787 results on '"CBPR"'
Search Results
2. Empowering Underserved Communities in Southern Puerto Rico: A Formal Training Program in Community Health Promotion.
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Morales-Torres, Luisa, Vélez-Maldonado, David A., Rosario-Maldonado, Fernando J., Aguirre-Hernández, Jeannie M., Motta-Pagán, Jorge L., Rodríguez-Torruella, Dorimar, Castro-Figueroa, Eida, Ramos-Lucca, Axel, Rivera-Mateo, Elizabeth, Marzán-Rodríguez, Melissa, and Jiménez-Chávez, Julio
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MEDICALLY underserved areas , *INTELLECT , *SELF-efficacy , *RESEARCH funding , *T-test (Statistics) , *HUMAN services programs , *SATISFACTION , *COURSE evaluation (Education) , *EVALUATION of human services programs , *CLINICAL trials , *COMMUNITIES , *DESCRIPTIVE statistics , *PROBLEM solving , *PRE-tests & post-tests , *PROBLEM-based learning , *CURRICULUM planning , *ABILITY , *MEMORY , *HEALTH promotion , *OUTCOME-based education , *DATA analysis software , *HEALTH equity , *COMMUNITY-based social services - Abstract
Community health promotion offers a potential solution to persistent healthcare challenges, with community health workers playing a pivotal role. The Community Training Institute for Health Disparities (CTIHD) implemented a problem-solving curriculum in Community Health Promotion, integrating a competency-based learning model through two courses: Introduction to Community Health Promotion and Design of an Action Plan for the Promotion of Community Health. Each course comprised ten three-hour sessions, featuring pre/post-tests, evaluations, and a cognitive debriefing. Knowledge change was assessed using pre/post-test scores among 27 community leaders from southern Puerto Rico. Cohort 1 and Cohort 2 demonstrated an overall retention rate of 62.6% and 96.7%, respectively. Although differences in knowledge gained between cohorts and courses weren't statistically significant, a trend toward increased knowledge was noted. Cohort 1 experienced a 22% knowledge increase in Course 1 and a 24% increase in Course 2. Cohort 2 demonstrated a 41% knowledge increase in Course 1 and a 25% increase in Course 2. The CTIHD's Community Health Promotion Program has made significant strides in elevating awareness and knowledge, marking a positive step toward reducing health disparities and fostering healthier, empowered communities in southern Puerto Rico. [ABSTRACT FROM AUTHOR]
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- 2024
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3. Increasing research study engagement in minoritized populations: An example from the Black Women Inflammation and Tau Study.
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Stradford, Joy, Heyworth, Nadine C., Jackson, Michelle, Norman, Marc, Banks, Sarah J., Sundermann, Erin E., and Thames, April D.
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Black women are sorely underrepresented in studies of Alzheimer's disease and related dementias (ADRD) despite higher rates of ADRD diagnoses than in non‐Hispanic White women. There are many reasons for underrepresentation, including medical mistrust, limited access to clinical studies, and restrictive study inclusion criteria. These pervasive barriers to research participation are often not considered during study development and, if eventually thought of tend to be after the fact. Community‐engaged research (CER) approaches are an effective method for reducing participation barriers. This article describes how CER approaches were used to develop the Black Women Inflammation and Tau Study (BWITS), a prospective study to identify biopsychosocial risk factors for ADRD in Black women. Guidelines discussed here for future ADRD research in diverse populations are informed by Community‐Based Participatory Research (CBPR), the National Institute on Minority Health and Health Disparities (NIMHD), and the Patient‐Centered Outcomes Research Institute (PCORI). Highlights: Understand the historical tragedies related to medical practices and research designs that may contribute to the underrepresentation of Black Americans in research studies today.Highlight community‐engaged research approaches that effectively reduce participation barriers in minoritized groups.Review Community‐Based Participatory Research, National Institute of Minority Health and Health Disparities, and the Patient‐Centered Outcomes Research Institute guidelines for conducting research with minoritized communities.Describe using the three frameworks to inform the study development protocol for the Black Women Inflammation and Tau Study.Conclude by offering study design considerations that we hope can be a helpful starting point for others conducting research with minoritized communities. [ABSTRACT FROM AUTHOR]
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- 2024
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4. Exploring community-based participatory research for household and ambient air pollution projects: insights from key informants
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Eunice Phillip, Aisling Walsh, Sarah Jewitt, Farah Elnakoury, Joella Simon, Ronán M Conroy, and Debbi Stanistreet
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CBPR ,Participatory approach ,Air pollution ,Framework analysis ,CBPR principles ,CBPR conceptual model ,Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background Despite the extensive use of community-based participatory research (CBPR) in health-related projects, there is limited work on how CBPR processes result in outcomes, especially in household and ambient air pollution (HAAP) research. This study explores the reflections of key informants on factors that shape the implementation and outcomes of CBPR in HAAP projects. Methods We conducted semi-structured interviews with 13 key stakeholders, including academic researchers, non-governmental organisation administrators, a policymaker, and community members. All interviewees have experience in CBPR projects. Interviews were analysed using framework analysis, and findings were mapped to Wallerstein et al.’s CBPR conceptual model, which consists of four constructs: context, partnership processes, intervention and research, and outcomes. Results The findings are described under two main categories: ‘barriers to participation’ and ‘good practices for effective CBPR design and implementation’. Relevant sub-categories were barriers at the structural, research, community, and individual levels. Suggestions for good practices included respect, cultural humility, trust, effective communication, suitable and affordable interventions such as improved cookstoves, appropriate participatory research tools, and gratuity for the community’s time. Conclusion Key informants’ perspectives identified factors supported by the CBPR model to inform the design and implementation of the CBPR approach. The add-ons to some of the model’s factors, such as intra-community dynamics, give value to the informants’ knowledge to support community-research partnerships and improve outcomes in HAAP intervention projects. Addressing these factors at the design stage and reporting CBPR evaluation could deepen the understanding of community-research partnerships.
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- 2024
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5. Exploring community-based participatory research for household and ambient air pollution projects: insights from key informants.
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Phillip, Eunice, Walsh, Aisling, Jewitt, Sarah, Elnakoury, Farah, Simon, Joella, Conroy, Ronán M, and Stanistreet, Debbi
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INDOOR air pollution , *CULTURAL humility , *COMMUNITY-based participatory research , *NONGOVERNMENTAL organizations , *AIR pollution - Abstract
Background: Despite the extensive use of community-based participatory research (CBPR) in health-related projects, there is limited work on how CBPR processes result in outcomes, especially in household and ambient air pollution (HAAP) research. This study explores the reflections of key informants on factors that shape the implementation and outcomes of CBPR in HAAP projects. Methods: We conducted semi-structured interviews with 13 key stakeholders, including academic researchers, non-governmental organisation administrators, a policymaker, and community members. All interviewees have experience in CBPR projects. Interviews were analysed using framework analysis, and findings were mapped to Wallerstein et al.'s CBPR conceptual model, which consists of four constructs: context, partnership processes, intervention and research, and outcomes. Results: The findings are described under two main categories: 'barriers to participation' and 'good practices for effective CBPR design and implementation'. Relevant sub-categories were barriers at the structural, research, community, and individual levels. Suggestions for good practices included respect, cultural humility, trust, effective communication, suitable and affordable interventions such as improved cookstoves, appropriate participatory research tools, and gratuity for the community's time. Conclusion: Key informants' perspectives identified factors supported by the CBPR model to inform the design and implementation of the CBPR approach. The add-ons to some of the model's factors, such as intra-community dynamics, give value to the informants' knowledge to support community-research partnerships and improve outcomes in HAAP intervention projects. Addressing these factors at the design stage and reporting CBPR evaluation could deepen the understanding of community-research partnerships. [ABSTRACT FROM AUTHOR]
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- 2024
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6. Implementing evidence-based practices in rural settings: a scoping review of theories, models, and frameworks.
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Brady, Robert E., Lyons, Kathleen D., Stevens, Courtney J., Godzik, Cassandra M., Smith, Andrew J., Bagley, Pamela J., Vitale, Elaina J., and Bernstein, Steven L.
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POLICY sciences ,MEDICAL information storage & retrieval systems ,RURAL health ,HUMAN services programs ,RESEARCH funding ,SYSTEMATIC reviews ,MEDLINE ,MATHEMATICAL models ,CONCEPTUAL structures ,LITERATURE reviews ,EVIDENCE-based medicine ,THEORY - Abstract
Background: Ruralhealthcarehas unique characteristics that affect thedissemination and implementation of evidence-based interventions. Numerous theories, models, and frameworks have been developed to guide implementation of healthcare interventions, though not specific to rural healthcare. The present scoping review sought to identify the theories, models, and frameworks most frequently applied to rural health and propose an approach to rural health research that harnesses selected constructs from these theories, models, and frameworks. This resulting synthesis can serve as a guide to researchers, policy makers, and clinicians seeking to employ commonly used theories, models, and frameworks to rural health. Methods: We used the Scopus abstract indexing service to identify peer-reviewed literature citing one or more of theories, models, or frameworks used in dissemination and implementation research and including the word "rural" in the Title, Abstract, or Keywords. We screened the remaining titles and abstracts to ensure articles met additional inclusion criteria. We conducted a full review of the resulting 172 articles to ensure they identified one or more discrete theory, model, or framework applied to research or quality improvement projects. We extracted the theories, models, and frameworks and categorized these as process models, determinant frameworks, classic theories, or evaluation frameworks. Results: We retained 61 articles of which 28 used RE-AIM, 11 used Community-Based Participatory Research (CBPR) framework, eight used the Consolidated Framework for Implementation Research (CFIR), and six used the integrated-Promoting Action on Research Implementation in Health Services (iPARIHS). Additional theories, models, and frameworks were cited in three or fewer reports in the literature. The 14 theories, models, and frameworks cited in the literature were categorized as seven process models, four determinant frameworks, one evaluation framework, and one classic theory. Conclusions: The RE-AIM framework was the most frequently cited framework in the rural health literature, followed by CBPR, CFIR, and iPARIHS. A notable advantage of RE-AIM in rural healthcare settings is the focus on reach as a specified outcome, given the challenges of engaging a geographically diffuse and often isolated population. We present a rationale for combining the strengths of these theories, models, and frameworks to guide a research agenda specific to rural healthcare research. Systematic Review Registration: https://osf.io/fn2cd/. [ABSTRACT FROM AUTHOR]
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- 2024
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7. A systematic review of rural community-based mental health interventions in the United States.
