7,464 results on '"Co-production"'
Search Results
2. Design Thinking Practices for E-Participation
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Mariani, Ilaria, Mortati, Marzia, Rizzo, Francesca, Deserti, Alessandro, Mariani, Ilaria, Mortati, Marzia, Rizzo, Francesca, and Deserti, Alessandro
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- 2025
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3. The impact of perceived corporate social responsibility on employees’ turnover intention in professional team sports: a conditional mediation model
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Wang, Fong-Jia, Chiu, Weisheng, and Cho, Heetae
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- 2024
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4. Lessons from a Black Swan: professionals in local co-production prior to and during Covid-19
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Uster, Anna
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- 2024
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5. My views matter: what do service users and their families want from residential and in-patient learning disabilities services in Norfolk?
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Spall, John
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- 2024
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6. Creating Insight About Inclusion Together With Young People With Profound Intellectual and Multiple Disabilities
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Grace, Joanna and Nind, Melanie
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- 2024
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7. The use of critical communicative methodology as a collaborative research approach to enhance co-creation of inclusive practices in schools.
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Strogilos, Vasilis
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INCLUSIVE education , *SPECIAL needs students , *PARTICIPANT observation , *QUALITATIVE research - Abstract
This paper explores the use of Critical Communicative Methodology (CCM) as a collaborative research approach to co-construct knowledge with participants in a research project aimed to enhance the inclusion of students with special educational needs and/or disabilities (SEND) in three mainstream schools in England. The paper discusses how collaboration between researchers and research participants (i.e. school staff, parents and students), based on egalitarian dialogue, created knowledge co-construction through the use of reflective conversations, communicative focus groups and communicative observations. By describing the design of the project and reflecting on the decisions taken with the participants, the paper highlights how CCM supported the researchers and the participants in reconsidering their assumptions towards inclusive practices. The paper also shows how the generation of qualitative findings with the participants led to the co-creation of a toolkit to improve the services schools provide to students with SEND and their families. The main ethical issues, the unique role of CCM, and challenges in its implementation are discussed. It is concluded that CCM can enhance inclusive practices in an inclusive way based on egalitarian dialogue between academic- and practice-based knowledge co-construction. [ABSTRACT FROM AUTHOR]
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- 2024
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8. Co‐production in action: Navigating the research‐to‐implementation space in wildlife conservation through a Community of Practice.
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Livingston, Sami, Dayer, Ashley A., Zebrowski, Allyssa, Sterling, Abby, Schillerstrom, Nolan, Archibald, Thomas, and Chaves, Willandia
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WILDLIFE conservation , *COMMUNITIES of practice , *INFORMATION sharing , *DIVISION of labor , *RESEARCH personnel - Abstract
Effective conservation practices require addressing the divide between research and implementation. Co‐production, which emphasizes collaboration and diverse knowledge exchange, is increasingly recognized as valuable in conservation to address this challenge, yet empirical insights remain limited. This case study explores using a Community of Practice (CoP) as an avenue for facilitating co‐production in shorebird conservation. Centering researchers and practitioners within implementation initiatives, we evaluate factors enabling a successful CoP and barriers hindering members' experiences. Capacity emerged as the predominant barrier, while the leading factors contributing to CoP success were having a dedicated space to support labor division, relationship building, and informal learning among CoP members. Leveraging our evaluation insights, we offer practical recommendations for structuring a CoP to optimize these benefits and advance the integration of CoPs and co‐production principles in conservation practice. [ABSTRACT FROM AUTHOR]
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- 2024
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9. Co-producing school-based mental health interventions with young people, teachers, and schools: a case study.
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Ching, Brian C. F., Foster, Alex, Schlief, Merle, Lewis, Gemma, and Rajyaguru, Priya
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Background: Schools are a prime setting for the delivery of universal and targeted mental health interventions. Current school-based mental health interventions may not be developed to fully meet student mental health needs and co-production is needed to understand what young people really want. Despite this, research on school-based mental health interventions does not consistently engage in co-production, involving stakeholders, such as young people and schools, in the decision-making, development, evaluation and/or implementation stages. This highlights that transforming the development of school-based mental health interventions is crucial to meeting all stakeholders' needs. In this paper, we aim to briefly review an approach to co-production that can be used when conducting research on school-based mental health interventions that centre stakeholder voices to drive meaningful change. We describe a case study to showcase this approach. Main body: We highlight recommendations and important elements to consider for each stakeholder when engaging in different levels of co-production, including young people, teachers, and schools. We provide practical examples of how this may look like in practice, theoretical underpinnings, and impact on outcomes. Our case study of co-producing a talk to improve mental health literacy in secondary school students is highlighted to demonstrate how a group of young people, teachers, epidemiologist, psychiatrist, and researchers can work together to develop school-based mental health interventions. Conclusion: Co-production can be successfully conducted amongst researchers and stakeholders to develop school-based mental health interventions. Changes made to the talk were guided by synthesis of feedback that aligned with the balanced needs, perspectives, and opinions of all stakeholders. The use of this co-production approach in research on school-based mental health interventions with young people, teachers, and schools has important implications for research, service provision, and stakeholder empowerment. Plain English Summary: The aim of our project is to improve knowledge and awareness of mental health problems among young people by developing an interactive workshop and talk, which will be delivered in secondary schools. Our focus is on depression, anxiety and self-harm. These are the most common mental health problems experienced by young people, rates are rising, and they are leading causes of suicide. Evidence suggests that co-production needs to be at the core of the development of school-based mental health interventions. We recommend how and why we should work together with young people, teachers, and schools to co-produce school-based mental health interventions. For our project, we worked together with groups of young people, teachers, schools, clinicians, and researchers to develop the interactive talk. We met with them regularly to discuss what they think is important to include in the talk, how we present it in the talk, and any ways to improve it. Our experience was a successful one but as a field, we need to consider critically how we can carefully and productively engage in co-production to improve mental health research and young people's mental health. [ABSTRACT FROM AUTHOR]
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- 2024
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10. Populating the model: the SC2.0 approach to co-design for mental health and substance use health system transformation.
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Young, Karen, Bol, Alexa, Hood, Melanie S., Bartram, Mary, Jaouich, Alexia, and Churchill, AnnMarie
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SUBSTANCE abuse , *PARTICIPATORY design , *MENTAL health - Abstract
While existing literature describing the use of co-design has focused on its application within individual-level or group-level health interventions, the use of co-design to plan and support the implementation of mental health and substance use health stepped care (MHSUH) models and other MHSUH system transformation initiatives is more limited. In this commentary, the authors describe the Populating the Model Series, a co-design-based, system-level planning intervention specifically developed for sites implementing the Stepped Care 2.0 (SC2.0) model of care. The use of co-design, which is a core component of the SC2.0 model, distributes risk through engagement across the community, broadens the system of care to include and acknowledge informal and formal options, creates person-centricity, and incorporates access points and care modalities that are tailored to the intervention site's context. Seven steps are identified within the Populating the Model Series including assessing intervention site readiness, understanding site context, planning and adjusting engagement of key groups for co-design, learning through workshop sessions and co-design, validation with key groups, understanding findings, and application of findings. This guidance provides an actionable process framework for the application of co-design in the planning and implementation of SC2.0 and other stepped care models. [ABSTRACT FROM AUTHOR]
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- 2024
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11. Best management practices for bee conservation in forest openings.
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Cunningham‐Minnick, Michael J., Milam, Joan, Fassler, Aliza, and King, David I.
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BEE colonies , *PRESCRIBED burning , *ENDANGERED species , *CLAY soils , *FOREST conservation - Abstract
Native bees are an ecologically diverse group of pollinators in global decline due at least in part to invasive species, pesticides, and habitat loss. Although guidelines exist for land managers to restore pollinator habitat, these “best management practices” (BMPs) include other pollinator taxa that may have different requirements than bees, do not give particular attention to rare bee species, or describe practices that are impractical for land managers. Using co‐production science, our team of land managers and researchers sampled bee communities in 100 wildlife openings on six National Forests (NF) within the Great Lakes Basin of the United States during 2017–2019. We found that bee communities responded to site factors and management practices, including prescribed fire, mechanical methods (e.g., felling, brushhogging, mowing), herbicides, and pollinator plantings. Bee abundance, diversity, and rarity were strongly related to soil properties, landscape context, and the plant community, including small‐statured woody species, which collectively informed our BMPs. For instance, mechanical treatments were most beneficial for openings with clayey or organic soils while prescribed fire was most effective in openings with well‐drained soils. Our BMPs highlight effects of treatment combinations, including negative effects on rare species when herbicides were combined with plantings and positive effects on abundance and rare species when prescribed fire was combined with mechanical treatments. Since our BMPs were generated in collaboration with land managers, they better conform to their needs and constraints, contributing to more effective native bee conservation. [ABSTRACT FROM AUTHOR]
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- 2024
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12. ‘Two sides of the one coin’: using reflection to examine co-production of human rights education within higher institutions in Ireland.
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Swords, Calvin and Norton, Michael John
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PSYCHIATRIC social work , *MENTAL health services , *SOCIAL work education , *SOCIAL work students , *HUMAN services - Abstract
Encompassing human rights-based approaches within mental health service delivery is essential to supporting the recovery of service users, their family members/carers/supporters. This is being increasingly led by social workers due to their role in responding to psychosocial challenges. This is seen in today’s mental health services through their work in safeguarding service users and addressing familial concerns regarding all aspects of life. It is also evidenced in their openness to the concept of personal recovery—a movement aimed at defending and improving human rights for service users and their family members/carers/supporters through the recognition of international legislation. Recent debates within social work education have explored whether our critical and radical roots are declining or absent in practice. One argument for this has been the increasing pressures coming from neoliberal policies. This paper describes how both authors approached several co-produced sessions with social work students at an Irish university regarding mental health recovery and social work. The authors provide insight into this approach, including a description and exploration of a model of reflexivity used during this process which can be used by other educators, students, and practitioners [CS is an Assistant Professor of Social Work,MJN is a Consumer Academic]. [ABSTRACT FROM AUTHOR]
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- 2024
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13. The politics of co-production and inclusive deliberation in participatory research.
