808 results on '"Brown, Edwina A"'
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2. Assisted PD throughout Europe: advantages, inequities, and solution proposals
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Malho Guedes, Anabela, Punzalan, Sally, Brown, Edwina A., Ekstrand, Agneta, Gallieni, Maurizio, Rivera Gorrín, Maite, Gudmundsdottir, Helga, Heidempergher, Marco, Kitsche, Benno, Lobbedez, Thierry, Hahn Lundström, Ulrika, McCarthy, Kate, Mellotte, George J., Moranne, Olivier, Petras, Dimitrios, Povlsen, Johan V., and Wiesholzer, Martin
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- 2023
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3. Older Age and Advanced Kidney Disease
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Schofield, Guy, speaker, Dani, Melanie, speaker, Brown, Edwina, speaker, Beckwith, Hannah, speaker, and Shivakumar, Oshini, speaker
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Our leading expert will use 4 patient stories to illustrate learning points in ethics, frailty, dementia, supportive care and patient expectations. Schedule: 1. 14:00-14:20 Ethics Focused Patient Story 2. 14:20-14:40 Frailty and Advanced Kidney Care and Dialysis 3. 14:40-15:00 Supportive Assisted Peritoneal Dialysis and Dementia 4. 15:00-15:20 Inpatient Care and Patient Expectations 5. 15:20 General Discussion with Delegate Questions
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- 2024
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4. Inequities in kidney health and kidney care
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Vanholder, Raymond, Annemans, Lieven, Braks, Marion, Brown, Edwina A., Pais, Priya, Purnell, Tanjala S., Sawhney, Simon, Scholes-Robertson, Nicole, Stengel, Bénédicte, Tannor, Elliot K., Tesar, Vladimir, van der Tol, Arjan, and Luyckx, Valérie A.
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- 2023
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5. Establishing a Core Outcome Measure for Peritoneal Dialysis-related Peritonitis: A Standardized Outcomes in Nephrology—Peritoneal Dialysis Consensus Workshop Report
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Shen, Jenny I, Cho, Yeoungjee, Manera, Karine E, Brown, Fiona, Dong, Jie, Sahlawi, Muthana Al, Acevedo, Rafael G, Htay, Htay, Ito, Yasuhiko, Kanjanabuch, Talerngsak, Nessim, Sharon J, Ngaruiya, Grace, Piraino, Beth, Szeto, Cheuk-Chun, Teitelbaum, Isaac, Amir, Noa, Craig, Jonathan C, Baumgart, Amanda, Gonzalez, Andrea M, Scholes-Robertson, Nicole, Viecelli, Andrea K, Wilkie, Martin, Tong, Allison, Perl, Jeffrey, Committee, SONG Executive, Craig, Jonathan, Wang, Angela, Hemmelgarn, Brenda, Manns, Braden, Wheeler, David, Gill, John, Tugwell, Peter, Pecoits-Filho, Roberto, Crowe, Sally, Harris, Tess, Van Biesen, Wim, Winkelmayer, Wolfgang, Group, SONG-PD Steering, Johnson, David W, Brown, Edwina, Brunier, Gillian, Manera, Karine, Mehrotra, Rajnish, Dunning, Sue-Ann, Dunning, Tony, Group, SONG-PD Infection Expert Working, Perl, Jeff, Szeto, CC, Forfang, Derek, Gomez, Rafael, Nessim, Sharon, Shen, Jenny, Committee, SONG Coordinating, Martin, Adam, Bernier-Jean, Amelie, Gonzalez, Andrea Matus, Viecelli, Andrea, Ju, Angela, Teixera-Pinto, Armando, Sautenet, Benedicte, Hanson, Camilla, Guha, Chandana, Sumpton, Daniel, Hannan, Elyssa, O’Lone, Emma, Au, Eric, Kerklaan, Jasmijn, Dunn, Louese, Howell, Martin, Nataatmadja, Melissa, Evangelidis, Nicole, Natale, Patrizia, Cazzolli, Rosanna, Anumudu, Samaya, Carter, Simon, Gutman, Talia, and Vastani, Thomas Vastani Rahim
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Health Services and Systems ,Biomedical and Clinical Sciences ,Clinical Sciences ,Health Sciences ,Clinical Research ,Clinical Trials and Supportive Activities ,Neurodegenerative ,core outcome measure ,peritoneal dialysis ,peritonitis ,trial design ,SONG-PD Infection Workshop Investigators ,Biomedical and clinical sciences ,Health sciences - Abstract
IntroductionPeritoneal dialysis (PD)-related peritonitis is one of the leading causes of discontinuation of PD and is considered a critically important outcome for patients on PD. However, there is no universally accepted method of measuring this outcome in clinical trials.MethodsWe convened an online consensus workshop to establish a core outcome measure for PD-related peritonitis in clinical trials.ResultsA total of 53 participants, including 18 patients and caregivers, from 12 countries engaged in breakout discussions in this workshop. Transcripts were analyzed thematically. We identified the following 3 themes: (i) feasibility and applicability across diverse settings, which reflected the difficulty with implementing laboratory-based measures in resource-limited environments; (ii) ensuring validity, which included minimizing false positives and considering the specificity of symptoms; and (iii) being meaningful and tangible to patients, which meant that the measure should be easy to interpret, reflect the impact that symptoms have on patients, and promote transparency by standardizing the reporting of peritonitis among dialysis units.ConclusionA core outcome measure for PD-related peritonitis should include both symptom-based and laboratory-based criteria. Thus, the International Society for Peritoneal Dialysis (ISPD) definition of peritonitis is acceptable. However, there should be consideration of reporting suspected peritonitis in cases where laboratory confirmation is not possible. The measure should include all infections from the time of catheter insertion and capture both the rate of infection and the number of patients who remain peritonitis free. A core outcome measure with these features would increase the impact of clinical trials on the care and decision-making of patients receiving PD.
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- 2022
6. Delivering Person-Centered Peritoneal Dialysis
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Corbett, Richard W., Beckwith, Hannah, Lucisano, Gaetano, and Brown, Edwina A.
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- 2024
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7. PD in the Older Person
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Corbett, Richard W., Brown, Edwina A., Khanna, Ramesh, editor, and Krediet, Raymond T., editor
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- 2023
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8. Scope and heterogeneity of outcomes reported in randomized trials in patients receiving peritoneal dialysis
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Manera, Karine E, Johnson, David W, Cho, Yeoungjee, Sautenet, Benedicte, Shen, Jenny, Kelly, Ayano, Wang, Angela Yee-Moon, Brown, Edwina A, Brunier, Gillian, Perl, Jeffrey, Dong, Jie, Wilkie, Martin, Mehrotra, Rajnish, Pecoits-Filho, Roberto, Naicker, Saraladevi, Dunning, Tony, Craig, Jonathan C, and Tong, Allison
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Biomedical and Clinical Sciences ,Clinical Sciences ,Clinical Trials and Supportive Activities ,Kidney Disease ,Clinical Research ,Renal and urogenital ,patient-reported outcomes ,peritoneal dialysis ,outcomes ,trials ,Clinical sciences - Abstract
BackgroundRandomized trials can provide evidence to inform decision-making but this may be limited if the outcomes of importance to patients and clinicians are omitted or reported inconsistently. We aimed to assess the scope and heterogeneity of outcomes reported in trials in peritoneal dialysis (PD).MethodsWe searched the Cochrane Kidney and Transplant Specialized Register for randomized trials in PD. We extracted all reported outcome domains and measurements and analyzed their frequency and characteristics.ResultsFrom 128 reports of 120 included trials, 80 different outcome domains were reported. Overall, 39 (49%) domains were surrogate, 23 (29%) patient-reported and 18 (22%) clinical. The five most commonly reported domains were PD-related infection [59 (49%) trials], dialysis solute clearance [51 (42%)], kidney function [45 (38%)], protein metabolism [44 (37%)] and inflammatory markers/oxidative stress [42 (35%)]. Quality of life was reported infrequently (4% of trials). Only 14 (12%) trials included a patient-reported outcome as a primary outcome. The median number of outcome measures (defined as a different measurement, aggregation and metric) was 22 (interquartile range 13-37) per trial. PD-related infection was the most frequently reported clinical outcome as well as the most frequently stated primary outcome. A total of 383 different measures for infection were used, with 66 used more than once.ConclusionsTrials in PD include important clinical outcomes such as infection, but these are measured and reported inconsistently. Patient-reported outcomes are infrequently reported and nearly half of the domains were surrogate. Standardized outcomes for PD trials are required to improve efficiency and relevance.
