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1. Diffuse juvenile systemic sclerosis patients show distinct organ involvement and have more severe disease in the largest jSSc cohort of the world. Results from the the juvenile scleroderma inception cohort

Author

Foeldvari, Ivan, Klotsche, Jens, Kasapcopur, Ozgur, Adrovic, Amra, Torok, Kathryn, Terreri, Maria Teresa, Sakamoto, Ana Paula, Feldman, Brian, Sztajnbok, Flavio, Stanevicha, Valda, Anton, Jordi, Johnson, Sindhu, Khubchandani, Raju, Alexeeva, Ekaterina, Katsicas, Maria, Sawhney, Sujata, Smith, Vanessa, Appenzeller, Simone, Avcin, Tadey, Kostik, Mikhail, Lehman, Thomas, Malcova, Hana, Marrani, Edoardo, Pain, Clare, Schonenberg, Dieneke, Sifuentes-Giraldo, W.-Alberto, Vasquez-Canizares, Natalia, Costa Reis, Patricia, Janarthanan, Mahesh, Moll, Monika, Nemcova, Dana, Patwardhan, Anjali, Santos, Maria Jose, Abu Al-Saoud, Sima, Battagliotti, Christina, Berntson, Lillemor, Bica, Blanca, Brunner, Juergen, Cimaz, Rolando, Eleftheriou, Despina, Harel, Liora, Horneff, Gerd, Kaiser, Daniela, Kallinich, Tilmann, Lazarevic, Dragana, Minden, Kirsten, Nuruzzaman, Farzana, Opsahl Hetlevik, Siri, Uziel, Yosef, and Helmus, Nicola

Subjects
Medicine and health
Abstract

Introduction: Juvenile systemic sclerosis (jSSc) is an orphan disease with a prevalence of 3 in 1,000,000 children [ref:1]. In adult patients there are significant differences between the clinical presentation of diffuse and limited subtypes [ref:2]. We reviewed clinical differences [for full text, please go to the a.m. URL]

Published
2022
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2. Juvenile systemic sclerosis treatment practices in an international cohort and comparison to recent SHARE consensus guidelines

Author

Foeldvari, Ivan, Klotsche, Jens, Kasapcopur, Ozgur, Adrovic, Amra, Torok, Kathryn, Terreri, Maria Teresa, Sakamoto, Ana Paula, Feldman, Brian, Anton, Jordi, Sztajnbok, Flavio, Stanevicha, Valda, Appenzeller, Simone, Avcin, Tadey, Johnson, Sindhu, Khubchandani, Raju, Kostik, Mikhail, Marrani, Edoardo, Sifuentes-Giraldo, W.-Alberto, Nemcova, Dana, Santos, Maria Jose, Schonenberg, Dieneke, Battagliotti, Christina, Berntson, Lillemor, Bica, Blanca, Brunner, Juergen, Cimaz, Rolando, Eleftheriou, Despina, Harel, Liora, Horneff, Gerd, Janarthanan, Mahesh, Kallinich, Tilmann, Lehman, Thomas, Moll, Monika, Nuruzzaman, Farzana, Patwardhan, Anjali, Smith, Vanessa, and Helmus, Nicola

Subjects
Medicine and health
Abstract

Introduction: Juvenile systemic scleroderma (jSSc) is an orphan disease with a prevalence of 3 in 1,000,000 children [ref:1]. Currently no medications are licensed for the treatment of jSSc. Due to its rarity, only recently have the first management and treatment guidelines been published, [for full text, please go to the a.m. URL]

Published
2022
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3. Patient and physician reported outcomes of juvenile systemic sclerosis patients significantly improve over 12 months observation period in the juvenile systemic scleroderma inception cohort

Author

Foeldvari, Ivan, Klotsche, Jens, Kasapcopur, Ozgur, Adrovic, Amra, Torok, Kathryn, Terreri, Maria Teresa, Feldman, Brian, Anton, Jordi, Katsicas, Maria, Stanevicha, Valda, Sztajnbok, Flavio, Appenzeller, Simone, Avcin, Tadey, Kostik, Mikhail, Marrani, Edoardo, Sifuentes-Giraldo, W.-Alberto, Johnson, Sindhu, Khubchandani, Raju, Nemcova, Dana, Santos, Maria Jose, Battagliotti, Christina, Berntson, Lillemor, Bica, Blanca, Brunner, Juergen, Cimaz, Rolando, Eleftheriou, Despina, Harel, Liora, Horneff, Gerd, Janarthanan, Mahesh, Kallinich, Tilmann, Minden, Kirsten, Moll, Monika, Nielsen, Susan, Patwardhan, Anjali, Schonenberg, Dieneke, Smith, Vanessa, and Helmus, Nicola

Subjects
Medicine and health
Abstract

Introduction: Juvenile systemic sclerosis (jSSc) is an orphan disease with a prevalence of 3 in 1,000,000 children [ref:1]. The Juvenile Systemic Scleroderma Inception cohort (jSScC) is the largest cohort of jSSc patients in the world. The jSScC collects longitudinal data prospectively in [for full text, please go to the a.m. URL]

Published
2022
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