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This interview forms part of our Humans of AI3SD Series.

This talk will cover aspects of ethical data management, focussing on the key issues of participant consent, data minimisation, and data anonymisation, using examples from health sciences and engineering. Content within the talk aims to cover: big picture issues (societal benefits to data sharing versus individual right to privacy), relevant legislation (GDPR, DPA 2018 and FoIA 2000), what happens when things go wrong, managing risk via informed consent, data minimisation and anonymisation (formal, statistical and functional) and best practice guidelines and tools.

Increasing researcher awareness of the importance of the links between good Research Data Management, published articles, funder requirements and the research lifecycle is a large part of a Research Support services’ role. Achieving this requires diverse strategies and innovative approaches. Recent initiatives from information professionals include the use of games as a mechanism for opening up a dialogue with their audience – using play to highlight issues, expectations and requirements, and provide an opportunity to measure understanding before, during and after a training session. The University of Bristol’s Research Data Service has adapted the cult game ‘Cards Against Humanity’ for a research environment. Whilst the game demonstrated here is specific to Research Data Management and its relationship to decisions made during the research lifecycle, the mechanism allows for adaptations across multiple fields: teams in contracts, ethics, research development and data protection can also benefit by developing their own questions and using this game as strategy to reach their audience. Through showing how the questions and answers are structured and providing examples (and exhibiting the game at the stand), this poster will demonstrate the simplicity and flexibility of the game’s mechanism, and how appropriate it is for the research environment. The game comprises black cards (question cards) and white cards (answer cards); white cards are a noun, a noun phrase, a gerund, or a gerund phrase and black cards are questions structured in a way that in the majority of cases, a white card answer can be played. The game is played by one player (the card Czar) asking a question from a black card. This is answered in turn by the rest of the group, each player justifying their answer. The card Czar judges the best answer, the winner is given the black card and becomes the next round’s card Czar. At the end of the game, the person with the most black cards is the winner. The original Cards Against Humanity game is renowned for its inappropriate question and answer combinations. Whilst the contentious content has been omitted, the spirit of the game has been kept by paying homage to the tone of the question cards and adding a small ratio of surreal comedy cards for those rounds where the player has no appropriate card to play. Thus, a deck containing a set of 30 black question cards has 180 white answer cards (of which 36 are comic).In addition to its use as a tool for engaging with researchers, Cards Against Humanity has openness at its core. The originators state it is ‘meant to be remixed’, and have issued Cards against Humanity with a CC-BY-NC-SA licence. The Bigger Blacker Cards card generator code used to create our game is distributed open source (GNU GPL) through GitHub. R.I.P. is easily transportable, comprising only a deck of cards, and can be used; as an icebreaker, to check existing knowledge; as a session round-up, to check understanding; as a lunchtime gaming session, perhaps with PGRs. There is also the potential to use larger, Velcro backed cards on a display board as a conversation starter at stalls and outreach events, as demonstrated at the poster stand.

Collection of materials from the event "GDPR in research - what does it mean for research institutions?" which was hosted byTU Delft Library on 30 August 2018. The collection includes the following materials: The programme of the event The welcome slide All presentations from the event All authors and event organisers are listed in alphabetical order. Any questions about these materials should be addressed to datastewards@tudelft.nl

There is an increased focus on the inclusion of data access statements in articles since the Engineering and Physical Sciences Research Council (EPSRC) expectation regarding this came into effect in May 2015. Data access statements are brief declarations in an article which cite any data underpinning claims and note any access restrictions placed upon these data, and the EPSRC expectation makes such a statement mandatory in any article acknowledging EPSRC funding. The University of Bristol has taken a variety of approaches to raise awareness of the requirements for data access statements, including promotional campaigns, email alerting and advocacy activities. In addition, we have developed guidance in several different formats. In addition to traditional discipline-specific guides, we have created an interactive web-based tool and a LaTeX package to help researchers create compliant statements. We have also worked collaboratively with other library teams, including Open Access, both to identify researchers in need of assistance and to monitor compliance. The latest fi gures indicate that 48% of researchers contacted have subsequently added compliant data access statements to their papers, and there has been a three-fold increase in the number of authors including compliant data access statements since our campaign to increase awareness began.