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Background and status of (inter)national research: During the beginning of the SARS-CoV2 pandemic, medical care focused on providing intensive care beds and ventilation capacities for acutely ill SARS-CoV2 patients. More than 124 000 (03/2022) people died in Germany because of or with COVID-19 [for full text, please go to the a.m. URL]

Hintergrund und Stand (inter)nationaler Forschung: Multiprofessionell arbeitende Palliativdienste etablieren sich zunehmend in Deutschland. In nicht auf Palliativversorgung spezialisierten Bereichen im Krankenhaus unterstützen sie Primärversorgende bei der Behandlung von Patient:innen mit [zum vollständigen Text gelangen Sie über die oben angegebene URL]

Background and status of (inter)national research: The current COVID-19 pandemic has severe societal, economic and political consequences worldwide. The global virus spread and the countermeasures impact noticeably on the health care sector, including specialist palliative care (SPC). While the principles [for full text, please go to the a.m. URL]

Background and status of (inter)national research: Patient-reported outcome measures (PROM) benefit care in many ways. Electronic PROMs serve to support symptom monitoring in palliative home care for patients with complex and highly fluctuating symptoms. eIPOS is an electronic version of the Integrated [for full text, please go to the a.m. URL]

The National Cancer Plan emphasises the importance of medical communication and calls for its integration into medical education and training. In this context, the Milestone Communication Approach meets the communicative challenges in dealing with lung cancer patients. Interprofessional tandems, consisting of doctors and nurses, conduct structured conversations at defined moments with patients and their relatives. The concept aims at shared decision making, continuity in the care of lung cancer patients and the early integration of palliative care. During the symposium on the Heidelberg Milestone Communication in January 2020, recommendations on the care situation of lung cancer patients in advanced stages were developed. In addition, the further adaptability of HeiMeKOM to other settings and hospitals and to other diseases was discussed as well as the possibility of implementing such a concept in standard care. This article presents the experiences, best practice examples and recommendations discussed during the symposium in order to enable their extrapolation to other similarly oriented projects. The long-term goal is to transfer the milestone concept to other hospital, primarily certified lung cancer centers, and to ensure permanent funding. For further dissemination of the concept and, above all, to have it established in standard care, health policy awareness and support are required in addition to the integration of the concept in competence catalogues of continuing medical and nursing education.Der Nationale Krebsplan hebt die Bedeutung der ärztlichen Kommunikation hervor und fordert deren Integration in die medizinische Aus- und Weiterbildung. In diesem Sinne begegnet das Konzept der Heidelberger Meilenstein Kommunikation den besonderen Herausforderungen im Umgang mit Lungenkrebspatientnnen mit einem interprofessionellen, strukturierten und vorausschauenden Ansatz. Interprofessionelle Tandems, bestehend aus ÄrztInnen und Pflegefachpersonen, führen gemeinsam strukturierte Gespräche zu definierten Zeitpunkten im Erkrankungsverlauf mit LungenkrebspatientInnen und deren Angehörigen durch. Das Konzept zielt auf Sensitivität im Hinblick auf die Präferenzen der PatientInnen und hat die vorausschauende gemeinsame Entscheidungsfindung, Kontinuität in der Betreuung von LungenkrebspatientInnen sowie das frühe Erkennen und Behandeln palliativer Erkrankungsstadien zum Ziel. Im Rahmen eines abschließenden Symposiums zur Heidelberger Meilenstein Kommunikation (30.–31.01.2020) wurden Empfehlungen zur Versorgungssituation von LungenkrebspatientInnen im fortgeschrittenen Stadium erarbeitet. Darüber hinaus wurden die weiterführende Übertragbarkeit von HeiMeKOM in andere Settings und Kliniken und auf andere Erkrankungen sowie die Möglichkeit der Abbildung eines solchen Konzeptes in der Regelversorgung diskutiert. Dieser Artikel stellt die im Rahmen des Symposiums diskutierten Erfahrungen, Best Practice Beispiele und Empfehlungen vor, um deren Übertragbarkeit auf andere, ähnlich ausgerichtete Projekte zu ermöglichen. Langfristig angestrebt wird die Übertragung des Meilenstein-Konzeptes in andere Kliniken, vorrangig zertifizierte Lungenkrebszentren sowie die Überführung in eine dauerhafte Finanzierung. Für die Weiterverbreitung dieser therapeutischen Innovation und vor allem für die Überführung in die Regelversorgung ist neben der Integration des Konzeptes in Kompetenzkataloge der ärztlichen Weiterbildung sowie der Pflegefortbildung v. a. gesundheitspolitische Unterstützung erforderlich.

