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1. Towards a consensus on developmental regression.

Author

Zhang, Dajie, Bedogni, Francesco, Boterberg, Sofie, Camfield, Carol, Camfield, Peter, Charman, Tony, Curfs, Leopold, Einspieler, Christa, Esposito, Gianluca, De Filippis, Bianca, Goin-Kochel, Robin P, Höglinger, Günter U, Holzinger, Daniel, Iosif, Ana-Maria, Lancioni, Giulio E, Landsberger, Nicoletta, Laviola, Giovanni, Marco, Eva M, Müller, Michael, Neul, Jeffrey L, Nielsen-Saines, Karin, Nordahl-Hansen, Anders, O'Reilly, Mark F, Ozonoff, Sally, Poustka, Luise, Roeyers, Herbert, Rankovic, Marija, Sigafoos, Jeff, Tammimies, Kristiina, Townend, Gillian S, Zwaigenbaum, Lonnie, Zweckstetter, Markus, Bölte, Sven, and Marschik, Peter B

Subjects
Humans, Consensus, Regression, Psychology, Medical and Health Sciences, Psychology and Cognitive Sciences, Behavioral Science & Comparative Psychology
Published
2019

3. List of Contributors

Author

Aaen, Gregory, primary, Abroms, Israel F., additional, Ådén, Ulrika, additional, Ahlsten, Gunnar, additional, Aird, Robert B., additional, Al-Zaidy, Samiah A., additional, Andermann, Fred, additional, Anlar, Banu, additional, Arzimanoglou, Alexis, additional, Ashwal, Stephen, additional, Augustine, Erika, additional, Ballaban-Gil, Karen, additional, Bamford, Nigel S., additional, Barlow, Charles F., additional, Bast, Thomas, additional, Bates, David, additional, Baumann, Robert J., additional, Bertini, Enrico, additional, Beya, Alidor, additional, Blaw, Michael, additional, Bodensteiner, John, additional, Bonthius, Daniel J., additional, Brin, Amy E., additional, Brockmann, Knut, additional, Brown, John Keith, additional, Brown, Stuart B., additional, Brumback, Audrey Christine, additional, Bureau, Michelle, additional, Burke, James R., additional, Bye, Annie, additional, Camfield, Carol, additional, Camfield, Peter, additional, Campistol Plana, Jaume, additional, Canale, Dee James, additional, Caneris, Onasis, additional, Caraballo, Roberto H., additional, Caviness, Alison Chantal, additional, Chao, Hsiao-Tuan, additional, Chapman, Catherine A., additional, Chaves-Carballo, Enrique, additional, Cho, Yoon-Jae, additional, Christen, Hans-Jürgen, additional, Chugani, Harry T., additional, Cioni, Giovanni, additional, Clark, David, additional, Cliff, Edward Robert Scheffer, additional, Cochran, Frederick B., additional, Cohen, Bruce H., additional, Cohen, Maynard M., additional, Collins, Kevin, additional, Covanis, Athanasios, additional, Critchley, Macdonald, additional, Cross, J. Helen, additional, Crumrine, Patricia K., additional, Curatolo, Paolo, additional, Davies, Pamela A., additional, deVeber, Gabrielle, additional, De Vivo, Darryl C., additional, de Vries, Linda S., additional, De Waele, Liesbeth, additional, DeMyer, William, additional, Devlin, Anita, additional, Dobyns, William B., additional, Dodson, W. Edwin, additional, Donald, Kirsty, additional, Duffy, Frank H., additional, Dunn, David W., additional, Dunn, Henry G., additional, Dure, Leon S., additional, Dyken, Paul Richard, additional, Encha-Razavi, Férechté, additional, Erenberg, Gerald, additional, Estes, Melinda L., additional, Evrard, Philippe, additional, Ferriero, Donna, additional, Ferry, Peggy, additional, Fine, Archie, additional, Fine, Edward J., additional, Fine, John S., additional, Finkel, Richard S., additional, Fischer, Alain, additional, Fischer, Christine, additional, Fogan, Lance, additional, Fowler, Glenn W., additional, Frank, Yitzchak, additional, Fullerton, Heather J., additional, Furukawa, Tetsuo, additional, Gabriel, Ronald S., additional, Galanopoulou, Aristea S., additional, Gardner-Medwin, David, additional, Garg, Bhuwan, additional, Genton, Pierre, additional, George, Mark S., additional, Gineste, Thierry, additional, Giza, Christopher C., additional, Goemans, Nathalie, additional, Golden, Gerald S., additional, Golden, Jeffrey Alan, additional, Goldstein, Gary W., additional, Gomez, Christopher, additional, Gomez, Manuel R., additional, Gomez, Timothy, additional, Goodkin, Howard P., additional, Gordon, Neil, additional, Gressens, Pierre, additional, Groger, Helmut, additional, Guerrini, Renzo, additional, Gurnett, Christina A., additional, Gussoni, Emanuela, additional, Haas, Richard, additional, Hagberg, Bengt, additional, Haller, Jerome S., additional, Hartman, Adam L., additional, Haruda, Fred, additional, Hirtz, Deborah, additional, Hogan, Gwendolyn R., additional, Hunt, Guy M., additional, Iannaccone, Susan T., additional, Eleanor Inder, Terrie, additional, Ionasescu, Victor, additional, Jansen, Katrien, additional, Jiang, Yuwu, additional, Kaminski, Henry J., additional, Kamoshita, Shigehiko, additional, Kang, Peter B., additional, Kaufman, David M., additional, Kaufmann, Walter E., additional, Kaye, Edward M., additional, Kellaway, Peter, additional, Kelley, Rhona S., additional, Kennedy, Charles, additional, Kim, Young-Min, additional, Kirby, Michael, additional, Kirton, Adam, additional, Kobayashi, Eliane, additional, Kossoff, Eric H., additional, Koutroumanidis, Michail, additional, Krupp, Lauren, additional, Lange, Bernadette M., additional, Lanska, Douglas J., additional, Lanska, Mary Jo, additional, Larsen, Paul D., additional, Lassoff, Samuel J., additional, Laterra, John, additional, Lemieux, Bernard, additional, Lenn, Nicholas J., additional, Logan, William J., additional, Lomax, Elizabeth, additional, Longo, Lawrence D., additional, Lorris Betz, A., additional, Manyam, Bala V., additional, Marks, Warren A., additional, Massey, E. Wayne, additional, Mate, Laszlo J., additional, McKinlay, Ian, additional, McLean, William T., additional, McLellan, Ailsa, additional, Mehler, Mark F., additional, Melchior, Johannes C., additional, Michelson, David J., additional, Miller, Steven P., additional, Miller, Suzanne L., additional, Millichap, J. Gordon, additional, Minns, Robert A., additional, Mizrahi, Eli M., additional, Moser, Ann B., additional, Moshé, Solomon L., additional, Muhle, Hiltrud, additional, Muntoni, Francesco, additional, Naidu, Sakkubai, additional, Narayanan, Vinodh, additional, Nardocci, Nardo, additional, Neil, Jeffrey J., additional, Neumeyer, Ann, additional, Noetzel, Michael J., additional, Nomura, Yoshiko, additional, Nordli, Douglas R., additional, North, Kathryn, additional, Ohtsuka, Yoko, additional, O’Callaghan, Finbar J.K., additional, Packer, Roger J., additional, Pastores, Gregory M., additional, Patterson, Marc C., additional, Pearl, Phillip L., additional, Philippart, Michel, additional, Pihko, Helena S., additional, Piller, Gordon, additional, Platz, Thomas F., additional, Poduri, Annapurna, additional, Pollack, Michael A., additional, Porter, Brenda E., additional, Provis, Michèle, additional, Rating, Dietz, additional, Reich, Harold, additional, Remler, Bernd, additional, Rho, Jong M., additional, Richards, Peter, additional, Richardson, Edward P., additional, Richardson, Sylvia O., additional, Roach, E. Steve, additional, Rose, Arthur L., additional, Rozear, Marvin P., additional, Rubinstein, Lucien J., additional, Rust, Robert S., additional, Saini, Arushi Gahlot, additional, Saint-Anne Dargassies, Suzanne, additional, Sarnat, Harvey B., additional, Sarwar, Mohammad, additional, Satran, Richard, additional, Schneider, Sanford, additional, Schrank, Waltraud, additional, Scott, Rodney C., additional, Seinfeld, Syndi, additional, Selcen, Duygu, additional, Sestan, Nenad, additional, Shapiro, Steven, additional, Sherr, Elliott H., additional, Shevell, Michael, additional, Shield, Lloyd, additional, Sidman, Richard L., additional, Silverstein, Faye S., additional, Sinnreich, Michael, additional, Snead, O. Carter, additional, Solomons, Regan, additional, Soria-Duran, Emilio, additional, Stafstrom, Carl E., additional, Steven Roach, E., additional, Stevens, Harold, additional, Strassburg, Hans Michael, additional, Stumpf, David A., additional, Sullivan, Thomas, additional, Swick, Herbert M., additional, Swisher, Charles N., additional, Takahashi, Takao, additional, Tein, Ingrid, additional, Tochen, Laura, additional, Thomas, Eva E., additional, Thompson, Alan, additional, Toor, Svinder S., additional, Tyler, H. Richard, additional, Uldall, Peter, additional, Urion, David K., additional, Valappil, Ahsan Moosa Naduvil, additional, Van Toorn, Ronald, additional, Vermilion, Jennifer, additional, Vidaver, Doris, additional, Vohr, Betty R., additional, Vollmer, Brigitte, additional, Volpe, Joseph J., additional, Waber, Deborah P., additional, Wainwright, Mark S., additional, Waites, Lucius, additional, Walsh, Christopher, additional, Weindl, Adolf, additional, Whelan, Mary Anne, additional, White, Larry E., additional, Whittemore, Vicky Holets, additional, Wilmshurst, Jo, additional, Wirrell, Elaine, additional, Wolf, Nicole I., additional, Youssef, Paul, additional, Zempel, John, additional, Zoghbi, Huda Y., additional, Zuberi, Sameer M., additional, and Zupanc, Mary, additional