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- 2021
9. Managing the symptom burden associated with maintenance dialysis: conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference
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Bagasha, Peace, Bargman, Joanne M., Bavanandan, Sunita, Beckwith, Hannah, Bennett, Paul N., Bohm, Clara, Brennan, Frank, Burton, James O., Cavanaugh, Kerri L., Chilcot, Joseph, Choi, Peter, Cukor, Daniel, Dember, Laura M., Dong, Jie, Edwards, Dawn, Erickson, Kevin F., Figueiredo, Ana, Finkelstein, Fredric O., Fukagawa, Masafumi, Germain, Michael, Guillano, Franklin B., Hurst, Helen, Iseki, Kunitoshi, Jardine, Meg J., Jauré, Allison, Jha, Vivekanand, Jhamb, Manisha, Kanjanabuch, Talerngsak, Lerma, Edgar, Kam-Tao Li, Philip, Liew, Adrian, Małyszko, Jolanta, Proenca de Moraes, Thyago, Moranne, Olivier, Nam Ng, Marques Shek, Ostermann, Marlies, Perl, Jeffrey, Pigford, Jayne, Pommer, Wolfgang, Richardson, Michelle M., Rivara, Matthew B., Roberts, Glenda V., Sarafidis, Pantelis, Shroff, Rukshana, Slon Roblero, Maria Fernanda, Smyth, Brendan, Søndergaard, Henning, Van Der Veer, Sabine N., Vassalotti, Joseph A., Vervloet, Marc, Vincent, Lloyd, Walker, Rachael, Warren, Madeleine, Wasylynuk, Betty Ann, West, Melissa, Wilkie, Caroline, Mehrotra, Rajnish, Davison, Sara N., Farrington, Ken, Flythe, Jennifer E., Foo, Marjorie, Madero, Magdalena, Morton, Rachael L., Tsukamoto, Yusuke, Unruh, Mark L., Cheung, Michael, Jadoul, Michel, Winkelmayer, Wolfgang C., and Brown, Edwina A.
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- 2023
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10. Perceived Life Expectancy Among Dialysis Recipients: A Scoping Review
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Beckwith, Hannah, Thind, Amarpreet, and Brown, Edwina A.
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- 2023
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11. Meaning of empowerment in peritoneal dialysis: focus groups with patients and caregivers.
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Baumgart, Amanda, Manera, Karine E, Johnson, David W, Craig, Jonathan C, Shen, Jenny I, Ruiz, Lorena, Wang, Angela Yee-Moon, Yip, Terence, Fung, Samuel KS, Tong, Matthew, Lee, Achilles, Cho, Yeoungjee, Viecelli, Andrea K, Sautenet, Benedicte, Teixeira-Pinto, Armando, Brown, Edwina A, Brunier, Gillian, Dong, Jie, Scholes-Robertson, Nicole, Dunning, Tony, Mehrotra, Rajnish, Naicker, Saraladevi, Pecoits-Filho, Roberto, Perl, Jeffrey, Wilkie, Martin, and Tong, Allison
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Clinical Research ,7.1 Individual care needs ,Management of diseases and conditions ,Adolescent ,Adult ,Aged ,Aged ,80 and over ,Caregivers ,Female ,Focus Groups ,Humans ,Life Style ,Male ,Middle Aged ,Patient Participation ,Peritoneal Dialysis ,Self-Management ,Treatment Outcome ,Young Adult ,chronic kidney disease ,patient empowerment ,peritoneal dialysis ,quality of life ,Clinical Sciences ,Urology & Nephrology - Abstract
BackgroundWhile peritoneal dialysis (PD) can offer patients more independence and flexibility compared with in-center hemodialysis, managing the ongoing and technically demanding regimen can impose a burden on patients and caregivers. Patient empowerment can strengthen capacity for self-management and improve treatment outcomes. We aimed to describe patients' and caregivers' perspectives on the meaning and role of patient empowerment in PD.MethodsAdult patients receiving PD (n = 81) and their caregivers (n = 45), purposively sampled from nine dialysis units in Australia, Hong Kong and the USA, participated in 14 focus groups. Transcripts were thematically analyzed.ResultsWe identified six themes: lacking clarity for self-management (limited understanding of rationale behind necessary restrictions, muddled by conflicting information); PD regimen restricting flexibility and freedom (burden in budgeting time, confined to be close to home); strength with supportive relationships (gaining reassurance with practical assistance, comforted by considerate health professionals, supported by family and friends); defying constraints (reclaiming the day, undeterred by treatment, refusing to be defined by illness); regaining lost vitality (enabling physical functioning, restoring energy for life participation); and personal growth through adjustment (building resilience and enabling positive outlook, accepting the dialysis regimen).ConclusionsUnderstanding the rationale behind lifestyle restrictions, practical assistance and family support in managing PD promoted patient empowerment, whereas being constrained in time and capacity for life participation outside the home undermined it. Education, counseling and strategies to minimize the disruption and burden of PD may enhance satisfaction and outcomes in patients requiring PD.
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- 2020
12. Home dialysis: conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference
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Abrahams, Alferso C., Anumudu, Samaya J., Bargman, Joanne M., Moore, Geraldine Biddle, Blake, Peter G., Borman, Natalie, Bowes, Elaine, Burton, James O., Caillette-Beaudoin, Agnes, Cho, Yeoungjee, Cullis, Brett, Einbinder, Yael, el Shamy, Osama, Erickson, Kevin F., Figueiredo, Ana E., Finkelstein, Fred, Fluck, Richard, Flythe, Jennifer E., Fotheringham, James, Fukagawa, Masafumi, Goffin, Eric, Golper, Thomas A., Gómez, Rafael, Jha, Vivekanand, Johnson, David W., Kanjanabuch, Talerngsak, Kim, Yong-Lim, Lambie, Mark, Lerma, Edgar V., Lockridge, Robert S., Loud, Fiona, Masakane, Ikuto, Matthews, Nicola, McKane, Will, Mendelssohn, David C., Mettang, Thomas, Mitra, Sandip, Moraes, Thyago Proença de, Morton, Rachael, Mushahar, Lily, Nadeau-Fredette, Annie-Claire, Nayak, K.S., Neumann, Joanna L., Ngaruiya, Grace, Okpechi, Ikechi, Quinn, Robert R., Rangaswami, Janani, Reddy, Yuvaram N.V., Schiller, Brigitte, Shen, Jenny I., Shroff, Rukshana, Slon Roblero, Maria Fernanda, Solá, Laura, Søndergaard, Henning, Teitelbaum, Isaac, Tennankore, Karthik, Van Ommeslaeghe, Floris, Walker, Rachael C., Walker, Robert J., Wang, Angela Yee-Moon, Warady, Bradley A., Watnick, Suzanne, Weinhandl, Eric D., Wilkie, Caroline M., Williams, Jennifer, Perl, Jeffrey, Brown, Edwina A., Chan, Christopher T., Couchoud, Cécile, Davies, Simon J., Kazancioğlu, Rümeyza, Klarenbach, Scott, Liew, Adrian, Weiner, Daniel E., Cheung, Michael, Jadoul, Michel, Winkelmayer, Wolfgang C., and Wilkie, Martin E.
