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This report, entitled “Record of Dissemination and Communication Activities in Year 1 and Plan for Year 2” will outline how the objectives set out in D9.2, “First Year Plan for Dissemination and Communication of Project Results” were carried out and achieved. Furthermore, this report will outline the strategy for ensuring the continued and efficient dissemination of PRIMAGE activities, progress and achievements during the second year of the project. The different sections of this report will address the actions that were taken by SIOPE and its partners during M1-M12 of the PRIMAGE Project, showing how optimal visibility and wide outreach to all stakeholders was achieved using the toolkit which was developed, as well as how results were disseminated to the scientific community, using the appropriate communication channels and dissemination tools. The D9.2 plan, together with the dissemination toolkit, were submitted to the EC Funding and Tender Portal on the 31st of March, 2019. It is also available from the PRIMAGE shared document repository here: https://drive.google.com/drive/u/0/folders/1Z8bc18BDzaMmk8cKvQpzBQLiBukJ8ky4, Links to the elements in the toolkit are included at the end of this document.

This “First Year Plan for Dissemination and Communication of Project Results” will outline the proposed strategy and plan to meet the expectations and needs of the project. It outlines the procedures and key actions ensuring they are implemented and followed. In addition, the Plan lists the tools to be used and target groups to be reached. The “First Year Plan for Dissemination and Communication of Project Results” corresponds to WP9 on Communication, Dissemination & Exploitation and specifically deliverable D9.2 as outlined in Annex I (Part A) of the Grant Agreement. The overall “First Year Plan for Dissemination and Communication of Project Results” for PRIMAGE is based on the defined internal management rules, methodologies and work plan specified in the Grant Agreement. The objective of deliverable D9.2 is to outline the strategy for ensuring coherent and efficient dissemination of PRIMAGE activities, progress and achievements throughout the project. It will outline how optimal visibility and wide outreach to all stakeholders will be achieved, as well as how results will be disseminated to the scientific community, using the appropriate communication channels and dissemination tools. This deliverable includes a dissemination toolkit, consisting of design elements, templates and a project website. Links to the elements in the toolkit are included at the end of this document.

This report, entitled “Record of Dissemination and Communication Activities in Year 2 and Plan for Year 3” will outline how the objectives set out in D9.2, “First Year Plan for Dissemination and Communication of Project Results” were carried out and achieved. Furthermore, this report will outline the strategy for ensuring the continued and efficient dissemination of PRIMAGE activities, progress, and achievements during the third year of the project. The different sections of this report will address the actions that were taken by SIOP Europe and its partners during M13-M24 of the PRIMAGE Project, showing how optimal visibility and wide outreach to all stakeholders was achieved using the toolkit which was developed, as well as how results were disseminated to the scientific community, using the appropriate communication channels and dissemination tools. The D9.2 plan, together with the dissemination toolkit, were submitted to the EC Funding and Tender Portal on the 31st of March 2019. It is also available from the PRIMAGE shared document repository here: https://drive.google.com/drive/u/0/folders/1Z8bc18BDzaMmk8cKvQpzBQLiBukJ8ky4, https://drive.google.com/drive/u/0/folders/1Z8bc18BDzaMmk8cKvQpzBQLiBukJ8ky4 Links to the elements in the toolkit are included at the end of this document.

Background Physical inactivity and unhealthy dietary habits are known to be disadvantageous for the development of late adverse effects in survivors of childhood, adolescent, and young adult cancer. To make interventions, aimed at improving lifestyle, fit into the daily life of survivors, interventions should be designed and delivered in a person-centred way with a limited time burden. As part of the European PanCareFollowUp project, an eHealth intervention was developed to support sustainable changes to physical activity levels and/or diet of childhood, adolescent, and young adult cancer survivors. This feasibility study aims to gain insight into the feasibility and potential effect sizes of the PanCareFollowUp lifestyle intervention. Methods The PanCareFollowUp lifestyle intervention consists of person-centred 3–6 screen-to-screen sessions with a certified lifestyle coach. The intervention will be evaluated with a single-arm pre-post feasibility study conducted at two survivorship care clinics in the Netherlands. A total of 60 participants who are (i) diagnosed with cancer Discussion Data of this study will be gathered to assess the feasibility and potential effect sizes. This will allow for further intervention refinement as needed as well as to inform a future large-scale intervention study and a manual for implementation at other centres. Trial registration International Clinical Trial Registry Platform (ICTRP) number: NL8932 (ICTRP Search Portal (who.int)). Registered on September 29, 2020.