Published
2021
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9. Healthcare professionals' perceptions of pain in infants at risk for neurological impairment

Author

Breau, Lynn M, McGrath, Patrick J, Stevens, Bonnie, Beyene, Joseph, Camfield, Carol S, Finley, G Allen, Franck, Linda, Howlett, Alexandra, O'Brien, Karel, and Ohlsson, Arne

Subjects
Chronic Pain, Infant Mortality, Clinical Research, Pediatric, Perinatal Period - Conditions Originating in Perinatal Period, Neurosciences, Pain Research, Neurological, Adult, Analysis of Variance, Attitude of Health Personnel, Canada, Empathy, Female, Health Knowledge, Attitudes, Practice, Humans, Infant Care, Infant, Newborn, Intensive Care Units, Neonatal, Judgment, Male, Middle Aged, Nervous System Diseases, Pain, Pain Measurement, Personnel, Hospital, Risk Assessment, Workforce, Paediatrics and Reproductive Medicine, Pediatrics
Abstract

BackgroundTo determine whether healthcare professionals perceive the pain of infants differently due to their understanding of that infant's level of risk for neurological impairment.MethodNeonatal Intensive Care Units (NICU's) at two tertiary pediatric centers. Ninety-five healthcare professionals who practice in the NICU (50 nurses, 19 physicians, 17 respiratory therapists, 9 other) participated. They rated the pain (0-10 scale and 0-6 Faces Pain Scale), distress (0-10), effectiveness of cuddling to relieve pain (0-10) and time to calm without intervention (seconds) for nine video clips of neonates receiving a heel stick. Prior to each rating, they were provided with descriptions that suggested the infant had mild, moderate or severe risk for neurological impairment. Ratings were examined as a function of the level of risk described.ResultsProfessionals' ratings of pain, distress, and time to calm did not vary significantly with level of risk, but ratings of the effectiveness of cuddling were significantly lower as risk increased [F (2,93) = 4.4, p = .02]. No differences in ratings were found due to participants' age, gender or site of study. Physicians' ratings were significantly lower than nurses' across ratings.ConclusionProfessionals provided with visual information regarding an infants' pain during a procedure did not display the belief that infants' level of risk for neurological impairment affected their pain experience. Professionals' estimates of the effectiveness of a nonpharmacological intervention did differ due to level of risk.