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Mengell, Kirsten A., Chikawa, Muchaneta M. N., Weinstein, Jenna N., Welch, RoShonda, Smallwood, Stacy W., and Hansen, Andrew R.
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AbstractBackgroundAimMethodsResultsConclusion\nPRISMA/PROSPEROMental health impacts a person’s quality of life and ability to engage in healthy behaviors. Rural communities in the United States have limited access to mental and behavioral health treatment.To conduct a systematic review to identify existing rural community-based mental health interventions and identify commonalities and differences by extracting study attributes and intervention components.March 2022 CINAHL, EMBASE, PsycInfo, Scopus, and Academic Search Complete were searched for studies that met the inclusion criteria of rural, community-based mental health interventions in the United States.Ten publications satisfied the criteria for this review. The most common intervention components identified were peer interaction, developed coping skills, and activity-based interventions.While this review excluded a meta-analysis, it did illuminate the components of existing community-based mental health interventions and highlighted gaps in the current research. Our findings suggest that future community-based mental health interventions would benefit from the inclusion of peer interaction, coping skills development, activity-based, cultural & historical context, service referral, and spirituality.
This review followed PRISMA 2020 guidelines, including the use of the PRISMA flow chart and checklist. The review was not registered with PROSPERO due to having already begun data extraction and registering is not permitted post-data extraction to prevent bias. However, iterative searches were conducted on PROSPERO to determine the relevance of this review. [ABSTRACT FROM AUTHOR]- Published
- 2024
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8. Engaging an African American Church-based Community in Developing a Technology-focused Virtual Reality Hypertension Program.
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Floríndez, Lucía I., Kim, Linda Y., Martinez, Bibiana, Manoukian, Mana G., Pamu, Jennifer, Clegg, Deborah J., Sauls, The Reverend Kelvin, Spiegel, Brennan, and Coleman, Bernice
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VIRTUAL reality ,AFRICAN American churches ,AFRICAN Americans ,HYPERTENSION ,COMMUNITY-based participatory research - Abstract
Background: African Americans are disproportionately affected by cardiovascular disease and hypertension. To address this, we partnered with local church leaders in developing a virtual reality (VR) hypertension reduction program. Objectives: A community-based participatory research approach was adopted to develop a hypertension education program using VR, incorporating feedback from the African American church congregation members. Methods: Using a qualitative approach, a modified Delphi exercise, and member checking, the research team collaborated with congregation members who provided feedback and assisted in the development of the intervention. Lessons Learned: Incorporating feedback from church members significantly impacted the educational platform. Encouraged by the reverend, church members were engaged and participated in the 12-week program designed to reduce blood pressure. Novel approaches like VR may need more time to pilot to achieve desired results, particularly with vulnerable populations. Conclusions: This participatory research platform highlights the importance of incorporating external stakeholders throughout the research process in order to develop a meaningful health intervention using new technology that is tailored to the church members. [ABSTRACT FROM AUTHOR]
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- 2024
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9. Community-engaged Research Partnerships as Healing Spaces for Health Professionals and Researchers.
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Alang, Sirry M., Letcher, Abby S., Batts, Hasshan, Moeller, Carol, Biery, Nyann, Mitsdarffer, Mary, Kieber-Emmons, Autumn M., Rivera, Jose, and Johnson, Melanie
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BUSINESS partnerships ,MEDICAL personnel ,RESEARCH personnel ,HEALING ,HEALTH equity - Abstract
Drawing from collective experiences in our capacity building project: Health Equity Activation Research Team for Inclusion Health, we argue that while community-engaged partnerships tend to focus on understanding health inequities and developing solutions, they can be healing spaces for health professionals and researchers. Data were obtained from a 15-month participatory ethnography, including focus groups and interviews. Ethnographic notes and transcripts were coded and analyzed using both deductive and inductive coding. Practices of radical welcome, vulnerability, valuing the whole person, acknowledging how partnerships can cause harm, and centering lived experience expertise in knowledge creation processes were identified as key characteristics of healing spaces. Ultimately, health professionals and researchers work within the same social, political and economic contexts of populations with the worst health outcomes. Their own healing is critical for tackling larger systemic changes aimed at improving the well-being of communities harmed by legacies of exclusion. [ABSTRACT FROM AUTHOR]
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- 2024
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10. The Role of Anti-Racist Community-Partnered Praxis in Implementing Restorative Circles Within Marginalized Communities in Southern California During the COVID-19 Pandemic
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Adkins-Jackson, Paris B, Vázquez, Evelyn, Henry-Ala, Frank K, Ison, Juliana M, Cheney, Ann, Akingbulu, Josephine, Starks, Christian, Slay, Lindsay, Dorsey, Alexander, Marmolejo, Connie, Stafford, Alvin, Wen, James, McCauley, Margaret H, Summers, Latrese, Bermudez, Llendy, Cruz-Roman, Zitlaly L, Castillo, Itzel, Kipke, Michele D, Brown, Arleen F, and Workgroup, The STOP COVID-19 CA Vaccine Hesitancy
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Health Services and Systems ,Health Sciences ,Clinical Research ,Prevention ,Infection ,Good Health and Well Being ,Humans ,Pandemics ,COVID-19 ,California ,Trust ,Mental Health ,Community-Based Participatory Research ,community-based ,mental health ,restorative ,antiracism ,CBPR ,partnerships ,community-academic partnerships ,intervention planning ,STOP COVID-19 CA Vaccine Hesitancy Workgroup ,community–academic partnerships ,Public Health and Health Services ,Curriculum and Pedagogy ,Public health - Abstract
The COVID-19 pandemic has exacerbated the adverse influence of structural racism and discrimination experienced by historically marginalized communities (e.g., Black, Latino/a/x, Indigenous, and transgender people). Structural racism contributes to trauma-induced health behaviors, increasing exposure to COVID-19 and restricting access to testing and vaccination. This intersection of multiple disadvantages has a negative impact on the mental health of these communities, and interventions addressing collective healing are needed in general and in the context of the COVID-19 pandemic. The Share, Trust, Organize, and Partner COVID-19 California Alliance (STOP COVID-19 CA), a statewide collaborative of 11 universities and 75 community partners, includes several workgroups to address gaps in COVID-19 information, vaccine trial participation, and access. One of these workgroups, the Vaccine Hesitancy Workgroup, adopted an anti-racist community-partnered praxis to implement restorative circles in historically marginalized communities to facilitate collective healing due to structural racism and the COVID-19 pandemic. The project resulted in the development of a multilevel pre-intervention restorative process to build or strengthen community-institutional partnerships when procurement of funds has been sought prior to community partnership. This article discusses this workgroup's role in advancing health justice by providing a community-based mental health intervention to marginalized communities in Southern California while using an antiracist praxis tool to develop a successful community-institutional partnership and to live up to the vision of community-based participatory research.
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- 2023
11. Translating community-based participatory research into broadscale sociopolitical change: insights from a coalition of women firefighters, scientists, and environmental health advocates
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Ohayon, Jennifer Liss, Rasanayagam, Sharima, Rudel, Ruthann A, Patton, Sharyle, Buren, Heather, Stefani, Tony, Trowbridge, Jessica, Clarity, Cassidy, Brody, Julia Green, and Morello-Frosch, Rachel
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Health Services and Systems ,Public Health ,Health Sciences ,Clinical Research ,Humans ,Female ,Community-Based Participatory Research ,Firefighters ,Biological Monitoring ,Breast Neoplasms ,Environmental Health ,Community-based participatory research ,CBPR ,Breast cancer ,Biomonitoring ,Occupational health ,Public Health and Health Services ,Toxicology ,Epidemiology ,Public health - Abstract
BackgroundWe report on community-based participatory research (CBPR) initiated by women firefighters in order to share successful elements that can be instructive for other community-engaged research. This CBPR initiative, known as the Women Worker Biomonitoring Collaborative (WWBC) is the first we are aware of to investigate links between occupational exposures and health outcomes, including breast cancer, for a cohort of exclusively women firefighters.MethodsIn order to be reflective of the experiences and knowledge of those most intimately involved, this article is co-authored by leaders of the research initiative. We collected leaders' input via recorded meeting sessions, emails, and a shared online document. We also conducted interviews (N = 10) with key research participants and community leaders to include additional perspectives.ResultsFactors contributing to the initiative's success in enacting broadscale social change and advancing scientific knowledge include (1) forming a diverse coalition of impacted community leaders, labor unions, scientists, and advocacy organizations, (2) focusing on impacts at multiple scales of action and nurturing different, yet mutually supportive, goals among partners, (3) adopting innovative communication strategies for study participants, research partners, and the broader community, (4) cultivating a prevention-based ethos in the scientific research, including taking early action to reduce community exposures based on existing evidence of harm, and (5) emphasizing co-learning through all the study stages. Furthermore, we discuss external factors that contribute to success, including funding programs that elevate scientist-community-advocacy partnerships and allow flexibility to respond to emerging science-policy opportunities, as well as institutional structures responsive to worker concerns.ConclusionsWhile WWBC shares characteristics with other successful CBPR partnerships, it also advances approaches that increase the ability for CBPR to translate into change at multiple levels. This includes incorporating partners with particular skills and resources beyond the traditional researcher-community partnerships that are the focus of much CBPR practice and scholarly attention, and designing studies so they support community action in the initial stages of research. Moreover, we emphasize external structural factors that can be critical for CBPR success. This demonstrates the importance of critically examining and advocating for institutional factors that better support this research.
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- 2023
12. Radical Healing Community-Based Participatory Research to Eliminate Health Disparities.
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Roncoroni, Julia and Tucker, Carolyn M.