Additional file 3: Supplementary file WP1. Interview Online Survey Relatives.

Additional file 10: Supplementary file WP4. Online Survey PC Hospital.

Additional file 5: Supplementary file WP2. Interview guide Oncologists.

Additional file 8: Supplementary file WP3. Online Survey SPHC.

Additional file 7: Supplementary file WP3. Interview Guide SPHC.

Additional file 4: Supplementary file WP2. Interview guide Mobile care services.

Additional file 6: Supplementary file WP2. Online Survey Oncologists.

Purpose: The effect of the duration of an educational rotation presented at a palliative care unit on the palliative care knowledge gain and the increase of palliative care self-efficacy expectations are unclear. Methods: This national prospective multicenter pre–post survey conducted at twelve German University Comprehensive Cancer Centers prospectively enrolled physicians who were assigned to training rotations in specialized palliative care units for three, six, or twelve months. Palliative care knowledge [in %] and palliative care self-efficacy expectations [max. 57 points] were evaluated before and after the rotation with a validated questionnaire. Results: From March 2018 to October 2020, questionnaires of 43 physicians were analyzed. Physicians participated in a 3- (n = 3), 6- (n = 21), or 12-month (n = 19) palliative care rotation after a median of 8 (0–19) professional years. The training background of rotating physicians covered a diverse spectrum of specialties; most frequently represented were medical oncology (n = 15), and anesthesiology (n = 11). After the rotation, median palliative care knowledge increased from 81.1% to 86.5% (p

Additional file 9: Supplementary file WP4. Interview guide PC Hospital.

Additional file 2: Supplementary file WP1. Interview Guide Relatives.

Hintergrund und Stand (inter)nationaler Forschung: Die spezialisierte Palliativversorgung (SPV) wird in Deutschland durch Palliativstationen, Palliativdienste und Teams der spezialisierten ambulanten Palliativversorgung (SAPV) erbracht. Die Unterscheidung zwischen den drei Versorgungssettings kann somit [zum vollständigen Text gelangen Sie über die oben angegebene URL]

Background and state of research: Effects of the COVID-19 pandemic have an impact on the health care system in Germany. Specialist palliative home care (SPHC) teams enable patients to stay at home or in nursing homes by providing multi-professional care in home visits. In times of the COVID-19 pandemic [for full text, please go to the a.m. URL]

Background The use of drugs beyond their authorisation label, i.e. off-label-use, is common practice in palliative care with over 70% of off-label-use having little or no scientific support. Recommendations for off-label-use are essential to increase the safety of drug therapy and thus patient safety. The aim was to develop a guide for preparing and consenting drug-specific recommendations for off-label-use in palliative medicine.Methods Group Delphi Study with three rounds and a prior online survey. Participants represented professional groups working in palliative care involved in direct patient care and/or drug management (doctors, pharmacists, nurses) and various care settings (inpatient/community, university/non-university). Furthermore, representatives of relevant professional associations, experts with academic, non-clinical background and experts with international expertise were invited.Results For the preliminary online-survey 18/20 invited participants returned 18 questionnaires. Six domains, including identification of drugs, drug uses, assessment of evidence, formulation, consensus and updating of recommendations were generated and eventually 22 statements were included in the Group Delphi process. 15 experts participated in this consensus process. In combination with the survey results, consensus was achieved over a 28 statements after 3 Delphi rounds.Conclusions The resulted systematic approach for preparing and consenting drug-specific recommendations for off-label-use will allow to develop such recommendations with transparent and reproducible monographs. This will help to increase treatment quality and patient safety as well as security of decision-making in palliative care. The developed guide is part of a larger project aiming to provide therapy recommendations for areas that have little or no scientific evidence to date.

Hintergrund: In der Palliativmedizin wird die Integrierte Palliative Outcome Skala (IPOS) zunehmend als multidimensionales und patientenberichtetes Messinstrument verwendet. IPOS dient zur Erfassung von Palliativbedürfnissen bei Patienten mit fortgeschrittener, lebenslimitierender Erkrankung und[zum vollständigen Text gelangen Sie über die oben angegebene URL], 18. Deutscher Kongress für Versorgungsforschung (DKVF)