10 results on '"Botjes E"'
Search Results
2. The importance of accurate and understandable food allergen labelling for food-allergic consumers
- Author
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Cornelisse-Vermaat, J.R., Botjes, E., Frewer, L.J., and Voordouw, J.
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Marketing and Consumer Behaviour ,MGS ,digestive, oral, and skin physiology ,Life Science ,Marktkunde en Consumentengedrag - Abstract
New EU regulations regarding food allergen labelling were introduced in 2005. These rules were introduced to ensure that 12 potential food allergens are labelled if they are included as ingredients in food products. The question arises as to whether food-allergic consumers will benefit from the new labelling requirements. A study was conducted in the Netherlands and Greece where researchers observed 40 food-allergic consumers whilst they were grocery shopping for a list of potentially problematic foods. The participants in the study described many problems associated with current food labelling practices, which did not meet the needs of food allergic consumers. Problems were reported regarding readability of fonts, and identifying allergen information on the label which also contained other allergen information. Moreover, information included on the label was not always trusted by the food-allergic consumer, which may cause feelings of insecurity and stress. In particular, participants reported problems with 'may contain' labelling. Recommendations Regarding improvements to existing labelling practices include not only "on package" labelling. but also the introduction of new approaches to food labelling using novel ICT-solutions which may improve the allergen labelling and information provision, particularly from the perspective of individualising information to specific consumer needs.
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- 2007
3. Parental knowledge, attitudes and beliefs regarding food allergy in the Netherlands – a cross-cultural comparison with the USA
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Goossens, NJ, primary, Flokstra-de Blok, B, additional, vd Meulen, G, additional, Botjes, E, additional, Burgerhof, J, additional, Gupta, R, additional, Springston, E, additional, Smith, B, additional, Duiverman, E, additional, and Dubois, A, additional
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- 2013
- Full Text
- View/download PDF
4. The prevalence, cost and basis of food allergy across Europe
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Mills, E.N.C., Mackie, A.R., Burney, P., Beyer, K., Frewer, L., Madsen, Charlotte Bernhard, Botjes, E., Crevel, R.W.R., van Ree, R., Mills, E.N.C., Mackie, A.R., Burney, P., Beyer, K., Frewer, L., Madsen, Charlotte Bernhard, Botjes, E., Crevel, R.W.R., and van Ree, R.
- Abstract
The development of effective management strategies to optimize the quality of life for allergic patients is currently hampered by a lack of good quality information. Estimates of how many individuals suffer from food allergy and the major foods involved vary widely and inadequacies of in vitro diagnostics make food challenges the only reliable means of diagnosis in many instances. The EuroPrevall project brings together a multidisciplinary partnership to address these issues. Cohorts spanning the main climatic regions of Europe are being developed in infants through a birth cohort, community surveys in school-age children and adults and an outpatient clinic study. Confirmatory double-blind placebo-controlled food challenge diagnosis is being undertaken using foods as they are eaten with titrated doses to allow no-effect and lowest-observable effect levels for allergenic foods to be determined. The cohorts will also facilitate validation of novel in vitro diagnostics through the development of the EuroPrevall Serum Bank. Complementary studies in Ghana, western Siberia, India and China will allow LIS to gain insights into how different dietary patterns and exposure to microorganisms affect food allergies. New instruments to assess the socioeconomic impact of food allergy are being developed in the project and their application in the clinical cohorts will allow, for the first time, an assessment to be made of the burden this disease places on allergy sufferers and their communities.
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- 2007
5. The prevalence, cost and basis of food allergy across Europe
- Author
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Mills, E. N. C., Mackie, A. R., Burney, P., Beyer, K., Frewer, L., Charlotte Bernhard Madsen, Botjes, E., Crevel, R. W. R., and Ree, R.