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Cin, F. Melis, Süleymanoğlu-Kürüm, Rahime, Walker, Craig, Truter, Lorna, Doğan, Necmettin, Gunter, Ashley, and Cin, M. Melih
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INTERACTIVE art , *POWER (Social sciences) , *ACTION research , *CAPACITY building , *PHOTOVOICE (Social action programs) - Abstract
This research engages in a methodological analysis of a participatory art project employing PhotoVoice with refugee and local community youths across two distinct sites: Istanbul and Johannesburg. The project aimed to facilitate inclusive deliberations among the youth, thereby promoting capacity building, reconciliation, and peacebuilding initiatives. Our focus is grounded in the concept of co-production as a practice and principle of inclusive deliberation within the research design, addressing a spectrum of issues from participant-driven research agenda setting, to the design and execution of the research, the selection and creation of photographs, and their dissemination. By offering a critical examination of how inclusive deliberation manifests in co-production research, we highlight the potentials, complexities, and tensions it generates. We argue that while co-produced action research embodies transversal politics, it does not necessarily disrupt the entrenched power dynamics and politically driven hierarchies within the public sphere. [ABSTRACT FROM AUTHOR]
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- 2024
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14. The lived experience of co-production: Reflective accounts from the InCLUDE project.
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Izzidien, Shayma, Stemp, Rachael, Akram, Sakab, Ahmed, Sabbir, Rangel-Cristales, Alay, Irvine, Karen, Sharma, Shivani, and Midgley, Nick
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KINSHIP care ,FOSTER home care ,DIARY (Literary form) ,RESEARCH personnel ,MATURATION (Psychology) ,FOSTER children - Abstract
Background: The value of co-produced research in health and social care is increasingly recognised, but accounts into the processes and individual experiences of co-producing research are lacking. This paper describes the personal journeys of four researchers (two experts by foster caring experience and two experts by profession) throughout the life course of a co-produced research project exploring the barriers and facilitators to inclusive research in foster caring, the InCLUDE project. Methods: Each researcher kept a diary throughout the InCLUDE project of their personal reflections, questions, and learning. These were synthesised and reviewed by the researchers and two colleagues external to the team, and key themes were extracted. Results: Narratives constructed from the diaries are presented in relation to distinct aspects of the co-production journey, alongside illustrative quotes. These aspects include: motivations for starting the project; making sense of the project; defining roles and responsibilities; challenges; and reflections on acquired knowledge and skills. From these insights, the researchers present recommendations for others endeavouring to engage in co-produced research. These include: recognising vulnerabilities and challenges during the early stages of a project; creating safe spaces; seeing the value of diversity; harnessing individual strengths; establishing a strong routine; and ensuring equal voice. Conclusions: This paper presents a novel perspective on the realities of co-produced research by documenting the lived experiences of researchers within the context of foster care research. It highlights the importance of both measurable, tangible project outcomes, and the personal and skills growth of team members. The consistent use of diaries is encouraged as a valuable practice to capture learning, progress and achievements throughout the co-production process. Plain English summary: Four researchers (two experts by foster caring experience and two experts by profession) reflect on their journey of being part of the InCLUDE project. InCLUDE looked at how to make research with foster and kinship carers more inclusive. Each researcher kept a diary throughout the project, to help them capture their learning, thoughts and feelings. In this paper, the diaries are collated together into themes, with illustrative quotes. These themes include motivations to get involved in the project, settling into the role, challenges, personal development, and new knowledge. The researchers then share their key learning which can help others who are hoping to co-produce a research project. This includes the importance of talking about feeling vulnerable, creating safe spaces, working to your individual strengths, setting up a strong routine, and making sure that everyone has an equal voice and role on the project. The researchers also discuss the benefits of using diaries as a way to capture learning, experiences and progress, and encourage other research teams to do the same. [ABSTRACT FROM AUTHOR]
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- 2024
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15. What are the research priorities in dance for dementia? A co-created agenda to support equitable research.
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Warran, Katey, Letrondo, Pilar, Robertson, Martin, Sinclair, Lisa, Smith, Emma, Åström, Emili, Davis, Emily, Whiteside, Bethany, and Wilkinson, Heather
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DIGITAL communications , *PODCASTING , *RESEARCH questions , *DEMENTIA , *PARTICIPATORY design - Abstract
BackgroundMethodsResultsConclusionThere is a gap in the field of dance for dementia regarding how to engage in and improve equitable, moral, and rights-based ways of working with those with lived experience to co-design research priorities. We set out to create a collaborative research agenda for this field.A series of collaborative activities were conducted, including an in-person workshop (
n = 59 people), online workshop (n = 23 people), digital communications, podcasts, and co-writing, including with people living with dementia (PLWD), health and social care professionals, artists, arts organisational representatives, and academic researchers.Three key themes were constructed: 1) Improving access to dance participation; 2) Prioritising co-produced approaches; and 3) Enabling innovation in measurement and methods.This is the first co-produced agenda for the field of dance for dementia. Underpinned by diverse perspectives and lived experience, it outlines themes and associated research questions that can be used in future research. [ABSTRACT FROM AUTHOR]- Published
- 2024
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16. Mechanisms for co-designing and co-producing health and social care: a realist synthesis.
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Masterson, Daniel, Lindenfalk, Bertil, Kjellström, Sofia, Robert, Glenn, and Ockander, Marlene
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PARTICIPATORY design ,MEDICAL personnel ,PARTICIPANT observation ,MEDICAL care ,DATABASE searching - Abstract
Objectives: Analyse reported processes of co-design and co-production in the context of health and social care to explore the underlying mechanisms that enable inclusive and reciprocal engagement. Search strategy: Peer review research was obtained from a prior scoping review searching eight databases consisting of all methodologies relevant to co-design or co-production in the context of health and social care services and involving service-users. Methods of selection: Articles were included for synthesis if they reported a process of dialogue, with mutuality, insight and clarification in their engagement process. Ninety-three peer-review articles informed our programme theory development. Analysis: Data relating to co-design and co-production processes were extracted and analysed through inductive, abductive, and deductive analysis leading to the development of an initial programme theory. Main results: This realist synthesis finds that co-design and co-production can occur at different times, in part or all of the research and participatory process. There is an over reliance on the term 'co-design' or 'co-production' to convey complex engagement or participatory processes. We identified six mechanisms (intention, assets, dialogue, documentation, interpretation and understanding). Interaction between these six identified mechanisms in context, even if only brief, is important for supporting meaningful engagement, alignment and agreement within a co-design or co-production process. Implications for practice: The initial programme theory presented in this article provides clarity by identifying essential mechanisms which can guide the design and implementation of a range of participatory approaches. Rather than relying on a single label to convey complex participatory methods or processes, the values and principles of co-design or co-production, in combination with this programme theory, could be applied to guide implementation and reporting of specific activities within a range of research or participatory methods. Patient and public contribution: The initial programme theory was presented and piloted in a series of collaborative workshops between May 2023 and March 2024 with patient and public contributors, health professionals and researchers. This engagement process is currently underway to refine the programme theory and it is anticipated that this next phase will be completed in September 2024. Plain English summary: The aim of this review was to understand what needs to happen for meaningful engagement to take place by exploring how co-design and co-production in health and social care has been reported in published research. Ninety-three research articles were selected as these reported engagement processes with exchanges of mutual insight. Articles which only stated that engagement took place, without reporting details, were excluded. Any information relating to co-design and co-production processes were then extracted and analysed. The findings from this review were that co-design and co-production can occur at different times, in part or all of the research and engagement process. We identified that interaction between six key elements (intention, assets, dialogue, documentation, interpretation and understanding) in context, even if only brief, are important for meaningful engagement to occur within a co-design or co-production process. We also found that there is an over reliance on the term 'co-design' or 'co-production' to convey complex processes for engagement. Rather than relying on a single word to convey such complex methods or processes, the values and principles of co-design or co-production, in combination with the key elements identified, could be applied to guide implementation, and reporting of specific activities within a range of research methods. [ABSTRACT FROM AUTHOR]
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- 2024
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17. Indigenous DNA as a metaphor: Nation-building and scientific debates on the rediscovery of Taiwanese ancestry.
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Tsai, Yu-Yueh
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In this paper, I investigate the co-production of genetic research and national politics in post-martial law Taiwan. This entails analyzing two co-produced phenomena: the nationalization of biomedicine—in which the national discourse over racial/ethnic categories and ancestral origin increasingly shapes scientists' biomedical research; and the biomedicalization of the nation—in which people in public discourse increasingly use biomedical categories in characterizing national differences and identities. I analyze how the production and representation of scientific knowledge of the ancestral origins and genetic make-up of Taiwan have been embedded in Taiwanese politics. This includes the emergence of a new categorization into four great ethnic groups, multiculturalism, and the assertion of a distinct Taiwanese national identity, particularly in response to the People's Republic of China's claims of common ancestry. I also examine how the scientific findings produced in the lab have spilled out into both Taiwan and China through journals, media, history textbooks, and public disputes since the 1990s and brought about significant social impact. [ABSTRACT FROM AUTHOR]
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- 2024
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18. What Do We Know About Sharing Power in Co‐Production in Mental Health Research? A Systematic Review and Thematic Synthesis.