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COMMUNITY health services ,HEALTH services accessibility ,MENTAL health ,HUMAN services programs ,SOCIAL determinants of health ,HEALTH ,EVALUATION of human services programs ,EVALUATION of medical care ,POVERTY areas ,PSYCHOLOGY of Black people ,QUALITY of life ,HEALTH equity ,HEALTH promotion ,OLD age - Abstract
The health disparities experienced by Black older adults are associated with social determinants of health, all of which are inextricably linked to anti-Black racism. Research led by counseling psychologists has implications for promoting mental and physical health equity. We describe a new model, based on the integration of the radical healing framework and the community-based participatory research (CBPR) approach, for promoting mental and physical health and wellness among Black older adults. This model is called the radical healing CBPR model. Finally, we provide an example of a program informed by this model that helped improve the health outcomes and quality of life of Black older adults living in the low-income area of a city in the southeastern part of the United States. Notably, Black adults similar to the program participants, participated in the development and implementation of this program in ways that are consistent with the radical healing CBPR model. [ABSTRACT FROM AUTHOR]
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- 2024
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13. The Power of Community-Based Participatory Research (CBPR).
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Corrigan, Patrick W. and Oppenheim, Madeline
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PSYCHIATRY , *PHYSICAL medicine , *SOCIAL constructionism , *COMMUNITY health services , *THEORY of knowledge , *MEDICAL care research , *EXPERIENCE , *ACTION research , *INTERPROFESSIONAL relations , *DECISION making , *REHABILITATION , *POWER (Social sciences) - Abstract
Objective: Community-based participatory research (CBPR) is based on power as fundamental to doing research. It evolved as a way of "knowing" from the broader idea of natural science. While previously viewed as objective, natural science is now understood as, at least, partially socially constructed. Method: History of research and epistemology is reviewed in terms of science. More specifically, we delve into science as social construction and how this conceptually opens the door to considering power in its processes. We then unpack CBPR as one way to do mental health research that artfully weaves power into method. Results: Natural science has evolved from believing scientism (i.e., the scientific method) is sufficient to describe physical and social phenomena to terms of social constructivism; namely, the social processes that impact investigators are necessary to understand science and its product. This highlights the role of power; namely, investigator choices about hypotheses, methods, analyses, and interpretations influence the products of individual studies. The recovery movement is the embodiment of power that significantly changed research and rehabilitation in mental health. CBPR has emerged to include people with lived experience in the research enterprise. CBPR is partnership among people with lived experience, health scientists, and service providers in all facets of doing research. Conclusions and Implications for Practice: Integrating CBPR into rehabilitation science has led to findings and actions that better serve community objectives. Continuing to weave CBPR into research and development will further enhance recovery in practice. Impact and Implications: This review found community-based participatory research (CBPR) to be partnership between people with psychiatric disabilities and other stakeholders, including mental health scientists, family members, service providers, and administrators. CBPR is fundamentally action-based and grounded in power by enabling people to gather evidence so that they can make decisions about their communities. [ABSTRACT FROM AUTHOR]
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- 2024
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14. A Systematic Review of Community-Based Participatory Research Studies Involving Individuals With Mental Illness.
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Nieweglowski, Katherine, Sheehan, Lindsay, and Deshpande, Ashwini
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PSYCHOLOGY information storage & retrieval systems , *HUMAN research subjects , *SYSTEMATIC reviews , *COMMUNITY health services , *MEDICAL care research , *SURVEYS , *ACTION research , *DESCRIPTIVE statistics , *MENTAL illness - Abstract
Objective: This systematic review examined community-based participatory research (CBPR) studies in which people with mental illness (PWMI) directly contributed to research projects. The purpose was to describe study characteristics, team structure and logistics, and level of involvement of in the research process. Method: We searched the PsycINFO database from January 2000 to July 2020, identifying 1,395 records and analyzing the 31 that met inclusion criteria. Articles were eligible if they were (a) published in English in a peer-reviewed journal; (b) explicitly stated that at least one adult with mental illness assisted with the study as a CBPR team member; and (c) included a research outcome. Results: Most studies collected qualitative data. Project length, team composition, and frequency of meetings were not specified in about one third of the articles. Twenty-nine studies reported involvement of people with mental illness in research activities such as recruitment, data collection, transcription, and analysis. Nearly half did not specify if they received any training. Conclusions and Implications for Practice: Individuals with mental illness were heavily involved in planning and conducting research, demonstrating the feasibility of meaningful involvement. Future research should consider how people with lived experience can assist with quantitative methods, and articles should clearly and explicitly describe characteristics of the partnership (e.g., team composition, frequency of meetings, compensation). The protocol is published in Open Science registry at https://osf.io/mshfb. Impact and Implications: Community-based participatory research (CBPR) studies involving people with mental illness span four areas: understanding health care and societal experiences, identifying needs and barriers, developing interventions, and examining their impact. Most were qualitative, suggesting more training is required for quantitative studies. Articles did not consistently report project length, meeting frequency, compensation, or dissemination, but this information is necessary to maintain transparency and highlight benefits of involving people with lived experience in CBPR. [ABSTRACT FROM AUTHOR]
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- 2024
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15. The Utility of Community-Based Participatory Research: Increasing Research Engagement Among Minoritized Ethnoracial Groups.
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Harb, Camelia A. and Taylor, Matthew J.
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PSYCHIATRY , *CULTURE , *MEDICAL quality control , *MINORITIES , *PATIENT participation , *HUMAN research subjects , *EVALUATION of human services programs , *PATIENT selection , *COMMUNITIES , *MENTAL health , *SOCIAL stigma , *SOCIAL factors , *EVIDENCE-based medicine , *INSTITUTIONAL review boards , *CLINICAL medicine research , *HEALTH literacy , *TREATMENT effectiveness , *HUMAN services programs , *ACTION research , *PSYCHOSOCIAL factors , *QUALITY assurance , *INTERPROFESSIONAL relations , *ETHNIC groups , *HEALTH equity , *PSYCHIATRIC treatment , *HEALTH promotion - Abstract
Objective: This article conceptually examined the need for and utility of community-based participatory research (CBPR) approaches for increasing rates of engagement in psychological research among underserved minoritized ethnoracial groups. Methods: This article examined the literature for relevant studies examining rates of research engagement by minoritized ethnoracial groups, significant factors precluding research engagement, and the consequences of this disparity for mental health outcomes. The theoretical literature outlining the development and utility of alternative, community-based participatory research methods was included. Key features of CBPR were examined along with limitations of current approaches. A case study example of CBPR is provided. Results: The use of CBPR approaches has been documented to improve health outcomes, reduce stigma toward mental health research and treatment, and build the professional capacity of community partners, particularly among minoritized ethnoracial groups. Conclusions and Implications for Practice: CBPR engagement practices are a means of reducing the mental health research gap for ethnic and racial minoritized groups. The use of such approaches in future research and practice will directly inform how existing psychological treatments may be modified per the needs of the patient, address long standing issues of cultural mistrust toward professional institutions, and reduce mental health stigma in underserved communities. Impact and Implications: Community-based participatory research (CBPR) practices are a demonstrated means of increasing research engagement among minoritized ethnoracial groups. CBPR approaches address longstanding issues of cultural mistrust and mental health stigma among these populations as well as historical mistreatment of underserved communities by professional entities. Community-based work academically informs better practices while increasing community efficacy and capacity. [ABSTRACT FROM AUTHOR]
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- 2024
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16. A snapshot of HIV/AIDS knowledge, behaviors, and attitudes of Ethiopian immigrants in the District of Columbia.
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Moore, Sarah, Zajicek-Farber, Michaela L., and Donaldson, Linda Plitt
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HIV infections ,IMMIGRANTS ,ETHIOPIANS ,RISK-taking behavior ,RESEARCH ,CROSS-sectional method ,RESEARCH methodology ,MULTIPLE regression analysis ,QUANTITATIVE research ,INTERVIEWING ,HEALTH literacy ,QUALITATIVE research ,CRONBACH'S alpha ,DESCRIPTIVE statistics ,CHI-squared test ,STATISTICAL correlation ,DATA analysis software ,ODDS ratio ,AIDS - Abstract
Washington, D.C. continues to lead the nation in the rate of HIV infection. This urban area has the largest Ethiopian population in the United States, yet very little has been known about the knowledge, behaviors, and attitudes regarding HIV/AIDS of adult Ethiopian immigrants in the District. Based on a community-based participatory research (CBPR) project, this article reports the findings of the perceptions of HIV/AIDS knowledge, behaviors, and attitudes of 60 Ethiopian immigrants using a cross-sectional survey. Results describe challenges in immigrants' knowledge, risk-behaviors, and stigmatizing attitudes toward others with HIV/AIDS. Study implications, limitations, and future research are addressed. [ABSTRACT FROM AUTHOR]
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- 2024
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17. Implementing evidence-based practices in rural settings: a scoping review of theories, models, and frameworks
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Robert E. Brady, Kathleen D. Lyons, Courtney J. Stevens, Cassandra M. Godzik, Andrew J. Smith, Pamela J. Bagley, Elaina J. Vitale, and Steven L. Bernstein
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scoping review ,implementation frameworks ,re-aim ,CFIR ,CBPR ,iPARIHS ,Medicine - Abstract
BackgroundRural healthcare has unique characteristics that affect the dissemination and implementation of evidence-based interventions. Numerous theories, models, and frameworks have been developed to guide implementation of healthcare interventions, though not specific to rural healthcare. The present scoping review sought to identify the theories, models, and frameworks most frequently applied to rural health and propose an approach to rural health research that harnesses selected constructs from these theories, models, and frameworks. This resulting synthesis can serve as a guide to researchers, policy makers, and clinicians seeking to employ commonly used theories, models, and frameworks to rural health.MethodsWe used the Scopus abstract indexing service to identify peer-reviewed literature citing one or more of theories, models, or frameworks used in dissemination and implementation research and including the word “rural” in the Title, Abstract, or Keywords. We screened the remaining titles and abstracts to ensure articles met additional inclusion criteria. We conducted a full review of the resulting 172 articles to ensure they identified one or more discrete theory, model, or framework applied to research or quality improvement projects. We extracted the theories, models, and frameworks and categorized these as process models, determinant frameworks, classic theories, or evaluation frameworks.ResultsWe retained 61 articles of which 28 used RE-AIM, 11 used Community-Based Participatory Research (CBPR) framework, eight used the Consolidated Framework for Implementation Research (CFIR), and six used the integrated-Promoting Action on Research Implementation in Health Services (iPARIHS). Additional theories, models, and frameworks were cited in three or fewer reports in the literature. The 14 theories, models, and frameworks cited in the literature were categorized as seven process models, four determinant frameworks, one evaluation framework, and one classic theory.ConclusionsThe RE-AIM framework was the most frequently cited framework in the rural health literature, followed by CBPR, CFIR, and iPARIHS. A notable advantage of RE-AIM in rural healthcare settings is the focus on reach as a specified outcome, given the challenges of engaging a geographically diffuse and often isolated population. We present a rationale for combining the strengths of these theories, models, and frameworks to guide a research agenda specific to rural healthcare research.Systematic Review Registrationhttps://osf.io/fn2cd/.