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- 2023
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13. Conservative kidney management
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FitzGerald, Ted J. and Brown, Edwina A.
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- 2023
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14. An international Delphi survey helped develop consensus-based core outcome domains for trials in peritoneal dialysis
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Manera, Karine E, Tong, Allison, Craig, Jonathan C, Shen, Jenny, Jesudason, Shilpa, Cho, Yeoungjee, Sautenet, Benedicte, Teixeira-Pinto, Armando, Howell, Martin, Wang, Angela Yee-Moon, Brown, Edwina A, Brunier, Gillian, Perl, Jeffrey, Dong, Jie, Wilkie, Martin, Mehrotra, Rajnish, Pecoits-Filho, Roberto, Naicker, Saraladevi, Dunning, Tony, Scholes-Robertson, Nicole, and Johnson, David W
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Cardiovascular ,Behavioral and Social Science ,Clinical Trials and Supportive Activities ,Kidney Disease ,Clinical Research ,Renal and urogenital ,Good Health and Well Being ,Adolescent ,Adult ,Aged ,Consensus ,Decision Making ,Shared ,Delphi Technique ,Female ,Humans ,Kidney Failure ,Chronic ,Male ,Middle Aged ,Outcome Assessment ,Health Care ,Peritoneal Dialysis ,Quality of Life ,Randomized Controlled Trials as Topic ,Surveys and Questionnaires ,Young Adult ,core outcome sets ,kidney disease ,outcomes ,patient-centered care ,peritoneal dialysis ,trials ,Clinical Sciences ,Urology & Nephrology - Abstract
Shared decision-making about clinical care options in end-stage kidney disease is limited by inconsistencies in the reporting of outcomes and the omission of patient-important outcomes in trials. Here we generated a consensus-based prioritized list of outcomes to be reported during trials in peritoneal dialysis (PD). In an international, online, three-round Delphi survey, patients/caregivers and health professionals rated the importance of outcomes using a 9-point Likert scale (with 7-9 indicating critical importance) and provided comments. Using a Best-Worst Scale (BWS), the relative importance of outcomes was estimated. Comments were analyzed thematically. In total, 873 participants (207 patients/caregivers and 666 health professionals) from 68 countries completed round one, 629 completed round two and 530 completed round three. The top outcomes were PD-related infection, membrane function, peritoneal dialysis failure, cardiovascular disease, death, catheter complications, and the ability to do usual activities. Compared with health professionals, patients/caregivers gave higher priority to six outcomes: blood pressure (mean difference, 0.4), fatigue (0.3), membrane function (0.3), impact on family/friends (0.1), peritoneal thickening (0.1) and usual activities (0.1). Four themes were identified that underpinned the reasons for ratings: contributing to treatment longevity, preserving quality of life, escalating morbidity, and irrelevant and futile information and treatment. Patients/caregivers and health professionals gave highest priority to clinical outcomes. In contrast to health professionals, patients/caregivers gave higher priority to lifestyle-related outcomes including the impact on family/friends and usual activities. Thus, prioritization will inform a core outcome set to improve the consistency and relevance of outcomes for trials in PD.
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- 2019
15. Increasing access to integrated ESKD care as part of universal health coverage
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Harris, David CH, Davies, Simon J, Finkelstein, Fredric O, Jha, Vivekanand, Donner, Jo-Ann, Abraham, Georgi, Bello, Aminu K, Caskey, Fergus J, Garcia, Guillermo Garcia, Harden, Paul, Hemmelgarn, Brenda, Johnson, David W, Levin, Nathan W, Luyckx, Valerie A, Martin, Dominique E, McCulloch, Mignon I, Moosa, Mohammed Rafique, O’Connell, Philip J, Okpechi, Ikechi G, Filho, Roberto Pecoits, Shah, Kamal D, Sola, Laura, Swanepoel, Charles, Tonelli, Marcello, Twahir, Ahmed, van Biesen, Wim, Varghese, Cherian, Yang, Chih-Wei, Zuniga, Carlos, Summit, Working Groups of the International Society of Nephrology’s 2nd Global Kidney Health, Abu Alfa, Ali K, Aljubori, Harith M, Alrukhaimi, Mona N, Andreoli, Sharon P, Ashuntantang, Gloria, Bellorin-Font, Ezequiel, Bernieh, Bassam, Ibhais, Fuad M, Blake, Peter G, Brown, Mark, Brown, Edwina, Bunnag, Sakarn, Chan, Tak Mao, Chen, Yuqing, Granado, Rolando Claure-Del, Claus, Stefaan, Collins, Allan, Couchoud, Cecile, Cueto-Manzano, Alfonso, Cullis, Brett, Douthat, Walter, Dreyer, Gavin, Eiam-Ong, Somchai, Eke, Felicia U, Feehally, John, Ghnaimat, Mohammad A, Goh, BakLeong, Hassan, Mohamed H, Hou, Fan Fan, Jager, Kitty, Kalantar-Zadeh, Kamyar, Kazancioglu, Rumeyza T, Levin, Adeera, Liew, Adrian, McKnight, Marla, Mengistu, Yewondwassesn Tadesse, Morton, Rachael L, Muller, Elmi, Murtagh, Fliss EM, Naicker, Saraladevi, Nangaku, Masaomi, Niang, Abdou, Obrador, Gregorio T, Ossareh, Shahrzad, Perl, Jeffrey, Rahman, Muhibur, Rashid, Harun Ur, Richards, Marie, Rondeau, Eric, Sahay, Manisha, Saleh, Abdulkarim, Schneditz, Daniel, Tchokhonelidze, Irma, Tesar, Vladimir, Trask, Michele, Tungsanga, Kriang, Vachharajani, Tushar, Walker, Rachael C, Walker, Robert, Were, Anthony JO, Yao, Qiang, Yeates, Karen, Yu, Xueqing, Zakharova, Elena, Zemchenkov, Alexander, and Zhao, Ming-Hui
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Clinical Research ,Health Services ,Behavioral and Social Science ,Kidney Disease ,Health and social care services research ,8.1 Organisation and delivery of services ,8.3 Policy ,ethics ,and research governance ,Good Health and Well Being ,Quality Education ,Conservative Treatment ,Developing Countries ,Global Burden of Disease ,Global Health ,Health Occupations ,Health Planning ,Health Policy ,Health Services Accessibility ,Health Workforce ,Humans ,Kidney Failure ,Chronic ,Patient Advocacy ,Renal Replacement Therapy ,Universal Health Insurance ,advocacy ,conservative care ,dialysis ,end-stage kidney disease ,ESKD ,funding ,training ,transplantation ,universal health coverage ,Working Groups of the International Society of Nephrology’s 2nd Global Kidney Health Summit ,Clinical Sciences ,Urology & Nephrology - Abstract
The global nephrology community recognizes the need for a cohesive strategy to address the growing problem of end-stage kidney disease (ESKD). In March 2018, the International Society of Nephrology hosted a summit on integrated ESKD care, including 92 individuals from around the globe with diverse expertise and professional backgrounds. The attendees were from 41 countries, including 16 participants from 11 low- and lower-middle-income countries. The purpose was to develop a strategic plan to improve worldwide access to integrated ESKD care, by identifying and prioritizing key activities across 8 themes: (i) estimates of ESKD burden and treatment coverage, (ii) advocacy, (iii) education and training/workforce, (iv) financing/funding models, (v) ethics, (vi) dialysis, (vii) transplantation, and (viii) conservative care. Action plans with prioritized lists of goals, activities, and key deliverables, and an overarching performance framework were developed for each theme. Examples of these key deliverables include improved data availability, integration of core registry measures and analysis to inform development of health care policy; a framework for advocacy; improved and continued stakeholder engagement; improved workforce training; equitable, efficient, and cost-effective funding models; greater understanding and greater application of ethical principles in practice and policy; definition and application of standards for safe and sustainable dialysis treatment and a set of measurable quality parameters; and integration of dialysis, transplantation, and comprehensive conservative care as ESKD treatment options within the context of overall health priorities. Intended users of the action plans include clinicians, patients and their families, scientists, industry partners, government decision makers, and advocacy organizations. Implementation of this integrated and comprehensive plan is intended to improve quality and access to care and thereby reduce serious health-related suffering of adults and children affected by ESKD worldwide.