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Hopkins, India, Verlander, Max, Clarkson, Lucy, and Jacobsen, Pamela
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Background: Guidance on co‐production between researchers and people with lived experience was published in 2018 by the National Institute for Health and Care Research (NIHR) advisory group, previously known as INVOLVE. This guidance described sharing power as a key principle within co‐production. Authentic sharing of power within co‐produced mental health research does not always occur however and remains a challenge to achieve within many projects. Objectives: To explore what has been learned about the sharing of power in co‐production within mental health research since the publication of these guidelines, by synthesising qualitative literature relating to power within co‐produced mental health research. Methods: We carried out a systematic review with thematic synthesis. We searched CINHAL, Embase and PubMed databases to identify qualitative or mixed‐method studies relating to power within co‐produced mental health research. Studies were independently screened by two reviewers for inclusion and appraised using the Critical Appraisal Skills Programme tool (CASP) for qualitative research. Results: We identified nine papers that met the criteria for inclusion and were included in the synthesis. Three themes were generated: (1) Battling to share power against a more powerful system, (2) Empowerment through relationships and (3) The journey is turbulent, but it is not supposed to be smooth. Conclusions: Results highlight that power is pervasive, especially within the hierarchical systems research is often conducted within. Sharing power within co‐produced mental health research is an ongoing complex process that is not intended to be easy. Respectful trusting relationships can help facilitate power sharing. However, ultimately meaningful change needs to come from research funders, universities and NHS providers. Patient or Public Contribution: The study authors include a lived experience researcher who contributed to the review design, analysis and write‐up. [ABSTRACT FROM AUTHOR]
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- 2024
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19. Understanding Co‐Creation in a Research Partnership Programme Exploring Patient‐Driven Innovations: A Qualitative Longitudinal Study.
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Jansson, Hanna, Luckhaus, Jamie L., Hasson, Henna, Mazzocato, Pamela, Stenfors, Terese, and Wannheden, Carolina
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Background: Research indicates that successful co‐creation depends on a shared understanding of co‐creation and its related concepts. However, it also shows that, in practice, views on co‐creation and how to do it differ. This study aims to explore how patient innovators and researchers in a partnership research programme understand co‐creation and how this understanding changes over time. Methods: An explorative longitudinal qualitative study was conducted with the 'Patients in the Driver's Seat' partnership research programme. Fifty‐eight interviews were performed and analysed using a reflexive thematic approach. Findings: Four different ways of understanding co‐creation were identified. These can be instrumentally conceptualized as themes using the inputs‐process‐outputs model: (1) combining different perspectives, experiences and backgrounds (inputs); (2) deliberately dynamic and exploratory (process); (3) striving for equity, not equality (process); and (4) diverse value creation, tangible and intangible (outputs). Together, these themes represent the varied understandings of co‐creation among partnership programme members. Conclusions: Our study of patient innovators and researchers identified four distinct yet complementary understandings of co‐creation. The study suggests that co‐creation is the sum of its essential components, which can be divided into inputs, process, and outputs. Patient or Public Contribution: This study, and the partnership programme it explored, aims to improve the relevance of research for patients and informal caregivers through an improved understanding of the concept of co‐creation within research on patient innovation. All patient innovators involved in the programme were invited, as interviewees and researchers, to contribute to the study design and data analysis. [ABSTRACT FROM AUTHOR]
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- 2024
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20. The limits of co-production: linking regulatory capacity to co-production of authoritative knowledge for environmental policy.
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Large, Daniel
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SCIENTIFIC knowledge , *ENVIRONMENTAL policy , *ENVIRONMENTAL literacy , *STAKEHOLDER analysis , *POLICY analysis - Abstract
This paper introduces a novel perspective on co-production of authoritative knowledge in environmental policy, shifting focus from perceived flaws in knowledge production to structural and governance challenges impeding knowledge uptake. It argues that these challenges, including diminishing support for public authority and widespread enthusiasm for collaboration, contribute to regulatory capacity deficits, which undermine knowledge claims' authority. This account is tested through case study analysis of policy stakeholders in Colorado, USA, who sought to co-produce a scientific assessment for biodiversity offsetting. Despite repeated efforts, industry stakeholders disengaged twice, leading to abandonment of the policy initiative. Analysis demonstrates regulatory capacity's crucial role in fostering co-production and integration of authoritative scientific knowledge in policymaking. By analyzing the failure to sustain stakeholder engagement in terms of interplay between regulatory capacity and co-production, this study contributes a critique of mainstream co-production and demonstrates the value of analyzing how institutional arrangements shape knowledge and policy integration. [ABSTRACT FROM AUTHOR]
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- 2024
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21. Marshaling science to advance large landscape conservation.
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Daskin, Joshua H., Meeks, Angeline, Sclater, Vivienne L., Sorfleet, Julie M., Oetting, Jon, Hoctor, Thomas S., Guthrie, Joseph M., and Swain, Hilary M.
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NATURE reserves , *SCIENTIFIC communication , *HABITAT conservation , *CORRIDORS (Ecology) , *LAND trusts , *CONSERVATION easements - Abstract
Applying science to conservation requires deliberate planning and action infrequently taught in academic settings. To illustrate impactful analysis and science communication, we describe scientific activities targeting the needs of land trusts, NGOs, landowners, and government agencies working to conserve the Florida Wildlife Corridor ("Corridor"). This 7.2 million hectare area is prioritized for habitat connectivity conservation in the US state of Florida. Our activities are built on decades of science guiding Florida land conservation. We quantified threats (e.g., average of over 14,000 ha of development/year from 2001 to 2019) and socio‐ecological benefits of Corridor conservation, prioritized yet‐to‐be‐conserved Corridor areas, produced and shared a new statewide connectivity model, and convened groups to identify campaign science needs. The new connectivity model—the Florida Circuit Model—supported the geography of the Corridor, as designated, and facilitates local (10 km radius, or less) conservation planning. Our efforts have contributed to allocation of over $2 billion for land conservation and the permanent protection of over 82,000 ha within the Corridor by state agencies from June 2021 to March 2024. Targeting science to outreach and policy, planning, and management decisions can motivate public, media, researcher, and government support for land conservation, improve conservation interventions, and attract research funding. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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22. Embedding the service user voice to co‐produce UK mental health nurse education—A lived experience narrative.
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O'Brien, Sam and Davenport, Caroline
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EMPATHY , *INTERPROFESSIONAL relations , *NURSING education , *EXPERIENCE , *SELF-mutilation , *CONVALESCENCE , *PSYCHIATRIC nursing , *STAKEHOLDER analysis , *STUDENT attitudes , *PSYCHOSOCIAL factors - Abstract
Accessible Summary: What is known on the subject?: Co‐production aims to value service user voices and is increasingly used in healthcare.Less is known about how co‐production in nursing education is experienced by service users. What the paper adds to existing knowledge?: This paper shares the experience of one service user who teaches student nurses in a UK university.For the first author, the paper highlights that co‐producing nurse education has been valuable and rewarding for both a service user and students. What are the implications for practice?: Co‐production has the potential to benefit student nurses, including challenging their perceptions of 'difficult' patients. To achieve this, teaching sessions must be equally produced and delivered. By employing and including service users, universities have the potential to improve experiences for students and service users alike. Introduction: Co‐production is increasingly used in health care but there is less attention to a co‐produced mental health nurse education. Aim: This article sought to explore the co‐production experiences of a service user who teaches mental health nurses, alongside the benefits of this to nurse education. Methods: The article is a lived experience narrative co‐written with a nursing lecturer. Thesis: Co‐produced mental health nurse education challenges students' perceptions towards self‐harm and encourages empathy and understanding of service user distress. Implications for Practice: Co‐production has many benefits to nurse education including a positive student experience, and validation of the service user experience to support meaningful recovery. [ABSTRACT FROM AUTHOR]
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- 2024
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23. Integrating Values to Improve the Relevance of Climate‐Risk Research.
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Helgeson, Casey, Keller, Klaus, Nicholas, Robert E., Srikrishnan, Vivek, Cooper, Courtney, Smithwick, Erica A. H., and Tuana, Nancy
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Climate risks are growing. Research is increasingly important to inform the design of risk‐management strategies. Assessing such strategies necessarily brings values into research. But the values assumed within research (often only implicitly) may not align with those of stakeholders and decision makers. These misalignments are often invisible to researchers and can severely limit research relevance or lead to inappropriate policy advice. Aligning strategy assessments with stakeholders' values requires a holistic approach to research design that is oriented around those values from the start. Integrating values into research in this way requires collaboration with stakeholders, integration across disciplines, and attention to all aspects of research design. Here we describe and demonstrate a qualitative conceptual tool called a values‐informed mental model (ViMM) to support such values‐centered research design. ViMMs map stakeholders' values onto a conceptual model of a study system to visualize the intersection of those values with coupled natural‐human system dynamics. Through this mapping, ViMMs integrate inputs from diverse collaborators to support the design of research that assesses risk‐management strategies in light of stakeholders' values. We define a visual language for ViMMs, describe accompanying practices and workflows, and present an illustrative application to the case of flood‐risk management in a small community along the Susquehanna river in the Northeast United States. Plain Language Summary: Individuals, organizations, businesses, and governments face difficult choices about how to adapt to the changing climate. Research can help by, for example, providing insights about future climate conditions or showing how potential courses of action may play out under those conditions. But like all decisions, climate adaptation decisions are fundamentally driven by values. What do people want to achieve through adaptation? There are many answers to this question, and different people may care about different things. Research that evaluates possible adaptation outcomes on grounds different from what people actually care about may be useless or even harmful. To design good research on adaptation strategies, we need to collaborate with stakeholders, communicate across disciplines, and strike the right balance with practical limitations on time, resources, and scientific feasibility. In this article, we present a framework for designing climate‐risk research that looks at policy options from the perspective of stakeholders by focusing on aspects of the potential outcomes that matter to those stakeholders. A key component of the approach is collaborative system diagramming to build shared understanding of the problem and relevant science. A second component is careful review of interviews or focus groups to identify stakeholders' values and make clear how those values intersect with the study system and any scientific modeling of that system. We demonstrate the approach using an example about flood risk. Key Points: Assessing risk‐management strategies inherently imposes a value perspective on climate researchWe suggest assessing potential outcomes of strategy implementation from the perspective(s) of those potentially affectedWe propose a qualitative framework and workflow for building stakeholders' values into scientific assessment of impacts and outcomes [ABSTRACT FROM AUTHOR]
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- 2024
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24. Development of a complex intervention to strengthen municipality-based breastfeeding support to reduced social inequity in breastfeeding.