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- 2024
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18. Communities catalyzing change with data to mitigate an invisible menace, traffic-related air pollution
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Linda Sprague Martinez, Shir Lerman Ginzburg, Sharon Ron, Cristina Araujo Brinkerhoff, Samiya Haque, Sophia Angali England, Kynza Khimani, Wig Zamore, Ellin Reisner, Lydia Lowe, and Doug Brugge
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Transportation relation air pollution (TRAP) ,Ultrafine particles ,CBPR ,Community action ,Research translation ,Public aspects of medicine ,RA1-1270 - Abstract
Abstract Objectives To identify strategies and tactics communities use to translate research into environmental health action. Methods We employed a qualitative case study design to explore public health action conducted by residents, organizers, and public health planners in two Massachusetts communities as part of a community based participatory (CBPR) research study. Data sources included key informant interviews (n = 24), reports and direct observation of research and community meetings (n = 10) and project meeting minutes from 2016–2021. Data were coded deductively drawing on the community organizing and implementation frameworks. Results In Boston Chinatown, partners drew broad participation from community-based organizations, residents, and municipal leaders, which resulted in air pollution mitigation efforts being embedded in the master planning process. In Somerville, partners focused on change at multiple levels, developer behavior, and separate from the funded research, local legislative efforts, and litigation. Conclusions CBPR affords communities the ability to environmental health efforts in a way that is locally meaningful, leveraging their respective strengths. External facilitation can support the continuity and sustainment of community led CBPR efforts.
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- 2024
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19. The BUDS Institutions: Kerala Model for Rehabilitation of Individuals with Intellectual and Developmental Disabilities
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Vincent, Rosna
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- 2024
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20. Perspectives of community members on community-based participatory research: A systematic literature review.
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Lee, Jee Young, Clark, Jill K., Schmiesing, Ryan, Kaiser, Michelle L., Reece, Jason, and Park, Seungbin
- Abstract
Anchor institutions are a part of a complex urban governance regime influencing policy, investment and programming in urban neighborhoods. Anchor land-grant educational institutions are questioning their role in conducting impactful research in and with the community. We find growing evidence of interest in community-based participatory research (CBPR) by universities and funders. Utilizing a systematic literature review we analyze peer-reviewed scholarship on CBPR. While the number of CBPR publications has been on the rise since 2005 and the term CBPR among others is used most frequently across the fields, the trend in the social sciences is lagging. About half of the CBPR literature provides community perspectives, and less than a third was coauthored with community partners. We find community perspectives and voices are more limited in the social sciences. We attribute this phenomenon to funding limitations and the potential for bias in the peer-review process of relevant journals. [ABSTRACT FROM AUTHOR]
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- 2024
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21. Trust in Medical Research: A Comparative Study among Patients at a Regional Referral Hospital and Community Members in Lira District, Northern Uganda.
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Pulle, Jafesi, Loue, Sana, Kiwanuka, Gertrude N., and Francis, Bajunirwe
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TRUST , *TUSKEGEE Syphilis Study , *MEDICAL referrals , *MEDICAL research , *COMPARATIVE studies - Abstract
Events such as the Tuskegee syphilis study shaped how the public perceives and trusts medical research globally. However, few studies have examined trust in medical research in developing countries. We tested the hypothesis that levels of trust may be lower among community members compared to hospitalized persons in Uganda. We enrolled 296 participants in rural northern Uganda, and 148(50%) were from the community, 192(65%) were female. Mean level of trust for medical research was higher among hospitalized persons compared to community members (p = 0.0001). Previous research participation (p = 0.03), and willingness to participate in future research (p = 0.001) were positively associated with trust. Medical personnel should engage more with the communities in which they practice fostering trust in medical research. [ABSTRACT FROM AUTHOR]
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- 2024
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22. The adaptation of a youth mental health intervention to a peer-delivery model utilizing CBPR methods and the ADAPT-ITT framework in Sierra Leone.
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Freeman, Jordan A., Desrosiers, Alethea, Schafer, Carolyn, Kamara, Patricia, Farrar, Jordan, Akinsulure-Smith, Adeyinka M., and Betancourt, Theresa S.
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- *
AFFINITY groups , *EVIDENCE-based medicine , *CONCEPTUAL structures , *METAPHOR , *ACTION research , *RESEARCH funding , *INTERPROFESSIONAL relations , *DECISION making , *PSYCHOLOGICAL adaptation , *MENTAL health services , *STORYTELLING , *EDUCATIONAL attainment - Abstract
Low- and middle-income countries (LMICs) carry a significant proportion of the global burden of untreated mental health disorders. Peer-delivered programs offer LMICs with limited mental health professionals an opportunity to increase mental health service access. This study describes the process of adapting a lay-worker-delivered evidence-based youth mental health intervention to a peer-delivery model in Sierra Leone using participatory methods. We convened Youth Community Advisory Boards (YCABs) as partners to develop a peer-delivery model for an evidence-based intervention. In collaboration with YCABs, the Assessment, Decision, Administration, Production, Topical experts, Integration, Training, Testing (ADAPT-ITT) framework was applied to guide the adaptation. The ADAPT-ITT framework is an eight-step process to adapt evidence-based interventions. The ADAPT-ITT framework facilitated the adaptation of the Youth Readiness Intervention (YRI), an evidence-based mental health program intervention that has been delivered by adult lay-workers to the youth peer-delivery platform in Sierra Leone. The YCABs identified program modifications, including the incorporation of storytelling, refinement of metaphors, and alterations to make delivery more accessible to low-literacy youth with particular attention to gender. YCABs also provided recommendations on how to support youth facilitators in providing psychosocial support, emphasizing self-care and boundary setting to ensure high-quality intervention delivery and do-no-harm principles. Study findings suggest that the ADAPT-ITT framework can be feasibly applied to guide the intervention adaptation process in LMICs. The use of participatory methods generated modifications that reflected youth experiences, needs, and concerns as facilitators and participants. Next steps include refinement and pilot testing of the adapted intervention. [ABSTRACT FROM AUTHOR]
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- 2024
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23. Should We Trust You? Strategies to Improve Access to Mental Healthcare to BIPOC Communities During the COVID-19 Pandemic.
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Waller, Bernadine Y., Giusto, Ali, Tepper, Miriam, Legros, Naomi C., Sweetland, Annika C., Taffy, Amanda, and Wainberg, Milton L.
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PREVENTION of mental depression , *MEDICAL quality control , *PEOPLE of color , *HEALTH services accessibility , *MENTAL health , *INTERPERSONAL relations , *COMMUNICATION , *HEALTH equity , *COVID-19 pandemic , *MENTAL health services - Abstract
Black, Indigenous, and People of Color (BIPOC) communities have weathered centuries of racism, causing transgenerational mental health consequences and hindering access to quality treatment. In this commentary, we describe the systemic challenges of engaging BIPOC to promote mental health equity during the COVID-19 pandemic. We then describe an initiative that illustrates these strategies, provide recommendations and further readings for academic institutions seeking to partner with community organizations to provide equitable mental health services to populations that have been traditionally overlooked. [ABSTRACT FROM AUTHOR]
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- 2024
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24. The Michigan Farmworker Project: A Community-Based Participatory Approach to Research on Precarious Employment and Labor Exploitation of Farmworkers.
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Iglesias-Rios, Lisbeth, Valentín-Cortés, Mislael, Fleming, Paul J., O'Neill, Marie S., and Handal, Alexis J.
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Precarious employment is an important social determinant of health inequities. Through in-depth qualitative interviews (n = 35), we examine precarious employment and labor exploitation, their potential impact on the working environment, and, ultimately, the health of farmworkers. We present results from the community-based participatory Michigan Farmworker Project. Our analysis identified dimensions of precarious employment and labor exploitation that involved lacking access to fundamental labor and social rights—including dehumanization—discriminatory occupational practices, and insufficient access to health care and social benefits. Policy reform is needed to address precarious employment and labor exploitation among farmworkers due to their potential long-lasting health effects. [ABSTRACT FROM AUTHOR]
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- 2023
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25. Feasibility, acceptability and effectiveness of a culturally informed intervention to decrease stress and promote well-being in reservation-based Native American Head Start teachers
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Deborah H. Wilson, Danielle German, Adrian Ricker, Hilary Gourneau, Ginger C. Hanson, Justin Mayhew, Teresa N. Brockie, and Michelle Sarche
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Native American ,Head Start ,Intervention implementation ,Mental health ,CBPR ,Mixed methods ,Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background While benefiting from strong cultural ties to family, land and culture Native Americans residing on reservations experience psychological distress at rates 2.5 times that of the general population. Treatment utilization for psychological health in reservation-based communities is low with access to culturally appropriate care lacking. Evidence suggests that for mental health treatment, Native Americans prefer culturally informed care that respects Native perspectives on health and well-being. Methods To decrease stress and promote well-being in tribal Head Start teachers we adapted and implemented a culturally focused intervention within a community-based participatory research framework using mixed methods. Feasibility and acceptability of the adapted 5-session curriculum was tested in a single arm intervention study with a sample of 18 teachers on the Fort Peck Reservation. Participants completed surveys at baseline and upon completion of the intervention. Within session observations and two post-intervention focus groups (n = 8, n = 10) were conducted to elaborate and explain the quantitative results eliciting participant experience of intervention effectiveness and feasibility, acceptably and appropriateness. Implementation outcomes were assessed quantitatively using the Acceptability of Intervention, Intervention Appropriateness, and Feasibility of Intervention measures. Results Quantitively, attendance rate overall was 93% with no dropouts. Pretest/posttest surveys were analyzed using t-tests and Hedges g to measure effect size. Contrary to our hypothesis, self-perceived stress showed a small positive effect size, indicating that participants were more stressed post intervention. However, depression decreased, with tribal identity and resilience showing positive effect sizes. Content analysis for the qualitative data collected within session observations and post intervention focus groups revealed how lifetime traumas were affecting participants, providing some explanation for the increase in stress. Teachers reported that the sessions helped their psychological health and well-being, supporting feasibility of future interventions. Acceptability scored highest with a mean (SD) of 4.25 (.84) out of 5, appropriateness 4.18 (.86) and feasibility 4.06 (.96) supporting intervention to be acceptable, appropriate, and feasible. Conclusion Utilizing a culturally based intervention to buffer stress and support the well-being of reservation-based teachers showed promise in helping them recognize their cultural strengths, stress, and need for ongoing support. Implementation outcomes show that intervention scale-out is feasible.
