S., additional, Bockenhauer, Detlef, additional, Yap, Hui-Kim, additional, Groothoff, Jaap, additional, Zappitelli, Michael, additional, Webb, Nicholas J.A., additional, Alexander, Stephen I., additional, Furth, Susan L., additional, Samuel, Susan, additional, Neu, Alicia, additional, Viecelli, Andrea K., additional, Ju, Angela, additional, Sharma, Ankit, additional, Au, Eric H., additional, Desmond, Hailey, additional, Shen, Jenny I., additional, Manera, Karine E., additional, Azukaitis, Karolis, additional, Dunn, Louese, additional, Carter, Simon A., additional, Gutman, Talia, additional, Cho, Yeoungjee, additional, Walker, Amanda, additional, Francis, Anna, additional, Sanchez-Kazi, Cheryl, additional, Kausman, Joshua, additional, Pearl, Meghan, additional, Benador, Nadine, additional, Sahney, Shobha, additional, Tong, Allison, additional, Guha, Abhjit, additional, Solarin, Adaobi, additional, Platona, Adriana, additional, Hamilton, Alexander, additional, Woods-Barnard, Alice, additional, Eddy, Allison, additional, Karathanas, Alyssa, additional, Baumgart, Amanda, additional, Fielding, Amelia, additional, LePage, Amelia, additional, Bernier-Jean, Amelie, additional, Kelly, Amy, additional, Teixeira, Ana, additional, Viecelli, Andrea, additional, Matus, Andrea, additional, Narva, Andrew, additional, Wang, Angela Yee-Moon, additional, Fielding, Anna, additional, Meza, Anthony, additional, Fielding, Aria, additional, Teixeira-Pinto, Armando, additional, Bagga, Arvind, additional, Jankauskienė, Augustina, additional, Kelly, Ayano, additional, Gillespie, Barbara, additional, Sautenet, Benedicte, additional, Vogt, Beth, additional, Foster, Bethany, additional, Warady, Bradley, additional, Dixon, Bradley, additional, Manns, Braden, additional, Hemmelgarn, Brenda, additional, Bscardark, Brittney, additional, Romeo, Brooklyn, additional, Hanson, Camilla, additional, Meza, Carlos, additional, Brockett, Carter, additional, Prestidge, Chanel, additional, Green, Charmaine, additional, Perkins, Christy, additional, Schmitt, Claus Peter, additional, Fielding, Craig, additional, Settee, Craig, additional, Sumpton, Daniel, additional, Meza, Daniel, additional, Karathanas, Darien, additional, Harris, David, additional, Wheeler, David, additional, Hooper, David, additional, Gipson, Debbie, additional, Geary, Denis, additional, Haffner, Dieter, additional, Mekahli, Djalila, additional, Drozdz, Dorota, additional, Romeo, Ed, additional, Ku, Elaine, additional, Urbina, Elaine, additional, Levtchenko, Elena, additional, Balovlenkov, Elena, additional, Hodson, Elisabeth, additional, Morales, Emily, additional, O'Lone, Emma, additional, Machuca, Emma, additional, Carlton, Emmah, additional, Au, Eric, additional, Olver, Erin, additional, Morales, Estefania, additional, Mirza, Fatima, additional, Mackie, Fiona, additional, Tentori, Francesca, additional, Schaefer, Franz, additional, Higgins, Gail, additional, Deschenes, Georges, additional, Plunkett, Georgia, additional, Yoder, Gerilyn, additional, Wong, Germaine, additional, Morales, Giselle, additional, Germino, Greg, additional, Perkins, Hayley, additional, Mitchell-Smith, Harrison, additional, Coolican, Helen, additional, Xu, Hong, additional, Anochie, Ifeoma, additional, Ha, Il-Soo, additional, Davis, Ira, additional, Liu, Isaac, additional, Samaniego, Israel, additional, Machuca, Jaime, additional, Machuca, James, additional, Kerklaan, Jasmijn, additional, Brockett, Jeff, additional, Norton, Jenna, additional, Shen, Jenny, additional, Goebel, Jens, additional, Rao, Jia, additional, Machuca, Jimmy, additional, Mitchell-Smith, Jo, additional, Watson, Jo, additional, Gill, John, additional, Craig, Jonathan, additional, Flynn, Joseph T., additional, Samuels, Joshua, additional, Bacchetta, Justine, additional, Yoder, Kaleb, additional, Manera, Karine, additional, Twombley, Katherine, additional, McMichael, Kelly-Ann, additional, Ishikura, Kenji, additional, Romeo, Kennedy, additional, Settee, Kevin, additional, Van, Kim