Background The majority of childhood cancer survivors are at risk of treatment-related adverse health outcomes. Survivorship care to mitigate these late effects is endorsed, but it is not available for many adult survivors of childhood cancer in Europe. The PanCareFollowUp project was initiated to improve their health and quality of life (QoL) by facilitating person-centred survivorship care. Methods The PanCareFollowUp consortium was established in 2018, consisting of 14 project partners from ten European countries, including survivor representatives. The consortium will develop two PanCareFollowUp Interventions, including a person-centred guideline–based model of care (Care Intervention) and eHealth lifestyle coaching (Lifestyle Intervention). Their development will be informed by several qualitative studies and systematic reviews on barriers and facilitators for implementation and needs and preferences of healthcare providers (HCPs) and survivors. Implementation of the PanCareFollowUp Care Intervention as usual care will be evaluated prospectively among 800 survivors from Belgium, Czech Republic, Italy and Sweden for survivor empowerment, detection of adverse health conditions, satisfaction among survivors and HCPs, cost-effectiveness and feasibility. The feasibility of the PanCareFollowUp Lifestyle Intervention will be evaluated in the Netherlands among 60 survivors. Results Replication manuals, allowing for replication of the PanCareFollowUp Care and Lifestyle Intervention, will be published and made freely available after the project. Moreover, results of the corresponding studies are expected within the next five years. Conclusions The PanCareFollowUp project is a novel European collaboration aiming to improve the health and QoL of all survivors across Europe by developing and prospectively evaluating the person-centred PanCareFollowUp Care and Lifestyle Interventions.

Background The majority of childhood cancer survivors are at risk of treatment-related adverse health outcomes. Survivorship care to mitigate these late effects is endorsed, but it is not available for many adult survivors of childhood cancer in Europe. The PanCareFollowUp project was initiated to improve their health and quality of life (QoL) by facilitating person-centred survivorship care. Methods The PanCareFollowUp consortium was established in 2018, consisting of 14 project partners from ten European countries, including survivor representatives. The consortium will develop two PanCareFollowUp Interventions, including a person-centred guideline–based model of care (Care Intervention) and eHealth lifestyle coaching (Lifestyle Intervention). Their development will be informed by several qualitative studies and systematic reviews on barriers and facilitators for implementation and needs and preferences of healthcare providers (HCPs) and survivors. Implementation of the PanCareFollowUp Care Intervention as usual care will be evaluated prospectively among 800 survivors from Belgium, Czech Republic, Italy and Sweden for survivor empowerment, detection of adverse health conditions, satisfaction among survivors and HCPs, cost-effectiveness and feasibility. The feasibility of the PanCareFollowUp Lifestyle Intervention will be evaluated in the Netherlands among 60 survivors. Results Replication manuals, allowing for replication of the PanCareFollowUp Care and Lifestyle Intervention, will be published and made freely available after the project. Moreover, results of the corresponding studies are expected within the next five years. Conclusions The PanCareFollowUp project is a novel European collaboration aiming to improve the health and QoL of all survivors across Europe by developing and prospectively evaluating the person-centred PanCareFollowUp Care and Lifestyle Interventions.

Background The majority of childhood cancer survivors are at risk of treatment-related adverse health outcomes. Survivorship care to mitigate these late effects is endorsed, but it is not available for many adult survivors of childhood cancer in Europe. The PanCareFollowUp project was initiated to improve their health and quality of life (QoL) by facilitating person-centred survivorship care. Methods The PanCareFollowUp consortium was established in 2018, consisting of 14 project partners from ten European countries, including survivor representatives. The consortium will develop two PanCareFollowUp Interventions, including a person-centred guideline–based model of care (Care Intervention) and eHealth lifestyle coaching (Lifestyle Intervention). Their development will be informed by several qualitative studies and systematic reviews on barriers and facilitators for implementation and needs and preferences of healthcare providers (HCPs) and survivors. Implementation of the PanCareFollowUp Care Intervention as usual care will be evaluated prospectively among 800 survivors from Belgium, Czech Republic, Italy and Sweden for survivor empowerment, detection of adverse health conditions, satisfaction among survivors and HCPs, cost-effectiveness and feasibility. The feasibility of the PanCareFollowUp Lifestyle Intervention will be evaluated in the Netherlands among 60 survivors. Results Replication manuals, allowing for replication of the PanCareFollowUp Care and Lifestyle Intervention, will be published and made freely available after the project. Moreover, results of the corresponding studies are expected within the next five years. Conclusions The PanCareFollowUp project is a novel European collaboration aiming to improve the health and QoL of all survivors across Europe by developing and prospectively evaluating the person-centred PanCareFollowUp Care and Lifestyle Interventions., + ID der Publikation: unilu_54299 + Sprache: Englisch + Bemerkungen: doi: 10.1016/j.ejca.2021.05.030 + Letzte Aktualisierung: 2021-07-08 09:47:43