- Author
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Nilsson, Ingrid, Busck-Rasmussen, Marianne, and Villadsen, Sarah Fredsted
- Subjects
INFANT nutrition ,HEALTH equity ,BREASTFEEDING ,EQUALITY ,NEEDS assessment - Abstract
Background: Breastfeeding is the ideal nutrition for infants and protects infants and mothers from a range of adverse health outcomes during their lifespan. In Denmark, while the breastfeeding initiation rate is high, only 14% of mothers meet the World Health Organization's recommendation of exclusive breastfeeding at six months. Furthermore, a notable social inequity exists among those who achieve this recommendation. Knowledge of effective interventions to reduce breastfeeding inequity is limited. A previous hospital-based intervention succeeded in increasing breastfeeding duration. However, most breastfeeding support is provided in Danish municipalities by health visitors. This called for adapting the intervention to the health visiting program and developing an intensified intervention addressing the social inequity in breastfeeding. This article describes the adaptation and development process of a municipality-based intervention. Methods: During a 15-month period in 2020–21, the municipal intervention was iteratively developed using a three-stage framework for developing complex health interventions described by Hawkins et al. The three stages were 1) need assessment and stakeholder consultation, 2) co-production and 3) prototyping. The process was inspired by O'Cathain et al.'s principles for a user-centred, co-created and theory- and evidence-based approach, involving parents and health visitors. Results: In stage 1, we identified the needs and priorities of the target groups of the intervention. In stage 2, the intervention was developed through action research design and inspired by Duus' 'learning cycles' as the method to enhance motivation and ownership and to strengthen the implementation process by creating a joint room for learning and reflection with health visitors and developers. In stage 3, the intervention was tested for feasibility and usefulness during a 2.5-month period accompanied by monthly dialogue meetings with health visitors and developers. In this period, the intervention was refined based on the gathered experiences and was subsequently prepared for evaluation. Conclusion: The description of the development of this complex intervention, aimed at increasing breastfeeding duration and reducing inequity, offers breastfeeding practitioners and researchers a transparent foundation for continuously improving breastfeeding support and a methodology for complex intervention development. Trial registration: Registered at Clinical Trials NCT05311631. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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25. Constraining co-creation? An ethnographic study of Healthwatch organizations in England.
- Author
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Martin, Graham P., Desai, Amit, Zoccatelli, Giulia, Brearley, Sally, and Robert, Glenn
- Subjects
ETHNOLOGY ,MEDICAL care - Abstract
While the potential benefits of co-production and co-creation are widely vaunted, the degree to which they precipitate innovative change in systems varies, and influences on their impact demand greater attention. We present an ethnographic study of organizations intended to foster co-creation in English health and social care. Comparing five cases, we find demonstrable activity and some tangible impacts. At the same time, the positioning of these organizations as collaborative insiders in local governance systems constrained the publics and issues that were prioritized in co-creative activities. Our findings highlight the significance of discursive forms of meta-governance in delimiting the scope of co-creation. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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26. Cyclones and skinny dolphins: adaptation pathways for Pacific communities under rapid global change.
- Author
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Colloff, Matthew J., Butler, James R.A., Burke, Nat, Morley, John, van Kerkhoff, Lorrae, Hilly, Zelda, Makini-Purcell, Richard B., Namo, Jamal, Barua, Remy, Michie, Kathryn, Rafe, Minnie, and Ririmae, Slade
- Subjects
SOCIAL learning ,SELF-efficacy ,SYSTEMS theory ,CHANGE theory ,DECISION making - Abstract
The Pacific region is experiencing accelerating global change with complex interactions amongst multiple drivers, yet the onus for urgent adaptation falls largely on communities. Proponents of adaptation must therefore ensure that communities are empowered and enabled to design and implement their own adaptation plans after project cycles have concluded, and that this capacity is scaled beyond the original focus. To address this challenge, we tested a new approach in the Solomon Islands for the iterative development, implementation and evaluation of community-led adaptation. Our theory of change was that by co-designing a decision-making process with a network of community facilitators, livelihood adaptation planning could be mainstreamed and scaled out across rural communities. We implemented a planning process based on systems thinking, social learning and co-production, which we assessed using a novel participatory monitoring, evaluation and learning framework. The process involved six steps: (1) identifying drivers of change; (2) developing shared visions for livelihoods; (3) scoping possible futures for livelihoods; (4) identifying existing community adaptive capacity; (5) determining priority 'no-regrets' strategies to achieve the community vision and (6) mapping adaptation pathways of implementation decisions. Community facilitators co-designed the process, and then ran it in their communities to develop place-based adaptation pathways suited to the local decision-making context, and scaling the process out to neighbouring villages through peer-to-peer learning. Results from a monitoring, evaluation and learning assessment showed the process had generated shifts in thinking among communities towards anticipatory adaptation and the development and implementation of livelihood adaptation pathways. The process had also empowered people to have ownership, responsibility and agency for their futures without major ongoing support from outside agencies. [ABSTRACT FROM AUTHOR]
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- 2024
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27. RE-ARMing salt marshes: a resilience-experimentalist approach to prescribed fire and bird conservation in high marshes of the Gulf of Mexico.
- Author
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Stantial, Michelle L., Fournier, Auriel M. V., Lawson, Abigail J., Marcot, Bruce G., Woodrey, Mark S., and Lyons, James E.
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CONSERVATION of natural resources ,NATURAL resources management ,PRESCRIBED burning ,SALT marshes ,BAYESIAN analysis - Abstract
Uncertainty, complexity, and dynamic changes present challenges for conservation and natural resource management. Evidence-based approaches grounded in reliable information and rigorous analysis can enhance the navigation of the uncertainties and trade-offs inherent in conservation problems. This study highlights the importance of collaborative efforts and evidence-based decision-making, specifically implementing the Resilience-Experimentalist school of adaptive management (RE-ARM), which emphasizes stakeholder involvement, shared understanding, and experimentation. Our goal was to develop an adaptive management framework to reduce the uncertainty around the use of prescribed fire to manage the habitat for eastern black rails (Laterallus jamaicensis jamaicensis) and mottled ducks (Anas fulvigula) in saltmarshes of the Gulf of Mexico. Supported by discussions at a series of workshops, we used a value of information analysis to select a fire management hypothesis to test, developed an influence diagram to represent the system under fire management, used the influence diagram to develop a Bayesian decision network (BDN), and conducted a power analysis to guide management experiments and monitoring. Value of information analysis identified fire return interval as the critical uncertainty. Our BDN provided valuable insight into how managers believe prescribed fire influences vegetation characteristics and how vegetation influences both eastern black rail occupancy and mottled duck abundance. The results of the power analysis indicated that a standard occupancy modeling framework was more useful to compare 2- and 5-year fire return intervals for black rails than two alternative designs (removal and conditional). Our BDN can be used to predict the probability of achieving the desirable vegetative response to increase the occupancy probability of black rails and abundance of mottled ducks, and monitoring data can be used to update the BDN (learn) and improve best management practices for prescribed burns (adapt). Linking the value of information, BDNs, and power analysis enhances our understanding of the system, improves management decision-making, and builds trust among scientists, interested parties, and decision-makers. This approach lays the groundwork for knowledge co-production and adaptive management. [ABSTRACT FROM AUTHOR]
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- 2024
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28. Understanding the experiences of older adult participants and individuals involved in the delivery of a physical activity programme based on participatory approaches: A qualitative analysis.
- Author
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McGowan, Laura J., Davies, Amy, French, David P., Devereux‐Fitzgerald, Angela, Boulton, Elisabeth, Todd, Chris, Phillipson, Christopher, and Powell, Rachael
- Subjects
- *
OLDER people , *PERCEIVED benefit , *PHYSICAL activity , *THEMATIC analysis , *STRUCTURAL frames - Abstract
Background Methods Findings Conclusions The present study aimed to understand the experiences of older adult participants and service deliverers involved in a UK‐based physical activity programme, developed using participatory approaches.Focus groups and one‐to‐one interviews were conducted with 34 older adults (aged 55+ years) and 13 service providers. Inductive thematic analysis was conducted, structured using the framework approach.Four themes were identified: (1) Co‐designed activities met needs and encouraged attendance; (2) engagement and access of programme activities; (3) enjoyment and perceived benefits of sessions; and (4) support needs of individuals delivering activities. Co‐designed activities appeared to meet participant needs and instil a sense of ownership of the programme. Feeling able to relate to other participants seemed important and of potential relevance to attracting older adults to the programme. Peer support may help to increase confidence in attending sessions; place‐based approaches (using resources in local communities) and a flexible approach to involvement also seemed to facilitate engagement. Enjoyment of the programme appeared to be enhanced through activity variety and opportunity for socializing, with a sense of community being created through the support and encouragement of fellow participants. It was considered important that volunteers had appropriate recognition and ongoing support.These findings suggest that using participatory approaches may facilitate enjoyment and sustained engagement of older adults. Provision based on local community assets may contribute to sustainability of services. However, providing ongoing support is imperative, requiring further costs and resources over the longer‐term. [ABSTRACT FROM AUTHOR]
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- 2024
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29. The development of ReGoal, a serious mobile game for young people with conduct problems*.