Linh, additional, McMichael, Lachlan, additional, Trinh, Lany, additional, Greenbaum, Larry, additional, Sanchez, Laura, additional, Fielding, Leo, additional, Rees, Lesley, additional, Lippincott, Leslie, additional, Mejia-Saldivar, Levi, additional, Saldivar, Lidia, additional, Guay-Woodford, Lisa, additional, Samaniego, Lizett, additional, Hamiwka, Lorraine, additional, Bell, Lorraine, additional, Barry, Lucinda, additional, Macauley, Luke, additional, Holmes, Luke, additional, Karathanas, Madelynn, additional, Mitchell-Smith, Madison, additional, Walker, Mandy, additional, Benavides, Manuel, additional, Tonelli, Marcello, additional, Ferris, Maria, additional, Vivarelli, Marina, additional, Wolfenden, Mark, additional, Howell, Martin, additional, Christian, Martin, additional, Schreiber, Martin, additional, Moxey-Mims, Marva, additional, Leonard, Mary, additional, Karathanas, Matthew, additional, Natatmadja, Melissa, additional, Brockett, Melissa, additional, Bonilla-Felix, Melvin, additional, Atkinson, Meredith, additional, Baum, Michel, additional, Rheault, Michelle, additional, McCulloch, Mignon, additional, Matsuda-Abedini, Mina, additional, Michael, Mini, additional, Khan, Mohammad, additional, Salih, Mohammad, additional, Carlton, Mycah Ann, additional, Plunkett, Ngairre, additional, Webb, Nick, additional, Scholes-Robertson, Nicki, additional, Larkins, Nicolas, additional, Evangelidis, Nicole, additional, Yoder, Nigel, additional, Meza, Norma, additional, Olver, Paige, additional, Carlton, Paiyton, additional, Brophy, Patrick, additional, Tugwell, Peter, additional, Cochat, Pierre, additional, Mehrotra, Rajnish, additional, Wolfenden, Raphael, additional, Gbadegesin, Rasheed, additional, Benavides, Raymond, additional, Johnson, Rebecca, additional, Morales, Ricardo, additional, McGee, Richard, additional, Fish, Richard, additional, Gardos, Robert, additional, Pecoits-Filho, Roberto, additional, Vargas, Rocio, additional, Saldivar, Rodolfo, additional, Coppo, Rosanna, additional, Shroff, Rukshana, additional, Raina, Rupesh, additional, Youssouf, Sajeda, additional, Crowe, Sally, additional, Anumudu, Samaya, additional, Chan, Samuel, additional, Baldacchino, Sarah, additional, Wenderfer, Scott, additional, Wolfenden, Sebastian, additional, Carlton, Selah, additional, Sutton, Shanna, additional, Murphy, Shannon, additional, Teo, Sharon, additional, Salih, Sheyma, additional, Carlton, Silas, additional, Carter, Simon, additional, Pearson, Simone, additional, Khan, Simra, additional, Wilson, Skyla, additional, Sharma, Sonia, additional, Alexander, Stephen, additional, Marks, Stephen, additional, Cornish, Stephen, additional, Goldstein, Stuart, additional, Furth, Susan, additional, Mendley, Susan, additional, Lippincott, Susan, additional, Charles, Symone, additional, Mitchell-Smith, Terri, additional, Harris, Tess, additional, Vetter, Thorsten, additional, Carlton, Tiffany, additional, Carlton, Timothy, additional, Querfeld, Uwe, additional, Saglimbene, Valeria, additional, Charles, Virginia, additional, van Biesen, Wim, additional, Winkelmayer, Wolfgang, additional, Machuca, Yenissey, additional, Salih, Yusuf, additional, Anh, Yo Han, additional, Perkins, Zachary, additional, and Salih, Zeynab, additional
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- 2020
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12. Core Outcome Domains for Trials in Autosomal Dominant Polycystic Kidney Disease: An International Delphi Survey
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Cho, Yeoungjee, primary, Rangan, Gopala, additional, Logeman, Charlotte, additional, Ryu, Hyunjin, additional, Sautenet, Benedicte, additional, Perrone, Ronald D., additional, Nadeau-Fredette, Annie-Claire, additional, Mustafa, Reem A., additional, Htay, Htay, additional, Chonchol, Michel, additional, Harris, Tess, additional, Gutman, Talia, additional, Craig, Jonathan C., additional, Ong, Albert C.M., additional, Chapman, Arlene, additional, Ahn, Curie, additional, Coolican, Helen, additional, Kao, Juliana Tze-Wah, additional, Gansevoort, Ron T., additional, Torres, Vicente, additional, Pei, York, additional, Johnson, David W., additional, Viecelli, Andrea K., additional, Teixeira-Pinto, Armando, additional, Howell, Martin, additional, Ju, Angela, additional, Manera, Karine E., additional, and Tong, Allison, additional