Published
2004

12. Clonazepam

Author

Camfield, Carol S., Camfield, Peter R., and Panayiotopoulos, C. P., editor

Published
2010
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13. Contributors

Author

Aaen, Gregory S., primary, Abend, Nicholas Scott, additional, Abou-Hamden, Amal, additional, Allen, Jeffrey C., additional, Amato, Anthony A., additional, Amlie-Lefond, Catherine, additional, Ashwal, Stephen, additional, Bailey, Russell C., additional, Bale, James F., additional, Banwell, Brenda, additional, Barañano, Kristin W., additional, Barkovich, A. James, additional, Barohn, Richard J., additional, Bartels, Ute K., additional, Bartnik-Olson, Brenda, additional, Barzilai, Ori, additional, Bassuk, Alexander, additional, Bearden, David R., additional, Ben-Sira, Liat, additional, Bernard, Timothy J., additional, Berry-Kravis, Elizabeth, additional, Beslow, Lauren A., additional, Biegel, Jaclyn A., additional, Billinghurst, Lori, additional, Birnbaum, Angela K., additional, Blackburn, Joanna S., additional, Bobowski, Nuala, additional, Boire, Adrienne, additional, Bönnemann, Carsten G., additional, Bonifacio, Sonia L., additional, Bonthius, Daniel J., additional, Borcherding, Breck, additional, Branchford, Brian R., additional, Brandsema, John, additional, Brennan, Kathryn M., additional, Brenton, J. Nicholas, additional, Brooks-Kayal, Amy R., additional, Brown, Lawrence W., additional, Buchalter, Jeffrey, additional, Camfield, Carol S., additional, Camfield, Peter R., additional, Campoy, Cristina, additional, Carpenter, Jessica L., additional, Chang, Taeun, additional, Chau, Vann, additional, Chi, Susan N., additional, Chiriboga, Claudia A., additional, Cho, Yoon-Jae, additional, Christian, Cindy W., additional, Chrestian, Nicholas, additional, Cilio, Maria Roberta, additional, Clark, Robin D., additional, Cohen, Bruce H., additional, Cohn, Ronald D., additional, Connolly, Anne M., additional, Constable, Todd, additional, Constantini, Shlomi, additional, Conway, Jeannine M., additional, Coulter, David L., additional, Cowan, Tina M., additional, Dale, Russell C., additional, Darbro, Benjamin, additional, Darras, Basil T., additional, Dastgir, Jahannaz, additional, De Meirleir, Linda, additional, De Vivo, Darryl C., additional, de Vries, Linda S., additional, Deisch, Jeremy K., additional, Deltenre, Paul, additional, Desai, Jay, additional, Descartes, Maria, additional, deVeber, Gabrielle, additional, Dhamne, Sameer C., additional, Diaz, Jullianne, additional, DiMauro, Salvatore, additional, Dobyns, William B., additional, Doherty, Dan, additional, Donner, Elizabeth J., additional, Dosenbach, Nico U.F., additional, Dowling, James J., additional, Drake, James M., additional, Ejerskov, Cecile, additional, Engel, Andrew G., additional, Enns, Gregory M., additional, Escolano-Margarit, María Victoria, additional, Etzion, Iris, additional, Fatemi, S. Ali, additional, Fehlings, Darcy L., additional, Feinberg, Michelle Lauren, additional, Ferriero, Donna M., additional, Filipek, Pauline A., additional, Finkel, Richard S., additional, Fisher, Paul G., additional, Flanigan, Kevin, additional, Foreman, Nicholas K., additional, Franco, Israel, additional, Frank, Yitzchak, additional, Fredrick, Douglas R., additional, Freeze, Hudson H., additional, Fuente-Mora, Cristina, additional, Furman, Joseph M., additional, Gallagher, Renata C., additional, Garel, Catherine, additional, Gertsch, Emily, additional, Gilbert, Donald L., additional, Gilles, Elizabeth E., additional, Giza, Christopher C., additional, Glaser, Carol A., additional, Glass, Hannah C., additional, Glauser, Tracy, additional, Glykys, Joseph, additional, Goldstein, Amy, additional, Gonorazky, Hernan Dario, additional, Gonzalez, Rodolfo, additional, Goodkin, Howard P., additional, Graham, John M., additional, Greninger, Alexander L., additional, Gronseth, Gary, additional, Gropman, Andrea L., additional, Grundy, Richard, additional, Guerrini, Renzo, additional, Gupta, Nalin, additional, Hahn, Jin S., additional, Hamblin, Milton H., additional, Hani, Abeer J., additional, Hanmantgad, Sharyu, additional, Harbert, Mary J., additional, Harini, Chellamani, additional, Harriott, Andrea M., additional, Heatwole, Chad, additional, Hershey, Andrew D., additional, Hirtz, Deborah G., additional, Holmes, Gregory L., additional, Holshouser, Barbara A., additional, Hurwitz, Kathleen A., additional, Hwang, Eugene, additional, Ichord, Rebecca N., additional, Jafar-Nejad, Paymaan, additional, Jain, Sejal V., additional, Jordan, Lori, additional, Kabbouche, Marielle A., additional, Kacperski, Joanne, additional, Kang, Peter B., additional, Kariannis, Matthias A., additional, Kaufmann, Horacio, additional, Kaye, Harper L., additional, Keating, Robert, additional, Kennedy, Colin R., additional, Khakoo, Yasmin, additional, Kirton, Adam, additional, Kissel, John T., additional, Knupp, Kelly G., additional, Korf, Bruce R., additional, Kossoff, Eric H., additional, Kothare, Sanjeev V., additional, Kupfer, Oren, additional, LaFrance, W. Curt, additional, Latal, Beatrice, additional, Leber, Steven M., additional, Lee, Jean-Pyo, additional, Leppik, Ilo E., additional, Lerman-Sagie, Tally, additional, Lerner, Jason T., additional, Leventer, Richard J., additional, Licht, Daniel J., additional, Lichter-Konecki, Uta, additional, Lidar, Zvi, additional, Liem, Djin Gie, additional, Loddenkemper, Tobias, additional, Long, Roger K., additional, Luc, Quyen