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- 2019
16. Implementing core outcomes in kidney disease: report of the Standardized Outcomes in Nephrology (SONG) implementation workshop
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Tong, Allison, Manns, Braden, Wang, Angela Yee Moon, Hemmelgarn, Brenda, Wheeler, David C, Gill, John, Tugwell, Peter, Pecoits-Filho, Robert, Crowe, Sally, Harris, Tess, Van Biesen, Wim, Winkelmayer, Wolfgang C, Levin, Adeera, Thompson, Aliza, Perkovic, Vlado, Ju, Angela, Gutman, Talia, Bernier-Jean, Amelie, Viecelli, Andrea K, O’Lone, Emma, Shen, Jenny, Josephson, Michelle A, Cho, Yeoungjee, Johnson, David W, Sautenet, Bénédicte, Tonelli, Marcello, Craig, Jonathan C, Investigators, SONG Implementation Workshop, Craig, Jonathan, Wang, Angela, Wheeler, David, Pecoits-Filho, Roberto, van Biesen, Wim, Winkelmayer, Wolfgang, Sinha, Aditi, Ong, Albert, Denny, Alexis, Dart, Allison, Eddy, Allison, Kelly, Amy, Viecelli, Andrea, Davenport, Andrew, Narva, Andrew, Sharma, Ankit, Warrens, Anthony, Chapman, Arlene, Teixeira-Pinto, Armando, Kelly, Ayano, Murphy, Barbara, Sautenet, Benedicte, Padilla, Benita, Canaud, Bernard, Pullin, Brian, Schiller, Brigitte, Robinson, Bruce, Hanson, Camilla, Hawley, Carmel, Logeman, Charlotte, Lok, Charmaine, Wanner, Christoph, Herzog, Chuck, Rutherford, Claudia, Ahn, Curie, Sumpton, Daniel, Rosenbloom, David, Harris, David, Baron, David, Johnson, David, White, David, Gipson, Debbie, Fouque, Denis, Eilers, Denise, Bockenhauer, Detlef, O'Donoghue, Donal, Chen, Dongping, Dunning, Dyke, Brown, Edwina, Bavlovlenkov, Elena, Mannon, Elinor, Poggio, Emilo, O'Lone, Emma, Chemla, Eric, Dobbels, Fabienne, Zannad, Faiez, Caskey, Fergus, Tentori, Francesca, Hurst, Frank, Schaefer, Franz, and Wong, Germaine
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Clinical Trials and Supportive Activities ,Kidney Disease ,Clinical Research ,Comparative Effectiveness Research ,Renal and urogenital ,Generic health relevance ,Good Health and Well Being ,Consensus ,Endpoint Determination ,Humans ,Randomized Controlled Trials as Topic ,Renal Insufficiency ,Chronic ,Research Design ,Stakeholder Participation ,Treatment Outcome ,core outcome sets ,implementation ,kidney disease ,outcomes ,patient-centered care ,trials ,SONG Implementation Workshop Investigators ,Clinical Sciences ,Urology & Nephrology - Abstract
There are an estimated 14,000 randomized trials published in chronic kidney disease. The most frequently reported outcomes are biochemical endpoints, rather than clinical and patient-reported outcomes including cardiovascular disease, mortality, and quality of life. While many trials have focused on optimizing kidney health, the heterogeneity and uncertain relevance of outcomes reported across trials may limit their policy and practice impact. The international Standardized Outcomes in Nephrology (SONG) Initiative was formed to identify core outcomes that are critically important to patients and health professionals, to be reported consistently across trials. We convened a SONG Implementation Workshop to discuss the implementation of core outcomes. Eighty-two patients/caregivers and health professionals participated in plenary and breakout discussions. In this report, we summarize the findings of the workshop in two main themes: socializing the concept of core outcomes, and demonstrating feasibility and usability. We outline implementation strategies and pathways to be established through partnership with stakeholders, which may bolster acceptance and reporting of core outcomes in trials, and encourage their use by end-users such as guideline producers and policymakers to help improve patient-important outcomes.
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- 2018
17. Gender Differences in Experiences and Expectations of Hemodialysis in a Frail and Seriously Unwell Patient Population
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Beckwith, Hannah, Thomas, Nicola, Adwaney, Anamika, AppELbe, Maura, Gaffney, Helen, Hill, Peter, Moabi, Dihlabelo, Prout, Virginia, Salisbury, Emma, Webster, Phil, Tomlinson, James A.P., and Brown, Edwina A.
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- 2022
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18. Prevalence of frailty and cognitive impairment in older transplant candidates - a preview to the Kidney Transplantation in Older People (KTOP): impact of frailty on outcomes study
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Thind, Amarpreet K., Rule, Annabel, Goodall, Dawn, Levy, Shuli, Brice, Sarah, Dor, Frank J. M. F., Evans, Nicola, Ospalla, David, Thomas, Nicola, Wellsted, David, Johansson, Lina, Willicombe, Michelle, and Brown, Edwina A.