- Published
- 2020
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13. Range and Variability of Outcomes Reported in Randomized Trials Conducted in Patients With Polycystic Kidney Disease: A Systematic Review
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Sautenet, Bénédicte, primary, Cho, Yeoungjee, additional, Gutman, Talia, additional, Rangan, Gopala, additional, Ong, Albert, additional, Chapman, Arlene B., additional, Ahn, Curie, additional, Coolican, Helen, additional, Tze-Wah Kao, Juliana, additional, Fowler, Kevin, additional, Gansevoort, Ron T., additional, Geneste, Claire, additional, Perrone, Ronald D., additional, Harris, Tess, additional, Torres, Vicente E., additional, Pei, York, additional, Craig, Jonathan C., additional, Tong, Allison, additional, Chapman, Arlene, additional, Gansevoort, Ron, additional, Perrone, Ronald, additional, Torres, Vicente, additional, and Sautenet, Benedicte, additional
- Published
- 2020
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14. Identifying patient‐important outcomes in polycystic kidney disease: An international nominal group technique study
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Cho, Yeoungjee, primary, Sautenet, Benedicte, additional, Gutman, Talia, additional, Rangan, Gopala, additional, Craig, Jonathan C, additional, Ong, Albert C, additional, Chapman, Arlene, additional, Ahn, Curie, additional, Coolican, Helen, additional, Kao, Juliana T‐W, additional, Gansevoort, Ron, additional, Perrone, Ronald D, additional, Harris, Tess, additional, Torres, Vicente, additional, Pei, York, additional, Kerr, Peter G, additional, Ryan, Jessica, additional, Johnson, David W, additional, Viecelli, Andrea K, additional, Geneste, Claire, additional, Kim, Hyunsuk, additional, Kim, Yaerim, additional, Oh, Yun Kyu, additional, Teixeira‐Pinto, Armando, additional, Logeman, Charlotte, additional, Howell, Martin, additional, Ju, Angela, additional, Manera, Karine E, additional, and Tong, Allison, additional
- Published
- 2019
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15. Implementing core outcomes in kidney disease: report of the Standardized Outcomes in Nephrology (SONG) implementation workshop
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Tong, Allison, primary, Manns, Braden, additional, Wang, Angela Yee Moon, additional, Hemmelgarn, Brenda, additional, Wheeler, David C., additional, Gill, John, additional, Tugwell, Peter, additional, Pecoits-Filho, Robert, additional, Crowe, Sally, additional, Harris, Tess, additional, Van Biesen, Wim, additional, Winkelmayer, Wolfgang C., additional, Levin, Adeera, additional, Thompson, Aliza, additional, Perkovic, Vlado, additional, Ju, Angela, additional, Gutman, Talia, additional, Bernier-Jean, Amelie, additional, Viecelli, Andrea K., additional, O’Lone, Emma, additional, Shen, Jenny, additional, Josephson, Michelle A., additional, Cho, Yeoungjee, additional, Johnson, David W., additional, Sautenet, Bénédicte, additional, Tonelli, Marcello, additional, Craig, Jonathan C., additional, Craig, Jonathan, additional, Tong, Allison, additional, Wang, Angela, additional, Wheeler, David, additional, Pecoits-Filho, Roberto, additional, van