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Livanou, Maria, Manitsa, Ifigeneia, Hulusic, Vedad, Samara, Muthanna, Bull, Marcus, and De Caro, Alberto
- Subjects
- *
YOUNG adults , *EXECUTIVE function , *MOBILE games , *EMOTION regulation , *EMOTIONS - Abstract
Research suggests that serious games can be used as supplementary training tools for young people with complex mental health needs. This study aimed to co-produce a mobile-accessible serious game, ReGoal, in collaboration with young people (11–16 years) and an interdisciplinary team of academic experts and practitioners. ReGoal is aimed to serve as a supplementary tool for improving emotion regulation, goal-orientation, and executive functioning skills. This study consisted of three interlinked co-production phases. First, 122 participants, of which 34% had moderate to high conduct problems, completed an online survey about the role of gaming in managing their emotions. During the second phase, 16 young people attended three focus groups in which their lived experiences shaped the narrative of ReGoal. In the third phase, an online user survey gathered feedback from 72 young people playing the most recent prototype of ReGoal. The key findings suggest that young people valued playing ReGoal as a supplementary aid to improving their mood, increasing empathy towards peers and family, reducing anxiety, anger, and impulsivity, and understanding other people’s emotions. Future research should test the applicability and feasibility of ReGoal in reducing behavioural problems with clinical and non-clinical samples. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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30. Introducing patient stories in health sciences education: the learning experiences of students.
- Author
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Janssens, Astrid, Børgesen, Kirsten, Kragh-Sørensen, Anne, Jensen, Janni Lykke, Nürnberg, Henrik, and Hoeck, Bente
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PATIENTS' attitudes ,CAREER development ,MEDICAL personnel ,ALLIED health education ,ALLIED health personnel - Abstract
Background: It has been advocated that the development of medical school curricula must be informed by students, doctors in training, educators, employers, other health and social care professionals and patients, families and carers. Patients are widely employed to teach clinical and interpersonal skills, and while recognised as crucial in health education, they have mostly been offered a passive role. We assessed the impact of patients contributing personal illness narratives in the master curriculum of allied health care professionals on students' learning experiences. Methods: We designed a module (Patient and Society) for a master's degree programme in Health Sciences at the University of Southern Denmark in collaboration with six patients. The patients contributed to the teaching by sharing and discussing their personal illness narrative. At the end of the module, as part of the exam, we asked the students to reflect on the patients' contribution to the module and how this affected their learning experiences. The 500-word exam responses of 29 students were analysed, in collaboration with six patients, using thematic analysis. Results: Including patients' illness narratives lifted students' academic learning, and their personal and professional development. The stories brought theoretical concepts to life; it helped the students to obtain, retain, and apply academic knowledge. Actively and uninterrupted listening to patients' illness experiences promoted empathy and critical reflection on clinical practice. Faced with the impact of a disease on a person's life, seeing the healthcare system through a patient's lens made students reflect critically on the medical positivist model ruling the health care system focused on just fixing the medical problem with very little room for the illness experience. Conclusion: Our analyses support previous findings indicating that patient narratives are a powerful tool to achieve academic and professional development. Working with patients in health education has the potential to work towards a more inclusive epistemological stance in the health care system and health research. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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31. Media representation of recovery colleges in Australia: a content analysis.
- Author
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Jones, Katheryn, Crawford, Gemma, and Jancey, Jonine
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- *
MENTAL health , *FRAMES (Social sciences) , *WELL-being , *CONTENT analysis , *PARTICIPATION - Abstract
Background:Methods:Results:Conclusion:Recovery Colleges (RCs) are educational hubs that offer a distinct approach to mental health and wellbeing, fostering inclusive learning opportunities. This study aimed to investigate Australian media representations of RCs and
discusses how these representations may influence overall community awareness and acceptance of RCs.Australian online and print news articles on RCs were identified using key words and extracted from two databases: (i) Google News and (ii) Factiva. Content analysis was used to summarise key characteristics of media articles and framing theory informed the identification of news frames.Twenty–three news articles were included. Most were published in local or regional news outlets. Mental health was mentioned in most articles (n = 22), with the majority contextualising RCs as an alternative approach to mental health and recovery through education and participation. The sentiment in the articles was positive, however deficit language was still evident. Human interest and responsibility framing was common.Media coverage highlighted a role for RCs in promoting mental wellbeing through education and participation. However, key elements of their functioning, such as co–production or the role of people with lived experience were less visible. Greater engagement with media outlets to increase awareness and understanding of the individual and community benefits of RCs are needed. [ABSTRACT FROM AUTHOR]- Published
- 2024
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32. Dialectics of cinematic co-production: ambivalent Korean fantasy romance in <italic>Ultimate Oppa</italic>.
- Author
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Oh, David C.
- Subjects
- *
DIALECTIC , *DECOLONIZATION , *FOREGROUNDING - Abstract
Foregrounding the Korean Wave in storylines, there have been notable co-productions that have cinematically addressed the Southeast Asian fan of “K-Dramas” and her travels to South Korea. By analyzing
Ultimate Oppa (2022), I align with a decolonial impulse to study a regional Asian co-production that excludes the usual analysis of the dominant European-U.S. film axis. I argue that intra-Asian co-productions produce ideological asymmetries in these arrangements. InUltimate Oppa , the relationship between the Philippines and Korea is set against the macro-level influences of unequal “soft power” between Korean and Philippine media, producing visible dialectical tensions. As such, this essay argues thatUltimate Oppa ambivalently presents a cross-national romantic fantasy that reifies regional hierarchies, which are made more palatable through ideological dialectics. [ABSTRACT FROM AUTHOR]- Published
- 2024
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33. Speak for yourself: usability and acceptability of audio diaries to explore physical activity, sedentary and sleep behaviours of those living with severe mental illness.
- Author
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Pina, Ilaria, Hodgson, Philip, Anderson, Kirstie, and Oliver, Emily J.
- Subjects
- *
DRUG side effects , *SEDENTARY behavior , *FATIGUE (Physiology) , *QUALITY of life , *PHYSICAL activity - Abstract
Background: People living with severe mental illness (SMI) face significant health inequalities, including reduced quality of life and life expectancy. Evidence has shown that people living with SMI are highly sedentary, face challenges when seeking to engage in physical activity (PA), and experience sleep difficulties. Motivation, mood and energy have been identified as critical determinants of these behaviours. PA and sleep are traditionally measured in isolation using quantitative approaches, limiting our understanding of the contexts and interactive ways in which these occur, especially for this population. Here, we adopted a flexible and holistic approach, using audio diaries to explore the usability and acceptability of capturing movement behaviours in people living with SMI. Methods: This study employed a qualitative design. Data were collected with 10 participants self-identifying as living with SMI, who completed 7-days of audio diaries, pre and post diary use interviews. Reflexive thematic analysis was used to analyse participants' movement behaviours and their experiences of using the audio diaries. Results: Audio diaries were perceived as acceptable to participants and their use for data capture was feasible, with participants experiencing their use as a flexible and empowering method of data capture. Within the exploratory data generated we identified four themes relating to participants' movement behaviours: finding themselves in a "vicious circle" with physical and mental issues impacting movement behaviours; a daily internal fight and dialogue concerning fear of feeling guilty and wasting time; a determination to "not let fatigue win" by pushing through the day; and the mixed effects of understanding the importance of movement behaviours yet finding it challenging to engage. Conclusion: Audio diaries offered an easy to use and relatively inclusive means of exploring movement behaviours for people living with SMI, especially their context and interrelated nature. Our findings reinforced the well-established link between mental and physical health, and their influence on 24 h movement behaviours, identifying population-specific challenges derived from medication side effects, rigid engagement opportunities, and illness symptoms. Given this, co-production involving individuals with lived experience is crucial for developing tailored recommendations and support to promote sleep and movement among those living with SMI. We emphasized the need for holistic measurement approaches and opportunities that consider the interconnected impact of disrupted sleep and movement. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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34. A dynamic surface water extent service for Africa developed through continental-scale collaboration.
- Author
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Halabisky, Meghan, Yuan, Fang, Adimou, Ghislain, Birchall, Eloise, Boamah, Edward, Burton, Chad, Chong, Ee-Faye, Hall, Lisa, Jorand, Cedric, Leith, Alex, Lewis, Adam, Mamane, Bako, Mar, Fatou, Moghaddam, Negin, Ongo, David, and Rebelo, Lisa-Maria
- Subjects
REMOTE-sensing images ,LANDSAT satellites ,SURFACE dynamics ,AGRICULTURAL water supply ,WATER supply - Abstract
Spatially explicit, near real time information on surface water dynamics is critical for understanding changes in water resources, and for long-term water security planning. The distribution of surface water across the African continent since 1984 and updated as every new Landsat scene becomes available is presented here, and validated for the continent for the first time. We applied the Water Observations from Space (WOfS) algorithm, developed and well-tested in Australia, to every Landsat scene acquired over Africa since the mid 1980s to provide spatial information on surface water dynamics over the past 30+ years. We assessed the accuracy of WOfS using aerial and satellite imagery. Four regional geospatial organisations, coordinated through the Digital Earth Africa Product Development Task Team, conducted the validation campaign and provided both the regional expertise and experience required for a continental-scale validation effort. We assessed whether the point was wet, dry, or cloud covered, for each of the 12 months in 2018, resulting in 34,800 labelled observations. As waterbodies larger than 100 km² are easy to identify with Landsat resolution data and can thus boost accuracy, these were masked out. The resulting overall accuracy of the water classification was 82%. WOfS in Africa is expected to be used by ministries and departments of agriculture and water across the continent, by international organisations, academia, and the private sector. A large-scale collaborative effort, which included regional and technical skills spanning two continents was required to create a service that is regionally accurate and is both hosted on, and implemented operationally from, the African continent. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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35. Adult attention-deficit hyperactivity disorder: time for a rethink?