- Subjects
Marketing and Consumer Behaviour ,MGS ,Marktkunde en Consumentengedrag ,multicenter - Abstract
The development of effective management strategies to optimize the quality of life for allergic patients is currently hampered by a lack of good quality information. Estimates of how many individuals suffer from food allergy and the major foods involved vary widely and inadequacies of in vitro diagnostics make food challenges the only reliable means of diagnosis in many instances. The EuroPrevall project brings together a multidisciplinary partnership to address these issues. Cohorts spanning the main climatic regions of Europe are being developed in infants through a birth cohort, community surveys in school-age children and adults and an outpatient clinic study. Confirmatory double-blind placebo-controlled food challenge diagnosis is being undertaken using foods as they are eaten with titrated doses to allow no-effect and lowest-observable effect levels for allergenic foods to be determined. The cohorts will also facilitate validation of novel in vitro diagnostics through the development of the EuroPrevall Serum Bank. Complementary studies in Ghana, western Siberia, India and China will allow us to gain insights into how different dietary patterns and exposure to microorganisms affect food allergies. New instruments to assess the socioeconomic impact of food allergy are being developed in the project and their application in the clinical cohorts will allow, for the first time, an assessment to be made of the burden this disease places on allergy sufferers and their communities. IgE-mediated food allergy is a disease affecting all age groups and because the only treatment is still avoidance (1), it changes quality of life in a profoundly negative way (2). Allergy sufferers have to deal with disbelief about their condition and face difficulties in managing their social life. Patients¿ (or allergic children¿s parents¿) anxiety about severe reactions can lead to social isolation and mental health problems (3). Everyday activities become complicated, requiring forethought and preparation, even extending to the need for special diets during hospitalization. Clear food labelling regarding food allergens is essential to help allergic consumers manage their condition, although precautionary labelling can lead to unnecessary restrictions (4). Such social problems are compounded by the fact that, whilst knowledge of the diagnosis and treatment of food allergy by health professionals and dieticians should be standard, it is frequently inadequate (5). The majority of food allergies are IgE-mediated, but sensitization to a specific food does not always lead to clinical reactivity. Consequently serological tests for food-specific IgE cannot be used alone for diagnosis. As a consequence of inadequate diagnostic procedures, food allergy is sometimes over-diagnosed (6). On the other hand, food allergy is also often not recognized or incorrectly treated. Therefore, patients still leave the hospital without either a prescription for self-injectable adrenaline or even referral to an allergy specialist after treatment for acute anaphylaxis (7). Within this context it is the objective of the EU-funded integrated project EuroPrevall (http://www.europrevall.org) to deliver the information and tools necessary for policy makers, regulators, clinicians and allergic consumers, together with the food industry, to effectively manage food allergies and the allergens that cause them. This is being undertaken in a pan-European manner with a view of improving the quality of life of food allergic consumers. The project includes 56 partners from 21 different countries (from 19 European countries, Ghana, India and China) with additional collaborating centres and partners from the USA, Australia and New Zealand.
6. European Summit on the Prevention and Self-Management of Chronic Respiratory Diseases : report of the European Union Parliament Summit (29 March 2017)
- Author
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Jean Bousquet, Guy Joos, Sven Seys, S. Pietikainen, Valerie J. Lund, Claire Hopkins, Maddalena Illario, Benoit Pugin, Tari Haahtela, Michael Bewick, Arunas Valiulis, David Borrelli, Erna Botjes, Cezmi A. Akdis, Pär Stjärne, Claus Bachert, Jannis Constantinidis, Wytske Fokkens, Peter Hellings, Erkka Valovirta, Antonella Muraro, Ioana Agache, David Somekh, Hellings, P. W., Borrelli, D., Pietikainen, S., Agache, I., Akdis, C., Bachert, C., Bewick, M., Botjes, E., Constantinidis, J., Fokkens, W., Haahtela, T., Hopkins, C., Illario, M., Joos, G., Lund, V., Muraro, A., Pugin, B., Seys, S., Somekh, D., Stjarne, P., Valiulis, A., Valovirta, E., and Bousquet, J.