Biesen, Wim, additional, Winkelmayer, Wolfgang, additional, Sinha, Aditi, additional, Ong, Albert, additional, Denny, Alexis, additional, Dart, Allison, additional, Eddy, Allison, additional, Kelly, Amy, additional, Viecelli, Andrea, additional, Davenport, Andrew, additional, Narva, Andrew, additional, Sharma, Ankit, additional, Warrens, Anthony, additional, Chapman, Arlene, additional, Teixeira-Pinto, Armando, additional, Kelly, Ayano, additional, Murphy, Barbara, additional, Sautenet, Benedicte, additional, Padilla, Benita, additional, Canaud, Bernard, additional, Pullin, Brian, additional, Schiller, Brigitte, additional, Robinson, Bruce, additional, Hanson, Camilla, additional, Hawley, Carmel, additional, Logeman, Charlotte, additional, Lok, Charmaine, additional, Wanner, Christoph, additional, Herzog, Chuck, additional, Rutherford, Claudia, additional, Ahn, Curie, additional, Sumpton, Daniel, additional, Rosenbloom, David, additional, Harris, David, additional, Baron, David, additional, Johnson, David, additional, White, David, additional, Gipson, Debbie, additional, Fouque, Denis, additional, Eilers, Denise, additional, Bockenhauer, Detlef, additional, O'Donoghue, Donal, additional, Chen, Dongping, additional, Dunning, Dyke, additional, Brown, Edwina, additional, Bavlovlenkov, Elena, additional, Mannon, Elinor, additional, Poggio, Emilo, additional, O'Lone, Emma, additional, Chemla, Eric, additional, Dobbels, Fabienne, additional, Zannad, Faiez, additional, Caskey, Fergus, additional, Tentori, Francesca, additional, Hurst, Frank, additional, Schaefer, Franz, additional, Wong, Germaine, additional, Brunier, Gillian, additional, Strippoli, Giovanni, additional, Rangan, Gopala, additional, Knoll, Greg, additional, Obrador, Gregorio, additional, Feldman, Harold, additional, Coolican, Helen, additional, Yap, Hui-Kim, additional, Groothoff, Jaap, additional, Sloand, James, additional, Tan, Jane, additional, Locke, Jayme, additional, Perl, Jeffrey, additional, Chapman, Jeremy, additional, Dong, Jie, additional, Malyszko, Jolanta, additional, Fox, Jonathan, additional, Dapueto, Juan, additional, Tze-Wah Kao, Juliana, additional, Chow, Kai Ming, additional, Manera, Karine, additional, Azukaitis, Karolis, additional, Polkinghorne, Kevan, additional, Fowler, Kevin, additional, Van, Kim Linh, additional, Budde, Klemens, additional, Lentine, Krista, additional, Cromm, Krister, additional, Hooi, Lai-Seong, additional, James, Laura, additional, Dember, Laura, additional, Zuo, Li, additional, Rostaing, Lionel, additional, Lightstone, Liz, additional, Marson, Lorna, additional, Hamiwka, Lorraine, additional, Krishnan, Mahesh, additional, Ruospo, Marinella, additional, Unruh, Mark, additional, Wilkie, Martin, additional, Howell, Martin, additional, Dew, Mary Amanda, additional, Jardine, Meg, additional, West, Melissa, additional, Zappitelli, Michael, additional, Germain, Michael, additional, Josephson, Michelle, additional, Rocco, Mike, additional, Kleinpeter, Myra, additional, Jefferson, Nichole, additional, Webb, Nick, additional, Evangelidis, Nicole, additional, Gedney, Nieltje, additional, Duquette, Pam, additional, Kerr, Peter, additional, Rossignol, Patrick, additional, Reese, Peter, additional, Blankestijn, Peter J., additional, Roy-Chaudhury, Prabir, additional, Patel, Priti, additional, Taylor, Quinetta, additional, Perlman, Rachel, additional, Oberbauer, Rainer, additional, Mehrotra, Rajnish, additional, Vanholder, Raymond, additional, Fluck, Richard, additional, McGee, Richard, additional, Quinn, Rob, additional, Lee, Robert, additional, Gansevoort, Ron, additional, Perrone, Ronald, additional, Apata, Ronke, additional, Mannon, Roslyn, additional, Youssouf, Sajeda, additional, Davison, Sara, additional, Bernays, Sarah, additional, Naiker, Sarala, additional, Teo, Sharon, additional, Jowsey-Gregoire, Sheila, additional, Carter, Simon, additional, Stuard, Stefano, additional, Alexander, Stephen, additional, McDonald, Stephen, additional, Chadban, Steve, additional, Goldstein, Stuart, additional, Furth, Susan, additional, Samuel, Susan, additional, Shafi, Tariq, additional, Jafar, Tazeen, additional, Hiemstra, Thomas, additional, Pruett, Tim, additional, Lee, Timmy, additional, Vachharajani, Tushar, additional, Jassal, Vanita, additional, Krane, Vera, additional, Torres, Vicente, additional, Jha, Vivekanand, additional, Herrington, Will, additional, Oh, Yoonkyu, additional, Pei, York, additional, and Butt, Zeeshan, additional
- Published
- 2018