N., additional, Mackay, Mark, additional, Majnemer, Annette, additional, Makhani, Naila, additional, Malinger, Gustavo, additional, Mandelbaum, David E., additional, Maricich, Stephen M., additional, Maski, Kiran P., additional, Mathur, Mudit, additional, Matthews, Dennis J., additional, McMahon, Kelly, additional, DeMara-Hoth, Megan B., additional, Mendelsohn, Bryce, additional, Mennella, Julie A., additional, Ment, Laura R., additional, Mercuri, Eugenio, additional, Michelson, David J., additional, Mikati, Mohamad A., additional, Mikhail, Fady M., additional, Miller, Steven Paul, additional, Milunsky, Jeff M., additional, Mink, Jonathan W., additional, Mirzaa, Ghayda M., additional, Mitchell, Wendy G., additional, Mohan, Michael A., additional, Mohassel, Payam, additional, Moharir, Mahendranath, additional, Monani, Umrao R., additional, Monje Deisseroth, Michelle, additional, Moodley, Manikum, additional, Mower, Andrew, additional, Moxley, Richard T., additional, Mueller, Sabine, additional, Muotri, Alysson R., additional, Nagamani, Sandesh C.S., additional, Narayanan, Mohan J., additional, Narayanan, Vinodh, additional, Nass, Ruth D., additional, Neul, Jeffrey L., additional, Nevo, Yoram, additional, Ng, Bobby G., additional, Nickels, Katherine C., additional, Nimmo, Graeme A.M., additional, Noetzel, Michael J., additional, Norcliffe-Kaufmann, Lucy, additional, Nordli, Douglas R., additional, Nowak-Göttl, Ulrike, additional, O'Brien, Hope L., additional, Oleszek, Joyce, additional, Oskoui, Maryam, additional, Paciorkowski, Alex R., additional, Packer, Roger J., additional, Packman, Seymour, additional, Palma, Jose-Alberto, additional, Pardo, Andrea C., additional, Parsons, Julie A., additional, Partridge, John Colin, additional, Pastores, Gregory M., additional, Patterson, Marc C., additional, Pearce, William J., additional, Pearl, Phillip L., additional, Penner, Melanie, additional, Percival, Leila, additional, Pereira, Marcia, additional, Pfister, Stefan M., additional, Phillips, John, additional, Plecko, Barbara, additional, Plioplys, Sigita, additional, Poduri, Annapurna, additional, Poisson, Sharon, additional, Pomeroy, Scott L., additional, Poretti, Andrea, additional, Powers, Scott W., additional, Pranzatelli, Michael R., additional, Przekop, Allison, additional, Rabie, Malcolm, additional, Rangasamy, Sampathkumar, additional, Raymond, Gerald V., additional, Reddy, Alyssa T., additional, Rendleman, Rebecca L., additional, Rho, Jong M., additional, Rodan, Lance H., additional, Roddy, Sarah M., additional, Rogers, Elizabeth E., additional, Rosenthal, Stephen M., additional, Rosman, N. Paul, additional, Ross, M. Elizabeth, additional, Rotenberg, Alexander, additional, Rust, Robert S., additional, Sanchez, Cheryl P., additional, Sanchez, Pedro, additional, Sánchez Fernández, Iván, additional, Sands, Tristan T., additional, Sanger, Terence D., additional, Sannagowdara, Kumar, additional, Scheinost, Dustin, additional, Scher, Mark S., additional, Schor, Nina F., additional, Schrauwen, Isabelle, additional, Segal, Michael M., additional, Seinfeld, Syndi, additional, Selcen, Duygu, additional, Seltzer, Laurie E., additional, Semrud-Clikeman, Margaret, additional, Shaw, Dennis W., additional, Shaywitz, Bennett A., additional, Shaywitz, Sally E., additional, Shellhaas, Renée A., additional, Sherr, Elliott H., additional, Sheth, Rita D., additional, Shevell, Michael I., additional, Shinnar, Shlomo, additional, Shofty, Ben, additional, Shu, Stanford K., additional, Shy, Michael E., additional, Silveira Moriyama, Laura, additional, Silvestri, Nicholas J., additional, Sims, Katherine B., additional, Singer, Harvey S., additional, Singhal, Nilika Shah, additional, Smith, Craig M., additional, Smith, Edward, additional, Smith, Stephen A., additional, Snyder, Evan Y., additional, Soul, Janet, additional, Spalink, Christy L., additional, Spencer, Karen A., additional, Stafstrom, Carl E., additional, Steinfeld, Robert, additional, Strober, Jonathan B., additional, Sullivan, Joseph, additional, Swaiman, Kenneth F., additional, Swoboda, Kathryn J., additional, Tate, Elizabeth D., additional, Tatum, William O., additional, Tein, Ingrid, additional, Tekulve, Kristyn, additional, Tenney, Jeffrey R., additional, Thiele, Elizabeth A., additional, Thompson-Stone, Robert, additional, Tochen, Laura, additional, Tormoehlen, Laura M., additional, Tran, Lily, additional, Trauner, Doris A., additional, Turnacioglu, Sinan O., additional, Ullrich, Nicole J., additional, Urion, David K., additional, Van Camp, Guy, additional, Van Hirtum-Das, Michèle, additional, van Karnebeek, Clara D.M., additional, Van Maldergem, Lionel, additional, Vanderver, Adeline, additional, Vitanza, Nicholas A., additional, von Rhein, Michael, additional, von Scheven, Emily, additional, Wagner, Ann, additional, Wainwright, Mark S., additional, Walker, Melissa A., additional, Walkup, John T., additional, Walsh, Laurence, additional, Walters-Sen, Lauren C., additional, Wang, Raymond Y., additional, Warner, Thomas T., additional, Whelan, Harry T., additional, Weinberg, Geoffrey A., additional, Wells, Elizabeth M., additional, Wheless, James W., additional, Wirrell, Elaine C., additional, Wisoff, Jeffrey H., additional, Wolf, Nicole I., additional, Wolfe, Gil I., additional, Wright, F. Virginia, additional, Wycliffe, Nathaniel D., additional, Yang, Michele L., additional, Yuskaitis, Christopher J., additional, Zoghbi, Huda Y., additional, and Zupanc, Mary L., additional

