764 results on '"CANCER in adolescence"'
Search Results
2. Characterizing and Addressing Financial Toxicity in AYAs With Cancer
- Author
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Patient Advocate Foundation and Melissa Beauchemin, Assistant Professor of Nursing
- Published
- 2024
3. Religious-spiritual coping in family caregivers of Brazilian children and adolescents with cancer
- Author
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Rossato, Lucas, Sena, Bruna Thaís Salgado, Ullan, Ana M, and Scorsolini- Comin, Fabio
- Published
- 2023
4. Tailoring Solution-Focused Brief Therapy for Adolescents and Young Adults with Cancer: A Qualitative Investigation.
- Author
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Zhang, Anao, DuVall, Adam S., Franklin, Cynthia, and Kim, Johnny S.
- Subjects
- *
SOLUTION-focused therapy , *CANCER in adolescence , *MENTAL health services for teenagers , *CANCER in young adults , *MENTAL health of young adults , *SERVICES for cancer patients , *PSYCHIATRIC social work , *PSYCHOTHERAPY patients - Abstract
Solution-focused brief therapy (SFBT) is an empirically-supported psychotherapeutic intervention in treating mental health issues in the general population. When being delivered to adolescents and young adults (AYAs) diagnosed with cancer, specific techniques and skills of SFBT need to be tailored to meet the unique bio-psycho-social challenges of the AYA cancer population. Using a patient-centered approach, our team interviewed 14 AYAs with cancer who received SFBT for cancer (SFBT-C) to inform the tailoring and refinement of the existing SFBT intervention specifically for the AYA cancer population. Themes emerged within three broad categories that informed the tailoring and refinement of SFBT for AYAs with cancer, i.e., general experiences, strengths, and weaknesses of SFBT-C. AYAs with cancer found SFBT-C overall positively different from other approaches. Strengths include SFBT-C's collaborative nature, using positive emotion as an important change mechanism, and a good balance between being relevant to cancer and not focusing too much on their cancer. Areas of improvement include assignment flexibility and different strategies to address resistance. The findings of this paper significantly inform the delivery of SFBT-C to AYAs with cancer using patient-centered feedback and input. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
5. The Diagnosis and Treatment of Osteosarcoma and Ewing's Sarcoma in Children and Adolescents.
- Author
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Zarghooni, K., Bratke, G., Landgraf, P., Simon, T., Maintz, D., and Eysel, P.
- Subjects
OSTEOSARCOMA in children ,EWING'S sarcoma ,TEENAGERS ,BONE tumor diagnosis ,OSTEOSARCOMA ,CANCER diagnosis ,DIAGNOSIS ,CANCER treatment ,DISEASES in teenagers ,CANCER in adolescence ,CHILDHOOD cancer - Abstract
Background: Osteosarcoma and Ewing's sarcoma in children and adolescents require age-specific interdisciplinary diagnosis and treatment to achieve optimal therapeutic outcomes. Methods: The diagnosis and treatment of malignant bone tumors in childhood and adolescence are presented in the light of publications retrieved by a selective search, pertinent guidelines, and the authors' extensive experience in an interdisciplinary cancer center. Results: Bone sarcomas make up approximately 5% of all malignancies in children and adolescents; the most common types are Ewing's sarcoma and osteosarcoma. Patients are often not referred to a specialized center until long after the onset of symptoms, as they and their physicians rarely consider the possibility of a bone tumor, and the symptoms are often trivialized. Bone pain of unknown origin, swelling, and functional limitations should be investigated with conventional x-rays. Lesions of unclear origin should be biopsied after a meticulous clinical and radiologic evaluation. Multimodal treatment consists of neo - adjuvant chemotherapy, limb-preserving resection if possible, and radiotherapy where indicated. In multicenter studies, patients with osteosarcoma achieve event-free survival in 64% of cases if their disease is localized, and 28% if it is metastatic; the corresponding figures for patients with Ewing's sarcoma are 80% and 27%, respectively. Conclusion: With implementation of the current treatment recommendations, most children and adolescents with malignant bone tumors can be treated successfully with curative intent. These patients should be referred to a sarcoma center for diagnosis and treatment. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
6. Incidence and trends of hepatic cancer among children and adolescents in the United States from 2000 to 2017: Evidence from the Surveillance, Epidemiology, and End Results registry data.
- Author
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Li, Peiyi, Kong, Yujia, Guo, Jing, Ji, Xu, Han, Xuesong, and Zhang, Bo
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LIVER cancer ,LIVER tumors ,CHILDHOOD cancer ,CANCER in adolescence ,EPIDEMIOLOGY of cancer ,SOCIODEMOGRAPHIC factors ,ETHNICITY - Abstract
Objective: Primary liver tumors are rare pediatric malignancies. Knowledge of the epidemiology of pediatric liver tumors is limited. This study aims to present the national incidence trends of pediatric liver tumors over 18 years, according to sociodemographic and histological subtype variation. Methods: The Surveillance, Epidemiology, and End Results registry was queried from 2000 to 2017 for 1,099 patients between ages 0 and 19 with liver tumors. Age-standardized incidence rates by age, sex, and race/ethnicity were examined among histological subtypes. Annual percentage change (APC) was calculated via joinpoint regression for various sociodemographic and histotype subgroups. Results: An increase of age-adjusted incidence rate of pediatric hepatic cancers was observed between 2000 and 2017 (APC, 1.7% [95% confidence interval or CI: 0.6%–2.8%], p-value = 0.006), which may likely attribute to the increasing incidence of hepatoblastoma and mesenchymal tumors (APC, 2.5% [95% CI: 1.1%–3.8%], p-value = 0.001). The incidence trend of hepatocellular carcinoma remained stable in the study period. The non-Hispanic Asian/Pacific Islander children and adolescents had a higher risk of hepatic tumors (incidence rate ratio or IRR, 1.42 [95% CI: 1.16–1.72], p-value = 0.0007) when compared with the non-Hispanic white subgroup, while a non-Hispanic black child was associated with a lower incidence rate (IRR, 0.64 [95% CI: 0.50–0.80], p-value < 0.0001). Significantly lower hepatic tumor incidence occurred in females than males, with an incidence rate ratio of 0.69 (95% CI: 0.61–0.78; p-value < 0.0001). Hepatic tumor incidence was also significantly lower in those aged 1–4 years (IRR, 0.47 [95% CI: 0.40–0.54]; p-value < 0.001) and 5–19 years (IRR, 0.09 [95% CI: 0.08–0.10]; p–value < 0.001) when compared with the youngest age group aged less than 1 year. These significant differences were also detected for the subgroup of hepatoblastoma and mesenchymal liver tumors but less among hepatocellular carcinomas (all p-values less than 0.0001). Conclusion: Continued increasing incidence of pediatric hepatoblastoma and mesenchymal liver tumors was discovered and warranted further investigation. Additional findings include a lower incidence of hepatic cancer among non-Hispanic black individuals and higher incidence of hepatic cancer in non-Hispanic Asian/Pacific Islander, male, and aged 1–4-year children and adolescents. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
7. Recruiting Adolescent and Young Adult Cancer Survivors for Patient-Reported Outcome Research: Experiences and Sample Characteristics of the SURVAYA Study.
- Author
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Vlooswijk, Carla, Poll-Franse, Lonneke V. van de, Janssen, Silvie H. M., Derksen, Esther, Reuvers, Milou J. P., Bijlsma, Rhodé, Kaal, Suzanne E. J., Kerst, Jan Martijn, Tromp, Jacqueline M., Bos, Monique E. M. M., Hulle, Tom van der, Lalisang, Roy I., Nuver, Janine, Kouwenhoven, Mathilde C. M., van der Graaf, Winette T. A., and Husson, Olga
- Subjects
- *
CANCER patients , *CANCER in adolescence , *CANCER in young adults , *POPULATION-based case control , *SURVIVAL analysis (Biometry) - Abstract
Background: Participation of Adolescents and Young Adults with cancer (AYAs: 18–39 years at time of diagnosis) in patient-reported outcome studies is warranted given the limited knowledge of (long-term) physical and psychosocial health outcomes. We examined the representativeness of AYAs participating in the study, to observe the impact of various invitation methods on response rates and reasons for non-participation. Methods: A population-based, cross-sectional cohort study was performed among long-term (5–20 years) AYA cancer survivors. All participants were invited using various methods to fill in a questionnaire on their health outcomes, including enclosing a paper version of the questionnaire, and sending a reminder. Those who did not respond received a postcard in which they were asked to provide a reason for non-participation. Results: In total, 4.010 AYAs (response 36%) participated. Females, AYAs with a higher socio-economic status (SES), diagnosed more than 10 years ago, diagnosed with a central nervous system tumor, sarcoma, a lymphoid malignancy, stage III, or treated with systemic chemotherapy were more likely to participate. Including a paper questionnaire increased the response rate by 5% and sending a reminder by 13%. AYAs who did not participate were either not interested (47%) or did want to be reminded of their cancer (31%). Conclusions: Study participation was significantly lower among specific subgroups of AYA cancer survivors. Higher response rates were achieved when a paper questionnaire was included, and reminders were sent. To increase representativeness of future AYA study samples, recruitment strategies could focus on integrating patient-reported outcomes in clinical practice and involving AYA patients to promote participation in research. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
8. I Have Cancer...What's Next?
- Author
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Elissa Bongiorno and Elissa Bongiorno
- Subjects
- Cancer in adolescence, Tumors in adolescence
- Abstract
Managing a cancer diagnosis can be terrifying at any age. For teens, cancer is a leading cause of death, according to the Centers for Disease Control. This straightforward text discusses risk factors, common types of cancer, and how the disease affects the body. Accessible language, easy-to-read diagrams, and vivid photographs walk readers through screenings and treatments. From diagnosis to remission, this authoritative title tells teens everything they need to know about cancer, and how to fight it.