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- 2022
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19. Quality of Life in Peritoneal Dialysis
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Beadle, Jack, Brown, Edwina A., Rastogi, Anjay, editor, Lerma, Edgar V., editor, and Bargman, Joanne M., editor
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- 2021
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20. Assisted peritoneal dialysis: Position paper for the ISPD
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Oliver, Matthew J, primary, Abra, Graham, additional, Béchade, Clémence, additional, Brown, Edwina A, additional, Sanchez-Escuredo, Ana, additional, Johnson, David W, additional, Guedes, Anabela Malho, additional, Graham, Janet, additional, Fernandes, Natalia, additional, Jha, Vivekanand, additional, Kabbali, Nadia, additional, Knananjubach, Talerngsak, additional, Kam-Tao Li, Philip, additional, Lundström, Ulrika Hahn, additional, Salenger, Page, additional, and Lobbedez, Thierry, additional
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- 2024
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21. Towards a better uptake of home dialysis in Europe: understanding the present and looking to the future
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Brown, Edwina A, primary, Brivio, Giulia Boni, additional, and Van Biesen, Wim, additional
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- 2024
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22. WCN24-2160 SUBSTANTIAL SEX DIFFERENCES IN PERITONEAL DIALYSIS OUTCOMES: RESULTS FROM PDOPPS
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Brown, Edwina, primary, Albakr, Rehab, additional, Bieber, Brian, additional, Sylvertooth, Dhajanae, additional, Jesudason, Shilpanjali, additional, Johnson, David, additional, Kawanishi, Hideki, additional, Nitta, Kosuka, additional, Kim, Yong-Lim, additional, Kanjanabuch, Talerngsak, additional, Naljayan, Mihran, additional, Pecoits-Filho, Roberto, additional, Pisoni, Ronald L., additional, and Perl, Jeffrey, additional
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- 2024
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23. WCN24-616 Influencing Factors and Prognostic Value of Intraperitoneal Pressure (IPP) in Peritoneal Dialysis (PD) patients: A systematic review and meta-analysis
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Leung, Ka Chun, primary, Mahony, Stephen, additional, Corbett, Richard, additional, and Brown, Edwina, additional
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- 2024
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24. Older Age and Advanced Kidney Disease
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Schofield, Guy, additional, Dani, Melanie, additional, Brown, Edwina, additional, Beckwith, Hannah, additional, and Shivakumar, Oshini, additional
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- 2024
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25. Nephrologists’ perspectives on communication and decision-making regarding technique survival in peritoneal dialysis: an international qualitative interview study
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Yudianto, Benedicta, primary, Jaure, Allison, additional, Shen, Jenny, additional, Cho, Yeoungjee, additional, Brown, Edwina, additional, Dong, Jie, additional, Dunning, Tony, additional, Mehrotra, Rajnish, additional, Naicker, Saraladevi, additional, Pecoits-Filho, Roberto, additional, Perl, Jeffrey, additional, Wang, Angela Yee-Moon, additional, Wilkie, Martin, additional, Guha, Chandana, additional, Scholes-Robertson, Nicole, additional, Craig, Jonathan, additional, Johnson, David, additional, and Manera, Karine, additional
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- 2024
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26. Perceptions of Illness Severity, Treatment Goals, and Life Expectancy: The ePISTLE Study
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Beckwith, Hannah K.S., Adwaney, Anamika, Appelbe, Maura, Gaffney, Helen T., Hill, Peter, Moabi, Dihlabelo, Prout, Virginia L., Salisbury, Emma, Webster, Phil, Tomlinson, James A.P., and Brown, Edwina A.
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- 2021
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27. PD in the Older Person
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Corbett, Richard W., primary and Brown, Edwina A., additional
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- 2022
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28. Standardized Outcomes in Nephrology—Peritoneal Dialysis (SONG-PD): Study Protocol for Establishing a Core Outcome Set in PD
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Manera, Karine E, Tong, Allison, Craig, Jonathan C, Brown, Edwina A, Brunier, Gillian, Dong, Jie, Dunning, Tony, Mehrotra, Rajnish, Naicker, Sarala, Pecoits-Filho, Roberto, Perl, Jeffrey, Wang, Angela Y, Wilkie, Martin, Howell, Martin, Sautenet, Benedicte, Evangelidis, Nicole, Shen, Jenny I, and Johnson, David W
- Subjects
Biomedical and Clinical Sciences ,Clinical Sciences ,Clinical Research ,Comparative Effectiveness Research ,Clinical Trials and Supportive Activities ,Kidney Disease ,8.4 Research design and methodologies (health services) ,7.3 Management and decision making ,Management of diseases and conditions ,Health and social care services research ,Consensus ,Humans ,Nephrology ,Outcome Assessment ,Health Care ,Peritoneal Dialysis ,Research Design ,Systematic Reviews as Topic ,Core outcome set ,outcomes research ,patientreported outcomes ,patient-centered outcomes ,clinical trials ,dialysis ,peritoneal dialysis ,chronic kidney disease ,SONG-PD Investigators ,patient-reported outcomes ,Urology & Nephrology ,Clinical sciences - Abstract
BackgroundWorldwide, approximately 11% of patients on dialysis receive peritoneal dialysis (PD). Whilst PD may offer more autonomy to patients compared with hemodialysis, patient and caregiver burnout, technique failure, and peritonitis remain major challenges to the success of PD. Improvements in care and outcomes are likely to be mediated by randomized trials of innovative therapies, but will be limited if the outcomes measured and reported are not important for patients and clinicians. The aim of the Standardised Outcomes in Nephrology-Peritoneal Dialysis (SONG-PD) study is to establish a set of core outcomes for trials in patients on PD based on the shared priorities of all stakeholders, so that outcomes of most relevance for decision-making can be evaluated, and that interventions can be compared reliably.MethodsThe 5 phases in the SONG-PD project are: a systematic review to identify outcomes and outcome measures that have been reported in randomized trials involving patients on PD; focus groups using nominal group technique with patients and caregivers to identify, rank, and describe reasons for their choice of outcomes; semi-structured key informant interviews with health professionals; a 3-round international Delphi survey involving a multi-stakeholder panel; and a consensus workshop to review and endorse the proposed set of core outcome domains for PD trials.DiscussionThe establishment of 3 to 5 high-priority core outcomes, to be measured and reported consistently in all trials in PD, will enable patients and clinicians to make informed decisions about the relative effectiveness of interventions, based upon outcomes of common importance.
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- 2017
29. Establishing Core Outcome Domains in Hemodialysis: Report of the Standardized Outcomes in Nephrology–Hemodialysis (SONG-HD) Consensus Workshop
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Tong, Allison, Manns, Braden, Hemmelgarn, Brenda, Wheeler, David C, Evangelidis, Nicole, Tugwell, Peter, Crowe, Sally, Van Biesen, Wim, Winkelmayer, Wolfgang C, O'Donoghue, Donal, Tam-Tham, Helen, Shen, Jenny I, Pinter, Jule, Larkins, Nicholas, Youssouf, Sajeda, Mandayam, Sreedhar, Ju, Angela, Craig, Jonathan C, Collins, Allan, Narva, Andrew, Sautenet, Benedicte, Powell, Billy, Hurd, Brenda, Barrett, Brendan, Schiller, Brigitte, Culleton, Bruce, Hawley, Carmel, Pollock, Carol, Lok, Charmaine, Wanner, Christoph, Chan, Christopher, Weiner, Daniel, Harris, David, Johnson, David, Rosenbloom, David, Rifkin, Dena, Bookman, Deshia, Brown, Edwina, Bavlovlenkov, Elena, Tentori, Francesca, Williams, Jack, Schell, Jane, Flythe, Jennifer, Ix, Joachim, Raimann, Jochen, Andress, Joel, Agar, John, Daugirdas, John, Gill, John, Kusek, John, Polkinghorne, Kevan, Abbott, Kevin, Usyvat, Len, Krishnan, Mahesh, Tonelli, Marcello, Marshall, Mark, Gallagher, Martin, Germain, Michael, Walsh, Michael, Zappitelli, Michael, Josephson, Michelle, Burrows, Nilka Rios, Houston, Orlando, Kerr, Peter, Kotanko, Peter, Roy-Chaudhury, Prabir, Morton, Rachael, Mehrotra, Raj, van den Dorpel, Rene, Suri, Rita, Wald, Ron, Apata, Ronke, Gibson, Shalia, Evered, Sharrilyn, Fadem, Stephen, McDonald, Stephen, Holt, Steve, Kee, Terence, Wheeler, David, Harris, Tess, and Winkelmayer, Wolfgang
- Subjects
Bioengineering ,Comparative Effectiveness Research ,Kidney Disease ,Assistive Technology ,Generic health relevance ,Good Health and Well Being ,Humans ,Kidney Failure ,Chronic ,Nephrology ,Outcome Assessment ,Health Care ,Renal Dialysis ,Clinical research ,consensus ,hemodialysis ,outcomes ,standardized reporting ,core outcome set ,research quality ,research priorities ,patient-centered care ,nephrology research ,workshop report ,end-stage renal disease ,SONG-HD Investigators ,Clinical Sciences ,Public Health and Health Services ,Urology & Nephrology - Abstract
Evidence-informed decision making in clinical care and policy in nephrology is undermined by trials that selectively report a large number of heterogeneous outcomes, many of which are not patient centered. The Standardized Outcomes in Nephrology-Hemodialysis (SONG-HD) Initiative convened an international consensus workshop on November 7, 2015, to discuss the identification and implementation of a potential core outcome set for all trials in hemodialysis. The purpose of this article is to report qualitative analyses of the workshop discussions, describing the key aspects to consider when establishing core outcomes in trials involving patients on hemodialysis therapy. Key stakeholders including 8 patients/caregivers and 47 health professionals (nephrologists, policymakers, industry, and researchers) attended the workshop. Attendees suggested that identifying core outcomes required equitable stakeholder engagement to ensure relevance across patient populations, flexibility to consider evolving priorities over time, deconstruction of language and meaning for conceptual consistency and clarity, understanding of potential overlap and associations between outcomes, and an assessment of applicability to the range of interventions in hemodialysis. For implementation, they proposed that core outcomes must have simple, inexpensive, and validated outcome measures that could be used in clinical care (quality indicators) and trials (including pragmatic trials) and endorsement by regulatory agencies. Integrating these recommendations may foster acceptance and optimize the uptake and translation of core outcomes in hemodialysis, leading to more informative research, for better treatment and improved patient outcomes.