- Author
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Matheiken, Shevonne, Erden, Meriç, Krishnadas, Rajeev, and Pinto da Costa, Mariana
- Subjects
- *
ATTENTION-deficit hyperactivity disorder , *PHYSICIANS , *ADULTS , *NEURAL development , *DIAGNOSTIC errors - Abstract
SUMMARY: Recent years have seen a rise in media coverage as well as demand for specialist attention-deficit hyperactivity disorder (ADHD) assessments in adults and children. This article explores the challenges in the diagnostic process for adult ADHD, amidst much misinformation and controversy. In doing so, we look at the social model of ADHD; a glossary of terms to better understand lived experience; underdiagnosis and misdiagnosis; and the fallacy of the 'high functioning' label. We propose the use of co-production to bridge the gap between the medical and social models. We conclude with suggestions for future research. The article includes anonymous contributions from doctors with ADHD. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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36. What does 'co‐production' look like for food system transformation? Mapping the evidence across Transforming UK Food Systems (TUKFS) projects.
- Author
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Shaw, Naomi, Hardman, Charlotte A., Boyle, Neil Bernard, Craven, Joanne, Dooley, John, Mead, Bethan R., Morgans, Lisa, Mumby, Hannah, and Pettinger, Clare
- Subjects
- *
NUTRITION policy , *INTELLECT , *INTERPROFESSIONAL relations , *DESCRIPTIVE statistics , *FOOD industry , *THEMATIC analysis , *RESEARCH , *ACTION research , *ADULT education workshops , *FOOD supply , *STAKEHOLDER analysis , *CASE studies , *INTERPERSONAL relations - Abstract
Co‐production is a collaborative way of working which emphasises the exchange of diverse forms of knowledge in an equal partnership for equal benefits. Co‐produced research is a key strategic aim of the UK Research and Innovation (UKRI) Transforming UK Food Systems (TUKFS) Strategic Priorities Fund; this research programme brings together researchers, policymakers, industry and communities to create positive change in the way food is produced, accessed and consumed. However, more generally, there are diverse understandings of co‐production and a lack of consensus on what 'good practice' looks like. Therefore, this study aimed to identify and map examples of co‐production methods employed across the TUKFS programme. Two creative workshops (n = 15 participants), conversations with TUKFS researchers and stakeholders (n = 15), and systematic analysis of project documents were used to critically explore co‐production activities within six TUKFS projects. A range of co‐production activities were identified. Findings highlighted areas of 'messiness' and complexity, challenges associated with applying co‐production approaches and practical solutions. Four key shared principles for co‐production were identified: (1) Relationships: developing and maintaining reciprocity‐based partnerships; (2) Knowledge: recognising the contribution of diverse forms of expertise; (3) Power: considering power dynamics and addressing imbalances; and (4) Inclusivity: ensuring research is accessible to all who wish to participate. Opportunities for reflection and reflexivity were considered crucial across all these areas. Findings contribute important insights towards a shared conceptual understanding of co‐production for food system transformation research. This paper makes recommendations for researchers, practitioners, academic institutions and funders working in this area of research and practice. [ABSTRACT FROM AUTHOR]
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- 2024
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37. Making Citra: Branding, Breeding, and the Co-production of New Aroma Hops in the Yakima Valley.
- Author
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Comi, Matt
- Subjects
- *
AGRICULTURE , *CRAFT beer , *BOTANY , *VALUE chains , *PRODUCE markets - Abstract
Using farmer-owned breeding programs operated by vertically integrated US Northwest hop growers, this article examines the novel hops produced by these programs with market applications for craft beer. Drawing on data collected through hybrid qualitative methods, I explore Yakima farmers' understandings of the hop material they breed, grow, buy, and/or sell, alongside this model's resulting value chain. I demonstrate that growers, alongside other materials in the hop-growing assemblage, co-produce material technologies (new hop genetics) and discursive technologies (new hop brands). This study provides insights into alternative places, where agricultural plant science and innovation may be possible and the social ramifications of knowledge-making. The case study of craft hops demonstrates how embedded plant science has the capacity to reconfigure neoliberal tendencies in modernist agriculture but that without intervention, these tendencies are reinstated through the deployment of discursive technologies in the form of branded intellectual property. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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38. I am not going to lie; some people do not even want to talk: Co‐design with vulnerable groups affected by child criminal exploitation.
- Author
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Maxwell, Nina and Corliss, Cindy
- Subjects
- *
VICTIMS , *CRIME , *RESEARCH funding , *SOCIAL justice , *CHILD abuse , *AT-risk people , *PARENT attitudes , *EXPERIENCE , *HUMAN rights , *INFORMED consent (Medical law) , *COVID-19 pandemic - Abstract
Co‐production values lived experience as it promotes individuals as assets and offers insight where little is known about a problem. This paper critically considers the pragmatic approach to co‐design adopted in Wales with young people and parents affected by child criminal exploitation during the COVID‐19 pandemic. It suggests that combining co‐design with data collection facilitated the recruitment, sensitisation and facilitation of vulnerable groups. By placing informed consent at the forefront of co‐design, young people and parents decided how they wanted their voices heard. Further, combining data gathering with co‐design contextualised solution development within their lived experiences. However, embedding these solutions into policy and practice remains subject to existing power imbalances. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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39. 'We live here and play here, we should have a say': An exploration of children's perceptions of place‐making in the Market community, Belfast.
- Author
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McAteer, Benedict, Loudon, Emma, and Higgins, Kathryn
- Subjects
- *
PLAY , *INTERVIEWING , *COMMUNITIES , *RESEARCH methodology , *METROPOLITAN areas , *SOCIAL networks , *PUBLIC health , *PRACTICAL politics , *NEIGHBORHOOD characteristics , *BUILT environment , *CHILD behavior , *CHILDREN - Abstract
Children learn through interaction with their surroundings, meaning that their experiences of place directly contribute to their personal development. Despite this, the needs of the youth are rarely factored into development plans. This is a major obstacle to the sustainable and inclusive development of places. Examining potential pathways to correct this issue, this paper presents the findings of research conducted with young people from the Market area of Belfast. The research engaged with two groups (n = 11) in a participatory investigation of how young people engage with the built environment. Using several participatory methods, including narrative walkabouts, mapping exercises and semi‐structured group interviews, the children engaged as co‐researchers. We link to idea of 'third places' to frame our analysis, demonstrating how children in the Market community have strong opinions of how space is, and should be, designed and managed. We reveal interesting dynamics regarding the children's perceived exclusion from the city centre and concerns about how poor planning is harming their community's public health. We conclude by reflecting upon some of the children's proposed solutions, as well as by presenting two outcomes of our study that hint at the potential future role of young people in co‐designing the built environment. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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40. Working "With" Not "On" Disabled People: The Role of Hate Crime Research within the Community.
- Author
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Burch, Leah
- Subjects
- *
INTERPROFESSIONAL relations , *QUALITATIVE research , *VIOLENCE in the community , *PARTICIPANT-researcher relationships , *ATTITUDES toward disabilities , *CRIME victims , *CREATIVE ability , *PEOPLE with disabilities , *PSYCHOLOGICAL vulnerability - Abstract
For many disabled people, violence can become an unwanted, yet ordinary part of everyday life. Often, these crimes are attributed to understandings of disabled people as vulnerable and largely, passive victims. Attending to the aims of this special issue, this paper aims to dismantle these stereotypes and attend to the unique ways that disabled people can resist and respond to hate crime through creative and collaborative research practices. Building upon this, I argue that there is a pressing need for hate studies researchers to work "with" and not "on" those who have experienced targeted violence. Working in this way builds upon long-standing efforts of disabled activists and disabilities studies researchers to challenge reductive research practices by working in more collective and inclusive ways. To demonstrate this, I reflect upon a project working in partnership with disabled people to create a disability hate crime toolkit. The toolkit, now published, shares accessible and informative resources that can be used to raise awareness about disability hate crime. While the focus of this paper is disability, I consider methods of collaboration, co-production and participation that can be drawn upon by researchers to respond to hate crime and interpersonal violence more broadly. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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41. Practical and ethical challenges in co-producing technology for good in justice settings.
- Author
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Morris, Jason and Johns, Diana
- Subjects
DESISTANCE from crime ,JUSTICE ,DIGITAL technology ,USER experience ,JUSTICE administration - Abstract
In this article, we reflect critically on the role of digital technology in supporting desistance from crime, and the process and outcomes of co-producing digital resources in that context. Drawing on concepts of social harm, and co-production (or "working-making-doing together"), we consider the risks of digital technology perpetuating coercive aspects of the justice system. We advocate for the conscientious inclusion of people with lived experience of criminalisation in the design, implementation, and evaluation of technology that supports desistance as one way of mitigating such risks. People's lived experiences can attune them to underlying harms in the design and use of digital tools in the justice system and help safeguard future users of that technology. We also acknowledge the costs, risks, and complexities of this work. For instance, co-production may give permanence to voices and stories of lived experiences with both the power to inspire and promote desistance and the potential to reproduce or reinforce stigma and exclusion. We reflect on such ethical complexities by considering whose needs are served in co-producing technology to support desistance. We conclude by suggesting that the recruitment and promotion of experts by experience within justice organisations can help to create a learning culture where there is a heightened awareness of user experience and potential harms in the design, implementation, and evaluation of justice technology. Please note, this paper provides the authors' reflections on co-producing technology that supports desistance. It is not intended to set out HMPPS policy on digital rehabilitative services or co-production methods. It is written in conversation with a colleague/interlocutor with lived experience of criminalisation and imprisonment, who remains anonymous here for various reasons and to whom the article is dedicated. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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42. Co-Production Analysis in Waste Management: A Local Perspective.