- Published
- 2022
9. Caring for a Young Person with Cancer : Professional Guidance for Parents and Partners
- Author
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Anne Katz and Anne Katz
- Subjects
- Cancer--Patients--Family relationships, Cancer in adolescence--Patients--Care, Cancer in adolescence, Caregivers
- Abstract
This book is an accessible, sensitive, and evidence-based resource for partners, parents, and other family members navigating the heartache and challenges of caring for a young adult with cancer. When a young person you love is diagnosed with cancer, the impacts on partners and parents is life-altering. In this book, Anne Katz offers her unique perspective as a counselor to help family members as their child or partner goes through diagnosis, treatment, and the years of survivorship. Interweaving clinical practice with evidence-based tips and interventions, each chapter presents the story of a young person with cancer and how the illness impacts those that love them with Dr. Katz providing gentle, targeted advice throughout. The chapters include individuals from diverse backgrounds, such as people across different ages, gender identities, ethnicities, and sexual orientations, as well as reflective questions, with topics covering treatment decision-making, how to care during treatment, letting go, and a resource section pointing readers to where they can seek help. Written by a leading voice in the field of cancer, the stories and advice provided in this book will help all families and partners apply the lessons learnt to their lived experiences. It will be also of interest to health care providers working with these families, such as clinical social workers and nurses.
- Published
- 2022
10. Effective Group Therapies for Young Adults Affected by Cancer : Using Support Groups in Clinical Settings in the US
- Author
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Sarah Kurker and Sarah Kurker
- Subjects
- Young adults--Mental health, Cancer--Patients--Services for, Cancer--Patients--Mental health, Cancer in adolescence, Group counseling, Young adults--Services for
- Abstract
Outlining the unique psychosocial and development issues faced by young adults affected by cancer, this text draws on qualitative data from two pilot studies conducted in the United States to illustrate how the needs of this often-overlooked population can be effectively met via group therapy in clinical settings. Drawing on 25 years of experience as a licensed clinical social worker supporting pediatric and young adult cancer patients and their families, Kurker focuses on the role of the clinician in structuring support group sessions. Chapters draw on patient perspectives to demonstrate effective application of interventions to help adolescents work through trauma associated with a diagnosis of cancer, treatment, recovery and the impacts on their development. Outcomes from these studies also include strategies for selecting support group participants, structuring group activities and securing funding. Effective Group Therapies for Young Adults Affected by Cancer will be a valuable text for oncology social workers and clinicians involved in adolescent support services. In addition, researchers and postgraduate students with an interest in the fields of social work, psychology and adolescent development will find the book of interest.
- Published
- 2021
11. Radiotherapy and the Cancers of Children, Teenagers, and Young Adults
- Author
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Tom Boterberg, Karin Dieckmann, Mark Gaze, Tom Boterberg, Karin Dieckmann, and Mark Gaze
- Subjects
- Cancer in adolescence, Children, Cancer--Radiotherapy, Cancer in children
- Abstract
This new volume in the Radiotherapy in Practice series provides a comprehensive and evidence-based guide to radiotherapy in the management of children and young people with cancer. It explains the roles of the various modalities of treatment available, including image-guided and intensity modulated radiotherapy, brachytherapy, proton beam therapy, and molecular radiotherapy, and aids selection of the most appropriate technique in different situations. Each cancer type in children is explored, including diagnostic investigations, risk stratification, multi-modality approaches to treatment, and decision making with regard to radiotherapy. Specific guidance is given for the planning and prescription of radiotherapy for infants, children, and teenagers. The authors also identify the need for specialist paediatric radiotherapy service provision, and the wider requirements for radiotherapy in children, including consent, immobilisation, anaesthesia, multi-professional team working, and play specialist support. With over 75 colour illustrations, case histories to demonstrate the various approaches, and a carefully selected guide to further reading on each topic, this practical volume will be a valuable resource for physicians and trainees in radiotherapy and clinical oncology, and to nurses, radiographers and other allied health professionals who come into contact with young patients receiving radiotherapy. ABOUT THE SERIES Radiotherapy remains the major non-surgical treatment modality for the management of malignant disease. It is based on the application of the principles of applied physics, radiobiology, and tumour biology to clinical practice. Each volume in the series takes the reader through the basic principles of the use of ionizing radiation and then develops this by individual sites. This series of practical handbooks is aimed at physicians both training and practising in radiotherapy, as well as medical physics, dosimetrists, radiographers, and senior nurses.
- Published
- 2021
12. The education experiences of eight American adolescents in cancer survivorship
- Author
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Erickson, Jeanne, Nunes, Terezhina, and Oancea, Aliz
- Subjects
362.19699 ,Cancer--Patients--Education ,Cancer in adolescence ,Medical care--United States ,Education ,Secondary--United States--Case studies - Abstract
The aim of this thesis is to understand the experiences of eight American high school students who have been diagnosed with cancer. By increasing understanding of the challenges that adolescents in cancer survivorship experience, better support can be identified. The experience of cancer survivorship influences the physical, psychological, and social experiences of patients. As the survival rate of childhood cancers continues to increase, death becomes less likely making the need to maintain educational engagement during survivorship increasingly important. The research questions for this study were designed to address two main gaps in the current field of research. The first research question aims to address how the physical and psychological effects of cancer and treatment impact the participants' engagement with school. The second research question aims to understand the role that school plays for adolescents in cancer survivorship, including how participants experienced supplemental education during and after cancer treatment. This study uses a qualitative research methodology to address the research questions utilizing primarily semi-structured interviews and an adjusted version of the Adolescent Coping Scale. When used in combination with the interviews, the scale provides a picture of what the participants experienced and how they have been able to cope with the challenges they have faced. Interpretive phenomenological analysis was used to provide structure to the interview analysis. The results of this study show that fatigue and a compromised immune system have an impact on school attendance more than other physical effects during cancer treatment. As a result, adolescents are most at-risk of experiencing challenges in educational engagement during treatment. The results of this study also show that the feeling of uncertainty throughout cancer survivorship promotes fear and the feeling of a loss of control. Once treatment ends, fear of relapse is common. Physical and psychological effects were felt to improve as time passed. Another key result of this study is that the cancer experience results in a shift in perspective that becomes incorporated into the formation of identity. Participants feel different from peers as a result of the physical and psychological effects of the cancer experience. The results from the Adolescent Coping Scale indicate that school achievement, relapse and the worsening of physical side effects, and being treated different by peers were common concerns for the participants regarding their school, illness, and social concerns, respectively. Lastly, the participants view supplemental education as successful if it meets their personal academic and physical needs, is implemented consistently, and helps them to feel emotionally supported and socially connected. However, more research is needed that focuses on the implementation of policy at the state and district levels to discern whether this is a common challenge unique to this population of students with a physical or medical disability. The sample available for this research topic is not only limited to an extremely small population, but they are also a highly guarded population, making access for recruitment challenging. However, while generalization is difficult with a study of this size, the evidence collected on the participants' experiences during and after treatment provides valuable data on aspects of supplemental education implementation.
- Published
- 2016
13. The Development and Process Evaluation of PEER: A Camp-based Programme for Adolescents Impacted by Cancer.
- Author
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Patterson, Pandora, McDonald, Fiona E. J., Kelly-Dalgety, Elizabeth, Luo, Aileen, and Allison, Kimberley R.
- Subjects
- *
CANCER in adolescence , *SELF-efficacy , *ACCEPTANCE & commitment therapy , *INTERPERSONAL relations , *RELATIVES , *ADOLESCENT psychology , *QUALITY of life , *PSYCHOLOGICAL distress , *CANCER patients , *MINDFULNESS , *EVALUATION of human services programs , *SATISFACTION , *ADOLESCENT health , *HUMAN services programs , *COMPASSION , *DESCRIPTIVE statistics , *ADOLESCENCE - Abstract
Adolescents impacted by their own or a relative's cancer diagnosis experience significant psychosocial needs. Residential programmes provide opportunities to address these, yet limited evaluation research and unclear reporting of therapeutic and theoretical underpinnings complicate efforts to understand programme effects. This paper reports the development and process evaluation of PEER, a four-day programme with psychosocial (acceptance and commitment therapy, self-compassion) and recreational components for adolescents impacted by their own or a parent/sibling's cancer. Staff (N = 51) and adolescents (N = 148, 12–17 years) who attended a PEER programme participated in this evaluation. The evaluation of fidelity included measures of facilitators' confidence to deliver content, adherence to the programme manual, quality of programme delivery, participants' engagement, and overall satisfaction. The process evaluation included assessment of quality of life, distress, and process variables (psychological flexibility, mindfulness, self-compassion) at pre-programme, post-programme, and two-month follow-up, as well as qualitative feedback from participants and facilitators. Moderation analyses identified predictors of clinically significant improvement in psychosocial outcomes. The programme was delivered with good fidelity, and participants reported high satisfaction and engagement. Approximately 15–20% of participants experienced clinically-meaningful improvements in distress and quality of life; those who reported higher distress and lower baseline psychological flexibility, mindfulness and self-kindness experienced greater improvements. Qualitative feedback additionally evidenced the value of peer connection and support. The evaluation evidences PEER's feasibility, acceptability and value for adolescents impacted by cancer, particularly those experiencing greater distress. Its success indicates the potential of the therapeutic approaches used, and for community organisations to develop interventions complementing services offered by healthcare systems. Highlights: A new programme informed by Acceptance and Commitment Therapy and self-compassion was developed for adolescents impacted by cancer. The programme was delivered with high fidelity, and found to be feasible and acceptable for participating adolescents. 15–20% of participants reported clinically-meaningful improvements in distress and quality of life. Those with higher baseline distress and lower psychological flexibility, mindfulness and self-kindness reported greater benefits. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