- Published
- 2017
30. Informing the Risk of Kidney Transplantation Versus Remaining on the Waitlist in the Coronavirus Disease 2019 Era
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Appelbe, Maura, Brown, Edwina, Cairns, Tom, Clerkin, Caroline, Condon, Marie, Corbett, Richard W., Crane, Jeremy, Dor, Frank, Duncan, Neill, Edwards, Claire, Fernandes da costa, Fabiana, Frankel, Andrew, Goodall, Dawn, Harris, Julie, Harris, Sharon, Herbert, Paul, Hill, Peter, Kousios, Andreas, Levy, Jeremy B., Liu, Lian, Loucaidou, Marina, Lynch, Kathleen, Medjeral-Thomas, Nicholas, Moabi, Dihlabelo, Muthusamy, Anand, Nevin, Margaret, Palmer, Andrew, Parsons, Darren, Prout, Virginia, Punzalan, Sue, Salisbury, Emma, Sandhu, Eleanor, Smith, Colin, Storey, Roland, Tanna, Anisha, Tansey, Katie, Thomas, David, Tomlinson, James, Papalois, Vassilios, Webster, Phil, Yang, Dejing, Clarke, Candice, Lucisano, Gaetano, Prendecki, Maria, Gleeson, Sarah, Martin, Paul, Ali, Mahrukh, McAdoo, Stephen P., Lightstone, Liz, Ashby, Damien, Charif, Rawya, Griffith, Megan, McLean, Adam, and Willicombe, Michelle
- Published
- 2021
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31. A genome-wide association study suggests correlations of common genetic variants with peritoneal solute transfer rates in patients with kidney failure receiving peritoneal dialysis
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Pisoni, Ronald, Robinson, Bruce, Johnson, David, Cho, Yeoungjee, Wong, Muh Geot, Mather, Amanda, Cooper, Bruce, Devuyst, Olivier, Morelle, Johann, Goffin, Eric, Bammens, Bert, Bovy, Philippe, Margetts, Peter, Perl, Jeffrey, Taylor, Paul, Jain, Arsh, Jassal, Vanita, Stenvinkel, Peter, Heimburger, Olof, Kuan, Ying, Harron, Camille, Dasgupta, Indranil, Stoves, John, Akbani, Habib, Abeygunasekara, Sumith, Sharples, Edward, Mead, Paul, Hayat, Amer, Morgan, Neal, Cramp, Hilary, Robertson, Susan, Fielding, Richard, Brown, Edwina, Collinson, Helen, Ande, Pravene, Doulton, Tim, MacDougall, Iain, Cairns, Hugh, Vilar, Enric, Vardhan, Anand, Chess, James, Sandhu, Kanwaljit, Wilkie, Martin, McHaffie, Gavin, Lewis, Robert, Kamesh, Lavanya, Buck, Kate, Peel, Robert, Taylor, Jo, Johnston, Paul, Leung, Janson, Bingham, Coralie, Anijeet, Hameed, Asghar, Ramzana, Ranakrishna, Satish, Nair, Sunita, Iggo, Neil, Lewis, David, Udayaraj, Uday, Dawson, Susan, Woordrow, Graham, Chandrasekar, Thangavelu, Hamer, Rizwan, Barratt, Jonathan, Baines, Richard, Davies, Simon, Donovan, Kieron, Jones, Colin, Ynares, Christina, Dukes, Carl, Imam, Talha H., Corapi, Kristin, Nigwekar, Sagar, Khawar, Osman, Weiner, Daniel, Lau, Wei Ling, Harley, Kevin, Ghaffari, Arshia, Saxena, Ramesh, Abraham, Josephine, Mehrotra, Rajnish, Himmelfarb, Jonathan, Cavanaugh, Kerri L., Golper, Thomas A., Burkart, John M., Pirkle, James L., Miller, Brent, Jang, Judy, Turner, Jeffrey, Stanaway, Ian B., Jarvik, Gail P., Lambie, Mark, Johnson, David W., and Davies, Simon J.