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- 2023
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26. Understanding implementation research collaborations from a co-creation lens: Recommendations for a path forward
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Jolles, Mónica Pérez, Willging, Cathleen E, Stadnick, Nicole A, Crable, Erika L, Lengnick-Hall, Rebecca, Hawkins, Jemma, and Aarons, Gregory A
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Health Services and Systems ,Health Sciences ,co-creation ,principles ,implementation ,collaborations ,CBPR - Abstract
Increasing calls within the field of implementation science (IS) research seek to promote active engagement of diverse and often disenfranchised stakeholder voices to increase buy-in, fidelity, outcome relevance, and sustainment of evidence-based practices (EBPs). Including such voices requires cultural humility and the integration of multiple perspectives and values among organizations, groups, and individuals. However, the IS field lacks guidance for researchers on structuring collaborative approaches to promote a co-created process (i.e., synergistic approach to goal attainment). We contend that improved operationalization of co-created implementation collaborations is critical to sparking synergy and addressing differentials based on power, privilege, knowledge, and access to resources among stakeholders. These differentials can undermine future implementation and sustainment efforts if not addressed early in the research effort. An insufficient understanding of the guiding principles of co-created implementation collaborations may limit the scientific value of evaluation processes, and researchers' ability to replicate outcomes. We propose a perspective foregrounded in the concept of co-creation to guide the structuring of implementation collaboratives through five principles. We offer three case examples informed by the Exploration, Preparation, Implementation, Sustainment (EPIS) Framework to illustrate the application of these co-creation principles. Lastly, we offer recommendations for promoting co-creation in IS research moving forward.
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- 2022
27. Stakeholder Engagement and (the Limits of) IRB Review
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Cargill, Stephanie Solomon, Holm, Søren, Series Editor, Rasmussen, Lisa M., Series Editor, Engelhardt Jr., H. Tristram, Founding Editor, Spicker, Stuart F., Founding Editor, Agich, George, Editorial Board Member, Baker, Bob, Editorial Board Member, Bishop, Jeffrey, Editorial Board Member, Borovecki, Ana, Editorial Board Member, Fan, Ruiping, Editorial Board Member, Garrafa, Volnei, Editorial Board Member, Hester, D. Micah, Editorial Board Member, Hofmann, Bjørn, Editorial Board Member, Iltis, Ana, Editorial Board Member, Lantos, John, Editorial Board Member, Tollefsen, Chris, Editorial Board Member, Voo, Dr Teck Chuan, Editorial Board Member, and Anderson, Emily E., editor
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- 2023
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28. Promoting Health Equity with Community-Based Participatory Research: The Community Action to Promote Healthy Environments (CAPHE) Partnership
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Schulz, Amy J., Israel, Barbara A., Reyes, Angela G., Wilkins, Donele, Batterman, Stuart, Jourdan, Didier, editor, and Potvin, Louise, editor
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- 2023
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29. Translating community-based participatory research into broadscale sociopolitical change: insights from a coalition of women firefighters, scientists, and environmental health advocates
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Jennifer Liss Ohayon, Sharima Rasanayagam, Ruthann A Rudel, Sharyle Patton, Heather Buren, Tony Stefani, Jessica Trowbridge, Cassidy Clarity, Julia Green Brody, and Rachel Morello-Frosch
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Community-based participatory research ,CBPR ,Firefighters ,Breast cancer ,Biomonitoring ,Occupational health ,Industrial medicine. Industrial hygiene ,RC963-969 ,Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background We report on community-based participatory research (CBPR) initiated by women firefighters in order to share successful elements that can be instructive for other community-engaged research. This CBPR initiative, known as the Women Worker Biomonitoring Collaborative (WWBC) is the first we are aware of to investigate links between occupational exposures and health outcomes, including breast cancer, for a cohort of exclusively women firefighters. Methods In order to be reflective of the experiences and knowledge of those most intimately involved, this article is co-authored by leaders of the research initiative. We collected leaders’ input via recorded meeting sessions, emails, and a shared online document. We also conducted interviews (N = 10) with key research participants and community leaders to include additional perspectives. Results Factors contributing to the initiative’s success in enacting broadscale social change and advancing scientific knowledge include (1) forming a diverse coalition of impacted community leaders, labor unions, scientists, and advocacy organizations, (2) focusing on impacts at multiple scales of action and nurturing different, yet mutually supportive, goals among partners, (3) adopting innovative communication strategies for study participants, research partners, and the broader community, (4) cultivating a prevention-based ethos in the scientific research, including taking early action to reduce community exposures based on existing evidence of harm, and (5) emphasizing co-learning through all the study stages. Furthermore, we discuss external factors that contribute to success, including funding programs that elevate scientist-community-advocacy partnerships and allow flexibility to respond to emerging science-policy opportunities, as well as institutional structures responsive to worker concerns. Conclusions While WWBC shares characteristics with other successful CBPR partnerships, it also advances approaches that increase the ability for CBPR to translate into change at multiple levels. This includes incorporating partners with particular skills and resources beyond the traditional researcher-community partnerships that are the focus of much CBPR practice and scholarly attention, and designing studies so they support community action in the initial stages of research. Moreover, we emphasize external structural factors that can be critical for CBPR success. This demonstrates the importance of critically examining and advocating for institutional factors that better support this research.
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- 2023
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30. Communities catalyzing change with data to mitigate an invisible menace, traffic-related air pollution
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Sprague Martinez, Linda, Ginzburg, Shir Lerman, Ron, Sharon, Brinkerhoff, Cristina Araujo, Haque, Samiya, England, Sophia Angali, Khimani, Kynza, Zamore, Wig, Reisner, Ellin, Lowe, Lydia, and Brugge, Doug
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- 2024
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31. Studying full-shift inhalation exposures to volatile organic compounds (VOCs) among Latino workers in very small-sized beauty salons and auto repair shops
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Nathan Lothrop, Flor Sandoval, Imelda Cortez, Rietta Wagoner, Nicolas Lopez-Galvez, Kimberly Parra, Ann Marie Wolf, Betsy C. Wertheim, Carolina Quijada, Amanda Lee, Stephanie Griffin, Melanie Bell, Scott Carvajal, Maia Ingram, and Paloma Beamer
- Subjects
occupational health ,community health workers ,CBPR ,exposure assessment ,air pollution ,Public aspects of medicine ,RA1-1270 - Abstract
BackgroundOne in every 200 US jobs is in a beauty salon or auto repair shop, where workers are regularly exposed to volatile organic compounds (VOCs) that may cause a range of short- and long-term health issues. In these shops, Latino workers are overrepresented and lack culturally and linguistically appropriate industrial hygiene resources. This leaves a gap in knowledge on inhalation exposures to VOCs in this hard-to-reach and ubiquitous worker population.ObjectiveOur goal was to recruit hard-to-reach, predominantly Spanish-speaking workers in beauty salons and auto repair shops and monitor total VOC inhalation exposures for over entire work shifts, with minimal impact on workers, clients, and business.MethodsWe developed and refined measurement and exposure assessment methods for personal and area full-shift VOC inhalation exposures.ResultsWith minimal participant loss, we measured over 500 h of real-time, personal VOC exposures and recorded activities and other exposure factors for 47 participants, while also documenting chemical inventories and quantifying indoor area concentrations of specific VOCs among 10 auto repair shops and 10 beauty salons.ConclusionLessons learned from our study can assist future studies of inhalation exposures in other hard-to-reach occupational populations.
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- 2023
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32. Utilizing Filipino key informants to guide community outreach for cancer prevention in Hawai'i.
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Willingham, Mark L., Sy, Angela, Taafaki, Munirih, Bodnar, Reyna, Diaz, Tressa P., Somera, Lilnabeth P., Porte, Christina Lucy, Ceria‐Ulep, Clementina D., Pingul, Annilet, Bissell, Jeny, and Cassel, Kevin D.