14. Psychosexual Care of Adolescent and Young Adult (AYA) Cancer Survivors.
- Author
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Reinman, Laura, Coons, Helen L., Sopfe, Jenna, and Casey, Robert
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PSYCHOSEXUAL development ,CANCER in adolescence ,PSYCHOSOCIAL factors ,SEXUAL health ,BIOPSYCHOSOCIAL model ,MULTIDISCIPLINARY practices - Abstract
Adolescent and young adult (AYA) survivors of cancer have diverse psychosocial and medical needs, including those related to fertility and sexual health. Much of the focus of care around issues such as fertility and sexual health tends to be filtered through a biomedical lens. However, it is essential that health care providers assess and support AYA survivors using a biopsychosocial and contextual framework to ensure the most comprehensive and accurate understanding of AYA survivor needs, especially those related to psychosexual health. A trusting relationship between the multi-disciplinary medical team and the AYA survivor that allows for open discussion about the physical and psychosocial components of sexual health is key to providing best care and outcomes. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
15. The lived experience of children and adolescents with cancer.
- Author
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McLoone, Jordana, Wakefield, Claire E., Sansom-Daly, Ursula M., Thornton-Benko, Elysia, Govender, Dinisha, Gabriel, Melissa, Walwyn, Thomas, Signorelli, Christina, Johnston, Karen, and Cohn, Richard J.
- Subjects
CANCER diagnosis ,CANCER in adolescence ,POSTTRAUMATIC growth ,QUALITY of life ,HEALTH behavior ,GENERAL practitioners - Abstract
Background The lived experience of children and adolescents diagnosed with cancer differs greatly from that of the adult cancer patient. A diagnosis of cancer disrupts almost every developmental life stage and continues to affect the child, and potentially their whole family, throughout adulthood. Objective While it is important to recognise the potential for posttraumatic growth, a considerable proportion of children and adolescents will experience poorer psychological, social, educational and quality-of-life outcomes. Parents, particularly mothers, have been shown to experience levels of post-traumatic distress even greater than that of survivors. As such, there exists a critical need to provide family-centred support from diagnosis through to long-term survivorship or bereavement. Discussion Ongoing surveillance, proactive management of chronic health conditions, and health behaviour education are critical to survivors' lifelong wellbeing and can be facilitated locally by general practitioners with support from tertiary healthcare teams in a shared-care arrangement. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
16. Nursing Adolescents and Young Adults with Cancer : Developing Knowledge, Competence and Best Practice
- Author
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Pia Riis Olsen, Sam Smith, Pia Riis Olsen, and Sam Smith
- Subjects
- Cancer in adolescence, Cancer--Nursing
- Abstract
This book describes and explains how caring for adolescents and young adults with cancer (AYA) has developed into what is now a recognized and distinct field of nursing practice. It captures current innovative nursing practices and interventions which have developed over the past 25 years across the globe and are supported by research and evidence achieved in many European and international oncology settings. By outlining and describing educational needs of the AYA cancer nursing profession, this book supports its education and professional development for the nursing profession and serves to develop and disseminate nurses'competencies worldwide. During the last decade, AYA have gained increased attention in healthcare. Today, it is recognized that AYA with cancer have distinct needs that are different to both children and older adults. Young people are in a unique developmental and transitional phase of their lives; thus, their treatment, perspectives and experiences have been addressed in research and the body of knowledge is growing accordingly. Some books are available that describe AYA cancer care, service delivery and aspects of age appropriate care but this volume will be the first to focus on how nurses contribute to AYA cancer care in practice. It will appeal to the AYA clinical nurses in cancer care, as well as to multidisciplinary healthcare professionals and healthcare professionals who support formal nursing education programmes, training and development in practice.
- Published
- 2018
17. Validation of the Adolescent Barriers Questionnaire for use in Brazilian adolescents with cancer.
- Author
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Rebollo de Campos, Débora, Eduardo Paiva, Carlos, Marinho Silvério Brandão, Ana Paula, Ameringer, Suzanne, and Ribeiro Paiva, Bianca Sakamoto
- Subjects
CANCER in adolescence ,PSYCHOMETRICS ,ANALGESICS ,CANCER diagnosis ,CANCER treatment - Abstract
Objective: To translate, culturally adapt, and evaluate the psychometric properties of Adolescent Barriers Questionnaire for use in Brazilian adolescents with cancer aged 12 to 18 years, based on the original American Adolescent Barriers Questionnaire which was designed to measure the extent to which adolescents with cancer have concerns about reporting pain and using analgesics. Methods: The study analyzed the psychometric properties reliability (internal consistency and test-retest) and validity (known groups and convergent) of Adolescent Barriers Questionnaire in adolescents between 12 and 18 years of age with a diagnosis of cancer who were using or who had used analgesic medication (opioid or not) in a pediatric public health institution. It was estimated 64 adolescents as sample size and the research was conclude with 48. Results: Results of pre-test suggest good understanding (content validity index > 0.9). The internal consistency value Cronbach's α was 88%. The convergent validity values ranged between -0.400 and -0.450. Analysis of known groups showed that the instrument discriminated groups of patients with solid vs. hematologic tumors. The intraclass correlation coefficient obtained after retest was 0.863. Conclusion: After the process of translations, validations and analysis of psychometric properties, the Brazilian Portuguese version of Adolescent Barriers Questionnaire could be considered culturally adapted, valid, and reliable for the Brazilian adolescent population with cancer aged 12 to 18 years and it can be useful in practical clinic, offering the health professionals the opportunity to understand which barriers the adolescent with cancer can encounter and offer, thus, all the support to overcome them. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
18. Social isolation and connection in adolescents with cancer and survivors of childhood cancer: A systematic review.
- Author
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Pahl, Daniel A., Wieder, Matthew S., and Steinberg, Dara M.
- Subjects
- *
SOCIAL isolation , *CANCER in adolescence , *CHILDHOOD cancer , *META-analysis , *SOCIAL belonging - Abstract
Introduction: Cancer may cause significant disruptions in normal adolescent development particularly in social domains. Both treatment and survivorship pose challenges to fostering social connections. To better understand these challenges, we conducted a systematic literature review of the experience of social isolation and connectedness in adolescents with cancer and adolescent survivors of childhood cancer.Methods: A systematic review of the scientific literature was conducted following PRISMA Guidelines. Eligible articles included original peer-reviewed research published in English between January 2000 and April 2020 that reported on social domains of patients and survivors of cancer between the ages of 10-21. Initial database search identified 4606 articles with 43 studies meeting inclusion criteria.Results: Results were synthesized into four domains: (1) the prevalence of connectedness/isolation; (2) risk factors associated with social isolation; (3) protective factors against social isolation; (4) the impact of social isolation on psychological health. Overall, adolescent patients and survivors of cancer have satisfactory social connectedness. However, certain subgroups including those with central nervous system tumors are at higher risk of social isolation.Conclusions: In general, adolescent cancer patients and survivors report levels of social connectedness consistent with healthy adolescent population norms. The risk and protective factors identified in this review may help serve as important indicators for psychosocial screening and interventions. These findings are particularly relevant in the COVID-19 era as all adolescents face challenges to social connections and psychosocial development. [ABSTRACT FROM AUTHOR]- Published
- 2021
- Full Text
- View/download PDF
19. Die Young with Me : A Memoir
- Author
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Rob Rufus and Rob Rufus
- Subjects
- Cancer--Patients--Biography, Twin brothers--Biography, Punk rock musicians--United States--Biography, Cancer in adolescence
- Abstract
In the tradition of John Green's The Fault in Our Stars and Me and Earl and the Dying Girl, this incredibly moving and harrowing true story of a teenager diagnosed with cancer is “a resounding affirmation of how music can lift one's spirits beyond gray skies and bad news (Kirkus Reviews).”Punk's not dead in rural West Virginia. In fact, it blares constantly from the basement of Rob and Nat Rufus—identical twin brothers with spiked hair, black leather jackets, and the most kick-ass record collection in Appalachia. To them, school (and pretty much everything else) sucks. But what can you expect when you're the only punks in town? When the brothers start their own band, their lives begin to change: they meet friends, they attract girls, and they finally get invited to join a national tour and get out of their rat box little town. But their plans are cut short when Rob is diagnosed with a rare form of cancer that has already progressed to Stage Four. Not only are his dreams of punk rock stardom completely shredded, there is a very real threat that this is one battle that can't be won. While Rob suffers through nightmarish treatments and debilitating surgery, Nat continues on their band's road to success alone. But as Rob's life diverges from his brother's, he learns to find strength within himself and through his music. Die Young with Me is a “raw, honest picture of the weirdness of growing up” (Marky Ramone) and the story of a brave teen's battle with cancer and the many ways music helped him cope through his recovery.