- Published
- 2021
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32. Strategic plan for integrated care of patients with kidney failure
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Abu Alfa, Ali K., Ashuntantang, Gloria, Brown, Edwina, Cullis, Brett, Dreyer, Gavin, Eke, Felicia U., Garcia, Guillermo Garcia, Goh, Bak Leong, Hemmelgarn, Brenda, Hou, Fan Fan, Iyengar, Arpana, Johnson, David W., Levin, Nathan W., Luyckx, Valerie A., Martin, Dominique E., McCulloch, Mignon I., Mengistu, Yewondwossesn Tadesse, Moosa, Mohammed Rafique, Morton, Rachael L., Niang, Abdou, Obrador, Gregorio T., Okpechi, Ikechi G., Ossareh, Shahrzad, Shah, Kamal D., Sola, Laura, Swanepoel, Charles, Tchokhonelidze, Irma, Tonelli, Marcello, Trask, Michele, Kazancioglu, Rumeyza Turan, Twahir, Ahmed, Walker, Robert, Were, Anthony J.O., Yang, Chih-Wei, Yeates, Karen, Zakharova, Elena, Zuniga, Carlos, Harris, David C.H., Davies, Simon J., Finkelstein, Fredric O., Jha, Vivekanand, Bello, Aminu K., Brown, Mark, Caskey, Fergus J., Donner, Jo-Ann, Liew, Adrian, Muller, Elmi, Naicker, Saraladevi, O’Connell, Philip J., Filho, Roberto Pecoits, and Vachharajani, Tushar
- Published
- 2020
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33. The Role of Nephrology Nurses in Symptom Management – Reflections on the Kidney Disease: Improving Global Outcomes Controversies Conference on Symptom-Based Complications in Dialysis Care
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Ng, Marques Shek Nam, primary, Brown, Edwina A., additional, Cheung, Michael, additional, Figueiredo, Ana Elizabeth, additional, Hurst, Helen, additional, King, Jennifer M., additional, Mehrotra, Rajnish, additional, Pryor, Lillian, additional, Walker, Rachael C., additional, Wasylynuk, Betty Ann, additional, and Bennett, Paul N., additional
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- 2023
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34. Managing the symptom burden associated with maintenance dialysis: conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference
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Mehrotra, Rajnish, primary, Davison, Sara N., additional, Farrington, Ken, additional, Flythe, Jennifer E., additional, Foo, Marjorie, additional, Madero, Magdalena, additional, Morton, Rachael L., additional, Tsukamoto, Yusuke, additional, Unruh, Mark L., additional, Cheung, Michael, additional, Jadoul, Michel, additional, Winkelmayer, Wolfgang C., additional, Brown, Edwina A., additional, Bagasha, Peace, additional, Bargman, Joanne M., additional, Bavanandan, Sunita, additional, Beckwith, Hannah, additional, Bennett, Paul N., additional, Bohm, Clara, additional, Brennan, Frank, additional, Burton, James O., additional, Cavanaugh, Kerri L., additional, Chilcot, Joseph, additional, Choi, Peter, additional, Cukor, Daniel, additional, Dember, Laura M., additional, Dong, Jie, additional, Edwards, Dawn, additional, Erickson, Kevin F., additional, Figueiredo, Ana, additional, Finkelstein, Fredric O., additional, Fukagawa, Masafumi, additional, Germain, Michael, additional, Guillano, Franklin B., additional, Hurst, Helen, additional, Iseki, Kunitoshi, additional, Jardine, Meg J., additional, Jauré, Allison, additional, Jha, Vivekanand, additional, Jhamb, Manisha, additional, Kanjanabuch, Talerngsak, additional, Lerma, Edgar, additional, Kam-Tao Li, Philip, additional, Liew, Adrian, additional, Małyszko, Jolanta, additional, Proenca de Moraes, Thyago, additional, Moranne, Olivier, additional, Nam Ng, Marques Shek, additional, Ostermann, Marlies, additional, Perl, Jeffrey, additional, Pigford, Jayne, additional, Pommer, Wolfgang, additional, Richardson, Michelle M., additional, Rivara, Matthew B., additional, Roberts, Glenda V., additional, Sarafidis, Pantelis, additional, Shroff, Rukshana, additional, Slon Roblero, Maria Fernanda, additional, Smyth, Brendan, additional, Søndergaard, Henning, additional, Van Der Veer, Sabine N., additional, Vassalotti, Joseph A., additional, Vervloet, Marc, additional, Vincent, Lloyd, additional, Walker, Rachael, additional, Warren, Madeleine, additional, Wasylynuk, Betty Ann, additional, West, Melissa, additional, and Wilkie, Caroline, additional
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- 2023
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35. Geriatric Nephrology Syndromes and Assessment and Management of Cognitive Impairment
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Brown, Edwina A., additional and Iyasere, Osasuyi, additional
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- 2020
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36. Overview of Catheter Choices and Implantation Techniques
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Di Cocco, Pierpaolo, Brown, Edwina A., Papalois, Vassilios E., Dor, Frank J. M. F., and Haggerty, Stephen, editor
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- 2017
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37. Management of Hernias in the Context of Peritoneal Dialysis
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Di Cocco, Pierpaolo, Papalois, Vassilios E., Brown, Edwina A., Dor, Frank J. M. F., and Haggerty, Stephen, editor
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- 2017
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38. Delivering Person-Centered Peritoneal Dialysis
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Corbett, Richard W., primary, Beckwith, Hannah, additional, Lucisano, Gaetano, additional, and Brown, Edwina A., additional
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- 2023
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39. Introducing the International Home Dialysis Consortium
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Brown, Edwina A., primary, Jha, Vivekhand, additional, Abdou, Niang, additional, Bavanandan, Sunita, additional, Liew, Adrian, additional, Madero, Magdalena, additional, Mitra, Sandip, additional, Nygård, Henriette Tyse, additional, Saxena, Anjali, additional, Schmitt, Claus Peter, additional, and Tchokhonelidze, Irma, additional
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- 2023
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40. Peritoneal Dialysis for the Elderly
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Brown, Edwina A. and Misra, Madhukar, editor
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- 2016
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41. How to Choose the Type of Dialysis in the Elderly Patient
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Johansson, Lina, Brown, Edwina A., and Misra, Madhukar, editor
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- 2016
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42. Capacity for the management of kidney failure in the International Society of Nephrology Western Europe region: report from the 2023 ISN Global Kidney Health Atlas (ISN-GKHA)
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Pippias, Maria, Alfano, Gaetano, Kelly, Dearbhla M., Soler, Maria Jose, De Chiara, Letizia, Olanrewaju, Timothy O., Arruebo, Silvia, Bello, Aminu K., Caskey, Fergus J., Damster, Sandrine, Donner, Jo-Ann, Jha, Vivekanand, Johnson, David W., Levin, Adeera, Malik, Charu, Nangaku, Masaomi, Okpechi, Ikechi G., Tonelli, Marcello, Ye, Feng, Coppo, Rosanna, Lightstone, Liz, Amouzegar, Atefeh, Anders, Hans-Joachim, Baharani, Jyoti, Banerjee, Debasish, Bikbov, Boris, Brown, Edwina A., Cho, Yeoungjee, Claes, Kathleen, Clyne, Naomi, Davids, M. Razeen, Davison, Sara N., Diongole, Hassane M., Divyaveer, Smita, Dreyer, Gavin, Dudley, Jan, Ekrikpo, Udeme E., Ethier, Isabelle, Evans, Rhys D.R., Fan, Stanley L.S., Wing-Shing Fung, Winston, Gallieni, Maurizio, Ghimire, Anukul, Houston, Ghenette, Htay, Htay, Ibrahim, Kwaifa Salihu, Irish, Georgina, Jindal, Kailash, Khwaja, Arif, Lalji, Rowena, Liakopoulos, Vassilios, Luyckx, Valerie A., Macia, Manuel, Marti, Hans Peter, Messa, Piergiorgio, Müller, Thomas F., Nalado, Aisha M., Neuen, Brendon L., Nitsch, Dorothea, Nolasco, Fernando, Oberbauer, Rainer, Osman, Mohamed A., Papagianni, Aikaterini, Petrova, Anna, Piccoli, Giorgina Barbara, Plant, Liam, Remuzzi, Giuseppe, Riaz, Parnian, Roelofs, Joris J., Rudnicki, Michael, Saad, Syed, Sakajiki, Aminu Muhammad, Scheppach, Johannes B., See, Emily, Shroff, Rukshana, Solbu, Marit D., Sozio, Stephen M., Strippoli, Giovanni FM., Taal, Maarten W., Ashu, James Tataw, Tiv, Sophanny, Tungsanga, Somkanya, van der Net, Jeroen B., Vanholder, Raymond C., Viecelli, Andrea, Vinen, Katie, Vogt, Bruno, Wainstein, Marina, Weinstein, Talia, Wheeler, David C., Yeung, Emily K., and Zaidi, Deenaz
- Abstract
Western Europe boasts advanced health care systems, robust kidney care guidelines, and a well-established health care workforce. Despite this, significant disparities in kidney replacement therapy incidence, prevalence, and transplant access exist. This paper presents the third International Society of Nephrology Global Kidney Health Atlas’s findings on kidney care availability, accessibility, affordability, and quality in 22 Western European countries, representing 99% of the region’s population. The known chronic kidney disease (CKD) prevalence across Western Europe averages 10.6%, slightly above the global median. Cardiovascular diseases account for a substantial portion of CKD-related deaths. Kidney failure incidence varies. Government health expenditure differs; however, most countries offer government-funded acute kidney injury, dialysis, and kidney transplantation care. Hemodialysis and peritoneal dialysis are universally available, with variations in the number of dialysis centers. Kidney transplantation is available in all countries (except for 3 microstates), with variable transplant center prevalence. Conservative kidney management (CKM) is increasingly accessible. The region’s kidney care workforce is substantial, exceeding global averages; however, workforce shortages are reported. Barriers to optimal kidney care include limited workforce capacity, lack of surveillance mechanisms, and suboptimal integration into national noncommunicable disease (NCD) strategies. Policy recognition of CKD as a health priority varies across countries. Although Western Europe exhibits strong kidney care infrastructure, opportunities for improvement exist, particularly in CKD prevention, surveillance, awareness, and policy implementation. Efforts to improve CKD care should include automated detection, educational support, and enhanced workflows. Based on these findings, health care professionals, stakeholders, and policymakers are called to act to enhance kidney care across the region.