- Subjects
Pulmonary and Respiratory Medicine ,Allergy ,Parliament ,Patient Empowerment ,IMPACT ,media_common.quotation_subject ,Immunology ,EUFOREA ,Context (language use) ,CHRONIC RHINOSINUSITIS ,Mobile health technology ,Review ,Public administration ,03 medical and health sciences ,0302 clinical medicine ,PRECISION MEDICINE ,Medicine and Health Sciences ,IMPLEMENTATION ,Immunology and Allergy ,Medicine ,media_common.cataloged_instance ,030212 general & internal medicine ,European union ,media_common ,geography ,Summit ,geography.geographical_feature_category ,Self-management ,business.industry ,INNOVATION PARTNERSHIP ,RHINITIS ,ALLERGY PROGRAM 2008-2018 ,Advocacy ,RC581-607 ,Precision medicine ,eye diseases ,Asthma ,3. Good health ,TIME ,030228 respiratory system ,Action plan ,GA(2)LEN ,Immunologic diseases. Allergy ,business - Abstract
On March 29, 2017, a European Summit on the Prevention and Self-Management of Chronic Respiratory Diseases (CRD) was organized by the European Forum for Research and Education in Allergy and Airway Diseases. The event took place in the European Parliament of Brussels and was hosted by MEP David Borrelli and MEP Sirpa Pietikainen. The aim of the Summit was to correspond to the needs of the European Commission and of patients suffering from CRD to join forces in Europe for the prevention and self-management. Delegates of the European Rhinologic Society, European Respiratory Society, European Academy of Allergy and Clinical Immunology, European Academy of Paediatrics, and European Patients Organization EFA all lectured on their vision and action plan to join forces in achieving adequate prevention and self-management of CRD in the context of Precision Medicine. Recent data highlight the preventive capacity of education on optimal care pathways for CRD. Self-management and patient empowerment can be achieved by novel educational on-line materials and by novel mobile health tools enabling patients and doctors to monitor and optimally treat CRDs based on the level of control. This report summarizes the contributions of the representatives of different European academic stakeholders in the field of CRD. ispartof: Clinical and Translational Allergy vol:7 issue:1 pages:49- ispartof: location:England status: published
- Published
- 2017
7. Core Outcome Set for IgE-mediated food allergy clinical trials and observational studies of interventions: International Delphi consensus study 'COMFA'.
- Author
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Demidova A, Drewitz KP, Kimkool P, Banjanin N, Barzylovich V, Botjes E, Capper I, Castor MAR, Comberiati P, Cook EE, Costa J, Chu DK, Epstein MM, Galvin AD, Giovannini M, Girard F, Golding MA, Greenhawt M, Ierodiakonou D, Jones CJ, Khaleva E, Knibb RC, Macit-Çelebi MS, Mack DP, Mafra I, Marchisotto MJ, Mijakoski D, Nekliudov N, Özdemir C, Patel N, Pazukhina E, Protudjer JLP, Rodríguez Del Rio P, Roomet J, Sammut P, Schoos AM, Schopfer AF, Schultz F, Seylanova N, Skypala I, Sørensen M, Stoleski S, Stylianou E, Upton J, van de Veen W, Genuneit J, Boyle RJ, Apfelbacher C, and Munblit D
- Subjects
- Humans, Delphi Technique, Immunoglobulin E, Outcome Assessment, Health Care, Research Design, Treatment Outcome, Clinical Trials as Topic, Observational Studies as Topic, Food Hypersensitivity diagnosis, Food Hypersensitivity therapy, Quality of Life
- Abstract
Background: IgE-mediated food allergy (FA) is a global health concern with substantial individual and societal implications. While diverse intervention strategies have been researched, inconsistencies in reported outcomes limit evaluations of FA treatments. To streamline evaluations and promote consistent reporting, the Core Outcome Measures for Food Allergy (COMFA) initiative aimed to establish a Core Outcome Set (COS) for FA clinical trials and observational studies of interventions., Methods: The project involved a review of published clinical trials, trial protocols and qualitative literature. Outcomes found as a result of review were categorized and classified, informing a two-round online-modified Delphi process followed by hybrid consensus meeting to finalize the COS., Results: The literature review, taxonomy mapping and iterative discussions with diverse COMFA group yielded an initial list of 39 outcomes. The iterative online and in-person meetings reduced the list to 13 outcomes for voting in the formal Delphi process. One more outcome was added based on participant suggestions after the first Delphi round. A total of 778 participants from 52 countries participated, with 442 participating in both Delphi rounds. No outcome met a priori criteria for inclusion, and one was excluded as a result of the Delphi. Thirteen outcomes were brought to the hybrid consensus meeting as a result of Delphi and two outcomes, 'allergic symptoms' and 'quality of life' achieved consensus for inclusion as 'core' outcomes., Conclusion: In addition to the mandatory reporting of adverse events for FA clinical trials or observational studies of interventions, allergic symptoms and quality of life should be measured as core outcomes. Future work by COMFA will define how best to measure these core outcomes., (© 2024 The Authors. Allergy published by European Academy of Allergy and Clinical Immunology and John Wiley & Sons Ltd.)