- Published
- 2016
20. Cancer in Adolescents and Young Adults
- Author
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Archie Bleyer, Ronald Barr, Lynn Ries, Jeremy Whelan, Andrea Ferrari, Archie Bleyer, Ronald Barr, Lynn Ries, Jeremy Whelan, and Andrea Ferrari
- Subjects
- Human beings, Cancer in adolescence, Adulthood, Young adults
- Abstract
This is the second edition of the only book to be devoted exclusively to the total cancer picture in adolescents and young adults (AYA), now expanded from the age range 15-29 to that of 15–39 years. For each of the diverse spectrum of cancers encountered in the AYA group, the epidemiology, natural progression, diagnostic approaches, and treatment options are described, with special emphasis on strategies for early detection and prevention. Comparison is made with management of both younger and older patients, and model programs are presented that address common diagnostic, staging, treatment, and psychosocial shortcomings in the AYA group. Detailed attention is also paid to principles and practices of care, with consideration of psychosocial and quality of life issues, social support systems, rehabilitation, late effects, insurance, and economic aspects of health care, among other topics. The authors make compelling arguments for integrated strategies that allow young adults to benefit from the combined expertise of pediatric and adult oncologists in systems that identify both the complex disease and the social issues specific to this population. The proposed models of care include relationships with other specialties that do not specifically target this age group, i.e., infectious disease, endocrinology, pulmonary medicine, nephrology, gastroenterology, thoracic and abdominal surgery, urology, otolaryngology, and neurosurgery. New patterns of communication are advocated and endorsed as essential for productive interaction involving these specialties. References are extensive and are oriented toward users in pediatric hematology-oncologymedical oncology, radiation oncology, surgical oncology, gynecologic oncology, oncology nursing, psycho-oncology, social work, epidemiology, public health and health services research. The contributing authors are from the United States, the United Kingdom, Canada, Italy, France, Israel, Switzerland and Australia, Germany, Japan and the Netherlands.p>
- Published
- 2016
21. Clear Cell Carcinoma of the Hard Palate in an Adolescent Patient: A Case Report.
- Author
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KARAKIDA, Kazunari, AOKI, Takayuki, TAJIRI, Takuma, TAKAHASHI, Miho, NAKANISHI, Yasuhiro, TAMURA, Masashi, and NAITO, Hiroyuki
- Subjects
SALIVARY gland cancer ,HARD palate ,CANCER in adolescence ,SALIVARY gland diseases ,BIOPSY - Abstract
Clear cell carcinoma is an extremely rare low-grade malignancies occurring in less than 1% of salivary gland tumors. We report a case of clear cell carcinoma of the hard palate in a 15-year-old adolescent patient. She first noticed a palatal tumor at age 9, but the tumor was left untreated for 6 years. We performed incisional biopsy, but no definitive diagnosis was obtained. Excisional biopsy was then performed, and the histopathological diagnosis was clear cell carcinoma of the salivary gland. However, the tumor was exposed at the margin of the surgical specimen; thus, additional excision was performed. Five years after the treatment, no local recurrence or metastasis has been observed. [ABSTRACT FROM AUTHOR]
- Published
- 2020
22. Repeated CTs in childhood linked with increased cancer risk.
- Author
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Johnson, Kate
- Subjects
CANCER in adolescence ,COMPUTED tomography - Abstract
The article focuses on a study that reveals an increased risk of certain cancers in early adulthood associated with exposure to four or more Computed tomography scans before the age of 18.
- Published
- 2023
23. Optimism, psychological well-being & coping in parents of children with cancer
- Author
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Fotiadou, Maria and Langton, Helen
- Subjects
155 ,childhood cancer, oncology, parents, optimism, pessimism, distress ,Cancer in adolescence ,Parenting ,Coping with illness - Abstract
Background: Despite advances in cancer prognosis and increased survival rates for childhood cancer, having a child diagnosed with cancer can be considered one of the most stressful life events in a parent’s life. The adverse psychological impact of childhood cancer on parents has been found to be higher than in any other childhood chronic illness. Parents can find it difficult to adjust and use effective coping strategies to deal with the illness-related demands. Dispositional optimism (i.e. positive outcome expectancies for the future) has become a key theoretical component in positive and health psychological research, aiming to explain adjustment and coping in distressing life situations. However, optimism in the context of caregiving for a child with chronic illness and especially cancer has received little research attention, but may be important as optimistic people tend to show greater psychological adjustment and effective coping. Aims: To identify the characteristics of optimistic parents of children with cancer. To examine the relationship between optimism, anxiety, depression, life satisfaction, coping and subjective health perception in parents of children with cancer and parents of healthy children. Also, to provide a more in-depth understanding of the needs and experiences of parents in relation to their level of optimism/pessimism. Methods: A mixed methodological approach (quantitative and qualitative methods) was adopted to study optimism as well as the impact and the experiences of parents caring for their child with cancer. The mixed method design comprised two phases of data collection and analysis. In Phase I, quantitative methods were used. 100 parents of children with cancer were recruited during attendance at Oncology Out-patients Clinics at a UK regional Cancer Centre. A comparison group of 117 parents of healthy children were also recruited. All parents completed a questionnaire, providing demographic and medical information relating to their child, dispositional optimism, psychological distress, life satisfaction, coping and subjective health perception. Descriptive statistics, unrelated t-tests and x2 tests were used where appropriate to examine differences on optimism, psychological distress, life satisfaction and coping variables between the SG and CG. Bivariate Pearson correlations were used to identify any possible differences between the two groups. In Phase II, qualitative data were collected and analysed using Interpretative Phenomenological Analysis (IPA). 10 semi-structured interviews were conducted with 5 high optimistic and 5 high pessimistic parents of children with cancer given their optimism score in the quantitative study. Results: In the Phase I of the study, findings showed that the parents of children with cancer had higher levels of anxiety, depression, lower levels of optimism, satisfaction with life and subjective health perception than the comparison group. Optimism was significantly correlated with satisfaction with life, subjective health perception, anxiety and depression in both groups. The interviews in Phase II of the study explained better the role of optimism and pessimism in parental experience of adjusting to and coping with childhood cancer. Interviewees described the way that their child’s diagnosis of cancer had affected their lives and their journey from shock to acceptance and adjustment for the optimistic parents or despair and feelings of helplessness and inability to cope for the pessimistic parents. Regardless of level optimism/pessimism, interviews underlined the importance and parents’ need for social support, ongoing communication with health professionals and contact with other parents of children with cancer. Conclusion: The findings highlight the importance of optimism and pessimism in relationship to psychological distress in parents of children with cancer. Interventions targeting parents’ optimism are recommended as a potential source of coping with adversity within this population.
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- 2007
24. Health professionals’ self-identified knowledge, barriers and educational needs regarding identification and management of adolescent and young adult cancer in New Zealand
- Author
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Kim, Dong Hyun
- Published
- 2021
25. Conducting Psychosocial Intervention Research among Adolescents and Young Adults with Cancer: Lessons from the PRISM Randomized Clinical Trial.
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Rosenberg, Abby R., Junkins, Courtney C., Sherr, Nicole, Scott, Samantha, Klein, Victoria, Barton, Krysta S., and Yi-Frazier, Joyce P.
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CANCER in adolescence ,CLINICAL trials ,PALLIATIVE treatment ,CONTENT analysis ,MEDICAL records - Abstract
Background: Adolescents and young adults (AYAs) with cancer have poor psychosocial outcomes, in part because their limited participation in clinical trials precludes intervention-testing. We previously reported results of a successful randomized trial testing an AYA-targeted psychosocial intervention. Here, we aimed to describe strategies learned during the trial's conduct. Methods:We summarized data from the medical record and staff field notes regarding reasons for participation/non-participation. We conducted two focus groups with study staff; directed content analyses identified strategies for success. Results: 92 AYAs enrolled (77% of approached; n = 50 Usual Care (control), n = 49 PRISM (intervention)). In eligible families who declined participation (n = 22 AYAs, n = 8 parents), the AYAs more commonly had advanced cancer (n = 11 (37%) declined vs. n = 25 (26%) enrolled). AYA reasons for non-enrollment were predominantly "not interested"; parents worried participation was "too burdensome." Staff strategies for accrual included having significant time to introduce the study and underscoring a desire to learn from the patient. After enrollment, AYAs who discontinued participation were more commonly assigned to control (n = 5 (10%) control vs. n = 2 (4%) intervention). Only n = 1 AYA chose to discontinue participation after receiving the intervention. Conclusions: Efforts to engage AYAs prior to and during studies may help with accrual and retention. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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26. Parental Attitudes Toward Fertility Preservation in Female Adolescent Cancer Patients in Lebanon.