- Subjects
- *
COMMUNITY health nurses , *PUBLIC relations , *RESEARCH methodology , *GROUNDED theory , *COMMUNITY health services , *MEDICAL screening , *INTERVIEWING , *CONCEPTUAL structures , *HEALTH literacy , *DECISION making , *INTERPROFESSIONAL relations , *HEALTH equity , *THEMATIC analysis , *HEALTH promotion ,TUMOR prevention - Abstract
Objective/design: The University of Hawai'i Cancer Center works with academic and community partners to examine health disparities and inequities that persist among Pacific Island Populations through the Pacific Island Partnership for Cancer Health Equity (PIPCHE). The Partnership's Community Outreach Core (COC) assists and promotes cancer research and helps to ensure the integration of historically excluded community perspectives by utilizing community‐engaged and culturally‐grounded approaches to reduce cancer burdens. However, cancer health disparities among Filipinos demonstrate a need for cancer‐control initiatives within this community. Sample/measurements: COC staff conducted five semi‐structured key informant interviews with Filipino nurse and healthcare leaders in Hawai'i to establishpartnerships with the community, as well as provide community‐driven guidance for future cancer prevention and control efforts. Results: The informants provided recommendations for COC community engagement, relationship building, and future areas of directed cancer focus. The interviews also initiated relationship‐building and community collaborations for directed cancer education and resources within Filipino communities. Conclusion: The themes uncovered from the interviews provided guidance on how to begin addressing cancer concerns, and led to the informants' subsequent membership in our Outreach Advisory Council to engage in future collaboration with the Filipino community and a framework for future community‐engaged cancer prevention efforts. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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33. Feasibility, acceptability and effectiveness of a culturally informed intervention to decrease stress and promote well-being in reservation-based Native American Head Start teachers.
- Author
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Wilson, Deborah H., German, Danielle, Ricker, Adrian, Gourneau, Hilary, Hanson, Ginger C., Mayhew, Justin, Brockie, Teresa N., and Sarche, Michelle
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- *
SCHOOL principals , *NATIVE Americans , *MENTAL health services , *WELL-being , *NATIVE American reservations , *STRENGTH training - Abstract
Background: While benefiting from strong cultural ties to family, land and culture Native Americans residing on reservations experience psychological distress at rates 2.5 times that of the general population. Treatment utilization for psychological health in reservation-based communities is low with access to culturally appropriate care lacking. Evidence suggests that for mental health treatment, Native Americans prefer culturally informed care that respects Native perspectives on health and well-being. Methods: To decrease stress and promote well-being in tribal Head Start teachers we adapted and implemented a culturally focused intervention within a community-based participatory research framework using mixed methods. Feasibility and acceptability of the adapted 5-session curriculum was tested in a single arm intervention study with a sample of 18 teachers on the Fort Peck Reservation. Participants completed surveys at baseline and upon completion of the intervention. Within session observations and two post-intervention focus groups (n = 8, n = 10) were conducted to elaborate and explain the quantitative results eliciting participant experience of intervention effectiveness and feasibility, acceptably and appropriateness. Implementation outcomes were assessed quantitatively using the Acceptability of Intervention, Intervention Appropriateness, and Feasibility of Intervention measures. Results: Quantitively, attendance rate overall was 93% with no dropouts. Pretest/posttest surveys were analyzed using t-tests and Hedges g to measure effect size. Contrary to our hypothesis, self-perceived stress showed a small positive effect size, indicating that participants were more stressed post intervention. However, depression decreased, with tribal identity and resilience showing positive effect sizes. Content analysis for the qualitative data collected within session observations and post intervention focus groups revealed how lifetime traumas were affecting participants, providing some explanation for the increase in stress. Teachers reported that the sessions helped their psychological health and well-being, supporting feasibility of future interventions. Acceptability scored highest with a mean (SD) of 4.25 (.84) out of 5, appropriateness 4.18 (.86) and feasibility 4.06 (.96) supporting intervention to be acceptable, appropriate, and feasible. Conclusion: Utilizing a culturally based intervention to buffer stress and support the well-being of reservation-based teachers showed promise in helping them recognize their cultural strengths, stress, and need for ongoing support. Implementation outcomes show that intervention scale-out is feasible. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
34. Exploring What Influences Heterosexual College Men and the Practice of Safe Sex: The Power of Stigma and Community.
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Breny, Jean M, Joseph, Marcelin, Robledo, David, Rondeau, Dez, D'Haity, Woodly, Mucha, John, and Zapata, Peter
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PREVENTION of sexually transmitted diseases , *HIV prevention , *CHLAMYDIA , *PSYCHOLOGY of college students , *GONORRHEA , *FOCUS groups , *ATTITUDE (Psychology) , *RESEARCH methodology , *SOCIAL stigma , *MEDICAL screening , *SAFE sex , *COMMUNAL living , *DESCRIPTIVE statistics , *HEALTH promotion - Abstract
The college student population is among the highest risk group for contracting sexually transmitted infections (STIs) such as gonorrhea, chlamydia, and HIV. Safe sex practices, which are intended to mitigate risks associated with sexually transmitted infections, are often negated in the population of heterosexual college students. Historically, research on safe sex practices has shown that the burden of behavior change and the focus on educational efforts historically fall onto the female population. There is little published on how safe sex education for males impacts attitudes and behaviors towards safe sex practices. This community-based participatory research (CBPR) project explored heterosexual college male attitudes and behaviors about safe sex responsibilities with the goal of creating effective health promotion messages to increase safer sex. The research team comprised almost entirely of undergraduate male students, which strengthened the design and translation of results to practice. A mixed methods design was employed utilizing both focus groups and surveys as data collection (n=121). Results showed that young men are still prioritizing pregnancy prevention over disease contraction and/or testing, and relying on female partners to initiate safe sex. Implications for health promotion practice efforts on college campuses include: male-led peer education programming and support and messaging around screening and prevention of STIs. [ABSTRACT FROM AUTHOR]
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- 2023
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35. New Collaborative Research on Suicide Prevention, Practice, and Policy With American Indian and Alaska Native Communities Holds Promise for All Peoples.
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Barlow, A., Haroz, E. E., O'Keefe, V. M., Brockie, T., Manson, S. M., Allen, J., Wexler, L., Buchwald, D., Rasmus, S., Goklish, N., Ivanich, J., Stifter, M., and Cwik, M.
- Subjects
- *
NATIVE Americans , *HEALTH policy , *SUICIDE prevention , *ALASKA Natives , *PUBLIC health , *INTERPROFESSIONAL relations , *RESEARCH funding , *MEDICAL research , *HEALTH promotion - Abstract
Youth suicide is increasing in the United States, with deaths among younger people of color driving this upward trend. For more than four decades, American Indian and Alaska Native (AIAN) communities have suffered disproportionate rates of youth suicide and years of productive life lost compared to other U.S. Races. The National Institute of Mental Health (NIMH) recently funded three regional Collaborative Hubs to carry out suicide prevention research, practice, and policy development with AIAN communities in Alaska and rural and urban areas of the Southwestern United States. The Hub partnerships are supporting a diverse array of tribally-driven studies, approaches, and policies with immediate value for increasing empirically driven public health strategies to address youth suicide. We discuss unique features of the cross-Hub work, including: (a) long-standing Community-Based Participatory Research processes that led to the Hubs' innovative designs and novel approaches to suicide prevention and evaluation, (b) comprehensive ecological theoretical approaches that contextualize individual risk and protective factors in multilevel social contexts; (c) unique task-shifting and systems of care approaches to increase reach and impact on youth suicide in low-resource settings; and (d) prioritization of strengths-based approaches. The work of the Collaborative Hubs for AIAN youth suicide prevention is generating specific and substantive implications for practice, policy, and research presented in this article at a time when youth suicide prevention is a dire national priority. Approaches also have relevance for historically marginalized communities worldwide. [ABSTRACT FROM AUTHOR]
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- 2023
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36. Elevating community‐driven socioecological participation and action: A case study with Black youth.
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Louder, Ceewin N., Meyer, Marisol L., del Rey, Gabrielle M., and Franklin, Alexis R.
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BLACK youth , *SOCIAL scientists , *COMMUNITY-based participatory research , *DOCTORAL students , *HEALTH programs - Abstract
Context is important when considering how racism acts to harm Black youth. Hence, social scientists developed socioecological theories that consider both the individual and the context(s) which shapes them. We used these theories to make sense of the challenges facing Black youth and identify points for intervention. However, these theories were rarely shared with community participants. Theory, at its core, is a way to make sense of the world. Theory shared in an age‐appropriate manner can help youth make sense of their experiences in a way that promotes psychological wellness. This paper describes the intentional sharing of socioecological theory with community members engaged in two community‐based mental health programs. Our team has collaborated closely with community stakeholders to implement and iteratively improve these programs. This first‐person account presents the doctoral students' experiences in engaging community members in using socioecological theory to improve the programs with which they have identified as useful to their community. The article underscores the importance of elevating community voices when engaging in community‐based research and how that engagement is more fundamental as programs become well‐established. Highlights: Community‐based participatory research (CBPR) encourages a more equitable research process.Together, CBPR and socioecological theories contextualize the lived experiences of Black youth.The socioecological theory presented in an age‐appropriate fashion inspired youth‐driven action.Revised curriculums of both CBPR programs reflect this salient interest in community engagement.Ongoing discussion with community members is essential in ensuring CBPR interventions stay relevant. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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37. "Give up your mic": Building capacity and sustainability within community‐based participatory research initiatives.
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April, Keisha, Stenersen, Madeline R., Deslandes, Maguena, Ford, Taylor C., Gaylord, Patricia, Patterson, Jacqúese, Wilson, Beresford, and Kaufman, Joy S.
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- *
CAPACITY building , *COMMUNITY-based participatory research , *MENTAL health services , *SUSTAINABILITY , *CHILDREN'S health - Abstract
Community‐based participatory research (CBPR) partnerships strive to promote community capacity building and sustainability, yet initiatives often suffer when grants or relationships with academic partners end. To address these concerns, researchers hoping to develop truly sustainable CBPR partnerships should consider factors that promote the development of community capacity and, ultimately, independence. In this first‐person account, using perspectives gathered from FAVOR, a Connecticut‐based family‐led advocacy organization and an academic researcher, we examine the practices and experiences of the members of a CBPR partnership focused on using community voice to inform changes in the state's children's behavioral health system of care. These practices ultimately led to FAVOR developing the necessary skills to assume full ownership of the community data‐gathering initiative, ensuring that the initiative would be sustained. Through the perspectives of five FAVOR staff and an academic researcher, we describe the factors that contributed to the organization being able to develop the capacity to independently continue their community data‐gathering initiative, including description of the training process and staff members' perspectives on training, autonomy, community value, and lessons learned. We use these stories and experiences to provide recommendations for other partnerships striving to promote capacity building and sustainability through community ownership of the research process. Highlights: Community‐based participatory research (CBPR) should engender capacity‐building and sustainability.CBPR initiatives face sustainability challenges after research partnerships and funding ends.FAVOR's Community Conversations is a unique example of a community‐sustained CBPR initiative.Through the partnership's intentional planning, FAVOR assumed ownership of the research process.CBPR partners should co‐develop a plan to achieve community ownership at partnership outset. [ABSTRACT FROM AUTHOR]
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- 2023
- Full Text
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38. Differences in mobile food market customer outcomes between 2019 and 2021.