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- 2024
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43. Establishing Core Outcome Domains in Hemodialysis: Report of the Standardized Outcomes in Nephrology–Hemodialysis (SONG-HD) Consensus Workshop
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Collins, Allan, Narva, Andrew, Sautenet, Benedicte, Powell, Billy, Hurd, Brenda, Barrett, Brendan, Schiller, Brigitte, Culleton, Bruce, Hawley, Carmel, Pollock, Carol, Lok, Charmaine, Wanner, Christoph, Chan, Christopher, Weiner, Daniel, Harris, David, Johnson, David, Rosenbloom, David, Rifkin, Dena, Bookman, Deshia, Brown, Edwina, Bavlovlenkov, Elena, Tentori, Francesca, Williams, Jack, Schell, Jane, Flythe, Jennifer, Ix, Joachim, Raimann, Jochen, Andress, Joel, Agar, John, Daugirdas, John, Gill, John, Kusek, John, Polkinghorne, Kevan, Abbott, Kevin, Usyvat, Len, Krishnan, Mahesh, Tonelli, Marcello, Marshall, Mark, Gallagher, Martin, Germain, Michael, Walsh, Michael, Zappitelli, Michael, Josephson, Michelle, Burrows, Nilka Rios, Houston, Orlando, Kerr, Peter, Kotanko, Peter, Roy-Chaudhury, Prabir, Morton, Rachael, Mehrotra, Raj, Dorpel, Rene van den, Suri, Rita, Wald, Ron, Apata, Ronke, Gibson, Shalia, Evered, Sharrilyn, Fadem, Stephen, McDonald, Stephen, Holt, Steve, Kee, Terence, Manns, Braden, Hemmelgarn, Brenda, Wheeler, David, Harris, Tess, Winkelmayer, Wolfgang, Tong, Allison, O'Donoghue, Donal, Tam-Tham, Helen, Shen, Jenny, Pinter, Jule, Larkins, Nicholas, Evangelidis, Nicole, Van Den Dorpel, Rene, Parks, Reva, Youssouf, Sajeda, Mandayam, Sreedhar, Wheeler, David C., Tugwell, Peter, Crowe, Sally, Van Biesen, Wim, Winkelmayer, Wolfgang C., Shen, Jenny I., Ju, Angela, and Craig, Jonathan C.
- Published
- 2017
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44. 94 - Palliative Nephrology
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Brown, Edwina A. and Murtagh, Fliss E.
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- 2024
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45. Renal and urological disease
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Ide, Christopher W., primary and Brown, Edwina A., additional
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- 2019
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46. ISPD Catheter-related Infection Recommendations: 2023 Update
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Chow, Kai Ming, primary, Li, Philip Kam-Tao, additional, Cho, Yeoungjee, additional, Abu-Alfa, Ali, additional, Bavanandan, Sunita, additional, Brown, Edwina A, additional, Cullis, Brett, additional, Edwards, Dawn, additional, Ethier, Isabelle, additional, Hurst, Helen, additional, Ito, Yasuhiko, additional, de Moraes, Thyago Proença, additional, Morelle, Johann, additional, Runnegar, Naomi, additional, Saxena, Anjali, additional, So, Simon Wai-Yin, additional, Tian, Na, additional, and Johnson, David W, additional
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- 2023
- Full Text
- View/download PDF
47. Home dialysis: conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference
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Perl, Jeffrey, primary, Brown, Edwina A., additional, Chan, Christopher T., additional, Couchoud, Cécile, additional, Davies, Simon J., additional, Kazancioğlu, Rümeyza, additional, Klarenbach, Scott, additional, Liew, Adrian, additional, Weiner, Daniel E., additional, Cheung, Michael, additional, Jadoul, Michel, additional, Winkelmayer, Wolfgang C., additional, Wilkie, Martin E., additional, Abrahams, Alferso C., additional, Anumudu, Samaya J., additional, Bargman, Joanne M., additional, Moore, Geraldine Biddle, additional, Blake, Peter G., additional, Borman, Natalie, additional, Bowes, Elaine, additional, Burton, James O., additional, Caillette-Beaudoin, Agnes, additional, Cho, Yeoungjee, additional, Cullis, Brett, additional, Einbinder, Yael, additional, el Shamy, Osama, additional, Erickson, Kevin F., additional, Figueiredo, Ana E., additional, Finkelstein, Fred, additional, Fluck, Richard, additional, Flythe, Jennifer E., additional, Fotheringham, James, additional, Fukagawa, Masafumi, additional, Goffin, Eric, additional, Golper, Thomas A., additional, Gómez, Rafael, additional, Jha, Vivekanand, additional, Johnson, David W., additional, Kanjanabuch, Talerngsak, additional, Kim, Yong-Lim, additional, Lambie, Mark, additional, Lerma, Edgar V., additional, Lockridge, Robert S., additional, Loud, Fiona, additional, Masakane, Ikuto, additional, Matthews, Nicola, additional, McKane, Will, additional, Mendelssohn, David C., additional, Mettang, Thomas, additional, Mitra, Sandip, additional, Moraes, Thyago Proença de, additional, Morton, Rachael, additional, Mushahar, Lily, additional, Nadeau-Fredette, Annie-Claire, additional, Nayak, K.S., additional, Neumann, Joanna L., additional, Ngaruiya, Grace, additional, Okpechi, Ikechi, additional, Quinn, Robert R., additional, Rangaswami, Janani, additional, Reddy, Yuvaram N.V., additional, Schiller, Brigitte, additional, Shen, Jenny I., additional, Shroff, Rukshana, additional, Slon Roblero, Maria Fernanda, additional, Solá, Laura, additional, Søndergaard, Henning, additional, Teitelbaum, Isaac, additional, Tennankore, Karthik, additional, Van Ommeslaeghe, Floris, additional, Walker, Rachael C., additional, Walker, Robert J., additional, Wang, Angela Yee-Moon, additional, Warady, Bradley A., additional, Watnick, Suzanne, additional, Weinhandl, Eric D., additional, Wilkie, Caroline M., additional, and Williams, Jennifer, additional
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- 2023
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48. Health-related quality of life in kidney transplant recipients: can we do better?
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Beckwith, Hannah, primary and Brown, Edwina A, additional
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- 2023
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49. Pain Management in Chronic Kidney Disease
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Brown, Edwina A., Davison, Sara N., and Arici, Mustafa, editor
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- 2014
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50. Quality of Life, Functional Status, and Specific Medical Problems in Older Patients
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Banerjee, Gargi, Haase-Fielitz, Anja, Brown, Edwina A., Haase, Michael, editor, and Haase-Fielitz, Anja, editor
- Published
- 2014
- Full Text
- View/download PDF
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