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Khalife, Dalia, Kutteh, William, Tarhini, Hawraa, Khalil, Ali, Beyrouthy, Christine, and Ghazeeri, Ghina
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- *
PARENT attitudes , *TEENAGE girls , *FERTILITY preservation , *EDUCATIONAL attainment , *CANCER in adolescence - Abstract
To measure parental attitudes toward fertility preservation (FP) in female adolescent cancer patients in a Middle Eastern country to understand barriers to decision-making and decisional conflicts. A questionnaire was distributed to parents of all female adolescents at a tertiary care center from February 2018 to September 2018. A total of 70 families. None. Parental attitudes toward FP. The educational level of parents was associated with the knowledge about the side effects of treatment (P <.001). FP options were not offered to parents in 60/70 (85.6%) of cases. Oocyte cryopreservation was an acceptable option for 23/70 (32.9%) of interviewed parents who agreed on collecting the oocytes using vaginal ultrasound. The fear of disrupting the hymen was the main reason for disapproval in 20/70 (28.6%) of cases. The religious preference of the family was a significant factor in the acceptance of vaginal ultrasound and vaginal oocyte retrieval. The educational level of parents, the monthly income, and the current employment status were not linearly associated with their acceptance to approve their daughters' undergoing oocyte cryopreservation through the vaginal route (χ2 = 100.651; P <.001). Parents are not aware of the effect of cancer treatment on future fertility of their daughters. Ethical, social, and religious barriers affect the decision-making for FP. However, a major interest exists among parents for FP, highlighting the importance of development of an oncofertility program, involving a multidisciplinary team to initiate proper counseling and guidance. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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27. Squamous cell carcinoma of the head and neck in children.
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Dombrowski, Natasha D., Wolter, Nikolaus E., Irace, Alexandria L., Robson, Caroline D., Perez-Atayde, Antonio R., Mack, Jennifer W., and Rahbar, Reza
- Subjects
- *
SQUAMOUS cell carcinoma , *HEAD & neck cancer , *CHILDHOOD cancer , *CANCER in adolescence - Abstract
Abstract Objective To discuss the presentation, evaluation, and management of squamous cell carcinoma of the head and neck in the pediatric population. Methods Medical records of pediatric (≤20 years) patients treated for squamous cell carcinoma of the head and neck between 1996 and 2016 were reviewed. Data pertaining to clinical presentation, diagnostic methods, treatment plan, complications, recurrence, follow-up, or outcome were collected. Results Eleven patients were diagnosed with squamous cell carcinoma. Seven of these patients had medical histories significant for prior malignancies, immunosuppressant therapy, and/or genetic syndromes. Lesions were identified in the oral cavity (n = 5, 45.5%), lip/upper lip (n = 3, 27.3%), larynx (n = 2, 18.2%), and nasal cavity (n = 1, 9.1%). Tumors were most commonly treated with surgical excision alone. Three patients underwent irradiation (2 adjuvant and 1 without surgery) and chemotherapy (1 adjuvant, 1 neoadjuvant, and 1 without surgery). Of these patients, one reported complications of hearing loss, loss of dentition, and laryngeal stenosis. Two patients developed local recurrence at 1 month and 5 years post-operatively, respectively. One patient developed an orocutaneous fistula and subsequently died. No other complications were reported. Median follow-up time was 4.6 years (interquartile range: 2.4–8.4 years). Complications of radiation included: laryngeal stenosis, wound breakdown, and orocutaneous fistula. Conclusion Squamous cell carcinoma is rare in the pediatric population. Most frequently, it is associated with previous malignancies, immunosuppressant therapy, and/or genetic conditions. Complete surgical excision is recommended to obviate the need for radiation whenever possible. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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28. Health professional perceptions of communicating with adolescents and young adults about bone cancer clinical trial participation.
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Lavender, Verna, Gibson, Faith, Brownsdon, Alexandra, Fern, Lorna, Whelan, Jeremy, and Pearce, Susie
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- *
PATIENT-professional relations , *SENSORY perception , *CLINICAL trials , *MEDICAL communication , *HUMAN research subjects , *CANCER in adolescence , *CANCER in young adults ,BONE cancer patients - Abstract
Purpose: Low recruitment of adolescents and young adults in cancer clinical trials is widely reported and may be linked to limited improvements in survival. Research to date does not adequately explain all underlying reasons for poor trial accrual. This paper reports health professional perceptions of communicating with adolescents and young adults with bone sarcoma about clinical trial participation.Methods: This study used narrative inquiry. Findings are reported from thematic analysis of in-depth interviews with 18 multidisciplinary health professionals working in a supra-regional bone and soft tissue sarcoma centre.Results: Participants described professional expertise, the development of specialist knowledge and skills and strategies used to develop trusting relationships with adolescents and young adults with bone sarcoma. These factors were perceived to facilitate communication about clinical trial participation. Emergent themes were having credibility through expertise of the team, developing specialist communication skills through reflection on practice, having inclusive approaches to education and training about clinical trials, individual communication styles used to form trusting relationships, using a patient-centred approach to connect with adolescents and young adults, creating time needed to form trusting relationships and effective team working.Conclusions: We aligned findings of this study with characteristics of patient-physician trust and provide a basis for transferable recommendations. Our findings can be used to inform the development of age-specific, specialist communication skills and highlight health professional education needs about clinical trials. Additional research is needed to explore which elements of team working optimise improved clinical trial participation, in what contexts and why. [ABSTRACT FROM AUTHOR]- Published
- 2019
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29. Brief Metacognitive Therapy for Emotional Distress in Adult Cancer Survivors.
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Fisher, Peter L., Byrne, Angela, Fairburn, Louise, Ullmer, Helen, Abbey, Gareth, and Salmon, Peter
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CANCER patient psychology ,METACOGNITIVE therapy ,CANCER in adolescence ,POSITIVITY effect (Psychology) ,NEGATIVISM - Abstract
Background: Adult cancer survivors often experience substantial psychological morbidity following the completion of acute cancer treatment. Unfortunately, current psychological interventions are of limited efficacy. This study explored if metacognitive therapy (MCT); a brief transdiagnostic psychological intervention was potentially efficacious and could be delivered effectively to adult cancer survivors with psychological morbidity. Methods: An open trial with 3- and 6-month follow-up evaluated the treatment effects of MCT in 27 consecutively referred individuals to a clinical psychology health service specializing in psycho-oncology. Each participant received a maximum of six 1-hour sessions of MCT. Levels of anxiety, depression, fear of cancer recurrence, post-traumatic stress symptoms, health related quality of life, and metacognitive beliefs and processes were assessed using self-report questionnaires. Results: MCT was associated with statistically significant reductions across all outcome measures which were maintained through to 6-month follow-up. In the ITT sample on the primary treatment outcome measure, the Hospital Anxiety and Depression Scale-Total, 59% of participants met recovery criteria at post-treatment and 52% at 6-month follow-up, respectively. No participants significantly deteriorated. In the completer sample (N = 20), 80% recovered at post-treatment and 70% at 6-month follow-up. MCT was acceptable to patients with approximately 75% of patients completing all treatment sessions. Conclusion: MCT, a brief transdiagnostic psychological intervention can be delivered effectively to a heterogenous group of cancer survivors with promising treatment effects. Examining the efficacy of brief MCT against the current gold standard psychological intervention would be a valuable advance toward improving the quality of life of cancer survivors. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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30. Differential modulation and prognostic values of immune-escape genes in uveal melanoma.
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Basile, Maria Sofia, Mazzon, Emanuela, Russo, Andrea, Mammana, Santa, Longo, Antonio, Bonfiglio, Vincenza, Fallico, Matteo, Caltabiano, Rosario, Fagone, Paolo, Nicoletti, Ferdinando, Avitabile, Teresio, and Reibaldi, Michele
- Subjects
- *
IMMUNE system , *CANCER in adolescence , *CANCER cells , *CANCER immunotherapy , *DISEASE progression - Abstract
Uveal melanoma (UM) is the most common primary intraocular cancer in adults. In the present study, we aimed to characterize the immunological features of primary UM cancer and to provide an association with prognostic markers and outcome. Also, we assessed the influence of the microenvironment on the expression of inhibitory immune checkpoints in UM. Genes of interest included MHC Class I and Class II molecules, as well as inhibitory immune-checkpoints, i.e. PDL1, PDL2, B7-H3, B7-H4, TBFRSF6B, CD47, CD155, GAL9, HVEM and CD200. We observed significant lower levels of MHC genes in UM cells as compared to normal uveal melanocytes. Unexpectedly however, the expression levels of most of the analyzed inhibitory immune-checkpoint genes were not different in cancer cells as compared to normal melanocytes, with the exception of CD200 and HVEM, that resulted significantly reduced. On the other hand, PDL1 inversely correlated with OS, PFS and thickness of the tumor. Also, PDL1, along with PDL2, expression significantly increased under inflammatory conditions. Finally, for the first time, we propose a possible role for CD47 in the immune evasive properties of UM. We show here that CD47 is significantly upregulated by UM cells following inflammatory stimuli and that it represents a good independent predictor of disease progression. The results from this study may propel advances in the development of immune-based therapies for UM patients. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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31. Predictors for reactive thymic hyperplasia and its prognostic value in children and adolescents with lymphoma.