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Horning, Melissa L., Bell, Adrianna, Porter, Leah, Wagner, Stephanie, Alver, Bonnie, and Kamdar, Nipa
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FOOD industry , *VEGETABLES , *ECONOMIC impact , *CONFIDENCE intervals , *CROSS-sectional method , *FOOD security , *FOOD consumption , *NUTRITION counseling , *CONSUMER attitudes , *PUBLIC health , *SURVEYS , *SELF-efficacy , *FRUIT , *SHOPPING , *RESEARCH funding , *LOGISTIC regression analysis , *ODDS ratio , *TELEMEDICINE - Abstract
Objectives: To evaluate the outcomes of increasing mobile market service from mostly biweekly in 2019 to weekly in 2021. Design: Repeated, cross‐sectional customer intercept surveys. Sample: Mobile market customers in Summers 2019 (N = 302) and 2021 (N = 72). Intervention: Mobile food markets bring affordable, high‐quality foods to communities that lack such access. Measures/analysis: Outcomes included food security, fruit/vegetable intake, and food‐related characteristics and behaviors. General linear and logistic regression models were used to assess associations between outcomes and survey year and length of mobile market shopping. Models were adjusted for economic assistance use, race, and ethnicity. Results: No outcomes were significantly different between 2019 (with mostly biweekly service) and 2021 (with weekly service). Length of mobile market shopping (e.g., >2 years, 1–2 years, etc.) was positively associated with affordable, quality food access (β = 0.20, SE = 0.10, p =.03) and fruit/vegetable intake (β = 0.28, SE = 0.08, p <.001) as well as lower odds of food insecurity in the last 12 months (aOR = 0.79, 95% CI = 0.64, 0.99). Conclusions: Despite COVID‐19 interrupting scheduled market service, the length of time that a survey respondent identified as a full‐service mobile market customer was associated with higher food access and fruit/vegetable intake and reduced food insecurity odds. These findings suggest promise and encourage further evaluation. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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39. Application of the Community-based Participatory Research in Autism Spectrum Disorder: A Scoping Review
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Chen, Jiayi, Yao, Dazhi, Lin, Shuanglan, Yuan, Shuai, Wang, Mian, Wu, Hongmei, and Zhang, Quanzhi
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- 2024
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40. Voices and challenges of marginalized and vulnerable groups in urban informal settlements in Nairobi, Kenya: building on a spectrum of community-based participatory research approaches
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Robinson Karuga, Caroline Kabaria, Ivy Chumo, Linet Okoth, Inviolata Njoroge, Lilian Otiso, Nelly Muturi, Jiban Karki, Laura Dean, Rachel Tolhurst, Rosie Steege, Kim Ozano, Sally Theobald, and Blessing Mberu
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CBPR ,informal settlements ,Kenya ,marginalized ,slums ,urbanization ,Public aspects of medicine ,RA1-1270 - Abstract
Urbanization is rapidly increasing across Africa, including in Nairobi, Kenya. Many people, recent migrants and long-term residents, live within dense and dynamic urban informal settlements. These contexts are fluid and heterogeneous, and deepening the understanding of how vulnerabilities and marginalization are experienced is important to inform pointed action, service delivery and policy priorities. The aim of this paper is to explore vulnerabilities and marginalization within Korogocho and Viwandani informal settlements in Nairobi and generate lessons on the value of a spectrum of community based participatory research approaches for understanding health and well-being needs and pinpointing appropriate interventions. In the exploratory stages of our ARISE consortium research, we worked with co-researchers to use the following methods: social mapping, governance diaries, and photo voice. Social mapping (including the use of Focus Group Discussions) identified key vulnerable groups: marginalized and precarious child heads of households (CHHs), Persons with disability who face multiple discrimination and health challenges, and often isolated older adults; and their priority needs, including health, education, water and sanitation. The governance diaries generated an understanding of the perceptions of the particularly vulnerable and marginalized informal settlement residents regarding the various people and institutions with the power to influence health and wellbeing; while photo voice highlighted the lived experiences of vulnerability and marginality. Understanding and responding to fluid and intersecting marginalities and vulnerabilities within growing urban informal settlements is particularly critical to achieving inclusive urbanization, where no one is left behind, a theme central to the Sustainable Development Goals and Kenya’s Vision 2030.
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- 2023
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41. Development of a curriculum and training program for community health promoters in vulnerable communities in Puerto Rico.
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Morales-Torres, Luisa, Velez-Maldonado, David A., Rosario, Fernando J., Marzan-Rodriguez, Melissa, and Jimenez-Chavez, Julio
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The Community Training Institute for Health Disparities (CTIHD) designed a curriculum for a community health promotion program to provide training and enable community members to facilitate community action by empowering individuals with health education, knowledge, and skills to respond to community health needs, specifically to vulnerable communities in Puerto Rico which had already being affected by natural disasters, the COVID-19 pandemic, and migration. A problem-based curriculum design that integrates a competency-based learning model, which included the creation and development of two courses: Introduction to Community Health Promotion and Community Wellness & Health Promotion. Each course consisted of 10 sessions lasting three hours per session. The assessment per session included a pre- and post-test and overall evaluation of the session, and a discussion or practice exercise at the end of the session. Descriptive statistics (frequencies and percentage) were performed to develop the profile of community participants. Central tendency measures (mean and median), and dispersion measures (variance and standard deviation) were used to describe the scores. Twelve (12) community leaders from different southern municipalities of Puerto Rico were recruited. Of these, nine completed the first course and eight completed the second (75% retention rate for Course 1 and 67% retention rate for Course 2). An 18% (difference of 1.2) increase in knowledge was obtained for Course a and a 16% (difference of 0.85) for Course 2. This curriculum enhances communities’ resources, providing their leaders with the necessary competencies to impact health behavior, promote prevention, and become a health promoter within their communities. [ABSTRACT FROM AUTHOR]
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- 2023
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42. Cancer Education for High School Students in the Northwest Arctic Increases Knowledge and Inspires Intent to Share Information and Reduce Cancer Risk.
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Cueva, Katie and Schmidt, Jennifer
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Culturally appropriate cancer education is an opportunity to reduce health inequities in cancer. This manuscript describes the outcomes of piloting cancer education for youth in the Northwest Arctic region of Alaska. The project began due to community concerns, was focused through sharing circles conducted in the region, and was guided by a community advisory board. The project was based on the principles of Community Based Participatory Action Research (CBPAR), honored Indigenous Ways of Knowing, and was grounded in Empowerment Theory. In response to community requests, eleven cancer education lessons were developed for young people in the Northwest Arctic. Several lessons were piloted in spring 2022. Each participant was invited to complete a pre-lesson and a post-lesson survey. A total of 113 surveys were completed from five different lessons: 66 pre-lesson surveys and 47 post-lesson surveys. Respondents' mean cancer knowledge scores were significantly higher after the Cancer Basics lesson. On 98% of post-lesson surveys, respondents said they planned to share cancer education messages such as staying tobacco-free and increasing physical activity with others, including their family, friends, and community members. On 93% of the post-lesson surveys, respondents indicated they planned to make changes to reduce their own personal cancer risk, including by staying tobacco-free, eating healthier, and increasing physical activity. "Cancer is serious, and something we should start talking about". [ABSTRACT FROM AUTHOR]
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- 2023
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43. Building on Community Research Partnerships and Training Students in a Multi-Phase Community-Based Participatory Research Study With Young Women of Cambodian Heritage in Massachusetts.
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Nelson-Peterman, Jerusha, Sibeko, Lindiwe, Mouth, Ronnie, and Cordeiro, Lorraine S.
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SOCIAL support , *FOOD security , *WOMEN , *CULTURAL pluralism , *HEALTH status indicators , *DIET , *PREGNANT women , *MENTORING , *UNDERGRADUATES , *PREGNANCY outcomes , *COMMUNITY-based social services , *INTERPROFESSIONAL relations , *ACTION research , *REFUGEES , *STUDENTS , *SUPERVISION of employees - Abstract
Refugees bring significant economic and cultural benefits to communities and yet face elevated risk of chronic disease and barriers to good health in the U.S. Community-based participatory research (CBPR) can benefit refugee communities and provide training/mentoring opportunities for students. The Cambodian Women's Health Study was a four-phase, multi-year CBPR university–community collaboration with the Massachusetts Cambodian community that focused on health, nutrition, pregnancy, and food security among primarily young women of Cambodian heritage ages 15–30 years old. Phase 1 was a focus group discussion (FGD, n = 4) and cross-sectional survey (n = 56) with pregnant women. Phase 2 was a cross-sectional survey (n = 107) with nonpregnant women. Phase 3 was a series of FGD (seven FGD, n = 38) with women. Phase 4 was a student-led translational nutrition intervention (three classes) with women (n = 11) and men (n = 10). The study design included compensation and support for the community partner and included structured mentoring of students (six graduates, eight undergraduates) in CBPR methods, adult learning, and cultural humility. Benefits to the community agency included enhanced research capacity, including supervising student research assistants, and robust compensation. Benefits to students included intensive mentoring and training. Successes included cost-effectiveness and strong recruitment and experiences with participants. Challenges included issues with student-led recruitment and organization that required additional mentoring and reflection. To work toward socially just and equitable research and interventions, CBPR collaborative efforts should include intentional meaningful compensation and community capacity-building as well as structured mentoring and training for student researchers and should build on existing work and relationships within communities. [ABSTRACT FROM AUTHOR]
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- 2023
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44. Relationship-building to develop an Indigenous community-based epidemiological study investigating developmental resilience factors among children with prenatal substance exposure.