Published
2017
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18. The Effects of Psychopathology on the Pain Expression of Children and Youth with Intellectual and Developmental Disabilities

Author

Breau, Lynn M. and Camfield, Carol S.

Abstract

Behavioral pain assessment is possible for children and youth with intellectual and developmental disabilities (IDD). However, pain behavior is often misinterpreted as reflecting psychopathology. We examined whether psychopathology alters pain behavior. Caregivers of 123 children (56 girls ages 40 to 258 months) completed the Non-Communicating Children's Pain Checklist-Revised (NCCPC-R) to assess pain behavior and the Diagnostic Assessment for the Severely Handicapped-II to assess psychopathology. Seventy-eight children had clinically significant psychological or behavioral symptoms. A principal components analysis revealed 3 independent components: Pain Behavior, Affective Disorders, and Developmental Disorders. The results indicate that psychopathology has little effect on pain behavior and that the NCCPC-R is suitable for children with IDD who also have psychological or behavior disorders. (Contains 5 tables.)

Published
2011
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19. Pain Disrupts Sleep in Children and Youth with Intellectual and Developmental Disabilities

Author

Breau, Lynn M. and Camfield, Carol S.

Abstract

Both chronic pain and sleep problems are common for children with intellectual and developmental disabilities (IDD). Although one study has revealed a relationship between having a medical condition and sleep problems in this population, the role of pain was not examined independently. Thus, the goal of this study was to clarify the specific role of pain in children's sleep problems. Caregivers of 123 children with IDD (67 male; mean age = 10 years, 7 months (SD = 49.7 months)) completed the Children's Sleep Habits Questionnaire (CHSQ) and provided information about children's pain, function and demographic characteristics. Children were grouped as having: No Pain (86), Treated Pain (21), or Untreated Pain (16). A Multivariate Analysis of Variance (MANOVA) indicated children who had pain had significantly more sleep problems overall (F(16, 222) = 2.2, p = 0.005), and more Night Wakings (F(2, 118) = 3.1, p = 0.05), Parasomnias (F(2, 118) = 5.0, p = 0.009) and Sleep Disordered Breathing (F(2, 118) = 5.1, p = 0.008) in particular. The pattern of sleep problems varied due to whether the child was taking pain medication. Children with pain also had significantly shorter typical sleep duration (F(2, 112) = 3.5, p = 0.035). The presence of sleep problems did not vary due to functional level or whether children were taking sleep medications. However, parents of children who were taking sleep medications reported that both Bedtime Resistance (F(1, 121) = 5.7, p = 0.019) and Sleep Duration (F(1, 121) = 6.0, p = 0.016) were more problematic for them. This data indicates pain disrupts sleep in children with IDD even when it is being managed pharmacologically, suggesting pain treatment may not be effective. These results suggest that pain should be considered during evaluation and management of sleep problems in children with IDD. (Contains 4 tables.)

Published
2011
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26. Self-reported quality of life and degree of youth-parent agreement: A long-term follow-up of childhood-onset epilepsy

Author

Puka, Klajdi, Ferro, Mark A, Camfield, Carol S, Levin, Simon, Smith, Mary Lou, Wiebe, Samuel, Zou, Guangyong, and Speechley, Kathy N

Subjects
Adult, Male, Parents, Canada, Epilepsy, Adolescent, Middle Aged, Pediatrics, humanities, Young Adult, Child, Preschool, Quality of Life, Humans, Female, Longitudinal Studies, Prospective Studies, Self Report, Age of Onset, Parent-Child Relations, Child, Preschool, Follow-Up Studies
Abstract

OBJECTIVE: To prospectively delineate self-reported health-related quality of life (HRQOL) of adolescents and young adults (AYAs) 8 and 10 years after an epilepsy diagnosis and evaluate the degree of AYA-parent agreement in ratings of AYA's HRQOL. METHODS: Data came from the Health-Related Quality of Life in Children with Epilepsy Study (HERQULES), a 10-year longitudinal study of children, aged 4-12 years, with newly diagnosed epilepsy. Epilepsy-specific HRQOL was self-reported by AYA 8 and 10 years after diagnosis and by parents at multiple time points throughout the 10-year follow-up. Measurers of HRQOL over time were analyzed using a linear mixed-effect model approach. AYA-parent agreement was evaluated using intraclass correlation coefficient (ICC) and Bland-Altman plots. RESULTS: A total of 165 AYAs participated at long-term follow-up. There was considerable heterogeneity among AYA's HRQOL, and as a group, there was no significant change in HRQOL from the 8- to 10-year follow-up. Household income at the time of diagnosis, seizure control at follow-up, and a history of emotional problems (anxiety/depression) were independent predictors of HRQOL at follow-up. AYA-parent agreement on AYA's HRQOL was moderate (ICC 0.62, 95% CI 0.51-0.71), although considerable differences were observed at the individual level. AYA-parent agreement varied with AYA's and parent's age, seizure control, and family environment. SIGNIFICANCE: In the long-term after a diagnosis of epilepsy, AYAs report stable HRQOL over time at the group level, although notable individual differences exist. Seizure control, anxiety/depression, and family environment meaningfully impact AYA's long-term HRQOL. AYA and parent reports on HRQOL are similar at the group level, although they cannot be used interchangeably, given the large individual differences observed.