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Hu, Ying-Ying, Tian, Li, Zhang, Xu, Xiao, Zi-Zheng, Zhang, Wei-Dong, Lin, Xiao-Ping, Zhang, Ya-Rui, Long, Wen, and Fan, Wei
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- *
RADIOTHERAPY , *THYMUS hyperplasia , *LYMPHOMAS , *CANCER prognosis , *DISEASE risk factors , *CHILDHOOD cancer , *CANCER in adolescence - Abstract
Background: Reactive thymic hyperplasia (RTH) is seen in children and adolescents receiving chemotherapy for various malignancies. However, it is not clear why this occurs only in some patients. The aim of this study was to identify the predictors for RTH in children and adolescents receiving chemotherapy for lymphoma and to determine the effect of RTH on prognosis.Methods: We reviewed the medical records of 126 lymphoma patients (October 2007-October 2012). The patients were divided into two groups according to different criteria, i.e., age at initial diagnosis (2-12 years vs. 13-18 years); presence of thymic infiltration at baseline (yes vs. no); and receipt of mediastinal radiotherapy (yes vs. no). The Kaplan-Meier method and multivariate Cox regression model analysis were used to analyze predictors for RTH. Further, patients were divided into two groups according to the occurrence of RTH during follow-up, and Kaplan-Meier survival analysis was used to analyze the prognostic value of RTH.Results: The 2-12-year-old group had a shorter duration from the end of therapy to RTH than the 13-18-year-old group (median: 3 months vs. 16 months) and a higher rate of RTH (97.1% vs. 60.3%, P < 0.001). The lymphoma thymic non-infiltration group had a shorter duration from the end of therapy to RTH than the lymphoma infiltration group (median: 4 months vs. 22 months), and a higher rate of RTH (88.2% vs. 57.6%, P < 0.001). The non-mediastinal radiotherapy group had higher rate of RTH than the mediastinal radiotherapy group (84.7% vs. 12.5%, P < 0.001). Low age, absence of thymic infiltration by lymphoma at baseline, and absence of mediastinal radiation were predictors for RTH by multivariate Cox regression analysis (P < 0.05). The RTH group had a lower recurrence rate than the non-RTH group (13.9% vs. 40%), and a longer duration from the end of therapy to recurrence (median: 10 months vs. 5 months, P < 0.001).Conclusions: Younger age, absence of thymic infiltration by lymphoma at baseline and absence of mediastinal radiotherapy are predictors for RTH in children and adolescents. RTH may be a positive prognostic factor. [ABSTRACT FROM AUTHOR]- Published
- 2018
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32. Functional And Survival Outcome Of Egyptian Children And Adolescents With Malignant Bone Tumors: An Experience In A Setting Of Limited Health Resource.
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Galila, Mokhtar M, Fatma, Ebeid FS, Sherif, Ishak AI, Iman, Ragab A, and Khaled, Yousef AS
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- *
BONE cancer , *BONE tumors , *LIMB salvage , *CANCER treatment , *CHILDHOOD cancer , *CANCER in adolescence , *PROGRESSION-free survival , *TREATMENT effectiveness - Abstract
Objective: Evaluate outcome of paediatric malignant bone tumours at Ain Shams University, Egypt, from January 2003 to July 2016. Methods: Retrospective data analysis regarding clinico-epidemiological aspects, treatment outcomes, survival analysis and musculoskeletal tumour society score (MSTS score). Results: The study included 37 patients; 22 had Ewing sarcoma (ES) and 15 had osteosarcoma, male: female ratio 0.85:1, median ages of 11. The overall frequency was 2.3% among all cancers. There is wide range of time lag until diagnosis. Patients with ES were significantly younger than those with osteosarcoma were. Swelling was the most common presenting symptom and femur was the most common affected site. Fifteen patients fulfilled MSTS criteria; most of them had excellent MSTS score, which significantly affected by type of surgery. ES patients were treated with POG#9354/CCG#7942 protocols and osteosarcoma with CCG#7921 protocol. Limb salvage was the most common type for surgical local control. Most common cause of death was relapse, whereas infection was the most common complication of treatment. 1-year, 2-year, 3-year overall-survival of osteosarcoma were 93.3%, 40%, and 13.3% respectively and 77.3%, 40.9%, and 18.2% respectively for ES. 1-year, 2-year, 3-year event-free-survival were 80%, 40%, and 13.3% respectively and 72.7%, 22.7%, and 18.2% respectively for ES patients. Conclusion: Although survival rates for malignant bone tumours are still unsatisfactory, the functional outcome of extremity tumours after limb salvage procedures is promising [ABSTRACT FROM AUTHOR]
- Published
- 2018
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33. "Creating a family after battling cancer is exhausting and maddening": Exploring real-world experiences of young adult cancer survivors seeking financial assistance for family building after treatment.
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Benedict, Catherine, McLeggon, Jody‐Ann, Thom, Bridgette, Kelvin, Joanne F., Landwehr, Michelle, Watson, Samantha, Ford, Jennifer S., and McLeggon, Jody-Ann
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- *
CANCER in adolescence , *CANCER diagnosis , *CANCER treatment , *CANCER patient care , *ONCOLOGY , *QUALITY of life - Abstract
Objective: Young adult (YA) cancer survivors who received gonadotoxic therapy are at risk for impaired fertility and/or childbearing difficulties. This study explored the experiences and financial concerns of survivors pursuing family building through assisted reproductive technology (ART) and adoption.Methods: Retrospective study of data collected from grant applications for financial assistance with family building. Grounded theory methodology using an inductive data-driven approach guided qualitative data analysis.Results: Participants (N = 46) averaged 32 years old (SD = 3.4) were primarily female (81%) and married/partnered (83%). Four main themes were identified representing the (1) emotional experiences and (2) financial barriers to family building after cancer, (3) perceived impact on partners, and (4) disrupted life trajectory. Negative emotions were pervasive but were balanced with hope and optimism that parenthood would be achieved. Still, the combination of high ART/adoption costs, the financial impact of cancer, and limited sources for support caused extreme financial stress. Further, in the face of these high costs, many survivors reported worry and guilt about burdening partners, particularly as couples failed to meet personal and societal expectations for parenthood timelines.Conclusion: After cancer, YAs face numerous psychosocial and financial difficulties in their pursuits of family building when ART/adoption is needed to achieve parenthood. Survivors interested in future children may benefit from follow-up fertility counseling post-treatment including discussion of ART options, surrogacy, and adoption, as appropriate, and potential barriers. Planning for the financial cost and burden in particular may help to avoid or mitigate financial stress later on. [ABSTRACT FROM AUTHOR]- Published
- 2018
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34. Correction to: Current situation of cancer among adolescents and young adults in Japan.
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Ohara, Akira, Furui, Tatsuro, Shimizu, Chikako, Ozono, Seiichiro, Yamamoto, Kazuhito, Kawai, Akira, Tatara, Ryohei, Higuchi, Akiko, and Horibe, Keizo
- Subjects
- *
CANCER in adolescence , *CANCER in young adults - Abstract
In the original publication, Tables 4 and 5 have not been published in a readable format. The corrected clear version is given in this Correction. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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35. Current situation of cancer among adolescents and young adults in Japan.
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Ohara, Akira, Furui, Tatsuro, Shimizu, Chikako, Ozono, Seiichiro, Yamamoto, Kazuhito, Kawai, Akira, Tatara, Ryohei, Higuchi, Akiko, and Horibe, Keizo
- Subjects
- *
CANCER in adolescence , *CANCER in young adults , *CANCER treatment , *CERVICAL cancer , *HEMATOPOIETIC system cancer - Abstract
Background: Cancer is rare among adolescents and young adults (AYA). Affected persons need generation-specific attention and care; however, no nationwide study has investigated the medical care structure for AYA cancer treatment in Japan.Methods: We conducted a nationwide survey of AYA cancer for frequency of AYA patients, type of cancer, medical facilities, and certified cancer professionals. Data were collected from 14,713 patients at 218 Core Cancer Treatment Hospitals.Results: The average proportion of AYA cancer patients to all cancer patients was 3.6%. The median number of patients aged 15 to 24 years per hospital was small (n = 5, range 1-51). The most frequent primary site of AYA cancer was the cervix uteri, but when cancer in situ was excluded, the hematopoietic malignancies were the most frequent cancer in males and females aged 15-24 years. In the age group 25-39 years, testicular and breast cancers were the most frequent cancers in males and females, respectively. Certified cancer professionals and facilities are necessary for appropriate care of AYA cancer patients, but the availability of such professionals varied greatly among hospitals. Hospitals with few AYA cancer patients were less likely to employ such physicians.Conclusions: The present findings suggest that medical care for AYA cancer in Japan requires further refinement and a multidisciplinary approach. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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36. Cancers among adolescents and young adults at one institution in Japan.