- Author
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Prastya, Imam Yudhi, Putranti, Ika Riswanti, Yuniningsih, Tri, Priyadi, Budi Puspo, and Mangai, Mary
- Subjects
WASTE management ,CIVIL service ,LOCAL government ,INFORMATION technology ,DIGITIZATION ,PUBLIC services - Abstract
This research aims to analyze co-production practices in waste management through the Waste Bank and Reuse, Reduce, and Recycle Waste Management Area (TPS 3R) in Semarang City on the grounds that Semarang City is the largest waste generate in Central Java Province. Qualitative descriptive was used as a method with data collection techniques using interviews with 11 informants, documentation and observation. Community-based waste management practices are analyzed using the concept of coproduction. The findings of this research are that co-production in waste management is motivated by environmental problems, the lack of waste services and government encouragement. Resource sharing occurs between communities, government and Non Government Organizations (NGOs) although the quality of relationships needs to be improved. Waste banks and 3R TPS apart from providing services to residents, is also able to enter "spaces" that the government cannot reach through reducing waste, educating citizens and as a data collector for the government. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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43. SUSTAINABLE SOCIAL SERVICES-A CO-PRODUCTION PERSPECTIVE.
- Author
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FRĄCZKIEWICZ-WRONKA, Aldona and KOZAK, Anna
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SUSTAINABILITY ,LITERATURE reviews ,SOCIAL services ,OFFICES ,PUBLIC administration - Abstract
Purpose: This study aims to identify management practices that enhance the provision of social services through co-production. It is based on the assumption that co-produced social services align with the sustainability paradigm. Design/Methodology/Approach: The study's objectives were achieved through a comprehensive literature review and a field survey conducted in December 2022. The survey utilized a questionnaire distributed to 357 local government units (LGUs) functioning as municipalities. To ensure a representative sample that included all types of units, stratified random sampling was employed. These LGUs were distinguished by their classification within a NUTS macro-region. The sampling strata were designed to ensure comparability across macro-regions, with each stratum reflecting the diversity of institutions, categorized into urban municipality offices, urban-rural municipality offices, and rural municipality offices. A limitation of the methodology is the potential for ambiguous interpretations of research questions, leading to responses that may not fully align with the actual conditions. Future research should aim to deepen these findings through qualitative methods. Findings: The study identified key determinants that influence the collaboration between municipalities and organizations involved in social service provision, whether in the market or civil sectors. Research Limitations/Implications: The study has several limitations. First, the reliance on self-reported data from LGUs may introduce bias, as respondents might present their practices more favorably. Second, the focus on Poland limits the generalizability of the findings to other contexts with different political, social, and economic conditions. Implications: The findings suggest that co-produced social services can foster sustainability. Sustainable co-production involves the continuous and meaningful engagement of service users in the design and delivery of services, moving beyond sporadic efforts to establish long-term relationships between professionals and service users. The sustainability of social service provision refers to the ability of involved organizations to adapt to changes in policy, funding, or the needs and preferences of service users. Originality/Value: The research underscores that building relationships with social service providers significantly contributes to meeting social needs effectively, fostering sustainable practices, and making communities more responsive to citizen needs. Enhancing sensitivity to citizen needs is a crucial expectation of municipalities. [ABSTRACT FROM AUTHOR]
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- 2024
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44. What sits, what sticks: moving into lived, disruptive, co-produced filmmaking practices in literacy classrooms.
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Bramley, Ryan and Rowsell, Jennifer
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FILMMAKING ,CLASSROOMS ,LANGUAGE & languages ,COPRODUCTION (Motion pictures, television, etc.) ,EDUCATORS - Abstract
This article examines two ethnographers' fieldwork with young people applying co-production film-making methods and three ways to approach youth-led filmmaking work for researchers and educators. Implicit to our argument is a belief, based on several multimodal projects, that filmmaking consolidates literacy skills and gives young people a more expansive, lived, and at times disruptive sense of literacy learning. In this special issue focusing on research into children's language, literacy and literature, we give readers a way to take forward a living literacies approach to film work in 3–13 literacy teaching and learning. [ABSTRACT FROM AUTHOR]
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- 2024
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45. For all seasons? Exploring the policy-context for co-creation.
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Røiseland, Asbjørn
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CHILD welfare ,GOVERNMENT policy on climate change ,ELDER care ,PUBLIC sector ,LEGAL authorities - Abstract
IMPACT: 'Co-creation' is a major buzzword in contemporary governance. A range of public sector organizations nowadays declare co-creation as an overall strategy for their policies and actions. However, what co-creation should mean in operational terms often remains less clear. This article explores what co-creation could look like within three significantly different policy contexts: the exercise of authority, service delivery and regulation. To illustrate the argument, the article also explores the extent to which co-creation as a practice already exists in three Norwegian policy fields which resemble the three policy contexts. These three policy fields are child welfare and protection (authority), elderly care (service delivery) and climate policy (regulation). Although the illustrative examples are derived from a single country, they will be relevant to other countries as well. Co-creation is a broad concept that can potentially be applied to many significantly different policy contexts. However, the co-creation literature has paid less attention to questions like how policy content conditions co-creation, and how this generic idea can be translated into different policy fields. To address this gap, this article aims to explore what co-creation might mean in different policy contexts, and discusses co-creation in the context of legal authority, service provision and regulation. The arguments are illustrated using examples from three Norwegian policy sectors: child welfare, elderly care, and climate policy. [ABSTRACT FROM AUTHOR]
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- 2024
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46. Building Equitable Research Partnerships: Learning From a Community Climate Resilience Grant Program.
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Cann, K., Leichenko, R., Herb, J., Kaplan, M., and Howell, N.
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URBAN community development ,BUSINESS partnerships ,GOVERNMENT aid ,DESIGN competitions ,STOCK funds ,RESEARCH awards - Abstract
Calls for the co‐production of climate knowledge and services are increasingly prominent in research and funding proposals, including within federally funded programs. While co‐production has led to more accessible and relevant climate services for frontline communities, scholars have identified numerous barriers to equitable relationships and outcomes within co‐production partnerships. In an effort to support the development of climate services through equitable research partnerships, the Consortium for Climate Risk in the Urban Northeast, a NOAA Climate Adaptation Partnership team, collaboratively designed and launched the Community Climate Resilience (CCR) Grant competition in 2022. The CCR program serves to provide funding and build capacity among community‐based organizations (CBOs) responding to climate variability in historically disinvested communities in the urban Northeast, as well as foster co‐production partnerships between the organizations and local university‐based researchers. This paper assesses the design and implementation of the program based on data collected through a survey of research partners, discussions with key stakeholders, and observation of relevant project meetings. Despite the incorporation of lessons from similar co‐production projects, program designers found several persistent impediments to equitable partnerships, including time constraints, funding limitations, and burdensome institutional requirements. We reflect on these challenges and offer strategies for overcoming barriers to equitable partnerships, including streamlining funding pass‐through structures, increasing transparency in funding competitions, promoting flexible funding options, and fostering communities of practice among CBOs and university partners. The findings are relevant for researchers and practitioners implementing equity‐focused co‐production partnerships and small grant programs in climate services and related fields. Plain Language Summary: Knowledge and services produced collaboratively between scientists and local stakeholders have benefits for communities responding to evolving climate risks, including more accessible and relevant research. Funding agencies, including those at the federal level in the U.S., have increased requirements for co‐produced research and service development, prompting relationships between university researchers and community partners. However, co‐production partnerships are not always equitable. This paper identifies promising strategies for improving equity outcomes within co‐production relationships and small grant programs. The authors assess the design and implementation of the Community Climate Resilience (CCR) Grant competition, launched by the Consortium for Climate Risk in the Urban Northeast, a NOAA Climate Adaptation Partnership team, in 2022. While the CCR program attended to multiple dimensions of equity, the authors identified a number of impediments to equitable co‐production partnerships, including time and funding limitations and difficult institutional requirements. We suggest streamlining access to funding, increasing transparency in competition design, promoting realistic funding options, and fostering communities of practice to improve equity outcomes in similar small grant programs and co‐production relationships related to climate adaptation, resiliency, and other fields. Key Points: We identify promising approaches for equitable co‐production relationships in university‐community small grant programsWe assess equity implications of the design and implementation of a small grant program for community resilience in the urban NortheastStreamlining funding access, increasing transparency, promoting flexible spending, and fostering collaboration may improve equity outcomes [ABSTRACT FROM AUTHOR]
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- 2024
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47. Enhancing Adaptive Capacity by Engaging and Empowering Frontline Workers: A Case Study From a Water Utility.