Published
2020

37. Contributors

Author

Abou-Hamden, Amal, primary, Amato, Anthony A., additional, Ashwal, Stephen, additional, Axelrod, Felicia B., additional, Bale, James F., additional, Banwell, Brenda, additional, Baranano, Kristin W., additional, Barkovich, A. James, additional, Barohn, Richard J., additional, Batshaw, Mark L., additional, Ben-Sira, Liat, additional, Birnbaum, Angela K., additional, Boustany, Rose-Mary N., additional, Brooks-Kayal, Amy, additional, Brown, Lawrence W., additional, Camfield, Carol S., additional, Camfield, Peter R., additional, Casselbrant, Margaretha L., additional, Chiriboga, Claudia A., additional, Christian, Susan L., additional, Cilio, Maria Roberta, additional, Connolly, Anne M., additional, Conway, Jeannine M., additional, Cornes, Susannah, additional, Coulter, David L., additional, Cowan, Tina M., additional, Das, Soma, additional, De Vivo, Darryl C., additional, de Vries, Linda S., additional, Desai, Jay, additional, Descartes, Maria, additional, deVeber, Gabrielle, additional, DiMauro, Salvatore, additional, Dobyns, William B., additional, Dong, Qing, additional, Drake, James M., additional, Duhaime, Ann-Christine, additional, du Plessis, Adre J., additional, El-Bitar, Mohamad K., additional, Enns, Gregory M., additional, Escolar, Diana M., additional, Evans, Owen B., additional, Fatemi, S. Ali, additional, Ferriero, Donna M., additional, Filipek, Pauline A., additional, Frank, Yitzchak, additional, Fredrick, Douglas R., additional, Freeze, Hudson H., additional, Friedman, Neil R., additional, Furman, Joseph M., additional, Garg, Bhuwan P., additional, Ghosh, Debabrata, additional, Gilles, Elizabeth E., additional, Giza, Christopher C., additional, Glaser, Carol A., additional, Gleeson, Joseph G., additional, Graham, John M., additional, Gressens, Pierre, additional, Guerrini, Renzo, additional, Gupta, Nalin, additional, Hahn, Jin S., additional, Harini, Chellamani, additional, Heatwole, Chad, additional, Hirtz, Deborah G., additional, Holmes, Gregory L., additional, Holshouser, Barbara A., additional, Ichord, Rebecca N., additional, Jafar-Nejad, Paymaan, additional, Jensen, Frances E., additional, Johnston, Michael V., additional, Jordan, Lori, additional, Khakoo, Yasmin, additional, Khasraw, Mustafa, additional, Kirton, Adam, additional, Kissel, John T., additional, Klein, Ophir, additional, Knupp, Kelly, additional, Korf, Bruce R., additional, Kotagal, Suresh, additional, Leber, Steven, additional, Leppik, Ilo E., additional, Lerman-Sagie, Tally, additional, Lerner, Jason T., additional, Leshner, Robert T., additional, Leventer, Richard J., additional, Lewis, Donald W., additional, Lewis, Paul F., additional, Lichter-Konecki, Uta, additional, Limperopoulos, Catherine, additional, Louie, Janice K., additional, Luc, Quyen N., additional, MacDonald, Tobey J., additional, Makhani, Naila, additional, Malinger, Gustavo, additional, Mandelbaum, David E., additional, Marcuccilli, Charles J., additional, Maricich, Stephen M., additional, Martin, Lee J., additional, Mennella, Julie A., additional, Ment, Laura R., additional, Michelson, David J., additional, Mikhail, Fady M., additional, Millen, Kathleen J., additional, Miller, Steven P., additional, Mink, Jonathan W., additional, Mirzaa, Ghayda, additional, Mitchell, Wendy G., additional, Moodley, Manikum, additional, Morton, Lawrence D., additional, Moxley, Richard T., additional, Muppidi, Srikanth, additional, Nash, Kendall, additional, Nass, Ruth, additional, Noetzel, Michael J., additional, Nordli, Douglas R., additional, Northington, Frances J., additional, Ouvrier, Robert, additional, Packer, Roger J., additional, Packman, Seymour, additional, Parsons, Julie A., additional, Partridge, John C., additional, Pastores, Gregory M., additional, Patterson, Marc C., additional, Pellock, John M., additional, Perkin, Ronald M., additional, Rapin, Isabelle, additional, Raymond, Gerald V., additional, Rendleman, Rebecca, additional, Rho, Jong M., additional, Roddy, Sarah M., additional, Rosenthal, Stephen M., additional, Rosman, N. Paul, additional, Ross, M. Elizabeth, additional, Rust, Robert S., additional, Sanchez-Lara, Pedro A., additional, Sanger, Terence D., additional, Sanmaneechai, Oranee, additional, Schaad, Urs B., additional, Scher, Mark S., additional, Schor, Nina F., additional, Segal, Michael M., additional, Shaywitz, Bennett A., additional, Shaywitz, Sally E., additional, Sherr, Elliott H., additional, Shevell, Michael I., additional, Shinnar, Shlomo, additional, Shu, Stanford K., additional, Silverstein, Faye S., additional, Singer, Harvey S., additional, Sladky, John T., additional, Smith, Stephen A., additional, Soul, Janet S., additional, Stafstrom, Carl E., additional, Strober, Jonathan B., additional, Sullivan, Joseph, additional, Swaiman, Kenneth F., additional, Sweney, Matthew T., additional, Swoboda, Kathryn J., additional, Täuber, Martin G., additional, Taylor, Donald A., additional, Tein, Ingrid, additional, Thiele, Elizabeth A., additional, Trauner, Doris A., additional, Tuchman, Roberto, additional, Vanderver, Adeline, additional, Hirtum-Das, Michéle Van, additional, Vedanarayanan, V. Venkataraman, additional, Vexler, Zinaida S., additional, Vezina, Gilbert, additional, Scheven, Emily von, additional, Wagner, Ann, additional, Wainwright, Mark S., additional, Walkup, John T., additional, Walsh, Laurence E., additional, Wang, Ching H., additional, Wheless, James W., additional, Wolf, Nicole I., additional, Wolfe, Gil I., additional, Wu, Yvonne W., additional, Wycliffe, Nathaniel D., additional, Yager, Jerome Y., additional, Zimmer, Jennifer A., additional, Zoghbi, Huda Y., additional, and Zupanc, Mary L., additional

Published
2012
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38. Colaboradores