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- 2024
- Full Text
- View/download PDF
8. European Summit on the Prevention and Self-Management of Chronic Respiratory Diseases: report of the European Union Parliament Summit (29 March 2017).
- Author
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Hellings PW, Borrelli D, Pietikainen S, Agache I, Akdis C, Bachert C, Bewick M, Botjes E, Constantinidis J, Fokkens W, Haahtela T, Hopkins C, Illario M, Joos G, Lund V, Muraro A, Pugin B, Seys S, Somekh D, Stjärne P, Valiulis A, Valovirta E, and Bousquet J
- Abstract
On March 29, 2017, a European Summit on the Prevention and Self-Management of Chronic Respiratory Diseases (CRD) was organized by the European Forum for Research and Education in Allergy and Airway Diseases. The event took place in the European Parliament of Brussels and was hosted by MEP David Borrelli and MEP Sirpa Pietikainen. The aim of the Summit was to correspond to the needs of the European Commission and of patients suffering from CRD to join forces in Europe for the prevention and self-management. Delegates of the European Rhinologic Society, European Respiratory Society, European Academy of Allergy and Clinical Immunology, European Academy of Paediatrics, and European Patients Organization EFA all lectured on their vision and action plan to join forces in achieving adequate prevention and self-management of CRD in the context of Precision Medicine. Recent data highlight the preventive capacity of education on optimal care pathways for CRD. Self-management and patient empowerment can be achieved by novel educational on-line materials and by novel mobile health tools enabling patients and doctors to monitor and optimally treat CRDs based on the level of control. This report summarizes the contributions of the representatives of different European academic stakeholders in the field of CRD.
- Published
- 2017
- Full Text
- View/download PDF
9. Food allergy knowledge of parents - is ignorance bliss?
- Author
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Goossens NJ, Flokstra-de Blok BM, van der Meulen GN, Botjes E, Burgerhof HG, Gupta RS, Springston EE, Smith B, Duiverman EJ, and Dubois AE
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- Child, Cross-Cultural Comparison, Humans, Netherlands, Parents, Patient Education as Topic statistics & numerical data, Quality Improvement, Quality of Life, United States, Food Hypersensitivity epidemiology, Health Knowledge, Attitudes, Practice, Socioeconomic Factors
- Abstract
Background: Food allergic children are at least partially dependent on their parents to care for their food allergy. In addition, parents are often responsible for the education of others regarding food allergy, including the family, school, neighbors, and friends. The aim of this study was to investigate food allergy knowledge, attitudes, and beliefs of parents with food allergic children in the Netherlands. In addition, a cross-cultural comparison was made between parents from the USA and parents from the Netherlands., Methods: The original Chicago Food Allergy Research Survey for Parents of Children with Food Allergy (CFARS-PRNT) was translated into Dutch. Parents of children with at least one doctor-diagnosed food allergy were included. Knowledge scores and attitude/beliefs scores were determined and compared with the data from 2945 parents from the USA. Predictors of overall knowledge scores were investigated., Results: Dutch parents of children completed the translated CFARS-PRNT (n = 299). The mean overall knowledge score in the Netherlands was 9.9 after adjusting for guessing, compared with 12.7 in the USA (p < 0.001). Attitudes and beliefs regarding food allergy among parents from the Netherlands were generally more optimistic. The overall knowledge scores could be predicted by country of origin, educational degree, being member of a patient organization, visiting an allergist, and a history of anaphylaxis., Conclusions: Food allergy knowledge among parents of food allergic children from the Netherlands is suboptimal when compared with their counterparts from the USA, although these parents tend to be more optimistic toward food allergy than parents from the USA., (© 2013 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd.)
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- 2013
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10. [Experience of a workload study in the Spaarn Hospital].
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Botjes E
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- Algorithms, Hospital Units, Hospitals, General, Humans, Netherlands, Neurology, Pilot Projects, Nursing Service, Hospital organization & administration, Task Performance and Analysis, Workload
- Published
- 1991
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