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Gonzales, Katerina R., Roop, Heidi A., Rozance, Mary Ann, Grodnik‐Nagle, Ann, Purnell, Danielle, Rack, Marieke, and Branam, Easton
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CLIMATE change adaptation ,WATER utilities ,CLIMATE justice ,PUBLIC utilities ,RAINFALL - Abstract
Water utility crews, including those who perform system maintenance and operations at drinking water, wastewater, and stormwater utilities, are experiencing the impacts of changing rainfall characteristics first‐hand. These frontline crews have relevant, experiential knowledge about changing climate‐related risks and adaptation needs that, to date, are not included in utilities' strategic climate planning or implementation efforts, resulting in critical knowledge systems and action gaps. In this co‐production case study with Seattle Public Utilities (SPU), a municipal public water utility in Washington State, we use surveys and interviews to document barriers and opportunities for frontline crew engagement to enhance SPU's climate adaptation strategies to extreme rainfall. We find that 66% of crew workers perceive changes to rainfall intensity over the past decade and 59% report responding more to rainfall‐related issues. These frontline crews are coping with changes in extreme precipitation by increasing preventative maintenance, working overtime during major storm events, and doing more pre‐storm planning and preparation. Crews identified several aspects limiting their ability to respond to and prepare for extreme rainfall. To enhance their adaptive capacity, crews documented needs for infrastructure improvement, workforce facilities improvement, increased access to appropriate personal protective equipment, improved communication and coordination across the utility, and enhanced workforce capacity, including increased staff numbers. Findings suggest that for more effective, equitable, and responsive climate adaptation, water utilities should explicitly solicit and include crews' knowledge and lived experiences in adaptation planning while prioritizing strategies that enhance frontline crews' capacity and working conditions as a form of reciprocal action. Plain Language Summary: This study engaged frontline crews at Seattle Public Utilities (SPU) to understand and inform how future frontline workforce engagement can be integrated in adaptation planning and investments including frontline crew engagement as a necessary part of a robust and equitable climate adaptation planning. Water utility crews are frontline workers because they may be directly exposed to climate impacts where they work. These frontline workers experience climate change impacts, including heavier rainfall, firsthand. This exposure has implications for climate equity. In Seattle, Washington, the City has made equity plans, community engagement plans, and climate action and adaptation plans, yet to‐date none of them explicitly include frontline workers' knowledge, experiences, or exposure as critical to understanding and managing climate change. Frontline workers are not just impacted by climate‐amplified hazards, but they are also implementers of climate adaptation strategies. These workers hold experience‐based knowledge about the effective management of water utility systems and knowledge of current climate adaptation strategies. This study, through direct frontline worker engagement, explores how water utilities can intentionally include crews' on‐the‐ground perspectives in adaptation efforts and invest in increasing workers' ability to adapt as part of reciprocity for incorporating their experiential knowledge into climate adaptation planning and action. Key Points: Water utility crews have experiential knowledge about climate risks that is often not integrated in utilities' climate adaptation effortsCrews managing utility assets like stormwater infrastructure already perceive that climate change is deteriorating their working conditionsIntegrating crew knowledge into strategic planning while enhancing crews' capacity is important for equitable adaptation in the water sector [ABSTRACT FROM AUTHOR]
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- 2024
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48. GeoTraductores: A Collaborative Initiative Democratizing Science Communication in Latin America.
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Navarro‐Perez, D. J., Ramírez‐Salazar, A., Barragán‐Montilla, S., Arredondo, M. Garcia, Sepúlveda, N. Rodríguez, Venturi, O., Rosa Marín, A., Gómez Correa, M. A., Micalizio, C. S., and Bastien‐Olvera, B. A.
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SCIENTIFIC communication ,VOLUNTEER service ,NATIVE language ,EARTH sciences ,INTERNET traffic ,COMMUNICATIVE competence - Abstract
GeoTraductores is an collaborative initiative between Eos, Planeteando, andGeoLatinas that aims to provide Spanish‐speaking communities access to current scientific findings. This goal is accomplished by translating science articles originally published in English on AGU's Eos.org, within their Science News magazine, into Spanish. This cross‐organizational initiative has translated, edited, and published over 150 articles, breaking the language barrier for Spanish‐speaking communities. Our experience since 2020 has allowed us to tailor an efficient co‐production model, which starts with (a) the selection of articles of interest to translate, followed by (b) the translation, reviewing, and editing process by volunteers, and (c) the publication and social media dissemination of the translated article. The tangible impact of GeoTraductores is evident in the substantial surge of visitor traffic to the Eos website between 2020 and 2023, particularly from Latin American countries. Notably, increases exceeding 85% were observed in Colombia, Mexico, and Panama, with 20% or greater growth in Chile, Brazil, Costa Rica, Peru, and Ecuador, confirming the initiative's success in meeting a genuine need. This impact extends globally, with Spain experiencing a 40% increase in visitors. Our co‐production model is possible thanks to the contribution of around 40 GeoTraductores, mainly women (85%), who are native Spanish speakers or bilingual (Spanish and English speaking). These early‐career scientists, through their volunteer work, enhance their bilingual communication skills while breaking down language barriers in science communication. The Eos‐Planeteando‐GeoLatinas co‐production model fosters science democratization for Latin America while promoting diversity, equity, and inclusion in Earth Sciences, one translation at a time. Plain Language Summary: GeoTraductores is an Eos, GeoLatinas, and Planeteando initiative based on co‐production and volunteering to provide Spanish‐speaking communities access to current scientific findings through translations. Within the Eos en Español project, this initiative translates science articles from English into Spanish. Between 2020 and 2023, GeoTraductores has translated, edited, and published over 150 articles, thus breaking down the language barrier for Spanish‐speaking communities. We have developed an efficient co‐production model that involves article selection, volunteering translation, review, editing, and publication as well as social media dissemination of the translated article. The impact of GeoTraductores is evident in the substantial surge of visitor traffic to the Eos website between 2020 and 2023, particularly from Latin American countries. For example, visits to the website from Colombia, Mexico, and Panama increased by over 85% and grew 20% or more in Chile, Brazil, Costa Rica, Peru, and Ecuador. This impact extends to Spain experiencing a 40% increase in visitors. This co‐production model is possible thanks to the contribution of 40 GeoTraductores, mainly women (85%), who are native Spanish speakers or bilingual early‐career scientists. The Eos‐Planeteando‐GeoLatinas co‐production model fosters science democratization for Latin America while promoting diversity, equity, and inclusion in Earth Sciences, one translation at a time. [ABSTRACT FROM AUTHOR]
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- 2024
- Full Text
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49. Co-producing school-based mental health interventions with young people, teachers, and schools: a case study
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Brian C. F. Ching, Alex Foster, Merle Schlief, Gemma Lewis, and Priya Rajyaguru
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Child and adolescent mental health ,Co-production ,School ,Prevention ,Medicine ,Medicine (General) ,R5-920 - Abstract
Abstract Background Schools are a prime setting for the delivery of universal and targeted mental health interventions. Current school-based mental health interventions may not be developed to fully meet student mental health needs and co-production is needed to understand what young people really want. Despite this, research on school-based mental health interventions does not consistently engage in co-production, involving stakeholders, such as young people and schools, in the decision-making, development, evaluation and/or implementation stages. This highlights that transforming the development of school-based mental health interventions is crucial to meeting all stakeholders’ needs. In this paper, we aim to briefly review an approach to co-production that can be used when conducting research on school-based mental health interventions that centre stakeholder voices to drive meaningful change. We describe a case study to showcase this approach. Main body We highlight recommendations and important elements to consider for each stakeholder when engaging in different levels of co-production, including young people, teachers, and schools. We provide practical examples of how this may look like in practice, theoretical underpinnings, and impact on outcomes. Our case study of co-producing a talk to improve mental health literacy in secondary school students is highlighted to demonstrate how a group of young people, teachers, epidemiologist, psychiatrist, and researchers can work together to develop school-based mental health interventions. Conclusion Co-production can be successfully conducted amongst researchers and stakeholders to develop school-based mental health interventions. Changes made to the talk were guided by synthesis of feedback that aligned with the balanced needs, perspectives, and opinions of all stakeholders. The use of this co-production approach in research on school-based mental health interventions with young people, teachers, and schools has important implications for research, service provision, and stakeholder empowerment.
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- 2024
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50. The lived experience of co-production: Reflective accounts from the InCLUDE project
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Shayma Izzidien, Rachael Stemp, Sakab Akram, Sabbir Ahmed, Alay Rangel-Cristales, Karen Irvine, Shivani Sharma, and Nick Midgley
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Co-production ,Patient and public involvement ,Participatory research ,Children’s social care ,Reflection ,Underserved ,Medicine ,Medicine (General) ,R5-920 - Abstract
Abstract Background The value of co-produced research in health and social care is increasingly recognised, but accounts into the processes and individual experiences of co-producing research are lacking. This paper describes the personal journeys of four researchers (two experts by foster caring experience and two experts by profession) throughout the life course of a co-produced research project exploring the barriers and facilitators to inclusive research in foster caring, the InCLUDE project. Methods Each researcher kept a diary throughout the InCLUDE project of their personal reflections, questions, and learning. These were synthesised and reviewed by the researchers and two colleagues external to the team, and key themes were extracted. Results Narratives constructed from the diaries are presented in relation to distinct aspects of the co-production journey, alongside illustrative quotes. These aspects include: motivations for starting the project; making sense of the project; defining roles and responsibilities; challenges; and reflections on acquired knowledge and skills. From these insights, the researchers present recommendations for others endeavouring to engage in co-produced research. These include: recognising vulnerabilities and challenges during the early stages of a project; creating safe spaces; seeing the value of diversity; harnessing individual strengths; establishing a strong routine; and ensuring equal voice. Conclusions This paper presents a novel perspective on the realities of co-produced research by documenting the lived experiences of researchers within the context of foster care research. It highlights the importance of both measurable, tangible project outcomes, and the personal and skills growth of team members. The consistent use of diaries is encouraged as a valuable practice to capture learning, progress and achievements throughout the co-production process.
- Published
- 2024
- Full Text
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