- Author
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Kamimura, Kensuke, Matsumoto, Yoshifumi, Zhou, Qiliang, Moriyama, Masato, and Saijo, Yasuo
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- *
CANCER in adolescence , *CANCER invasiveness , *CANCER cell growth , *CANCER treatment , *DISEASE management - Abstract
Adolescents and young adults (AYAs) with cancer often live long lives following treatment and face many life events. No detailed studies of cancers in AYAs have described the epidemiology, treatment outcome, and social status in Japan. The present study defined AYAs as those aged 15–29 years old based on the US National Cancer Institute Surveillance, Epidemiology, and End Results (SEER) program. Data was collected from the hospital-based cancer registry and electronic medical charts at Niigata University Medical and Dental Hospital from 2007 to 2015. The present study analyzed the types of cancer, treatment methods and outcomes, fertility preservation, marital status, raising children, school admission, and employment status. A total of 362 (1.9%) cancer cases in AYAs (males 119, females 243) were identified. Carcinoma was the most common type of cancer in both sexes. Females had a high incidence of carcinoma of the genitourinary tract (28.0%). Fertility-sparing surgery (16.0%) was the most common method of fertility preservation. The 5-year survival was better in females (88.4%) than in males (79.9%). The percentage of married AYAs increased following cancer treatment. The proportion of unemployment increased following cancer treatment in all age groups and was greatest (12.6%) in those aged 20–24 years old. Compared with SEER data from the United States, the incidence of carcinoma was high among AYAs, particularly genitourinary tract carcinomas in females, while the incidence of melanoma and skin carcinomas was low. Therefore, AYAs with cancer requires social and economic support. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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37. Life satisfaction in young adults with cancer and the role of sociodemographic, medical, and psychosocial factors: Results of a longitudinal study.
- Author
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Leuteritz, Katja, Friedrich, Michael, Sender, Annekathrin, Nowe, Erik, Stoebel‐Richter, Yve, Geue, Kristina, and Stoebel-Richter, Yve
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- *
CANCER patients , *CANCER in adolescence , *CANCER diagnosis , *SOCIODEMOGRAPHIC factors , *PSYCHOSOCIAL factors - Abstract
Background: Being diagnosed with and treated for cancer often has a strong impact on the life satisfaction (LS) of adolescents and young adults (AYAs). The current study investigated LS in AYA patients with cancer and determined associated factors.Methods: Young patients (those aged 18-39 years at the time of diagnosis) with all malignant cancer sites and with a diagnosis made within the last 4 years were assessed. LS was measured at 2 measuring time points using the Questions on Life Satisfaction (FLZ-M). Differences in the FLZ-M and the 10 subdomains (friends/acquaintances, leisure activities/hobbies, health, income/financial security, work/profession, housing situation, family life, children/family planning, partnership, and sexuality) between the 2 time points were calculated. Multiple regression analyses were conducted to determine factors associated with LS.Results: A total of 514 patients (386 of whom were women) with a mean age at diagnosis of 29.6 years participated at both measurements. LS increased significantly in 5 domains with a small effect (Hedges g, 0.17) noted over time. The subdomains with the lowest LS were financial and professional situation, family planning, and sexuality. Significant associations with LS were found at baseline for sociodemographic, medical, and psychosocial variables (explained variance [R2 ]baseline = 0.41). At follow-up, psychosocial factors (positive social support, not having detrimental interactions, and lower perceived adjustment to the disease) remained most important for higher LS controlled for LS at baseline. Neither sociodemographic (except partnership) nor medical factors played a role (R2follow-up = 0.54).Conclusions: Of all the variables examined, social support was found to be the most decisive factor associated with LS at both time points. With regard to LS, social support and adjustment to illness should be given more consideration in the medical care of AYA patients with cancer. [ABSTRACT FROM AUTHOR]- Published
- 2018
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- View/download PDF
38. Clustered incidence of adult acute promyelocytic leukemia.
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Brunner, Andrew M., Kim, Peter Geon, Sadrzadeh, Hossein, Drapkin, Benjamin J., Sprague, Kellie A., Sloan, J. Mark, Chai-Ho, Wanxing, Bhargava, Parul, Pozdnyakova, Olga, and Fathi, Amir T.
- Subjects
- *
TREATMENT of acute promyelocytic leukemia , *CANCER in adolescence , *MEDICAL statistics , *COHORT analysis , *CHROMOSOMES - Published
- 2018
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39. Respiratory emergency department use from diagnosis through survivorship in children, adolescents, and young adults with cancer.
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Ramsay, Joemy M., Ou, Judy Y., Fluchel, Mark N., and Kirchhoff, Anne C.
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CHILDHOOD cancer , *CANCER in adolescence , *RESPIRATORY diseases , *CHILDREN'S health , *QUALITY of life - Abstract
Background: Children and adolescents and young adults (AYAs) with cancer often experience severe respiratory morbidity and mortality from the therapies used to treat their cancers. Few studies have examined respiratory outcomes among this population using emergency department (ED) visits as an objective measure of respiratory health.Methods: ED visits for respiratory conditions were identified for children and AYAs diagnosed with cancer, 0-25 years of age, from 1997 through 2012 (2535 cases) and compared with a birthdate-matched and sex-matched cohort without cancer drawn from the general population (7605 controls). Negative binomial regression with robust standard errors was used to estimate incidence rates, rate ratios (RRs), and 95% confidence intervals for primary respiratory ED visits, combined and by diagnosis (asthma, respiratory disease, and respiratory infection) from 1997 through 2015. Analyses were performed for new cases (0 to <5 years from diagnosis) and survivors (5-18 years from diagnosis).Results: Subjects were followed for an average of 8 years (range, 0-18 years). Relative to the comparison cohort, cancer cases had higher incidence rates for all types of respiratory ED visits over both follow-up times. New cases had significantly higher RRs for any respiratory condition (RR, 4.14), respiratory disease (RR, 4.62), and respiratory infection (RR, 4.74). Among survivors, the RRs for any respiratory condition (RR, 2.00) and respiratory infection (RR, 2.10) were significantly elevated, although the magnitude tended to decline in survivorship. Demographic and clinical risk factors found to be associated with respiratory ED visits included Hispanic/other race/ethnicity, male sex, exposure to chemotherapy, diagnosis at a younger age, and a diagnosis of leukemia.Conclusions: The results of the current study demonstrated that children and AYAs with cancer face an increased burden of respiratory complications compared with a comparison cohort without cancer from diagnosis through survivorship. [ABSTRACT FROM AUTHOR]- Published
- 2018
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40. Individual Abstracts.
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CANCER in adolescence , *HEREDITARY cancer syndromes , *PEDIATRIC hematology , *CANCER education ,HOME care for cancer patients ,ADJUVANT treatment of cancer in children - Published
- 2018
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41. Relationship between Red Meat Consumption and Increase the Risk of Adulthood Breast Cancer.
- Author
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Hameed, Rafid Hadi
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MEAT industry ,BREAST cancer risk factors ,CANCER in adolescence - Abstract
The paper covers a broad concept adulthood intake of red meat and high breast cancer risk. Therefore, to critically examine the overall connection between breast cancer risks and the red meat intake, a combination of electronic data sources including the academic journals, e-books and preliminary literature reviews related to the selected topic were identified and used in the overall study. Besides, the discussion centered on the connection between consumption of large quantities of red meat and breast cancers were also evaluated from the print sources and the medhubs. The analyses revealed uncertain outcomes between the two variables and detailed results were compiled using the finding of the literature review and data sources. Based on the results of the overall research, the study presented evidence-based arguments that there is a close relationship between intake of high red meat quantities and the risk of getting breast cancer. Graphical representation of the historical trends in breast cancer tumors and eating red meat across the United States have also been included the in the midst of the research. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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42. Occupational adaptation for adults living with advanced cancer: A phenomenological longitudinal study.
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CANCER in adolescence , *OCCUPATIONAL diseases , *DISEASE progression - Published
- 2023
43. Report on the 3rd Global Adolescent and Young Adult Cancer Congress
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Cameron, Nicole
- Published
- 2019
44. Daydreams & Diaries
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Black, Taylor, Black, Tim, Black, Taylor, and Black, Tim
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- Cancer in adolescence, Brain--Cancer--Patients--Biography, Families
- Abstract
For Taylor Black, that Friday night was like any other in her senior year in high school. A quick dip in the shower then off to see her girlfriends and boyfriend Jeff. Just another Friday night in a small Florida town, until she blacked out in the shower and her mom rushed her to the emergency room—and another life: one of brain scans and surgeries, chemotherapy, 60 Minutes, hospitals and hospice. Something that always happened to someone else happened to her, and to her family as well. Taylor kept a diary through the ordeal as she tried to live as normal a life as possible with brain cancer. Daydreams & Diaries details the roller-coaster ride that is cancer, and how Taylor coped as a patient and grew as a person, changing from an insecure high school girl to a courageous young woman. Her spirit attracted the cameras of CBS and the attention of Ed Bradley, who called her'amazing.'Twenty-seven million people saw her on 60 Minutes, but CBS couldn't tell Taylor's whole story, for she was far more than a cancer patient; she was a beloved daughter, sister and friend who showed, as a noted author once wrote,'grace under pressure.'Taylor's father, Tim Black, brings a father's memories of Taylor at different points in her life, helping to complete the portrait of a remarkable young woman who was the inspiration for so many.