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16. Standardised Outcomes in Nephrology—Polycystic Kidney Disease (SONG-PKD): study protocol for establishing a core outcome set in polycystic kidney disease
- Author
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Cho, Yeoungjee, primary, Sautenet, Benedicte, additional, Rangan, Gopala, additional, Craig, Jonathan C., additional, Ong, Albert C. M., additional, Chapman, Arlene, additional, Ahn, Curie, additional, Chen, Dongping, additional, Coolican, Helen, additional, Kao, Juliana Tze-Wah, additional, Gansevoort, Ron, additional, Perrone, Ronald, additional, Harris, Tess, additional, Torres, Vicente, additional, Pei, York, additional, Kerr, Peter G., additional, Ryan, Jessica, additional, Gutman, Talia, additional, Howell, Martin, additional, Ju, Angela, additional, Manera, Karine E., additional, Teixeira-Pinto, Armando, additional, Hamiwka, Lorraine A., additional, and Tong, Allison, additional
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- 2017
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17. Standardised Outcomes in Nephrology-Polycystic Kidney Disease (SONG-PKD): study protocol for establishing a core outcome set in polycystic kidney disease.
- Author
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Yeoungjee Cho, Sautenet, Benedicte, Rangan, Gopala, Craig, Jonathan C., Ong, Albert C. M., Chapman, Arlene, Ahn, Curie, Dongping Chen, Coolican, Helen, Kao, Juliana Tze-Wah, Gansevoort, Ron, Perrone, Ronald, Harris, Tess, Torres, Vicente, Pei, York, Kerr, Peter G., Ryan, Jessica, Gutman, Talia, Howell, Martin, and Ju, Angela
- Subjects
NEPHROLOGY ,POLYCYSTIC kidney disease ,QUALITY of life ,URINARY tract infections ,MEDICAL decision making - Abstract
Background: Autosomal dominant polycystic kidney disease (ADPKD) is the most common potentially life threatening inherited kidney disease and is responsible for 5-10% of cases of end-stage kidney disease (ESKD). Cystic kidneys may enlarge up to 20 times the weight of a normal kidney due to the growth of renal cysts, and patients with ADPKD have an increased risk of morbidity, premature mortality, and other life-time complications including renal and hepatic cyst and urinary tract infection, intracranial aneurysm, diverticulosis, and kidney pain which impair quality of life. Despite some therapeutic advances and the growing number of clinical trials in ADPKD, the outcomes that are relevant to patients and clinicians, such as symptoms and quality of life, are infrequently and inconsistently reported. This potentially limits the contribution of trials to inform evidence-based decision-making. The Standardised Outcomes in Nephrology-Polycystic Kidney Disease (SONG-PKD) project aims to establish a consensus-based set of core outcomes for trials in PKD (with an initial focus on ADPKD but inclusive of all stages) that patients and health professionals identify as critically important.Methods: The five phases of SONG-PKD are: a systematic review to identify outcomes that have been reported in existing PKD trials; focus groups with nominal group technique with patients and caregivers to identify, rank, and describe reasons for their choices; qualitative stakeholder interviews with health professionals to elicit individual values and perspectives on outcomes for trials involving patients with PKD; an international three-round Delphi survey with all stakeholder groups (including patients, caregivers, healthcare providers, policy makers, researchers, and industry) to gain consensus on critically important core outcome domains; and a consensus workshop to review and establish a set of core outcome domains and measures for trials in PKD.Discussion: The SONG-PKD core outcome set is aimed at improving the consistency and completeness of outcome reporting across ADPKD trials, leading to improvements in the reliability and relevance of trial-based evidence to inform decisions about treatment and ultimately improve the care and outcomes for people with ADPKD. [ABSTRACT FROM AUTHOR]- Published
- 2017
- Full Text
- View/download PDF
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