Author

Abou-Khalil, Bassel W., Adamczyk, Peter, Ajtai, Bela, Allen, Jeffrey C., Ally, Brandon, Almeida, Andrea A., Amato, Anthony A., Aminoff, Michael J., Anderson, Nicolaas C., Ashizawa, Tetsuo, Attar, Hatim, Avidan, Alon Y., Baehring, Joachim M., Bag, Asim K., Balcer, Laura J., Ballester, Leomar Y., Baloh, Robert W., Barkoudah, Elizabeth, Barker, Roger A., Barmore, Ryan, Bartleson, J.D., Batla, Amit, Beckham, John David, Beglinger, Leigh, Benninger, David H., Berger, Joseph R., Biller, José, Black, David F., Boulis, Nicholas, Bowley, Michael P., Braksick, Sherri A., Bramlett, Helen M., Bromley, Steven M., Bruni, Joseph, Brust, John C.M., Burnette, W. Bryan, Camfield, Carol, Camfield, Peter, Carson, Alan, Cassimatis, Dimitri, Cavaliere, Robert, Chad, David A., Chandran, Vijay, Chelimsky, Gisela, Chelimsky, Thomas, Chitnis, Tanuja, Chokroverty, Sudhansu, Chukwueke, Ugonma N., Cooper, Paul E., Cordeau, Dany, Courtois, Frédérique, Creutzfeldt, Claire J., Dalmau, Josep, Daroff, Robert B., DasGupta, Ranan, Deutsch, Mariel B., Devereaux, Michael W., DiBacco, Melissa, Dietrich, W. Dalton, Dinakar, Pradeep, Dobkin, Bruce H., Doty, Richard L., Duckwiler, Gary R., Emerson, Ronald G., Fabian, Michelle T., Faridar, Alireza, Fearon, Conor, Felker, Marcia V., Fessler, Richard D., Fessler, Richard G., Fitzgerald, Kathryn C., Flores-Sarnat, Laura, Fogel, Brent L., Forester, Brent P., Fugate, Jennifer E., Gallagher, Martin J., Gardner, Sharon L., Garfinkle, Jarred, Garza, Ivan, Gusmao, Claudio Melo de, Gehl, Carissa, Geiger, Christopher D., Geldmacher, David S., Gerard, Carter, Geschwind, Daniel H., Geschwind, Michael D., Gifford, Katherine A., Gibson, K. Michael, Golomb, Meredith R., Goode, Rachel, Graff-Radford, Jonathan, Groover, Olivia, Guptill, Jeffrey T., Hahn, Cecil D., Hall, Christine, Hallett, Mark, Hamati, Aline I., Hart, David, Hellwig, Sabine, Herholz, Karl, Hill, Alan, Hill, Benjamin D., Hochberg, Fred H., Huntoon, Kristin, Huse, Jason T., Islam, Monica P., Iv, Michael, Jehan, Reza, Jankovic, Joseph, Josephson, S. Andrew, Jovin, Tudor G., Kang, Min K., Karajannis, Matthias A., Kase, Carlos S., Katirji, Bashar, Kerber, Kevin A., Kerchner, Geoffrey A., Khanna, Ryan, Khoury, Samia J., Kirshner, Howard S., Klöppel, Stefan, Koshy, Anita A., Krieger, Stephen C., Kumar, Abhay, Kurtzke, John F., Kutcher, Jeffrey S., Kuo, Sheng-Han, Lang, Anthony E., Lavin, Patrick J.M., Lawrence, Alice, Lazzaro, Marc A., Langner, Sönke, Liebeskind, David S., Lin, Chih-Chun, Lindzen, Eric, Lockwood, Alan H., Lopate, Glenn, Lublin, Fred D., Lyerly, Michael J., Macdonald, Robert L., Mackay, Devin D., Mallery, Robert, Masdeu, Joseph C., Mazziotta, John C., Mendez, Mario F., Meyer, Philipp T., Michaud, Dominique S., Miller, Amanda, Misulis, Karl E., Mitsumoto, Hiroshi, Murray, Brian, Murray, E. Lee, Murray, Evan D., Nahab, Fadi, Nass, Ruth, Nayak, Lakshmi, Newman, Nancy J., Nguyen, Thanh N., Nogueira, Raul G., Nutt, John G., Nuwer, Marc R., O’Banion, D. David, Okun, Michael S., O’Rourke, Justin J.F., Padilla, Claudia R., Panicker, Jalesh N., Parand, Leila, Paulsen, Jane S., Pearl, Phillip L., Peng-Chen, Zhongxing, Perez, David L., Petersen, Ronald C., Pfeiffer, Ronald F., Pitceathly, Robert D.S., Pomeroy, Scott L., Prasad, Sashank, Price, Bruce H., Price, Raymond S., Ptáček, Louis J., Rabinstein, Alejandro A., Ramaswamy, Vijay, Reimschisel, Tyler, Remler, Bernd F., Rijntjes, Michel, Roach, E. Steve, Robertson, Carrie E., Robinson, Maisha T., Ronthal, Michael, Roos, Karen L., Roque, Ashley M., Rosenberg, Gary A., Rosenfeld, Myrna R., Rucker, Janet C., Ruland, Sean D., Safarpour, Delaram, Sanders, Donald B., Sarnat, Harvey B., Saver, Jeffrey L., Sawlani, Komal T., Schapira, Anthony H.V., Schiff, David, Schneck, Michael J., Scott, Kirsten M., Seay, Meagan D., Shaner, D. Malcolm, Sharzehi, Kaveh, Shoamanesh, Ashkan, Sidhu, Reet, Smith, Jonathan H., Snyder, Laura A., So, Yuen T., Solbrig, Marylou V., Srivastava, Siddharth, Stippler, Martina, Stone, Jon, Swanson, Jerry W., Szeder, Viktor, Tan, Lee A., Tateshima, Satoshi, Tee, Boon Lead, Teipel, Stefan J., Thomas, Reena P., Thompson, Philip D., Thurtell, Matthew J., Tomsak, Robert L., Tsao, Bryan, Turner, Chris, Tyler, Kenneth L., Uum, Stan H.M. Van, Verma, Ashok, Wall, Michael, Wallin, Mitchell T., Wang, Leo H., Weissenborn, Karin, Weiller, Cornelius, Wen, Patrick Y., Whealy, Mark A., Wijdicks, Eelco F.M., Wilson, Stephen M., Winkel, Daniel, Yerstein, Oleg Y., and Zaidat, Osama O.

Published
2023
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41. Learning fiberoptic intubation on a simple model transfers to the O.R.