- Published
- 2011
45. Caring for young people with cancer: Practical implications of qualitative engagement with cancer survivors and members of the multidisciplinary team
- Author
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Lewis, Peter, Mooney-Somers, Julie, Patterson, Pandora, Jordens, Christopher FC, Bennett, David, McDonald, Fiona EJ, Smith, Kris, and Kerridge, Ian
- Published
- 2014
46. Cancer in Children and Adolescents
- Author
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William L. Carroll, Jonathan L. Finlay, William L. Carroll, and Jonathan L. Finlay
- Subjects
- Children, Infants, Cancer in children, Cancer in adolescence
- Abstract
Over the last six decades, there has been tremendous improvement in the survival rate for the majority of children affected by cancer in the United States and in Western Europe. Despite dramatic advances in the “developed” world, 85% of children diagnosed with cancer globally will not survive this disease. Cancer in Children and Adolescents is an accessible textbook that covers the complexities and interdisciplinary nature of cancer occurrences and provides the fundamentals of diagnosis and management of cancers that affect children and adolescents. Distinguished for its global focus, many chapters in Cancer in Children and Adolescents are co-authored by recognized specialists from around the world. Cancer in Children and Adolescents is divided into four major sections: Section 1: The Laboratory Biology and Diagnostic Evaluation of Childhood Cancer Section 2: Principles of Cancer Therapy in Children Section 3: Tumors of Children Section 4: Supportive Care
- Published
- 2010
47. "I'm Not a Spiritual Person." How Hope Might Facilitate Conversations About Spirituality Among Teens and Young Adults With Cancer.
- Author
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Barton, Krysta S., Tate, Tyler, Lau, Nancy, Taliesin, Karen B., Waldman, Elisha D., and Rosenberg, Abby R.
- Subjects
- *
THERAPEUTIC use of spirituality , *PALLIATIVE treatment of cancer , *CANCER in adolescence , *CANCER in young adults , *LONGITUDINAL method , *CANCER patients , *INTERVIEWING , *RESEARCH methodology , *RELIGION & medicine , *HEALTH outcome assessment , *PALLIATIVE treatment , *QUALITY of life , *RESEARCH funding , *SELF-perception , *SPIRITUALITY , *DESCRIPTIVE statistics - Abstract
Context: Supporting patients' spiritual needs is central to palliative care. Adolescents and young adults (AYAs) may be developing their spiritual identities; it is unclear how to navigate conversations concerning their spiritual needs.Objectives: To 1) describe spiritual narratives among AYAs based on their self-identification as religious, spiritual, both, or neither and 2) identify language to support AYAs' spiritual needs in keeping with their self-identities.Methods: In this mixed-methods, prospective, longitudinal cohort study, AYAs (14-25 years old) with newly diagnosed cancer self-reported their "religiousness" and "spirituality." One-on-one, semistructured interviews were conducted at three time points (within 60 days of diagnosis, six to 12 months, and 12-18 months later) and included queries about spirituality, God/prayer, meaning from illness, and evolving self-identity. Post hoc directed content analysis informed a framework for approaching religious/spiritual discussions.Results: Seventeen AYAs (mean age 17.1 years, SD = 2.7, 47% male) participated in 44 interviews. Of n = 16 with concurrent survey responses, five (31%) self-identified as both "religious and spiritual," five (31%) as "spiritual, not religious," one (6%) as "religious, not spiritual," and five (31%) as neither. Those who endorsed religiousness tended to cite faith as a source of strength, whereas many who declined this self-identity explicitly questioned their preexisting beliefs. Regardless of self-identified "religiousness" or "spirituality," most participants endorsed quests for meaning, purpose, and/or legacy, and all included constructs of hope in their narratives.Conclusion: AYA self-identities evolve during the illness experience. When words such as "religion" and "spirituality" do not fit, explicitly exploring hopes, worries, meaning, and changing life perspectives may be a promising alternative. [ABSTRACT FROM AUTHOR]- Published
- 2018
- Full Text
- View/download PDF
48. Prevalence and correlates of high fear of cancer recurrence in late adolescents and young adults consulting a specialist adolescent and young adult (AYA) cancer service.
- Author
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Thewes, Belinda, Kaal, Suzanne E. J., Custers, Jose A. E., Manten-Horst, Eveliene, Jansen, Rosemarie, Servaes, Petra, Van Der Graaf, Winette T. A., Prins, Judith B., and Husson, Olga
- Subjects
- *
CANCER relapse , *CANCER in young adults , *CANCER in adolescence , *ONCOLOGY , *QUALITY of life , *CANCER risk factors - Abstract
Objective: High fear of cancer recurrence (FCR) is a frequently reported problem among cancer patients. Previous research has shown that younger age is associated with higher levels of FCR. However, little attention has been given to date about how FCR manifests itself among adolescent and young adult (AYA) cancer patients. This study explores the prevalence, correlates of high FCR, and its association with HRQoL in cancer patients in their late adolescence or young adulthood.Methods: Seventy-three AYA cancer patients, aged 18-35 years at diagnosis, consulted the AYA team of the Radboud University Medical Center completed questionnaires including the Cancer Worry Scale (CWS), Quality of Life-Cancer Survivors (QOL-CS), and Hospital Anxiety and Depression Scale (HADS). Sociodemographic and medical data was collected by self-reported questionnaire.Results: Forty-five participants experienced high FCR (62%), which was higher than the 31-52% reported in previous studies among mixed adult cancer patient samples. Sociodemographic and medical variables were not associated with levels of FCR. High FCR was significantly associated with lower levels of social and psychological functioning and overall HRQoL and higher levels of anxiety and psychological distress.Conclusion: Results illustrate that FCR is a significant problem among AYA cancer patients consulting an AYA team, with participants reporting higher levels of FCR than cancer patients of mixed ages. Health care providers should pay specific attention to this problem by screening and the provision of appropriate psychosocial care when needed. [ABSTRACT FROM AUTHOR]- Published
- 2018
- Full Text
- View/download PDF
49. Patterns of family management for adolescent and young adult brain tumor survivors.
- Author
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Deatrick, Janet A., Knafl, George J., Ginsberg, Jill P., Fisher, Michael J., Reilly, Maureen, Toth, Jennifer, SanGiacomo, Nicole, Barakat, Lamia P., Hobbie, Wendy, Ogle, Sue, Hardie, Thomas, Broden, Elizabeth, and Knafl, Kathleen A.
- Subjects
- *
BRAIN tumors , *CANCER in young adults , *CANCER in adolescence , *PATIENTS' families , *ONCOLOGY , *KINSHIP care , *PATIENTS - Abstract
Little is known about how families systemically incorporate the work of caring for adolescent and young adult (AYA) survivors of childhood brain tumors who often remain dependent on their families well into adulthood. The primary aim of this study was to develop a typology of family management (FM) patterns for AYA survivors. The secondary aims were to compare them with FM patterns previously described for children with chronic health conditions and to validate the patterns using quantitative and qualitative data. Guided by the Family Management Styles Framework, a sequential, mixed-methods design was used to gather quantitative data from 186 mothers (primary caregivers) and 134 AYA survivors. FM patterns (family focused; somewhat family focused; somewhat condition focused; and condition focused) were identified using cluster analysis of data from the Family Management Measure. FM patterns were found to be similar to those for children with chronic health physical conditions and were significantly related to maternal quality of life, survivor quality of life (health-related quality of life [self- and mother proxy report]), cancer-related variables (treatment intensity, medical late effects), and family functioning in theoretically meaningfully ways. Significant demographic characteristics included private insurance and AYA survivors' engagement in school or employment. Qualitative analysis of data from 45 interviews with mothers from the larger sample provided additional support for and elaborated descriptions of FM patterns. Identification of FM patterns moves the science of family caregiving forward by aggregating data into a conceptually based typology, thereby taking into account the complex intersection of the condition, the family, and condition management. (PsycINFO Database Record [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
50. Adapting a Skin Cancer Prevention Intervention for Multiethnic Adolescents.
- Author
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Cassel, Kevin D., Tran, Anh, Murakami-Akatsuka, Lynn, Tanabe-Hanzawa, Jodi, Burnett, Terrilea, and Lum, Christopher
- Subjects
- *
SKIN cancer prevention , *CANCER in adolescence , *HEALTH education (Secondary) , *PHYSIOLOGICAL effects of solar radiation , *HAWAIIANS , *PHYSIOLOGICAL effects of ultraviolet radiation , *PACIFIC Islander American students , *PHYSIOLOGICAL effects of shades & shadows , *HEALTH , *HEALTH attitudes , *SKIN tumors , *ASIANS , *HEALTH education , *SELF-evaluation , *SURVEYS , *ULTRAVIOLET radiation , *ADOLESCENCE , *PREVENTION - Abstract
Objective: We tested the effectiveness of a school-based skin cancer prevention intervention entitled "SunSafe in the Middle School Years" adapted for multiethnic high school students. Methods: In Hawai'i, 208 10th graders (51.6% Asian, 30.4% Native Hawaiian/Pacific Islander, 8.4% white, 3.5% Hispanic, 2.7% black) participated. Changes in sun protection knowledge, attitudes and self-reported behaviors were measured using a standardized 18-item survey. The Systematic Observation of Sun Protection Factors (SOSPF) instrument assessed aggregate sun protection behaviors. Results: At posttest, improvements were found in 13 of 18 survey items (p < .05) and retained in 10 items at12-months following baseline assessments; sun-protection attitudes and intended tanning behavior did not show improvement. Six observers using SOSPF reliably measured student's sun protection behaviors at school including use of hats, sunglasses, long sleeves, lower body coverage and shade (ICC > .77). Conclusions: We uncovered a lack of knowledge about UVR exposure, tanning and lifetime skin cancer risk among multiethnic high school students. We found that student's tanning attitudes may be influenced by self-perceptions regarding their own complexion, but were willing to modify their sun protection behaviors once informed about skin cancer risk. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
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