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Russette, H. C., Graham, N., Swanson, S., and Semmens, E. O.
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SUBSTANCE abuse prevention , *WELL-being , *HEALTH risk assessment , *COMMUNITY health services , *PRENATAL exposure delayed effects , *HUMAN services programs , *PSYCHOSOCIAL factors , *INTERPERSONAL relations , *INTERPROFESSIONAL relations , *RESEARCH funding , *INDIGENOUS peoples , *PSYCHOLOGICAL resilience , *RURAL population , *HEALTH promotion , *TRANSLATIONS - Abstract
Tribal Nations experience substance misuse at high rates often attributed to historical and contemporary traumas. In response, several Tribal Nations are addressing these issues through efforts to promote recovery and prevention to substance misuse. Study objectives were to partner with a Tribal Nation to develop a study to explore factors that contribute to the wellbeing of families to children with prenatal substance exposure and disseminate findings that can be translated back into the community. We applied Community-based participatory research (CBPR), strengths-based, and community-driven approaches during this two-year study development phase. We experienced challenges and identified solutions to partnering with one Tribal Nation on an epidemiological mixed-methods study centered on families with children that have prenatal substance exposure. Key inputs were becoming familiarizing with the community setting, structural supports for CBPR research, incorporating Indigenous CBPR principles, and developing a Community Advisory Team. We successfully collaborated with the Confederated Salish Kootenai Tribes Early Childhood Services program to develop a robust study design and a dissemination plan to ensure translation of study findings to the community. The robust study design consisted of common themes specific to a highly stigmatized study population, substance-abusing pregnant women, to protect participant confidentiality. Research alignment with community goals, allotting meaningful time to develop a research partnership, and incorporating culturally sensitive and community-relevant measures contributed to the successful development of an effective and rigorous study to better serve the Tribal Nation on addressing substance misuse. [ABSTRACT FROM AUTHOR]
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- 2023
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45. Lessons learned in the practice of community-based participatory research with community partner collaboration in study design and implementation: the community scientist model.
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Morrell, Megan A., Willis, Tabitha R., Brown, Denisha R., O'Brian, Catherine A., Post, Sharon L., Woloschak, Gayle E., Bonini, Marcelo G., Paunesku, Tatjana, Popovic, Jelena, Manning, Tarneka M., Henley, Candace, Girotti, Jorge, Rogers, Rosemarie, Velásquez, Carmen, López, José, Glenn, Joanne, and Simon, Melissa A.
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COMMUNITY-based participatory research ,COMMUNITIES ,COMMUNITY involvement ,EXPERIMENTAL design ,ADVISORY boards - Abstract
Engagement of community participation is an innovative driver of modern research. However, to benefit the communities being studied, it is imperative to continuously evaluate ethical considerations, the relationship dynamic between researchers and community members, and the responsiveness of research teams to the needs and preferences of communities. Northwestern University's Center for Health Equity Transformation founded a community scientist program in 2018 that implemented a study using the Community-Based Participatory Research (CBPR) model. This project is an ongoing study of heavy metal exposure by geographic location in Chicago. Community scientists from various backgrounds, communities, and organizations formed an advisory panel, partnering with the cancer research team. This commentary describes lessons learned in structuring meaningful community involvement and benefit in CBPR, with a focus on three lessons learned that relate to ethics, relationships, and responsiveness. Our findings lay new groundwork for iteratively shaping best practices in CBPR. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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46. Examining Community Engagement Research Strategies Used in Flint, Michigan: The Church Challenge.
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Key, Kent, Calvin, Kahlil, Jordan, Tamara, Sneed, Rodlescia S., Bailey, Rev. Sarah, Jefferson, Bishop Bernadel, Brewer, Allysoon, Vincent-Doe, Ariel, Scott, Jamil B., Saunders, Rev. Patrick, and Johnson-Lawrence, Vicki
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AFRICAN American churches ,COMMUNITY-based participatory research ,FLINT water crisis, Flint, Michigan, 2014-2019 ,COMMUNITIES ,COMMUNITY churches - Abstract
Background: The ways in which researchers may need to adapt traditional community-based participatory research engagement strategies during ongoing community trauma are understudied. We describe our efforts to engage the Flint, Michigan community in community-based participatory research in the aftermath of the Flint Water Crisis. Objectives: This manuscript describes 1) recruitment strategies selected before the Flint Water Crisis, 2) engagement lessons learned in the context of the Flint Water Crisis, and 3) barriers and facilitators encountered while engaging African American churches. Methods: Researchers collaborated with community partners to engage and recruit a traumatized Flint community into the Church Challenge, a multilevel intervention to reduce chronic disease burden. Lessons Learned: Recruitment and engagement strategies must be flexible, innovative, and may require nontraditional methods. Conclusions: Flexibility and adaptability are crucial for engaging with a traumatized community. Community-based participatory research work in traumatized communities must acknowledge and respond to community trauma to be successful. [ABSTRACT FROM AUTHOR]
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- 2023
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47. Photovoice
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Sandhya, R. and Hema, V.H.
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- 2022
48. A Community-Engaged Process for Adapting a Proven Community Health Worker Model to Integrate Precision Cancer Care Delivery for Low-income Latinx Adults With Cancer.
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Wood, Emily H., Leach, Maria, Villicana, Gerardo, Goldman Rosas, Lisa, Duron, Ysabel, O'Brien, Dale G., Koontz, Zachary, and Patel, Manali I.
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TUMOR treatment , *HISPANIC Americans , *GROUNDED theory , *COMMUNITY health services , *INDIVIDUALIZED medicine , *MEDICAL care , *EVIDENCE-based medicine , *INTERVIEWING , *COMPARATIVE studies , *RESEARCH funding , *POVERTY , *CANCER patient medical care , *ADULTS - Abstract
Introduction: Disparities in precision cancer care delivery among low-income Latinx adults are well described. In prior work, we developed a community health worker-led goals of care and cancer symptom assessment intervention. The objective of this study was to adapt this intervention for a community setting, incorporating precision cancer care delivery. Methods: We used a two-phased systematic approach to adapt an evidence-based intervention for our community. Specifically, we used the Reach, Effectiveness, Adoption, Implementation, and Maintenance (RE-AIM) framework to identify barriers and facilitators to precision cancer care delivery via 1-hr interviews with Latinx adults with cancer, Latinx caregivers, community leaders, primary care and oncology clinicians, and community health workers. Interviews were recorded, transcribed, and analyzed using the constant comparative method and grounded theory analysis. Phase 2 involved interviews with key community advisors using the Expert Panels Method to decide on final adaptations. Results: Using this community-engaged approach, we identified specific intervention adaptations to ensure precision cancer care delivery in a community setting, which included: (a) expansion of the intervention inclusion criteria and mode of delivery; (b) integration of low-literacy precision cancer care intervention activities in Spanish in collaboration with community-based organizations; (c) ensuring goals reflective of patient and community priorities. Conclusions: This systematic and community-engaged approach to adapt an intervention for use in delivering precision cancer care strengthened an evidence-based approach to promote the needs and preferences of patients and key community stakeholders. [ABSTRACT FROM AUTHOR]
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- 2023
- Full Text
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49. Creating the Current and Riding the Wave: Persistence and Change in Community-Engaged Health Sciences Research.
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Haapanen, Krista A., London, Jonathan K., and Andrade, Karen
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COMMUNITY involvement , *PUBLIC health research , *COMMUNITIES , *SCHOOL attendance , *ENVIRONMENTAL health , *ORGANIZATIONAL structure - Abstract
Recent decades have seen considerable increases in funding and support for community-engaged research (CER) in the health sciences, including the introduction of community engagement requirements into federally funded research infrastructure programs. This paper asks why, despite these supports and incentives, even the best-intentioned researchers and research organizations may struggle to design, implement, and sustain successful community engagement strategies. This question is examined using an exploratory case study of an environmental health sciences research center whose strategies were influenced in part by a requirement by the funder to incorporate community engagement into its research activities. This study utilizes multiple sources of qualitative data collected between the research center's second and fifth years of operation, including participant observation, interviews, and focus groups. The analysis employs an organizational perspective, yielding insights into the factors hindering and facilitating the development of practices that integrate community perspectives and control into academic structures. The findings point to an ongoing dialectic between support for innovative community engagement practices and persistence of conventional academic structures. We highlight the interconnected effects of environmental influences, organizational structures, and individual agency on the development of innovative community engagement practices. The implications for future research and practice are discussed. [ABSTRACT FROM AUTHOR]
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- 2023
- Full Text
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50. It's a sprint, not a marathon: a case for building short-term partnerships for community-based participatory research.
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Radonic, Lucero, Jacob, Cara, Kalman, Rowenn, and Lewis, E. Yvonne
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HUMAN research subjects , *PATIENT selection , *RESEARCH methodology , *FEMINISM , *COMMUNITIES , *INTERVIEWING , *MEDICAL care research , *WATER supply , *INTERPROFESSIONAL relations , *PHOTOGRAPHY , *WATER pollution , *DECISION making , *THEMATIC analysis - Abstract
Academic calendars and university timelines set an urgent pace for researchers, which can hinder the establishment of long-term community partnerships. Given community-based participatory research's (CBPR) emphasis on community-led research, time constraints can inhibit academic researchers' commitments to collaborative methodologies and participatory research. This article considers how CBPR can be adapted for shorter-term engagements while still producing mutually beneficial research. In doing so, we contribute to the existing corpus on rapid assessment methodologies, characterized for adopting methods traditionally practiced over a longer duration to shorter time frames. We review the successes and limitations of a CBPR project executed within the timespan of six months in Flint, Michigan. In the case discussed, photo-voice enabled the inclusion of diverse ways of knowing, horizontal partnerships, reciprocal learning, and an accessible disemmination format within a CBPR framework. In conclusion we assert that there is value in short-term CBPR, especially for emergent issues where there is a need for rapid, responsive methodologies. However, short-term CBPR is a sprint, rather than a marathon; although shorter in duration, it is more intensive. It requires significant methodological commitments, flexibility, and an intensified workload for those involved. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
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