Author

Naik, Viren, Matsumoto, Edward, Houston, Patricia, Hamstra, Stanley, Yeung, Raymond, Mallon, Joseph, Martire, Terry, Zwack, Rhonda M., Campbell, David C., Breen, Terrance W., Yip, Ray W., Roy, Jean-Denis, Girard, Michel, Drolet, Pierre, Guay, Joanne, Bolis, Rafik S., LeDez, Kenneth, Balatbat, J. T., Mukherji, J., Ali, M. J., Carroll, J., Karski, J. M., Sui, S., Cheng, D. C. H., Banner, Robert, Yip, Raymond, Zondervan, James, Chow, Vance, McMillan, Dean, Fisher, Judy, Lattermann, Ralph, Carli, Franco, Wykes, Linda, Schricker, Thomas, Mazza, Louise, Carli, Franco, Danjoux, Gerard, Thomas, David, Lennox, Pamela H., Henderson, Cynthia, Martin, Lynn, Mitchell, G W E, Vaghadia, Himat, Jassal, Rajive, Thomson, Ian R., Hudson, Robert J., McGuire, Glenn, Manninen, Pirjo, El-Beheiry, Hossam, Lozano, Andres, Wennberg, Richard, Archer, David P., Tang, Tim K. K., Staveley, Ian R., Goldstein, David H., VanDenKerkhof, Elizabeth G., Hall, Richard I., Rocker, Graeme M., O’Connor, J. P., Dunham, Jacquelyn I., Mikelberg, Frederick S., Dulovic, Gordana, Jenkins, Kathryn L., Correa, Robin, Wong, David T., McGuire, Glenn P., Fayad, A. A., Paul, J., Yang, H., Sawchuk, C., Brown, Karen A., Bates, Jason H. T., Edington, Robert, Pridham, Jeremy, Mukherji, Jayanta, Karski, Jacek M., Balatbat, Joselito, Carroll, Jo, Chun, Rosa, Cheng, Davy CH, Karski, J., DeBrouwere, R., Mathieu, M., Carroll, J., Feindel, C., Cheng, D., Clairoux, Michel, Coutu, Stéphane, McCluskey, Stuart A., Karkouti, Keyvan, Ghannam, Mohammed, Jewett, Michael, Rampersaud, Raja, Yau, Terry, Quirt, Ian, Carver, Edmund D., Kim, P., Crawford, Mark W., Finley, G. Allen, Breau, Lynn M., McGrath, Patrick J., Camfield, Carol, Mak, Peter H. K., Hui, Theresa W. C., Irwin, Michael G., Carli, Franco, Trudel, Judith, Belliveau, Paul, Mayo, Nancy, Clunie, Michelle L., Crone, Lesley-Ann L., Klassen, Linda J., Yip, Raymond W., Hubert, Bernard, Radomski, Marek, Blaise, Gilbert, Renzi, Paolo M., Paradis, Marie-Claude, Martin, René, Parent, Michel, Parent, Pierre, Gagnon, Daniel, Tétrault, Jean-Pierre, Prabhu, Atul J., Philip, Beverly K., Higgins, Patrick P., Blanshard, Hannah J., van Rensselaer, Stéphanie, Chung, Frances F., Caraiscos, Valerie B., MacDonald, John F., Orser, Beverley A., Schreiber, Markus, Georgieff, Michael, Jin, Fengling, Chung, Frances, Tong, Doris, Reiz, Joseph L., Harsanyi, Zoltan, Miceli, Paula C., Darke, Andrew C., Roy, Jean-Sébastien, St-Pierre, Jacques, Norman, Peter H., Daley, M. Denise, Turner, Kim E., Parlow, Joel L., Tod, Deborah A., Avery, Nicole D., Nicole, Pierre C., Trépanier, Claude A., Lessard, Martin R., Marcoux, Sylvie, Cowie, Dean A., Gelb, Adrian W., Shoemaker, J. Kevin, Baskett, Roger, Lim, Ben C., Dangor, Ayoub, Morgan, Pamela J., Cleave-Hogg, Doreen, Doyle, D. John, Byrick, Robert, Filipovi, Dusanka, Cashin, Fred, Chiu, Michelle, Kemp, Toby J., Bryson, Gregory L., Cleland, Mark J., Crosby, Edward T., Harioka, Tokuya, Nomura, Koichiro, Ando, Norioki, Ikegami, Naoyuki, Aoki, Toshiki, Maltby, J. Roger, Beriault, Michael T., Watson, Neil C., Liepert, David J., Fick, Gordon H., Maltby, J. Roger, Liepert, David, Prabhu, Atul J., Correa, Robin K., Wong, David T., Chung, Frances, Goyagi, Tom, Bhardwaj, Anish, Hum, Patricia D., Traystman, Richard D., Kirsch, Jeffrey R., Bainbridge, Daniel T., Swaminathan, Madhav, McCreath, Brian J., Djaiani, George, Grocott, Hilary P., Day, Fergal, Karski, Jacek, Djaiani, George, Tan, Jens, Cheng, Davy, Wake, Pamela J., Ali, Mohamed, Karski, Jacek, Sui, Sam, Guenther, Craig, Mullen, John, Bentley, Michael, Koshal, Arvind, Finegan, Barry, Murtha, William, Fredrickson, Michael J., Luginbuehl, Igor A., Bissonnette, Bruno, Granton, Jeff T., Platt, Hugh, and Craen, R. A.

Published
2001
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45. Treatment of febrile seizures: the influence of treatment efficacy and side-effect profile on value to parents

Author

Gordon, Kevin E., Dooley, Joseph M., Camfield, Peter R., Camfield, Carol S., and MacSween, Judith

Subjects
Febrile convulsions -- Care and treatment, Parents -- Beliefs, opinions and attitudes
Abstract

Objectives. We examined parents' perception of the value of treatments designed to reduce the risk of febrile seizure recurrence. Study Design. The families of 42 children with febrile seizures were recruited after pediatric or neuropediatric consultation. A mail questionnaire addressed the family's willingness to pay for a hypothetical treatment for febrile seizures with risk reductions for future febrile seizures of 25%, 50%, 75%, and 100%. The hypothetical clinical scenario was then modified to include the side-effect profiles of either daily phenobarbital or valproic acid, or intermittent diazepam prophylaxis. Covariates included the nature of the child's febrile seizure(s), parents' familiarity with febrile seizures, experiences at the time of febrile seizures or with medication side effects, education and income, and mastery and trait anxiety. Results. Thirty-eight parents, representing 22 of 42 families, completed questionnaires. There was a dramatic inflection in parents' willingness to pay for 100% risk reduction as opposed to 75% or lower risk reductions. Introduction of side effects dramatically reduced the value attached to each level of treatment benefit. Nevertheless, a few parents (3/38) would pay "as much as it takes" to be rid of their child's recurrence risk. Conclusions. Given the range of value assigned to prophylactic medication for febrile seizures, management strategies for children with febrile seizures must be responsive to the needs and values of individual families. Pediatrics 2001;108:1080-1088; febrile seizures, treatment, willingness to pay, parent attitudes, shared decision-making., Febrile seizures are emotionally traumatic for parents, as many parents think that their child is dying during the seizure. (1-4) Families may subsequently report persistent fear of fevers and of [...]

Published
2001

46. Cerebral sinovenous thrombosis in children

Author

DeVeber, Gabrielle, Andrew, Maureen, Adams, Coleen, Bjornson, Bruce, Booth, Frances, Buckley, David J., Camfield, Carol S., David, Michele, Humphreys, Peter, Langevin, Pierre, MacDonald, E. Athen, and Gillett, Jane

Subjects
Stroke (Disease) -- Prognosis, Children -- Diseases
Abstract

Cerebral sinovenous thrombosis can cause death and disability in about half of the children who have this type of stroke. The presence of seizures is a sign of a poor prognosis.

Published
2001

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